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Family Resources and Supports Institute 2012

One Door: Early Start and Prevention Resource and

Referral Services(PRRS)

Susan Roddy, PRRS Director

Sherry Torok, Executive DirectorExceptional Family Resource Center

FRCNCA Vice Chair

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FRCNCA Overview

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Established in 1993Works on behalf of 47 ESFRCsRecognized as only statewide network of FRCsImplements special initiatives

FRCNCA Facts at a Glance

Partnership and Partnership and CollaborationCollaboration

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CollaborationFor more than 23 years,

Early Start Family Resource Centers have collaborated

with community partners to provide information, referrals,

trainings, resources and services for infants and

toddlers and their families.

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Recent changes in legislation have altered the ways in which families with children who are at-risk receive information, referrals and services.

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2009 2009

““At risk” category eliminated from Early At risk” category eliminated from Early Start eligibilityStart eligibility

Prevention Program establishedPrevention Program established

20112011

Prevention Resource and Referral Prevention Resource and Referral Services (PRRS) establishedServices (PRRS) established

What happens to babies in What happens to babies in the 2009 Prevention the 2009 Prevention

Program?Program?

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Continue until 36 months of age Continue until 36 months of age or or

until the regional center determines until the regional center determines the child is eligible for Early Start or the child is eligible for Early Start or

Lanterman Services Lanterman Services or or

until June 30, 2012, whichever is until June 30, 2012, whichever is earlierearlier

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2011 Prevention Resource and Referral Services

Who provides the Who provides the services?services?

DDS contracted with FRCNCA for DDS contracted with FRCNCA for statewide implementation of PRRS.statewide implementation of PRRS.

FRCNCA coordinates and monitors FRCNCA coordinates and monitors PRRS statewide through contracts PRRS statewide through contracts with local ESFRCs.with local ESFRCs.

ESFRCs provide resource, referral and ESFRCs provide resource, referral and outreach services.outreach services.

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FRCNCA Responsibilities FRCNCA Responsibilities for PRRS:for PRRS:

Contract, coordinate, Contract, coordinate, monitor and evaluate monitor and evaluate statewide PRRS services statewide PRRS services thru 41 local contracts.thru 41 local contracts.

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Develop materials Develop materials Provide training and Provide training and

technical assistancetechnical assistance Design and implement Design and implement

policies and procedurespolicies and procedures Develop and maintain a Develop and maintain a

data systemdata system

DDocuments that are available ocuments that are available on the frcnca.org website:on the frcnca.org website:

Welcome LetterWelcome Letter

Introduction to PRRS Introduction to PRRS Services for Families and Services for Families and CaregiversCaregivers

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Orientation Script: Introducing Orientation Script: Introducing Parents who have been referred Parents who have been referred from Regional Center to PRRS from Regional Center to PRRS ServicesServices

Introducing Others to PRRS Services: Introducing Others to PRRS Services: eligibility and referral information eligibility and referral information added to use when doing outreach added to use when doing outreach

Confidentiality Statement FormConfidentiality Statement Form

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Parent Consent for Services Parent Consent for Services FormForm

Parent Consent for Release and Parent Consent for Release and Exchange of Information Exchange of Information

Among AgenciesAmong Agencies

School District Assessment School District Assessment LetterLetter

Developmental Materials ListDevelopmental Materials List

Local Community Agencies Local Community Agencies LogLog

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PRRS Glossaries of Terms PRRS Glossaries of Terms and Acronymsand Acronyms

General TerminologyGeneral Terminology Data TerminologyData Terminology Financial TerminologyFinancial Terminology  

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What is happening to What is happening to babies babies

and their families?and their families?

Who are the babies we Who are the babies we are talking about?are talking about?

Infants and toddlers “at risk” Infants and toddlers “at risk” for developmental delay or for developmental delay or

disabilities under disabilities under age three with two age three with two or more risk factors.or more risk factors.

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2020

Those diagnosed by qualified Those diagnosed by qualified clinician (pediatrician, family clinician (pediatrician, family physician, regional center, physician, regional center,

High Risk Infant High Risk Infant Program, Neonatal Program, Neonatal Intensive Care Unit, Intensive Care Unit, etc.).etc.).

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Babies with a parent with a Babies with a parent with a developmental developmental disability.disability.

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Children who may be at risk for Children who may be at risk for autism. autism.

Where are the babies Where are the babies coming from?coming from?

Babies referred to regional Babies referred to regional centers who are found centers who are found ineligible for Early Start but ineligible for Early Start but meet the new eligibility for meet the new eligibility for PRRS will be referred to an PRRS will be referred to an ESFRC with parent consent.ESFRC with parent consent.

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Even if you have a referral from a doctor or qualified clinician who does not believe that the child will qualify for Early Start services, the Regional Centers are to be the single point of entry for PRRS referrals.

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……new processes new processes are hard for are hard for everybody!everybody!

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What do families What do families receive?receive?

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Prevention Resource and Referral Services are provided at no cost to families.

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Enhanced information and Enhanced information and resourcesresources

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Referral to local Referral to local regional centersregional centersIntake, evaluation and assessment will provide a “baseline” for the child, that will help in tracking developmental changes and possible future need for services.

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Planned check inPlanned check in Contact family within two days Contact family within two days of referralof referral

Check in with Check in with family at 30 family at 30 days and days and quarterlyquarterly

ESFRC Responsibilities:ESFRC Responsibilities:

Serve families!Serve families!

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Dialogue with families Dialogue with families regarding their concerns, regarding their concerns, priorities and resources.priorities and resources.

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Provide enhanced Provide enhanced information, resources and information, resources and referral to appropriate referral to appropriate services in the community, services in the community, based on family based on family preference.preference.

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Support family from referral Support family from referral to to Early Start Early Start eligibility eligibility PPrevention revention RResource and esource and RReferral eferral SServiceservices

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Facilitate families’ access to Facilitate families’ access to community servicescommunity services

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Whenever possible Whenever possible make face-to-face make face-to-face contact, at least contact, at least annuallyannually

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Re-refer to regional center Re-refer to regional center if developmental concerns if developmental concerns are suspected.are suspected.

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Prepare family to transition Prepare family to transition from PRRS by age three.from PRRS by age three.

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Track and collect data for Track and collect data for submission to submission to

FRCNCA and FRCNCA and DDS.DDS.

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Outreach to health community, Outreach to health community, local services, and local services, and developmental screening developmental screening opportunities that opportunities that

enhance referrals enhance referrals and access to and access to community services.community services.

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Maintain interactive and Maintain interactive and fluid listing of community fluid listing of community services options.services options.

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Implement MOU with local Implement MOU with local regional center. regional center.

Regional Center Regional Center responsibilities:responsibilities:

Point of entry for all Point of entry for all children suspected of children suspected of having a developmental having a developmental delay including those with delay including those with established risk and those established risk and those at risk.at risk.

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Conduct Conduct evaluation/assessment for evaluation/assessment for Early Start eligibility. Early Start eligibility.

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Refer PRRS eligible Refer PRRS eligible children to ESFRC with children to ESFRC with parent consent.parent consent.

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Implement MOU with Implement MOU with ESFRC.ESFRC.

What does this mean to What does this mean to you?you?

Continue to refer high risk Continue to refer high risk and medically fragile and medically fragile infants and toddlers to infants and toddlers to your regional center! your regional center!

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Parents who have Parents who have concerns concerns continue continue to to have a right to have have a right to have their children evaluated their children evaluated for Early Start eligibilityfor Early Start eligibility

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