Family carer of dependent person Challenges and best practices in Spain Jesús Mª Rodrigo Executive...
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Transcript of Family carer of dependent person Challenges and best practices in Spain Jesús Mª Rodrigo Executive...
Family carer of dependent person Challenges and best practices in
Spain
Jesús Mª RodrigoExecutive Director
CEAFA
COFACE SeminarDependet persons in the European Union:
Who cares their family carers?Sofía, 20 October 2009
Alzheimer Disease
• 8% of people more than 65 years old is afected by dementia, but the disease is not exclusive of ageing
• In 2020, 7 million people afected in Spain. In 2050, 100 millIon in the World
• Alzheimer Disease is the most frequently cause of dependence
Alzheimer disease afects both who suffers it, and their family carers
The care in the family
• The attention is offered mainly in the familiar framewok and seccondary by programmes and public services
• The responsability of care fall on women, and particulary on single daughters
• The care generates a high economical, social, psychologycal… impact for the carer and the hole family
Positive effects of family care
• Dependent person may live in his usual frame, in known atmosphere and with closer people
• Prevent to put the dependent person in a residence, reducing public ressources
• Improve the quality of life of dependent person and of the rest of family, because familiar relationship is a warranty of an adeccuate attention
PHASE YEARSYMPTOMS
PERSON SUFFERING FROM AD FAMILY
FIRST
1
Self-esteem reduction Fear deterioration Some confusion Feels clumsy Self defence mechanisms
Observe estrange reactions Take the person to neurologist
DIAGNOSTIC
2
3
Forgetfulness Lost of vocabulary Space and temporal confusions Difficulties for mechanical activities Agitation, nervousness
Diagnosis impact Information phase Planning phase Main carer Alter of family live
SECOND
4
Forgets recent events Hardly does activities Doesn’t know big part of lexicon Doesn’t understand new situations Doesn’t recognize places and times
Main carer: Anguish for deterioration of loved one. Fear for future. Physical and psychical tiredness
Rest of family: Establish a time routine to take over the main carer. Anxiety and contradictory feelings
5
6
Walks clumsily Can’t dress, eat, walk by self Needs constant attention Affectivity is the link with life
THIRD
7
Doesn’t eat and recognize Doesn’t speak Unconscious almost day To stand still
Main carer: Feelings of loneliness, impotent. Difficulty to face up to biologycal death of loved one
Rest of family: Planning to take over the main carer and help in mobility, hygiene, etc.
8
9
Alternates bed with sofa Sleeping almost time Some shot moments of conscience Breathing, feeding, dermatology problems appear
Consequences for
family carer
• Personal
• Social
• Profesional
• Economics
“Colateral effects” for family carer
• Physical alterations
• Psychological disorders
• Social disorders
Gender of main carer
PROFIL OF MAIN CARER FEMALE
DISEASE PHASES
FIRST SECOND THIRTH
Age 56 years 55 years 57 years
Family relationship 56% spouse44% doughte
r
47% spouse47% sons6% others
41% spouse59% doughte
r
Withdraw of profesional activity 35% 13,9% 31,7%
Familiar unity members 3,19 3,28 3,19
Helping members 1 1,06 1
Time from diagnoses 3,24 years 6,19 years 8,21 years
Time attending the dependent person
5 years 7,3 years
Economic impact in the family
Best practice in Spain
The Asociations. A resource of comprehensive care
• The AFAS are private non-profit, legally constituted, who work in the field of action for the collective interests of those affected by Alzheimer's disease and their families.
• They conduct their activities primarily with volunteers, even though they have paid professionals, complementing efforts and functions
More than 280 associations spread across the Spanish geography,
CEAFA integrated, providing, inter alia, the following specific services
for all people affected by Alzheimer's disease
Reception and Information
Social Care
Psychological Care
Training
Advice
Day Centers Cognitive stimulation for people suffering from Alzheimer
managed by AFAS
Health Area
Psycho-social Area
Neuropsychologic and Behavourial AreaFamily intervention
Functional Area
Another Good Practice
Spanish Act of Dependency
• The Act aims to regulate the basic conditions guaranteeing equality in the exercise of subjective rights of citizenship in the promotion of personal autonomy and care for people in a dependent position (...) by creating a System for Autonomy and Care Unit, with the cooperation and participation of all government and ensuring the General State Administration a minimum of common rights for all citizens in any part of the Spanish State
Thank you very much for your attention
[email protected]+34 902 174 517