Family Caregiving Summit @ NYAM April 30, 2014 Robin Fenley, PhD, LCSW NYC Department for the Aging...
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Transcript of Family Caregiving Summit @ NYAM April 30, 2014 Robin Fenley, PhD, LCSW NYC Department for the Aging...
Family Caregiving Summit@
NYAMApril 30, 2014
Robin Fenley, PhD, LCSWNYC Department for the Aging
For another person, do you…?
Pay bills Shop for groceries Pick up prescriptions Set up medications Prepare meals Provide transportation Do laundry
Accompany to MD Help someone
Dress Bathe Eat Toilet Transfer
Coordinate care
> 65 million informal caregivers of persons 18+ 1.4 million in NYC (2010 BRFS Report) 65+ expected to double to 70 million by 2030
Provide 80% of help required over course of illness
NAC/AARP, 2009
Initial hurdles
Self identification as caregiver
Reluctance to accept caregiver role 43% of NAC/AARP (2009) respondents felt
they had no choice in taking on caregiver role
Role changes
Competing demands Personal life Family life Professional life
Caring for aging relatives AND Kids, siblings, friends, partners
Multiple stressors can increase risk for depression & for abuse
Typical Caregiver
49 year old married female, employed, with young kids caring for her 69 year old mom
NAC/AARP, 2009
Caregivers Work
On average, care is provided for more than 20 hrs/week for almost 5 years (4.6) Women: ~22 hrs/wk Men: 17 hrs/wk
57% of respondent caregivers were employed 46% F/T; 11% P/T
73% worked at some point in caregiving career
NAC/AARP, 2009
…with 70%..
Rearrange work schedule Decrease hours at work Take unpaid leave Frequent absences from job Forego promotions Resign/retire early
NAC/AARP, 2009
Unseen Caregiving Populations
UndocumentedLimited or non-English speakingGrandparentsLGBTDisabledMentally illYoung caregivers
Long-Distance Caregiving
Accurate assessment of need Extent of self-care
Finding resources Putting them in place Providing oversight Affordability
Guilt over absence, old family matters
Caregivers & Service Usage
Only 10% to 20% of family caregivers use formal services
About one-half of primary caregivers provide care without outside help (friends, neighbors)
First Steps
Learn about the illness/diagnosisDiscuss healthcare wishes & financing the
caresBroaden circle of care to other family
members & close friendsIdentify appropriate community servicesFind support
Caregiving doesn’t have to be a negative experience Increased sense of fulfillment Self-esteem Spiritual growth Mastery Renewal of commitment
Most Requested Services
TransportationInformation on financial assistanceRespite careTechnology
PERS Telemed Record tracking/organizer Sensors
• Falls, stoves, wandering
NAC/AARP 2009
Resources - National Centers for Medicare & Medicaid Services
www.cms.gov
Compare drug & health plans Medicare basics
www.medicare.gov
Compare nursing home ratings
www.medicare.gov/NHCompare
Compare Medicare-funded home health agencies (CHHA’s)www.medicare.gov/HomeHealthCompare
Family Caregiver Alliancewww.caregiver.org
Nat’l Alliance for Caregivingwww.caregiving.org
Nat’l Academy of Elder Law Attorneys, Inc.www.naela.org
Nat’l Assoc of Professional Geriatric Care Managerswww.caremanager.org
The Eldercare Locatorwww.eldercare.gov800.677.1116
Resources - NYS Dept of Health
www.health.ny.gov Medicaid MLTCs
Partnership for LTC www.nyspltc.org Combines LTC insurance &
M’caid extended coverage NH, HC, ALPs
Office on Agingwww.aging.ny.gov Senior Helpline: 800.342.9871
Office of Temporary & Disability Assistance
www.otda.ny.gov Assistance with cash,
heating, food, SSD/SSI claims; refugee & immigrant assistance
Resources – City Dept for the Aging
www.nyc.gov/aging Nat’l Family Caregiver Support Program311
Human Resources Administrationwww.nyc.gov/hraInfo Line: 718.557.1399
Alzheimer's AssociationNYC Chapterwww.alz.org/nyc646.744.2900
Health Information Tool for Empowerment (HITE) www.hitesite.org
Directory of health & social services for low-income, uninsured & underinsured (NY)