Exploring Resources for Minority, Multilingual and Multicultural Clients.
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Transcript of Exploring Resources for Minority, Multilingual and Multicultural Clients.
Exploring Resources for Minority, Multilingual and Multicultural Clients
Define consumer health information as compared to patient education,
Identify current trends of health information, Identify health seeking behavior of consumers, Define problems, challenges, concerns with
health literacy for multilingual consumers, List selected multilingual consumer health
resources, and Identify diversity and communication issues with
serving multilingual consumers.
Access to quality health information improves health decisions
Health disparities positively affected with access to credible health information
Access to health information leads people to ask informed questions
“…an umbrella term encompassing the continuum extending from the specific information needs of patients to the broader provision of health information for the lay person"
(Consumer and Patient Health Information Section [CAPHIS] of the Medical Library Association [MLA] at www.caphis.mlanet.org/activities/#purpose)
Information on health and medical topics provided in response to requests from the general public, including patients and their families
May be information on the symptoms, diagnosis and treatment of disease
May encompass information on health promotion, wellness, preventive medicine, and accessing the health care system
Can be actively sought or provided through a campaign targeting a specific health condition
A planned activity Initiated by a health professional in order
to impart knowledge, change attitudes and build skills
Has the specific goal of changing behavior, increasing compliance with
therapy and, thereby, improving health
Patients started taking more responsibility for their own health care decisions and acting as their own advocates.
The "baby boom" generation, known for questioning authority, started to reach the age when medical concerns increase.
Health care providers adopted managed care models to curtail health care costs.
The introduction of user-friendly Web browsers in 1995 made both access and dissemination of information on the Internet fast, easy and free.
Computers became affordable
From MLA News, January 2003/Number 351, pg. 14
Eighty percent of American internet users--some 113 million adults--have searched for information on at least one of seventeen health topics
Most internet users start at a general search engine when researching health and medical advice online (66%)
72% visited multiple sites Most felt confident in their search
From the Pew Internet & American Life Project, October 29, 2006http://www.pewinternet.org/
Only a quarter of online health seekers said they always or usually check the source and date
In the 2001 report – half said they did so And, half of the searches on the Internet are
on behalf of someone else
From the Pew Internet & American Life Project, October 29, 2006http://www.pewinternet.org/
Family and friends Newspapers, magazines, pamphlet Television, radio Family doctor or other physician, doctor’s
staff Health educators & patient educator Public health workers and…
Medical libraries (if open to the public) Consumer health libraries Public libraries Churches, parish nurses, health ministers Pharmacy/pharmacist
Conversations with doctors are often confusing for me. They might well have warned me about the [procedure], but I didn’t catch it. They carefully explain things to me, and I make like the intelligent, deeply comprehending person I wish I could be. I nod and furrow my brow. The doctors’ words run down one of my deep furrows and keep right on running, out to the foggy sunset…I just can’t focus on all the variables.
Jack SlaterSeattle Times, December 3, 2003
Physician’s query: “I need information on the management of hypomagnesemia.”
Patient’s query: “I had diarrhea and I was in the hospital for 18 days and now I’m supposed to have transfusions. The doctor says it’s to fix my muscles and nerves. Can you look this up?”
Actual reference question What the patron meant
Sick lick vomiting Cyclic vomiting
Vascular urethral reflux Vesicoureteral reflux
Dropped bladder Cystocele
Fireballs in the eucharist Fibroids in the uterus
The set of abilities needed to:
recognize a health information need; identify likely information sources and use
them to retrieve relevant information; assess the quality of the information and
its applicability to a specific situation; and analyze, understand, and use the
information to make good health decisions.
MLA Task Force on Health Information Literacy
An estimated 90 million adults may lack the literacy skills to use the US health system effectively
Over 300 studies show that health-related materials far exceed the average reading ability of US adults
Health literacy is fundamental to quality health care
Institute of Medicine report “Health Literacy: A Prescription to End Confusion”
Imagine how much more complicated this gets when you also factor in multicultural and multilingual considerations!
Set of behaviors that allows effective work to occur
Culture – patterns of behavior Competence – having the
capacity to function effectively
Cultural Competence
• http://www.xculture.org/• Bilingual medical glossaries in 21 different
languages--downloadable
• http://www3.baylor.edu/~Charles_Kemp/refugee_health.htm
http://www.depts.washington.edu/pfes/cultureclues.html
NN/LM- Consumer Health Information in Many Languages Resources
http://nnlm.gov/outreach/consumer/multi.html A collaboration of the National Network of
Libraries of Medicine (NN/LM) Consumer Outreach Librarians
Customized Search Engine to search the listed web sites (not dictionaries)
Immunization Action Coalition◦ http://www.immunize.org/catg.d/noneng.htm◦ Includes Vaccine Information Sheets in 36
languages
National Center for Farmworker Health◦ http://www.ncfh.org/pateduc.htm
US FDA Easy to Read English/Spanish◦ http://www.fda.gov/opacom/lowlit/englow.html
Oregon Health Sciences University/Hood River Community Health Outreach Project http://www.ohsu.edu/library/hoodriver/pamphlets/pamphletindex.shtml
MedlinePlus◦ Over 750 health topics including conditions,
procedures, wellness topics, and demographic groups
◦ Full-text drug and herbal information◦ Full-text encyclopedia with illustrations◦ También en español and…
Over 40 languages Quality guidelines for
health information in multiple languages
Several web-based resources focusing on selected ethnic and cultural groups:◦American Indian Health
americanindianhealth.nlm.nih.gov◦Tribal Connections
www.tribalconnections.org◦Asian American Health
asianamericanhealth.nlm.nih.gov◦Arctic Health
www.arctichealth.orgMore are in the works…
DiversityRX◦ http://www.diversityrx.org/
University of Michigan Health System: Cultural Competence Web Resources◦ http://www.med.umich.edu/Multicultural/ccp/culco
mp.htm American Association of Colleges of
Pharmacy: Cultural Competence◦ http://www.aacp.org/site/page.asp?TRACKID=&VI
D=1&CID=1181&DID=6751
http://www.fda.gov/womens/taketimetocare/mymeds.html
US FDA Office of Women’s Health and The National Association Of Chain Drug Stores
1999!
http://www.walgreens.com/spanish/default.jsp
http://spiral.tufts.edu/ Selected Patient
Information Resources in Asian Languages
Aging, Medicines and Alcohol (U.S. Substance Abuse and Mental Health Services Administration - SAMSHA)
Antibiotics (Federation of Chinese American and Chinese Canadian Medical Societies - FCMS)
Using Herbs (Health Information Translations) Coumadin (Warfarin) (NYU Downtown
Hospital/Ehrman Digital Library) Pain Management (University of Michigan Health
System)
http://palantir.lib.uic.edu/salud/
A Tutorial from the NLM http://www.nlm.nih.gov/medlineplus/
webeval/webeval.html
RHIN: Refugee Health Information Network http://www.hablamosjuntos.org/pdf_files/
Brief_NonEngl-Final2.pdf Developing Better Non-English Materials:
Understanding the Limits of Translation
Lisa Massengale, MLSAssistant Information Services Librarian
University of Illinois at ChicagoLibrary of the Health Sciences
For all regions: 800-338-7657Press 1 for your Regional Medical Library
Jacqueline Leskovec, MLIS, MA, RNOutreach and Evaluation Coordinator
NNLM/[email protected]
