Establishing and Sustaining HIV Care and Treatment in ... · prevention, care, and treatment...

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Establishing and Sustaining HIV Care and Treatment in Communities Vulnerable to Large Increases in HIV/HCV Presenters: LaNisha Childs, Senior Program Analyst, National Association of County and City Health Officials (NACCHO) Kimberly Scott, Acting Director, HIV Care Services, Virginia Department of Health Tammie Woodson, Field Operations Manager, Virginia Department of Health Moderator: Gretchen Weiss, Director, HIV, STI, & Viral Hepatitis, NACCHO

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Page 1: Establishing and Sustaining HIV Care and Treatment in ... · prevention, care, and treatment capacity. 3. Identify approaches to building and sustaining HIV care and treatment services

2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Establishing and Sustaining HIV Care and Treatment in Communities Vulnerable to Large Increases in HIV/HCV

Presenters: LaNisha Childs, Senior Program Analyst, National Association of County and City Health Officials (NACCHO) Kimberly Scott, Acting Director, HIV Care Services, Virginia Department of Health Tammie Woodson, Field Operations Manager, Virginia Department of Health Moderator: Gretchen Weiss, Director, HIV, STI, & Viral Hepatitis, NACCHO

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Disclosures Presenter(s) has no financial interest to disclose. This continuing education activity is managed and accredited by Professional Education Services Group in cooperation with HSRA and LRG. PESG, HSRA, LRG and all accrediting organization do not support or endorse any product or service mentioned in this activity. PESG, HRSA, and LRG staff has no financial interest to disclose.

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Learning Objectives After this session, participants will be able to:

1. Identify the conditions for vulnerability to an HIV and HCV outbreak related to injection drug use, particularly in suburban and rural communities.

2. Organize opportunities and formulate plans for identifying and responding to increases in HIV and HCV among people who inject drugs (PWID), particularly in suburban and rural areas that lack existing HIV prevention, care, and treatment capacity.

3. Identify approaches to building and sustaining HIV care and treatment services within communities where there is limited to no existing infrastructure, resources, and capacity.

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Obtaining CME/CE Credit If you would like to receive continuing education credit for this activity, please visit:

http://ryanwhite.cds.pesgce.com

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Session Overview • Overview of the HIV outbreak in Scott County, Indiana • Discussion of the similarities between Scott County,

Indiana and Wise County, Virginia • Look at Virginia’s vulnerability to rapid increases in HIV or

HCV infection among PWID • Review Virginia’s planning efforts to respond to this

vulnerability • Discussion of Virginia’s efforts to establish the

infrastructure for prevention and harm reduction interventions and HIV/HCV treatment in rural areas

• Review opportunities for disease intervention

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Demographics

• Austin, Indiana is a small town located in rural Scott County.

• The city of Austin is roughly 2.5 square miles.

• Approximately 4200 residents (25% are under the age of 18)

1 Disease Intervention Specialist (DIS) covers all of Region 9

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Indiana Outbreak Identification • In late 2014, 3 new HIV diagnoses in rural Indiana

• 2 individuals reported to the DIS that they had shared needles

• By mid January 2015, 8 more new infections were identified in a jurisdiction with a total of 5 new HIV infection from 2009 – 2013

• All cases reported injection of the opioid analgesic oxymorphone (Opana® ER and generic ER)

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Height of the Response

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

3 11

26

55

76 83

99

129 138

145 150

155 166

181 184 188 [VALUE] 198

Case Count Timeline

1-Jan 30-Jan 25-Feb 18-Mar 26-Mar 1-Apr 11-Apr 20-Apr Apr-16 1-May 7-May 14-May

1-Jun 28-Aug 4-Dec 1-Feb 26-Apr 9-Jun

Case Count Timeline

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Indiana’s EMAC Request Indiana requested personnel from other states to assist

• Trained DIS • Contact Tracing • Rapid Testing • Phlebotomy • Patient Interviews

Virginia Department of Health sent two Field Operations Staff • Both were current DIS supervisors • Both were formers DIS • Both had participated in outbreak response events in

the past

(Emergency Management Assistance Compact)

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Case Demographics • Median age: 33 years, range 18 – 60 years • Male: 57% • 100% White non-Hispanic • Risk factors

o 95% reported injecting drugs: Oxymorphone, meth, heroin o 5.7% reported exchanging sex for drugs or money

• Drug use o Multi generational sharing of injection equipment o Daily injections 4-15 times per day o Number of partners: 1-6 per injection event

• Socioeconomic factors o High poverty (19%) and unemployment (8.9%) o Low education levels (21.3% do not complete high school) o Lack of health insurance

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Case Epidemiology • Total cases: 200 • 463 of 521 (89%) named contacts linked to outbreak have

been located and offered testing • Contacts remaining to trace: 1 • Positivity rate among tested contacts: 39% • Average number of unique contacts per case: 8 (range: 0-

80) • Infection drug users: 96% • HCV co-infection: 94%

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Scott County Continuum of HIV Care – 6/8/2016

100%

92%

73%

66%

60%

0

10

20

30

40

50

60

70

80

90

100

Eligible* Engaged in Care** Care coordination Prescribed ARV's*** Virally suppressed***

N=191 N=115 N=126 N=140 N=175

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Lessons Learned 1. Expect the unexpected

• Outbreak potential for HIV is high in communities where HCV prevalence is high among PWID

• Encourage healthcare providers to promptly report new HIV and HCV cases

• Become familiar with local data so any increases are easily identified before an outbreak occurs

• Look for clusters of HIV and HCV

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Lessons Learned 2. Engage the community in advance

• Identify community partners and leadership for assistance, services, and potential response

• Increase testing in high-risk communities

• Consider PrEP among high-risk individuals

• Increase awareness/availability of addiction recovery services and Medication-Assisted Treatment (MAT)

• Syringe services programs (SSPs) must be part of a comprehensive response and embraced by the community

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Lessons Learned 3. Assess your internal resources

• Ensure leadership fully understands the importance of DIS

• Build capacity of the DIS workforce

• Pre-establish an incident command structure

• Monitor resources carefully

• Plan de-escalation and long-term sustainability at the same time

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Why Indiana? Why Virginia?

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Scott County, IN Population of Scott County: 24,000 Population of City of Austin: 4,200 Poverty: 19% Education: 21.3% do not graduate from high school

Population of Wise County: 39,000 Population of City of Wise: 3,200 Poverty: 21.9% Education level: 26.3% do not graduate from high school

Wise County, VA Demographic Comparison

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Scott County, IN Wise County, VA

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Indicators: Outbreak Risk

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Vulnerability Assessment CDC identified eight (8) counties in the Southwest region of state as being vulnerable for rapid dissemination of HIV or HCV infection among PWID.

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Appalachia HCV Testing Data

0.0%

5.0%

10.0%

15.0%

20.0%

25.0%

Under 18 18-29 30-39 40-49 50-59 60+

Figure A.. Percentage of individuals tested at free testing sites Jan 2014 – Mar 2016 with past or present HCV infection.

HCV positivity by age

Appalachia Non-Appalachia

6% 11%

13% 16%

10%

41% 40%

60% 65%

50%

0%

20%

40%

60%

80%

18-29 30-39 40-49 50-59 60+

Figure B.. Percent of individuals tested at free testing sites January 2014 – March 2016 with a positive HCV antibody test or HCV RNA test.

Appalachia

No IDU IDU

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HIV Testing in Southwest Virginia (2015)

There were 10,922 tests completed at publicly-funded HIV testing sites in Calendar Year 2015.

• 57.0% of the tests completed were female; however, they represented only 2.6% of persons who tested positive.

• 39 positive, 0.36% positivity rate 97.4% male 5.1% injection drug use (IDU)

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81%

56%

43% 42%

100%

81%

65%

54% 55%

71% 66%

52% 55%

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

Persons diagnosedand living with HIVas of 12/31/2015

Diagnosed in 2015and linked to HIV

care within 90 days

Evidence of HIVcare in 2015

Retained in HIVcare in 2015

Virally suppressedin 2015

Persons living with HIV in Virginia as of 12/31/2015 (N=24,853) Persons diagnosed with HIV in Virginia in 2015 (N=929)

10,706

HIV Continuum of Care, 2015: Virginia, Southwest Region, and Counties of Vulnerability

Data current as of December 2015; Accessed March 2016; Virginia Department of Health, Division of Disease Prevention. Vulnerable counties include: Buchanan Co., Dickenson Co., Lee Co., Patrick Co., Russell Co., Norton (city), Tazewell Co., Wise Co., and Wythe Co. Data for 2015 should be considered preliminary and may be incomplete due to reporting delay.

Persons living with HIV in the Southwest region as of 12/31/2015 (N=2,103) Persons diagnosed with HIV in the Southwest region in 2015 (N=68) Persons living with HIV in the nine vulnerable localities as of 12/31/2015 (N=184) Persons diagnosed with HIV in the nine vulnerable localities in 2015 (N=7)

1,127

96

10,350

1,159

101

13,945

1,366

122

754

55

5

24,853

2,103

184

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81%

56%

43% 42%

100%

N/A

50%

42% 40%

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

Persons diagnosedand living with HIV as

of 12/31/2015

Diagnosed in 2015and linked to HIV care

within 90 days

Evidence of HIV carein 2015

Retained in HIV carein 2015

Virally suppressed in2015

Persons living with HIV in Virginia as of 12/31/2015 (N=24,853) Persons diagnosed with HIV in Virginia in 2015 (N=929)

173

754

13,945 10,706

72

HIV Continuum of Care, 2015: Virginia versus Injection Drug Users (IDUs) in the Southwest Region of Virginia

IDUs in the Southwest region as of 12/31/2015 (N=173) Persons diagnosed with HIV in the Southwest region in 2015 (N=0)

24,853

10,350 87

69

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Applying Lessons Learned Challenges faced by Indiana Virginia’s interventions

Very few insured/limited access to services

Federal and state grants for health; high rate of PLWH enrollment in market place insurance through ADAP

Number of HIV/HCV cases ↑ HCV testing; ↑ acute HCV infections in Southwest. HIV/HCV cases in Southwest small, but PLWH more likely have HCV co-infection.

Limited HIV awareness Testing events, social media, Treatment Works!

Limited addiction services ↑ availability treatment services (MAT) in region

Focus on HIV services RWHAP B; other resources; LHDs, DIS; private sector; telemedicine

Lack of syringe services or syringe services are illegal

Exploring 2nd legislative attempt for syringe exchange; changes in federal law; and issuance of 2016 HHS Guidance for SSPs

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Virginia’s Interventions • Outbreak Preparedness Exercise • Importance of biomedical interventions for prevention of HIV

acquisition, HIV treatment, and Hepatitis C treatment • Exploring legislative proposals for Safe Syringe Services

Programs • Importance of resource allocations and points of service for: Substance abuse and addiction treatment services

including MAT Comprehensive harm reduction Mental Health Injecting drug user health (holistically) Vaccinations and immunizations

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Virginia’s Interventions

Capacity Building

Health Services

Addiction Treatment Epidemiology

Media and Messaging

Testing

Community Engagement

Southwest Virginia

Syringe Services

(still needed)

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Southwest HIV Outbreak Exercise 2016: SWOBEX

• Virginia Department of

Health Office of Epidemiology

• Virginia Department of Health Office of

Emergency Preparedness April 13-14, 2016

Virginia’s Tabletop Exercise

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Tabletop Exercise •Scope •Mission Area •Core Capabilities •Participating Agencies

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Tabletop Exercise Objectives • Discuss procedures, capabilities, and readiness of the

health districts and community to respond to large number of HIV cases.

• Review and discuss plans, capabilities, and authority for responding to a high-risk infectious disease emergency.

• Examine and demonstrate public notification procedures.

• Examine and demonstrate public notification and information sharing procedures to address messaging and coordination with stakeholders.

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Tabletop Exercise Preliminary Findings

Immediate Actions • Review comprehensive harm

reduction strategies • After Action Debrief among VDH

staff • Re-vamped FY 16 RWHAP

Supplemental Application to fund 8 DIS positions

• Exploring legislative proposal for SSPs (2nd attempt)

• Launch of telemedicine for HIV care in Lenowisco Health District

Long Range Planning • Identifying additional

partners • Cultivating partnerships • Allocating resources • Implementing interventions

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Comprehensive Harm Reduction—Critical Strategies

Sterile injection equipment access

Used injection equipment

disposal

SUD treatment

Overdose prevention

Benefits and insurance navigation

Risk reduction counseling

PrEP, nPEP, Hep vaccine

Access to supplies

Referral & navigation

Testing

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Partner Services • DIS training and mentoring opportunities

• Active referral

• Linkage to care

• Enhanced contact tracing

• Cross-jurisdictional collaboration • Interstate Communication Control Record (ICCR) • Coverage assessment to determine additional resources • Comprehensive service for clients

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Linkage to Care • Active Referral to Care

• Data to Care

• Black Box Exercise

• No Wrong Door for Testing (and HIV Care)

• Cross-Jurisdictional Collaboration

• Integrated HIV Prevention and Care Plan, CY 2017-2021

• Trauma-Informed Care/Relief Services

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Take Home • Utilize the lessons learned in other jurisdictions • Focus on prevention, but simultaneously develop a

comprehensive response plan • Identify and engage local partners • Develop DIS skillset • Increase prevention education in rural communities • Identify opportunities to build infrastructure and capacity to

address increases in morbidity • Community engagement is a key step in building trust

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Acknowledgements

• Health Resources & Services Administration

• Centers for Disease Control and Prevention • Division of HIV/AIDS Prevention • Division of Viral Hepatitis • Division of STD Prevention

• Scott County Health Department • Indiana State Department of Health

• Virginia Department of Health • Central Office • Lenowisco Health District

• Office of Epidemiology • Division of Disease Prevention

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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

Contact Information LaNisha Childs, Senior Program Analyst, HIV, STI, & Viral Hepatitis 202-595-1123 [email protected] Kimberly Scott, Acting Director, HIV Care Services 804-864-7213 [email protected] Tammie Woodson, Field Operations Manager 804-864-7979 [email protected] Gretchen Weiss, Director – HIV, STI, & Viral Hepatitis 202-507-4276 [email protected]