ERIC BENCHIMOL, MD, PhD, FRCPC Assistant Professor of Pediatrics & Epidemiology University of Ottawa...
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ERIC BENCHIMOL, MD, PhD, FRCPC Assistant Professor of Pediatrics & Epidemiology University of Ottawa Children’s Hospital of Eastern Ontario Ottawa, ON SOCIAL MEDIA FOR RESEARCH Opportunities for Collaboration and Knowledge Translation JAY HOCHMAN, MD Pediatric Gastroenterologist GI Care for Kids Atlanta, GA
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Transcript of ERIC BENCHIMOL, MD, PhD, FRCPC Assistant Professor of Pediatrics & Epidemiology University of Ottawa...
ERIC BENCHIMOL, MD, PhD, FRCPCAssistant Professor of Pediatrics & EpidemiologyUniversity of OttawaChildren’s Hospital of Eastern OntarioOttawa, ON
SOCIAL MEDIA FOR RESEARCHOpportunities for Collaboration and
Knowledge Translation
JAY HOCHMAN, MDPediatric GastroenterologistGI Care for KidsAtlanta, GA
ERIC BENCHIMOL, MD, PhD, [email protected]/in/ericbenchimolResearchGate.net/profile/Eric_Benchimol
SOCIAL MEDIA FOR RESEARCHOpportunities for Collaboration and
Knowledge Translation
@uOttawaMed
• ca.linkedin.com/in/ericbenchimol/
JAY HOCHMAN, MD@gutsandgrowthPediatric Gastroenterology Blog:
GutsandGrowth.wordpress.com
SOCIAL MEDIA (DEFINITION)
• Any technology that facilitates communication or collaboration between humans.
Click View then Header and Footer to change this footer
CRITICISMS OF SOCIAL MEDIA
• Growth of technology• Privacy• Banality• Peripherality• Loss of authoritative perspective• Information overload• Work/life balance
Cann, Social Media: A Guide for Researchers, 2011
Bik and Goldstein, PLoS Biology, 2013
OBJECTIVES
• Review the use of social media to convey knowledge to the public (blogs)
• Review opportunities to use social media for research knowledge translation (Twitter)
KNOWLEDGE KNOWLEDGE TRANSLATIONTRANSLATION
(or “Why I Tweet”)(or “Why I Tweet”)
KNOWLEDGE TRANSLATION
• Definition:“the exchange, synthesis, and ethically-sound application of knowledge—within a complex set of interactions among researchers and users—to accelerate the capture of the benefits of research for Canadians through improved health, more effective services and products, and a strengthened health care system”
Canadian Institutes of Health Research (2004)
TIMELINE
• Feb/2009: Attending KT course at the Hospital for Sick Children (Toronto)
• Mar/2009: Started Twitter accounts @ericbenchimol (professional, general), @NewInIBD (IBD-related)
• Jan/2011: Changed @NewInIBD to @CHEOIBD to reflect CHEO IBD Centre
TIMELINE
KNOWLEDGE TRANSLATION (SCIENTIFIC)
Bik and Goldstein, PLoS Biology, 2013
10 Rules of Tweeting
• @blakehounshell (editor, Foreign Policy)1. THINK before you Tweet2. Be indispensable.3. Be a real person.4. Don’t overshare.5. Don’t be a me-tweeter.6. Credit your sources.7. Be transparent about what you know, how you know it.8. Bring the non-Twitter world into Twitter.9. Don’t get into flame wars. Don’t poke the trolls.10.Engage your readers – they’re smarter than you.
KNOWLEDGE TRANSLATION (SCIENTIFIC)• Twitter:
– @NASPGHAN: #naspghan2013– @GIKidsOrg– @AmerGastroAssn
• Debate:– Usefulness of micro-blogging– Accuracy– Unpublished, non-peer review information
Nature Methods 2011;8(4):273Winstead, NCI Cancer Bulletin, 2011
Social Media Guidelines for AACR Conferences
KNOWLEDGE TRANSLATION(PUBLIC)• Medical knowledge IS being disseminated
using social media• Survey of tweets on antibiotic use:
– 29.8% on general use– 16.2% advice/information– 11.6% on effects/negative reactions– 10.5% on diagnosis– 9.5% on resistance– 5.6% misunderstanding/misuse
Scanfeld et al., Am J Infect Control, 2010
Chafe et al., Nature, 2011
KNOWLEDGE TRANSLATION(PUBLIC)
Chafe et al., Nature, 2011
KNOWLEDGE TRANSLATION(PUBLIC)
Chafe et al., Nature, 2011
• Scientists use:– Reports– Briefing notes– Press releases, news conferences
• Patient groups:– Social media
‘Clinical Equipoise’ vs. ‘Facebook Equipoise’!
GRANT-WRITING KT STRATEGY
• #1 – Establish a social media presence– Theme– Target audience– Collaborations– Boil-down research to 140 characters?
GRANT-WRITING KT STRATEGY
• Questions to answer:– Who is your target audience?– How will you engage them and when?– What do they need to know?– How will your message be packaged?– How will your message be delivered to the
targeted audience?– What do you hope to achieve by sharing your
message?
Adapted from: Goering et al., Final report submitted to Ontario Ministry of Health – Research Transfer Training Program, 2003
GRANT-WRITING KT STRATEGY
• Questions to answer:– Who is your target audience?– How will you engage them and when?– What do they need to know?– How will your message be packaged?– How will your message be delivered to the
targeted audience?– What do you hope to achieve by sharing your
message?
Adapted from: Goering et al., Final report submitted to Ontario Ministry of Health – Research Transfer Training Program, 2003
GRANT-WRITING KT STRATEGY
• Example:– “The investigators have established a focused
social media presence on ________ (>xxx followers) in order to disseminate knowledge to the public and interested parties. Additionally, the groups most affected by this study’s findings will receive specific information on how study results may impact them using Facebook groups, Twitter and other social media outlets. We will evaluate responses to our messages and the extent of propagation of results to guide future knowledge translation efforts.”
Bik, PLoS Biology, 2013
GETTING INVOLVED
BOTTOM LINE
• Social media is here to stay
• Far reach
• Influencing science
DEVELOP A STRATEGY
REFERENCE
• Social Media: A Guide for Researchers
http://www.rin.ac.uk/our-work/communicating-and-disseminating-research/social-media-guide-researchers
• Bik and Goldstein. An Introduction to Social Media for Scientists.PLoS Biology 2013; 11(4): e1001535
PATIENT RECRUITMENT
Another real life example
• Study on assessment of complementary feeding • Recruitment via “old” mechanisms: 1 in one year• Recruitment via “new” mechanisms:• https://www.facebook.com/AssessmentofComplementar
yFeeding?ref=stream• 45 children in 5 months!!
PATIENT RECRUITMENT
• Lots of evidence for effectiveness– Use of Twitter to survey about dental pain
– Use of MySpace to monitor HPV vaccine debate
– Patient opinion after NIH Consensus Statement on VBACs
Romano et al., J Perinatal Educ, 2010
Keelan et al., Vaccine, 2010
Heaivilin et al., J Dent Res, 2011
PATIENT RECRUITMENT
• Lots of evidence for effectiveness– CCFA Partners Internet cohort (n=7819)
– Patient Assessment of Chronic Illness Care– 94.5% response rate!
Randell et al., Inflamm Bowel Dis, 2013
Long et al., Inflamm Bowel Dis, 2012
PATIENT RECRUITMENT
• Lots of evidence for effectiveness
• Also lots of evidence for concern:– Ethics– Privacy– Selection bias
