Epilepsy & Law in India Bookepilepsyindia.org/documents/EpilepsyLawIndia_Book.pdf · Epilepsy is a...
Transcript of Epilepsy & Law in India Bookepilepsyindia.org/documents/EpilepsyLawIndia_Book.pdf · Epilepsy is a...
Indian Epilepsy Association
Indian Epilepsy Society
INDIAN EPILEPSY ASSOCIATION-18th INTERNATIONAL EPILEPSY CONGRESS TRUST
AND LAW IN INDIA
PILEPSY
INDIAN EPILEPSY ASSOCIATION-
18th INTERNATIONAL EPILEPSY CONGRESS TRUST
Indian Epilepsy Association
Indian Epilepsy Society
AND LAW IN INDIA
PILEPSY
Published by
INDIAN EPILEPSY ASSOCIATION-
18TH INTERNATIONAL EPILEPSY CONGRESS TRUST
K-10/10 DLF CITY-II, GURGAON-122002
e-mail : [email protected]
© 2017 by Indian Epilepsy Association-18th International Epilepsy Congress Trust.
All rights reserved.
This work is protected under copyright under the Indian Epilepsy Association-18th
International Epilepsy Congress Trust and the following terms and conditions apply to its
use:
Photocopying
Single photocopy of single chapter may be made for personal use. Multiple or systematic
copying is permitted free of charge for educational institutions that wish to make
photocopies for non-profit educational classroom use, but not for sale/resale purposes.
Permission of the Indian Epilepsy Association-18th International Epilepsy Congress Trust
is required for advertising, promotional purposes or sale/resale of all forms of document
delivery.
Printed in India by:
Surbhi Printrographics, email: [email protected]
First edition 2017
DISCLAIMER
The information provided on various aspects of the Indian Law in regard to Epilepsy is solely
meant for benefit of the people with epilepsy, their care givers, healthcare providers and the
general public. It confers no right, title or interest upon anyone. The publication of this
material is without any personal or organizational liability of the Indian Epilepsy Association
(IEA) or its office bearers, the Indian Epilepsy Society (IES) or its office bearers or of the doctor,
researchers and all other persons associated with it. This disclaimer constitutes an essential
part of this publication. The publisher or IEA and/or the IES makes no guarantee that
information provided is accurate, reliable, timely, uninterrupted, error-free, or otherwise will
meet anyone's expectations. The execution of this publication does not constitute any legal
obligation or commitment by either party to pursue, discuss, and consider the contents
thereof. No one shall have any obligation, express or implied by law, with respect to trade
secret or proprietary information of the other party except as set forth herein. Any failure to
enforce any provision of this publication shall not constitute a waiver thereof or any of its
provisions. No legal proceedings of any nature whatsoever can be proposed or initiated
against any of the settlers.
Sannidhi,
Contents
Epilepsy and Education
Epilepsy and Leisure activities
Epilepsy and Driving
Epilepsy and Career and job opportunities, Discrimination at work place
Epilepsy and Marriage
Epilepsy and Life and Health Insurance
Status Epilepticus
1
(iv)
(v)
(vii)
5
6
9
10
11
Epilepsy and Income Tax
Addendum
19
22
Statement of Intent
Preface
Members of the Expert Group
Epilepsy and Disability 15
Preface
EPILEPSY AND INDIAN LAW - STATEMENT OF INTENT
The entire data has been complied with an aim to make it readily available
to the people with epilepsy, their care givers, physicians and the general
public. It is emphasized once again that this attempt is aimed solely to
make available the various provisions under the Indian Law. The users
must make the final decision about their individual situation after
verifying the facts in consultation with the legal experts.
We are very hopeful that just as our past initiatives of the Trust, this one too
will go a long way in fulfilling this unmet need of the millions of PWE and
their care givers in India.
SATISH JAIN, MD; DM; FRCPConvener of the Expert Group; President of the IEA andVice President of the IEA-18thIEC Trust
(iv)
Preface
Preface
Epilepsy is a chronic disorder characterized by recurrent unprovoked
seizures. The WHO estimates that epilepsy is one of the most common
serious brain disorders. It affects the individual patient and the caregivers.
It is estimated that there may be about 6-12 million people with epilepsy in
India.
Despite good advances in medical therapy, Persons with Epilepsy (PWE)
still face issues which seem to thwart their normal life style. While social
issues form major part of their impaired life style, they face many legal
hurdles making their overall life more difficult than normal individuals.
IEA-18thIEC Trust stands by all measures which can improve the life of
PWE. Apart from active support to areas related to enhancement of
knowledge of the members of Indian Epilepsy Association (IEA) and
Indian Epilepsy Society (IES), steps have been taken to improve public
knowledge of the subject by active support to seminars, awareness
sessions, production of films and audio-visual material. The Guidelines for
the Management of Epilepsy in India (GEMIND) and the Epilepsy
Teaching Programme (ETP) were important steps taken to enhance the
desired knowledge on epilepsy of medical professionals who may or may
not be members of IEA/IES.
In its recent meeting the Trust had decided to work on compiling a
document in regard to the “updated legal issues which seem to
undermine the life of PWE in India” on a similar pattern that was followed
for the GEMIND.
There is already an attempt to organise extensive patient education
programs and awareness campaign. This will empower the patients to
become more aware of their rights. They should be in a position to exercise
their full legal rights and for this purpose the medical profession should
become their first source of helpful information. Unfortunately, in some
cases, a doctor despite exercise of "good faith" could still not have access to
helpful laws in this regard.
(v)
Epilepsy and Law in India
Preface
A multidisciplinary team of experts with the active help and support of IEA
and IES was formed to go into as many aspects of legal issues in India that
could be addressed. A meeting of the experts was held in New Delhi on
March 27, 2016 during which the available information in regard to
epilepsy and various laws in India was reviewed.
Dr M Gourie-Devi Dr VS Saxena
Chairpersons
(vi)
Preface
Members of the Expert Group
Chairpersons: Dr M Gourie-Devi, Dr VS Saxena
Convenor: Dr Satish Jain
(vii)
S No
Name Affiliation
1 Dr BC Bansal INDIAN EPILEPSY ASSOCIATION-18th INTERNATIONAL EPILEPSY CONGRESS TRUST
3 Ms Kavita Shanb hag
INDIAN EPILEPSY ASSOCIATION Representative
4 Mr KV Muralidharan
INDIAN EPILEPSY ASSOCIATION Representative
5 Dr MM Mehndiratta
INDIAN EPILEPSY SOCIETY Representative
6 Dr Bindu Menon INDIAN EPILEPSY SOCIETY Representative
7 Dr Manjari Tripathi
Special Invitee – Medical
8 Mr Deepak Sharma
Special Invitee - Legal Expert
9 Mr Ashish Special Invitee - Legal Expert
10 Mr T D Dhariyal Special Invitee – Former Dy. Chief Commissioner, Persons with Disabilities, GOI
11 Dr Menka S Jain Special Invitee – Former Director of Industrial Health, Ministry of Railways, GOI
2 Dr R Shukla INDIAN EPILEPSY ASSOCIATION-18th INTERNATIONAL EPILEPSY CONGRESS TRUST
Members:
Preface
The Constitution (Eighty-sixth Amendment) Act, 2002 inserted Article 21-A in the
Constitution of India to provide free and compulsory education of all children in
the age group of six to fourteen years (up to 18 years in case of children with
disabilities) as a Fundamental Right in such a manner as the State may, by law,
determine. The Right of Children to Free and Compulsory Education (RTE) Act,
2009 mandates that every child has a right to full time elementary education of
satisfactory and equitable quality in a formal school which satisfies certain essential
norms and standards.
The child with epilepsy may need different support services during his/her
educational years such as remediation therapy, shadow teachers and some
concessions during exams. These concessions may vary depending on the Central
or State Boards such and the National Institute for Open Schooling (NIOS).
Procedures for applying and concessions that are available vary among different
Boards. Most Boards require a disability certificate from a Government Doctor and
information about the child's requirements from the School Principal. The type of
concessions granted will depend on the needs of the child and the policy of the
Board.
There are additional guidelines available on concessions for children having
different disabilities (including those having epilepsy with disability).
Benefits provided by the Central Board of Secondary Education (CBSE) to
students with different disabilities in their school board exams.
Extracts from “EXAMINATION BYE-LAWS 1995 (UPDATED UPTO JANUARY
2013)
“
Exemption from examination in the third language may be granted to the following
categories of students:
(a) Foreign nationals studying in schools affiliated to the Board;
(b) Wards of Indian nationals admitted to class IX after a minimum of two years of
stay abroad;
(c) Students admitted to class IX from school affiliated to State Boards, where only
two language formula is in vogue.
(d) Blind students, those suffering from speech or hearing defects, Dyslexic and
candidates with disabilities as defined in the Persons with Disabilities Act, 1995.
CENTRAL BOARD OF SECONDARY EDUCATION”:
23. Exemption from Examination in the Third Language
1
Epilepsy and Education
Preface
24. Exemption to Blind, Physically Handicapped, Autistic, Dyslexic, Spastic and
candidates with disabilities as defined in the Persons with Disabilities Act, 1995
Mathematics, Science, Social Science, another language, Music, Painting, Home
Science, Introductory Information Technology, Commerce(Elements of
Business) & Commerce (Elements of Book Keeping and Accountancy)
25. Use of Amanuensis and Appointment of Amanuensis (another person acting
as a writer):
(i) Spastic, Blind, Physically Handicapped, Dyslexic, Autistic and Candidates with
disabilities as defined in the Persons with Disabilities Act, 1995 appearing for the
Secondary School Examination or Senior School Certificate Examination is
permitted to use an amanuensis (another person acting as a writer) or allowed
additional time as given below or both.
For paper of 3 hours duration 60 minutes
For paper of 2½ hours duration 50 minutes
For paper of 2 hours duration 40 minutes
For paper of 1½ hours duration 30 minutes
(ii) The Board will consider the Physio-therapic exercises as equivalent to Physical
and Health Education course of the Board.
(iii) Candidates with visual and hearing impairment, Spastic, Dyslexic, Autistic and
candidates with disabilities as defined in the Persons with Disabilities Act, 1995
have the option of studying one compulsory language as against two. This
language should be in consonance with the overall spirit of the Three Language
Formula prescribed by the Board. Besides one language any four of the following
subjects be offered:
(i) Amanuensis may be allowed in the following cases:
(a) To a Blind, Physically Handicapped, Spastic and candidates with disabilities
as defined in the Persons with Disabilities Act, 1995.
(b) on sudden illness rendering the candidate unable to write as certified by a
Medical
Officer of the rank not lower than Asstt. Surgeon.
(c) in the case of an accident rendering the candidate unable to write the
examination as certified by a Medical Officer of the rank not lower than Asstt.
Surgeon.
(ii) The amanuensis must be a student of a class lower than the one for which the
candidate is taking the examination.
2
Preface
(iii) The Superintendent of the examination centre concerned shall choose a suitable
amanuensis and forward immediately to the Regional Officer concerned of the
Board, a report giving full particulars of the candidate and of the amanuensis for his
consideration and approval.
(iv) The Superintendent shall arrange a suitable room for the candidate for whom
an amanuensis is allowed and appoint one special Assistant Superintendent to
supervise his examination.
(v) The services of amanuensis shall be provided free of cost.
(vi) The amanuensis shall be paid by the Board a remuneration as prescribed from
time to time.”
The above benefits/ facilities are available to students with disabilities who may
appear from Patrachar Vidyalayas or as private candidates also. Specific provisions
exist in the bye- laws for them as well.
Benefits for students with disability (and/or epilepsy) under the Govt. of India's
Sarva Siksha Abhiyan (www.ssa.nic.in) or other similar initiatives:
?Extra time may be provided, as per the needs of the child. Breaks may
beallowed during this time to counter fatigue
Provision for special needs of children with epilepsy can be sought if it can be
established that a child with epilepsy has certain special needs and can be covered
in any of the following 05 categories mentioned below {this is the extract from the
SSA Assessment Guidelines for Children with special needs (CWSN)}as “Epilepsy”
is neither mentioned specifically in PwD Act nor in SSA guidelines,
1. Low Vision
2. Cerebral Palsy
3. Multiple Disabilities
4. Intellectual Impairment
a. Mild Mental Retardation
b. Slow Learners
c. Specific Learning Disabilities
5. Autism
Some children can also be evaluated for special needs under General Evaluation
Techniques for CWSN like:
? Use of technology e.g. computers, tape recorders, voice synthesizers to be
allowed as per the needs of the child
3
Preface
?Assessment procedures may include objective type questions, instead of essay
type questions for children with difficulties in language acquisition, questions
to be modified e.g. simple language
?Timing of evaluation may be necessary, where children are on specific regular
medication.
?The special needs of a child with epilepsy should be taken up with the school
authorities along with supporting documents. The dialogue with the school
authorities should be aimed at the following:
?To identify dominant focus related skill in the affected child and its
development by specialized trained teachers.
?To involve Ministry of Social Justice and Empowerment (Govt .of India) and the
concerned State Govts.
?To open special Teachers Training Centers for PWE (CWSN) providing
meaningful education to PWE with an aim to raise their confidence levels necessary
to a lead normal life.
?Exposure to normal school atmosphere by grouping PWE with normal students
to improve group behavior.
Children with epilepsy who may have issues in going to school for reasons of
distance, terrain etc. should be encouraged to study under National Institute of
Open Schooling.
NIOS has its Regional Centres and the Study Centres across the country. The
contact details of its Headquarter are as under:
A-24/25, Institutional Area, Sector - 62, NOIDA
Distt. Gautam Budh Nagar, Uttar Pradesh - 201 309.
Toll Free: 1800-180-9393
Web Site:
Chairman: Tel: 0120-2403173, 0120-4089802 Fax: 0120-4089813
Email:
Secretary: Tel: 0120-2402889, 0120-4089809 Fax: 0120-2403172
Email:
Educational benefits for students with disability under the NIOS scheme.
National Institute of Open Schooling
www.nos.org
4
Preface
There are no laws in India in regards to sports, leisure activities and epilepsy.
This report (whose summary is given below) was written by experts selected by the
International League Against Epilepsy (ILAE) and was approved for publication by
the ILAE. Opinions expressed by the authors, however, do not necessarily
represent the policy or position of the ILAE.
Summary
People with epilepsy (PWEs) are often advised against participating in sports and
exercise, mostly because of fear, overprotection, and ignorance about the specific
benefits and risks associated with such activities. Available evidence suggests that
physical exercise and active participation in sports may favorably affect seizure
control, in addition to producing broader health and psychosocial benefits. This
consensus paper prepared by the International League Against Epilepsy (ILAE)
Task Force on Sports and Epilepsy offers general guidance concerning participation
of PWEs in sport activities, and provides suggestions on the issuance of medical
fitness certificates related to involvement in different sports. Sports are divided into
three categories based on potential risk of injury or death should a seizure occur:
group 1, sports with no significant additional risk; group 2, sports with moderate
risk to PWEs, but no risk to bystanders; and group 3, sports with major risk. Factors
to be considered when advising whether a PWE can participate in specific
activities include the type of sport, the probability of a seizure occurring, the type
and severity of the seizures, seizure precipitating factors, the usual timing of
seizure occurrence, and the person's attitude in accepting some level of risk. The
Task Force on Sports and Epilepsy considers this document as a work in progress to
be updated as additional data become available.
In general, if a person is free from seizures he/she and is on antiepileptic drugs,
most of the sports and leisure activities can be undertaken. The problem arises
when the seizures are frequent and poorly controlled. For them any type of
activities, which may endanger their life or that of others due to an accident
resulting from a seizure, should be avoided.
?Capovilla, G., Kaufman, K. R., Perucca, E., Moshé, S. L. and Arida, R. M. (2016),
Epilepsy, seizures, physical exercise, and sports: A report from the ILAE Task Force
on Sports and Epilepsy. Epilepsia, 57: 6–12. doi: 10.1111/epi.13261
?
Epilepsy, seizures, physical exercise, and sports: A report from the ILAE Task
Force on Sports and Epilepsy
Reference:
http://www.epilepsyindia.org/socialaspect_sports_iea.html
5
Epilepsy, Sports and Leisure Activities
Preface
In India, the Motor Vehicle Act is uniform all over the country and is formulated by
the Central Government. The State Government is authorized to make required
amendments with a view to implement the laws.
The Motor Vehicle Act, 1939 empowered transport authorities to deny a driving
license to anyone with even a single seizure at any point in his/her life. Following a
series of modifications, current regulations require all applicants to fill up an
'application cum declaration of physical fitness' form. If declared as having
epilepsy, the applicant is required to undergo a medical examination. Even in the
case of positive medical recommendations, there is no provision to issue a driving
license if the person has epilepsy.
Current status on issuing of Driving License is that all applicants irrespective of age,
have to fill up Form – 1 (Application cum declaration to the physical fitness) and if
declared as having epilepsy, then has to undergo a medical examination. In spite of
medical recommendations, there is no provision to issue a driving license if the
person has epilepsy. Thus, according to current Indian Law, as of now a person with
epilepsy cannot drive. Medical examination is compulsory irrespective of age for all
applicants for transport vehicle driving license. For non-transport vehicle driving
license, medical examination is required only if they are above the age of 50 years.
The Indian Epilepsy Association (IEA) has been addressing various issues related
to the right of epilepsy patients. In view of the changed scenario in the management
of epilepsy, the IEA has been working towards an amendment in the Motor Vehicle
Act in India.
Legislative course of action in India
In view of the above, the IEA approached the Indian government with an appeal to
introduce amendments in regulations concerning driving and epilepsy in the
Indian law. Addressing the Minister of Surface Transport in 2005, the IEA
suggested the following course of action:
1. Issue of driving license to PWE;
2. Issue of license is qualified, in the sense that it is subject to certain conditions;
3. License should be issued to those who have not suffered an epilepsy attack in
the last one or two years;
4. In the general interest of the public, license should not be issued to PWE who
may want to be drivers of public transport vehicles and heavy vehicles;
Epilepsy and Driving
6
Preface
5. Make it mandatory for the person to inform the appropriate authority if he/she
develops a seizure;
6. The doctor in-charge of the PWE should inform the appropriate authority if the
person has seizures;
7. All doctors should have a copy of the guidelines on this issue which can be
supplied by the IEA.
The IEA has also suggested an amendment in the form used as an 'application cum
declaration of physical fitness'. Instead of assessing the epilepsy condition of the
applicant in general, the form should ask specifically whether the applicant has
suffered from epilepsy or from sudden attacks of loss of consciousness during the
last two years.
The Ministry of Surface Transport had forwarded the application of the IEA to the
Ministry of Health. The latter in turn, seeing the scientific merit in the case, worked
out recommendations in consultation with IEA and other medical experts.
According to these recommendations, driving license may be issued to those who
have been fit-free for the past three years and if the doctor in-charge certifies that the
EEG (Electro Encephalogram) and MRI scan (Magnetic Resonance Imaging) show
no abnormality. However, these recommendations have been waiting for the last
many years to be notified as amendments in the law. They need to be approved by
various other related ministries before they are tabled in Parliament for debate.
As of today, the Government of India has no provision to issue special driving
licenses to People with Epilepsy (PWE), no matter how long they have been seizure-
free. But it is also true that PWE drive merrily without disclosing their epilepsy
condition and history, causing considerable risk to their own safety and those of
others. This is partly because they know that even a slight reference to their medical
history could cost them their driving license. Only a differentiated law which is
sensitive to the actual condition and history of those with epilepsy can address the
situation scientifically and justly.
International scenario
In the last 10 years, the Maurice Parsonage Commission on Driving License
Regulations of the International Bureau for Epilepsy (IBE) has given a set of
recommendations after studying the subject extensively. It has suggested that a
limited restriction, for a period of 2 years following a seizure, (with certain
qualification) is adequate, and the period thereafter should be considered risk-free
for issuing a driving license.
7
Preface
Most states in the USA permit a person to drive if she/he has been free of seizures
for varying periods, between 3 and 18 months. In the UK, a driving license can be
granted if the person has been free from seizures for one year. In Australia, driving
licenses are issued to those who've been seizure-free for a period of 6 months to two
years. Usually, such driving licenses are with certain conditions.
References:
1. http://indiatogether.org/epilepsy-laws
2. http://www.epilepsyindia.org/socialaspect_driving_iea.html
8
Preface
9
There is a general feeling that a person with epilepsy is not capable of doing a job. It
is also believed that PWE are frequently absent from work due to their seizures.
Many studies show that people with epilepsy tend to work more conscientiously
than others to prevent losing in the job.
In most government jobs, the fitness of a candidate who declares in writing or is
detected to be suffering from any chronic disease (including epilepsy) is decided as
per the work profile of the specified post.
Those having epilepsy are usually declared unfit for jobs of professional drivers of
motor vehicles, pilots, people working at unprotected heights or with open and or
moving machinery and live electrical cables, jobs involving train running and
passing duties, and certain categories of jobs in the defence services are not suitable
for persons with epilepsy.
These are just general observations and the suitability for job and medical fitness
can vary from job to job and between different organizations. Those people with
epilepsy seeking employment are advised to consult the terms and conditions for
eligibility and medical fitness for the job before they apply for the job.
References:
1. http://www.epilepsyindia.org/socialaspect_employment_iea.html
2. Indian Railways Medical Manual, Vol 1, 2000
Epilepsy and Career and Job opportunities,
Discrimination at Work Place:
Preface
10
According to the Hindu Marriage Act, 1955 and the Special Marriage Act, 1958, a
marriage can be solemnized if at the time of marriage neither party suffered
insanity or epilepsy. In 1976, the Government of India amended the Hindu
Marriage Act (1955) and special Marriage Act (1954). As per this Marriage Laws
Amendment Act 1976, a person subjected to recurrent attacks of insanity or
epilepsy cannot have a legally valid marriage and such a marriage shall be voidable,
resulting in divorce.
Indian Epilepsy Association filed public interest litigation {Writ Petition (Civil) No.
501 of 1996}against the Union of India challenging the legal validity of provisions of
the marriage (Amendment) Act of 1976 as applicable to epilepsy. In August 1997
Government of India responded to the courts order mentioning that the legislation
to remove the grievance is in the offing. The Rajya Sabha passed the bill on
November 30th 1999 and the Lok Sabha followed suit on December 20th 1999.
Today a person with epilepsy can have a legally valid marriage and epilepsy is no
more an illness to claim for divorce.
Reference:
http://www.epilepsyindia.org/socialaspects_marriage_iea.html
Epilepsy and Marriage
Preface
Considering huge costs involved in health care, it is getting unaffordable for a
common person. Having a Health insurance policy enables one to afford the
medical treatment.
Normally, insurance policy is given to you after you undergo a health check up.
You will be given policy keeping in mind the health problems you are suffering. If
you declare everything and after that you have a health problem, which may be
linked to the existing problem, you will get the claims. Hiding the fact from one
company, a claim could be rejected completely.
You take a medi-claim policy for bad times. But there are some clauses in the
document that you must read the document carefully before subscribing to such a
policy.
If someone is suffering from asthma, chronic nephritis, diabetes, epilepsy and
hypertension, you can't claim the expenses incurred on the treatment under a medi-
claim policy.
IndiaFirst Mediclaim Plan is a Non-Participating Health Insurance Plan. It is a
Traditional Plan without any Bonus Facility.
How it works – In this plan, premium needs to be paid for the entire Policy Tenure
of 5 years. There is a Premium Guarantee for 3 years in this plan even if there is a
claim and will be reviewed thereafter at the end of every three years.
There are 2 Plan Types:
?Easy Health and
?Premier Health
This Plan covers for all options:
Basic Hospitalization In –Patient Expenses,
?Pre and Post Hospitalization expenses
?Day Care Benefits
?Emergency Ambulance Benefit
?Donor Expense Benefit
?Cost of Artificial Limbs- Payable as per actual expenses, subject to a
maximum of 10% of the annual SA or INR 25,000, whichever is lower
However, some insurance companies have started to include epilepsy in the
Health Insurance plan:
11
Epilepsy and Insurance
Preface
Key Features of IndiaFirst Mediclaim Policy
Benefits you get from IndiaFirst Mediclaim Insurance Plan
èThis is a Health Insurance Plan
èIn this plan, the premium remains constant for a period of 3 years even if there
has been a claim
èSelf, Spouse, Children, Parents as well as Parents-in-Law can be covered in this
option
èThis Plan can be opted for a maximum Sum Assured of Rs 25 Lacs
èThis plan can be opted for an Individual or for the family under Family Floater
Option
èThere are 2 Plan Types- Easy Health and Premier Health
èThis plan offers Guaranteed Lifetime Renewability
èThere is Best Doctor Facility in this Plan
èThere is an additional Term Rider available in this plan
èHospitalization Benefit – The Regular Benefits covered under both Options of
this plan are:
èIn Patient Hospitalization:
l Room Rent
l Nursing charges, Surgeons, Anaesthetists, Dieticians and other doctor's
fees
l Diagnostic and Laboratory Charges
èl Anaesthesia, blood, oxygen, medicines and drugs etc.
è200 Day Care Benefits as mentioned
è30 days of Pre-Hospitalization Benefit and 60 days of Post-Hospitalization
Benefit
èEmergency Ambulance Benefit
èDonor Expense Benefit
èCost of Artificial Limbs subject to 10% of Sum Assured or Rs 25,000
whichever is lower
Domiciliary Benefit – is provided under Premier Plan upto a maximum of 5% of
the Basic Sum Assured
12
PrefaceIncome Tax Benefit – Premium paid towards Critical Illness Benefit and Cancer
Care Benefit is up to Rs. 15,000 are allowed as a deduction from the taxable income
each year under section 80D and the remaining premium is eligible for a deduction
from the taxable income each year under section 80C.
èRiders- There is 1 additional rider available with this plan:
èIndiaFirst Term Rider
è
èMaternity Benefit is available after a waiting period of 2 years and payable up
to a maximum of Rs 1 lac only
èThere is a Waiting Period of 30 days in this plan and hospitalization due to
symptoms that occurred during the first 30 days of this plan is beyond the
scope of this policy
èThe expense of the artificial limb would be payable only once during the entire
term of the plan and payable for a single limb only
èThere is a 36 Months Waiting Period for Pre-existing diseases
èThere is a 24 Months Waiting Period for Specified Surgeries
èDomiciliary hospitalization benefit may be reimbursed under the Premier
Health option subject to a maximum of 5% of base sum assured. Domiciliary
Benefit will only be reimbursed if the life assured has been under medical
treatment for more than 3 days for such illness/ disease/ injury which in the
normal course would require care and treatment at a hospital/ nursing
homeDomiciliary Treatment covers:
lAsthma
lBronchitis
lChronic Nephritis and Nephritic Syndrome
lDiarrhoea and all type of Dysenteries including Gastroenteritis
lDiabetes Mellitus and Insipidus
lEpilepsy
lHypertension
lInfluenza, Cough and Cold
lAll Psychiatric or Psychosomatic Disorders
lPyrexia of unknown Origin for less than 10 days
Additional Features and Benefits of IndiaFirst Mediclaim Plan
Disclaimers in IndiaFirst Mediclaim Plan
13
Preface
l
pharyngitis
lArthritis, Gout and Rheumatism
lPhysiotherapy
lMaternity and its related complications
lRest cure and palliative care for terminally ill persons
lCost of any appliances or equipment
Tonsillitis and Upper Respiratory Tract infection including Laryngitis and
References:
1. http://www.rediff.com/money/2006/aug/25insure.htm
2. http://www.myinsuranceclub.com/life-insurance/companies/india-
first/mediclaim-plan
14
Preface
15
Details of 'Epilepsy as a Disability” as it stands today in the Persons with
Disabilities (PwD) act, 1995:
“GUIDELINES FOR EVALUATION OF VARIOUS DISABILITIES AND
PROCEDURE FOR CERTIFICATION
MINISTRY OF SOCIAL JUSTICE AND EMPOWERMENT
NOTIFICATION
SUB: Guidelines for evaluation of various disabilities and procedure for
certification.
No. 16-18/97-NI.I (as published in GOI, Part 1, section 1, dated 13.6.2001):
In the Guidelines for evaluation of various disabilities and procedure for
certification notified by Ministry of Social Justice and Empowerment vide stnotification No. 16-18/97-NI. Dated 1 June 2001, post head injury fits and epileptic
convulsions can cause PPI (locomotor) up to 75%. The extracts from the notification
are as under:
NEW DELHI JUNE 1, 2001
1. In order to review the guidelines for evaluation of various disabilities and
procedure for certification as given in the Ministry of Welfare's OM No. 4-2/83-thHW-III, dated the 6 August, 1986 and to recommend appropriate
modifications/alterations keeping in view the Persons with Disabilities (Equal
Opportunities, Protection of Rights and Full Participation) Act, 1995, Govt. of India
in Ministry of Social Justice and Empowerment, vide Order No. 16-18/97-NI.I,
dated 28-8-1998, set up four committees under the Chairmanship of Director
General Health Services – one each in the area of Mental Retardation,
Locomotor/Orthopedic disability, Visual disability and Speech & Hearing
disability. Subsequently, another Committee was also constituted on 21-7-1999 for
evaluation, assessment of multiple disabilities and categorization and extent of
disability and procedures for certification.
2. After having considered the reports of these committees the undersigned is
directed to convey the approval of the President to notify the guidelines for
evaluation of following disabilities and procedure for certification:
Epilepsy and Disability
Preface
16
1. Visual impairment,
2. Locomotor/Orthopedic disability,
3. Speech & Hearing disability,
4. Mental retardation,
5. Multiple Disabilities.
3. The minimum degree of disability should be 40% in order to be eligible for any
concessions/benefits.
4. According to the Persons with Disabilities (Equal Opportunities, Protection of
Rights and Full Participation) Rules, 1986 notified on 21.12.1996 by the Central
Government in exercise of the powers conferred by sub-section (1) and (2) of Section
73 of the Persons with Disabilities (Equal Opportunities, Protection of Rights and
Full Participation) Act, 1995 (1 of 1996), authorities to give Disability Certificate will
be a Medical Board duly constituted by the Central and the State Government. The
State government may constitute a Medical Board consisting of at least three
members out of which at least one shall be a specialist in the particular field for
assessing Locomotor/Visual including low vision/Hearing and speech disability,
Mental retardation and Leprosy cured, as the case may be.
5. Specified test as indicated in Annexure should be conducted by the medical board
and recorded before a certificate is given.
6. The certificate would be valid for a period of five years for those whose disability
is temporary. For those who acquire permanent disability, the validity can be
shown as 'Permanent'.
7. The State Government/UT Administrations may constitute the medical boards
indicated in para 4 above immediately, if not done so far.
8. The Director General of Health Services, Ministry of Health and Family Welfare
will be the final authority, should there arise any controversy/doubt regarding the
interpretation of the definitions/classifications/evaluations tests etc.
GAURI CHATTERJI,
Jt. Secy.
Preface
17
7. GUIDELINES FOR EVALUATION OF PHYSICAL IMPAIRMENTS IN
NEUROLOGICAL CONDITIONS
1.1 Basic Guidelines
1. Assessment in neurological conditions is not the assessment of disease but
the assessment of its effects, i.e. clinical manifestations.
2. These guidelines should only be used for central and upper motor
neurone lesions.
3. Proformas (form A & B) will be utilized for assessment of lower motor
neurone lesions, muscular disorders and other locomotor conditions.
4. Normally any neurological assessment form the purpose of certification
has to be done six months after the onset of disease, however exact time
period is to be decided by the Medical Doctor who is evaluating the case
and has to recommend the review of certificate as given in the standard
format of certificate.
5. Total percentage of physical impairment in any neurological condition
should not exceed 100%.
6. In mixed cases the highest score will be taken into consideration. The
lower score will be added telescopically to it by the help of combining
formula
7.
b (90-a)
a + _______
90
8. Additional rating of 4% will be given for dominant upper
extremity.
9. Additional weightage up to 10% can be given for loss of sensation in
each extremity but the total physical impairment should not exceed
100%.
ANNEXURE-A
Preface
18
7.9 Table-VII: Post Head Injury Fits and Epileptic Convulsions
Frequency/Severity of Convulsions Physical Impairment
Mild –
occurrence of one convulsion only
NilModerate –
1-5 convulsions/month on adequate
Medication
25%
Severe –
6-10 convulsions/month on adequate Medication 50%Very Severe – more than 10 fits/month on adequate medication
75%
(3). Procedure for Certification of Multiple Disability
The procedure will remain the same as has been developed by the respective sub-
committees on various single disabilities and finalized in a meeting under the
Chairpersonship of Dr SP Agarwal held on 29-2-2000. The final disability certificate
for multiple disability will be issued in Form III {as prescribed in the Persons with
Disabilities (Equal Opportunities, Protection of Rights and Full Participation)
Amendment Rules, 2009)} by the Medical Authority which has given higher score
of disability by combining the score of different disabilities using the combining
formula, i.e. [a + b (90-a)] ÷ 90. In case, where two scores of disability are equal, the
final certificate of multiple disabilities will be issued by any one of them as decided
by Local authority”.
* The implication of PwD Amendment Rules, 2009 has been incorporated in the
text of the original notification.
Preface
19
Medical treatment of specified ailments under section 80DDB
The amount of deduction-Actual or maximum of
–Deductions of
expenses on medical treatment of specified ailments such as AIDS, cancer and
neurological diseases (where the disability level has been certified to be of 40% and
above) can be claimed under Section 80DDB. The maximum amount of deduction
allowed from gross total income on condition that no medical reimbursement is
received from any insurance company or employer for this amount. In case of
reimbursement the amount paid should be reduced by the amount received if any
under insurance from an insurer or reimbursed by an employer.
Points to be kept in mind
?Deduction under section 80DDB can be claimed by an individual or a HUF, who
is resident in India.
?Deduction is available in respect of amount actually paid by the taxpayer on
medical treatment of specified disease or ailment (prescribed by the Board, see rule
11DD for prescribed disease or ailment).
?For the purpose of this section in the case of an employee “dependant” means
individual, the spouse, children, parents, brothers and sisters of the employee or
any of them, dependant wholly or mainly on the employee for his support and
maintenance.
?In case of an individual, the aforesaid expenditure should be incurred on
medical treatment of an individual or wholly/mainly dependent spouse, children,
parents, brothers and sisters of the individual; and
A.Y. 2016 -17 A.Y. 2015 -16
HUF or Individual below the sixty Years of Age
` 40,000 ` 40,000
Any resident individual of age of 60 years or above but less then 80 years
` 60,000 ` 60,000
resident individual of the age of 80 years or above
` 80,000 60,000`
Epilepsy and Income Tax
Preface
20
?In case of a HUF, expenditure should be incurred on the medical treatment of
any member of the family, who is wholly/mainly dependent on such HUF.
?The tax payer has to obtain the prescription for the medical treatment from a
neurologist, an oncologist, a urologist, a haematologist, an immunologist or such
other specialist, as may be prescribed.
?In order to claim this deduction, however, you will have to submit Form 10-1
from a specialist doctor confirming the treatment of the disease. Up to A.Y. 2015-16
the Certificate was required only from a specialist Doctor working in a Government
hospital but from A.Y. 2016-17 it is amended to provide any specialist doctor.
?From the amount of deduction computed in aforesaid manner, amount, if any,
received by the taxpayer from any insurer or from his employer, by way of
reimbursement for such expenditure shall be deducted.
Recommended
(i) Neurological Diseases where the disability level has been certified to be of 40%
and above,—
(a) Dementia ;
(b) Dystonia Musculorum Deformans ;
(c) Motor Neuron Disease ;
(d) Ataxia ;
(e) Chorea ;
(f) Hemiballismus ;
(g) Aphasia ;
(h) Parkinsons Disease ;
(ii) Malignant Cancers ;
(iii) Full Blown Acquired Immuno-Deficiency Syndrome (AIDS) ;
(iv) Chronic Renal failure ;
(v) Hematological disorders :
(i) Hemophilia ;
(ii) Thalassaemia.
Post-Budget 2015-Section 80DDB-Limit raised & relaxed
condition of certificate, the following shall be the eligible diseases or ailments:
Preface
Extract of Rule 11DD
Specified diseases and ailments for the purpose of deduction under section
80DDB.
Please refer to GUIDELINES FOR EVALUATION OF PHYSICAL
IMPAIRMENTS IN NEUROLOGICAL CONDITIONS in section on Epilepsy
and Disability.
(i) Neurological Diseases where the disability level has been certified to be of 40%
and above,—
(a) Dementia ;
(b) Dystonia Musculorum Deformans ;
(c) Motor Neuron Disease ;
(d) Ataxia ;
(e) Chorea ;
(f) Hemiballismus ;
(g) Aphasia ;
(h) Parkinsons Disease ;
(ii) Malignant Cancers ;
(iii) Full Blown Acquired Immuno-Deficiency Syndrome (AIDS) ;
(iv) Chronic Renal failure ;
(v) Hematological disorders :
(i) Hemophilia ;
(ii) Thalassaemia.
(2) The certificate in respect of the diseases or ailments specified in sub-rule (1) shall
be issued by the following specialists working in a Government hospital—
(a) for diseases or ailments mentioned in clause (i) of sub-rule (1) – a
Neurologist having a Doctorate of Medicine (D.M.) degree in Neurology or
any equivalent degree, which is recognised by the Medical Council of
India;
(b) for diseases or ailments mentioned in clause (ii) of sub-rule (1) – an
Oncologist having a Doctorate of Medicine (D.M.) degree in Oncology or
any equivalent degree which is recognised by the Medical Council of India;
21
Preface
(c) for diseases or ailments mentioned in clause (iv) of sub-rule (1) – a
Nephrologist having a Doctorate of Medicine (D.M.) degree in
Nephrology or a Urologist having a Master of Chirurgiae (M.Ch.) degree in
Urology or any equivalent degree, which is recognised by the Medical
Council of India;
(d) for diseases or ailments mentioned in clause (v) of sub-rule (1) – a specialist
having a Doctorate of Medicine (D.M.) degree in Hematology or any
equivalent degree, which is recognised by the Medical Council of India :
Provided that where in respect of any diseases or ailments specified in sub-rule (1),
no specialist has been specified or where the specialist specified is not posted in the
Government hospital in which the patient is receiving the treatment, such
certificate, with prior approval of the Head of that hospital, may be issued by any
other specialist working full-time in that hospital and having a post-graduate
degree in General or Internal Medicine, which is recognised by the Medical Council
of India.
(3) The certificate from the prescribed authority to be furnished along with the
return of income shall be in Form No. 10-I.]
Reference: http://taxguru.in/income-tax/deduction-section-80ddb-reduce-
insurance-claim-recd-expense-amount.html
Note: A person with epilepsy certified to be a person with disability/severe
disability by appropriate medical authority or an assessee who has a dependent
with epilepsy certified to be person with disability by appropriate medical
authority are also eligible for rebate under Section 80DDB and Section 80U of the
Income Tax Act.
22
ADDENDUM
It may be informed that the Lok Sabha has cleared “The Right of Persons with
Disabilities Bill, 2016” on December 16, 2016 . The Bill was earlier passed in the
Rajya Sabha on December 14, 2016.
The final draft of the Bill transformed into the new Right of Persons with Disabilities
Act needs to be studied in detail in regards to the provisions and benefits that
people with epilepsy are entitled to under the the new Right of Persons with
Disabilities Act.