Embracing Our Strength - Huntington Society of Canada · movement to light up the world in 2016....

Embracing Our StrengthOur StoryOur VisionOur Future

2014/2015 Annual Report

2 | HSC Annual Report 2014/2015

The IMPACT of Your GiftFamily is at the heart of our community. Our families and volunteers tell a powerful story of caring people who pull together to improve the quality of life for Canadians impacted by Huntington disease (HD). HD is a fatal hereditary brain disorder with devastating effects on both the mind and body. It is like having the symptoms of Alzheimer’s, Parkinson’s and Schizophrenia simultaneously.

The good news is, with recent medical breakthroughs many researchers and scientists believe that once we are successful in stopping the progression of HD we will also find the answers to many other neurological diseases. Your valued support has brought us one step closer to this goal.

Our Sincerest ThanksThank you for igniting a movement. Your dedication and commitment to the Huntington Society of Canada inspires us all to do better. Your efforts, support and contributions tell such a powerful story, a story of a community of caring people who pull together and change the reality of families living with HD.

In Action - Steph Rees: Giving youth the support they need

When Stephanie Rees was a teenager, her mother was diagnosed with HD. To protect Steph and her brother, her parents kept the disease a secret.

So when Steph discovered the truth from an aunt, she grappled alone with the knowledge she could inherit the disease, the question of whether to get tested and the issue of whether to have children herself.

Now the 30-year-old HSC youth mentor is giving two younger peers the support she wished she had. Whether she’s answering big questions or just checking in with a quick text, this self-described nurturer loves to know she’s making a difference.

Learn more about HSC’s Youth Mentorship Program: www.huntingtonsociety.ca

Through your efforts and gifts you provide hope and help to families living with HD. Because of your gift, we continue to connect with more families, develop programs to support youth and better understand the gaps in service due to geography or lack of access. With your help, the HD community has made amazing strides in many areas: • Clinical trials are starting

and the first huntingtin protein lowering drug is in phase 1, human clinical trials this year. This is the first promising treatment to address the root cause of Huntington disease.

• Laying the foundation for clinical trials, HSC is connecting clinicians across Canada to develop clinical trial check lists, create mentoring opportunities and develop best practices guidelines.

• Continuing to advocate to end genetic discrimination in Canada, HSC has led the charge and moved Canada closer to being a genetically fair country.

Donations I


CONTENTS

From the Chair and CEO 4

Governance 5

Research 6

Family Services 10

Advocacy 14

Our Donors 16

Financial Health 25

Youth 13


From the Chair & Chief Executive OfficerThese are exciting times and progress is happening quickly for the Huntington community, as discoveries in the lab move to clinical trials.

HSC is preparing for new clinical trials by bringing clinicians from across Canada together for our clinical trial readiness initiative. We look forward to bringing even more clinicians, research assistants, bio chemical researchers and caregivers together, in the near future, to further discuss laying the foundation for clinical trials.

HSC is proud to invest in world class research and this year we were able to direct close to $1 million into research leading to HD treatments. While research is paving the way to treatments, HSC’s Family Services Team provides vital support to people living with HD right now.

We are increasing the number of multidisciplinary HD clinics across Canada, with a new clinic in Calgary and an expanded clinic in Newfoundland. Our 2014 National Conference in Winnipeg was hugely successful, attracting many families and individuals who had never attended an HSC conference before. We have expanded our youth programs, providing more support to young people growing up in families affected by HD.

We continue to advocate for genetic fairness legislation for all Canadians. We also continue to raise the profile of HD. Thanks to an extraordinary volunteer, the CN Tower was lit up in blue (for HD) and purple (for juvenile HD) on May 4th to mark Huntington Disease Awareness Month sparking a movement to light up the world in 2016.

The Huntington Society of Canada is strong and growing. We exceeded our revenue goals this year and managed our expenses effectively, directing even more dollars towards research, family services, education and advocacy. We continue to create operational efficiencies, implement risk-management measures and invest in technology infrastructure.

None of this would be possible without you and those that came before you. Thank you to the families who believe in us, the volunteers who drive this organization and the donors who support us so generously. Together, we are making a difference now and for future generations.

Dan Devlin, Chair, Board of Directors Bev Heim-Myers, CEO


Governance

BOARD OF DIRECTORSAt the Huntington Society, strategic direction starts with our Board. This team of committed volunteers, drawn from all corners of Canada, gathers twice a year to develop our strategic plans and policies, put proper risk management measures in place, ensure we are stewarding our resources responsibly and provide clear accountability to members, donors and the public. Our open recruiting process, spearheaded by a nomination committee, has produced an excellent mix of skills, experience and perspective. This includes members of families living with HD as well as professionals with legal, financial, management and other valuable expertise.

AT A GLANCENumber of Board Members: 15

Term: Two Years

Number of Consecutive Terms: Three

Attendance Record: 98%

Dan Devlin ChairSusan Wright Vice-ChairGlenda Rowein TreasurerSean Dewart SecretaryRay Truant Chair, Research CouncilRay Bailey Director at LargeMack Erno Director at LargeMarie-Claude Foisy Director at LargeJonathan Genest-Jourdain Director at LargeBob Scriven Director at LargeBrynne Stainsby Director at LargeRichard Taylor Director at LargeKathryn Todd Director at LargeDan Tremblay Director at LargeBrenda Wasylow Director at Large

MISSIONThe Huntington Society of Canada is a not-for-profit charitable organization which raises funds to deliver individual and group counselling service to support individuals and families living with Huntington disease (HD) and to fund medical research to delay or stop the progression of the disease. The Society also works with health and social services professionals to enable them to better serve people living with HD.


Huntington Society of Canada’s

RESEARCH COUNCIL

RESEARCH COUNCIL

Dr. Ray Truant – Chair

Dr. Eileen Denovan-Wright

Dr. Stephen Ferguson

Dr. Michael Hayden

Dr. Blair Leavitt

Dr. Marcy MacDonald

Dr. Lynn Raymond

Each year, our Research Council members graciously donate their time and expertise to review grant applications from both established investigators and up-and-coming scientists. Their goal: to invest your generous donations in the most promising and innovative research opportunities possible leading to treatments to slow or stop HD.

Investment in Outstanding Research

For decades, HSC’s strategic funding has helped to develop a critical mass of HD research in Canada. Now we are reaping the benefits. Promising treatments have progressed from the lab to clinical trials. Canadian investigators are globally recognized as leaders in the field, and each year we receive more excellent research proposals than the year before.

This year we received 10 letters of intent for our NAVIGATOR program and 10 more for our NEW PATHWAYS. All had potential to create significant insights into HD and pave the way to treatments. Ultimately, based on peer review and recommendations of HSC’s Research Council, we selected three outstanding projects to fund.

“We’re at a time of really incredible promise… Things that are developed in the lab now, and often with the support of the Huntington Society of Canada, are coming into the clinic, and they are going to make a difference in the lives of Canadians affected by Huntington disease.”

— Dr. Blair Leavitt, CMMT, Vancouver


NAVIGATOR RESEARCH Program 2015 Competition

Dr. Michael Hayden, University of British Columbia, Vancouver, BC is the recipient of a one-year 2015 NAVIGATOR Research Program Grant competition for his project called: Pre-clinical therapeutic evaluation of allele-specific mutant huntingtin suppression by antisense oligonucleotides.

Dr. Blair Leavitt, Centre for Molecular Medicine and Therapeutics, Vancouver, British Columbia is a recipient of a two-year 2015 NAVIGATOR Research Program Grant, for his project called: Contribution of microglia and neurons to HD pathogenesis.

NEW PATHWAYS Research Program 2015 Competition Dr. Marta Biagioli, University of Trento, Italy is the recipient of a one-year 2015 NEW PATHWAYS Research Program Grant for her project called: Alternative splicing and circRNA alterations in Huntington disease pathogenesis.


Be Brave, Be Bold, Be Ready:

Accelerating Clinical TrialsBefore 2012, Canadians looking for one central source of information on clinical HD trials across the country had nowhere to go. At the same time, Huntington disease clinics across Canada worked independently, with no formal systems for connecting clinicians or sharing best practices. HSC set out to address those gaps.

Last year clinicians, HSC and Canada’s association of research-based pharmaceutical companies (Rx&D) came together to form the HD Clinical Trials Consortium.

In the fall, we hosted a highly productive one-day workshop where Consortium members honed a National Huntington Disease Clinical Trial Strategy. The results: a Clinical Trials Readiness Checklist, an inventory of HD Clinics and Clinical Trials in Canada and a HD Best Practises Guide on the way.

The human brain showing the impact of HD on the brain structure in the basal ganglia region as compared to a healthy brain

Not only will this national strategy help clinicians get involved in HD research, it can also be adapted by other organizations.

In Canada, HSC bridges the relationship between researchers and individuals by educating the HD Community on the clinical trial process; what to consider if you want to get involved; and why participation is taking the limelight this year. It will be through clinical trials that new research breakthroughs will be moved from discovery to the HD community, however, HSC recognizes that some individuals at-risk for HD may choose not to participate in clinical trials, as genetic information is not protected in Canada.

In order to inform the HD community about these new clinical trials HSC created additional resources on the website including everything from, what is a clinical trial, to, here are the locations where HD clinical trials are happening in Canada, and this is who you can contact.

The Society encourages those who wish to participate to enroll in Enroll-HD . This will facilitate participant involvement when trials are available in your area. Enroll-HD is a platform that allows health-care professionals, scientists, and families affected by HD to work together towards a better understanding of HD and identify effective treatments. Their objective is to create the world’s largest database for clinical research on HD, eventually including information from as many as 20,000 people in 33 countries.

Healthy Brain Brain Affected by HD


The Year of the Clinical Trial

During the 2014 HSC Conference, Dr. Jeff Carroll and Dr. Ed Wild captivated participants with their summary of five HD Clinical Trials starting in 2015. A first for the global HD community. • Deep Brain Stimulation (DBS) is a common

treatment for Parkinson’s. A small pilot trial involving five individuals with HD has already happened in Europe. A larger multicentre trial to include more individuals with HD is now underway in Europe, with the intended outcome of providing more definitive results.

• Amaryllis is a multicentre Pfizer trial of a PDE10 Inhibitor drug that may help neurons to communicate more effectively.

• Pride-HD (Pridopidine) may help with movement symptoms. A Teva sponsored trial.

• Legato-HD aims to calm down the immune system in HD. A Teva sponsored trial.

• ISIS-HTTRx is the first huntingtin-lowering potential treatment for HD. The drug will be injected into the spinal fluid to allow it to reach the brain, then tell the cells not to make the harmful huntingtin protein that causes HD. This is a world first for this method, which most HD researchers consider to be the most promising approach to treating HD. The trial began in the first half of 2015.

The Society launched a clinical trials map on the HSC website, making it easy for families to locate clinical trial sites in Canada, learn more about the trials currently underway and have the contact information all in one place. www.huntingtonsociety.ca

DID YOU KNOW?


Connecting the HD Community

FAMILY SERVICES

National Conference

This year we focused on expanding access for people we serve through multidisciplinary clinics across the country, an expanded Youth Mentorship Program, our sold-out National Conference, French-language material on our website, and more.

Our 2014 National Conference in Winnipeg proved so popular, we were forced to increase the number of registration spaces available. The weekend attracted many new families and for others, it was their first or second HSC conference. Youth were out in full force, both at the pre-conference YPAHD Day and at the conference itself, interacting and conferring with the many researchers and medical professionals who attended.

Our sessions on research, clinical trials, care, planning, testing, genetic discrimination and more earned excellent reviews. Perhaps most importantly, our participants left feeling inspired and optimistic. According to one evaluation form: “This conference has shown that we are united and if we all stand tall, we will make a difference.”

Resource Area Directors and Family Services Workers serve over 15,000 individuals annually

10% increase in attendance

90% of respondents listed the conference program as “Very Good” or “Excellent”

100% of respondents on the overall conference evaluation rated speakers as “Very Good” or “Excellent”

95% of respondent’s rate the overall conference as “Very Good” or “Excellent”

5% increase in HSC Volunteer Chapters since 2011


Tools and Training for Family Services StaffThe cumulative impact of working to support clients is a serious issue within the social work field. This year, we invested in compassion fatigue training, funded by the Charles Johnson Foundation. We want to ensure our Family Services team members have the tools to continue providing top-quality service to our families.

Multidisciplinary ClinicsFamilies benefit when they can access their entire HD support team, including neurologists, genetic counsellors and HSC social workers, in one location. This year we established more multidisciplinary clinics. In Calgary, the neurologist at a local movement disorders clinic began scheduling patients with HD on the same day of the week. That created the opportunity for our social worker to attend the clinic on those days, offering a convenient way for families to connect and receive support. Meanwhile, the multidisciplinary clinic established in St. John’s, Newfoundland in 2013 proved so successful, it is at capacity and there are plans underway to expand.

Direct clients served increased by 20% over the last 3 years

Last year’s pilot program proved an unqualified success, matching young people growing up in families affected by HD with an older youth peer who can help them navigate a host of challenges.

We showcased the program at the 2014 HSC National Conference. It sparked so much interest, we have launched a third round of mentor recruitment, selection and training in the upcoming year. Meanwhile, we have received queries about the program from around the world.

Youth Mentorship

Seven of the youth mentors for 2015.


Grass Roots Strength from Coast-to-Coast – Our fabulous Volunteer ChaptersThe Huntington Society continues to be powered by the strength of Chapters and highly skilled volunteers from across Canada. Forty Chapters and active areas across Canada have helped contribute $1.3 million by executing over 100 community events. Events across Canada have raised impressive amounts of dollars for the HSC mission, but have also served to increase awareness within communities and families across Canada. Beyond fundraising efforts, our Chapters and volunteers have hosted many support and information events across Canada, including a wildly successful series of information sessions throughout Alberta and British Columbia. These sessions have connected many HD affected families for the first time, and have engaged local presenters and experts, building support networks from community to community.

National Community Advisory GroupThe Huntington Society of Canada continues to meet quarterly with the National Community Advisory Group (NCAG), a group of Chapter volunteer leaders who are invited to help guide the direction of the Society, and strengthen the connection between the organization and the community we serve. NCAG continues to host these quarterly teleconference meetings with the Society’s CEO and Manager of Chapter Development, including other members of the national team when needed. The group remains connected throughout the year, sharing best practices and adding perspective and guidance directly from the HD community to HSC staff.


To give youth a forum for exploring their unique issues, we once again held a full day of YPAHD workshops and networking before our 2014 National Conference, attracting a record of 50 participants. Meanwhile, to foster international youth connections, we funded two YPAHD members to attend the Huntington’s Disease Society of America convention in Texas in June.

Young People Affected by Huntington Disease

YOUTH

The HDSA ConventionBy Katie DeLargie

Thanks to YPAHD, (Young People Affected by HD), Valerie Mallock and I had the chance to go the Huntington’s Disease Society of America convention in Dallas this past June. It was a fantastic experience!

When I first arrived, I couldn’t believe just how many people and how many families were there. The first day was the National Youth Alliance Day, which is the equivalent of our YPAHD Day. I didn’t know many people, but they were really welcoming.

During the convention, Valerie and I also had lots of conversations with families. Although everyone has their own unique story, we all feel the same way about the disease. It really showed me how connected everyone is.

The highlight of the weekend was definitely the closing gala, which included a candle-lighting ceremony. Everyone had glow sticks. As the organizers lit each candle, a different table would crack their glow sticks until the entire room was lit up.

It was amazing to see all those lights, representing so many people touched by this disease. We were all in one room, all feeling the same way, all affected by Huntington’s in some way, shape or form. Being there together was just a beautiful moment.

I came away from the convention feeling very empowered, especially by the research sessions. Our scientists are working very hard to figure out this disease, and several drug companies are starting human trials, including some new trials this month. There is definitely hope!


Advocacy

GENETIC FAIRNESS

Today, Canada continues to be the only G7 country that has not taken steps to prevent genetic discrimination. However, the issue gained considerable attention over the past 12 months, thanks to two proposed genetic non-discrimination bills, at the federal level.

In the fall of 2014, the Senate Standing Committee on Human Rights held hearings for Senator James Cowan’s very comprehensive Bill S-201, an Act to prohibit and prevent genetic discrimination. HSC’s CEO, Bev Heim-Myers, was there to testify. She explained how genetic discrimination is a very real threat for all Canadians including those at-risk for HD, a threat that prevents many people from participating in the clinical trials that could lead to disease treatments.

Bill S-201 was unfortunately amended by senators, and the Senate rose before it reached third reading. However, Senator Cowan is committed to continue advocating for genetic fairness in Canada, and we will continue to support his sterling efforts.

Meanwhile, the federal government tabled a government bill, Bill C-68, in June, addressing the 2013 Speech from the Throne commitment. The intent of the bill was to prohibit genetic discrimination in Canada.

Bill C-68 was introduced too late to be passed before Parliament rose on June 19th, 2015.

After the federal election this fall, we will work with the newly formed government to table new legislation to end genetic discrimination in Canada and to protect genetic information. We are working on launching a provincial strategy to ensure that provincial and territorial governments across Canada protect genetic test information and prohibit genetic discrimination.


Education, Awareness & Engagement

Sparked by a volunteer from Guelph, Ontario, who worked diligently to light up the CN Tower in May 2015, Jamie Walters, along with the Huntington Society of Canada, spurred on a community. “Earlier this year I figured what better way to raise awareness for HD than to light up the most iconic structure in Canada?” Jamie Walters explains, “Lo and behold, on May 4th the CN Tower was blue and purple to mark Huntington Disease Awareness Month.” That’s 1,815 feet or 553.33 meters of awesome public awareness.

The social media universe lit up as well. More than 37,000 people viewed the first photo, and things just took off from there. “It was phenomenal,” says Walters. “People around the world knew all about it!”

Some supporters took selfies in front of the Tower. Others held hands around it. “Pictures kept popping up all over the place,” Walters says.

SOCIAL MEDIA

68% increase on Facebook

82% increase on Twitter

We are now on Instagram and LinkedIn


DONOR RECOGNITIONWith GratitudeOur story is a powerful story; a story of hope, a story of a community of caring people who pull together to change the reality for families living with Huntington disease. With your support we have good reason to be optimistic. Thank you for believing in the work we do, you make a difference in the lives of people affected by Huntington disease every day.

The Estate of Robert H. StevensThe Douglas Utting FoundationStan & Dorota Weber

Supporters$10,000 + Anonymous (3)Vern & Ellen BarrettBrelin Holdings Ltd.Calgary and Area City Council of Beta Sigma PhiCigar PEG, Inc.Colin & Leah CraigGovernment of Nova ScotiaJNE WeldingManitoba Community Services Council Inc.Lois McKeilRx&D, Canada’s Research-Based Pharmaceutical CompaniesThe Storoshenko FamilyTELUS Communications CorporationRoy & Ruth WeberJohn A. Worsley

Partners$5,000 + Anonymous (1) 353951 AB Ltd.ATCO Electric

Bell CanadaThe Calgary FoundationCanadian Memorial Chiropractic College Student’s CouncilThe Charitable Gift Funds Canada FoundationThe Charles Johnson Charitable FundBob & Brenda ComtoisMichael FreundJanine FullerGregg & Mary HansonDarrell & Shona HurstHydro One, Employee’s and Pensioner’s Charity Trust FundJDM Inspections Inc. Grant McArthur & Tamara Cost-McArthurOxford PropertiesRideau Carleton Raceway Holdings Ltd. S & B Restoration Inc., O/A Servicemaster of PeterboroughScansa Construction Ltd.Norma J. StevensBruce & Elaine TaylorTrinity Pacific FoundationJoan TweedleM. Van Noort & Sons Bulb Company LimitedSusan Wright & John Sankey

Visionary Donors $500,000 and aboveDan & Jill DevlinThe Krembil Foundation

Cornerstone Donors$250,000 +Anne & John BraceCo-Op AtlanticLembit & Karen JanesThe Estate of Ivy OakelyMike and Nicole Tevlin Leadership Donors$100,000 +Edward Bezeau & Angela Di SerioCIBC Charitable FoundationMaxim Power Corp.Barbara Stymiest

Distinguished Donors$25,000 + Anonymous (2)Allen AntoniukRay & Elizabeth BaileyThe Connor, Clark & Lunn FoundationHealthpartners The Mark Mercier FoundationMichael & Jane Lay Robert Evans Investment Counsel Limited

Friends$1,000 + Anonymous (10)1226190 AB Ltd1571017 Ontario Limited, O/A Winmar DurhamAON Benfield Canada ULCAurora InspectionsDawn BailieAdam BakerBar 75 EnterpriseNancy F. BarteauxBentall LLPTerry & Guy BerngardsBFI CanadaBert Blackbird The BLG FoundationMaurice Bloch & Susan ComayNorm Bloom Bluewater Investment ManagementThe Boiler Inspection & Insurance Co. CanadaJeff BowesFrank BraunJoyce BudnarkCambridge & North Dumfries Community FoundationCanadian Online Giving FoundationCanadian Pacific Railroad Ltd.


PartnershipJames & Susan GodeyBlake & Belinda GoldringHarvey & Marilyn GoodwinGottardo Group of CompaniesGrande Pipe Services Inc.Justin GranekGeoff & Anna GrantGreek Ladies Philoptohos Society of CalgaryRichard GreenGreiner-Pacaud Management AssociatesJohn & Sally GuggenheimerGunthers Masonry Construction Ltd.H & R DevelopmentsGerard & Sandra HandfieldDarrel HayesTerence & Roberta HeenanBev Heim-MyersJohn M. HicksonJeff HoldenHopewell Development CorporationEarnestine HoyemJeffrey HoyemJoseph & Susan HunterInvar Building CorporationSandra Jack Jade Cash ATMJohn Deere Foundation of CanadaTara Johnson-OuelletteKeddie’sDon KennedyMark James KrugerEileen G. LarrattLaugh and Learn Inc.Helen LeeLeeswood Design/Build Inc.Marlene J. Little Janet E. LongpreLonnie’s AutobodyShawn & Catherine LukenMarilyn G. LyonMarket Probe CanadaDan Marsh

Brenda MasonDenna MatthewsMaunders McNeil Foundation Inc.Elizabeth McArthurEdward McDonnellMarjorie McIntyreMelinda C. McKieLyall G. McLeanMcMurray Business MachinesCarrie McQuayMaribeth MeijerMenkes Developments Ltd.Metrus Properties LimitedMilestone Property Management LimitedJames H. MillerBradley J. MilneLinda & Boyd MinshullMoodie Mair Walker LLPMorguard Investments LimitedMurray MortonSusan & Matthew MullerN.D.H. DevelopmentsMichael D. NaishNational Hockey League Players AssociationBonnie NeustaedterJanice E. NixonNorgaard Kratofil Professional GroupNortham Realty Advisors LimitedNortraxNurse Chevrolet Cadillac Ltd.Oakville Community FoundationThe Orlando CorporationP.O.S. West Ltd.Jonathan ParadisMark ParsonsRick & Tannis PaullPenn West Petroleum Ltd.PLUS FoundationPower Workers’ Union Local 1000RBC Foundation

CanFirst Capital ManagementCarson Dunlop & AssociatesCBRE CanadaCBRE LimitedCharron Warehousing Inc.Andrew ChasePaul ChinDana ClarkClearwater Fine Foods Inc.In Memory of Donald ColpConfidence Management Ltd.Paul & Leisa ConnellyPeter CozacCP Technical Services LTD.Fred & Diane CranstonCameron CrawfordCrown Realty PartnersD. A. Olson Trucking LtdMichael & Kim DavidmanThe Estate of ‘Martha J. De BeusGordon DillonJulie C. DillonBill DisbrowDistrict Realty CorporationDonald B. & Marjorie E. McIntyre FundDream Office Management CorpJens O. DreesEric DuboisLori DunsmoreEconomical Mutual Insurance CompanyThe Erin Mills Development CorporationMack ErnoFred EstlinDonald FarrisJoseph & Sarah FelzienBarbara Findlay, Q.C.Harvey & Doreen FossFraternal Order of Eagles Calgary Aerie #2098Lori FreedmanJohn GameGibson Gas Liquids

RBC Royal BankRonald & Jane ReiderRisk CheckMargaret & Dick RivardRoadtrek Motorhomes Inc.Robert M. Heenan Sales Ltd.J. K. RobertsonGary RoosenRosgen Realty Ltd.Scott RoweinRunning Room Canada Inc.Sarem Contracting Ltd.Jason SargentScotiabank, Orangeville, ONScotiabank, Stettler, ABNathan ScottSemerra Oilfield Pressure TestingSeventy-Six Davenport Limited PartnershipRichard ShortLloyd SkeochLaurie & Ann SkinnerLinda J. SmithJohn & Victoria Smith

Over $110,000 was raised by our Amaryllis Sellers

Snowy River VenturesSprott Resource PartnershipJohn M. StainsbyBarbara A. StanleyHeath D. SterlingTerry StortzOksana SuchowerskySun Life Financial Inc.Loran & Tanya SwanbergRaymond & Rosilyn SwitzerTeepee Creek HaulingBernard J. ThiessenValerie A. ThomasMary TierneyTikkun 18 FoundationTompkins CanadaHeather TomshakTerry & Joyce TomshakToolbox Solutions Inc.


Melynda BottorffJean & Jim BouldAnne & John BraceBarbara BrittainTerrill A. BuddMarty BudnykPeri BulcanAllison BushJoanne CadrinBecky E. CameronDebi Campbell

Robert & Donna DavisSandro De SantisJulia DeckJerome & Yvonne DelaneyNeil & Barbara DennisKendall DennisJohn DeweyDoris A. DicksonAnne M. DonohoeDelima M. DubieLeatha M. Dudra

Total Tech Pools & LeisureTransatlantic ReinsuranceMaria TsarouhasMargaret TurleyUnique Scaffold Inc.Mieke WalesWalker Drive Co-Op Food Market Membership CommitteeMr. & Mrs. Maurice WalshPatrick G. WannamakerJohn & Josie WatsonLinda WeberMike & Delayne WeeksWade WhitlowCraig WilfordWilliam F. Hayball Charitable FoundationThe Winnipeg FoundationAndrew & Nancy WiswellEleanor WiswellNancy WiswellWoolwich Dairy Inc.Paul & Marguerite Zakus

Our Champions of Hope To Our Dedicated donors who support the Huntington Society on a monthly basis, thank you. You provide a base of support to allow us to plan and provide support on a consistent basis.Anonymous (6) Lewis ArnoldDebbie Arsenault Ronald AshcroftPeter & Sigrid AzzopardiRay BaileySarah BakerNicola BanghamPamela J. BardenTrevor BardenDoris BartoliniJean Baxter PierreJean BeakhouseDeborah BedleyWilliam & Corinne BeesNorma Bertrand

Ward & Lois GlenneyJames & Susan GodeyLouise E. GoodeWayne GoodeyThe Late Stephen GouldAllison GranekJustin GranekMargaret GrayRay GreenDawn GroszkoNancy Gwin

Larry CampbellMarjorie CampbellRob CampbellPeggy L. CarmichaelPaul CarsonRosemary J. CarverAndrew J. CassidyKelly S. Castonguay-MackGreg ChildsNancy ClementStephen ClementLarissa CoboJennifer CoelhoIn Memory of Donald ColpRichard Conte & Bonnie KaplanJoyce CookPhyllis J. CookM. Elaine CooperMargaret C. CooperHolly CouchPeter L. CranstonCameron CrawfordJan CrowleyMegan CrowleyGlen CunnaneBonnie CutlerClarence CutlerSadie Cyrenne

Lori DunsmoreIrene EllisRandy EllisMack ErnoRoger EvansCornie FastJanice D. FastJennie FerenczyGloria H. FergusonDoris H. FigueroaGary FitzgeraldKathleen E. FitzgibbonsRonald & Mary FlavelleDawn FlemingSheelagh FlynnTerry FoordCyndy ForsythArnold & Maria FossSandra FunkDwight FynnCaroline & Michael GainesLeslie C. GarlandLacey GartnerSuzette GauthierNaomi GecziDeborah C. GermanAlice M. GillMargaret GilmourLuc-Andre Girard

Tim & Lara HallBonnie HamiltonSteven & Tammy HanlanEdgar HarderPhyllis L. HarveyRaili HautaniemiSusan HayBev Heim-MyersLois M. HetheringtonAmanda HigdonHarry HigdonKathleen HildebrandAlex HoganAdam HoosonNorman & Cathy HowarthAlan J. HowellDonna F. HowleyEarnestine M. HoyemJeffrey T. HoyemThomas G. HughesGary HumphreysJoseph & Susan HunterBruce InnesMarjorie JacksonCarol JancDoreen JanesMarion JanesKen & Shirley Jansen


Catherine A. MacDougallJan MalcolmElizabeth G. ManiqueEric MarshallSusan MartinThomas E. McCawJanice McDonaghIrene McDonaldJohn McDonaldEdward McDonnellEarle McEwenGlenn C. McFaddenJim & Jacqueline McGillivrayNancy McHardyDebra McIntyreChristina McKayShirley McKinneySusan M. McKinneyLyall G. McLeanMaribeth Meijer Robert & Joan MercerJohn & Betty MerchantRoy MetcalfeJames H. MillerKristi-Jayne S. MillerLucas MillerRobert & Margaret MillikenBrad J. MilneGeoffrey B. MilneDebbie MitchellTim & Arlene MoherDiane MoloneyGailene K. MooreBill MortonSandra J. MosherJune MurphyValerie Nabb & Colin ChestermanMike J. NeillValerie NettletonPeter NeumanAmy J. NicholJune NicholAnn PaceMargaret PaceAshok J. PadmarajBlanche ParkhillW. B. PearsonJoyce Peatfield

Ruth L. PellmannFrank H. PetersMickey & Margaret PikorKari PlandowskiDonna PoffVicki L. PoirierFrances PrestonEarl & Nancie QuigleyKim QuintalR. G. Heenan Enterprises Ltd.Steve RaetsenCarol RaymondBarb ReichertDemetrios ReklitisArnold W. RichardsonMike RobbinsSusan J. Robertson-KrezelJohn & Mary-Lou RoderTrudy RogersBurt RollinsTheresa RuefferNicole E. RussellMarie M. SampsonScott J. SampsonRon SandalackMarian SchalinPaul & Sandy SchellenbergLinda ShakespeareWalter ShankmanGeorge A. ShentonNancy E. SimpsonM. Alene SkikavichLaurie & Ann SkinnerJanet M. SladeL. Eveleigh SmithRochelle SmithJohn & Victoria SmithLinda SmithSandra SorsdahlAnne SpadoniMark W. StainsbyLinda StarrTerry StortzJeannette SuzukiCamillia SwitzerRaymond & Rosilyn SwitzerDeborah TalbertAntonietta Taverniti

David Jenkins & Joanne Cockerton-JenkinsTara Johnson-OuelletteColleen JohnstonJoan E. JohnstonJames JonesGrace KaattariJoanne KaattariScott KellyRoy & Debbie KendallAnn KennethMalcolm KerrWinnifred J. KiddRonald KilbeyNicholas KinsmanWade John KonecsniMark James KrugerDan & Rebecca KutzDorothy LabrunAmy Lajoie-SnyderMurray LanceleySharon LangilleRob LaycockMaureen K. LeachShelley LeaderIrvin & Grace LeboldIsabel LeederKama LeierKarin LenhardtAurora LettfetiPeter LevedagJacqueline LingardPauline LingardStephen R. LingardJason & Kim LittleJeannie LivingsKen LongladeJanet E. LongpreKaren LougheedNorma LudwigShawn & Catherine LukenMargaret LythgoeLucille Macdonald

Kevin TessnerColete T. TetraultLori & David ThomasRuth ThomasValerie A. ThomasMary TierneyLinda J. TingmanJan M. ToddJohn TomiukJanet TrimNancy TrolleyDiana TuerJ. Stephen TweedleHeather UrquhartVirginia L. Van AllenRhea Van BredaKristina VandervoortGerald & Gerda VennemaGeorge & Lynn VooroKathryn WalkomJean D. WallaceMareile WalterPatrick G. WannamakerMary WattersonAllan & Gillian WeatherallLinda WeberMarjorie L. WelchChristine WheelhouseDonna M. WhitePatricia WhiteCarl R. WilburSusan Wright & John SankeyDominic WongSusan WoodAleshia ZabokGail ZabokDonna (Vibert) Zentner

Our Amaryllis HeroesTo those who have sold over $1,000 of Amaryllis kits this year, thank you. Your efforts are deeply appreciated. B.C. ChapterCathy BlakeLarry & Louise CampbellCamrose ChapterJanette CharltonRoss & Joanne Corkish

15% increase in our Champion of Hope Monthly Donors


Cranston-Dorr Family FundGrange John Taylor FundGuggenheimer Family Endowment FundHeenan Endowment Family FundHiggins Family FundIrwin Family FundJames Jerome Great Canadians FundJanice Johnson Family FundJoan Skeoch Family FundKelly Bumstead Family FundKidd Family FundLaura’s Hope FundMarjorie’s Daughters and FriendsMcArthur Family Fund in Memory of Megan McArthurNeuman Family FundReider Family FundReklitis Family FundRick and Norma Brock FundSally Stainsby Family FundSkene/Stevens Family Fund: Bob and NormaSterling Family FundSusan and Joe Hunter Family FundSylvia Hickson Family FundAnnie J. Cutler Memorial FundCraig Family FundGarth Shuster Family Fund Goodman Family FundKatie McAlindon Memorial FundLingard Family FundLiz and Ray Bailey Family FundMcGregor Norm FundUtting Family FundWannamaker Family FundWiswell Family FundWright Family Fund in Memory of Helen-Mary WrightYeung Family FundZantingh Family Fund

Consecutive Year DonorsThank you to those donors who have contributed to the Huntington Society of Canada for 10 years or more. We deeply appreciate your dedication and loyality. Anonymous (34)Lynne J. Adams

Edmonton ChapterEssex County ChapterBev EvertsHalifax/ Dartmouth Reg. ChapterSheila HamblinHeather M. HeickRob LaycockJen LoveMaureen MunroeNiagara ChapterOttawa and Area ChapterPeace Country ChapterJudy R. PierceHeather PottsPrince Edward Island ChapterJohn & Mary-Lou RoderGlenda RoweinRobert & Lenita SchellenbergSouthern Alberta ChapterGeri StewartAmber TaylorLynn TendlerMarlene TeskeNancy ThorntonJanet TrimRhea Van BredaAriel WalkerWinnipeg Chapter

Family Funds Partners for the future: Our Family Fund holders create a lasting legacy and honour their family at the same time. Thank you to host donors who have chosen to honour their family and loved one by establishing a Family Fund. A. C. Emerick & Family FundBarbara Dorr Research FundBarrett Research FundBezeau Family FundBill Nichol Family FundBloom Family FundBrenda Wasylow’s Hope FundChaplin Family Fund

William & Corinne BeesMaria G. H. BerendsenIvan BerggrunJoe & Antoinette BerridgeNorma BertrandChristian BezardRobert BigleyNorman BloomMartha Blouw

John AdrianChristine A. AndrewsAllen AntoniukBertha L. ArneyLewis ArnoldRonald E. AshcroftMurray & Sharon AssmanPeter & Sigrid AzzopardiRalph & Margo BaileyRay BaileyF. BallabanIna J. BamseyNicola BanghamPamela J. BardenTrevor BardenMargaret BarrVern & Ellen BarrettDoris BartoliniMary & Inderjit BasarkeGerald BaxterRuth M. BeachKatherine J. BeattieRoger BeaupreDeborah Bedley

Francis C. BobzenerMelynda BottorffJean & Jim BouldJames L. BowenJeff BowesMary BowiePatricia BowieAnne & John BraceMaria E. BradfordIvy M. BraunAgnes BreadnerJack BredinBarbara BrittainAllan BrocklebankCindy BrownRaymond BrownThelma M. BrownBru-Ben Development Co. LimitedMarcene BruntjenPercy BubisEvelyne Buchbinder-WatierPeri BulcanMarg Burkholder


Dave CreerJennifer CreerDavid CroutchJan CrowleyMichael M. CowleyBonnie CutlerClarence CutlerSadie CyrenneJudy-Kay DarbyJoyce DaveyShirley DavidsonPatricia DaviesRobert & Donna DavisKathleen De ArmondJulia DeckNeil & Gail DekoningKendall DennisSandro De SantisDan & Jill DevlinMarc & Janet DevlinJanice DiLaudoStafford DobbinJohn DollekampWalter DomagalaAnne M. DonohoeJames M. DouglasRussell DouglasKenneth J. DowlePat DrouillardLeatha M. DudraRaymond J. DyckThomas H. DyckBarb Eade-StainbyEllen EberleinEbsco Industries Inc.David J. EdgeEnCana Cares FoundationDonald E. ErlingEsterhazy & District Donor’s ChoiceMarguerite EvansF.A.Y. Farms Ltd.Katherine & Robert FaderRondeau M. FentonGloria H. FergusonFides Real Estate LimitedKathleen E. FitzgibbonsRonald K. FlavelleStefan Fleck

Dawn FlemingCarol ForbesJohn & Frances FordhamArnold & Maria FossJ. Peter & Carol FosterGeorge & Elizabeth FrancisGeorge FraserDwight FynnCaroline & Michael GainesAgnes GaratEdmundas GataveckasNaomi GecziMarion GenoeAlice E. GibsonAlbert GignacAlice M. GillMargaret GilmourErnest GiordanoWard & Lois GlenneyJames & Susan GodeyDavina GoldenGerald GoldenbergBarbara GoldringLouise GoodeWayne GoodeyThe Late Stephen GouldMargaret GrayMervyn R. GreenDawn GroszkoNancy Gwin

Eugene D. BurlesJames & Sharon CameronDebi CampbellLarry CampbellLarry & Louise CampbellCarlyle & District Donor’s ChoicePeggy L. CarmichaelCarnduff & District Donor’s ChoiceRosemary J. CarverAndrew J. CassidyDiana CerenziaBruce ChambersChambers Crane Rental Ltd.Janette CharltonCharron Warehousing Inc.Carole ChenierJohn D. ChesterSylvia ChongNathalie ChopchikPhyllis ClarkeGlen CleggGertrude CobrinW. Peter CockburnDavid ColeElaine ColeGerry ColeJennifer ColeburnH. Neal CollinsRonald W. CollinsTerry CollinsIn Memory of Donald ColpChristine ColtartPaul & Leisa ConnellyColin CookJoyce CookPhyllis J. CookJohn A. CoolenCo-Op AtlanticMargaret C. CooperRoss & Joanne CorkishRita CostantiniBarbara E. CotnamCatherine M. CottonHolly CouchMichael R. CoulsonCameron & Dijana CrawfordPeter J. Crawford

Willis HebbTerence & Roberta HeenanHeather M. HeickVic HeinGary HeislerJacob HendriksLois M. HetheringtonMary L. HickeyJohn M. HicksonAmanda HigdonHarry HigdonMorley F. HodderBeverly HoldenWaldo J. HoldenAnne HoldingJudith R. HolmesAdam HoosonBeatrix HornAlan J. HowellDonna F. HowleyEarnestine HoyemJeffrey HoyemMary M. HrynewichMarylou HughesThomas G. HughesJoseph & Susan HunterPeter HurdJohn HuttonFrank & Nancy IacobucciDavid S. InkpenInternational Brotherhood of Electrical Workers, Local #353Tim IrwinHenry IsaakKaren IsaakMarjorie JacksonDoreen JanesMarion JanesWendy L. JanzM. Alfreda JeffriesDavid Jenkins & Joanne Cockerton-JenkinsAlice M. JohnsonCathy JohnsonDenis E. JohnsonTara Johnson-OuelletteDavid JohnstonGerald & Jill Johnston

22,000 Amaryllis bulbs blooming across Canada

Donald M. HallMurray HallTim & Lara HallBonnie HamiltonSteven & Tammy HanlanRobert G. HansenGregg & Mary HansonEdgar HarderJudy HardingDeanna E. HarrisPhyllis L. HarveyStella Heathman


Pauline LingardStephen R. LingardMarcel LitalienJeannie LivingsGail D. LogieJanet E. LongpreMary LothamerKaren LougheedJen LoveNorma LudwigShawn & Catherine LukenMarilyn G. LyonMargaret LythgoeIan & Lucille MacdonaldIan MacDonaldCatherine A. MacDougallWilliam & Diana MacKayConstance MacKinnonRichard and Elizabeth MadterJan MalcolmElizabeth G. ManiqueMaria ManiqueL. Maxine MardellGwen MartinThomas MartinWayne MartinPaul E. Mathews

Helen I. MeagherTadeusz A. MejznerLinda MelnykMenkes Developments Ltd.Robert & Joan MercerJohn & Betty MerchantJoann M. MeredithMrs. Helen M. MillerKristi-Jayne S. MillerLucas MillerRobert & Margaret MillikenRichard & Lynn MinerBernice MinshullBrett & Janet MitchellHelen MitchellKen MoarTim & Arlene MoherGunnar & Britt MollerstedtJo-Anne I. MonkHolly MontgomeryGailene K. MooreSara MuellerSara MuellerJune MurphyValerie Nabb & Colin ChestermanMike NaishBrian NattressE. Marie NeilVerna I. NeilErnest & Carole NeudoerfferTim & Darlene NeumanJune NicholMary Lou Nicolson-KlimekGreville & Joyce NifortLorraine M. NorwoodElizabeth V. OldfordMarie O’NeilAndrea OosterloOPG Employees & Pensioners Charity TrustSean O’SullivanOutlook Donor’s ChoiceAnn PaceMargaret PaceAshok J. PadmarajNeil L. ParentMurray PaskHugh Patterson

Joan E. JohnstonJ. Grant JohnstonAudrey E. JonesCalvin JonesJoanne KaattariEldon & Mildred KayAllan KeepingScott KellyGail KeltonRoy & Debbie KendallArnold KerrWinnifred J. KiddEdward KiecRonald KilbeyJoan KilgourKipling & District Donor’s ChoiceNicholas KirtonDale & Gwenda KleinMitchell KosovitchJanet KuchinkaDoreen KuliDiane & John KuzykSusan LaFranceJane LaidlawMurray LanceleyJoseph B. LandryKenneth R. LangilleSharon LangilleBetty LarkworthyBruce & Alison LatimerChristine LawrieEric LawrieGreig LawrieD. Jean LawsonRob LaycockRon & Shelley LeaderGene LeavittEdwin A. Le BlancIrvin & Grace LeboldSharon & Ed LedyitHelen LeeJames & Nancy LeeStuart & Doris LeeDiane LeinKarin LenhardtKathleen LevchukMrs. Rose LewisJacqueline Lingard

Lois Y. PearceRichard PearsonW. B. PearsonJohn N. PelletierPeter E. PennerLyle PerkinsElizabeth PetersJudy R. PiercePierson United AppealMickey & Margaret PikorKari PlandowskiDonna PoffLeslie PooleNicolai PopoviciHeather PottsAlex PowellFrances PrestonEleanor J. ProctorMargaret L. PughE. T. PullenPatricia G. M. PyneEarl & Nancie QuigleyAnne C. RameyBrenda RandallCarol RaymondRBC FoundationCarol ReeveBarb ReichertDemetrios ReklitisGisele ReklitisTerresca & Rollie RemillardWilliam & Beverley RetsonA. Noreen RichardLil RichardsonFranklin T. RichmondH. S. RileyPatricia RivestJ. Keith RobertsonSusan J. Robertson-KrezelPeter RobinsonJohn & Mary-Lou RoderTrudy RogersBurt RollinsWayne RoszlLeander RothGlenda RoweinTheresa RuefferNicole E. RussellIsabel E. Saunders

Maunders McNeil Foundation Inc.A. MaziarczykElizabeth McArthurIrene McDonaldArlene McDougallJim & Jacqueline McGillivrayDebra McIntyreMary B. McMillanRobert & Letitia McMurrayPatricia McNeiceMarianne McQueen


Kevin TessnerSusan ThackLori & David ThomasJean ThompsonHelen ThomsonMary TierneyRobert J. ToewsJohn TomiukMary Treloar

Donna M. WhiteGordon A. WickettTracey & Bob WickettMarvin O. WilliamsIan A. WilsonWilliam WilsonBarbara J. WingesJames Wiswell & Ellen FosterFaith Wood

Robert & Lenita SchellenbergDiane SchieferShirley ScottLinda ShakespeareGeorge A. ShentonCelina ShojiAmerico SilvaJoe SilvaBill SilverbergNancy E. SimpsonLorne SinclairAlene SkikavichHelen B. SkinnerLaurie & Ann SkinnerJanet M. SladeWilliam A. SlaterWilliam R. SlaterBonita B. SlimmonNancy T. SmartColleen SmithL. Eveleigh SmithLinda SmithDouglas E. SnowSandra SorsdahlPatricia & Kevin SowersGwenneth SquiresJohn M. StainsbyMark W. StainsbyBarbara StanleyLinda StarrHerman J. SteffensHeath SterlingNorma StevensJohn R. StewartCatharina J. Stoop-SneekTerry StortzThomas Y. StrathDieter & Betty StuebingLeonard SussmanJeannette SuzukiJoan SwanRaymond & Rosilyn SwitzerSam & Caroline SychAndrew TalbotJudy TalbotAntonietta TavernitiAmber TaylorBruce & Elaine TaylorTELUS Corporation

Shirley EybelJohn & Sally GuggenheimerColleen HuntleyStephen HurstCathy JohnsonJanet MainElizabeth McArthurGunnar & Britt MollerstedtNorma StevensTerry J. Taylor-ToppMichael & Susan TremblayJames Wiswell & Ellen Foster

We RememberFor those we have lost this year, we remember. Gifts made to the Huntington Society of Canada were made in honour of the following people. Theresia AbspoelSusan AitchisonGladys AndersonHarriett ArcherDavid ArenburgStella M. AsherJohn AtkinsonElizabeth BaileyAlice BainbridgeCarrie BalkhamBarbara BallantineBrenda BellTheresa BentleyEileen BeirnesEunice B. BeveridgeClint BezeauRoss BillDan BowiePerry BowieRichard BraisGoldie M. BrownAdam BruntGeorge BuckleBarbara CampbellKen CarruthersRoger ChalliceBrian CharetteMaxine CharronBonheur Clarke

Michael & Susan TremblayJanet TrimNancy TrolleyJ. Stephen TweedleEthel UrquhartAlgis J. VaisnorasGinny Van AllenRhea Van BredaAntonie VandenbrinkGarry VannFerris J. VanSickleGerald & Gerda VennemaAdrian & VerhagenGeorge & Lynn VooroJudith A. WakelinAriel WalkerJean D. WallaceMareile WalterPatrick G. WannamakerMary C. WatsonLinda WeberStan & Dorota WeberMarjorie L. WelchCase WesselsDavid E. WestJohn S. WestJim WestonChristine Wheelhouse

Helen WoodSusan WoodDoug & Faye WoodworthAndrew & Tory WrightSusan Wright & John SankeyJ. A. WynnKevin YagiS.A. YetmanDoris YoungDouglas YoungPatricia Zonta

Summit Society MembersThank you to those following donors who participate in our Summit Society and have included the Huntington Society of Canada in their estate planning. Anonymous (7) Mr. Rex BallardVern & Ellen BarrettJean BeakhouseWilliam & Corinne BeesKathleen BissettJohn & Helen BodnarchukLarry & Louise CampbellIngeborg Dodds


Miriam ClarkeMarie N. ClellandAlex R. ClevelandSharon ClevelandDavid ChristensenLloyd CowanGunther CsoffFloyd CurryRichard D. DaleyColleen DaviesEmile DelisleLillian DescheneElise DevittAlice A. DonnellyMary DonnellyMargaret DowdallDavid A. DownieLawrence W. ElliottDonald EllisGerald EllisRobert G. EmmettAustin B. EvansWarren A. EvansLloyd FenskeWilliam A. FordVelma ForemanFredric FrankBetty FullertonJoanne L. GagnerBrenda GallogleyMary GaneDoreen GarrettClarence GautreauDavid GecziMargaret GibsonBernetta GoodwinStephen A. GouldHundley R. GoverWilma H. GreenGrayson M. HajashJean N. HallBill HanlyJean E. HannanEdna V. HarrisGordon HartVictoria HastieEthel HeimbeckerJohn P. HendersonDorothée Henry

Eva HodgeRobert M. HorneRueben HovelandDoug HowellMuriel E. HunterCarol A. JonesVernon A. JoudreyShannon KarenkoDavid KeaneRic KennedyCarol A. KerrWinnifred J. KiddLawrence KleinMarty KnightDietrich KoopBeatrice LangilleRosemary LanniIsabel LeederErrol LeroyArdell LewisElizabeth LloydRod MacEachernKim MacGregorDamion MacKeyJames MaddisonWilliam D. MallockAndrew MantellMarjorie E. MartellHarold MayesDorothea McBean

Loraine MenardReta M. MorphyAmy Jean MorrisBill NeumannElizabeth V. NifortBlaine NixonMelvin G. O’BrienIvy B. OakleyGertrude OlsonRobert F. PearceLolita PigaJacoba PoelsMary L. PorterBeverley PowellTom PrattEdward PyesmanyArthur RempelEldon ReynoldsArthur R. RiceJ. K. RobertsonBill RobinsonDavid RobinsonVictor M. RobinsonDonato RomanoNancy RussellMargaret M. RylottMadelene SarsonAline SavoieRonald H. SchausDouglas ScottCharles M. SeathMary E. SeeneyPero ShehovacBertha L. ShentonMichael SheridanFrederick J. SherlockGerald SimperonDebbie SimpsonGerry SimpsonConstance J. SkeneNorman S. SmithRoss SmithHubert C. SoltanEvelyn SpenceLawrence SpencerByron S. StansfieldAlvin SternhagenElaine StevensRobert H. Stevens

Donna M. StuartGarry TeevinsKenneth G. ThompsonRobert J. TobiasDamion TremblayWayne TweddellJanet M. TwiddyKen UlchJoyce M. VailRebecca VanagsNorman J. VautourAdrian VerhagenCarolyn WallaceJozef WarcholWilliam J. WatsonMarie WheatonAlice WhiteNina WhittenBarb WhittleLillian WilliamsKaren L. WilsonTracey WiltshireDavid W. WinnCarol WlashynRon WyeldRichard YeatesEileen YoungRilla L. YoungLaurene ZehrLouise Zuidema

Estate GiftsTo those who have remembered the Huntington Society during their lifetime, thank you. You will always be remembered. Estate Gift of Gertrude Adrian-CousinsEstate Gift of Martha J. De BeusEstate Gift of Ivy Robbins Oakley Estate Gift of Robert H. StevensEstate Gift of Margaret Turley

Jack McCabeDaniel McCaffertyWilton McCarthyOlive I. McGladeMary E. McKeenNicole McLeanPatricia A. McLeanEdith McWilliam


Treasurer’s ReportIt is my pleasure to report on the financial results of the Huntington Society of Canada for the fiscal year ended June 30, 2015. The Society continued to have strong financial results, once again exceeding our revenue targets while achieving our strategic initiatives at costs below budget. For the 2015 fiscal year, the Society’s total revenues exceeded $4.2 million (a 4% increase over the prior year). This growth in revenue was the result of a number of successes in Chapter events, grant programs and strong donations thanks to a combination of the on-going commitment of our existing donors and the re-engagement of key donors back to the Society.

We continue to focus on delivery of services in a cost-effective manner. This past year we hosted a successful National Conference in Winnipeg, Manitoba. We also increased our services to families, grew our Youth Mentorship Program and maximized research investments. We continued our “Be Brave, Be Bold, Be Ready: Clinical Trials Readiness Initiative” gathering an HD Consortium of more than 20 clinicians, research assistants and HD biomedical scientists from across the country. We created a clinical trials checklist, best practice guidelines and mentorship opportunities to build a solid foundation to be ready for, and ensure successful, HD clinical trials in Canada. These achievements were completed below our budgeted expenses.

As of June 30, 2015, our net assets grew to $3.4 million, from $3.0 million in the prior year. The General Fund balance is $665,000, with two externally restricted funds that support eligible general research totaling almost $760,000 and the endowment fund rounding out the balance at $1.9 million.

The Board of Directors remains committed to stewarding the Society’s financial resources responsibly. Our audit committee and investment committee provide additional oversight, while our financial statements are audited by an independent auditor each year.

We continue to build strength in the organization and support expediting discovery to treatments for HD. This could never be accomplished without the commitment and continued support from our donors, volunteers and staff. Thank you for believing that together we can make the difference by investing in transformative research, increased services to families and youth and building a strong foundation for clinical trials in Canada, including ending genetic discrimination.

Glenda Rowein, Treasurer


STATEMENT OF FINANCIAL POSITIONAt June 30, 2015

Assets Current assets : Cash Investments (note 2)* Accounts receivable (note 3)* Prepaid expenses Capital assets (note 4)* Liabilities and Fund Balances Liabilities: Accounts payable and accrued liabilities (note 5)* Deferred revenue (note 6)* Net assets: General fund Capital assets fund Endowment fund Laura's Hope fund Ralph Walker Research fund

Commitments (note 7)*

$794,4002,229,649

412,53044,063

3,480,642

50,117

$3,530,759

$60,22682,617

142,843

664,16250,117

1,914,53412,273

746,8303,387,916

$3,530,759

$617,597 2,317,587

141,47550,808

3,127,467

44,824

$3,172,291

$76,77073,120

149,890

685,97444,824

1,870,153382

421,0683,022,401

$3,172,291

2015 2014 REVENUE

EXPENDITURES

Grants 10%Donations 46%

Realized gain on sale of investments 1%Unrealized gain on investments 1%Other income 1%Investment and interest 3%Chapter and volunteer fundraising revenue 38%

Family services 31%Public awareness and education 10% Chapter and volunteer support 4%

Development 10% Chapter and volunteer fundraising expenses 7%

Administration 11%Amortization 1%Research 26%

*A complete copy of the Society’s audited financial statements is available at www.huntingtonsociety.ca.


Statements of OPERATIONS & FUND BALANCES

Revenue Donations Grants Chapter and volunteer fundraising revenue (note 8) Investment and interest income (note 9) Realized gain on sale of investments Unrealized gain on investments Other income Expenses Research Family services Public awareness and education Chapter and volunteer support Development Chapter and volunteer fundraising expenses (note 8)Administration Amortization Loss on disposal of capital assets Excess (deficiency) of revenue over expenses

General Fund

$ 1,565,46688,692

1,565,168

128,593

27,358

8,77552,059

3,436,111

550,0801,227,917

380,995

166,375382,183

280,625445,705

-

- 3,433,880

$ 2,231

Capital Assets

Fund

$ - -

- -

- - -

- -

- -

- -

- - - -

18,750

$ (18,750)

Endowment Fund

$ 14,325 -

3,350

-

-

26,706 -

44,381

- -

-

- -

- - -

- -

$ 44,381

Laura’s HopeFund

$ 16,910

-

552

-

-

17,462

5,571 - - -

-

- - -

- 5,571

$ 11,891

Ralph Walker

ResearchFund

$ 380,088 334,464

36,760

9,721

2,059

2,671 -

765,762

440,000 -

-

- -

- - -

- 440,000

$ 325,762

Total2015

$1,976,789 423,156

1,605,278

138,866

29,417

38,151 52,059

4,263,716

995,651 1,227,917

380,995

166,375 382,183

280,625 445,705

18,750

- 3,898,201

$ 365,515

Total2014

$ 1,901,269 169,362

1,583,699

113,097

28,677

172,941 143,126

4,112,171

735,784 1,163,792

305,355

145,797 394,065

453,788 535,495 18,748

1,155 3,753,979

$ 358,192


FINANCIAL STATEMENTSFor the year ended June 30, 2015

The General fund is an unrestricted fund used at the discretion of the Board of Directors to fulfill the mission of the Society in all areas, including research, family services, public awareness and education, Chapter and volunteer support, development, chapter and volunteer fundraising, and administration. All undesignated donations are recorded in this fund.

The Endowment fund is restricted and accounts for donations received which the donor has designated specifically for endowment purposes. In exceptional circumstances, and subject to approval of two-thirds of the Board of Directors of the Society, funds may be transferred from the capital of the Endowment fund to the General fund to finance special projects or unbudgeted annual deficits. Annual interest earned and realized gains (losses) on the sale of investments in the Endowment fund are used to fund operational expenditures in the General Fund. Unrealized gains (losses) on Endowment fund investments are retained in the Endowment fund until realized through the sale of investments.

The Laura’s Hope fund is an externally restricted fund established in honour of Laura Evans by her parents in 2003. The purpose of this fund is to support pre-clinical and/or clinical research towards developing a treatment or a cure for Huntington disease, and revenues specifically designated by donors to this fund have been restricted for this purpose.

The Ralph Walker Research fund is a restricted fund established in 1983 to commemorate the 10th anniversary of the Huntington Society of Canada and to pay tribute to the Society’s founder, Ralph Walker. Revenues specifically designated by donors to this fund have been restricted for research, along with any related expenses.

Chapter and volunteer fundraising revenue and expenses are reported at gross on the Statements of Operations in these financial statements.

All research payments are expensed as payments are made.

The financial statements have been prepared by management in accordance with Part III of the Chartered Professional Accountant of Canada Handbook-accounting standards for not-for-profit organizations.

A complete copy of the Society’s audited financial statements is available at www.huntingtonsociety.ca.


Doing Something

POSITIVEToronto photographer Meghan Andrews has combined two of her passions – photography and raising awareness about Huntington disease – to produce a compelling photo book that documents the journeys of Canadian families affected by Huntington disease.

Huntington Disease: Trials and Triumphs highlights the strength, courage and positivity of 15 families coping with various stages of the disease. Meghan travelled across the country to photograph HD families from coast to coast. The photo book is a project with deep personal meaning for Meghan: she understands all too well the impact that HD can have on a family. Her father had Huntington disease and passed away in 2004. Two years later, Meghan decided to undergo genetic testing and learned that she also carries the gene.

“I thought that by documenting families with Huntington’s I could bring awareness to the disease and illustrate how the disease affects not only the patient, but the family as a whole,” says Meghan. “I found this whole experience to be an incredibly healing one. I constantly find myself thinking that if others can do this with a smile on their face, so can I.”

The Huntington Society of Canada is truly grateful to Meghan and her Mother, Christine, for their outstanding efforts. Meghan’s book creates a lasting legacy for the Society. Thank you to all who participated.

151 Frederick St, Suite 400 | Kitchener, ON Canada N2H 2M2Phone: 519.749.7063 | Toll Free: 800.998.7398 | Fax: 519.749.8965

[email protected] | www.huntingtonsociety.caCharitable Registration Number 11896 5516 RR0001

Embracing Our Strength - Huntington Society of Canada · movement to light up the world in 2016....

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