Ehealth and participatory health informatics research
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Transcript of Ehealth and participatory health informatics research
HaBIC
Ehealth and Participatory Health
Informatics Research
Symposium 28 March 2014
Kathleen Gray
HaBIC’s ehealth research agenda:
questions of changing professional practice &
quality of care
Ehealth : Education of future clinicians
How can we ensure that next gen professionals are discerning users of data, information, knowledge and technologies?
National interprofessional review of learning, teaching and assessment of ehealth in universities
Commonwealth Office of Learning and Teaching, University of Queensland, University of Western Sydney, Curtin University
Ehealth: Assessment of provider organization
connectivity
How can we plan for providers’ high-capacity broadband requirements for future health services delivery?
Scenarios based on in-depth review of network requirements and performance priorities with health CIOs
IBES & Australian Centre for Health Innovation
Ehealth: Evaluation of telehealth implementations
Could we learn more, sooner about good practice by evaluating the plethora of pilots more systematically?
A framework that includes patients / clinicians / health service manages / IT managers; sets of metrics derived from Australian criteria
Melbourne Research Office & IBES; Melbourne Health, RCH, Wangaratta; RDNS; VeRSI; UWS; & industry partners
“Much mention has been made in the press of individual Telehealth activities as if they were highly novel…”
One in Four Lives: The Future of Telehealth in Australia. March 2014 http://bit.ly/1mXuOze
Ehealth: More ….
• Dynamic predictive length of stay modelling that rapidly identifies patients most at risk (NHMRC / UNSW)
• Non-contact 3D falls detection, prevention and behavioural monitoring in aged residential & home environments: developing a clinical evaluation and application framework (IBES & industry partners )
• Social media support for informal learning and development among practicing health professionals (PhD Xin Li & industry partner)
HaBIC’s participatory health research agenda:
questions of self-help and health outcomes
Participatory health: Mobile augmented reality for
public engagement with health research
MAR on your smartphone or tablet – can it engage people in the street in greater interaction with biomedical and healthcare research in the Parkville Precinct?
Interface prototype, information architecture, field trials
Melbourne Scholarly Information Innovation Fund; Melbourne Research Office & IBES; 4 research institutes
Participatory health: IPTV 2.0 for health literacy
Internet protocol TV with web 2.0
personalisation, in your home – can it
educate people with low health
literacy and low Internet literacy about
how to manage their chronic
disease?
Technical integration; process
modelling; consumer and provider
acceptance testing
IBES, Diabetes Australia-Vic &
industry partners
Participatory health: Social media for people with
chronic disease
Social media platforms and tools – what is the evidence that they work, and what is the mechanism by which they work, for people who are using them to manage their chronic disease (chronic pain; brain tumours) ?
Review of platforms; international user survey; RCT pilot study
IBES; PhD Mark Merolli; Universita della Svizzera Italiana; Melbourne Health
Participatory health: Self-quantification for
everybody
Self-quantification devices and apps – can they be used in combination - and in partnership with peers, clinicians and researchers - to support personal health self-management effectively at scale?
S-Q laboratory & user guide; PHR and EHR integration testing; international user survey; clinical trial by very obese pregnant women
IBES & Melbourne Medical School; PhD Manal Almalki; Master of IS Mark Whooley; Melbourne Quantified Self Group; Sunshine Hospital
Participatory health : More
• Smart Companion home medicine shelf: self-
management of medication using RFID sensor network
(IBES)
• Direct-to-consumer online medical consultation services
(PhD Ibrahim Al-Mahdi)
• Direct-to-consumer personal genomics and metabolomics
services and datasets
Selected publications
Almalki, M., Martin-Sanchez, F., & Gray, K. (2013). Self-Quantification: The Informatics of personal data
management for health and fitness. Melbourne: Institute for a Broadband-Enabled Society.
Gilbert, C., Gray, K., Martin Sanchez, F., Karunasekera, S., Bhakoo, V., Harrison, S., Smolenaers, F., & Egan, J.
(2013). Health Provider Broadband Connectivity: A review of technical requirements. Melbourne: Institute for a
Broadband-Enabled Society.
Dattakumar, A., Gray, K., Jury, S., Biggs, B., Maeder, A., Noble, D., Borda, A., Schulz, T., & Gasko, H. (2013). A
Unified Approach for the Evaluation of Telehealth Implementations in Australia. Melbourne: Institute for a
Broadband-Enabled Society.
Gray, K., Clarke, K., Kwong, M., Alzougool, B., Hines, C., Tidhar, G., & Frukhtman, F. (2014). Internet Protocol
Television for personalized home-based health information: Design-based research on a diabetes education
system. JMIR Research Protocols, 3(1), e13.
Gray, K., Dattakumar, A., Maeder, A., Butler-Henderson, K., Chenery, H. (2014). Advancing Ehealth Education for
the Clinical Health Professions. Final Report. Sydney, NSW: Department of Education Office for Learning and
Teaching.
Kilby, J., Gray, K., Elliott, K., Waycott, J., Martin Sanchez, F., & Dave, B. (2013). Designing a mobile augmented
reality tool for the locative visualisation of biomedical knowledge. In C. Lehmann, E. Ammenwerth, Eds,.
MEDINFO 2013: Proceedings of the 14th World Congress on Medical and Health Informatics: Building a
healthcare future through trusted information, Copenhagen. Amsterdam, Netherlands: IOS Press.
Martin Sanchez, F., Lopez Campos, G., & Gray, K. (2013). Biomedical informatics methods for personalized
medicine and participatory health. (pp. 347-385) In N. Sarker, Ed., Methods in Biomedical Informatics: A
Pragmatic Approach. London: Academic Press. ISBN 9780124016781.
Merolli, M., Gray, K., & Martin-Sanchez, F. (2013). Health outcomes and related effects of using social media in
chronic disease management: A literature review and analysis of affordances. Journal of Biomedical Informatics,
46(6), 957-969.
Image credits
• resources3.news.com.au/images/2011/04/13/1226038/727543-e-health.gif
• www.nepeandgp.org.au/ehealth.aspx
• www.ahwi.edu.au
• theconversation.com
• clinicalposters.com/anatomy/body/304.html
• mobihealthnews.com/4048/interview-layar-augmented-reality-and-wireless-
healthcare/
• broadband.unimelb.edu.au
• www.healthcareos.com
• quantified-self.meetup.com