Ehealth and participatory health informatics research

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HaBIC Ehealth and Participatory Health Informatics Research Symposium 28 March 2014 Kathleen Gray

Transcript of Ehealth and participatory health informatics research

Page 1: Ehealth and participatory health informatics research

HaBIC

Ehealth and Participatory Health

Informatics Research

Symposium 28 March 2014

Kathleen Gray

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HaBIC’s ehealth research agenda:

questions of changing professional practice &

quality of care

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Ehealth : Education of future clinicians

How can we ensure that next gen professionals are discerning users of data, information, knowledge and technologies?

National interprofessional review of learning, teaching and assessment of ehealth in universities

Commonwealth Office of Learning and Teaching, University of Queensland, University of Western Sydney, Curtin University

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Ehealth: Assessment of provider organization

connectivity

How can we plan for providers’ high-capacity broadband requirements for future health services delivery?

Scenarios based on in-depth review of network requirements and performance priorities with health CIOs

IBES & Australian Centre for Health Innovation

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Ehealth: Evaluation of telehealth implementations

Could we learn more, sooner about good practice by evaluating the plethora of pilots more systematically?

A framework that includes patients / clinicians / health service manages / IT managers; sets of metrics derived from Australian criteria

Melbourne Research Office & IBES; Melbourne Health, RCH, Wangaratta; RDNS; VeRSI; UWS; & industry partners

“Much mention has been made in the press of individual Telehealth activities as if they were highly novel…”

One in Four Lives: The Future of Telehealth in Australia. March 2014 http://bit.ly/1mXuOze

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Ehealth: More ….

• Dynamic predictive length of stay modelling that rapidly identifies patients most at risk (NHMRC / UNSW)

• Non-contact 3D falls detection, prevention and behavioural monitoring in aged residential & home environments: developing a clinical evaluation and application framework (IBES & industry partners )

• Social media support for informal learning and development among practicing health professionals (PhD Xin Li & industry partner)

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HaBIC’s participatory health research agenda:

questions of self-help and health outcomes

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Participatory health: Mobile augmented reality for

public engagement with health research

MAR on your smartphone or tablet – can it engage people in the street in greater interaction with biomedical and healthcare research in the Parkville Precinct?

Interface prototype, information architecture, field trials

Melbourne Scholarly Information Innovation Fund; Melbourne Research Office & IBES; 4 research institutes

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Participatory health: IPTV 2.0 for health literacy

Internet protocol TV with web 2.0

personalisation, in your home – can it

educate people with low health

literacy and low Internet literacy about

how to manage their chronic

disease?

Technical integration; process

modelling; consumer and provider

acceptance testing

IBES, Diabetes Australia-Vic &

industry partners

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Participatory health: Social media for people with

chronic disease

Social media platforms and tools – what is the evidence that they work, and what is the mechanism by which they work, for people who are using them to manage their chronic disease (chronic pain; brain tumours) ?

Review of platforms; international user survey; RCT pilot study

IBES; PhD Mark Merolli; Universita della Svizzera Italiana; Melbourne Health

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Participatory health: Self-quantification for

everybody

Self-quantification devices and apps – can they be used in combination - and in partnership with peers, clinicians and researchers - to support personal health self-management effectively at scale?

S-Q laboratory & user guide; PHR and EHR integration testing; international user survey; clinical trial by very obese pregnant women

IBES & Melbourne Medical School; PhD Manal Almalki; Master of IS Mark Whooley; Melbourne Quantified Self Group; Sunshine Hospital

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Participatory health : More

• Smart Companion home medicine shelf: self-

management of medication using RFID sensor network

(IBES)

• Direct-to-consumer online medical consultation services

(PhD Ibrahim Al-Mahdi)

• Direct-to-consumer personal genomics and metabolomics

services and datasets

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Selected publications

Almalki, M., Martin-Sanchez, F., & Gray, K. (2013). Self-Quantification: The Informatics of personal data

management for health and fitness. Melbourne: Institute for a Broadband-Enabled Society.

Gilbert, C., Gray, K., Martin Sanchez, F., Karunasekera, S., Bhakoo, V., Harrison, S., Smolenaers, F., & Egan, J.

(2013). Health Provider Broadband Connectivity: A review of technical requirements. Melbourne: Institute for a

Broadband-Enabled Society.

Dattakumar, A., Gray, K., Jury, S., Biggs, B., Maeder, A., Noble, D., Borda, A., Schulz, T., & Gasko, H. (2013). A

Unified Approach for the Evaluation of Telehealth Implementations in Australia. Melbourne: Institute for a

Broadband-Enabled Society.

Gray, K., Clarke, K., Kwong, M., Alzougool, B., Hines, C., Tidhar, G., & Frukhtman, F. (2014). Internet Protocol

Television for personalized home-based health information: Design-based research on a diabetes education

system. JMIR Research Protocols, 3(1), e13.

Gray, K., Dattakumar, A., Maeder, A., Butler-Henderson, K., Chenery, H. (2014). Advancing Ehealth Education for

the Clinical Health Professions. Final Report. Sydney, NSW: Department of Education Office for Learning and

Teaching.

Kilby, J., Gray, K., Elliott, K., Waycott, J., Martin Sanchez, F., & Dave, B. (2013). Designing a mobile augmented

reality tool for the locative visualisation of biomedical knowledge. In C. Lehmann, E. Ammenwerth, Eds,.

MEDINFO 2013: Proceedings of the 14th World Congress on Medical and Health Informatics: Building a

healthcare future through trusted information, Copenhagen. Amsterdam, Netherlands: IOS Press.

Martin Sanchez, F., Lopez Campos, G., & Gray, K. (2013). Biomedical informatics methods for personalized

medicine and participatory health. (pp. 347-385) In N. Sarker, Ed., Methods in Biomedical Informatics: A

Pragmatic Approach. London: Academic Press. ISBN 9780124016781.

Merolli, M., Gray, K., & Martin-Sanchez, F. (2013). Health outcomes and related effects of using social media in

chronic disease management: A literature review and analysis of affordances. Journal of Biomedical Informatics,

46(6), 957-969.

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Image credits

• resources3.news.com.au/images/2011/04/13/1226038/727543-e-health.gif

• www.nepeandgp.org.au/ehealth.aspx

• www.ahwi.edu.au

• theconversation.com

• clinicalposters.com/anatomy/body/304.html

• mobihealthnews.com/4048/interview-layar-augmented-reality-and-wireless-

healthcare/

• broadband.unimelb.edu.au

• www.healthcareos.com

• quantified-self.meetup.com