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Patient Education and Counseling 85 (2011) e108–e119
E-Health
Effectiveness and impact of networked communication interventions in youngpeople with mental health conditions: A systematic review§
Steven Martin, Paul Sutcliffe *, Frances Griffiths, Jackie Sturt, John Powell, Ann Adams, Jeremy Dale
Health Sciences Research Institute, University of Warwick, Coventry, UK
A R T I C L E I N F O
Article history:
Received 3 August 2010
Received in revised form 28 October 2010
Accepted 21 November 2010
Keywords:
Communication
Technology
Young people
Mental health
A B S T R A C T
Objective: Examine the effectiveness and impacts of the networked communication technologies used by
health care professionals for the treatment of adolescents/young adults with mental health disorders.
Methods: Nine electronic databases were searched. Quantitative and qualitative study designs were
included, technologies were described and a narrative synthesis of all included studies was undertaken.
Results: 20,925 papers were identified from which 12 interventions met the inclusion criteria. Three
categories of networked communication were identified: email and/or web-based electronic diary
(n = 6); videoconference (n = 5); and virtual reality (n = 1). Three studies reported statistically significant
improvements in symptoms post intervention; all involved email communication. Patients were willing
to use networked communication in routine care in nine studies.
Conclusions: Networked communication technologies can increase the opportunity for communication
between patient and health care professionals. Limited improvements in quality of life and continuity of
care for patients were reported. Patients and health care professionals expressed some satisfaction with
technologies. Further research exploring concerns over privacy and security is needed.
Practice implications: Networked communication technologies have the potential to be a useful addition
to mental health services delivery, however the impact and effectiveness of these technologies is
inconclusive.
� 2011 Published by Elsevier Ireland Ltd.
Contents lists available at ScienceDirect
Patient Education and Counseling
jo ur n al h o mep ag e: w ww .e lsev ier . co m / loc ate /p ated u co u
1. Introduction
Networked communication technologies (NCTs) support thedelivery of education and self management interventions inhealthcare. These technologies are suitable for remote two-waycommunication and access to a service (e.g. practitioner, nurse andspecialist). Examples of networked communication include: socialnetworking sites (e.g. Facebook, MySpace); mobile/smart phone;video- and tele-conferencing; Voice over Internet Protocol (VoIP)system (e.g. Skype); forums; email; short messaging service (SMS);and multi-media messaging services (MMS). The systematic reviewevaluated the effectiveness and impact of these technologies oncommunication between adolescents and young adults withdiagnosed mental disorder(s) and their healthcare professionals.The clinical and social impacts, acceptability and satisfaction ofnetworked communication technologies were also considered.
§ Disclaimer: I confirm all patient/personal identifiers have been removed or
disguised so the patient/person(s) described are not identifiable and cannot be
identified through the details of the story.
* Corresponding author at: Health Sciences Research Institute, Warwick Medical
School, University of Warwick, Coventry CV4 7AL, UK. Tel.: +44 0 2476 574505.
E-mail address: [email protected] (P. Sutcliffe).
0738-3991/$ – see front matter � 2011 Published by Elsevier Ireland Ltd.
doi:10.1016/j.pec.2010.11.014
Treating mental health conditions in adolescents and youngadults is a challenge for patients, parents and medical practi-tioners. Mental health disorders affect 12.8% and 9.65% of boys andgirls aged 11–15, respectively [1]. Neurotic disorders affect 13.3%of 16–19 year olds and 15.8% of 20–24 year olds, while obsessivecompulsive disorder (OCD) affects 0.9% of 16–19 year-olds and1.9% of 20–24 year-olds in Great Britain [2]. According to the RoyalCollege of Psychiatrists, anorexia affects approximately one in 150,15 year-old females, and one in 1000, 15 year-old males [3].
NCTs may be useful for health conditions that require closemonitoring, clinical assessment and early intervention to avoidadverse events. Adolescents and young adults are increasinglyusing these forms of technology in their everyday lives and UKstatistics show approximately 70% of 16–24 year-olds report dailyuse (only 4% had never used it) [4].
In previous reviews [5,6] the use of networked communicationswere proposed as pathways of action of several forms self-management interventions. The combination of information withadditional services (behaviour change support, decision support orpeer support) may allow the patient to more efficiently internalisethe interventions. The combination of enhanced self-efficacy withmotivation and knowledge may enable adolescents and youngadults to change their health behaviours, which may in turn,change clinical outcome.
S. Martin et al. / Patient Education and Counseling 85 (2011) e108–e119 e109
There is a growing interest in whether NCTs can be used bypatients with mental health disorders to communicate with theirhealthcare professionals [5,6]. The challenge remains to assesswhether the introduction of networked communication devicesinto everyday mental health care can complement or enhancetraditional forms of communication.
We evaluated the effectiveness, patient level impact, patient andclinician satisfaction of NCTs associated with meeting healthcareneeds of adolescents and young adults with diagnosed mentalhealth disorders. We addressed the following research questions:
1) What is the impact of networked communication technolo-gies on that patients and outcomes for mental health disorders?
2) What are the essential components of an effective networkedcommunication technology?
3) What are the benefits of networked communication thatface-to-face consultations cannot provide?
4) How satisfied are patients and healthcare professionals withusing networked communication technologies?
2. Method
2.1. Search strategy
An iterative procedure was used to develop the searchstrategy, with input from clinician advisors (psychiatrist,general practitioner, mental health nurse) and an informationspecialist.
A comprehensive search of nine electronic bibliographicdatabases (MEDLINE, EMBASE, ASSIA, Sociological abstract, SocialStudies abstract, PsycINFO, Cochrane Database of SystematicReviews, Dissertation Abstracts, Current Controlled Trials) as wellas hand searches of key journals was undertaken and completed inMay 2009 following the general principles recommended inPRISMA guidance [7].
2.2. Search terms
The inclusion of keywords for ‘‘mental health’’ resulted inrelevant papers being omitted; therefore the final search strategywas kept broad (i.e. no keywords for specific mental healthconditions) to capture all available literature. A combination offree-text and thesaurus terms were used. We combined ‘‘technol-ogy’’; ‘‘communication’’ and ‘‘population’’ search terms (see Table1 for details).
2.3. Inclusion and exclusion criteria
2.3.1. Types of studies
All study designs (qualitative, quantitative randomized experi-mental, quantitative non-randomized controlled, quantitativeobservation, and mixed methods) [8] were included if published
Table 1Search strategy.
‘Technology’ search terms:
telemedicine; remote consultation; telecare; ehealth; e-health; e-learning; elearning
computer communication network$; communication aid; interdisciplinary communi
short messaging service; virtual clinic$; online clinic$; on-line clinic$; internet; worl
technology; electronic communication$; digital divide; e-mail; email; telehealth
‘‘Communication’’ search terms:
health behaviour; health education; patient education health care delivery; adolesce
to health; child health care; self efficacy; social support; health promotion; self care
‘‘Population’’ search terms:
child$; teen$; paediatr$; pediatr$; boy$; girl$; youth$; schoolchild$; school child$; k
high school$; peer group$; highschool$; schoolage; school age$; young adult$; youn
further education; undergraduate$; college student$; university student$; universitie
An iterative procedure was used to develop the search strategy, with input from clinic
information specialist.
in the English language before May 2009. Commentaries, letters,editorials, previous reviews and conference proceedings wereexcluded.
2.3.2. Participants
Adolescents and young adults (study mean age 12–25 years)diagnosed with any mental health disorder defined by theDiagnostic and Statistical Manual of Mental Disorders (DSM-IV-TR) [9]. Diagnosis had been made by a qualified healthcareprofessional. Studies that contained at least 80% of participantswith clinically diagnosed mental health disorders were included.We excluded studies whose primary objective was focussed onsubstance misuse and learning difficulties, although these condi-tions may be present in our sample populations as co-morbidities.
2.3.3. Intervention
Studies with a primary aim of treatment of a mental healthcondition were included. Studies that dealt with prevention wereexcluded. All forms of technologies which involve at least two-waycommunication between young people with mental healthconditions and healthcare professional were included. Interfaceswhich only involve parent and child, only clinicians or only peer-to-peer communication were excluded. Studies evaluating Com-puterised Cognitive Behavioural Therapy (CCBT) use were exclud-ed from this review [10].
2.3.4. Outcome
A broad consideration of all outcome measures was adopted.Outcomes reported in the included papers were clinical outcomes(e.g. symptom alleviation), patient level impacts (e.g. improvedhealth behaviours), patient and health care professional satisfac-tion and costs.
2.4. Data extraction strategy
All titles and abstracts were screened for inclusion by either SMor PS, a random selection of 20% of papers were screened by bothreviewers. All papers identified at the abstract sift were screenedby both reviewers and data extracted by SM. A third reviewer (JS)resolved any disagreements about inclusion. Seventeen studyauthors were contacted to clarify missing data; complete answerswere received from seven, partial responses from five, and noresponse from five authors. Where insufficient information wasprovided, or an author did not respond, the paper was excluded.
2.5. Quality assessment and evidence synthesis
The broad range of NCTs and outcomes prevented meta-analysis from being undertaken. A narrative synthesis and qualityassessment using Mixed Methods Appraisal Tool (MMAT) [8] ispresented (Table 2).
; reminder system$; online system; interactive health communication;
cation; mobile phone; social network; facebook; myspace; virtual world;
d wide web; interactive health; computer assisted therapy; information
nt health; health care system; health knowledge, attitudes, practices/; attitude
; attitude to computers; physician-patient relations
id$; adoles$; minors$; under ag$; juvenile$; pubescen$; secondary school$;
g person$; young people; student$; sixth form$; higher education;
s/; college$
ian advisors (psychiatrist, general practitioner, mental health nurse) and an
S. Martin et al. / Patient Education and Counseling 85 (2011) e108–e119e110
3. Results
3.1. Search results
The search revealed 20,925 papers, 15,488 did not meet ourinclusion criteria at title sift and there were 2205 duplicates. 3232abstracts were screened, 342 papers were read in full, with 12interventions (in 13 papers) included for review (Fig. 1). Twopapers [12,13] report the same intervention, with unclear reporteddifferences between study samples.
3.2. Description of studies
a) Sample characteristicsTwelve interventions involving 180 young people
(Males = 117, Females = 63) with mental health conditions(4 = mixed sample, 1 = Bulemia Nervosa, 3 = Anorexia Nervosa,1 = Self Harming, 1 = Post Traumatic Stress Disorder, 1 = Atten-tion-Deficit Hyperactivity Disorder (ADHD), 1 = OCD. Twopapers [13,14] only measured ‘satisfaction’. Study sizes rangedfrom 1 to 136 (Mean = 34.6, SD = 50.6) however 11 studiescontributed only 44 patients in total. Four studies involved onlyone patient [15–18] and three studies included three patients[19–21]. In addition, 18 patients withdrew and 47 patientsdropped out of these studies [11,12,22]. The mean age ofpatients across the 13 studies ranged from 12 to 22 years(Mean = 17.5, SD = 3.742).
b) Study characteristicsStudies took place in the UK (n = 2), USA (n = 6), Netherlands
(n = 2), Canada (n = 1), Italy (n = 1), and Norway (n = 1). Threecategories of NCTs were identified from the 12 interventions: emailand/or web-based electronic diary (n = 6), videoconference (n = 5),and those that adopted virtual reality (n = 1). The oldest includedstudy was published in 1999 [18] the most recent published in2008 [16,22].
Table 2MMAT quality assessment.
Lohr
2007
[20]
Miller
2006
[16]
Roy
2008
[17]
Yager
2001
[21]
Yager
2003
[22]
Lange
2002
[13]
La
20
[1
Type 1 1 1 1 1 2 2
Question
1.1 Y N Y Y N – –
1.2 Y N Na N N – –
1.3 Na N Na Na N – –
1.4 Na Na N Na N – –
1.5 Na N N N Na – –
1.6 Na N Y Y N – –
2.1 – – – – – Y Na
2.2 – – – – – Na N
2.3 – – – – – Y Y
3.1 – – – – – – –
3.2 – – – – – – –
3.3 – – – – – – –
3.4 – – – – – – –
4.1 – – – – – – –
4.2 – – – – – – –
4.3 – – – – – – –
Key: Type: 1. Qualitative; 2. Quantitative randomised; 3. Quantitative nonrandomized;
Y = Yes; N = No; NA = not appropriate/applicable.
Questions: 1.1. Do the researchers state a qualitative objective or question?; 1.2. Is there
there a description of the context of the study and how findings relate to the context?; 1.
Are the qualitative data collection and analysis processes described?; 1.6. Do the researc
and/or an appropriate sequence generation?; 2.2. Is there clear description of the allocatio
and low withdrawal/drop-out (below 20%)?; 3.1. Selection (before data collection): Are p
confounders?; 3.2. Comparability (addressed by data analysis): Are the participants in t
(control for) the difference?; 3.3. Exposure: Do researchers provide the evidence of an ab
acceptable response rate (60% or above)?; 4.1. Is the sampling and sample justified?; 4.2.
standard)?; 4.3. Is there (i) a control for confounding variables when applicable, and (
c) Study qualityFrom the MMAT [8] criteria the current review included: five
qualitative studies [15,16,19–21]; three randomised experimentalstudies [11,12,22]; and five quantitative observational studies[13,14,17,18,23]; see Table 2.
4. Networked Communication Technology Interventions
The following section provides a description of all studyinterventions.
4.1. Email and/or Web-based electronic diary
Seven identified interventions used e-mail, with or withoutweb-based discussion [11,12,16,19–22] to communicate betweenthe patient and health care practitioner. Four studies used email aspart of regular therapy; two used the online written evidencesubmitted by the patients (email correspondence, electronic diary)to provide education and self-management feedback [11,12].While two utilised email correspondence as an adjunct to face-to-face consultations [16,19]. Email was suitable if a relationshipbetween health care practitioner and patient was established priorto treatment, but some disorders were not suitable, such as severedepression and dementia [19].
Two interventions used email for communication betweenpatient and clinician for the treatment of eating disorders [20–22].No standardised protocol was used for conducting these sessions.Healthcare providers were attempting to elicit history, identifynegative thoughts and feelings, and encouraging health eating andpositive behaviours from the email and electronic diaries. Trainingrequirements were not reported [11,12,16,19–22]. Healthcareprofessionals had quick and more frequent contact with patients,more expressive forms of messaging and an advanced transparen-cy of interactions [19–21].
nge
03
2]
Robinson
2008
[23]
Elford
2001
[15]
Himle
2006
[18]
Kopel
2007
[14]
Myers
2006
[24]
Riva
1999
[19]
2 4 4 4 4 4
– – – – – –
– – – – – –
– – – – – –
– – – – – –
– – – – – –
– – – – – –
Y – – – – –
N – – – – –
N – – – – –
– – – – – –
– – – – – –
– – – – – –
– – – – – –
– Y N Y Y N
– Na Y Y Y Y
– Y Na Y Na Na
4. Quantitative observational.
a description of an appropriate qualitative approach or design or method?; 1.3. Is
4. Is there a description of the participants and a justification for the sampling?; 1.5.
hers describe their reflexivity?; 2.1. Is there clear description of the randomization
n concealment and/or blinding?; 2.3. Is there complete outcome data (80% or above)
articipants recruited to the intervention and control groups in a way that minimized
he intervention and control group comparable or do researchers take into account
sence of contamination?; 3.4. Is there complete outcome data (80% or above) or an
Do the researchers describe and justify measurements (origin and/or validity and/or
ii) an acceptable response rate (60% or above)?.
The reasons for exclusion, at full paper, were: par�cipants too old (n = 109); par�cipants too
young ( n = 14) non -return of informa�on query (n = 4) or par�al return of informa�on (n =
4) (at least 2 a�empts were made to make contact with authors); Missing either pa�ents or
clinician involvement, n = 11); reviews (n = 20); non -communica�on (n = 17); no n-diagnos ed
par�cipants (n = 38); topic non -mental health (n = 13); non -primary research (n = 28); non -
treatment interven�ons (i.e. preven�on, n = 43); CCBT only (n = 1); substance use (n = 7) and
non-Engli sh language (n = 16); we also iden�fied (n = 2) duplicates.
Potentially relevant
studies identified and
screened for retrieval
N = 20,925
Total abstracts
screened
N = 3232
Studies included in
this review = 12
Duplicates
N = 2205
Studies rejected at title
sift
N = 15,488
Studies rejected at
abstract sift
N = 2890
Total full papers
screened from search
N = 342
Studies rejected at full paper
sift criteria
N = 330
Fig. 1. Summary of study selection and exclusion. The reasons for exclusion, at full paper, were: participants too old (n = 109); participants too young (n = 14) non-return of
information query (n = 4) or partial return of information (n = 4) (at least 2 attempts were made to make contact with authors); Missing either patients or clinician
involvement, n = 11); reviews (n = 20); non-communication (n = 17); non-diagnosed participants (n = 38); topic non-mental health (n = 13); non-primary research (n = 28);
nontreatment interventions (i.e. prevention, n = 43); CCBT only (n = 1); substance use (n = 7) and non-English language (n = 16); we also identified (n = 2) duplicates.
S. Martin et al. / Patient Education and Counseling 85 (2011) e108–e119 e111
4.2. Video-conferencing or tele-conferencing
Five studies used video-conference or tele-conference (voiceonly interface) interventions; three studies [13–15,17,23] exploredthe potential for videoconferencing to be used in conductingtelepsychiatry and treatments for OCD and ADHD. In two papersthe technologies were used with patients who had difficultyaccessing (e.g. due to geographical location) their regularhealthcare providers [14,23]. In one study the care model wasconsultative, did not engage with crisis care, and communicationwas between the hospital-based practitioners a youth correctionalfacility [23]. In the other study the intervention uses interactive
voice response systems to direct patients through the educationalprogram [17]. Treatment was alongside face-to-face clinician-guided therapy. Several training sessions were required for oneintervention [23] otherwise training were not reported [13–15,17].Healthcare professionals had more frequent contact with patients,however, clinicians focussed more on verbal than visual commu-nication during the consultation [17].
4.3. Virtual reality
One paper adopted a virtual reality communication device fortreatment of anorexia nervosa [18] and the collection of clinical
S. Martin et al. / Patient Education and Counseling 85 (2011) e108–e119e112
data. The intervention assessed stimuli that could elicit abnormaleating and dentified that virtual reality can be used to improvemotivation, body satisfaction and awareness. Training require-ments were not reported.
5. Main outcomes
5.1. Clinical outcomes
Seven papers (six interventions) measured clinical outcomes.Six [11,12,17,18,22,23] showed improvement, while three studies[11,12,22] showed statistically significant improvements (p < .05).
One intervention [11,12] found participants in the experimen-tal condition (n = 13) improved significantly (p < .05) compared towaiting-list controls (n = 12). A total of 80% of treated participantsshowed clinically significant improvement after treatment forconditions ranging from anxiety, depression, somatisation, sleep-ing problems and profile of mood states. One study recruited asample of youths fulfilling the diagnostic criteria for BulemiaNervosa [22]. At follow-up (13/97) of the intervention group hadlost their diagnosis (n = 8 email based treatment [eBT] and n = 5self-directed writing [SDW]). There was no significant change inthe either Beck Depression Inventory (BDI) or Bulemia Investiga-tory Test (BITE) scores over time. There was no significant effect ofeither SDW or eBT compared to waiting list controls and nosignificant difference between eBT and SDW. Change in desiredBMI correlated positively with two categories: positive emotion(r = 0.44, p < 0.01) and positive feelings (r = 0.42, p � 0.01). Noother outcome measure correlated significantly with linguisticinquiries and word count (LIWC) categories. In the four yearsfollowing this study 6.2% were referred to specialist services,several participants were advised to see doctor due to vomiting,one participant’s depression score increased substantially aftereBT, and one participant was hospitalised following overdose andwithdrew.
5.2. Patient level impacts
Six papers measured patient level impacts and reportedbeneficial therapeutic effects from written communication as partof synthesis between both the electronic and face-to-face therapy[11,17–22]. Seven papers suggest that networked communicationinterventions increased the frequency of contact between patientand clinician [15,16,18–21,23], however only one scored well onthe MMAT quality assessment [23]. One paper compared theintervention outcomes and written word analysis [22] andreported positive correlations between the written words andBulemia investigatory test (Table 3).
No patients reported significant negative effects from email orfrom increased frequency and duration of contact [20,21]. Yagerfound email reports required patients to be constantly aware oftheir behaviours and of ‘being in therapy’. Benefits include:providing details through email frees time in face-to-face session;and increased frequency and amount of direct contact betweenpatients and clinicians. Some patients devoted considerable timecomposing emails to clinicians allowing more expressions inconsultations.
Two papers looked at the process of written communication[16,19]. Email enabled patient’s time to process information, and toselect words they use carefully, resulting in a different but effectivemodel of care [16]. This produced disinhibitory effects withdisclosure of health information and an increased perceivedcontrol and articulation of emotions on behalf of the patients.Written communication as part of therapy, allowed ‘storyrecounting’ [19]. Both studies [16,19] reported concerns overpossible unwanted disclosures to third parties due to a lack of
computer privacy, and discussed changes in the therapeuticrelationship (reduced formality and increased transparency), asthe therapy was not clearly framed, bounded and based on localityand time.
Motivation was seen to be an important contributor [17,18,22].The patient presented a high degree of motivation to change and areduction in avoidance behaviours and grooming habits. Compari-son scores also revealed a significant reduction in body dissatis-faction and patient reports improvement in peer-to-peercommunication. Robinson [22] reported the treatment systemsused in their study improved health care engagement as 83.7% ofthose involved in the study had never been treated before and83.3% agreed they would accept treatment with online or face-to-face therapy. The system eBT was associated with gaining control.
5.3. Clinician satisfaction and costs
Two studies [13,14] reported levels of clinician satisfaction aftertreatment for range of conditions. Only one study reported costs[14] finding that the delivery of telemedicine is cheaper than travelcosts, for those in remote locations. Kopel [13] evaluated thetechnical and general satisfaction of urban (CHW) and ruralclinician. In the analysis concerning the CHW clinicians 47% ratedease of use of equipment as ‘fair’ with 49% rating it as ‘good’ or‘excellent’. Anxiety was measured and 99% did not feel ‘anxious’, or‘slightly anxious’ because of equipment. Sound and video qualitywas rated sound quality as ‘poor’ (74% and 86% respectively).Overall quality was seen as ‘poor’ or ‘fair’ (82%). However 94% ratedsatisfaction with system compared to face-to-face as ‘adequate’ or‘almost as good’. Of the rural clinician’s involved in the study 100%would recommend the service to someone else. Similarly, Elford[14] found psychiatrists were either ‘very satisfied’ or ‘satisfied’with the telepsychiatry intervention. Miller [15] found thatvideophone enabled enhanced interaction between health careprofessionals involved in a mutual patient.
6. Discussion and conclusion
6.1. Discussion
The observed heterogeneity of interventions and patient groupsis a limitation in drawing robust conclusions. The majority ofpapers did not measure or report the clinical and behaviouraloutcomes. The reported technologies appear to offer patients alimited improvement in quality of life, continuity of care andaccess, and improvements in patient–clinician communication;however these gains were matched with concerns over privacy,security and limited evidence to suggest a range acceptabilitylevels and financial implications which makes evaluation of theircost effectiveness difficult.
The evidence dealing with email and web-based discussionappears to be more reliable and rigorous. Patients, health careproviders and others involved (such as parents and carers)expressed satisfaction with these technologies. However no papersreported outcomes relating to: transparency of care; deliveryguidelines; or equity in access to health care.
6.2. Conclusion
The current systematic review is the first to evaluate the impactof networked communication between adolescent and youngadults with mental health disorders and health care professionals.The following section will synthesise the results to address the fourkey research questions.
a) What is the impact of networked communication technolo-gies on mental health outcomes?
Table 3Summary of design, study and patient characteristics.
Study Design and patient characteristic Intervention and outcome measures
Elford (2001) [15]
Newfoundland
Design:
Quantitative observational
Inclusion criteria:
Children aged 4–16 years and had
been referred to see a child and
adolescent psychiatrist at the
Janeway Child Health Centre
and lived in the Western
Health Region
Number of participants:
11 children and 19
adolescents, 30 parents,
30 psychiatrists
Interventions:
Telepsychiatry
Duration of follow up:
NA
Power calculations:None reported
Exclusion criteria:Not reported
Numbers randomised:NA
Concurrent treatment:Unknown
Outcome measures:Primary outcomes:
Patient, parent and psychiatrist satisfaction
Secondary outcomes:
Patient travel costs and telepsychiatry costsMean age in years (SD):Child and adolescent
group = 13 (3)
Treatment duration:
One session
Results:
Psychiatrists were either ‘very satisfied’
or ‘satisfied’ with telepsychiatry. 28 of the
30 parents rated their satisfaction level as 5
(1 = lowest, 5 = highest), and two rated it 4.
All parents ‘liked’ the telepsychiatry
assessment and would use the system again.
29 parents preferred to use the telepsychiatry
system to travelling to see a child psychiatrist.
All 11 children ‘liked’ the telepsychiatry system.
5 out of 9 children liked the ‘television doctor’
better than the ‘real’ doctor; 4 had no preference.
Most of 19 adolescents were very satisfied or
satisfied with the system. 17 of the 19 adolescents
(89%) said they would prefer to see the psychiatrist
on the videoconferencing system to travelling for
an assessment, and the same number said that
they would use telepsychiatry again. Estimated
total travel cost for the 30 patients was $12,849,
an average of $428 per patient. The total cost of
the telepsychiatry service for the three-month
pilot was $12,575, or $419 per patient
Sex (female):
Child and adolescent
group = 21 males and
9 females
Himle (2006)
[18] USA
Design:
Quantitative observational
Condition:
OCD
Number of participants:1
Interventions:
Manualised CBT video-conference
Exposure and Response Prevention
therapy (ERP)
Duration of follow up:
Not reported
Setting:
Not reported
Age, years (mean, SD):
19Concurrent treatment:
Not reported
Outcome measures:
Yale-Brown Obsessive Compulsive Inventory
(Goodman et al., 1989); Clinical Improvement
scale (NIMH, 1984); Work and Social
Adjustment Scale (Marks, 1986); Hamilton
Depression Rating Scale (Hamilton, 1960);
Working Alliance Inventory (Horvath &
Greenberg, 1989)
Sex (male/female):
Female
Treatment duration:
12 weeks
Results:
CBT for OCD can be effectly delivered via
videoconferencing ‘‘Patient experienced
substantial improvements’’. 100% treatment
retention suggests that videoconferencing
CBT has utility in the treatment of OCD.
VC associated with high ratings of treatment
satisfaction and therapeutic alliance. Patients
displayed a full range of emotive responses
Kopel (2007)
[14] Australia
Design:
Quantitative observational
Condition:
Non specific
Number of participants:
136
Interventions:
Telepsychiatry
Service SatisfactionQuestionnaire
Patient Satisfaction Questionnaire
Duration of follow up:
Not reported
Setting:
Telepsychiatry service
Age, years (mean, SD):
12.3 (3.9 SD)Concurrent treatment:
Regular treatment
Outcome measures:
Service Satisfaction
Patient Satisfaction
S. M
artin
et a
l. /
Pa
tient
Ed
uca
tion
an
d C
ou
nselin
g 8
5 (2
01
1)
e10
8–
e11
9
e11
3
Table 3 (Continued )
Study Design and patient characteristic Intervention and outcome measures
Sex (male/female):
Not reported
Treatment duration:
Not reported
Results:
Technology SatisfactionPatient Satisfaction58% responded
97% did not feel anxious, or slightly anxious
because of equipment
97% did not fee l the equipment interfered
with the session not at all or slightly
91% rated sound quality as good or excellent
95% rated video quality as good or excellent
96% rated the overall quality as good or excellent
91% rated satisfaction with system compared
to face to face as adequate or almost as good.
CHW clinician Satisfaction47% rated ease of use of equptment as fair
49% rated it as good or excellent
99% did not feel anxious, or slightly anxious
because of equipment
74% rated sound quality as poor
86% rated visual quality as poor
82% overall quality as poor or fair
94% rated satisfaction with system compared
to face to face as adequate or almost as good.
Rural clinician Satisfaction
74% responded
86% rated ease of use of equipment as good
or excellent
93% did not feel anxious, or slightly anxious
because of equipment
98% did not feel self-conscious or embarrassed
95% did not fee l the equipment interfered with
the session not at all or slightly
86% rated sound quality as good or excellent
18% rated sound quality as fair
87% overall quality as poor or fair
91% rated satisfaction with system compared to
face to face as adequate or almost as good
Lange
(2001, 2003)
[12,13]
Amsterdam
Design:Quantitative Randomised
2 (condition)�3 (time:
pre- postfollowup) design
Inclusion criteria:
Had experienced a traumatic
even at least 3 months ago
Number of participants:
25
Interventions:
5 weeks, 10 writing sessions, two
45-minute sessions a week
First phase: self-confrontation. At the
start of treatment the participants
received on-screen psycho-education
about the rationale
of self-confrontation (exposure)
Second phase: cognitive reappraisal.
Participants received psycho-education
about the principles of cognitive
reappraisal
Third phase: sharing and farewell ritual.
Participants received psycho-education
about the positive effects of sharing
Duration of follow up:
6 weeks after treatment (completed by 8
participants)
Power calculations:
Non reported
Exclusion criteria:
If participants had other
psychological conditions
other than posttraumatic
stress or pathological grief
Numbers randomised:
INTERVENTION: 13
CONTROL: 12
Concurrent treatment:
Not reported
Outcome measures:
Primary outcomes
impact of events scale
Secondary outcomes
Anxiety; Depression; Somatization; Sleeping
problems; Profile of mood states
Age, years (mean, SD):
22 years (SD 4:9; range
18–37 years)
Treatment duration:
5 weeks
Results:
Participants in experimental condition (n = 13)
improved significantly compared to
waiting-list controls (n = 12), on trauma-related
symptoms and general psychopathology.
Effect sizes were large. 80% of treated
participants showed clinically significant
improvement after treatment
Sex (male/female):
9 males and 16 females
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Lohr (2007)
[20] Norway
Design:
Qualitative
Condition:
CASE 1: ‘‘range of mental
problems’’
CASE 2: Not reported
CASE 3: Not reported
Number of participants:
3
Interventions:
CASE 1: Email content of face-to-face
sessions and emailing concerns to
therapist.
CASE 2: use of email to request
appointments; discuss therapy; send
pictures of emotional importance.
CASE 3: therapist emailed patient with
problematic issue in preparation
for face-to-face sessions.
Duration of follow up:
Not reported
Setting:
CASE 1: Not reported
CASE 2: Not reported
CASE 3: Not reported
Age, years (mean, SD):21, 25, 25 identification to
case not given by author
Concurrent treatment:
CASE 1: ‘‘Weekly face-to-face
therapeutic sessions’’
CASE 2: Face-to-face CBT sessions
CASE 3: Psychoeducation with
therapist; face-to-face CBT sessions
Outcome measures:
Not reported
Sex (male/female):
CASE 1: Female
CASE 2: Male
CASE 3: Male
Treatment duration:
CASE 1: Not reported
CASE 2: Not reported
CASE 3: Not reported
Results:
There are benefits of written communication
as part of therapy, if emails are structured
to allow ‘story recounting’.
There is an added ease with electronic
writing over paper-based due to the ease
in which analysis can be conducted of more
complex relapses. There are implications for
therapist-patient relationship, such as reduced
formality and increased transparency, as the
therapy is not clearly framed, bounded and
based on locality and time.
Miller (2006)
[16] USA
Design:
Qualitative
Condition:
ADHD
Number of participants:
1
Interventions:
Multi-disciplinary consultation
using set-top videophone.
Duration of follow up:
Not reported
Setting:
Rural outpatient
Age, years (mean, SD):12 Concurrent treatment:
Patient seen by clinical psychiatrist;
special educator; speech language
pathologist and school psychologist.
Outcome measures:
Not reported
Sex (male/female):
Non reported
Treatment duration:
Not reported
Results:
Videophone enabled enhanced interaction
between school personnel, medical and
health related professionals. Issues concerning
quality of audio and visual information
Myers (2006)
[24] USA
Design:
Quantitative observational
Inclusion criteria:
Youths in minimum security
juvenile correctional facility
Number of participants:
115 youths
Interventions:
Telepsychiatry
Duration of follow up:
Not reported
Setting:Minimum correctional facility
Numbers randomised:
NA
Concurrent treatment:
Pharmacotherapy
Outcome measures:
Primary outcomes
Utilisation, diagnoses and prescribed medications
were examine according to gender and age
Secondary outcomes
Satisfaction ratings
Power calculation: Nones Age, years (mean, CI):
Means were not reported:
33 youths aged 13 to
15 years; 82 youths
aged 16 to 19 years
Treatment duration:
A total of 115 youths were treated
with 279 telepsychiatry visits
(mean 2.4 visits per patient;
range 1 to 9)Sex (male/female):
87 males; 28 females
Results:
A total of 115 youths were treated over 279 visits, 2.4
per patient. Males outnumbered females (76% v 24%).
Diagnosis:
Comorbidity was common with average 2.4
disorders per youth
SUD was most common diagnosis (64%), followed by
ADHD (53%) that was less common in older girls (29%).
SUDs and ADHD frequently co-occurred across groups.
Depressive disorders (44%). Six youth developed
Adjustment Disorders secondary to their incarceration.
Medication:
Most common prescribed were antidepressants (42%),
stimulants and atomoxetine (36%). Males were more likely
to be prescribed ADHD medicartions. 20% did not receive
medication. Overall satisfaction with telepsychiatry visit
was high (4.16) (0-low, 5-high). Preference for face to
face was (3.07). Summary score of 3.97 for youths’
satisfaction with telepsychiatry.
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Table 3 (Continued )
Study Design and patient characteristic Intervention and outcome measures
Riva (1999)
[19] Italy
Design:
Qualitative
Condition:
Anorexia Nervosa
Number of participants:
1
Interventions:
Experiential Cognitive Therapy,
assisted by clinical psychologist
Virtual Environment for Body Image
Modification (VEBIM 2)
Duration of follow up:
Not reported
Setting:
In-patient eating
disorder program
Age, years (mean, SD):22
Concurrent treatment:
Not reported
Outcome measures:
MMPI 2; Multiphasic personality scale; Eating disorder
scale; Body satisfaction scale; Body image avoidance
questionnaire; Figure rating scale; Contour drawing
rating scale; Symptoms of anxiety related to food exposure
Sex (male/female):
Female
Treatment duration:
Approx. 8 weeks
Results:
Treatment resulted in increased bodily awareness.
Comparison scores reveal a significant reduction in
body dissatisfaction.
Reduction in avoidance behaviours and grooming habits.
Patient presented a high degree of motivation to change
Robinson (2007)
[23] UK
Design:Quantitative randomised
Inclusion criteria:DSM-IV diagnosis of BN (purging
or non-purging), BED or eating
disorder not otherwise specified
Participants were required to have
an email address from the college
studied
Competent in written English
Number of participants:154
Interventions:eBT
Participants were assigned an email
therapist who was a member of the
Specialist Eating Disorders Team. eBT
was provided by 11 therapists,
including nurses, psychologists,
psychiatrists, a family therapist
and one nurse manager
SDW
This intervention was designed to
examine the therapeutic effects of
writing with minimal therapist
intervention
Waiting list control
These participants were placed on
a waiting list. After 3 months they
were reassessed and offered either
eBT or SDW by random allocation
Duration of follow up:3 months
Setting:
University of London
Exclusion criteria:
Body mass index below 17.5 kg/m2,
Regular drug users within the last
3 months,
Engaged in deliberate self harm in
the same period
Pregnant
In specialist treatment for an
eating disorder.
Not currently students or staff
members at the college under
study.
Numbers randomised:
INTERVENTION: 36
CONTROL: 34
T3: 27
Concurrent treatment:
Not reported
Outcome measures:
Primary outcomes
Diagnosis of eating disorder on the questionnaire
for eating disorders
Secondary outcomes
Beck Depression Inventory (BDI) (Beck, Ward, &
Mendelson, 1961) and Bulimia Investigatory Test
Edinburgh (BITE) (Henderson & Freeman, 1987);
Desired weight; Word count; Risk management
Power calculations:
Data from a pilot study of
23 participants
(Robinson & Serfaty, 2001)
indicated that 12 out of 16
participants improved
with eBT (i.e. 75%)
Assuming a 5% spontaneous
remission rate, at 80% and 90%
power at the 5% significance level,
22–30 participants would be
required in each group in order
to detect a significant difference
between an intervention and a
control group. As the present
study used three groups, the
total predicted study population
was 66–90
Age, years (mean, CI):
INTERVENTION: 24.5
(23–25.9)
CONTROL: 32.4
(29.7–35.1)Results:
At outset 100% fulfilled diagnostic criteria for an eating
disorder. At follow-up 13 of the intervention group has
lost their diagnosis (8 eBT and 5 SDW). There was no
significant change in the either BDI or BITE scores
over time. There was no significant effect of either
SDW or eBT compared to WLC and no significant difference
between eBT and SDW. Change in desired BMI correlated
positively with two categories: positive emotion (r = 0.44,
p<0.01) and positive feelings (r = 0.42, p�0.01). No other
outcome measure correlated sig. with LIWC categories.
53.5% who had received either eBT or SDW and who
replied to the question indicated they would be filling to
have face-to-face treatment.
53.5% indicated they would accept online therapy
83.7% indicated they would have other therapies
21% would accept both
83.7% had never been treated before.
83.3% agreed they would accept with online or face-to-face
therapy
eBT was associated with gaining control. 60% of comments
were positive
50% of SDW participants made positive comments
Sex (male/female):
INTERVENTION: 4/32
CONTROL: 34
T3: 27
Treatment duration:
3 months
Risk management:
Several participant were advised to see doctor
due to vomiting. One participants depression score
increased substantially after eBT. One participant was
hospitalised following overdose and withdrew.
This participant was scored ‘moderate’ depressed
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Roy (2008)
[17]
Country not
identified
Design:
Qualitative
Condition:
Depressed mood
Self-harming
Number of participants:
1
Interventions:
CBT Via email
Email patient once a week, spending
an hour to develop email response
based on previous correspondence.
Diary
Patient asked to keep diary when
mood was low, anxious or
particularly good. Patient to rate
feeling on scale, where 10 is
most intense.
Duration of follow up:
Not reportedSetting:
Secure unit
Age, years (mean, SD):17
Concurrent treatment:
Not reported
Outcome measures:
Not reported
Sex (male/female):
Female
Treatment duration:
Not reported
Results:
Email produced disinhibitory effects with disclosure of
health information. Increased perceived control and
articulation of emotions. Concern over lack of security
and confidentiality
Yager (2001)
[21]
USA
Design:
Qualitative
Condition:
CASE 1: Case has eating disorder
CASE 2: Case has eating disorder
CASE 3: Anorexia Nervosa
Number of participants:
3
Interventions:
CASE 1: Almost Daily emails
regarding condition
CASE 2: Weekly emails
concerning activities
CASE 3: ‘‘regular email’’
Duration of follow up:
CASE 1: Not reported
CASE 2: Not reported
CASE 3: Not reportedSetting:CASE 1: Outpatient
CASE 2: Outpatient
CASE 3: Not reported
Age, years:CASE 1: 17
CASE 2: 18
CASE 3: 22Concurrent treatment:CASE 1: Paroxetine (?);
inpatient therapy; family
visits; bibliotherapy; elimination
of active exerceise; calorie-meal
plan. Developing bone densitometry.
CASE 2: patient also seen by student
health physician and psychotherapist
CASE 3: Not reported
Outcome measures:CASE 1: Weight
CASE 2: Weight
CASE 3: Not reportedSex (male/female):
CASE 1: Female
CASE 2: Female
CASE 3: Female
Treatment duration:
CASE 1: 28 Weeks
CASE 2: circa 19 weeks
CASE 3: Not reported
Results:
No patients reported significant negative effects from email.
Email increases frequency and time of contact between
patients, clinicians and therapeutic processes. There is a
positive emotional value due to patients engaging in
communication when needed/inspired. Quasi-daily
email reports require patients to be constantly aware of
their behaviours and of being in therapy.
Providing details through email frees time in
face-to-face sessions
Yager (2003)
[22]
USA
Design:
Qualitative
Condition:
CASE 1
Anorexia nervosa
Bipolar I disorder OCD
CASE 2
Anorexia nervosa
CASE 3
Bipolar disorder
Binge/purge anorexia nervosa
Number of participants:
3
Interventions:
Email CBT
Duration of follow up:
Not reported
Setting:
Out-patients (?)
Age, years (mean, SD):CASE 1: 21
CASE 2: 16
CASE 3: 13
Concurrent treatment:
CASE 1: Lamotrigine; Citalpram
CASE 2: weekly visits to
psychotherapist
CASE 3: Meets with psychiatrist and
therapist
Outcome measures:
Not reported
Sex (male/female):
CASE 1: Female
CASE 2: Female
CASE 3: Female
Treatment duration:
Not reported
Results:
Email increases frequency and amount of direct contact
between patients and clinicians. Patients
devote considerable time composing emails to clinicians
Some patients described feeling as having ‘‘virtually
constant access to their clinicians’’. Email allows
patients to more easily express themselves. Electronic
submission of calorie counts or symptom logs frees
up time in face-to-face sessions. Concern over
unwanted disclosures to third parties resulting from
lack of computer privacy
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Seven of the included studies reported improvements in youngadults’ mental health symptoms [12,16–21]. It was recognised thatthese changes correlated with the patient’s and clinician’smotivation to use the technologies [6]. There was a lack of highquality qualitative evidence, while response rates in experimentaland observation quantitative studies are weak (Table 2). Theimpact of NCTs on mental health is inconclusive.
b) What are the essential components of an effective networkedcommunication technology?
The provision of multi-modal communication (integration ofverbal, written and other non-verbal methods) between practi-tioner and patient seems to be important for recovery or reductionin symptoms in therapeutic relationships observed [12,16–21]. Byengaging more time in communication with patients, clinicianswere able to discuss the issues surrounding the conditions andpatients were better able to self-manage. Studies without writtencommunication elements also reported troubles with poor soundquality and/or fears over visual quality [13,14,23]. Whatever themode of intervention delivery it is important to note that there areidentified concerns over unwanted use of these technologies;principally regarding confidentiality resulting from lack ofcomputer privacy/security.
The findings indicating successful interventions incorporatewritten communication which seems to support the argumentsproposed by Pennebaker and Beall [24] who studied the effects ofwritten emotional disclosure on health. Evidence suggests thatdisclosing personal and health experiences to others over a longperiod of time may be related to disease processes (p. 274). Areview by Sloan and Marx [25] identified key theoretical conceptsin written disclosure; Inhibition Theory (explanation of the benefitsby catharsis); Cognitive-Processing Theory (patients gain insightinto what had happened to them); Self-Regulation Theory (writingabout the ‘best possible self’ improves health outcomes). A recentreview by Frattaroli [26] indicates that experimental disclosurecan be beneficial for psychological and physical health, and overallfunctioning. However many experimental disclosure interventionswere found not to be helpful for some patients. The success of theintervention was correlated to participant characteristics, forexample those who were very comfortable during disclosure andthose who were paid participants reported improved outcomes. Anexplanation of the therapeutic effects of electronic writtencommunication is not within the remit of this review. Furtherresearch exploring these correlations needs to be undertaken.
c) What are the benefits of networked communication thatface-to-face consultations cannot provide?
Multi-modal, and in particular written, communication along-side increased frequency and time of contact between patients andclinicians were important for patients engaging in behaviourchange [16,19–21]. Patients had time to prepare documents andclinicians had time to read them which resulted in more activeface-to-face sessions. These processes allowed patients to expressthemselves and construct more representative meanings of theirperceptions on treatment, condition(s) and concerns with in-creased articulations of emotions [16,19–21]. These interactionschanged the dynamic of the relationship and the structure ofconsultations became less formal and bounded.
d) How satisfied are patients and healthcare professionals withusing networked communication technologies?
Eight studies [13,14,16,17,19,21–23] reported patient satisfac-tion scores. Two studies [14,23] looked at patient satisfaction andone [14] at parental satisfaction. Studies [13,14,17,22,23] foundthat most of the children, adolescents and parents in the studieswere satisfied with the networked communication technologies.
Elford [14] reported that five out of nine children liked the‘television doctor’ better than the ‘real doctor’, while four had nopreference. Adolescents (17/19) said they preferred the videocon-
ferencing system than travel for an assessment, and the samenumber said that they would use telepsychiatry again. All parents’‘liked’ the telepsychiatry assessment and would use the systemagain. Kopel [13] found that 97% of patients did not feel ‘anxious’,or ‘slightly anxious’ because of the equipment. Satisfaction withthe system compared to face-to-face was ‘adequate’ or ‘almost asgood’ (91%). Whereas, other studies report less positive results;Robinson [22] found only 50% of Self Directed Writing groupparticipants made positive comments on the intervention web-portal. Myers [23] found there was a preference for face-to-face,rather than virtual/online, consultations. Miller [15] reported thatthere were a few issues surrounding quality and delays intransmission, but the patient reported good satisfaction.
7. Practice implications
Many forms of networked communication were shown toreduce symptoms and some of the complications of mental healthproblems and their use seem to improve the quality of the patient’sand health care professional’s encounters. The question remainswhether these technologies can compliment or enhance tradition-al consultations in specific patients. Many studies did not reporttraining, costs and use of equipment; both sound and visual qualitywere reported in studies and seen as poor. It remains unclearwhether this intervention type could be adapted for other health-care settings and chronic diseases.
8. Limitations
The current research area is rapidly changing; terminology andtechnologies have not become established and used routinely.Research evidence for the effectiveness of self care devices is notyet available for all NCTs currently in use [5]. As a result weidentified a relatively small number of technologies despite using abroad search strategy. The current review was limited to Englishlanguage publications; future reviews should include studies in alllanguages. The clinical and cost effectiveness of using NCTs toassist in the outpatient communication with young patients withmental health conditions also remains unclear.
9. Future research
The present study appears to demonstrate that NCTs maypositively affect clinical and personal outcomes in young patientswith diagnosed mental health disorders. Further research isneeded to explore further the acceptability and satisfaction issuesfor patients and clinicians, and determine whether technologiesare reliable, helpful and easy to use.
Future studies should clearly document the training needs ofpatients and providers to master the equipment and theimplications of implementing technology in mental care. AsGreenhalgh [27] argues these new technologies involve changesand adaptations in ‘roles, identifies and mutual expectations’,which are context dependent. Further research on the impact ofchanging the tasks and duties of the healthcare team as the newtechnologies are implemented (e.g. time tradeoffs), increasephysicians’ workload due to the learning process required,assistance to patients for technical support, need for organizationaland clinical protocol changes, is required.
NCTs are also being harnessed to support self-care andsymptom monitoring, for example the use of text messaging inbulemia [28] and in mood [29]. We did not include long-termdisease monitoring in this review which examined interventionswhich had a treatment focus. An area for future research is toinvestigate the value of mental health symptom monitoring usingelectronic tools.
S. Martin et al. / Patient Education and Counseling 85 (2011) e108–e119 e119
10. Conclusion
Different forms of NCTs have the potential to be used by healthcare professionals and their young patients with mental healthdisorders. However, the breadth of study design and types oftechnologies reported makes the magnitude of benefit difficult todetermine. The review highlights the lack of high quality evidencesupporting more widespread implementation of NCTs at this time.Our conclusions are tentative due to considerable uncertainties atthe organisational level, the training needs for both patients andhealth care professionals and purchasing of these technologyproducts. Furthermore, this is a rapidly expanding area; with newtechnological products regularly entering the market. Despite this,the main focus of research appears to be on adults, with lessattention being made to younger people.
Conflict of interest
The authors declare that there is no actual or potential conflictof interest including any financial, personal or other relationshipswith other people or organizations within three years of beginningthe submitted work that could inappropriately influence, or beperceived to influence, their work.
Acknowledgements
This research was in part supported by the Warwick & CoventryPrimary Care Research (WC-PCR). We wish to thank SamanthaJohnson for her support and expert information specialist advice indeveloping the searches.
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