E-Patient Bill of Rights Webinar
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Transcript of E-Patient Bill of Rights Webinar
E-Patient Bill of RightsProject Overview and Next Steps
Mark BardDigital Health Coalition
Agenda
• Introduction from Jay Goldman (Klick) • Introduction from Lucie Leblois (HealthCentral)
• Project Overview from Mark Bard (Digital Health Coalition)• Motivation for Project • September 19 Workshop• The Initial 6 Principles• The Facebook Page – www.epatientbillofrights.org
• Next Steps with the Project
Jay Goldman
Lucie Leblois
Mark Bard
Agenda
• Introduction from Jay Goldman (Klick) • Introduction from Lucie Leblois (HealthCentral)
• Project Overview from Mark Bard (Digital Health Coalition)• Motivation for Project • September 19 Workshop• The Initial 6 Principles• The Facebook Page – www.epatientbillofrights.org
• Next Steps with the Project
Roundtable Participants
• Eileen Bailey (healthcentral.com/profiles/c/1443)• Mark Bard (digitalhealthcoalition.org)• Alex Baldwin (healthcentral.com/about/alex-baldwin/)• Ann Bartlett (healthcentral.com/profiles/c/9993)• Phil Baumann (philbaumann.com)• Robert Breining (poziam.org)• Dave deBronkart (epatientdave.com)• Bob Brooks (wegohealth.com )• Bennet Dunlap (ydmv.net)• Lisa Emrich (brassandivory.org)• Jay Goldman (klickpharma.com)• Joe Farris (digitalhealthcoalition.org)
Roundtable Participants
• Amy Gurowitz (mslol.wordpress.com) • PJ Hamel (healthcentral.com/profiles/c/78)• Mark S. King (myfabulousdisease.com)• Sarah Krug (e-patients.net)• Lucie Leblois (healthcentral.com/about/lucie-leblois/)• Tiffany Peterson (www.tiffanyandlupus.com)• Jenny Pettit (myuiiblog.blogspot.com)• Casey Quinlan (mightycasey.com)• Teri Robert (helpforheadaches.com)• Rudy Sims (rudysims.com)• Michael Weiss (hospitalpatient.com)• Kelly Young (rawarrior.com)
Photos from 9/19 Roundtable Copyright© Klick 2011 All Rights Reserved
Photos from 9/19 Roundtable Copyright© Klick 2011 All Rights Reserved
“Story” Boards Graphic Recording by www.imagethink.net
Graphic Recording by www.imagethink.net
Graphic Recording by www.imagethink.net
Graphic Recording by www.imagethink.net
Principle #1
• Shared access to my data
Principle #2
• Attitude of collaboration and overall respect
Principle #3
• The patient is the largest stakeholder
Principle #4
• Transparency and authenticity across all areas
Principle #5
• Voice of the patient is a legitimate (clinical) source
Principle #6
• The right to efficient communication with providers who utilize the technology that we need
Graphic Recording by www.imagethink.net
Graphic Recording by www.imagethink.net
Facebook Page
www.epatientbillofrights.org
Facebook Page
www.epatientbillofrights.org
Agenda
• Introduction from Jay Goldman (Klick) • Introduction from Lucie Leblois (HealthCentral)
• Project Overview from Mark Bard (Digital Health Coalition)• Motivation for Project • September 19 Workshop• The Initial 6 Principles• The Facebook Page – www.epatientbillofrights.org
• Next Steps with the Project
Next Steps
• Using Facebook for outreach/education• Listening to the market in Q4• Incorporating feedback from
physicians• Incorporating feedback from pharma
and device companies • Working towards white
paper/principles in early 2012
E-Patient Bill of RightsProject Overview and Next Steps
Questions?