Dual Diagnosis and Self-Determination: Any Relationship?
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Dual Diagnosis and Self-Determination: Any
Relationship?
Karen L. Hobden & Barbara W. LeRoy Developmental Disabilities Institute
Wayne State University268-4809 Woodward, Detroit, MI 48202
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Dual Diagnosis Dual Diagnosis: co-occurring intellectual
disability and mental health problems (NADD, 2007).
Historically, individuals with intellectual disabilities were assumed to be free from mental health concerns
Recent research has suggested that people with intellectual disabilities may be at an increased risk. (Deb, Thomas, & Bright, 2001)
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Assessment of a Dual Diagnosis
Mini PAS-ADD (Prosser & Moss et al., 1998)
A semi-structured interview No background in psychology needed, but
must be trained to administer the interview. Asks questions of an informant who knows
the individual well. Reasonable validity and reliability.
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Mini PAS-ADD - 7 Subscales:1. Depression2. Anxiety3. Expansive Mood Disorder (Bipolar)4. Obsessive-Compulsive Disorder5. Psychosis6. Unspecified Disorder (including
Dementia)7. Autism
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Self-determination At the core of person-centered planning. Current best practice model for service
delivery The law in Michigan -- Individuals with
intellectual disabilities must be given the opportunity to make choices regarding their needs and goals
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Our Research Goals Evaluate the effectiveness of the Mini
PAS-ADD in assessing mental illness in individuals with intellectual disabilities.
Examine the relationship between dual diagnosis and self-determination
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MORC We conducted this research in
collaboration with the Macomb Oakland Regional Center (MORC)
MORC serves 1000 adults with mild or moderate intellectual disabilities.
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Procedure
The Mini PAS-ADD was administered by a trained interviewer, typically in the informant's home or place of employment.
The interviewers were employees of MORC and were either psychologists or social workers.
The Mini PAS-ADD takes about 20 minutes to administer.
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Assessment of Self-determination
22 Item Scale Assessing choice making – living
arrangements, community involvement, employment/finances
Completed by supports coordinator in collaboration with individual
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Self Determination Scale Living arrangements – amount of choice
exercised in terms of where they live, who they live with, what they eat, when they bathe, etc.
Community involvement – do they vote, attend a place of worship regularly, belong to cultural groups, clubs, or social organizations?
Employment/finances– do they have an ATM card, control over their budget, are they employed, do they make minimum-wage or higher?
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Our Sample 231 participants (100 assessed on the
Mini PAS-ADD, 151 on the SD Checklist). 49% female; 51% male The mean age was 49 (range of 18 to 87) 89% White; 7% African-American 86% had a guardian. 62% had a pre-existing dual diagnosis
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Severity of Intellectual disability
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Type of Residence
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Results – Mini PAS-ADD 29% had a dual diagnosis according to the
Mini PAS-ADD 4% Depression 10% Anxiety 3% Expansive Mood (Bipolar Disorder) 11% Obsessive-Compulsive 10% Psychosis 5% Unspecified Disorder 4% Autism
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Comparison of Diagnoses
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Mini PAS-ADD vs Diagnosis on File
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Pre-existing Diagnosis, but No Mini PAS-ADD: Why?
57% taking psychotropic medication that could have reduced or eliminated symptoms.
Individuals’ symptoms may have stabilized over time
Some individuals may have been misdiagnosed.
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Diagnostic Match by Psychotropic Medication
Any Meds? Diagnostic Match No Yes
Different diagnoses given 7.7 14.8
Mini PAS ADD, but no pre-existing 15.4 3.3
Pre-existing diagnosis, but no Mini PAS-ADD
23.1 52.5
Diagnostic match 51.3 29.5
Pre-existing diagnosis not covered by PAS-ADD
2.6 0
Total 100 100
χ2 (4) = 14.89 p<.01
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Results - Self-Determination by Diagnosis
Dual Diagnosis SD Scale Total No Yes % YES Living Arrangements
61.1 63.4 59.9
% YES Community Involvement
49.8 51.9 48.7
% YES Employment and Finances
37.7 35.7 36.4
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Self-Determination Rankings for Persons with Dual Diagnosis - Top Third
Rank Indicator % Present1 Has unstructured Time 98.22 Shops in Community 95.93 Chooses TV Program 94.24 Has access to private space 91.85 Has a Bank Account 87.66 Chooses when to bathe 71.97 Lives in typical residence in the
community71.5
8 Chooses what to eat 63.9
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Self-Determination Rankings for Persons with Dual Diagnosis - Middle Third
Rank Indicator % Present9 Plans/takes vacations 60.8
10 Chooses where to live 60.211 Attends Worship Service 43.312 Chooses personal doctor 37.613 Goes on spontaneous outings 37.514 Sees family members when
chooses33.5
15 Joins community organizations
29.4
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Self-Determination Rankings for Persons with Dual Diagnosis - Bottom Third
Rank Indicator % Present16 Chooses roommate 29.417 Has personal budget 28.418 Has access to telephone for
personal use21.1
19 Has employment 15.220 Makes minimum wage or more 14.721 Votes in community elections 14.322 Uses ATM for discretionary
funds5.9
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Conclusions - Mini PAS-ADD
Mini PAS-ADD is a quick, easy-to-use screen for psychiatric disorders in individuals with intellectual disabilities.
May be most effective in individuals not currently on psychotropic medication.
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Conclusions – Self Determination No one is very self-determined No overall differences by type of diagnosis Some indication that people with a dual
diagnosis have less choice in whether they:
• Vote (χ²=6.42, p < 05)• Join social organizations or clubs (χ²=4.52, p <
05)• See family members regularly (χ²=10.47, p < 01)• Have their own phone (χ²=5.81, p < 05)
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Contact Info Karen Hobden
email: [email protected] phone: 313-577-7980 website http://ddi.wayne.edu/