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the eXtra!the eXtra!A publication of Down Syndrome Association of Central California

Our mission is to enhance the quality of life for all people whose lives are touched by Down syndrome.

November/December 2020Volume 20, No. 6

Drive thru Donuts .... P. 1Conservatorship ..... P. 1Letter from the editor P. 2

In this issue...In this issue... Supporting DSACC .. P. 3Kids Corner ............. P. 4Birthdays ................ P. 5Calendar of Events ... P. 6-7

Virtual Conference .. P. 8That's a Wrap .......... P. 9Calendario de eventos P. 10-11

Details on page 8Details on page 8

drive thru donuts with SantaDue to the continued flu & covid concerns, we will not be hosting our typical in-person breakfast with Santa. Instead we are excited

to welcome you to drive thru & grab some holiday cheer with Santa & his elves! We even have some special suprises planned!

$5 per person (Includes donut, drink, and crafts to take home)

Saturday, December 5, 2020 from 9:00-11:30 amLithia Subaru of Fresno, 5200 N Blackstone- Fresno

Get your tickets online at www.dsacc.org/programs-news/socials/or contact DSACC staff at 559.228.0411, om@dsacc.org

Virtual Conservatorship WorkshopDSACC is excited to welcome Fresno Paralegal Services for a virtual workshop to help us learn about - Why you would need to be a conservator, What is a Conservatorship? Types of Conservatorship, Power of Attorney vs. Conservatorship, the process and so much more!

This is a workshop you are not going to want to miss, especially if you have a young adult nearing or at the age of 18.Thursday, January 14, 2021 from 6-8:30pm$5 per participant

Register today online at https://www.dsacc.org/programs-news/upcoming-programs/or contact DSACC staff at 559.228.0411,om@dsacc.org

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Contact Information:Down Syndrome Association of Central California1491 W. Shaw AvenueFresno, CA 93711Phone: (559) 228-0411Fax: (559) 228-0414E-mail: info@dsacc.orgWebsite: www.dsacc.org

Jennifer Whiting- Executive Director, pd@dsacc.orgRuth Reyes- Administrative Assistant, om@dsacc.rog

Statement of Policy and Disclaimer: The Extra is the periodic newsletter of (DSACC) Down Syndrome Association of Central California, which serves Central California. Subscription is free to members & friends of the Association. DSACC is affiliated with N.D.S.C and N.D.S.S. The Extra reports items of interest related to Down syndrome, so that the reader may make informed decisions concerning Down syndrome related issues. Any opinions, findings and conclusions, or recommendations expressed in The Extra are those of the individual authors and do not necessarily reflect the views of the officers, Board of Directors, DSACC organization or its membership. All medical related issues should be thoroughly discussed with your doctor before being implemented. DSACC does not endorse the writings of any individual, professional, or organization.

2020 Officers & Board of DirectorsMike Bowman- PresidentDeepali Desai- Past President Paul Carter- Vice PresidentDee Dee Belliston- TreasurerDeAndra Inman- SecretaryMembers at Large- Erin Bell, Renee Gustuson, Victoria D'Ambrosi, Ruth Soderlund, Rosemary & Adiran Jilote, Donna Marie Ferrer

2020 is thankfully coming to an end. It feels like we have been living in 2020 for decades when in reality it was only 12 months... and while we will still have to deal with COVID and a struggling economy next year, I have hope that one day soon we will be back together again!

In the meantime- us here at DSACC are so glad to be able to keep in touch and support you virtually! We have some great conferences and workshops coming up so be sure to check out the calendar pages for details and registration links.

Speaking of virtual- THANK YOU to everyone who participated and supported Step Up for Down Syndrome this year. Such a wild ride, and BIG learning curve- and we couldn't have done it without you- the walkers, the runners, the donors, the sponsors, the volunteers, staf f and board members! While we didn't reach our 80,000 goal- we came so close! You helped raise over $60,000 and donations are still coming in! These funds guarantee us that next year, we can continue our mission to enhance the quality of life for all people whose lives are touched by Down syndrome.

We are kicking of f the holiday season with a toy drive at Lithia Subaru of Fresno- all the toys donated will be wrapped and given to kiddos who come to the

A letter from our Executive Director

Drive thru Donuts with Santa- so if you are in the giving spirit- you can drop a new, unwrapped toy for any ages (adult things needed too!) at Lithia Subaru on Blackstone in Fresno.

Do you need to do an end of the year donation still? No prob! Just drop it in the mail to DSACC at 1491 W Shaw Avenue Fresno, CA 93711.

Thank you for all your support this year, and may the New Year bring you and your family love, joy and comfort.

Sincerely, Jennifer

DSACC Office Hours:You can reach staff members

by phone Monday- Wednesday 10-2 pm at 559.228.0411, or

by email, info@dsacc.org

DSACC will be closed:November 26-29

Happy Thanksgiving!December 23 - January 3

Happy holidays & New Years'!

2020 Board Meeting ScheduleBoard meetings take place from

6-8 pm via ZOOMMeetings are open to the public.

Meetings dates:November 18December 16

***The President may call for additional meetings when necessary***The President may call for additional

meetings when necessary

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YOU make a difference!

Mail in donation:Mail in donation:Name/Nombre Name/Nombre

Address/Domicilio Address/Domicilio

City/State/Ciudad/Estado City/State/Ciudad/Estado

ZIP/Código ZIP/Código

Phone/Teléfono: Phone/Teléfono:

E-mail E-mail

Amount: Amount:

One time donation (yes/no) Recurring Monthly (yes/no) One time donation (yes/no) Recurring Monthly (yes/no)

CC Number: CC Number:

Exp Date: Security code: Exp Date: Security code:

MAIL FORM TO DSACC: 1491 W SHAW AVENUE FRESNO, CA 93711

With the cancellation of our annual gala, DSACC is left with minimal income to support our services and programs for the remainder of the summer months. We

are making hard decisions and tightening expenses where we can but we need your help to keep our staff and office functioning. We know there are many amazing organizations out there needing help right now so we appreciate you choosing

DSACC. Every penny helps us connect, support and educate.Here's how you can donate or support our efforts at this time...

WHILE YOU WORK...

Ask your company if they will match your donation!

For more information contact Jennifer at

559.228.0411, pd@dsacc.org

Sign Up. Shop. Earn!www.escrip.com

It’s free. Earn for your favorite schools & nonprofits. Register store cards, credit/debit

cards, or buy digital gift cards.

Shop, dine out or even take a cruise to earn easily and automatically when you

shop with merchants that give back.

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for your favorite causes when you buy things your normally buy every day.

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FROM HOME:

NOW YOU CAN NOW YOU CAN TEXT TO GIVE!TEXT TO GIVE!

Text "GIVE" plus the amount you want to donate to:

1-833-609-3589Sample text: "Give + 50"

If it's your first time donating by text to DSACC there will be a

one-time, simple set up process that takes less than a minute!

Then you are ready to Text to Give!

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...KIDS CORNER- Holiday edition...Marshmallow Treat Turkey DessertMarshmallow Treat Turkey Dessert

Whether you enjoy these right after Thanksgiving dinner or wrap them up for guests to take to go, these cute turkey treats will become an instant favorite holiday dessert recipe (especially with the kids).

IngredientsNonstick cooking spray

¼ cup butter1 10 ounce package tiny marshmallows1 13 ounce jar marshmallow creme2 teaspoons vanillaPinch of salt10 cups crisp rice cereal24 ounces semi-sweet or milk chocolate, chopped and melted12 peanut butter sandwich cookies with peanut butter filling108 pieces candy corn24 candy eyes6 yellow chocolate-coated candy pieces, halved12 red chocolate-covered sunflower seeds

DirectionsLine a 15x10x1-inch baking pan with foil, extending foil over the edges. Coat foil with nonstick cooking spray; set aside.In a 4- to 6-quart Dutch oven, melt butter over low heat. Add marshmallows; cook until melted. Stir in marshmallow crème, vanilla, and salt. Remove from heat. Gently stir in cereal. Transfer to prepared pan. Use greased wax paper to press firmly. Cover the treats with a sheet of wax paper and a sheet of foil. Place another 15x10x1-inch baking pan on top of the treats; add a few unopened cans of food to the top of the pan for weight. Weigh treats down and let stand at least 1 hour.Using a 3-inch round cutter, cut 12 circles out of the marshmallow treats. Dunk each circle treat in melted chocolate. Press a sandwich cookie on top, leaving 1/2-inch of space from the top of the cookie to the edge of the circle treat. Place 5 candy corn pieces around the cookie to mimic tail feathers (place one candy corn in the 1/2-inch space above the cookie top). Use

remaining melted chocolate as glue and attach candy eyes, yellow candy as beaks and red candy as snoods.

Grinch Rice Krispy TreatsGrinch Rice Krispy Treats

Any Grinch lover's heart will "grow three sizes" when they bite into these cute Grinch Rice Krispies Treats!

Ingredients5 cups Rice Krispies1/4 cup butter4 cups mini marshmallowsgreen food coloring at least 10 dropsred icingChristmas sprinkles1 package red jumbo hearts (from Wilton) or make your own using red melting candies

InstructionsMelt butter in large saucepan over low heat then add the food coloring and stir. Add the marshmallows next. Stir constantly until melted and completely blended. Remove mixture from heat.Immediately add cereal. Stir until well coated.Using buttered spatula or waxed paper, press mixture evenly and firmly in buttered 8x8 inch pan. Add heart sprinkles or sprinkles of choice. Cut into squares when cool and then add an icing heart using the red icing OR (updated) use a large red heart decoration.If the decoration does not stick very well... just add a dab of icing or red melting candy to the back side to affix to the Rice Krispies treat. If using the icing: leave it to dry for an hour and the hearts will not be too sticky to the touch.

Paper Plate SantaPaper Plate Santa

Materials:Paper plateCotton ballsCream, red, white, black, and pink craft paint

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BirthdaysBirthdaysAdyson Hernandez

Aiden Dakota Sorondo

Alejandro SolorioAlexis G. Ortiz

Alexis HernandezAndrew Lorenzo

DircioAriana Reyes Flores

Arshaan GillArya Athena Lozano

Aubrey Reann Nyswonger

Barry Angel OlivarBarry Olivar

Brandon CordobaBrianna FalconCalen Garcia

Camilla ValdovinosCarmen VioletChristian Reyes

Christian SchefflerDamian Isaiah

CalderonDamian Moreno

Daniel WilliamsDanny Tomlin

David MartinezDenise Pina

Devon MontyDevonne AlexanderDianette Avila Lopez

Donna NewittDyanna Del Gadillo

Dylan HoffmanEcks Reyes

Edgar Suarez Acevedo

Edward CortezEliana ValenciaElijah Rangel

Emanuel EspinosaEmily Cardona

Emily Santos MorenoEzekiel GarciaFelipe Lopez IV

Gabriel BranscumbGenesis Lomeli

Giselle AvendanoIsaiah Shilhavy

Ivy Madison LimJackson TrivetteJacob Mendoza

Jacqueline Perez- Navarro

James BassmanJared Witrago

Jasmine GarciaJesse Castro

Jessica CriswellJessie J Carlson

Jesus CejasJohn Perkins

Jonathon StreetsJordan CampaJose de Jesus

Sandoval VillarealJoshua TurnerJulian Ruedan

Julianna SolorioKarina GonzalesKingsley De Alba

Kiri WootenKwame Bell

Kyla Witherspoon

Larry Painter IIILeanne SkinnerLeonard CantuLevi CisnerosLucy Chavez

Luis Enrique VegaLuis Vega Lopez

Luke MerazMalachi Maximus

UriasMarilee-Antoinette Angelina GintherMarisa Tellalian

Mary Helen PerezMatthew BarnesMaverick Meraz

Mia Lizzette VargasMichael Martinez Jr

Michael Nicolas Chacon

Miguel Avila-MedinaMiguel Avila-MedinaMiguel Contreras, Jr.

Miguel MorenoMikaela Salinas

Nathan BriceOlin DemlerOliver Chase

CampiseOscar Ibarra

Oscar Leon FloresPatricia Valencia

Pierre De La VegaRichard Ziegler

Roberto LedesmaRoberto LedesmaSalvador Pena Jr.

SamanthaSamuel Martin Flores

Santiago BravoSarah Ann

SchellenbergSarah ZamoraSimon BellarSteven Rogers

Valerie Alice ChavezVanessa Garcia

Vaugh DavisVictoria Sanchez

Zitlali Analco

If your birthday is not listed here, please call us and let us know. We will publish missed birthdays.

Glue or hot glue gun/hot glueDirections

Lay out a piece of old newspaper before you get started.Paint your entire plate cream and let dry.Now paint two white circle eyes onto the top center of your plate for the whites for the eyes.Paint two pink cheeks, below and slightly to the side of each eye. Paint a red nose right under the eyes and between the cheeks. Put black dots in the white circles to finish the eyes.Carefully glue your cotton balls onto the bottom half of your plate and halfway up the sides for the beard. Paint the top quarter of your plate red for the hat and let your plate dry.Then glue on a straight line of cotton balls right under your red hat. Add one to the top of your hat, then fill in any bare spots with more cotton balls.Then your Santa Christmas paper plate craft is finished and ready to be put on display!

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Important 2020/2021 dates to take note of...• Personal Protection Gear available now until we run out. Pick up

Monday or Wednesdays at the DSACC office between 10-1 pm. If you need to arrange an alternate time, contact us at 559.228.0411

• Skills to Thrive & Survive the Teen & Adult Years.... November 14, 2020

• Lithia Share the Love Event .............................. November - January 3

• Drive thru Donuts with Santa ...............................December 5, 2020

• Virtual Conservatorship Workshop ...................... January 14, 2021

Please note, dates may be subject to change

Calendar of EventsCalendar of Events

Parent2ParentParent2ParentThis (all ages) group offers This (all ages) group offers emotional support, connections emotional support, connections and education for families touched and education for families touched by a disability (not just Down by a disability (not just Down syndrome!). Meetings are facilitated syndrome!). Meetings are facilitated by Carolyn Tellalian, LCSW. The by Carolyn Tellalian, LCSW. The purpose is to connect new friends purpose is to connect new friends and old, gain valuable tools and and old, gain valuable tools and support for a variety of topics support for a variety of topics relating to raising a child or adult relating to raising a child or adult with a disability. Questions? with a disability. Questions? Contact Ruth at om@dsacc.orgContact Ruth at om@dsacc.org

• • When: 6:00-8:00 pm, First When: 6:00-8:00 pm, First Wednesday of the monthWednesday of the month

• • Where: Virtually on ZOOM- Where: Virtually on ZOOM- https://us02web.zoom.us/j/932https://us02web.zoom.us/j/93289472001?pwd=ajkzMVFrMFg289472001?pwd=ajkzMVFrMFg2MDJKdkNNbVA3WXcxUT09MDJKdkNNbVA3WXcxUT09

• • Meeting ID: 932 8947 2001Meeting ID: 932 8947 2001• • Passcode: 0321Passcode: 0321• • November 5, 2020: Sibling November 5, 2020: Sibling

Support presented by trained Sib Support presented by trained Sib Shop FacilitatorShop Facilitator

• • December 2, 2020: Virtual December 2, 2020: Virtual Holiday GatheringHoliday Gathering

• • January 2021- No Meeting January 2021- No Meeting

South Valley Education and South Valley Education and Support GroupSupport GroupThis early start group offers This early start group offers emotional support, connections emotional support, connections and education for families touched and education for families touched by a disability (not just Down by a disability (not just Down syndrome!). Meetings are facilitated syndrome!). Meetings are facilitated by DSACC & Bright Start staff. The by DSACC & Bright Start staff. The purpose is to connect new friends purpose is to connect new friends and old, gain valuable tools and and old, gain valuable tools and support for a variety of topics support for a variety of topics relating to raising a child or adult relating to raising a child or adult with a disability. with a disability.

• • When: First Thursday of the When: First Thursday of the month, from 10:00-11:00 am month, from 10:00-11:00 am unless otherwise notedunless otherwise noted

• • Where: Virtually on Zoom! Where: Virtually on Zoom! To register and get ZOOM To register and get ZOOM meeting details, please contact meeting details, please contact Stephanie Caldera at Bright Stephanie Caldera at Bright Start- Start- scaldera@tcoe.org, scaldera@tcoe.org, (559) (559) 740-4321 ext. 6528740-4321 ext. 6528

• • November 4, 2020: Intro to November 4, 2020: Intro to

Conservatorship & GuardianshipConservatorship & Guardianship• • DATE CHANGE! December DATE CHANGE! December

10, 2020: Stories with Santa & 10, 2020: Stories with Santa & Holiday celebrations! Join us for Holiday celebrations! Join us for a live, interactive story, song & a live, interactive story, song & craft time! You MUST RSVP to craft time! You MUST RSVP to Stephanie Caldera by November Stephanie Caldera by November 25 so that we can get your 25 so that we can get your supplies to you in time!supplies to you in time!

• • January 2021- No Meeting January 2021- No Meeting

Grupo ApoyoGrupo ApoyoThis (all ages) group offers This (all ages) group offers emotional support, connections emotional support, connections and education for families touched and education for families touched by a disability (not just Down by a disability (not just Down syndrome!). All presenters are bi-syndrome!). All presenters are bi-lingual. The purpose of Grupo is to lingual. The purpose of Grupo is to connect new friends and old, gain connect new friends and old, gain valuable tools and support for a valuable tools and support for a variety of topics relating to raising a variety of topics relating to raising a child or adult with a disability. child or adult with a disability. Questions? Contact Ruth at om@Questions? Contact Ruth at om@dsacc.orgdsacc.org

• • When: 6:00-8:00 pm, Second When: 6:00-8:00 pm, Second Wednesday of the monthWednesday of the month

• • Where: Virtually on ZOOM- Where: Virtually on ZOOM- https://us02web.zoom.us/j/8909https://us02web.zoom.us/j/89096038862?pwd=VzBnN1BobjlwR6038862?pwd=VzBnN1BobjlwRGUzVXk4MlZqVTl2dz09GUzVXk4MlZqVTl2dz09

• • Meeting ID: 890 9603 8862Meeting ID: 890 9603 8862• • Passcode: 0321Passcode: 0321• • November 11, 2020: State November 11, 2020: State

Council on Developmental Council on Developmental Disabilities- find out who they Disabilities- find out who they are and how they serve our are and how they serve our

communitycommunity• • December 9, 2020: Virtual December 9, 2020: Virtual

Holiday GatheringHoliday Gathering• • January 2021- No Meeting January 2021- No Meeting

DSACC Self Advocate CommitteeDSACC Self Advocate CommitteeOn the Advocate committee our On the Advocate committee our adults with Down syndrome will adults with Down syndrome will learn public speaking skills, build learn public speaking skills, build and maintain social skills, and be and maintain social skills, and be a voice for members with Down a voice for members with Down syndrome. syndrome.

• • When: 1:00-2:00pm the 2nd When: 1:00-2:00pm the 2nd Tuesday of every month unless Tuesday of every month unless otherwise notedotherwise noted

• • Where: Virtually on ZOOM. Where: Virtually on ZOOM.

Please contact Jennifer for meeting Please contact Jennifer for meeting details. Contact by phone at details. Contact by phone at 550.228.0411 or by email at pd@550.228.0411 or by email at pd@dsacc.orgdsacc.org

Skills to thrive and Survive in the Skills to thrive and Survive in the teen & adult yearsteen & adult yearsVirtual conference presented by Virtual conference presented by Dennis McGuire, LCSW, PhDDennis McGuire, LCSW, PhDSaturday, November 14, 2020Saturday, November 14, 2020From 9:00 am- 11:00 amFrom 9:00 am- 11:00 amRegistration now just $25!Registration now just $25!

Dr. McGuire is a Down syndrome Dr. McGuire is a Down syndrome behavioral expert with more behavioral expert with more than 30 years of experience in than 30 years of experience in the fields of mental health and the fields of mental health and developmental disabilities. developmental disabilities.

Teens & adults with Down syndrome Teens & adults with Down syndrome

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can survive and thrive despite can survive and thrive despite concrete forms of thinking and concrete forms of thinking and behaving, which may greatly limit behaving, which may greatly limit communication, flexibility, adaptive-communication, flexibility, adaptive-ness to change and to new settings, ness to change and to new settings, as well as to negatively affect their as well as to negatively affect their perception of time & humor. There perception of time & humor. There are in fact huge benefits to concrete are in fact huge benefits to concrete thinking and also host of adaptive thinking and also host of adaptive strategies that take advantage of strategies that take advantage of other strengths and resources to other strengths and resources to manage this problem, such as the manage this problem, such as the use of visual cues and the reliance use of visual cues and the reliance on set patterns and routines, to on set patterns and routines, to learn or transfer skills to new learn or transfer skills to new settings. We will also discuss better settings. We will also discuss better ways to use their superb but quite ways to use their superb but quite often under-developed intuition often under-developed intuition and social sensitivity to enhance and social sensitivity to enhance social relations. Finally, like all of social relations. Finally, like all of us, people with DS need power us, people with DS need power and control and their attempts and control and their attempts may become a little extreme or may become a little extreme or misguided but not if there is an misguided but not if there is an understanding & understanding & encouragement for healthy & encouragement for healthy & productive ways to do for self at productive ways to do for self at each stage of life.each stage of life.

Register online at www.dsacc.Register online at www.dsacc.org/programs-news/upcoming-org/programs-news/upcoming-programs/ or contact info@dsacc.programs/ or contact info@dsacc.org, 559.228.0411org, 559.228.0411

Drive-thru Donuts with SantaDrive-thru Donuts with SantaHappy Holidays! Due to the Happy Holidays! Due to the continued concerns of keeping our continued concerns of keeping our loved ones healthy and safe, we will loved ones healthy and safe, we will not be hosting our typical in-person not be hosting our typical in-person breakfast with Santa. Instead we breakfast with Santa. Instead we are excited to welcome you to drive are excited to welcome you to drive thru and grab some holiday cheer!thru and grab some holiday cheer!

Santa & his elves will be joining Santa & his elves will be joining us for a special event at Lithia us for a special event at Lithia Subaru to hand out donuts, milk, Subaru to hand out donuts, milk, coffee and PRESENTS as you drive coffee and PRESENTS as you drive through! We also have some fun through! We also have some fun surprises planned!surprises planned!

Cost: $5 per person (gets you a Cost: $5 per person (gets you a donut, a drink, and crafts to take donut, a drink, and crafts to take home)home)When: Saturday, December 5, When: Saturday, December 5,

2020 from 9:00-11:30 am2020 from 9:00-11:30 amWhere: Lithia Subaru of Fresno, Where: Lithia Subaru of Fresno, 5200 N Blackstone- Fresno5200 N Blackstone- FresnoGet your tickets online at https://Get your tickets online at https://www.aplos.com/aws/events/www.aplos.com/aws/events/drive_thru_donuts_with_santadrive_thru_donuts_with_santa

Virtual Conservatorship Virtual Conservatorship WorkshopWorkshop

Thursday, January 14, 2021 Thursday, January 14, 2021 from 6-8:30pmfrom 6-8:30pm$5 per participant$5 per participant

DSACC is excited to welcome DSACC is excited to welcome Fresno Paralegal Services for a Fresno Paralegal Services for a workshop to help us learn about - workshop to help us learn about - What is a Conservatorship? Types What is a Conservatorship? Types of Conservatorship, Power of of Conservatorship, Power of Attorney vs. Conservatorship, the Attorney vs. Conservatorship, the process and so much more! This process and so much more! This is a workshop you are not going to is a workshop you are not going to want to miss, especially if you have want to miss, especially if you have a young adult nearing or at the age a young adult nearing or at the age of 18.of 18.Register today online at https://Register today online at https://www.dsacc.org/programs-news/www.dsacc.org/programs-news/upcoming-programs/upcoming-programs/https://www.aplos.com/aws/events/https://www.aplos.com/aws/events/conservatorship_workshopconservatorship_workshop

Do you need assistance buying Do you need assistance buying diapers, pull ups or wipes?diapers, pull ups or wipes?DSACC is here to help! Thanks to a DSACC is here to help! Thanks to a partnership with CVRC, we are now partnership with CVRC, we are now helping families who cannot afford helping families who cannot afford it, purchase diapers and wipes it, purchase diapers and wipes during the pandemic. during the pandemic.

If you need assistance please If you need assistance please contact info@dsacc.org or contact info@dsacc.org or 559.228.0411 to get on our 559.228.0411 to get on our distribution list.distribution list.

Need personal protection gear?Need personal protection gear?We've got you COVERED! Thanks We've got you COVERED! Thanks to an incredible donation from to an incredible donation from our friends at State Council on our friends at State Council on Developmental Disabilities, we Developmental Disabilities, we have face masks, face shields and have face masks, face shields and hand sanitizer for our families!hand sanitizer for our families!

You can pick up your supplies You can pick up your supplies at the DSACC office Monday & at the DSACC office Monday &

Wednesdays from 10-1 pm, or Wednesdays from 10-1 pm, or contact us to arrange an alternate contact us to arrange an alternate meet up 559.228.0411, meet up 559.228.0411, info@dsacc.orginfo@dsacc.org

COVID-19 ONLINE RESOURCESQ&A on Covid-19 and Down syndromehttps://www.ndss.org/ndss-covid-19-down-syndrome-resource/Global Down Syndrome Foundation (has info in Spanish & English)https://www.globaldownsyndrome.org/covid-19/Lumind IDSChttps://www.lumindidsc.org/t21covid/Centers for Disease Control: https://www.cdc.gov/coronavirus/2019-ncov/index.htmlNational Institutes of Health: https://www.nih.gov/health-information/coronavirusCalifornia Department of Public Healthhttps://www.cdph.ca.gov/Programs/CID/DCDC/Pages/Immunization/ncov2019.aspxCalifornia Corona Virushttps://covid19.ca.gov/

If you think you or anyone in your care may have COVID-19, call your doctor or other health professional immediately. Calling first is important. Going to an office or a hospital makes your risk of possibly catching or spreading the virus greater. If you call first, the office or hospital will be prepared for you. If you have an emergency, please call 911.

It’s important to take care of yourself. If you are sick or too tired, you cannot care for others. Stay healthy! Others depend on you. When you can, check in with family and friends. They may have problems with this health emergency and could use your help.

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D o w n S y n d r o m e A s s o c i a t i o n o f C e n t r a l C a l i f o r n i a

Saturday, November 14FROM 9:00AM UNTIL 11:00AM

Presented by

www..dsacc.org/programs-news/workshops/Register Now at:

VIRTUALCONFERENCE

Skills to Thrive

Teens & adults with Down syndrome can survive and thrive(even during Covid) despite concrete forms of thinking and behaving, which may greatly limit communication, flexibility, adaptive-ness to change and to

new settings, as well as to negatively affect their perception of time & humor. There are in fact huge benefits to concrete thinking and also host of adaptive strategies that take advantage of other strengths and resourc-

es to manage this problem, such as the use of visual cues and the reliance on set patterns and routines, to learn or transfer skills to new settings. We will also discuss better ways to use their superb but quite often under-developed intuition and social sensitivity to enhance social relations. Finally, like all of us, people with DS need power and control

and their attempts may become a little extreme or misguided but not if there is an understanding & encouragement for healthy & productive ways to do for self at each stage of life.

in the teen & adult years

Dennis McGuire, Ph.D

$40 Registration

& Survive

Registration now just $25!

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STEP UP 2020STEP UP 2020I'm not crying- you're crying! It I'm not crying- you're crying! It was so was so absolutely wonderful to see everyone's absolutely wonderful to see everyone's posts and texts of them Stepping up posts and texts of them Stepping up this year! In a year where everything this year! In a year where everything seems to be a challenge, YOU made seems to be a challenge, YOU made our virtual Step Up a HUGE success. our virtual Step Up a HUGE success. Thank you, Thank you, Thank you!Thank you, Thank you, Thank you!I want to take a moment to thank our I want to take a moment to thank our sponsors. In a year where there is so sponsors. In a year where there is so much financial and emotional struggle, much financial and emotional struggle, they stepped up, continuing to believe they stepped up, continuing to believe in our mission to enhance the quality in our mission to enhance the quality of life for all people whose lives are of life for all people whose lives are touched by Down syndrome. Let’s give touched by Down syndrome. Let’s give them a big round of applause and them a big round of applause and send them loads of virtual hugs!send them loads of virtual hugs!

2020 Super sponsors:2020 Super sponsors: Lithia Hyundai Lithia Hyundai of Fresno, Genesis of Fresno, Lithia of Fresno, Genesis of Fresno, Lithia Nissan of FresnoNissan of Fresno

2020 5K Sponsor:2020 5K Sponsor: Valley Children's Valley Children's HospitalHospital

2020 Magic Makers: 2020 Magic Makers: Kiwanis Club Kiwanis Club of East Fresno, Purewal Dentistry, J. of East Fresno, Purewal Dentistry, J. Quisad in Memory of Mel, In Loving Quisad in Memory of Mel, In Loving Memory of Paris White & Pattie Memory of Paris White & Pattie GaminoGaminoThe Todd FamilyThe Todd Family

2020 Step Up Partners:2020 Step Up Partners: Tachi Palace Tachi Palace Casino & Resort, Backstory CreativeCasino & Resort, Backstory Creative

2020 Step Up Supporters:2020 Step Up Supporters: Clovis Clovis Rodeo Association, Loretta's LIttle Rodeo Association, Loretta's LIttle Miracles, Tally Timing, Valley Type & Miracles, Tally Timing, Valley Type & Design, Paul & Denise Bealessio, L. Design, Paul & Denise Bealessio, L. Belezzuoli , Cardoza Family , Hyrum Belezzuoli , Cardoza Family , Hyrum & Mike, K. Inam, Quinn & Kennedy & Mike, K. Inam, Quinn & Kennedy O’Keefe , Grandpa Jesse & Friends, O’Keefe , Grandpa Jesse & Friends, De Alba Family, Jason Starr, Team CRS De Alba Family, Jason Starr, Team CRS , Richmond Elks Lodge, Richmond Elks Lodge

Let’s also give a big round of applause Let’s also give a big round of applause to the Board of Directors & our to the Board of Directors & our new administrative assistant, Ruth new administrative assistant, Ruth Reyes, who stepped in to make sure Reyes, who stepped in to make sure everything was prepped and ready everything was prepped and ready for pick up dates, signage put out, for pick up dates, signage put out, and every tiny detail done. Such an and every tiny detail done. Such an incredible group! Thank you- Mike incredible group! Thank you- Mike Bowman, Paul Carter, Danielle Bowman, Paul Carter, Danielle Belliston, DeAndra Inman, Renee Belliston, DeAndra Inman, Renee Gustuson, Rosemary & Adrian Jilote Gustuson, Rosemary & Adrian Jilote Erin Bell, Victoria D’Ambrosi, Ruth Erin Bell, Victoria D’Ambrosi, Ruth Soderlund, and Donna Marie Ferrer.Soderlund, and Donna Marie Ferrer.Congratulations to our award Congratulations to our award winners and every person and team winners and every person and team

THAT'S A WRAPTHAT'S A WRAP

that registered- we had over 450 that registered- we had over 450 participants (which is not bad for a participants (which is not bad for a virtual event!) and raised over $60,000 virtual event!) and raised over $60,000 between on and offline donations! Just between on and offline donations! Just so you know- if only 450 of you were so you know- if only 450 of you were able to raise $60,000- I have HIGH able to raise $60,000- I have HIGH expectations for next year when we all expectations for next year when we all get together again and have 1,000 get together again and have 1,000 participants!participants!This was one of our tightest This was one of our tightest competitions to date, lots of back competitions to date, lots of back and forth amongst our top 5 teams and forth amongst our top 5 teams in all categories! Great job everyone! in all categories! Great job everyone! Please note- winners were decided on Please note- winners were decided on amounts as of October 5, 2020. amounts as of October 5, 2020.

2020 Largest Team Rankings2020 Largest Team Rankings#1 Team Super Wy (30 teammates!)#1 Team Super Wy (30 teammates!)#2 Team Brianna (29 teammates!)#2 Team Brianna (29 teammates!)#3 Team Gemma (20 teammates!)#3 Team Gemma (20 teammates!)#4 Sebastian’s Soldiers#4 Sebastian’s Soldiers#5 Everett the Lion#5 Everett the Lion#6 Ellie’s Enchanting Team#6 Ellie’s Enchanting Team#7 Kingsley’s Corner#7 Kingsley’s Corner#8 Team Ezra Coretez-Chavez#8 Team Ezra Coretez-Chavez#9 Team JP#9 Team JP#10 In Loving Memory of Patty #10 In Loving Memory of Patty Gamino (sending lots of love to this Gamino (sending lots of love to this team who gained angel this past May, team who gained angel this past May, Pattie is forever in our hearts)Pattie is forever in our hearts)

2020 Biggest Fundraiser Rankings2020 Biggest Fundraiser Rankings#1 Team Gemma- raising over #1 Team Gemma- raising over $3,300!$3,300!#2 Super Wy- raising $3,045#2 Super Wy- raising $3,045#3 Team Ava- raising $2,900#3 Team Ava- raising $2,900#4 Team CRS#4 Team CRS#5 Kingsley’s Corner#5 Kingsley’s Corner#6 Reston’s Wild Ones#6 Reston’s Wild Ones#7 Sebastian’s Soldiers#7 Sebastian’s Soldiers#8 Evis “El Rey” Jilote#8 Evis “El Rey” Jilote#9 Team Levi#9 Team Levi#10 Glo with the Flo#10 Glo with the Flo

2020 Best Spirit: 2020 Best Spirit: Sebastian's Soldiers Sebastian's Soldiers and congratulations to all the teams and congratulations to all the teams that participated this year- so many that participated this year- so many incredible teams!incredible teams!Congratulations to DSACC’s 2020 Congratulations to DSACC’s 2020 Educator of the Year-Educator of the Year- Jaime Maxey, Jaime Maxey, and 2020 and 2020 Service Provider of the Service Provider of the Year-Year- Sarah Brock! Sarah Brock!

In case you missed our virtual In case you missed our virtual celebration, you can watch it any time celebration, you can watch it any time at https://youtu.be/mjq5BWAGGBc. at https://youtu.be/mjq5BWAGGBc. A giant thank you to the guys at A giant thank you to the guys at Backstory Creative who helped us Backstory Creative who helped us

with our video celebration and saved with our video celebration and saved the day by hosting our video feed on the day by hosting our video feed on their YouTube channel when we had their YouTube channel when we had technical difficulties on our own. They technical difficulties on our own. They saved the day for sure! saved the day for sure!

If you haven't shared your photos of If you haven't shared your photos of how you celebrated, please email how you celebrated, please email them to info@dsacc.org so that we them to info@dsacc.org so that we can put them in our newsletter and can put them in our newsletter and share on social media. We will share share on social media. We will share all your photos in the next issue of the all your photos in the next issue of the newsletter!newsletter!

If you have anyone who has a late If you have anyone who has a late donation, fear not. The Step Up site donation, fear not. The Step Up site will be open for donations through will be open for donations through the end of the month, or you can mail the end of the month, or you can mail them to DSACC at 1491 W Shaw them to DSACC at 1491 W Shaw Avenue Fresno, CA 93711.Avenue Fresno, CA 93711.

Again, thank you so much for your Again, thank you so much for your support and participation, it means support and participation, it means the world to us to be able to continue the world to us to be able to continue providing resources, support and providing resources, support and connections in the community for connections in the community for families touched by Down syndrome. families touched by Down syndrome. None of which would be possible None of which would be possible without your participation in Step Up. without your participation in Step Up. Be sure to mark your calendars for Be sure to mark your calendars for next year’s walk, Saturday, October next year’s walk, Saturday, October 16, 2020!16, 2020!

Sib Connections Wrap UpSib Connections Wrap UpThank you so much to our inaugural Thank you so much to our inaugural group of sibs for our virtual Sib group of sibs for our virtual Sib Connection program! What a fun Connection program! What a fun group of kids- we played TONS of group of kids- we played TONS of games, did lots of drawings, ate a games, did lots of drawings, ate a lot of snacks, and had some great lot of snacks, and had some great conversations- all virtually! Hopefully conversations- all virtually! Hopefully we can get this program up and we can get this program up and running in person next year, but until running in person next year, but until then- we had a great time getting then- we had a great time getting together virtually! We will run a spring together virtually! We will run a spring session of the Sib Connection so stay session of the Sib Connection so stay tuned for details!tuned for details!

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• Enero de 2021: sin reunión

Grupo ApoyoEste grupo (para todas las edades) ofrece apoyo emocional, conexiones y educación para familias afectadas por una discapacidad (¡no solo el síndrome de Down!). Todos los presentadores son bilingües. El propósito de Grupo es conectar nuevos amigos y viejos, obtener valiosas herramientas y apoyo para una variedad de temas relacionados con la crianza de un niño o un adulto con una discapacidad. Preguntas? Póngase en contacto con Ruth en om@dsacc.org

• Cuándo: 6: 00-8: 00 pm, segundo miércoles del mes

• Dónde: Virtualmente en ZOOM - Únase a Zoom Meeting

• https://us02web.zoom.us/j/89096038862?pwd=VzBnN1BobjlwRGUzVXk4MlZqVTl2dz09

• ID de reunión: 890 9603 8862• Código de acceso: 0321• 11 de noviembre de

2020: Consejo Estatal de Discapacidades del Desarrollo: descubra quiénes son y cómo sirven a nuestra comunidad

• 9 de diciembre de 2020: Reunión virtual de vacaciones

• Enero de 2021: sin reunión

Comité de abogado de DSACCEn el comité de Defensores, nuestros adultos con síndrome de Down aprenderán habilidades para hablar en público, desarrollarán y mantendrán habilidades sociales, y serán una voz para los miembros con síndrome de Down.

Debido a la actual crisis de salud que atraviesa el mundo, organizaremos nuestros grupos de apoyo virtualmente durante el resto del año. Este grupo de inicio temprano ofrece apoyo emocional, conexiones y educación para familias tocadas por una discapacidad (¡no solo el síndrome de Down!). Las reuniones son facilitadas por el personal de DSACC y Bright Start. El propósito es conectar nuevos y viejos amigos, obtener valiosas herramientas y apoyo para una variedad de temas relacionados con la crianza de un niño o un adulto con discapacidad.

• Cuándo: primer jueves del mes, de 10: 00-11: 00 am a menos que se indique lo contrario

• Dónde: ¡Prácticamente en Zoom! Para registrarse y obtener los detalles de la reunión de ZOOM, comuníquese con Stephanie Caldera en Bright Start- scaldera@tcoe.org, (559) 740-4321 ext. 6528

• 4 de noviembre de 2020: Introducción a la curaduría y la tutela

• ¡En español! 8 de diciembre de 2020: Historias con Santa y celebraciones navideñas. ¡Únase a nosotros para una historia interactiva en vivo, canciones y manualidades! ¡DEBE confirmar su asistencia a Stephanie Caldera antes del 25 de noviembre para que podamos entregarle sus suministros a tiempo!

Calendario de eventos

Parent2Parent / South Valley 5 & Under Grupo de educación y apoyo para padresDebido a la actual crisis de salud que está experimentando el mundo, hemos combinado algunos de nuestros grupos de apoyo para alojarlos prácticamente una vez al mes durante el resto del año. Este grupo (para todas las edades) ofrece apoyo emocional, conexiones y educación para familias afectadas por una discapacidad (¡no solo el síndrome de Down!). Las reuniones son facilitadas por Carolyn Tellalian, LCSW. El propósito es conectar nuevos amigos y viejos, obtener valiosas herramientas y apoyo para una variedad de temas relacionados con la crianza de un niño o un adulto con una discapacidad. Preguntas? Póngase en contacto con Ruth en om@dsacc.org

• Cuándo: 6: 00-8: 00 pm, primer miércoles del mes

• Dónde: Virtualmente en ZOOM - Únase a Zoom Meeting https://us02web.zoom.us/j/93289472001?pwd=ajkzMVFrMFg2MDJKdkNNbVA3WXcxUT09

• ID de la reunión: 932 8947 2001

• Código de acceso: 0321 • 5 de noviembre de 2020:

Apoyo para hermanos presentado por un facilitador capacitado de Sib Shop

• 2 de diciembre de 2020: Reunión virtual de vacaciones

• Enero de 2021: sin reunion

South Valley Education and Support Group

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¿Preguntas sobre los próximos eventos?

Póngase en contacto

559.228.0411, o om@dsacc.org

si tiene un adulto joven que se acerca o tiene 18 años.• Jueves 14 de enero de 2021

de 6 a 8:30 p.m.• $ 5 por participante• Regístrese hoy en línea en

https://www.dsacc.org/programs-news/upcoming-programs/

¿Necesita ayuda para comprar pañales, pull ups, o toallitas?¡DSACC está aquí para ayudar! Gracias a una asociación con CVRC, ahora estamos ayudando a familias que no pueden pagarlo, a comprar pañales y toallitas durante la pandemia.

Si necesita ayuda, comuníquese con om@dsacc.org o al 559.228.0411 para ingresar a nuestra lista de distribución.

¿Necesita equipo de protección personal?¡Te tenemos cubierto! Gracias a una increíble donación de nuestros amigos del Consejo Estatal de Discapacidades del Desarrollo, tenemos máscaras faciales, protectores faciales y desinfectante para manos para nuestras familias.

Puede recoger sus suministros en la oficina de DSACC los lunes y martes de 10 a 1 pm, o contáctenos para concertar una reunión alternativa 559.228.0411, om@dsacc.org

o comuníquese con el personal de DSACC en info@dsacc.org, 559.228.0411

Drive-thru Donuts con Santa¡Felices vacaciones! Debido a las continuas preocupaciones de mantener a nuestros seres queridos sanos y seguros, no organizaremos nuestro típico desayuno en persona con Santa. En cambio, estamos emocionados de darle la bienvenida para que conduzca y disfrute de la alegría navideña.

¡Santa y sus elfos se unirán a nosotros para un evento especial en Lithia Subaru para repartir donas, leche, café y REGALOS mientras conduces! ¡También tenemos planeadas algunas sorpresas divertidas!

• Costo: $ 5 por persona (le ofrece una dona, una bebida y manualidades para llevar a casa)

• Cuándo: sábado 5 de diciembre de 2020 de 9: 00-11: 30 am

• Dónde: Lithia Subaru de Fresno, 5200 N Blackstone- Fresno

• Obtenga sus boletos en línea en https://www.aplos.com/aws/events/drive_thru_donuts_with_santa

Taller de curaduría virtualDSACC se complace en dar la bienvenida a Fresno Paralegal Services en un taller para ayudarnos a aprender sobre: ¿Qué es una curatela? Tipos de curaduría, poder legal vs. curaduría, el proceso y mucho más. Este es un taller que no querrá perderse, especialmente

• Cuándo: Segundo martes del mes, 1: 00-2: 00pm

• Dónde:: Virtualmente en ZOOM.

• Comuníquese con Jennifer para conocer los detalles de la reunión. Póngase en contacto por teléfono al 550.228.0411 o por correo electrónico a pd@dsacc.org

Habilidades para prosperar y sobrevivir en la adolescencia y la edad adulta presentado por Dennis McGuire, LCSW, PhD• Sábado, 14 de noviembre de

2020• De 9:00 am a 11:00 am• Registro $25

El Dr. McGuire es un experto en el comportamiento del síndrome de Down con más de 30 años de experiencia en la salud mental y las discapacidades del desarrollo. Los adolescentes y adultos con síndrome de Down pueden sobrevivir y prosperar a pesar de formas concretas de pensamiento y comportamiento, que pueden limitar en gran medida la comunicación, la flexibilidad, la capacidad de adaptación al cambio y a nuevos entornos, así como afectar negativamente su percepción del tiempo y el humor. De hecho, existen enormes beneficios para el pensamiento concreto y también una gran cantidad de estrategias de adaptación que aprovechan otras fortalezas y recursos para manejar esto.

Regístrese en línea en https://www.aplos.com/aws/events/virtual_mental_health_wellness_in_adults_with_down_syndrome_with_dennis_mcguire_lcsw_phd

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What's InsideSkills to Thrive & Survive the Teen & Adult

years- Virtual ConferenceDrive thru Donuts with Santa

Conservatorship Workshop& More

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