Dr. Joan Lluis Vives-Corrons Head of ENERCA project Head of the Red Cell Pathology Unit Hospital...
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Dr. Joan Lluis Vives-Corrons Head of ENERCA project Head of the Red Cell Pathology Unit Hospital Clínic - IDIBAPS of Barcelona “Rare Diseases a model of EU Solidarity” 10 YEARS OF LIFE 2002-2012
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2002-2012. 10 YEARS OF LIFE . Dr. Joan Lluis Vives-Corrons Head of ENERCA project Head of the Red Cell Pathology Unit Hospital Clínic - IDIBAPS of Barcelona. “ Rare Diseases a model of EU Solidarity”. ¿Why ENERCA ?. Visit your doctor…. The doctor does some tests…. You feel ill…. - PowerPoint PPT Presentation
Transcript of Dr. Joan Lluis Vives-Corrons Head of ENERCA project Head of the Red Cell Pathology Unit Hospital...
Dr. Joan Lluis Vives-CorronsHead of ENERCA project Head of the Red Cell Pathology UnitHospital Clínic - IDIBAPS of Barcelona
“Rare Diseases a model of EU Solidarity”
10 YEARS OF LIFE 2002-2012
You feelill…
Visit your doctor… The doctor
does some tests…
…and says: you have anaemia!
The doctorprescribes iron pills…
¿Why ENERCA ?
With the RIGHT
DIAGNOSIS you feel better
ENERCA 2012ENERCA 2012
KNOWLEDGE
DATABASE
BEST
PRACTICE
PATIENT’S EMPOWER MENT
How ENERCA reduces Health Inequalities?
RecommendationsClinical
Patient care
Training courses
European Symposium on Rare Anaemias
Moving forward to the creation of a European Reference Network (ERN) of
Expert Centres on Rare Anaemias
ENERCA WHITE BOOK
THE FUTURE: Networking
Second opinion / Interprofessional support Case manager
Diagnostic orientation
Experts
Experts information
Medical AdviceENERCA has tools and experts for a better diagnosis…Why not sharing knowledge and expertise ?
THE FUTURE: Telemedicine and Telediagnosis
MEDICAL ADVICE
Diagnosis
Collaboration with
KNOWLEDGE
MEDICAL ADVICE
NEW TRENDS
THE FUTURE: Research
The Biomedical Network Research Centre on Rare Diseases (CIBERER) is one of the 9 public consortiums set up at the initiative of the Carlos III Health Institute (ISCIII)-Ministry of Science and Innovation, to act as a reference to coordinate and foster research coordinate and foster research into Rare Diseases in Spain.
Why CIBERER?
The knowledge generated is The knowledge generated is translated from the laboratory translated from the laboratory to clinical practice to clinical practice
Translational ResearchTranslational Research
Mission
• 60 Research Groups 29 Consorted Institutions
• Universities, Hospitals, Research Centers thanks to CIBERER have created an innovative network innovative network structure:structure: offers opportunities of research actions and public-private collaboration
• The centre encloses clinical and basic researchers promoting Cooperative Research in RDCooperative Research in RD
Network Structure
¡THANK YOU!Enerca Coordination Team
Head of Project - J.L. Vives Corrons ([email protected])Project Manager - María del Mar Mañú Pereira ([email protected])
Project Assistant - Laura Olaya Costa ([email protected])
Red Cell Pathology UnitHospital Clinic i ProvincialUniversity of Barcelonac/ Villarroel 170080036-BarcelonaPhone: +34 934515950www.enerca.org
