DMPTool Webinar 6: Health Sciences and the DMPTool (presented by Lisa Federer)
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Logistics for Webinar You Must Call In For Audio: 866-740-1260 access code 9870179# Participants muted Ask questions in chat any time 20 minutes for Q&A Recording & slides, schedule of webinars: blog.dmptool.org/webinar-series DMPTool Webinar Series 6: Health Sciences & the DMPTool Sponsored by IMLS 16 July 2013
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Presentation by Lisa Federer (UCLA) on 16 July 2013 as part of the IMLS-sponsored DMPTool Webinar Series. Description: This webinar will discuss the special needs of health sciences researchers and help you learn how to talk to researchers in the health and medical fields about their data management needs. We will cover NIH Data Sharing Policy and how to write a data management plan that meets NIH’s requirements. After viewing this webinar, participants will understand: who is required to submit a plan; specific information that should be included in a plan; how to use the DMPTool to write an NIH-specific DMP; and where to find additional resources for help.
Transcript of DMPTool Webinar 6: Health Sciences and the DMPTool (presented by Lisa Federer)
Logistics for Webinar
You Must Call In For Audio: 866-740-1260 access code 9870179#
Participants mutedAsk questions in chat any time
20 minutes for Q&A
Recording & slides, schedule of webinars: blog.dmptool.org/webinar-series
DMPTool Webinar Series 6: Health Sciences & the DMPTool Sponsored by IMLS16 July 2013
Health Sciences and the DMPTool
#dmptwebinar
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Lisa Federer | @lisafedererUniversity of California-Los Angeles, Louise M. Darling Biomedical Library
DMPTool Webinar Series 6: Health Sciences & the DMPTool Sponsored by IMLS16 July 2013
28 May Introduction to the DMPTool
4 June Learning about data management: Resources, tools, materials
18 June Customizing the DMPTool for your institution
25 June Environmental Scan: Who's important at your campus
9 July Promoting institutional services; EZID Outreach Made Simple!
16 July Health Sciences & DMPTool - Lisa Federer, UCLA
23 July Digital humanities and the DMPTool - Miriam Posner, UCLA
13 Aug Data curation profiles and the DMPTool – Jake Carlson, Purdue
How to give the data management sales pitch to various audiences
Other tools and resources that work with/complement the DMPTool
Beyond funder requirements: more extensive DMPs
Case studies 1 – How librarians have successfully used the tool
Case studies 2 – How librarians have successfully used the tool
Outreach Kit Introduction
Certification program introduction
blog.dmptool.org/webinar-series
Road Map
Goals of this Webinar
NIH policy overview
What to include in a plan
Special considerations
DMPTool and NIH Plans
Resources & more info
From Flickr– Username: Bastian
Webinar Goals
• Introduce requirements relevant to health sciences researchers
• Provide an overview of info to include in plans
• Demonstrate how to use the DMPTool to support NIH
• Point to resources for further help
From Flickr– Username: AG Gilmore
Road Map
Goals of this Webinar
NIH policy overview
What to include in a plan
Special considerations
DMPTool and NIH Plans
Resources & more info
From Flickr– Username: Bastian
NIH Sharing Policies
• NIH Data Sharing Policy
• NIH Grants Policy Statement (2.3.11.2.3 Access to Research Data)
• For full list of NIH policies, see http://grants.nih.gov/grants/sharing.htm
Data Sharing Policy - Applicability
• applicants seeking >$500,000 in annual direct costs
• applications submitted after October 1, 2003
• final research data for research purposes
• all types of research data (clinical/basic science), especially unique data
From Flickr– Username: bengrey
Data Sharing Policy - Applicability
• applicants seeking >$500,000 in annual direct costs
• applications submitted after October 1, 2003
• final research data for research purposes
• all types of research data (clinical/basic science), especially unique data
From Flickr– Username: bengrey
Data Sharing Policy - Applicability
• applicants seeking >$500,000 in annual direct costs
• applications submitted after October 1, 2003
• final research data for research purposes
• all types of research data (clinical/basic science), especially unique data
From Flickr– Username: bengrey
Data Sharing Policy - Applicability
• applicants seeking >$500,000 in annual direct costs
• applications submitted after October 1, 2003
• final research data for research purposes
• all types of research data (clinical/basic science), especially unique data
From Flickr– Username: bengrey
Components of the NIH Application
• Data Sharing Plan (or explanation of why data sharing is not possible)
• Budget/Budget Justification
• Background and Significance Section
• Human Subjects Section
From Flickr– Username: Raphael Moser
Components of the NIH Application
• Data Sharing Plan (or explanation of why data sharing is not possible)
• Budget/Budget Justification
• Background and Significance Section
• Human Subjects Section
From Flickr– Username: Raphael Moser
Road Map
Goals of this Webinar
NIH policy overview
What to include in a plan
Special considerations
DMPTool and NIH Plans
Resources & more info
From Flickr– Username: Bastian
NIH Guidance
Data Sharing Plan
• schedule for sharing
• data formats• documentation
and/or analytic tools provided with datasets
• data-sharing agreement
• mode of data sharing From Wikimedia Commons – German Federal
Archives
Data Sharing Plan
• schedule for sharing
• data formats• documentation
and/or analytic tools provided with datasets
• data-sharing agreement
• mode of data sharing From Wikimedia Commons – German Federal
Archives
Data Sharing Plan
• schedule for sharing
• data formats• documentation
and/or analytic tools provided with datasets
• data-sharing agreement
• mode of data sharing From Wikimedia Commons – German Federal
Archives
Data Sharing Plan
• schedule for sharing
• data formats• documentation
and/or analytic tools provided with datasets
• data-sharing agreement
• mode of data sharing From Wikimedia Commons – German Federal
Archives
Data Sharing Plan
• schedule for sharing
• data formats• documentation
and/or analytic tools provided with datasets
• data-sharing agreement
• mode of data sharing From Wikimedia Commons – German Federal
Archives
Schedule for Sharing
• “timely fashion”• release no later
than acceptance for publication of main findings
• for epidemiological or longitudinal studies, release data in “waves” as available
From Flickr– Username: Kate Tomlinson
Schedule for Sharing
• “timely fashion”• release no later
than acceptance for publication of main findings
• for epidemiological or longitudinal studies, release data in “waves” as available
From Flickr– Username: Kate Tomlinson
Schedule for Sharing
• “timely fashion”• release no later
than acceptance for publication of main findings
• for epidemiological or longitudinal studies, release data in “waves” as available
From Flickr– Username: Kate Tomlinson
Data Formats• proprietary vs.
open formats• consider formats
required by archives
• rationale for why this format was selected
Data Formats• proprietary vs.
open formats• consider formats
required by archives
• rationale for why this format was selected
Data Formats• proprietary vs.
open formats• consider formats
required by archives
• rationale for why this format was selected
Data Documentation
metadata schemas
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codebook
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Mikeanalytic tools
Data-sharing Agreements
• outline requirements for ensuring privacy and confidentiality
• stipulate provisions for how shared data may be used
• may include penalties for violating agreement
From Wikimedia– Username: Lucas
Data-sharing Agreements
• outline requirements for ensuring privacy and confidentiality
• stipulate provisions for how shared data may be used
• may include penalties for violating agreement
From Wikimedia– Username: Lucas
Data-sharing Agreements
• outline requirements for ensuring privacy and confidentiality
• stipulate provisions for how shared data may be used
• may include penalties for violating agreement
From Wikimedia– Username: Lucas
Modes for Data Sharing
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under the auspices of the PI in a data archive
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in a data enclave
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Budget and Budget Justification
• include request for funds for sharing/archiving
• PIs may need assistance on estimating costs for data preparation and archiving
From Flickr– Username: 401(K) 2013
Budget and Budget Justification
• include request for funds for sharing/archiving
• PIs may need assistance on estimating costs for data preparation and archiving
From Flickr– Username: 401(K) 2013
Road Map
Goals of this Webinar
NIH policy overview
What to include in a plan
Special considerations
DMPTool and NIH Plans
Resources & more info
From Flickr– Username: Bastian
Privacy of Human Subjects
• strip identifiers from data
• indirect identifiers and “deductive disclosure”
• restricted data enclaves
• data-sharing agreements
?
From Wikimedia Commons– National Cancer Institute
Privacy of Human Subjects
• strip identifiers from data
• indirect identifiers and “deductive disclosure”
• restricted data enclaves
• data-sharing agreements
?
From Wikimedia Commons– National Cancer Institute
Privacy of Human Subjects
• strip identifiers from data
• indirect identifiers and “deductive disclosure”
• restricted data enclaves
• data-sharing agreements
?
From Wikimedia Commons– National Cancer Institute
Privacy of Human Subjects
• strip identifiers from data
• indirect identifiers and “deductive disclosure”
• restricted data enclaves
• data-sharing agreements
?
From Wikimedia Commons– National Cancer Institute
Withholding Proprietary Data
• Small Business Innovation Research (SBIR) grantees = up to 4 years
• Private sector co-funding = 30-60 days
From Flickr– Username: m thierry
Withholding Proprietary Data
• Small Business Innovation Research (SBIR) grantees = up to 4 years
• Private sector co-funding = 30-60 days
From Flickr– Username: m thierry
Road Map
Goals of this Webinar
NIH policy overview
What to include in a plan
Special considerations
DMPTool and NIH Plans
Resources & more info
From Flickr– Username: Bastian
Creating a plan with the DMPTool
Road Map
Goals of this Webinar
NIH policy overview
What to include in a plan
Special considerations
DMPTool and NIH Plans
Resources & more info
From Flickr– Username: Bastian
Resources
• NIH Data Sharing Overview: http://grants.nih.gov/grants/policy/data_sharing/
• NIH Data Sharing Policy and Implementation Guidance: http://grants.nih.gov/grants/policy/data_sharing/data_sharing_guidance.htm
• Full list of NIH sharing policies by Institute: http://www.nlm.nih.gov/NIHbmic/nih_data_sharing_policies.html
• Example data sharing agreements from NCI: https://wiki.nci.nih.gov/display/DSIC/Data+Sharing+Agreements
• Sample plan from NIH (Word doc): http://grants.nih.gov/grants/sharing_example_data_sharing_plan.doc
blog.dmptool.org/webinar-series
From Flickr by Jeff Keacher
Next week: Digital Humanities & the DMPToolPresenter: Miriam Posner, UCLA
Tuesday 23 July @ 10am PT
Register now!
blog.dmptool.org/webinar-series/
28 May Introduction to the DMPTool
4 June Learning about data management: Resources, tools, materials
18 June Customizing the DMPTool for your institution
25 June Environmental Scan: Who's important at your campus
9 July Promoting institutional services; EZID Outreach Made Simple!
16 July Health Sciences & DMPTool - Lisa Federer, UCLA
23 July Digital humanities and the DMPTool - Miriam Posner, UCLA
13 Aug Data curation profiles and the DMPTool – Jake Carlson, Purdue
How to give the data management sales pitch to various audiences
Other tools and resources that work with/complement the DMPTool
Beyond funder requirements: more extensive DMPs
Case studies 1 – How librarians have successfully used the tool
Case studies 2 – How librarians have successfully used the tool
Outreach Kit Introduction
Certification program introduction
blog.dmptool.org/webinar-series
