DIGITAL HEALTH TECHNOLOGY wellness patient-centred care · DIGITAL HEALTH TECHNOLOGY wellness...

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DIGITAL HEALTH TECHNOLOGY wellness patient-centred care Dr Gareth Kantor Private Practice Anaesthetist Hon Lecturer, University of Cape Town Assistant Professor, Case Western Reserve University, Cleveland, OH, USA Clinical Consultant – Discovery Health, Insight

Transcript of DIGITAL HEALTH TECHNOLOGY wellness patient-centred care · DIGITAL HEALTH TECHNOLOGY wellness...

DIGITAL HEALTH TECHNOLOGY wellness

patient-centred care

Dr Gareth Kantor

Private Practice Anaesthetist

Hon Lecturer, University of Cape Town

Assistant Professor, Case Western Reserve University, Cleveland, OH, USA

Clinical Consultant – Discovery Health, Insight

Disclosures

Paid Consultant to Insight, Discovery

No commercial interests in technologies

Opinions are my own

vanishing hospitals

wearable and implantable sensors

predict heart attacks

Artifical Intelligence diagnosis of....

remote diagnosis of infections

http://techonomy.com/2016/11/at-techonomy-2016-a-vision-of-disrupted-healthcare/

unlimited advances

Dr. Eric Topol

“DIGITAL HEALTH”

TYPES OF DATA

Medication

Demographics

Encounters

Diagnoses

Procedures

Tests (ordered)

Tests (results)

Genetics

Social history

Family history

Symptoms

Lifestyle

Socioeconomic

Social network

Environment

STRUCTURED DATA UNSTRUCTURED DATA

Medication filled

Medication instructions

Allergies

Out-of-pocket expenses

Chief complaint

Differential diagnosis

DIGITAL NOTES

REPORTS

PHYSICAL EXAMINATIONS

PAPER NOTES

TRACINGS IMAGES

Medication prescribed

Dose Route

NAPPI ATC

HL7

Visit type and time

SNOMED ICD-10

CPT RPL

LOINC

ECG

Lab values, vital signs

SNPs, NGS

Tobacco/alcohol use

Pathology

Radiology

HEALTH FACILITY RECORDS

PHARMACY

CLAIMS

REGISTRIES & CLINICAL

TRIALS

• Easier to link to individuals

KEY

Kohane et al. JAMA June 25, 2014; 311(24)

HEALTH FACILITY RECORDS

PHARMACY

REGISTRIES & CLINICAL

TRIALS

CLAIMS

MUCH MORE DATA

HEALTH FACILITY RECORDS

80-90% unstructured

TYPES OF DATA

Medication

Demographics

Encounters

Diagnoses

Procedures

Tests (ordered)

Tests (results)

Genetics

Social history

Family history

Symptoms

Lifestyle

Socioeconomic

Social network

Environment

CREDIT CARD

PURCHASES

STRUCTURED DATA UNSTRUCTURED DATA

OTC Medication

Medication taken

Diaries

CAMs

Police records

Ancestry.com

Indirect from OTC purchases

Fitness club memberships, grocery purchases

Property sites LinkedIn

Facebook friends, Twitter hashtags

23andMe.com

Employee sick days

Death records

• Easier to link to individuals

KEY

• Harder to link to individuals

Kohane et al. JAMA June 25, 2014; 311(24)

PERSONAL HEALTH

RECORDS

Patientslikeme.com

HOME Treatments Monitors

Tests

SOCIAL MEDIA

Blogs

Tweets

Facebook postings

HEALTH FACILITY RECORDS

PHARMACY

REGISTRIES & CLINICAL

TRIALS

CLAIMS

HEALTH FACILITY RECORDS

Doctor “Old”

Medicine Patient

Doctor Evidence-based

MEDICINE Patient

“Evidence” science: what works (population level)

https://www.cbinsights.com/blog/digital-health-medicine-market-map-company-list/

13 Topol E. Individualized Medicine from Prewomb to Tomb. Cell 157 (2014): 241–253

Adapted from: Melanie Swan, MS Futures Group

Genome

Microbiome

Transcriptome

Metabolome

Proteome

Exposome

Personal Health History

Family Health History

Lab Tests

Demographics

Questionnaires

Apps

Devices / Sensors

Images

Traditional Data Quantified Self ‘Omics

>165,000 apps (2015)

INTERNET OF THINGS

IMSHealth 2015

“Discover the right app from a curated, evidence-based selection and immediately ‘prescribe’ it directly to a patient’s mobile device.”

“Your phone will be the repository of your medical record, the means by which you collaborate with your provider, and the vehicle for submission of data to your care team.”

The desktop is dead. The phone is the future.

John Halamka, CIO, Beth Israel Deaconess Medical Center

DIY cellphone. David Mellis MIT

Cell 163, 1079–1094, November 19, 2015

Dietary Interventions Induce Consistent

Alterations to the Gut Microbiota Composition

High Interpersonal Variability in the

Postprandial Glycemic Response to the Same Meal

Cell 163, 1079–1094, November 19, 2015

“approaches that grade

dietary ingredients as

universally ‘good’ or ‘bad’

based on their average

PPGR in the population may

have limited utility for an

individual.”

Cell 163, 1079–1094, November 19, 2015

MEDICAL GRADE DEVICES

(FDA-approved)

AbStats

Proteus

AliveCor

GENERAL WELLNESS DEVICES

Fitbit

Apple Watch

PERSONAL SMOKING

CESSATION THERAPY

‘P4 MEDICINE’

predictive

preventive

personalized

participatory

“technoscientific holism”

each person’s whole life process is quantifiable and

controllable

‘the medicalization of health and life itself’

Med Health Care and Philos (2016) 19:307–323

http://mygihealth.io/

“Real-Life” Examples of Why Digital Health is Really Hard

#1: Missteps with step counts

#2: “I’m on house arrest” #3: The “Virtual” virtual reality study

#4: Murphy’s Law

“Sorry, not interested in your experiment” Image: https://au.news.yahoo.com/

• Lost devices • Can’t charge • Even colors matter

“Expect things to go wrong when device meets human. All the time.”

STEPS PAIN

Stroke. 2011 Aug;42(8):2246-50

Top 10 Reasons Doctors Fear Digital Health

1. TIME

2. LIABILITY

9. EVIDENCE

4. COST

5. GENERATION GAP

6. SECURITY

7. WRONG PROBLEM

8. HYPE

3. BEHAVIOUR

Dr. Brennan Spiegel

“there are not large short-term increases or decreases in health care costs or utilization associated with monitoring chronic health conditions using mobile health or digital medicine technologies” Bloss et al. (2016). PeerJ 4:e1554; DOI 10.7717/peerj.1554

10. VALUE

Five themes in 2016: 1. Beyond step counting 2. Better design

3. Smart clothing 4. Advancing sensor technology 5. Reimbursement constraints

Wearables Weekly

Gillian Christie

https://www.youtube.com/watch?v=cFyd2Xdx-L8

Ezekiel Emanuel. Techo-Skeptic: Being Realistic About How Technology Will Improve Healthcare.

Engage Get data Transmit

data

Use data in a healthcare

system

Enable sustained behavior change

Behavior change leads

to health improvement

Improvement saves money

eHealth has unique capability to solve the challenges of making the health system safe, effective and sustainable

Enrico Coiera

“e-HEALTH EXCEPTIONALISM”

eHealth is indeed powerful but just like any other system intervention, it faces huge system barriers

Start with the problem we want to solve rather

than the technology we want to build

Enrico Coiera

• 6% of public hospitals and clinics met 70% pass mark - Office of Health Standards Compliance

• State sector: R35 – 49 billion owed / claimed

• R650K obstetrics premiums

30% chronic disease prevalence (2014)

40-45% Scheme spend is on patients with hypertension & diabetes

"Hospitals have steadily increased their admission rates over the past five years ….. a report released on Thursday by the Competition Commission’s health market inquiry has found.”

in-hospital costs rose 10.3% -11.4% per beneficiary per year.

Best Care at Lower Cost: The path to continuously learning health care in America. National Academies Press

Time and motion study of ~150 primary care encounters (doctor-patient)

Christian Terwiesch , Wharton School . The efficiency of primary care http://www.youtube.com/watch?v=q9nw9IzFjBA#t=843

Status quo

EXTENDER DOCTOR

ONSITE

REMOTELY

150 episodes categorised by experienced primary care doctors viewing the videotapes

Christian Terwiesch, Wharton School . The efficiency of primary care http://www.youtube.com/watch?v=q9nw9IzFjBA#t=843

Status quo Extender onsite

e.g. discuss weight loss

Emails and follow-up calls

e.g. do you want to come in for your follow-up appointment or talk on the

phone?

Extender calls

e.g. do you need refills

EXTENDER DOCTOR

ONSITE

REMOTELY

Christian Terwiesch, Wharton School . The efficiency of primary care http://www.youtube.com/watch?v=q9nw9IzFjBA#t=843

Status quo Extender onsite

e.g. discuss weight loss

Emails and follow-up calls

e.g. do you want to come in for your follow-up appointment or talk on the

phone?

Extender calls

e.g. do you need refills?

EXTENDER DOCTOR

ONSITE

REMOTELY

19% 3%

59% 18%

22%

78%

78% 21%

Christian Terwiesch , Wharton School . The efficiency of primary care http://www.youtube.com/watch?v=q9nw9IzFjBA#t=843

• 27.0% direct clinical face time • 49.2% time EHR and desk work

• 1 hr clinical face time : 2 hr EHR/desk work • 1-2 hours personal time each night

computer/clerical work

Registrars

13-16%

“The finding that concerned us most was the small amount of time spent with patients.”

Medical Registrars

42-45%

20%

“spent surprisingly little time with patients” …this amount of time was less than we predicted and hoped it would be.”

J Gen Intern Med. 2013;28(8):1042-1047

Czernik. JAMA June 14, 2016 315(22)

N Engl J Med 1961;264(9):439-443

1959 1988 2012 Medical Registrars

40% with computer

12%

“spent a minority of time directly caring for patients … which may affect the quality of the patient-physician relationship and the quality of care delivered.”

Context

Time clerking

Time with patients

Primary care is incredibly inefficient for patients!

Christian Terwiesch , Wharton School . The efficiency of primary care http://www.youtube.com/watch?v=q9nw9IzFjBA#t=843

4h

PATIENTS

Opened at least one note > 80%

Better understanding of health and medical conditions Taking better care of themselves Doing better with taking meds Feeling more in control

> 2/3

Shared a note with someone else ~ 20%

Availability of notes would influence choice of providers

> 85%

Confused, worried, or offended by what they read

1-8%

PHYSICIANS

More time answering patient questions outside of visits

3%

More time writing or editing notes 11%

Email volume No change

Changed the way they wrote about cancer, mental health, substance misuse, or obesity

~ 20%

Opted to continue 99%

BMJ February 10, 2015;350:g7785 NEJM 2014; 370:6-8

TYPES OF DATA

Medication

Demographics

Encounters

Diagnoses

Procedures

Tests (ordered)

Tests (results)

Genetics

Social history

Family history

Symptoms

Lifestyle

Socioeconomic

Social network

Environment

CREDIT CARD

PURCHASES

STRUCTURED DATA UNSTRUCTURED DATA

OTC Medication

Medication taken

Diaries

CAMs

Police records

Ancestry.com

Indirect from OTC purchases

Fitness club memberships, grocery purchases

Property sites LinkedIn

Facebook friends, Twitter hashtags

23andMe.com

Employee sick days

Death records

• Easier to link to individuals

KEY

• Harder to link to individuals

Kohane et al. JAMA June 25, 2014; 311(24)

PERSONAL HEALTH

RECORDS

Patientslikeme.com

HOME Treatments Monitors

Tests

SOCIAL MEDIA

Blogs

Tweets

Facebook postings

HEALTH FACILITY RECORDS

PHARMACY

REGISTRIES & CLINICAL

TRIALS

CLAIMS

HEALTH FACILITY RECORDS

DATA FROM ME vs

DATA ABOUT ME

Patient

Experience

Social

Media

Functional &

Quality Life

Measures

Patient-reported

Outcomes

Measures

Special Purpose

Surveys

Real-time

Assessment

(SMS)

Doctor PRECISION MEDICINE Person

Phenotype Genotype

Evidence

Decision Support

still evidence-based

• social/behavioural • engagement/activation

• human • computer

Preferences Values Goals

Care System

Framework for Clinical Excellence

• Solve real problems

• Avoid blind faith in data, big or small

• FOCUS ON.. • Flow • Teams

• PARTNERSHIP • People

“Just because e-Health is hard does not mean we can ignore it”.

Enrico Coiera

Image: Healthcare IT News

I understand all aspects of my care.

My doctors communicate with each other about my care.

My care system shares and receives information to improve care for me and others.

I can easily access information about health care that is valuable to me.

CARE SYSTEM

PUBLIC

Image: www.dreamstime.com

quality, safety, value

competence, joy, pride individuals, populations

Adapted from: Batalden P. Qual Saf Health Care 2007;16:2–3

Better patient (and population)

outcomes

Better system

performance

Better professional development ?

? ?

Framework for Clinical Excellence

TYPES OF DATA

Medication

Demographics

Encounters

Diagnoses

Procedures

Tests (ordered)

Tests (results)

Genetics

Social history

Family history

Symptoms

Lifestyle

Socioeconomic

Social network

Environment

CREDIT CARD

PURCHASES

STRUCTURED DATA UNSTRUCTURED DATA

OTC Medication

Medication taken

Diaries

CAMs

Medication filled

Police records

Ancestry.com

Indirect from OTC purchases

Fitness club memberships, grocery purchases

Property sites LinkedIn

Facebook friends, Twitter hashtags

23andMe.com

Employee sick days

Death records

Medication instructions

Allergies

Out-of-pocket expenses

Chief complaint

Differential diagnosis

DIGITAL NOTES

REPORTS

PHYSICAL EXAMINATIONS

PAPER NOTES

TRACINGS IMAGES

Medication prescribed

Dose Route

NAPPI ATC

HL7

Visit type and time

SNOMED ICD-10

CPT RPL

LOINC

ECG

Lab values, vital signs

SNPs, NGS

Tobacco/alcohol use

Pathology

Radiology

HEALTH FACILITY RECORDS

PHARMACY

CLAIMS

REGISTRIES & CLINICAL

TRIALS

• Easier to link to individuals

KEY

• Harder to link to individuals

Kohane et al. JAMA June 25, 2014; 311(24)

PERSONAL HEALTH

RECORDS

Patientslikeme.com

HOME Treatments Monitors

Tests

SOCIAL MEDIA

Blogs

Tweets

Facebook postings

DATA FROM ME vs

DATA ABOUT ME

GOOGLE GLASS

DIGITAL PAPER DIGITAL PEN

VOICE RECOGNITION

NATURAL LANGUAGE PROCESSING

MEDICAL SCRIBE

CONCEPT ENGINE-DRIVEN INTERFACE

In 1959, Payson et al lamented that the

intern was spending “barely enough time

with his patient to establish an

acquaintance, much less a relation.”

For the first time, these moments of indirect care can

become opportunities for patient education and shared

decision-making.

While some may worry that this will lead to less eye

contact and further harm to the patient-physician

relationship, there are data that show that, used

effectively, computers can improve patient-physician

communication.

The EHR allows us an

unprecedented opportunity: the

ability to take some of that

“indirect patient care,” work

previously done trapped in

radiology reading rooms and

hovering over charts at nursing

stations, and move it to the

bedside.

Czernik, Z. JAMA June 14, 2016 Volume 315, Number 22

In an observational study of outpatient

visits, Frankel and colleagues7 found that physicians were

able to use computer screens to share information

visually, clarify assessments, and engage patients

effectively. Based on his earlier data as

well as the work of others, Frankel8 recently proposed a

standardized practice for enriching patient-physician

communication using the computer.

Source: Chuck Webster ehrworkflow.com Image source: www.doctordisability.com

• $$$ oWho pays vs. who benefits

oVolume-based payment (FFS)

• Value (process improvement)

• Leadership

• Design (usability)

• Interoperability

• Evidence

• “Ethics”

quality, safety, value

competence, joy, pride individuals, populations

Source: Batalden P. Qual Saf Health Care 2007;16:2–3

Better patient (and population)

outcomes

Better system

performance

Better professional development

EVERYONE

PATIENT DATA

PRACTICE DATA

Ownership Access

Control of access

“CARE SYSTEM”

etc

• 12 month study at 3 sites - urban and rural • 105 primary care physicians and >19 000 patients

BMJ February 10, 2015;350:g7785 NEJM 2014; 370:6-8

After a visit, secure message to the patient: the note is available

Patient can log in to secure portal and read the note

Before the next scheduled visit, message encourages patient to review the note

0

2 000

4 000

6 000

8 000

10 000

12 000

14 000

16 000

100

700

1 3

00

1 9

00

2 5

00

3 1

00

3 7

00

4 3

00

4 9

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5 5

00

6 1

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6 7

00

7 3

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7 9

00

8 5

00

9 1

00

9 7

00

10 3

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10 9

00

11 5

00

12 1

00

12 7

00

13 3

00

13 9

00

14 5

00

15 1

00

15 7

00

16 3

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16 9

00

17 5

00

18 1

00

18 7

00

19 3

00

19 9

00

Wellness and prevention | The Quantified Self

Americans who track at least one health parameter using a wearable device

25%

People’s behaviour change when incentives are available

Daily step count

Incentive for reaching 10 000 steps per day

Incentive for reaching 12 500 steps per day

Management of chronic conditions

No technological intervention With technological intervention

Contact with the health system is limited to a doctor’s visit 3 or 4 times per year

Portable or wearable bio-sensors can capture biometric data between provider visits and over extended time periods for review and action by patients, their doctors and health care teams

Range of measurements potentially available:

• blood pressure • heart rate and rhythm • heart rate variability • cardiac output • stroke volume • respiratory rate • oxygen saturation and

air flow • sleep pattern

• galvanic skin response • body temperature • intraocular pressure • blood glucose • brain waves • intracranial pressure • muscle movements • falls

Electronic Health Records can help us work smarter, not harder

What we really need is not technology that replaces doctors, but technology enabled health systems that enhance quality, alter the cost curve, support practitioners and do not get in the way of the human touch

Medication history Telemetric Glucose

Monitoring Treatment timeline Episode of care

Technology exposes us to an exciting new world

It can either be seen as a…

Threat

Opportunity

Source: Brent James. Health Affairs June 2011;30(6)

1,400 clinical processes !

• Administrative systems contain 50-60% of the data needed for process improvement

e-Health → health system transformation

non condition-specific

condition-specific

related to service quality

administrative processes

104 key processes ~ 95% of clinical care

“The health care system is perfectly designed to achieve exactly the results it gets”.

Source: Paul Batalden

“Patient-Centred Medical Home”

• Continuous healing relationship • Whole person orientation

• Family and community context • Comprehensive care

Family Medicine Core Values

Practice Organisation

Health Information Technology

Quality Measures

Patient Experience

Health Information Technology

• Full patient data in electronic health records + scripting, lab results, etc

• Support coordinated care with individualised care plans

• Clinician/patient structured email interactions

• Population segmentation & management

Adapted for SA from

CLINICAL LEADERSHIP

“Patient Engagement”

Increase patient access to their health information

Enable patients to take action with their information

Shift attitudes to support patient-doctor partnership

Source: Office of the National Coordinator for Health IT

Action

Attitudes

Access

e-Health is difficult

•Complex interventions in a complex system

•What works locally may not work everywhere

•Quickly obsolete (needs change)

Source: Enrico Coiera

Not technical, sociotechnical

“The biggest information repository in most organisations [is in] the heads of those who work there….the largest communication network is the web of conversations that binds them”

Enrico Coiera

Environmental sensors can quantify and track exposure to radiation, air pollution, pollen count, pesticides in food, and other important threats to health

Sensors worn by newborns in socks or clothing can wirelessly alert parents to changes in sleep, heart rate, or breathing

Sensors that measure breath compounds such as nitric oxide or organic chemicals may enable the measurement of lung function or the diagnosis of certain cancers

Nanochips embedded in the bloodstream can potentially monitor the appearance of tumour DNA, immune activation, or genomic signals that may indicate a heart attack or stroke

A smartphone’s microphone can be used to quantify components of lung function, analyze voice quality to gauge mood or make the diagnosis of Parkinson’s disease or schizophrenia

“At once it struck me what quality went to form a Man of Achievement . . . when a man is capable of being in uncertainties, mysteries, doubts, without any irritable reaching after fact and reason.” — John Keats, December 18171

“As we move further into the 21st century, it seems clear that technology will perform the routine tasks of medicine for which algorithms can be developed. Our value as physicians will lie in the gray-scale space, where we will have to support patients who are living with uncertainty — work that is essential to strong and meaningful doctor–patient relationship”

Registrars

13-16%

<10 mins

“The finding that concerned us most was the small amount of time spent with patients.”

Medical Registrars

42-45%

20%

17-28 mins

3.5 mins

“spent surprisingly little time with patients” …this amount of time was less than we predicted and hoped it would be.”

2012 Context Medical Registrars

Time clerking 40% with computer

Time with patients 12%

Admission 10-24 mins

Follow-up in hospital 7.7 mins

“interns … spent a minority of time directly caring for patients … which may affect the quality of the patient-physician relationship and the quality of care delivered.”

J Gen Intern Med. 2013;28(8):1042-1047 Czernik. JAMA June 14, 2016 315(22)

N Engl J Med 1961;264(9):439-443

1959 1988

My speculation is that this technology and system adaptation will allow for a 5x5 improvement across healthcare. • 5x reduction in doctor work, enabling doctors to focus on patient care, research,

or new things not yet imagined. • 5x increase in research, as medicine shifts do being more data-driven and all

patients’ data is online (in a secure, anonymized way) to be used for studies. • 5x lower error rate since the majority of conditions will have computer systems

guiding them towards the correct results by default. • 5x faster diagnosis due to the advent of consumer-driven systems (diagnosis

from your home) as well as fast and sophisticated hardware and software systems replacing the current back-and-forth and communication between all the various entities of the healthcare system (not just your physician, but your nurses, PCP’s, insurers, etc…).

• And lastly, I speculate that healthcare will be 5x cheaper, although this will require a very conscious effort in ensuring we do not promote technological systems that just add on and increase the cost of care.

http://www.khoslaventures.com/wp-content/uploads/20-Percent-Doctor-Included.pdf