Department of Human Services … · projects(raisingover$700),andattended...

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Independent Living means different things to different people. For those steeped in the Independent Living Movement, it means having control of one’s life. Living independently does not mean however, doing everything for one’s self, but being in control of decisions made about one’s self. This is the foundation from which Centers for Independent Living (CILs) are founded. A Center for Independent Living is a private, non- residential, community-based, not-for-profit, consumer- controlled organization that is mandated to provide four core services: Advocacy, Peer Support, Independent Living Skills Development and Information and Referral. Staff serve as role models, demonstrating that people with disabilities can be independent and productive. Their knowledge, support and guidance help to create informed choice options that give consumers the confidence to pursue their own independence and to realize their dreams and aspirations. In contrast to more traditional medical models in which the “client” or “patient” is highly dependent on “experts,” a CIL’s emphasis is on “consumer” self-direction and control. CILs promote a positive self-image, which is important to developing significant peer relationships. What truly distinguishes and set CILs apart from other organizations is the fact that consumer control exists on every level, where at least fifty one percent of staff, management staff and the Board of Directors must be persons with disabilities. Having consumer control in decision-making positions is paramount to maintaining the integrity of what a CIL should and must be. The most challenging barrier however, for people with disabilities to overcome is attitude. To gradually dismantle this barrier, CILs advocate for changes in legislation, provide disability awareness-related activities, develop technical assistance initiatives regarding the Americans with Disabilities Act (ADA) and work in a committed fashion to deinstitutionalize people with disabilities who can and want to live independently. Clearly, CILs are not social service agencies, but agents for social change. Independent Living 2008 Annual Report State of Illinois Pat Quinn, Governor Department of Human Services Carol L. Adams, Ph.D., Secretary

Transcript of Department of Human Services … · projects(raisingover$700),andattended...

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Independent Living means different things to differentpeople. For those steeped in the Independent LivingMovement, it means having control of one’s life. Livingindependently does not mean however, doing everythingfor one’s self, but being in control of decisions made aboutone’s self. This is the foundation from which Centers forIndependent Living (CILs) are founded.

A Center for Independent Living is a private, non-residential, community-based, not-for-profit, consumer-controlled organization that is mandated to provide fourcore services: Advocacy, Peer Support, Independent LivingSkills Development and Information and Referral. Staffserve as role models, demonstrating that people withdisabilities can be independent and productive. Theirknowledge, support and guidance help to create informedchoice options that give consumers the confidence topursue their own independence and to realize their dreamsand aspirations.

In contrast to more traditional medical models in whichthe “client” or “patient” is highly dependent on “experts,”a CIL’s emphasis is on “consumer” self-direction andcontrol. CILs promote a positive self-image, which isimportant to developing significant peer relationships.

What truly distinguishes and set CILs apart from otherorganizations is the fact that consumer control exists onevery level, where at least fifty one percent of staff,management staff and the Board of Directors must bepersons with disabilities. Having consumer control indecision-making positions is paramount to maintainingthe integrity of what a CIL should and must be. The mostchallenging barrier however, for people with disabilities toovercome is attitude. To gradually dismantle this barrier,CILs advocate for changes in legislation, provide disabilityawareness-related activities, develop technical assistanceinitiatives regarding the Americans with Disabilities Act(ADA) and work in a committed fashion todeinstitutionalize people with disabilities who can andwant to live independently.

Clearly, CILs are not social service agencies,but agents for social change.

Independent Living 2008 Annual Report

State of IllinoisPat Quinn, GovernorDepartment of Human ServicesCarol L. Adams, Ph.D., Secretary

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Illinois Network of Centers for Independent LivingAccess Living of Metropolitan Chicago (AL)

Page 5

Advocates for Access (AFA)Page 6

DuPage Center for Independent Living (DCIL)Page 6

FITE Center for Independent Living (FITE)Page 7

Illinois-Iowa Center for Independent Living (IICIL)Page 7

Illinois Valley Center for Independent Living (IVCIL)Page 8

Impact Center for Independent Living (IMPACT)Page 8

Jacksonville Area Center for Independent Living (JACIL)Page 9

Lake County Center for Independent Living (LCCIL)Page 9

Living Independence For Everyone (LIFE)Page 10

LINC, Inc. (LINC)Page 10

Northwestern Illinois Center for Independent Living (NICIL)Page 11

Opportunities for Access (OFA CIL)Page 11

Options Center for Independent Living (OPTIONS)Page 12

Persons Assuming Control of their Environment (PACE)Page 12

Progress Center for Independent Living (PCIL)Page 13

Regional Access and Mobilization Project (RAMP)Page 13

Southern Illinois Center for Independent Living (SICIL)Page 14

Soyland Access for Independent Living (SAIL)Page 14

Springfield Center for Independent Living (SCIL)Page 15

Stone-Hayes Center for Independent Living (STONE-HAYES)Page 15

West Central Illinois Center for Independent Living (WCICIL)Page 16

Will/Grundy Center for Independent Living (WGCIL)Page 16

1980 - FEDERALAccess Living

1985 - STATESCIL and Peoria CIL

(now AFA)1987 - FEDERALIICIL and WGCIL

1989 - STATEOPTIONS

1991 - FEDERAL - LCCILSTATE - DCIL and OFA CIL

1981 - FEDERALRAMP

1986 - STATESICIL, IMPACT, LIFE, PACE, andFox River Valley (now FITE)

1988 - STATEPCIL and LINC

Establishment ofCenters for

Independent Livingand their funding source

1980 - 2009

1980 1981 1982 1983 1984 1985 1986 1987 1988 1989 1990 1991 1992 1993

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February 2009

Dear Colleague:

On behalf of the Department of Human Services (DHS), Division of Rehabilitation Services (DRS), weare pleased to share this redesigned version of the 2008 Annual Report on Centers for IndependentLiving in Illinois. This new report would not have been possible without the active cooperation andsupport of the Illinois Network of Centers for Independent Living (INCIL) whose numerouscontributions make this year’s report a vivid record of what independent living means as it relates tothe Disability Rights Movement.

Illinois’ 23 Centers for Independent Living (CILs), in accordance with their mission, provided servicesto 117,076 Illinois citizens with disabilities in federal fiscal year 2008. These citizens receivedinformation and referral as well as direct services in their communities from CIL staff. The majorityof staff are persons with disabilities who demonstrate on a daily basis that persons with disabilitiescan, and do, lead independent and productive lives. Many of the successes described in this reportbelong to them.

We also commend the Centers for the groundbreaking work on the Community ReintegrationProgram. Their tireless efforts have increased the quality of life of more than 1,500 individuals andsaved the state millions of dollars over the past decade. In a similar vein, they have showntremendous leadership in working with DHS and the MFP Steering Committee on theimplementation of the innovative Money Follows the Person (MFP) systems change grant. We alsolook forward to the ongoing efforts related to the Rapid Reintegration Pilot, which has been initiatedin Rockford and Springfield. As a direct result of this public-private collaboration, DHS and the 23Centers for Independent Living have made excellent progress over the past several years in reducingthe institutional bias in Medicaid long-term care in Illinois!

In addition, the Statewide Independent Living Council (SILC) which was established 14 years ago, incompliance with the Rehabilitation Act of 1973 as amended, has been given the authority for theplanning of independent living services and policy activities. Among its many activities in 2008, SILCmoved the Youth Leadership Summit to the University of Illinois at Urbana-Champaign, whichallowed the participants to experience a fully accessible and informative college experience.

We will continue to work in partnership with INCIL and SILC to explore and implement effectivestrategies to improve the quality of life for all persons with disabilities in Illinois.

Sincerely,

Carol L. Adams, Ph.D. Robert F. Kilbury, Rh.D.Secretary DirectorIllinois Department of Human Services Division of Rehabilitation Services

1996 - FEDERALSTONE-HAYES

1997 - STATEJCIL - first CIL

established under IDHS2000 - STATE

GAIL CIL (now OFA)2005 - STATE

RAMP branch inBoone county

1995 - STATESAIL and WCICIL

and a RAMP branch in DeKalb1998 - STATE

IVCIL2006 - STATE

OFA CL expanded to include Clay,Effingham, Fayette, and Jasper counties

1994 1995 1996 1997 1998 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009

Message

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Metropolitan Area Group for Igniting Civilization (MAGIC)

Legislative Internship Project

Legislative Internship Projectfor Minorities with Disabilities and Individualswith Disabilities from Rural Communities

The Division of Rehabilitation Services’s IndependentLiving Unit first awarded Legislative Internship grants toCILs to develop this project in FY 1998. This projectprovides opportunities for minorities, youth and thoseliving in rural communities who have disabilities to learn

about the legislative process. These opportunities enableparticipants to develop leadership and decision-making skills thatenhance their ability to address legislative issues that impact themand their respective communities.

By engaging in and learning the basic components of the legislativeprocess, individuals with disabilities can develop more effectiveinterpersonal and communication skills while becoming morefamiliar with the process. Ultimately, participants will enhance theirability to self advocate and therefore, increase their potential forgrowth and independence.

MAGIC’s Hip HOPE (Health Outreach PreventionEducation) program targets young men and women whoare at-risk and have acquired spinal cord injuries (SCI) dueto gun violence. This year MAGIC began the “Get Back inthe Race” campaign designed as an outreach andmarketing effort aimed at assisting individuals with SCIreturn to independent lifestyles through employment,education and vocational programs. Throughout the year,MAGIC made referrals to DHS and community basedagencies for supportive services.

A major accomplishment was to engage over 30 men who have SCIsin a series of informal community gatherings, serving to remove thesocial stigma that confronts persons with disabilities. Consequently,these events increased the awareness of community residents andtheir understanding about the abilities and potential of wheelchairusers. The culminating event was an anti-violence rally organizedby six of the men who are paralyzed due to interpersonal violence.The rally was held at Chicago’s Abbott Park and attended by over1,000 people, many of whom spoke openly about their disabilitiesand were excited that a community-wide event was planned toshowcase the potential of individuals with disabilities.

Legislative interns at the Capital.

Participants at the Abbot ParkAnti-Violence Rally in Chicago.

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� CILs served 93 of Illinois’ 102 counties.� Direct services and Information and Referral contact combined for FFY’08 was117,076

� The Independent Living Unit (ILU) conducted three on-site full compliance reviewsin FFY 2008. Each review was a three-day process which covered the CIL’sprogrammatic, administrative and fiscal operations.

� Nine follow-up/monitoring reviews were conducted in FFY’08� The ILU provided technical assistance to 23 CILs on 137 occasions during FFY’08� The ILU conducted seven CSR/704 Report Trainings in FFY 2008� Three Travel trainings were conducted in FFY’08� The percentage of persons with disabilities on boards for FFY 2008 was 71 percent,which is the same as FFY 2007.

� The 704 Work Group IL Annual Report Subcommittee, consisting of ILU Directors,Independent Living Unit Staff, and the Graphic Designer at the Illinois Office ofCommunication and Information, worked collaboratively to help create this year’snewly revamped IL Annual Report. Thanks to everyone for their efforts.

Independent Living Unit - Program Highlights - FY ‘08

Access Living of Metropolitan Chicago

115 West ChicagoAvenueChicago, Illinois60607

312-640-2100 (V)888-253-7003 (TTY)

Serving:City of Chicago

� Access Living met with Chicago PublicSchools (CPS) regarding their plan toincrease the number of accessible schoolswithin CPS. CPS has committed to expend$140 million over the next five years toimprove access. We are currentlymonitoring the implementation of thisfunding.� Access Living conducted 913 consumercontacts for consumers desiringaffordable, accessible, integrated housingoptions and we placed 56 people intohousing.� Access Living deinstitutionalized 38people (both seniors and non seniors)� Access Living conducted 104 fair housingtests.� Access Living successfully advocated for

low income people with disabilities to have free mainlinetransportation statewide.

� Access Living conducted two 16 week youth leadership trainings,with 34 youth trained. Ninety percent of those trained reported anincrease in their self-esteem and their disability identity(determined through pre and post tests).

Top: A new Community Reintegrationclient is congratulated by two staff.

Bottom: Marca Bristo speaks at theearly voting press conference.

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Advocates for Access

DuPage Center for Independent Living

739 Roosevelt RoadBuilding 8, Suite 109Glen Ellyn, Illinois60137

630-469-2300 (V/TTY)

Serving:DuPage

� DuPage CIL (DCIL) continues to have acertified Senior Health Insurance Program(SHIP) Counselor on staff. SHIP is a freestatewide health insurance counselingservice for Medicare beneficiaries andtheir caregivers.� The Hearing Aid Action Committee(HAAC) is working intensively to prepare abill to be introduced to the new generalassembly in spring of 2009. Thislegislation would mandate hearing aidesbe covered through Illinois healthinsurance providers.� DCIL had the opportunity to welcomeand highlight the Center’s programs andservices for two groups of visitors from

Seoul, South Korea. Our guests were Executive Directors of Centersfor Independent Living and also a group of activists and advocates,both from Seoul. The visit was educational for both groups, as wellas for the DCIL staff.

Top: Penny Stone is enjoying hernew apartment as a result of ourReintegration Program.

Bottom: A Delegation of Koreanadvocates/activists visited DCIL tolearn about US laws and legislation forpersonʼs with Disabilities. They werealso educated on our programs andservices.

4450 N. Prospect Road,Suite C8Peoria Heights, Illinois61616

309-682-3500 (V)309-682-3567 (TTY)

Serving:FultonPeoriaTazewellWoodford

� An Advocates For Access CommunityReintegration consumer moved from anursing home into homeownership with acollaborative effort of all the programsprovided by AFA. A local news station andthe Peoria Journal Star provided coverageof the story.� AFA and the Deaf Advisory Committeesponsored the 2nd Annual Deaf Idolcompetition at Richwood’s High School.� AFA’s Amplified Phone Program was #1in the State for the third year in a row.� AFA’s Homeownership Programcollaborated with Habitat for Humanity,which enabled one of our consumers toown a new home.� AFA met with our local legislators one

on one at our center to inform them of our programs, services andthe needs of people with disabilities in our service area.

Top: AFA staff gather for a grouppicture at their Annual Meeting.

Bottom: Roger Knoblauch, boardmember, attends the CCDI march inSpringfield, Illinois.

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FITE Center for Independent Living

Illinois-Iowa Center for Independent Living

3708 11th StreetP.O. Box 6156Rock Island, Illinois61204-6156

309-793-0090 (V)309-793-0693 (TTY)

Serving:HenryMercerRock Island in IllinoisClintonMuscatineScott in Iowa

Rock Island’s County Clerk refused toprovide an interpreter for HershelJackson, IICIL’s Independent LivingAdvocate and a person who is Deaf, toparticipate in training for deputyregistrars. He was told that he needed tocover the cost out of pocket. IICILinformed the clerk about the need forappropriate communications access andhe still would not change his stance.

IICIL organized an informational picket at the county buildingwith consumers and explained the situation to the general public.This was widely publicized in the local media, both television andnewspapers. It also generated much discussion on blogs and withinthe local community. The IICIL appealed to the County Board ofSupervisors, who then approved paying for interpreters.

Above: Al Ayeew and Marisa Alemanand other IICIL staff along withconsumers hold an informationalpicket to increase awareness about therights of people who are deaf to havecommunications access in the votingprocess.

730 B. West ChicagoStreetElgin, Illinois60123

847-695-5818 (V/TTY)

Serving:KaneKendallMcHenry

� FITE created the HomeownershipCoalition for People with Disabilitiesallowing people with disabilities to realizetheir dream of homeownership andincrease affordable and accessible housingin our area.� Services have increased by 200% throughvarious outreach methods and expansion

of services in both our Aurora and Elgin locations providing anincreased presence in McHenry County for people with disabilities.

�We obtained grants to provide home modifications for individualsliving in Aurora. The grants provided assistance to six individuals,allowing them barrier free access to their homes, increasing theirsafety and independence.

� Three new staff positions have been created allowing more servicesfor people in Aurora and Elgin. Our focus is on Information andReferral and walk in consumers who need immediate assistanceand support to consumers with complex needs.

� FITE partnered with local libraries to assist them with accessibilityissues and advised them on ways to improve access to theirfacilities.

Above: FITE staff takes a pause at thestate capital during meetings with theirlegislators.

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Impact Center for Independent Living

2735 East BroadwayAlton, Illinois62002

618-462-1411 (V)618-474-5308 (TTY)

Serving:CalhounGreeneJerseyMacoupinMadisonBond

� IMPACT had its first student of Braillecomplete the curriculum and becomefluent in Braille. The consumer alsoobtained employment with a largecompany.� Shannon Davidson is one of Impact’smany successful reintegration stories.Shannon was a resident of a nursing homefor two years, but with the help ofIMPACT’s Community ReintegrationProgram, she was able to move out of thenursing home and into a beautiful one-bedroom apartment.� IMPACT has implemented a newpersonal assistant training program byutilizing “The National Caregiver Training

Program”, which contains a comprehensive caregiver educationcurriculum.

Top: Shannon, a successfulconsumer of IMPACT CILʼsReintegration Program, enjoys thecomfort of her own apartment after 2years of being “stuck” in a nursinghome.

Bottom: Individuals storm the capitolduring the CCDI Rally in Springfield.

Illinois Valley Center for Independent Living

18 Gunia DriveLaSalle, Illinois61301-9712

815-224-3126 (V)815-224-8271 (TTY)

Serving:BureauLaSalleMarshallPutnamStark

� IVCIL’s advocacy efforts lead to 20businesses/service providers to increasetheir accessibility and meet the Americanswith Disabilities Act AccessibilityGuidelines (ADAAD) and/or the IllinoisAccessibility Code.� IVCIL increased accessibility of hospitalsand sought to improve conduct towardpatients with disabilities, resulting in twolocal hospitals opening dialog with IVCIL,

leading to providing recommendations to improve accessibilityand conducting disability sensitivity training for hospital staff.

� IVCIL supported a consumer during a lengthy legal process,resulting in setting precedent for all children aging out of theDivision of Specialized Care for Children into the Home ServicesProgram. At the age of 21, the consumer was no longer eligible forservices from DCSS, but became eligible for the Home ServicesProgram, causing a reduction in services. The reduction couldhave forced him to live in a nursing home and lose his ability tolive in his own home.

Top: Rebecca (center) enjoys beingreunited with her husband and dogafter moving out of the nursing home.They are pictured with IVCILʼsCommunity Reintegration Coordinator,Rachael Mellen.

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Jacksonville Area Center for Independent Living

Lake County Center for Independent Living

377 North SeymourAvenueMundelein, Illinois60060

847-949-4440 (V/TTY)

Serving:Lake

� LCCIL through grassroots advocacyprovided public testimony at ourTransportation Forum that resulted in acommitment from the Lake County Boardto provide match funds to expandaffordable, accessible transportation.� LCCIL expanded the Youth LeadershipProgram to include new schools and nowmaintain a wait list for the EmploymentReadiness Program.� Seventy five percent of the consumers inour Staff Associates Program have nowobtained permanent employment and areno longer in need of the program.� The Older Blind Services Program isoutreaching and is expanding itsinformation base.� LCCIL’s Community Reintegration

Program assisted thirteen individuals out of nursing homes, andinto their own place of residence.

Top: LCCIL GALA

Bottom: LCCIL march in the DisabilityPride Parade.

15 Permac RoadJacksonville, Illinois62650

217-245-8371 (V/TTY)

Serving:MasonScottCassMorgan

� JACIL assisted five individuals throughour Community Reintegration Program tomove from a nursing home into their ownapartment within the communities oftheir choice. Another person moved from astate-operated facility into his ownapartment with JACIL’s assistance.� Over 1000 children and adults are moreaware of certain disabilities due to thedisability awareness programs provided byJACIL staff in our four county service area.� JACIL has facilitated a successful self-advocacy group composed largely ofresidents of a state-operated facility whohave made over 50 contacts with state andlocal policy makers, conducted 3 serviceprojects (raising over $700), and attendedboth the CCDI Conference and the SpeakUp/Speak Out Summit.� JACIL relocated to new office space,

which provides a more comfortable and confidential environmentfrom consumer and community services.

Top: Disability awareness activitiesare an important part of JACILʼsannual Wheelathon.

Bottom: Representative Ray LaHoodand staffer Barb Baker confer withJACIL staff about issues facing olderfolks with vision disabilities.

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Living Independence For Everyone

LINC Center for Independent Living

120 East A StreetBelleville, Illinois62220-1401

618-235-9988 (V)618-235-0451 (TTY)

Serving:St. ClairMonroeRandolph

� LINC CIL was awarded a grant from theNational Council on Independent Livingand the U.S. Administration on Aging tohire a part-time Aging and DisabilityResource Specialist (ADRS). The program isunique in that it brings older adultsneeded information and resources as theyexperience disabling conditions.� Firoz Ali Alizada, the Advocacy Officer

for Handicap International in Afghanistan, visited LINC tofurther gain knowledge on disabilities and advocacyprograms in the US. Alizada’s visit was sponsored by theStarkloff Disability Institute to help move Afghanistanforward by the inclusion of persons with disabilities in theircommunities.� LINC CIL sponsors Fun & Learning classes for youth with adisability who are transitioning into the community. In theFun & Learning classes the students gain knowledge in a

variety of subjects that enhance their level of independence.

Top: Cheering on the GatewayGrizzlies was one of the manycommunity activities the new,LINCing Friends Together group,attended this year. The groupfocuses socializing in the communityand having fun with their peers.Bottom: Erica Edwards, LINCʼsExecutive Director, was published inLifting Our Voices: The Journey IntoFamily Caregiving of ProfessionalSocial Workers. This book examinesthe dynamics between being aprofessional social worker and a familycaregiver. Ericaʼs chapter, “Caring forMy Grandmother: The Birth of aGerontological Social Worker”, isavailable in bookstores.

2201 Eastland DriveSuite #1Bloomington, Illinois61704

309-663-5433 (V)309-663-0054 (TTY)

Serving:DewittFordLivingstonMcLean

� LIFE Center played a key leadership rolein planning, implementing, and assuringfull accessibility of public transportationin Region 6.� LIFE Center provided advocacy, training,and technical assistance to help a localschool district accommodate and includeparents with disabilities.� LIFE Center collaborated in planning for

disaster needs of people with disabilities and helped assure that911 centers can respond to calls from people who are Deaf.

� LIFE Center moved seven individuals from nursing homes to theirown homes within the community.

� LIFE Center served 102 seniors with vision loss by providing themwith the skills and low vision aids they need to maintainindependence within their own homes.

� LIFE Center’s staff, Dana Craig won the Coalition of Citizens withDisabilities in Illinois’ Dr. Judy Smithson Advocacy Award for hertireless pursuit of disability rights and equal opportunities forconsumers to be able to participate in community life.

Above: Norman Wilson enjoying hishome after leaving the nursing home.

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Northwestern Illinois Center for Independent Living

Opportunities for Access

4206 Williamson PlaceSuite 3Mount Vernon, Illinois62864

618-244-9212 (V)618-244-9575 (TTY)

Serving:Clay, ClintonEffingham, FayetteJasper, JeffersonMarion, WashingtonWayne, White, Edwards,Hamilton, and Wabash

� Opportunities For Access Center forIndependent Living’s (OFA CIL)Community Reintegration Program movedout nine consumers from nursing homesand advocated with them to regain theirfreedom. As a result, these consumers arehappier in the community and livingindependently, while at the same time,saving the state money.

� OFA CIL partnered with other community organizations to securefunding for fifteen home modifications to make the homes ofpeople with disabilities more accessible.

� OFA CIL continues to provide a third party service that enablespeople with disabilities who are DRS customers to obtain quickpayment for necessary items to further their education, job searchor employment opportunities. This program also includes rampsand other home modifications for consumers in the Home ServicesProgram. OFA CIL provided 149 home modifications in theamount of $115,928.

� OFA CIL continues its successful Social Security andPharmaceutical Procurement Programs that help people withdisabilities stay out of nursing homes and other institutions,allowing them to remain as independent as possible within thecommunity.

Above: Representative Reis poseswith OFA CIL Staff at the IndependentLiving Legislative Reception inSpringfield.

229 First AvenueSuite #2Rock Falls, Illinois61071-1239

815- 625-7860 (V)815-625-7863 (TTY)

Serving:CarrollLeeOgleJoDaviessWhiteside

� NICIL hosted the 3rd Annual “Walk &Roll" Disability Awareness Fund Raiserthat raised $4,000. Participants usedwheelchairs and alternated with teammembers to try and experience what aperson with a disability might experiencein some situations.� NICIL, through our CommunityReintegration Program, was able toreintegrate eight consumers who as aresult, are now living in the communityindependently.� NICIL provided Disability AwarenessTraining in our five County service areaoutreaching to 1500 students to educatethem about disabilities.

Top: Mayor Amy Viering of Sterlingand Mayor Dave Blanton of RockFalls get in wheelchairs and startNICILʼs Walk & Roll, a fundraiser andDisability Awareness event. .Bottom: Susan Boyd, from CountryInn & Suites, receives an award fortheir accessibility andaccommodations by Dallas Renkes,during our ADA Celebration.

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Options Center for Independent Living

Persons Assuming Control of their Environment

1317 East Florida Ave.#27Urbana, Illinois61801

217-344-5433 (V)217-344-5024 (TTY)

Serving:ChampaignDouglasEdgarPiattVermilion

� PACE assisted 6 first time homeowners inthe year 2008.� PACE assisted 12 consumers reintegratedfrom nursing homes to community in2008.� PACE, an ITAC Selection Center,distributed 122 amplified phones free ofcharge in 2008.� PACE started a collaboration with the

local community college to hold an annual Wheel-a-thon.� PACE partnered with Family Matters to bring parent trainingsregarding IDEA and Educational Access to PACE consumers.

� PACE worked with many community organizations to put on thefirst Disability Expo of services and equipment in the area.

� PACE collaborated in Champaign and Danville and presented twoLow Vision Fairs.

Above: A consumer moving from thenursing home into the communitydeclares, “You gave me my life back!”

22 Heritage DriveSuite 107Bourbonnais, Illinois60914

815-936-0100 (V)815-936-0132 (TTY)

Serving:KankakeeIroquois

� Options, through the CommunityReintegration Program, assisted eightconsumers to move out of nursing homeswhile 90 other consumers avoidedinstitutionalization.� Options assisted 29 persons obtain housingchoice vouchers and acquired accessiblehousing. In addition, 25 consumers obtainedramps or home modifications.� Options assisted 386 persons with variousdisabilities acquire assistive devices.� Options assisted consumers with traveltraining, learning how to ride the bus and to

use bus vouchers/tokens independently. In addition, one of Options’staff was elected as the vice-chair of our county and regiontransportation committees.

� Options assisted seven consumers obtain employment.� Option’s advocacy efforts resulted in 45 businesses coming intocompliance with accessible parking rules and regulations.

� Option’s representation of 53 children at IEP meetings helped insure thechildren’s rights were protected and their educational needs were met.

Top: Options CIL advocated withFEMA for a ramp to be built so aconsumer could be independent.

Bottom: A Lift Chair acquired throughour Community Reintegration Programwas destroyed by the floodwaters, butwas replaced when OPTIONSadvocated on the consumerʼs behalf.

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Progress Center for Independent Living

Regional Access and Mobilization Project

202 Market StreetRockford, Illinois61107

815-968-7567 (V)815-968-2401 (TTY)

Serving:BooneDekalbStephensonWinnebago

� RAMP reintegrated 22 people withdisabilities through the CommunityReintegration Program.� The Boone County Wheel-A-Thon raised$25,502 and will be used to provideservices to people with disabilites.� Youth Education Advocates assisted 400children.� The DeKalb County Scavenger Hunt

raised awareness about disability issues, resulting in TransVac, thelocal bus service, providing training to all drivers on how to usethe accessible lift system. Another positive change is the timing ona crosswalk light at the ever bustling Lincoln Highway which nowallows for a more realistic time for people to cross the street.

� RAMP served 201 consumers with Traumatic Brain Injury (TBI)through the TBI Program.

Above: RAMPʼs iBelong Programtakes disability awareness to theclassroom and educates students ofall ages through exercises and lessonplans regarding the acceptance oftheir peers.

7521 Madison StreetForest Park, Illinois60130

708-209-1500 (V)708-209-1827 (TTY)

Serving:Suburban Chicago

� Progress Center introduced our newExecutive Director, Mr. Horacio Esparza, inJuly of 2008.� PCIL, as part of the Make Medicare WorkCoalition, has expanded its outreachefforts to target the deaf and hard-of-hearing and mental-health communities.� PCIL’s radio show, Vida Independiente,expanded to include a third hourbroadcast in English.

� PCIL joined the Community for All Coalition to protest thecontinued operation of Howe Developmental Center.

� PCIL began the creation of an Aging and Disability ResourceCenter to serve the suburban Cook County area.

� PCIL’s Emergency Backup Personal Assistant Program hasexpanded to include two new regions of Cook County.

� PCIL served as fiscal agent and major co-sponsor of the FifthAnnual Disability Pride Parade.

Top: PCIL Board President, LauraObara and Program Director, JohnJansa, honor outgoing PCIL ExecutiveDirector Diane Coleman (center) atPCILʼs Annual Meeting.

13

Page 14: Department of Human Services … · projects(raisingover$700),andattended boththeCCDIConferenceandtheSpeak Up/SpeakOutSummit. ... SHCIL WCICIL WGCIL TOTAL $339,661 $7,176 $56,022

Southern Illinois Center for Independent Living

Soyland Access for Independent Living

2135 West RamadaLaneCarbondale, Illinois62901

618-457-3318 (V/TTY

Serving:FranklinJacksonPerryWilliamsonGallatinHardinSaline

� Two consumers purchased homes thisyear thanks to SICIL’s Home OwnershipProgram.Since graduation, John, who uses awheelchair, had lived with his parents andthen in public housing. He is now a proudhomeowner, while Mary and Jerry, both ofwhom have disabilities, are thrilled to havea home in which to raise their children.� Clint, an LPN studying to become an RN,was failed because of behaviors arisingfrom his Tourette’s syndrome. The nursingdirector told him that he could never repeatthe class and graduate because he was “justtoo big a risk.” Clint and his parentsappealed the decision and with the help of

SICIL advocacy, he was allowed to repeat the class. Clint will soonhave the degree he earned.

� SICIL opened a satellite office in Sesser, Illinois.

Top: John comes home from work andcan now enjoy his new home.

Bottom: The MacLeodʼs family enjoytheir first holidays in a home of theirvery own.

2449 Federal DriveDecatur, Illinois62526

217-876-8888 (V/TTY)

Serving:MaconMoultrieShelbyCumberlandClarkColes

� SAIL assisted 222 people with disabilitieswith completing Circuit Breaker, IllinoisCares RX and Medicare Part D applications.� SAIL collaborated with Family MattersParent Training and Information Center tosponsor training activities for parents ofchildren with disabilities and school

personnel on Special Education Law.� SAIL outreach staff gave information on health issues anddisaster preparedness at 11 health fairs in the area.� SAIL staff provided peer support, independent living skillstraining and information and referral through support groups,including low visions groups, Deaf Fellowship, Autism SupportGroup, ADHA Support Group and Parents Raising Awarenessin Special Education.

� This was the 10th year SAIL has worked at the Decatur Celebrationto make the event accessible for people with disabilities.

� SAIL collaborated with the Tazwell County Resource Center mobilelow vision team to provide 37 free low vision examinations.� SAIL referred 30 individuals who are deaf to SorensonCommunications to receive videophones, allowing them to connectvisually and communicate directly in American Sign Language.

Top: Howard Rosenblum, attorney withEquip for Equality, spoke about his lifeand career at the SAIL ADA Celebration.

Bottom: SAIL volunteers MaxineKoenig and Betty Chapman managedthe temporary accessible parking lots atDecatur Celebration.

14

Page 15: Department of Human Services … · projects(raisingover$700),andattended boththeCCDIConferenceandtheSpeak Up/SpeakOutSummit. ... SHCIL WCICIL WGCIL TOTAL $339,661 $7,176 $56,022

Springfield Center for Independent Living

Stone-Hayes Center for Independent Living

39 North PrairieGalesburg, Illinois61401

309-344-1306(V/TTY)

Serving:HendersonKnoxWarren

� Stone-Hayes completed anothersuccessful Legislative Internship Programwith 11 graduates who moved on withadvocacy on the Disability Vote Project.� Stone-Hayes reached a new group ofconsumers and families faced withsignificant hearing loss. Through a SignClass, individuals have expressed dramaticchanges in their lives.

� A Stone-Hayes Advocate successfully assisted an individual attainhis independence from living in a shed because of financialexploitation to living in his own apartment; he is thrilled tobe free.

Above: State Representative DonMoffitt meets with Stone Hayesʼconsumers at a legislative reception.

330 South GrandAvenue WestSpringfield, Illinois62704

217-523-2587 (V)217-523-4032 (TTY)

Serving:ChristianLoganMenardMontgomerySangamon

� SCIL and other organizations advocateddiligently for years to make transportationpossible during the evening hours. As aresult, Springfield Mass Transit Districtkicked off evening bus service onDecember 3, 2007.� SCIL’s Independent Living Specialist,after completing 34 hours of training onMedicare, became a certified Senior Health

Insurance (SHIP) Counselor for people with disabilities inthe 5 county service area.� SCIL provided an Internship for a University of Illinoisstudent with disabilities. The student intern assisted withthe development and production of a special editionnewsletter devoted to voting.� SCIL staff and board members provided disabilityawareness presentations at seven sessions of Sangamon

County Election Judge Training. SCIL staff and board will haveattended 30 sessions upon completion of the training.

Top: Kathi Eads speaks at rally onthe first night of evening bus servicein Springfield. SCIL worked for thecreation of evening bus service.

Bottom: Robert Adams, picturedwith his Personal Assistant, utilizes thebus service. Robert, a SCIL consumer,was reintegrated into his communityfrom a nursing home.

15

Page 16: Department of Human Services … · projects(raisingover$700),andattended boththeCCDIConferenceandtheSpeak Up/SpeakOutSummit. ... SHCIL WCICIL WGCIL TOTAL $339,661 $7,176 $56,022

West Central Illinois Center for Independent Living

Will/Grundy Center for Independent Living

2415 A West JeffersonStreetJoliet, Illinois60435

815-729-0162 (V)815-729-2085 (TTY)

Serving:WillGrundy

�Will-Grundy provided assistance to 18people leading to their reintegration froman institutional setting to living withintheir community.�Will-Grundy set a state record fordistributing 57 amplified telephones inMarch 2008. The IllinoisTelecommunication Access Corporation(ITAC) has never had a selection centerdistribute more phones in one month.

�Will-Grundy’s outreach effort to minorities with disabilities hasbeen intensified. More people with disabilities from minoritycommunities have started receiving services from the Center.

� A “Liberty Launch” was held to demonstrate the inhumanity ofinstitutionalization. Staff, consumers, and members of the generalpublic participated in this event.

� A Disability Forum was held to inform people with disabilitiesabout the Americans with Disabilities Act, accessible voting,emergency preparedness, low interest loans for assistivetechnology, accessible parking, and more. Over 100 persons withdisabilities, general public, and elected officials attended thiseducational program.

Above: Charles Fuqua, reintegratedfrom a nursing home, was our EdRoberts Award recipient during ourannual meeting. Staff member LauraZeiger presents his award.

300 Maine, Suite 104Quincy, Illinois62301

217-223-0400 (V)217-223-0475 (TTY)

Serving:AdamsPikeBrownSchuylerHancockMcDonough

�West Central Illinois Center forIndependent Living continues to moveforward in the empowerment of personswith disabilities, increasing opportunitiesand providing information throughdisability etiquette and awarenesstrainings for businesses and organizations.�WCICIL staff members have been

appointed to serve on a variety of Board of Directors in a sixcounty service area.

�WCICIL and Two Rivers Regional Council partnered to completeseveral home modifications. The collaborations allowed for thegreatest use of available resources and funding.

� Cardio Pulmonary Resuscitation (CPR) training has been providedto personal assistants as an active part of WCICIL’s home servicesprogram. The American Red Cross is providing the training.

� A very successful 2008 ADA Celebration was held, “Breaking downBarriers”.

Above: “Breaking Down Barriers” 2008ADA celebration

16

Page 17: Department of Human Services … · projects(raisingover$700),andattended boththeCCDIConferenceandtheSpeak Up/SpeakOutSummit. ... SHCIL WCICIL WGCIL TOTAL $339,661 $7,176 $56,022

Overall Individual CIL Operational Funding - FY 2008

AL

AFA

DCIL

FITE

IICIL

IVCIL

IMPACT

JACIL

LCCIL

LIFE

LINC

NICIL

OFACIL

OPTIONS

PACE

PCIL

RAMP

SAIL

SCIL

SICIL

SHCIL

WCICIL

WGCIL

TOTAL

$339,661 $7,176 $56,022 $0 $402,859 $375,368 $778,227

$244,486 $54,577 $22,550 $0 $321,613 $0 $321,613

$206,848 $7,176 $44,538 $0 $258,562 $0 $258,562

$285,268 $35,676 $25,799 $0 $346,743 $0 $346,743

$95,626 $7,176 $33,772 $0 $136,574 $275,065 $411,639

$308,102 $0 $0 $0 $308,102 $0 $308,102

$333,384 $7,176 $23,063 $104,913 $468,536 $0 $468,536

$167,810 $5,701 $6,000 $0 $179,511 $134,547 $314,058

$40,664 $7,176 $56,490 $0 $104,330 $256,066 $360,396

$199,791 $50,525 $51,554 $0 $301,870 $55,540 $357,410

$183,189 $7,176 $65,305 $0 $255,670 $45,104 $300,774

$242,179 $43,177 $21,330 $0 $306,686 $0 $306,686

$459,642 $7,176 $74,538 $0 $541,356 $129,897 $671,253

$106,902 $57,176 $10,250 $0 $174,328 $139,446 $313,774

$219,114 $34,850 $21,054 $0 $275,018 $0 $275,018

$408,780 $7,176 $32,031 $0 $447,987 $0 $447,987

$172,515 $45,377 $36,243 $0 $254,135 $229,802 $483,937

$138,794 $7,176 $9,347 $0 $155,317 $244,793 $400,110

$316,358 $7,176 $26,146 $99,496 $449,176 $0 $449,176

$169,877 $85,050 $48,407 $0 $303,334 $129,208 $432,542

$26,314 $5,701 $37,624 $0 $69,639 $230,990 $300,629

$167,008 $7,176 $5,520 $0 $179,704 $98,976 $278,680

$89,303 $7,176 $61,794 $0 $158,273 $251,736 $410,009

$4,921,615 $503,922 $769,377 $204,409 $6,399,323 $2,596,538 $8,995,861

CILS GRF VII B SSI VR 110 Totals PART C Grant Total

Page 18: Department of Human Services … · projects(raisingover$700),andattended boththeCCDIConferenceandtheSpeak Up/SpeakOutSummit. ... SHCIL WCICIL WGCIL TOTAL $339,661 $7,176 $56,022

Age of Consumers Receiving Direct Services - FY 2008

AL

AFA

DCIL

FITE

IICIL

IVCIL

IMPACT

JACIL

LCCIL

LIFE

LINC

NICIL

OFACIL

OPTIONS

PACE

PCIL

RAMP

SAIL

SCIL

SICIL

SHCIL

WCICIL

WGCIL

TOTAL

PERCENT

4 37 40 492 160 0 733

2 24 11 117 15 0 169

0 11 5 120 20 2 158

0 4 8 134 24 0 170

1 8 9 137 140 0 295

2 58 16 68 11 0 155

0 27 14 101 150 0 292

0 4 1 59 20 0 84

0 136 28 108 59 0 331

2 12 9 112 96 0 231

11 211 19 196 107 0 544

12 155 21 231 28 1 448

18 132 51 582 71 1 855

1 25 15 162 141 0 344

2 43 27 339 246 4 661

1 5 13 197 169 8 393

45 318 48 576 163 1 1,151

1 9 3 65 82 4 164

0 15 13 141 26 0 195

0 37 71 183 103 0 394

2 16 11 100 18 0 147

4 30 5 102 10 0 151

1 20 23 121 4 9 178

109 1,337 461 4,443 1,863 30 8,243

1% 16% 6% 54% 23% 0% 100%

CILS Under 5 5-19 20-24 25-59 60 & Over Unknown Total

Page 19: Department of Human Services … · projects(raisingover$700),andattended boththeCCDIConferenceandtheSpeak Up/SpeakOutSummit. ... SHCIL WCICIL WGCIL TOTAL $339,661 $7,176 $56,022

Direct Service by Major Primary Disability - FY 2008

AL

AFA

DCIL

FITE

IICIL

IVCIL

IMPACT

JACIL

LCCIL

LIFE

LINC

NICIL

OFACIL

OPTIONS

PACE

PCIL

RAMP

SAIL

SCIL

SICIL

SHCIL

WCICIL

WGCIL

TOTAL

PERCENT

24 84 286 43 17 275 4 733

26 27 79 6 4 25 2 169

4 14 69 32 8 30 1 158

13 23 85 29 4 11 5 170

0 16 54 40 116 65 4 295

17 11 29 16 1 77 4 155

38 12 63 8 138 33 0 292

7 7 11 5 17 37 0 84

44 132 33 12 64 42 4 331

18 18 48 2 69 76 0 231

118 111 146 27 24 106 12 544

92 17 99 2 4 234 0 448

51 29 133 6 4 626 6 855

36 10 76 5 135 75 7 344

19 24 40 93 57 366 62 661

16 40 70 184 5 67 11 393

211 99 242 55 9 528 7 1,151

7 8 19 0 90 38 2 164

42 24 51 7 7 59 5 195

105 50 67 24 94 51 3 394

62 15 40 4 3 23 0 147

23 10 63 0 8 44 3 151

3 81 33 4 6 46 5 178

976 862 1,836 604 884 2,934 147 8,243

12% 10% 22% 7% 11% 36% 2% 100%

CILS Cognitive Mental Physical Hearing Visual Multi- Other TotalDisability

Page 20: Department of Human Services … · projects(raisingover$700),andattended boththeCCDIConferenceandtheSpeak Up/SpeakOutSummit. ... SHCIL WCICIL WGCIL TOTAL $339,661 $7,176 $56,022

Consumers Recieving I & R and Direct Services by Gender- FY 2007

AL

AFA

DCIL

FITE

IICIL

IVCIL

IMPACT

JACIL

LCCIL

LIFE

LINC

NICIL

OFACIL

OPTIONS

PACE

PCIL

RAMP

SAIL

SCIL

SICIL

SHCIL

WCICIL

WGCIL

TOTAL

15,187 733 319 414

3,735 169 82 87

2,166 158 60 98

6,555 170 70 100

14,185 295 131 164

1,051 155 75 80

1,046 292 111 181

2,124 84 37 47

1,890 331 161 170

4,796 231 85 146

1,977 544 281 263

5,593 448 254 194

2,903 855 424 431

4,364 344 129 215

1,787 661 268 393

2,273 393 192 201

26,097 1,151 638 513

3,064 164 64 100

1,852 195 95 100

635 394 197 197

871 147 78 69

721 151 80 71

3,961 178 97 81

108,833 8,243 3,928 4,315

CILS I & R RESPONSES CONSUMERS SERVED MALES SERVED FEMALES SERVEDDIRECT SERVICES DIRECT SERVICES DIRECT SERVICES

Page 21: Department of Human Services … · projects(raisingover$700),andattended boththeCCDIConferenceandtheSpeak Up/SpeakOutSummit. ... SHCIL WCICIL WGCIL TOTAL $339,661 $7,176 $56,022

County Coverage - FY 2008

AL

AFA

DCIL

FITE

IICIL

IVCIL

IMPACT

JACIL

LCCIL

LIFE

LINC

NICIL

OFACIL

OPTIONS

PACE

PCIL

RAMP

SAIL

SCIL

SICIL

SHCIL

WCICIL

WGCIL

TOTAL

Chicago 728 5 733 99% 1%

4 129 40 169 76% 24%

1 146 12 158 92% 8%

3 143 27 170 84% 16%

3 237 58 295 80% 20%

5 105 50 155 68% 32%

6 234 58 292 80% 20%

4 55 29 84 65% 35%

1 326 5 331 98% 2%

4 157 74 231 68% 32%

3 422 122 544 78% 22%

5 238 210 448 53% 47%

13 208 647 855 24% 76%

2 248 96 344 72% 28%

5 488 173 661 74% 26%

1 375 18 393 95% 5%

4 479 672 1,151 42% 58%

6 115 49 164 70% 30%

5 178 17 195 91% 9%

7 117 277 394 30% 70%

3 92 55 147 63% 37%

6 96 55 151 64% 36%

2 162 16 178 91% 9%

93 5,478 2,765 8,243 72% 28%

CILS No. Counties No. Served No. Served Total Percent PercentServed Home County Outlying County Home Outlying

Page 22: Department of Human Services … · projects(raisingover$700),andattended boththeCCDIConferenceandtheSpeak Up/SpeakOutSummit. ... SHCIL WCICIL WGCIL TOTAL $339,661 $7,176 $56,022

Ethnicity of Consumers Receiving Direct Service - FY 2008

AL

AFA

DCIL

FITE

IICIL

IVCIL

IMPACT

JACIL

LCCIL

LIFE

LINC

NICIL

OFACIL

OPTIONS

PACE

PCIL

RAMP

SAIL

SCIL

SICIL

SHCIL

WCICIL

WGCIL

TOTAL

PERCENT

3 11 470 73 4 169 0 730

2 0 70 1 0 96 0 169

0 2 17 11 1 127 0 158

0 0 49 36 1 81 3 170

3 2 45 11 0 234 0 295

1 1 2 8 1 142 0 155

0 4 23 1 0 260 4 292

1 0 6 1 0 76 0 84

0 6 46 33 0 246 0 331

4 1 17 3 0 205 1 231

0 2 189 0 2 351 0 544

2 0 18 47 0 376 5 448

2 3 61 1 2 784 2 855

1 0 45 6 0 288 4 344

1 5 125 7 1 519 3 661

1 5 105 63 0 219 0 393

4 8 178 46 1 914 0 1,151

1 0 12 1 0 150 0 164

0 0 61 0 1 130 3 195

3 1 50 1 0 339 0 394

1 1 11 1 0 133 0 147

0 0 16 2 1 128 4 151

0 1 63 8 0 106 0 178

30 53 1,679 361 15 6,073 29 8,240

0.4% 0.6% 20% 4% 0% 74% 0% 100%

CILS American Asian African Hispanic Native White Other TotalIndian American Hawaiian

Page 23: Department of Human Services … · projects(raisingover$700),andattended boththeCCDIConferenceandtheSpeak Up/SpeakOutSummit. ... SHCIL WCICIL WGCIL TOTAL $339,661 $7,176 $56,022

Overall Consumer Involvement - FY 2008

AL

AFA

DCIL

FITE

IICIL

IVCIL

IMPACT

JACIL

LCCIL

LIFE

LINC

NICIL

OFACIL

OPTIONS

PACE

PCIL

RAMP

SAIL

SCIL

SICIL

SHCIL

WCICIL

WGCIL

Average

19 66% 7 54% 32 67%

9 60% 2 67% 5 71%

11 79% 2 67% 7 100%

3 60% 4 80% 4 57%

7 64% 10 91% 10 91%

8 73% 2 100% 4 57%

7 64% 3 100% 7 58%

7 58% 2 67% 8 89%

8 80% 4 100% 7 88%

9 60% 4 100% 7 100%

8 53% 2 67% 7 78%

5 71% 3 100% 7 100%

3 100% 3 60% 10 77%

6 60% 2 100% 8 67%

9 90% 1 50% 8 62%

10 77% 5 63% 9 82%

6 60% 2 22% 15 65%

7 78% 1 50% 9 60%

11 73% 4 100% 8 80%

4 80% 5 71% 22 65%

7 88% 2 100% 2 50%

4 67% 1 33% 3 60%

7 70% 2 67% 3 30%

8 71% 3 74% 9 72%

CILS No. and Percentage of No. and Percentage of No. and Percentage ofPersons with Disabilities on Persons with Disabilities on Persons with Disabilities on

Board of Directors Administrative Staff Program Staff

Number Percent Number Percent Number Percent

Page 24: Department of Human Services … · projects(raisingover$700),andattended boththeCCDIConferenceandtheSpeak Up/SpeakOutSummit. ... SHCIL WCICIL WGCIL TOTAL $339,661 $7,176 $56,022

401 South Clinton Street � Chicago, Illinois 60607100 South Grand Avenue, East � Springfield, Illinois 62762

www.dhs.state.il.us

Programs, activities and employment opportunities in the Illinois Department of Human Services are open and accessible to any individual or groupwithout regard to age, sex, race, sexual orientation, disability, ethnic origin or religion. The department is an equal opportunity employer and practicesaffirmative action and reasonable accommodation programs.

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