DECEMBER 2014 Te Whanau Kotahi Newsletter€¦ · paper questionnaire and families were also given...

13
INSIDE THIS ISSUE: GENERAL MANAGER UPDATE 1 WHEELIE GOOD FUN DAY 2 BOARD UPDATE 3 PARENT SURVEY 4 EARLY IDENTIFICATION OF ASD 6 PARENT EVENING 8 KEEPING YOUR ASD CHILD SAFE 10 PIANO ACCORDIAN CHARITY AUCTION 11 BERRY PAVLOVA RECEIPE 11 RESOURCES 12 TWK CONTACT LIST 13 DECEMBER 2014 handed over to Fergus Aitken and he is making full use of it! As a follow up to our Change Stories work, a parent evening was held on 25 November with Te Whanau Kotahi Trustees; it featured a warm atmosphere and many positive thoughts which are covered in a newsletter summary. Over the past few years there have been increasing referrals where the child may have Autistic Spectrum Disorder (ASD). We include an article on how to keep your child with ASD safe in the newsletter. The Multidisciplinary Assessment Team tends to work with children over the age of two yet our Clinical Psychologist, Chris McAlpine, believes early identification of ASD traits is possible and measures can be taken to reduce the impact; his article certainly provides food for thought. All of us wish you a happy Christmas, great holidays and we look forward to providing you with effective support in 2015. Barry Davies General Manager Te Whanau Kotahi Another year is drawing to a close and we continue to support many local children and their families. Feedback on our service is overwhelmingly positive as shown by our “Tell Us What You Think” survey summary reported in this edition, although everyone recog- nises that our therapists are very stretched in trying to respond quickly to family needs. I was hopeful that the stocktake of New Zealand child development services would report by July and provide the evidence for an increase in Ministry of Health grants. Unfortunately there have been delays and although early messages suggest good evidence for a significant funding boost it will be mid 2015 before there is any prospect of an increase. November started with the Wheelie Good Fun Day run with Bethlehem Te Puna Lions at Tauranga Racecourse, the attendance was lower than we hoped but it has resulted in purchase of further trikes to be used by children we support; great work by all those who planned and ran the day. Earlier in the year, the first trike sponsored by Bethlehem Te Puna Lions was Te Whanau Kotahi Newsletter KIA ORA KOUTOU KATOA FROM BARRY DAVIES AND THE TE WHANAU KOTAHI TEAM

Transcript of DECEMBER 2014 Te Whanau Kotahi Newsletter€¦ · paper questionnaire and families were also given...

Page 1: DECEMBER 2014 Te Whanau Kotahi Newsletter€¦ · paper questionnaire and families were also given the option to complete the same survey online. Most people have responded positively

INSIDE THIS ISSUE:

GENERAL MANAGER

UPDATE

1

WHEELIE GOOD

FUN DAY

2

BOARD UPDATE 3

PARENT SURVEY 4

EARLY IDENTIFICATION

OF ASD

6

PARENT EVENING 8

KEEPING YOUR ASD

CHILD SAFE

10

PIANO ACCORDIAN

CHARITY AUCTION

11

BERRY PAVLOVA

RECEIPE

11

RESOURCES 12

TWK CONTACT LIST 13

DECEMBER 2014

handed over to Fergus Aitken and he is making full use of it! As a follow up to our Change Stories work, a parent evening was held on 25 November with Te Whanau Kotahi Trustees; it featured a warm atmosphere and many positive thoughts which are covered in a newsletter summary. Over the past few years there have been increasing referrals where the child may have Autistic Spectrum Disorder (ASD). We include an article on how to keep your child with ASD safe in the newsletter. The Multidisciplinary Assessment Team tends to work with children over the age of two yet our Clinical Psychologist, Chris McAlpine, believes early identification of ASD traits is possible and measures can be taken to reduce the impact; his article certainly provides food for thought. All of us wish you a happy Christmas, great holidays and we look forward to providing you with effective support in 2015. Barry Davies General Manager Te Whanau Kotahi

Another year is drawing to a close and we continue to support many local children and their families. Feedback on our service is overwhelmingly positive as shown by our “Tell Us What You Think” survey summary reported in this edition, although everyone recog-nises that our therapists are very stretched in trying to respond quickly to family needs. I was hopeful that the stocktake of New Zealand child development services would report by July and provide the evidence for an increase in Ministry of Health grants. Unfortunately there have been delays and although early messages suggest good evidence for a significant funding boost it will be mid 2015 before there is any prospect of an increase. November started with the Wheelie Good Fun Day run with Bethlehem Te Puna Lions at Tauranga Racecourse, the attendance was lower than we hoped but it has resulted in purchase of further trikes to be used by children we support; great work by all those who planned and ran the day. Earlier in the year, the first trike sponsored by Bethlehem Te Puna Lions was

Te Whanau Kotahi

Newsletter KIA ORA KOUTOU KATOA FROM BARRY

DAVIES AND THE TE WHANAU KOTAHI TEAM

Page 2: DECEMBER 2014 Te Whanau Kotahi Newsletter€¦ · paper questionnaire and families were also given the option to complete the same survey online. Most people have responded positively

After Bethlehem Te Puna Lions raised funds to buy a trike for Fergus Aitken in the winter, they approached us with the idea of a fun day for families. Months of planning followed leading to the event at Tauranga Racecourse on 9 November. The sun shone brightly and although attendance fell short of our expectations, lots of fun was had with wheelie bin and cart races, wheel in the haystack, fire engine rides, raf-fles, market stalls, musicians and many more. The main objective was to raise money for more trikes and the $6,000 raised means we can go ahead to purchase and lend out trikes to children we work with. Our thanks go to all the g e n e r o u s s p o n s o r s , t o Bethlehem Te Puna Lions and the Te Whanau Kotahi team who put lots of energy into the event, Mayor Stuart Crosby for attending and drawing the raffle, plus the Tauranga Racecourse and Classic Cuisine for providing their space. We would like to acknowledge the following companies who sponsored the activities led by the Te Whanau Kotahi team: ANZ, Bay City Cinemas, Bay Office Products, Baywave, Blokarts Tauranga, Cadbury, Chipmunks, Classic Flyers, Dave “Stretch” Rowlands, Fernland Spa, Fonterra, Fusion Coffee Roastery, HarperCollins Publishers, Kleana Bins, Marsha l l s Animal Farm, McDonalds, Mount Hot Pools,

Pasguards Sports Distributors, Snappers Mini Putt, The Rockhouse , Tramp Park Tauranga, U Save Variety Store Greerton and Waimarino. And lastly to the Tauranga Men’s Shed for creating a cart for our staff to compete in!

TE WHANAU KOTAHI NEWSLETTER

WHEELIE GOOD FUN DAY

PAGE 2

Fire engine rides driven by Chris McAlpine,

TWK Clinical Psychologist

Gill Duncan, TWK Community Facilitator,

and Margo McIntosh, TWK Physiotherapist

competing in the cart race

Tow the Tyre

Santa arriving with gifts for the children

Fergus Aitken with his new trike

Dress up your cart

The Horne Family team

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Warren Aitken is parent of a child

with disabilities and has been a local

for some time. He works for the

Tauranga City Council and in his

leisure time plays in a pipe band and

enjoys bike rides with his family.

Tracey Newland also has a child

with different abilities and has taken

on the role of Vice Chair of the Te

Whanau Kotahi trustees. The fam-

ily used to live in Wellington and

are now enjoying a rural lifestyle in

the sunny Bay of Plenty as well as

running their business from home.

CAPTURE THE MOMENT

The baby is teething, the children are fighting, and my husband just called and said to eat dinner without him.

Okay, one of these days you’ll shout, "Why don’t you grow up and act your age?" ….. and they will.

Or, "You guys get outside and find yourself something to do and don’t slam the door." ….. and they won’t. You’ll

straighten up their bedrooms all neat and tidy with bumper stickers discarded, bed-spread tucked and smoothed,

toys all displayed on the shelves, hangers in the closets, animals caged, and you’ll say out loud,

"Now I want you to stay this way!" …. and they will.

Then you’ll prepare a perfect dinner with a salad that hasn’t been picked to death, a cake with no finger traces through

the frosting, and you’ll say, "Now there’s a meal for company." …. but you’ll eat it alone.

And you’ll say, "I want complete privacy on the phone! No dancing around, no pantomimes, no demolition crews!

Silence! Do you hear me?" …. and you’ll have it.

No more plastic tablecloths stained with spaghetti, no more anxious nights under a vaporizer tent, no more dandelion

bouquets, no more iron-on patches, no more wet-knotted shoe strings, no more tight boots,

or rubber bands on pony tails.

Now, imagine your lipstick with a point. No baby sitter on New Year’s Eve. Washing clothes only once a week. No PTA

meetings, no car pools, no blaring radios, having your own roll of tape, no more Christmas presents made out of

toothpicks and paste, no more wet-oatmeal kisses, no tooth fairy, no giggles in the dark, no knees to Band-aid.

Only a memory of a voice crying, "Why don’t you grow up?"

And in the silence will come the echo, "I did."

Source: Classic Forwards

PAGE 3

INTRODUCING OUR LATEST TRUSTEES

Tracey Newland, Vice Chairperson,

Te Whanau Kotahi

Warren Aitken, Trustee,

Te Whanau Kotahi

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TE WHANAU KOTAHI NEWSLETTER

PARENT SURVEY 2014—TELL US WHAT

YOU THINK

PAGE 4

This year our survey was conducted using paper questionnaire and families were also given the option to complete the same survey online.

Most people have responded positively as you can see from the overall summary on page 5, although the wait time to see one of our team remains an issue; it is a problem we recognise and would love to have more funding so we can support you faster. There was one unhappy respondent and I am always ready to talk further with any of our parents on these issues. You can email me at [email protected] or telephone (07) 557 9092.

Below we reproduce comments made by some of the online respondents.

Online responses:

“At this time we are at the assessment stage, I am still getting used to this but find that often the different services book us for the same day and time, this is confusing to me, kind of overwhelming.”

“The service I have received from our Occupational Therapist at Te Whanau Kotahi was/is AMAZING! Just fantastic ideas, support, help, understanding .... I can't say enough. It has been such a positive experience and has changed the way

I am with my son so much more positively. Just so grateful for such quality, professional support.”

“Alison is awesome!! So supportive and always checking in with new advice and tips.”

“Jill Wham and Chris McAlpine have been very understanding and helpful. My only negative feedback is that due to demand there is a very long wait time. This meant in one case that by the time our appointment came up with Chris we had long moved on from the issue I had wished to discuss (which could be good or bad - resolve things ourselves). Our family really appreciates the service and support provided by Te Whanau Kotahi.”

One of the most glorious messes in the world is the mess created in the living room on Christmas day.

Don't clean it up too quickly. ~Andy Rooney

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TE WHANAU KOTAHI NEWSLETTER

PARENT SURVEY 2014 RESULTS — TELL US WHAT

YOU THINK

PAGE 5

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PAGE 6

EARLY IDENTIFICATION OF AUTISM SPECTRUM DISORDERS Chris McAlpine, Clinical Psychologist

For some time now I have been reflecting on how early we can identify some of the symptoms of

autism in children who are subsequently diagnosed as having an Autism Spectrum Disorder (ASD). The

motivation for doing this is to assist families early on in understanding their child’s development as they often

feel confused, blamed and criticised by others. I wonder what impact intervening at the age of three or four

months would have on improving and assisting the child’s language and their social and emotional

development. Is it possible that we could minimise some of the distress the infants must be experiencing. The

research shows that mothers are often aware that around 13 months of age their child is developing differently

to others. In the United States, ASD is typically diagnosed at around 5.7 years. However from about 14

months of age there is research identifying some of the early symptoms. The New Zealand Autism Spectrum

Guidelines are extremely informative, well-written and discuss how children in their preschool years present.

Assessment and treatment is also discussed at this age.

There is very little research on ASD with children under the age of one. There is nothing in the

guidelines for this age group. There are a few studies as follows:

A study looked at gene pathway analysis. They came up with a diagnostic classifier that correctly

predicted an ASD child with an accuracy of 72%. In the future this may have implications for

identifying siblings of children who have already been identified as there is a 20% chance that these

siblings may be affected.

Another study using sophisticated scanning technology identified that there were significant

differences in children’s brains at the age of six months who later went on to develop ASD.

A study that used standard clinical assessment tools was not able to identify children with autism at six

months of age.

One study using sophisticated technology found that there was declining eye contact in infants as young

as two months however parents and clinicians should not expect to see these differences

without the aid of the sophisticated technology.

A study looked at repetitive behaviours at the age of 12 months. They found that if children

engaged in three or more of the following behaviours then this led to an increase in the chance of

having a diagnosis of autism at age two. The behaviours were: stereotypical motor

behaviours such as hand flapping, ritualistic behaviours such as lining up toys or only eating

certain coloured food and self-injurious behaviours or compulsive behaviours such as things having to be

done in a certain order. I note that it was quite normal to have one or two of these behaviours

occurring.

My experience from talking with families is that parents often notice that their children with ASD were

developing differently to their peers during the first year and perhaps as young as a few months of age. Often

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they identify that their child does not play with toys, or does not make good eye contact.

Unfortunately at this point in time there is not a lot of research to guide us. In the interim I think we can learn

a lot from families’ recollections of these early months.

Fostering some of these different skills across the domains of development is also important to assist the

child’s development because, as families are aware, these children are “often wired differently and think outside

the square” which can be a useful skill later on in life. Some of these skills are very adaptive.

What I have learned from families is that, even as young as six months of age, differences in development are

occurring across a number of different domains. It is very difficult to determine what is normal versus delays

in development, communication difficulties or in fact the early signs of ASD. It will be some time before

research is able to answer this question. My experience is that many of the following domains of development

are affected by ASD not just one or two domains.

Visual: Prolonged visual inspection of object and not making eye contact when breast feeding.

Play: Limited interest in toys and engaging in repetitive actions with them.

Social Communication: Poor imitation of a social smile, decreased interest in interacting socially and

reduced range and frequency of facial expressions.

Language: Delays in babbling especially back and forth social babbling. Delays with gestures.

Repetitive Behaviours: Constantly opening and closing the palm of the hands along with wrist

rotations. Ritualistic and compulsive behaviours occurring.

I think that we are going to see a lot more research identifying some of the symptoms of ASD in the first year

of life. I think it is very important for health professionals to listen to families when they notice that their child

is developing differently. I believe it important that siblings of children with ASD are carefully screened

however I note that 80% will not have any difficulties. The ASD Guidelines clearly indicate that assessments

need to be multidisciplinary in nature so when parents seek advice it needs to be from a team. Autism affects

the brain in many different ways - hence the concept of “spectrum”. In my view early identification must help

the child’s experience of living with this condition and their family’s understanding of it. It will also have an

impact on the development of symptoms and in some cases very significant improvements or perhaps even

prevention can occur in mild ASD. Only time will tell.

In order to help other families and professionals I would be very interested in knowing what you first noticed

about your child developing differently and how many months old they were.

Please email me: [email protected]

TE WHANAU KOTAHI NEWSLETTER

PAGE 7

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PAGE 8

PARENT EVENING

Health and Education Providers

Plunket did not get involved in past years as experienced by Ellie and Jacqui but Michelle has had positive experience recently.

Hospital procedures need improvement to cater for children’s different needs, i.e. EEG procedure also required day ward bed.

Parents can request paediatrician appointment at places other than hospital. Note: Outreach Clinic at Te Whanau Kotahi has been discontinued. Parents want the choice and some regard hospital as most appropriate with other services on site. Some would prefer a home visit even if less frequent.

One parent would prefer some discussions with paediatrician without child present.

Flexibility on how/where discussion with clinician was noted although administration people are reluctant to instigate other than face to face session.

Incontinence Nurses now only have to see child every second year; telephone conversations possible in between.

Schools with positive approach to inclusion are essential; no audit component with ERO.

Principal’s set the school culture around inclusion but acknowledged that lack of resources an issue in meeting individual needs.

Jacqui and Deanna gave a talk at school on what it is like to have a disability – positive response.

Some schools lack flexibility in practice, i.e. use of bus and accessing swimming pool.

Small things are important to foster inclusion, i.e. waiting for child to get in wheelchair before taking class to library.

Schools should adapt to individual needs rather than expect each child to work with a set definition of inclusion.

Good teachers role model how to pick out positive characteristics and similarities with other children.

Ministry of Education/Sector Enablement and Support needs more authority to compel change of practice in non-inclusive schools.

The Human Rights Commission is an option if there is no positive response from school/Sector Enablement and Support; however, they can only mediate not enforce.

The meeting was held to talk further with parents following the Change Stories work in 2013. A small group met at Wesley Church Hall and held a wide ranging discussion on experiences with their child’s disability and lessons which are good to share. We also had input from Trudy Hulena who could not join us on the evening. Her thoughts are reproduced on page 9 and here are some of the main points that emerged:

Networking

Face to face contact and then make use of social media. The different abilities Facebook page set up by Suzy has around 30 members.

One parent isolated herself for 18 months before feeling okay to talk about her child’s disability.

Judy and Michelle have had good experience of parent to parent sessions, coffee mornings have a changing group of attendees.

Hearing someone’s story around a very different disability can be helpful and positive.

Talking about children with similar disability can be depressing if stories are negative or they have different issues.

People “getting it” is the most important aspect of networking.

Setting up a blog can be a good way to share.

Information

Parents experienced a lack of clear information on their child’s disability for some months; understand it isn’t always possible for clinicians to be specific but hard to manage.

Value of having clear information on options including conductive education; Vision book by Blind Foundation a good example.

Judy reported on guide to services she received when living in London; an online version would be good.

Can be difficult to use information provided on therapy exercises between Visiting Neurodevelopmental Therapist visits due to other commitments, i.e. two siblings to manage.

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TE WHANAU KOTAHI NEWSLETTER PAGE 9

meet each person at the right time to learn the right lesson or to be a teacher of a lesson.

I have since had another grandchild come into my care on a temporary basis, and this too has come with issues.

I have been able to draw on my lessons from Ben from stories already shared and new groups joined to be able to be a great advocate for him too.

I have found great friendships and help with Suzy's Facebook page... Thanks Suzy for setting this up with great balances and checks with new members to keep us safe... as with other sites I belong to.

I love the fact that even though I initially felt alone, I am in fact not.

The most important thing I have learnt is to share your story. Sharing is empowering in every facet of caring for your disabled person.

I would promote attending any courses, lessons, get-togethers that you possibly can. Pick up the phone and talk to a friend. Read others stories. Some will make you laugh, some you can relate to and learn from, and some will make you cry with happiness and sorrow... but the underlying lesson, is that we are in the same boat.... it is just that some are shaped differently with different motors!!

I hope this helps somewhat—Trudy Hulena.

Community

Change takes a long time; noted that inclusive education has been New Zealand’s goal since the 1980’s.

Societal attitudes are variable with some people assuming disabled child is “a naughty child”. Cards are given out by some people which explain their child’s behaviour.

A number of ways to respond to people who ask “what’s wrong with your child” including stating the diagnosis and mentioning their positive qualities also “it’s complicated” if not wanting to engage in discussion.

Look for opportunities to accentuate the achievements of the child. Social role valorisa-tion (SRV) advocates finding meaningful roles for the person and this helps acceptance and valuing of them.

The child’s disability can be hard on other family members but they can help understanding amongst their contacts.

In the early years it can be hard to see compari-son of your child’s development as opposed to other children; parents thought this feeling re-duced over time.

Extract from Trudy Hulena’s Email

I had no luck with sitters for tonight ... I am so very sorry, as this is a valuable tool for parents.

So what I can say is that:

Sharing stories helps not only share the load, but offers a building block/foundation for further information sharing, leadership opportunities, friendships and problem solving.

Along my journey with Ben, I have learnt to be assertive, to seek out information, to stand up for Ben and be his best advocate with great information to back me.

I have learnt what courses work for us and what doesn't, and how it is okay to not feel bad about the ones that do not work.

I have learnt to value myself, Ben and everyone that I come into contact with along the way .... I believe you

Parent evening attendees enjoying the

discussion and refreshments

Page 10: DECEMBER 2014 Te Whanau Kotahi Newsletter€¦ · paper questionnaire and families were also given the option to complete the same survey online. Most people have responded positively

Studies in the United States have found that nearly half of children with Autistic Spectrum Disorder (ASD) wander off or run away, often putting themselves in danger.

Parents and caregivers of children with autism often wonder what can be done to speed up response time if the child runs away in the community.

One of our lovely pro-active mums spoke recently to Leanne Fairbairn, Tauranga Community Constable, for advice.

Leanne advises parents to go to their nearest police station with the following:

Current photo of child

Date of Birth

Other relevant information – this could be “runs towards water, sticks to footpaths, hates cars, scared of sirens” to name a few

This information will be entered onto the police database so that all relevant information is instantly available to police should a parent find themselves in this position. In times of crises it can sometimes be the simplest thing that a parent may forget.

Since many children with autism cannot communicate effectively, it is important that they have proper identification in the event that they run away or get lost in the crowd. Some children can be taught to carry an identification card in a wallet and can learn to show their identification cards if they are not able to verbalize the infor-mation. But if your child lacks verbal skills or is afraid of strang-ers, there are other options avail-able. For example, a medical ID bracelet or necklace can work well - as long as your child can tolerate wearing it. Start by choosing a comfortable sport-band style ID or a silicone wristband in your child's favour-ite colour personalized with your name and emergency contact.

Persist as much as possible to encourage your little runner to keep it on. (Is the wrist simply a no-go? Try his ankle.) Another option is to use iron-on labels on his clothes. Just be aware that if your child wears a visibly named item of clothing (i.e. hat, backpack) that everyone can read it and call them by name.

Of course there is nothing that will feel as good as holding your child in your arms but a little planning now could make all the difference in quickly finding your precious child.

Tauranga Central Police Station

11 Monmouth Street

Tauranga

Phone: (07) 577 4300

PAGE 10

KEEPING YOUR ASD CHILD SAFE

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We would like give our heartfelt thanks to local resident Anne Burgraaf. Anne kindly donated Te Whanau Kotahi a piano accordion recently which had a lovely story attached to it. We decided to run a charity auction on Trade Me so that we could use the funds raised to purchase equipment to loan to children in our service. We thought we would share Anne’s story with you:

BARNEY ARNOLD DYER

1945-1990

My twin brother Barney was born on the 5th January 1945. It was soon established that he had been born with a crooked spine. At the age of one he was sent to the Wilson Home in Auckland where, for two years, he was put in traction

to try and straighten his spine. Our mother travelled to Auckland by bus every six weeks to visit him.

At the age of three our parents were told he would never walk, but they brought him home determined he would be a normal little boy. He grew, walked and participated in all aspects of school life both physically and academically. Our father loved having music in the house so we all played an instrument and he became very proficient on the piano accordion.

At 15 he left school to take up an apprenticeship as a typographer at the Bay of Plenty Times where he excelled in his exams and stayed for 9 years. He then travelled to England and worked at the United Metropolitan Press. From there he travelled to South Africa and

worked there until 1974 when he returned home on the death of our father.

He was soon back at the Bay of Plenty Times then Kale Printing where he remained until his sudden death at the age of 45 due to heart failure. Regardless of his short stat-ure and his "crookedness" he was never sorry for himself, just got on with it. He had a wonderful nature and was a very popular member of the RSA and the Fishing Club.

Ingredients

1. 4 eggs whites (at room temperature)

2. Pinch of salt

3. 250g castor sugar

4. 2 tsp of cornflour (sifted)

5. 1 tsp white wine vinegar

Method

1. Preheat oven to 120C. Line a tray with baking paper. Use a round baking tin to draw one large circle (22cm) then draw another circle inside it

approximately 13cm wide.

2. Beat egg whites and salt until soft peaks form. Beat in sugar, a little at time until meringue is stiff and shiny. Sprinkle over sifted cornflour, vinegar

and fold in lightly. You should be able to up end the bowl at this stage with no fear of anything coming out.

3. Grab a dessert spoon and scoop a dollop of meringue. Place this dollop between the outside and inside line. Repeat until a ring of meringue is

complete. Create a second layer of meringue on top of the first until second ring is complete. Flatten the top by smoothing the meringue.

4. Place meringue in oven for 2 hours at 120C. When time is complete, turn off the oven and leave meringue in the oven until completely cool. This

is very important as there will be less risk of the meringue cracking and collapsing. When cool, spread with whipped cream, drizzle on raspberry coulis then decorate with cherries, pomegranates, strawberries, raspberries and holly or

mint.

Raspberry Coulis: Blend fresh raspberries, lemon juice and sugar together until sugar has completely dissolved. Set aside until required.

BERRY PAVLOVA CHRISTMAS WREATH

TE WHANAU KOTAHI NEWSLETTER

PIANO ACCORDION CHARITY AUCTION

PAGE 11

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PAGE 12

RESOURCES

HELP ON THE WEB

www.depression.org.nz

If you know of a friend or family member who may have depression,

take some time to explore this site.

www.boxofideas.org

Dispraxia – box of ideas.

www.linkage.co.nz

Helps you access information and support for your

wellbeing.

www.cerebralpalsy.org.nz

Helps people with Cerebral Palsy by providing a

number of practical everyday programmes.

www.imaginebetter.co.nz

Provides advice and thought-leadership to people with

disabilities and their families.

www.lacbop.org.nz

Local Area Coordinators walk alongside disabled people and their

families/whanau to assist them to live good/everyday lives within wel-

coming communities, hapu and marae.

www.nzdsa.org.nz

To promote the participation of people with Down

syndrome in their community.

www.thinkdifferently.co.nz

Think Differently is a social change campaign to

encourage and support a fundamenta l sh i f t in

attitudes and behaviour towards disabled people.

www.triplep-parenting.net

Gives parents simple tips to help manage the big and small problems

of family life.

www.skylight.org.nz/Siblings+Support+Page

Skylight knows that the brothers and sisters of

children or teens who have a serious illness, a chronic health condi-

tion or a disability have their own unique needs too.

www.raisinggrandchildren.org.nz

Prov ide educa t iona l a nd suppor t serv ices tha t

protects, preserves and promotes the well being and stability of chil-

d r e n a n d t h e i r g r a n d p a r e n t s / k i n c a r e r s i n

circumstances where they cannot be raised by their parent/s.

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TE WHANAU KOTAHI NEWSLETTER PAGE 13

Phone: 07 571 4768

Fax: 07 571 4778

E-mail: [email protected]

Web: www.twk.org.nz

Te Whanau Kotahi

TE WHANAU KOTAHI CONTACT LIST

We’re on Facebook

http://www.facebook.com/

TeWhanauKotahiTauranga

DIRECT LINE EMAIL

RECEPTION

Deborah Nash

Office Mobile

571 4768 (phone)

571 4778 (fax)

027 431 7424

[email protected]

OFFICE

General Manager

Barry Davies

557 9092

[email protected]

Office Manager

Sherilyn Horne

557 9090

[email protected]

REFERRAL COORDINATOR &

SOCIAL WORKER

Ann Genner 557 9091 [email protected]

PSYCHOLOGIST

Chris McAlpine 571 4768 [email protected]

COMMUNITY FACILITATOR

Gill Duncan 557 9095 [email protected]

OCCUPATIONAL THERAPIST

Chris Creighton 571 4768 [email protected]

Alison Forbes 557 9093 [email protected]

Tui Poff-Nuku 571 4768 [email protected]

Jill Wham 571 4768 [email protected]

PHYSIOTHERAPIST

Margo McIntosh 557 9094 [email protected]

Julia Tinker 557 9094 [email protected]

VNT

Jo Ford 557 9098 [email protected]

Megan Kummer 557 9096 [email protected]

Chris North 557 9097 [email protected]

Kelly Hope 571 4768 [email protected]