Deal-iD Study: Dealing with daily challenges in Dementia A feasibility study of the Experience...
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Deal-iD Study:Dealing with daily challenges in Dementia
A feasibility study of the Experience Sampling Methodology
in spousal caregivers of people with dementia
Rosalie van Knippenberg, MSc
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Afdeling 2
Background
Lack of ecologically valid and sufficiently detailed information on how caregivers perceive and react on a daily basis to the challenges of dementia
Experience Sampling Method (ESM)momentary assessment in daily life
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Afdeling 3
PsyMate
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Afdeling 4
PsyMate
• ESM-based device• 10 random beeps per day• Monitors experiences and behavior of spousal
caregivers in daily life• Morning & evening questionnaire
Feedback on daily caregiver functioning:mood, burden, activities, events,
social situations
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Afdeling 5
PsyMate - Benefits
• Better monitoring of daily caregiver functioning
providing efficient care• Person-tailored feedback on relevant patterns
in daily life which activities/situations are associated with positive emotions?
• In-depth information on interaction patterns between caregiver and person with dementia
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Afdeling 6
Example of feedback
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Afdeling 7
① Feasibility study – background
• ESM has been studied intensively in psychiatric populations
• Introducing ESM in a new field study Fonareva et al. (2012) study Poulin et al. (2010)
• Adapt PsyMate to caregivers of people with dementia and conduct a feasibility study
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Afdeling 8
① Feasibility study – objectives
• Examining compliance with the PsyMate• Examining subjective experiences:
difficulty, time burden, overall acceptability• Examining presence of patterns in daily life
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Afdeling 9
① Feasibility study - methods
• 31 spousal caregivers of people with dementia
• Introduction session: explanation of study procedure and a 30-minute training session
• ESM period: ESM data collection for 6 consecutive days with PsyMate
• Debriefing session: assessment of general experiences with the PsyMate
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Afdeling 10
① Feasibility study - results
• 12 men, 19 women: mean age 70.25 years (SD: 6,13 years; range 57-82 years)
• High compliance rate of 78.8% (1466/1860)• 1 person was noncompliant with ESM• No fatigue effects: missing data were not
associated with number of days in the study
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Afdeling 11
① Feasibility study - results• Positive ratings regarding the difficulty, time burden,interference with daily activities, and overall acceptability
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Afdeling 12
Feasibility study
” I could always express my
feelings and thoughts in the
PsyMate – it felt like a real buddy
”
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Afdeling 13
① Feasibility study - results
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Afdeling 14
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Afdeling 16
① Feasibility study - results
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Afdeling 17
① Feasibility study - results
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Afdeling 18
① Feasibility study - results
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Afdeling 19
① Feasibility study - conclusions
• ESM seems to be a feasible method to gain more insight into daily caregiver functioning and relevant patterns in daily life
• The PsyMate is a feasible and user-friendly device to implement ESM in clinical practice
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Afdeling 20
② Next step: intervention study
• Evaluation of the effectiveness of the PsyMate in daily life to increase feelings of competence and control
• 6-week intervention period: ESM data collection with PsyMate Face-to-face feedback every two weeks
• 105 caregivers randomly assigned to 3 treatment arms: 1) intervention group 2) pseudo-intervention group 3) control group
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Afdeling 21
Acknowledgments
Project team:Dr. Marjolein de VugtProf. Dr. Frans VerheyProf. Dr. Rudolf PondsProf. Dr. Inez Myin-Germeys