Curriculum Vitae April 2018 - … · 11.04.2018 · 2015 University of Wollongong, Alumni Award...

KateSwaffer

CurriculumVitae

April2018

KateSwaffer:CurriculumVitaePOBox202Burnside5066|http://kateswaffer.com|http://www.infodai.org

Page2of12

AboutKateSwaffer:Katehasbeentherecipientofmanyawardsforherworkindementiaanddisabilityrights,andwasthe2017SAAustralianOfTheYear.ShereceivedtheUniversityofWollongong’sAlumniSocial ImpactAwardforherglobalwork indementia in2016,andwasamongsttheWestpac/FinancialReview100Womenof Influenceannouncedfor2016.Amongstanumberofotherprestigiousawards,shewasalsotheInauguralwinneroftheStirlingUniversityInternationalDementiaLeaderin2015,andwinner as an Emerging Leader in DisAbility Awareness in theNational Australian DisAbility Awards in2015.ShewasalsoinvitedtogivetheAAGSirKeithWilsonOrationinJune2017.Kate is the only Australian to be a full member of theWorld Dementia Council, a boardmember ofAlzheimer’s Disease International, and she is the Chair, CEO and co-founder of theDementia AllianceInternational,aglobaladvocacyandsupportgroupforpeoplelivingwithdementia.KateisacurrentPhDstudent (currently on a leave of absence), an Honorary Associate Fellowwith the Faculty of Science,Medicine and Health, University ofWollongong, a Fellow of the RSA, and an International Fellow atCanterbury Christ Church University. She completed a Masters of Science in Dementia Care with aDistinctionin2014.Sheisalsoaretiredchefhavingrunherownhospitalitybusinessesfortenyears,andbeforethatworkedasnurseworkedindementiaandagedcareandthenoperatingtheatres.Notably,inherhumanrightswork,sheisthefirstpersonlivingwithadiagnosisofdementiatogivenainvitedkeynotepresentationattheWorldHealthOrganisation(WHO)attheFirstMinisterialConferenceonDementiainMarch2015,whereshedemandedhumanrights,accesstotheConventionontheRightsofPersonswithDisabilities(CRPD)forallpeoplewithdementia,andabalanceinresearchbetweencareandcureontheglobalstage.ThesedemandswereincludedintheWHOFinalCallToAction,andhumanrightswere included in theGlobalActionPlan forDementiaadoptedat theWorldHealthAssembly inMay2017.Kate is an influential humanitarian andactivist for human rights for agedanddementia care. Shehasalways stood up for social justice as an advocate or in volunteering roles, and still volunteers for thehomelessinSouthAustralia,andtheBereavedThroughSuicideSupportGroup(SA)Incorporated.She is also awidelypublishedacademic, author andpoet.Her firstbookondementia,WhatTheHellHappened to My Brain?: Living Beyond Dementia, and her second dementia book Diagnosed withAlzheimer’soranotherdementia,co-authoredwithAssociateProfessorLee-FayLowwerebothreleasedin 2016, the latter currently being updated for an international audience. Her first two volumes ofpoetrywerepublished in2012and2016, andher third volume is currently inpress. She continues towriteandpublishacademicarticles,booksandbookchaptersregularly.Since2010,KateSwafferhasbeenactivelyworkingwithafocusonhumanrightsandaccesstotheCRPDforpeoplewithdementia,andhasgivenmorethan800invitedkeynotepresentationsonanumberoftopics,notonlyinthefieldofdementiaandhumanrights,butondisAbility,discrimination,stigma,thelived experience of dementia, dementia-enabling design principles, language, Dementia FriendlyCommunities, Prescribed Disengagement®, Models of care, Information Technology, Advocacy andActivism, dementia policy (local, national and global) and loss and grief. There has been a distincttransformationinherworkfromadvocacytoactivism,inAustraliaandontheglobalstageforallpeoplewith disAbilities, and specifically disAbilities caused by a diagnosis of a dementia. Kate also activelysupportstheDignityPartyinSouthAustralia,heronlypoliticalaffiliation.


Page3of12

CURRENTPROFESSIONALACTIVITIES→ DementiaAllianceInternational,Co-founder,ChairandCEO→ WorldDementiaCouncil,Member→ Alzheimer’sDiseaseInternational,Boardmember→ Saxtons,Internationalspeaker→ HighLevelMeetingSteeringCommittee,UnitedNations,Member→ CommunityofPractice(CoP)fortheMeaningfulInvolvementofPeopleLivingwithNCDs,Steering

CommitteeMember→ UnitedNationsCivilSocietyWorkingGroup,Member→ TheWorldwideHospicePalliativeCareAlliance(WHPCA),StakeholderCommitteeMember→ DepartmentofHealth,SDCUExpertAdvisoryGroup,2017/18,Member→ Consultant,DementiaCare→ UniversityofWollongong,PhDCandidateandResearcher→ Humanitarianandactivistforagedanddementiacare→ HumanRightsanddisAbilityActivist→ Publishedauthor,academicandpoet→ Member,DepartmentofHealthSA,OakdenWorkingGroup,2017→ Alzheimer’sDiseaseInternational,ScientificPanelCommitteeforADIChicago2018→ HonoraryAssociateFellowwiththeFacultyofScience,MedicineandHealth,Universityof

Wollongong→ Fellow,RoyalSocietyfortheencouragementofArts,ManufacturesandCommerce(RSA)→ InternationalFellow,CanterburyChristChurchUniversity→ GlobalActiononPersonhoodGAPinDementia,corememberoftheGlobalgroup,andChairofthe

Australianchaptersince2016→ SouthernDementiaAdvisoryGroup,Honorarymember(Kiama,NSW)→ Member,Alzheimer’sAustraliaDementiaAdvisoryCommittee(FounderandInauguralChair)→ ProfessionalAdvisoryBoard,TheBereavedThroughSuicideSupportGroup(SA)Inc.→ Member,DignityDisabilitySAEDUCATION2016 PhDCandidate,UniversityofWollongong(CurrentLeaveofAbsence)2014 MastersofScienceinDementiaCare(Distinction),UniversityofWollongong2010 BachelorofPsychology,UniSA2009 BachelorofArts,WritingandCreativeCommunication,UniSA2005 CertificateofSmallBusinessManagement,BusinessSA1989 GraduateDiplomainGriefCounseling,UniversityofBallarat1987 Chefdiploma:“AustralianCuisinewithCheongLiew”,RegencyParkTAFE1977 Nursestraining,WhyallaandCleveHospitals,SA


Page4of12

CURRENTRESEARCHPROJECTSKate’sPhDisbasedonethnographyandautoethnographytoreviewthelivedexperienceofdementia,attheUniversityofWollongong.ThefocusisofherPhDisstigmaandthepublicdiscourseofdementia.Herotherresearchprojectsincludeprojectsonalifestylecoachwithpeertopeersupportapproachtoadiagnosisofdementia,dementiaenablinguniversities,rehabilitationanddementia,PrescribedDisengagement®,legalcapacityofpeoplewithcognitivedisabilities,thediagnosisandpostdiagnosticexperienceofpeoplewithdementiaandtheirfamilies,anddementiacareintheLowandMiddleIncomeCountries(LMIC’s).HONORSANDAWARDS2017 SAParliamentaryMotion(60)bytheHonKellyVincentMLC,unanimouslyaccepted

recognisingmylocal,nationalandglobalworkindementia2017AustralianGerontologyAssociation(AAG)SA,TheSirKeithWilsonOration2017 AustralianofTheYearAward,SouthAustralianWinner2016 UniversityofWollongong,AlumniAwardSocialImpactAward,Winner2016 AustralianofTheYearAward,SouthAustralianFinalist2015 NationalDisabilityAwards:EmergingLeaderinDisabilityAwareness,Winner2015 DementiaLeader,UniversityofStirlingInternationalDementiaAwards,Winner2015 DignityinCareAchievementAward,OutstandingIndividualContributiontoDignityin

Care,Inauguralwinner2015 BethanieEducationMedallionAward,Winner2015 UniversityofWollongong,AAGCommunityEngagementAward,Winner2015 UniversityofWollongong,CommunityEngagementAward,Winner2015 UniversityofWollongong,AlumniAwardSocialImpactCategory,Runnerup2014 UniversityofWollongong,Master’sofScience(DementiaCare),Distinction2012 Creatinglifewithwords:Love,InspirationandTruthwasarchivedinthePANDORA

CollectionoftheState(SA)andNationalLibraryofAustralia2015 InternationalDementiaAwards:DementiaandtheArtsAlsoAMirror,ECH

Inc.andUrbanMythTheatreofYouthandKateSwaffer,SouthAustralia2012-13 PatronforTheVisitors,aplayaboutYoungerOnsetDementia,UrbanMythTheatre

GroupandECHResidentialAgedCare2008 BachelorofPsychologyUniversityMeritAward,UniSA; LifetimeGoldenKeyMembership,UniSATRADEMARKS2014 MytheoryofPrescribedDisengagement®receivedRegisteredTrademarkstatusafter

meetingthestringentTrademarkstatuscriteriaintwomedicalcategories.


Page5of12

SELECTEDPUBLICATIONSLow,L,McGrath,M,Swaffer,K,&Brodaty,H.(2018).Communicatingadiagnosisofdementia:Asystematicmixedstudiesreviewofattitudesandpracticesofhealthpractitioners.Dementia,OnlineFirst1-50.Swaffer,K.(2018).Humanrights,disabilityanddementia,AustralianJournalofDementiaCare,Vol7,(1),25-28.

Rahman,S.&Swaffer,K.(2018).Assetsbasedapproachedanddementiafriendlycommunities,Dementia,Vol17(2),131-137.DOI:10.1177/1471301217751533.

Swaffer,K.(2017).Sesaisirdelaquestiondesdroitsdel’Hommedansladémence.Gérontologieetsociété,vol.39/154,(3),21-29.doi:10.3917/gs1.154.0019.Swaffer,K.(2016).Co-productionandengagementofpeoplewithdementia:Theissueofethicsandcreativeorintellectualcopyright,Dementia,Vol.15(6)1319–1325.

Swaffer,K.(2016).Thehumanrightsofpeoplewithdementia:fromrhetorictoreality,GraphicPrint:RichmondSA.(PositionpaperproducedforDementiaAllianceInternational)

Swaffer,K.(2016).Whatpeoplewithdementiawantfromresidentialcarehomes,AustralianJournalofDementiaCare,vol.5,no3,21-23.Phillipson,L.Cridland,E,Swaffer,K.andBrennan-Horley,C.(2016).QualitativeResearchInvolvingPeoplewithDementia:RecommendationsforConductingSemi-StructuredInterviews,QualitativeHealthResearch,Vol26,Issue13,1774–1786,doi.org/10.1177/1049732316637065Fleming,R.Phillipson,L&Swaffer,K.(2016).DTSC’saimtocreateAustralia’sfirstdementiaenablinguniversity,AustralianJournalofDementiaCare,5-7.

Swaffer,K.(2015).PrescribedDisengagement™,Dementia,Vol.14,3-6.DOI:10.1177/1471301214548136

Swaffer,K.(2014).Dementia:Stigma,LanguageandDementia-friendly,Dementia,Vol.13(6)709–716,DOI:10.1177/1471301214548143.Swaffer,K.(2015).Notjusta“Challengingbehaviour”,AustralianJournalofDementiaCare,vol.4,no3,21-23.Swaffer,K.(2015).Thepoweroflanguage,AustralianJournalofDementiaCare,vol.4,no1,21-24.Swaffer,K.(2014/2015),Reinvestinginalifeisthebestprescription,AustralianJournalofDementiaCare,vol.3,no6,31-32.


Page6of12

Swaffer,K2014.Humanrightsinresidentialagedcare:Aconsumer’sperspective,AustralianJournalofDementiaCare,vol.3,no1,9-10.Swaffer,K.(2013/14).IntroducingtheAustralianDementiaAdvisoryCommittee,AustralianJournalofDementiaCare,vol.2,no6,pp.13-14.Swaffer,K.(2013).Drivinganddementia,AustralianJournalofDementiaCare,vol.2,no4,pp.17-18.Fleming,R,Phillipson,L,Swaffer,K,&Steele,L.(2016).Submission19:Inquiryintothe'IndefinitedetentionofpeoplewithcognitiveandpsychiatricimpairmentinAustralia'.

Swaffer,K.(2012).Dementia:thereality,InquiryintoDementiaEarlydiagnosisandIntervention,Submissionno71.

Swaffer,K.(2011).MyUnseenDisappearingWorld,TheBigIssue,no389,pp.16-19.Swaffer,K.(2008).Dementia:MyNewWorld,LINKDisabilityMagazine,vol.17,no4,pp.12-13.BOOKSSwaffer,K&Low,LF.(2016)."DiagnosedwithAlzheimer’soranotherdementia:Apracticalguideforwhat'snextforpeoplewithdementia,theirfamiliesandcarepartners",NewHollandPublishers:Sydney.Swaffer,K.(2016)."LoveLifeLoss,Arollercoasterofpoetryvolume3:HaikuMania",GinninderraPress,[InPress].Swaffer,K.(2016)."Whatthehellhappenedtomybrain?:Livingbeyonddementia",JessicaKingsleyPublishers:London.Swaffer,K.2012,Chpt7,‘YouLiveUntilYouDie’inWillis,P&Leeson,K(eds),LearningLifefromIllnessStories,PostPressed,MtGravatt,Qld,pp.90-101.Swaffer,K.(2016)."LoveLifeLoss,Arollercoasterofpoetryvolume2:Daysofdementia":,GinninderraPress.Swaffer,K.2012,LoveLifeLoss,Aroller-coasterofpoetry,GraphicPrintGroup,Richmond,SA.Swaffer,K.2010,‘Kate’inWordsThatShine,PoetryandPoeticsCentre,UniversityofSA,Magill,pp.11-16.Swaffer,K.2009,‘SlippingAway’inShort,Cetal(eds),Stratosphere,PipingShrike,UniversityofSA,Magill,p85.


Page7of12

PASTPROFESSIONALANDVOLUNTEERACTIVITIES(2007-2017)→ AustralianAgedCareQualityAgency(2016-2017)

o SteeringCommittee→ DignityinCareAustralia:Actiongroup,MemberandChampion(2013-2017)

o Conferencesubcommitteeo Educationsubcommittee

→ CognitiveDeclinePartnershipCentre,SteeringCommitteemember,2014-2016→ PaidConsultant,Alzheimer’sAustralia,DementiaFriendlyCommunities,2014-15→ InternationalConsortiumforHealthOutcomesMeasurement(ICHOM)DementiaWorkingGroup,

coremember,2014-15→ SupportingGP’sandPracticeNursesinthetimelydiagnosisofdementiaProject,SteeringCommittee

member,2015-2017→ NationalDementiainHospitalsprogram,Advisorycommitteemember,2015-2017→ ConsumeradvocatewithAlzheimer’sAustralia(Nationaloffice)2010-2017

o InauguralChair,DementiaAdvisoryCommittee(AADAC)2013-2017o Member,NationalConsumersAdvisoryCommittee(NCAC),2010-2015o Co-chair,ConsumerDementiaResearchNetwork(CDRN)2010-2016

CDRNsubgroupsandprojects:! ChildrenofYOD! Assistedtechnologiesproject,AssociateInvestigator! TRACSproject,consumerrepresentative! Hydrationproject! Thekeyworkerroleofpeoplewithdementiaandtheircarers! Systematicreviewandscopingstudyfortheimplementationofanational

approachtodementiaspecificAdvanceCarePlanning! Reviewinternationaldementiaguidelinesandsynthesisetodevelopnational

Australianguidelines→ ConsumeradvocatewithAlzheimer’sAustraliaSouthAustralia(AASA)

o AASAConsumersReferenceGroup(2010-2017)o YODreferencegroup(2014-2016)o DementiaFriendlyCommunitiesWorkingGroup(2014-2016)

→ ConsumerRepresentativewithHealthConsumersAllianceSAo OlderPersonsClinicalNetwork(2012-15-thiscommitteenolongerexistsnSA)o DementiaFrameworksteeringgroupo AdvancedCareDirectivescommittee

→ Authorandmanagerofthreepersonalwebsites,CreatingLifewithWords:Inspiration,Loveandtruth,LivingBeyondDementia,IntheKitchenandtheDementiaAllianceInternationalwebsite.

KateSwafferspersonalwebsiteCreatingLifewithWords:Inspiration,Loveandtruthisanonlinespacecommittedtomeaningfuldialoguewithawiderangeofstakeholdersaboutthecriticalissuesimpactingapersonlivingwithadiagnosisofdementiaandtheirlovedones.Currentlywithmorethan100,000subscribers,in2012itwasarchivedinthePANDORACollectionoftheState(SA)andNationalLibraryof


Page8of12

Australia.Thiswebsiteiscurrentlylistedinthefollowingeducationalinstitutionsandorganisationsasaresource:

o UniversityofWollongong,Master’sofScienceinDementiaCareo QueenMargaretUniversity,Edinburgh,MastersofNursingo EdinburghUniversity,MScDementia:InternationalExperience,Scotlando MurrayAlzheimerResearchandEducationProgram,OntarioCanadao NSWDepartmentofHealthDementiaCareResourceandTrainingNetworko FlindersUniversity,BachelorAppliedScience(Physiotherapy):Rehabilitationof

DegenerativeNeurologicalDisorderso UniversityofTasmania,Wicking’sUnderstandingDementiaMassiveOpenOnlineCourse

andBachelorofDementiaCareo YoungDementiaUK

REFEREESMr.GlennRees,Chair,Alzheimer’sDiseaseInternational0419303407,[email protected],AOOBE,journalist,businesswoman,televisionpersonalityandauthor,[email protected],(PastProfessorofInterdisciplinaryAgedCare,LaTrobeUniversity),0409392792,[email protected]


Page9of12

SUMMARYOFPROFESSIONALANDVOLUNTEERINGEXPERIENCECo-founder,Chair,andCEO,DementiaAllianceInternational(DAI):DAIisaglobaladvocacyandsupportgroup,of,byandforpeoplewithdementiaofwhichIamacofounder.ThroughcollaborationwithAlzheimer’sDiseaseInternational(ADI),DAIisthevoiceofpeoplewithdementiaglobally,andthepeakbodyforpeoplewithdementia.DAInowrepresentsmembersfrom44countries,isamemberoftheCouncilOfStateParties(COSP),hasObserverMemberstatuswithInternationalDisabilityAlliance(IDA)andisworkingtowardsbeinginofficialrelationswiththeWorldHealthOrganisation(WHO)andtheUnitedNations(UN).AscurrentChairandCEOofthisinternationalgroup,Katemanagestheglobalnetwork,collaborationwiththeotherpeakbodiessuchasAlzheimer’sDiseaseInternational,aswellasbeingonmanyofthesubcommitteesandnumerousnationalandregionalDementiaWorkingGroups.Katefrequentlyengageswiththemedia,advocatingforhumanrights,respectfuldementialanguagebothinthemedia,andwithinthewidercommunity.

NotablyKatehasbeentheleadingadvocatedemandinghumanrightsanddisabilityrightsforpeoplewithdementia,andledthisactivismandmovementbypeoplewithdementiaasthefirstpersonwithdementiatobeaninvitedkeynotespeakerattheWorldHealthOrganisationinMarch2015attheFirstMinisterialConferenceonDementia.Thatyear,shewasoneoftwowinnersoftheNationalDisabilityAwardsin2015,asanEmergingLeadersinDisabilityAwareness.WorldDementiaCouncil:TheWorldDementiaCouncil(WDC)isaninternationalcharity.Itconsistsof24seniorexpertsandleadersdrawnfromresearch,academia,industryandNGOsinbothhighincomeandlowandmiddle-incomecountriesandincludestwoleaderswithapersonaldementiadiagnosis.WDCstimulatesinnovationandidentifiesandpursuespriorityopportunitiesforglobalcollaborationagainstdementia.AllofWDC’smeetingsareattendedbyanumberofitsassociatemembers,includingfromnationalgovernments,theWHOandOECD.KateSwafferistheonlyAustraliantobeafullmember,andadvocatedformanymonthstoensurepeoplewithdementiawereincludedasmembers,throughherroleasChairofDementiaAllianceInternational.Therearetwomemberslivingwithdementia,andKateisalsoamemberoftwooftheGlobalTeams,oneonCare,theotheronRiskReduction.ICHOMStandardSetforDementia:TheInternationalConsortiumonHealthOutcomeMeasures(ICHOM)approachisbuiltonasolidframeworkdevelopedatHarvardBusinessSchoolbyProfessorsMichaelE.PorterandElizabethO.Teisberg.In2006,PorterandTeisbergwrotethewell-knownbook,RedefiningHealthCare,whichoutlinestheargumentforusinghealthoutcomesdatatoredefinethenatureofcompetitioninhealthcare.TheICHOMStandardSetforDementiaistheresultofhardworkbyagroupofleadingphysicians,measurementexpertsandpatients.Asafullmemberofthisteam,Kateprovidedbothintellectualadvice,andperspectivesfromtheexperienceoflivingwithdementiaandcaringforthreepeoplewithdementia,aswellasherbackgroundinnursing.ItwastherecommendationoftheoutcomesthatmattermosttopersonswithDementiathatinfluencedthissetofstandards.ICHOMurgesallprovidersaroundtheworldtostartmeasuringtheseoutcomestobetterunderstandhowtoimprovethelivesoftheirpatientswithdementia.

Alzheimer’sDiseaseInternational,BoardmemberandSEAsiaRegionalAmbassador:Alzheimer'sDiseaseInternational(ADI)believesthatthekeytowinningthefightagainstdementialiesinaunique


Page10of12

combinationofGlobalSolutionsandlocalknowledge.Assuch,itworkslocally,byempoweringAlzheimerassociationstopromoteandoffercareandsupportforpeoplewithdementiaandtheircarers,whileworkinggloballytofocusattentionondementia.Ourboardiscomposedofpeoplefromaroundtheworld,andourstaffteamisbasedinLondon.ADIistheinternationalfederationofAlzheimerassociationsaroundtheworld,inofficialrelationswiththeWorldHealthOrganization.EachmemberistheAlzheimerassociationintheircountrywhosupportpeoplewithdementiaandtheirfamilies.ADI'svisionisprevention,careandinclusiontoday,andcuretomorrow.KatehasbeenanactiveadvocateforpeoplewithdementiawithADIsince2012,andhasbeenontheboardasafullmembersince2014,andtheSEAsiaRegionalAmbassadorforADIsinceNovember2016.ShehasbeenamemberoftheADIScientificPanelforthelastfourinternationalconferences.

Alzheimer’sAustraliaDementiaAdvisoryCommittee:KateistheinauguralChairofthisgroup,andadvocatedfortwoyearsforittobesetupandsupportedbyAlzheimer’sAustralia.ThebroadpurposeoftheCommitteeIstobuildonconsumerfocuswithinAlzheimer’sAustraliaanditsStateandTerritorymemberorganisations,andincludesprovidingadviceandguidancetoAlzheimer’sAustraliaandtheFederalandstategovernmentsregardingtheissuesofimportanceorconcernspecificallytopeoplewithdementia.MembershipismadeupoftwelvepeoplewithdementiafromacrossAustralia,originallyfromtheagesof43and72.Itisthethirdofitskindintheworld,andtherearenowmanyothercountriessupportingDementiaWorkingGroups.KateisalsoveryactivelysupportingLowandMiddleIncomeCountriestosetthesegroupsup.Alzheimer’sAustraliaConsumerDementiaResearchNetwork(CDRN)Membersworkedtogethertosetprioritiesfordementiaresearchandresearchtranslation,andhaveresponsibilityfordrivingthedirection,assessmentandfundingdecisionsofAlzheimer’sAustralia’s$3.3mNationalQualityDementiaCareInitiative.Wehavedevelopedsubstantialexpertiseandasophisticatedunderstandingofthecomplexitiesofchanginghealthcarepracticetoreflectnewresearchfindings,andofevidence-basedapproachestodoingso.Thisinvolvementincludesanumberofsubgroupsandprojectsastheyarise.Thisgroupisnolongeroperational,althoughIamstillinvolvedinmanyresearchprojectsaroundAustraliaasaresultofit.Alzheimer’sAustraliaNationalConsumerAdvisoryCommittee(NCAC):ThebroadpurposeofthatCommitteeistobuildonconsumerfocuswithinAlzheimer’sAustraliaanditsStateandTerritorymemberorganisations,andincludesprovidingadviceandguidancetoAlzheimer’sAustraliaregardingtheissuesofimportanceorconcerntoconsumers;beingavailableforconsultationonissuesastheyarise;Identifyingemergingissuesofinteresttoconsumers;presentingaconsumerperspectiveinpublicforumsortothemedia;participatingonbehalfofAlzheimer’sAustraliaonexternalcommittees;contributingtoadvocacydocumentsincludingElectionManifestosandBudgetandothersubmissions;providingaconsumerperspectiveondementiaresearchpriorities;andmonitoringtheworkofAlzheimer’sAustraliainrelationtoconsumerissues.Thisinvolvementincludedanumberofsubgroupsandprojectsastheyarose.Thisgroupisnolongeroperational.Alzheimer’sAustraliaSA:ConsumersAllianceCommittee,DementiaFriendlyCommunitiesWorkingGroupandYoungerOnsetDementia(YOD)ReferencegroupConsultantprovidingagedanddementiacarestaffeducationandaconsumervoice:agrowingnumberofAgedCareproviders,includingGroupHomesAustralia,ACH,Eldercare,ECH,LorneHealthServices,


Page11of12

LyndochLiving(Warnambool),UnitingCommunities,RACF’sandChaplains,MasonicHomes,ECH,ACH,Eldercare,Resthaven,UnitingCommunities,SA&NTDementiaTrainingStudyCentre,DomiciliaryCareSA,CaringChoice,SAHealth,DomiciliaryCare,CaringChoice,whospecificallyrequestsupportfromKatefortheirworkinimprovingtheserviceprovisionofdementiacare,andimprovingdementiaenvironments.Katealsoguestlecturesatvariousuniversities,forexample,RMITandtheUniversityofWollongong.UrbanMythTheatreGroupandECH:CollaboratingonaplayTheVisitorsaboutYoungerOnsetDementia,andmajorcontributortoaccompanyingOnlineSACEEducationPacktosupportRadioNationalplayaboutolderonsetAlzheimer’sdisease,AlsoAMirrorPurpleOrangeandDisabilitySA:MemberNationalDisabilityServicesSA:Consumeradvocate,variousprojectsincludingNDIS HealthConsumersAllianceSA(HCA):TheprincipalgoaloftheSteeringCommitteeistofurtherdeveloptherecommendationsoutlinedintheSouthAustralianHealthServiceFrameworkforOlderPeople2009-2016andtomonitorimplementationoftherecommendationsfromtheNetworkandServicePlan.Thisincludesadvisingonthedevelopmentofpatientcentred,sustainableandeffectiveclinicalservicesacrossthecontinuumofcareusingmodelsofcarebasedonbestpracticeandpopulationneed.Themodelsshallbereadilyaccessible,efficientlyprovidedandevidencebased.Considerationwillbegiventoarangeofapproachestoensureservicesareequitableforruralandremoteconsumers,AboriginalandTorresStraitIslanderandspecialpopulationgroups.

AdelaideFringeMyUnseenDisappearingWorld,withaccompanyingYouthEngagementProgramEducationPacksupportingYears11&12throughSACE.DomiciliaryCareSAtrainingDVD,Kate’sstory:aproductionfundedandproducedin2012bythestategovernmentofSAfortrainingofstaffwithinthedepartmentandDomiciliaryCareSAResthavenIncandUnitingCommunities:‘Insider’sviewofdementiaandanenabler’sperspective’apresentation;Trainingandprojectsrelatedto:‘Understandingthevulnerabilitiesofolderpeople’-Resthaven’sHACCInnovativeProjects;‘StrongerCommunitiesBrighterFutures’;‘ConsumersDirectingConsumerDirectedCare’and‘HeadstarttoIndependence’;‘AssetBasedCommunityDevelopment’,‘ValuedSocialRoles’,‘ImportanceofRelationshipsandSocialConnection’-relatedto‘StrongerCommunitiesBrighterFutures’.‘ConsumerDirectedCare-UnderstandingControl’:relatesto‘ConsumersDirectingConsumerDirectedCare’;SteeringCommitteefor‘StrongerCommunitiesBrighterFutures’andaparticipantforthebookletTheGoodTheBadandTheBrilliant:Lessonsfromthejourneyoflivingwithdementia,publishedin2012SubmissiontoAustralianGovernmentHouseofRepresentativesCommittees:InquiryintoDementia:EarlydiagnosisandIntervention,resultingininvitationtopublicmeetinginAdelaide

GrahamWrightandAssociates,SuccessMotivationInstitute(nowLeadershipManagementAustralia):motivationalspeakerfrom1992-1996andfacilitatorofmotivationandtimemanagementworkshops.


Page12of12

TheBereavedThroughSuicideSupportGroupInc.(SA):CurrentlyProfessionalAdvisoryCommitteeMember;Katewasanactivevolunteerforovernineyears,astheInauguralChair,agriefsupportworker,workingwiththemediaandliaisingoncommunityawareness.Shealsoworkedasagriefeducatorandgriefsupportworker,facilitatingtwopeer-to-peergriefsupportgroupspermonthfornineyears,alsohostinga24/7Helplineforthatwholetermforallpeoplebereavedthroughsuicide.Thisworkincludedindividualandfamilycounseling,supportingfamiliesattheCoronersofficeandeducationofthecommunityontheimpactofsuicidegrief.Duringthistime,Katealsowasaninauguralmemberofagroupnolongerinexistence,PeopleAgainstTeenageSuicide(PATS),workingwithProfessorGrahamMartin,facilitatedamonthlysupportgroupforyoungpeopleunder18livingintheAdelaideHills,bereavedfromanytypeoflossandgrief.IndigenousTutor,Psychology,LawandJournalism:UniversityofSA,workingasacontracttutorfor8-10hoursperweekwith1stand2ndyearIndigenouspsychology,lawandjournalismstudents,RegionalSalesManagerroles:MölnlyckeHealthCare;MedicalConcepts,BunzlPtyLtd;RelianceMedical.KateprovidededucationandactivesalesintooperatingtheatresinherpositionwithMölnlyckeHealthCare,actingastheregionalmanagerinSA.Inthenextthreepositions,sheworkedasaRegionalManagerinfourstates(SA,NT,TAS&NSW),andprovidedsalessupporttointernalstaff,andeducationtostaffinhospitalsandagedcarefacilitiesonwoundcareandcontinencemanagement.Owner,ManagingDirectorandheadChef:Babette’sFeastsPtyLtdoperatingasthreeseparatefulltimebusinesses,KateSwaffer’sKatering,CaféCakeandBeaumontHouseEvents.SheownedandoperatedthesebusinessesthroughBeaumontHouseinBeaumontSouthAustraliaforalmosttenyears.GrahamWrightandAssociates:GrahamWrightwasoperatingasafranchiseforSuccessMotivationInstitute,nowLeadershipManagementInstitute.Kateworkedforthisorganisationinacasualcapacity,teachingmotivationthroughtheSMIprograms,andasamotivationalspeakerforfouryears.Duringthistime,shewasanactivememberofRostrumAustralia,anorganisationtosupportfindingyourvoiceinpublicspeaking.NavalMilitary&AirforceClubSAInc:PastBoardmember,membershipcommitteememberandactivememberfrom1987-2005.FlindersUniversity,SchoolofMedicine:grieflecturerspecificallylecturinginsuicidegrieftomedicalandnursingstudentsGlensidePsychiatricHospital:PastBoardmemberQualifiednurse:Kate’sfirstcareerwasinnursingspanning25years,specialisinginAgedandDementiacare,thenOperatingTheatres.Sheworkedatvariouspublicandprivatehospitalsandagedcarefacilities.Shecontinuestovolunteerinagedanddementiacare.

Curriculum Vitae April 2018 - … · 11.04.2018 · 2015 University of Wollongong, Alumni Award...

Documents

Transcript of Curriculum Vitae April 2018 - … · 11.04.2018 · 2015 University of Wollongong, Alumni Award...