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Transcript of Cultural Competency in Auditory Rehabilitation Recognizing that differences make a difference...
Cultural Competency in Auditory Rehabilitation
Recognizing that differences make a difference
Presented by
Ronald Jones, Ph.D., CCC-A and Scott Bally, Ph.D., CCC-SLP Norfolk State University Gallaudet University Norfolk, VA Washington, D.C [email protected] [email protected]
National Early Hearing Detection And Intervention (EDHI) Conference
February 2-3, 2006Renaissance Washington D.C. Hotel
Washington, D.C.
Faculty Disclosure Information In the past 12 months, we have not had a significant financial interest or other relationship with the manufacturer(s) of the product(s) or provider(s) of the service(s) that will be discussed in our presentation. This presentation will (not) include discussion of pharmaceuticals or devices that have not been approved by the FDA, nor any unapproved or “off-label” uses of pharmaceuticals or devices.
Introduction
This presentation will:
Provide basic information on the changing demographics of U.S. populations and the health disparities befalling some of those populations, to include hearing impairment;
List strategies to help practitioners identify specific cultural factors that tend to interfere with the delivery of competent auditory rehabilitation services, and
Offer recommendations on proven methods for working successfully with hearing impaired individuals whose social, educational, economic, or cultural backgrounds are vastly different from those of the practitioner.
Ethnic/Racial Groups: (2002) Euro-Americans 198 million (71.1%) Hispanic-Americans 34 million (12.5%) African-Americans 34 million (12.4%) Asian-Americans 11 million ( 4.0%) Native-Americans 2 million ( .7%)
U.S. Demographics - 2002 Total U.S. Population = 280 million people
2010 2050 Asian Americans: 5% 9% Hispanic Americans: 15% 24% African Americans: 12% 13% Euro Americans: 67% 53% Native Americans: .8% .8%
Projected U.S. Population increases (%) by year 2010 & 2050:
DIGITAL ATLAS OF THE UNITED STATES Dr. William A. Bowen California Geographical SurveyCalifornia State University, Northridgehttp://130.166.124.2/USpage1.html
Location/Population of Euro-Americans
Location/Population of African-Americans
DIGITAL ATLAS OF THE UNITED STATES Dr. William A. Bowen California Geographical SurveyCalifornia State University, Northridgehttp://130.166.124.2/USpage1.html
Location/Population of Hispanic-Americans
DIGITAL ATLAS OF THE UNITED STATES Dr. William A. Bowen California Geographical SurveyCalifornia State University, Northridgehttp://130.166.124.2/USpage1.html
Location/Population of Native-Americans
DIGITAL ATLAS OF THE UNITED STATES Dr. William A. Bowen California Geographical SurveyCalifornia State University, Northridgehttp://130.166.124.2/USpage1.html
Location/Population of Asian-Americans
DIGITAL ATLAS OF THE UNITED STATES Dr. William A. Bowen California Geographical SurveyCalifornia State University, Northridgehttp://130.166.124.2/USpage1.html
Demographic Changes in the U.S.
By 2050, it is estimated that racial/ethnic “minorities” will make up approximately 50 percent of the U.S. population.
This growth will necessitate that changes be made in the way we see and do things, particularly with respect to the delivery of human resource services.
Examples of health disparities between white population and ethnic minority populations in the U.S. Minority populations suffer higher rates of morbidity and mortality. Infant mortality rates are 2 1/2 times higher for African Americans and 1 1/2 times
higher for American Indians/Alaska Natives. African American men under 65 suffer from prostate cancer at nearly twice that of
white Americans. Asian Americans and Pacific Islanders have the highest rates of tuberculosis. Hispanic Americans have two to three times the rate of stomach cancer. American Indians/Alaska Natives suffer from diabetes at nearly three times the
average rate, while African Americans suffer 70 percent higher rates than white Americans.
More than 75 percent of AIDS cases among women and children occur among racial/ethnic minorities, primarily African American and Hispanic American.
Although Asians and Pacific Islanders (A/PIs) tend to be one of the healthiest populations in the United States, different groups within this population vary widely on health indicators. For example, women of Vietnamese origin have cervical cancer rates nearly five times that of white women.
The infant mortality rate of American Indians and Alaska Natives is almost double that of whites, and the infant death rate among African Americans is more than twice as high as that of whites.
Hispanics living in the United States are almost twice as likely to die from diabetes, and they have higher rates of high blood pressure and obesity.
Health Resources and Services Administration
U.S. Department of Health and Human Services
Cultural and linguistic barriers that racial/ethnic minorities encounter when seeking health care: Lack of communication and comfort can occur between
patient and provider when cultural differences in perceptions of illness, disease, and medical roles are not recognized and addressed, thereby adversely affecting health outcomes.
Providers do not have adequate knowledge about research findings which indicate that many disease conditions disproportionately impact minorities.
Lack of health insurance, Immigration status, Poverty, Discrimination, Lack of access to high quality educational opportunities, Unavailability of transportation and childcare, and Inconvenient and insufficient hours of operation at health
facilities.
Health Resources and Services Administration
U.S. Department of Health and Human Services
Minority health focuses on:
Addressing the multiple complex issues related to eliminating health disparities for racial/ethnic minorities.
Facilitating an understanding of the benefits of culturally competent health care, thereby reducing the potential for misdiagnosis of clients and inappropriate treatment.
Promoting an understanding of racial and ethnic differences in response to drugs.
Stimulating the development of strategies to overcome racial biases in the delivery of health care.
Fostering the integration of culturally-related health factors into the design of intervention programs.
Supporting the adoption of policies and research initiatives that enhance health outcomes for underserved minority populations and
Directly address the design and delivery of health care systems that respond to the specific needs of racial/ethnic minorities.
Health Resources and Services Administration
U.S. Department of Health and Human Services
Hearing loss and its rehabilitation
Incidence per 10,000 of Congenital Defects/Diseases
30
12 11
6 52 1
0
10
20
30
40
Age (yrs.) African American (%)
Euro-American (%)
3-17 1.2 1.9
18-44 2.1 4.9
45-64 7.2 13.4
65 and older 18.7 30.1
Total (ave.) 7.3 12.5
Prevalence of Hearing Impairment in the U.S. by Age Group and Race
Source: Data from the National Center for Health Statistics. (1994). National Health Interview Survey.
Series 10, No. 188, Table 2. Hyattsville, MD: National Center for Health Statistics.
Statistics
According to the Gallaudet Research Institute, 45.2 percent of the children in the United States who are deaf or hard-of-hearing are racial/ethnic minorities. Of this total:
17 percent are African American, 20.4% are Hispanic, 4.2% are Asian American/Pacific Islander, 0.8% are American Indian/Alaskan Native, and 3.1% cite other or multiethnic background (Holden-Pitt & Diaz, 1998).
The clients audiologists serve mirror the demographic changes in the U.S. population.
Gallaudet Research Institute Holden-Pitt & Diaz, 1998
Factors that might affect therapeutic outcomes in audiology/aural rehab:
Culture
Fortunately, the quasi-prescriptive approaches used by audiologists are fairly amenable ataddressing differences between mild, moderate, severe and profound hearing losses
Degree of hearing loss
Age at onset
Personality
Socio-economics
Factors that might affect therapeutic outcomes in audiology/aural rehab:
Culture
Different diagnostic and therapeutic approaches Are available to accommodate the behavior andlinguistic needs of clients.
Degree of hearing loss
Age at onset
Personality
Socio-economics
Factors that might affect therapeutic outcomes in audiology/aural rehab:
Culture
Individual and/or group therapy approachesUsed to accommodate the personality (i.e.,(introvert, extrovert) characteristicsof clients that tend to impact on the delivery and reception of therapeutic approaches.
Degree of hearing loss
Age at onset
Personality
Socio-economics
Factors that might affect therapeutic outcomes in audiology/aural rehab:
Culture
Factors into the availability of services andclient’s capacity to purchase high end products
Degree of hearing loss
Age at onset
Personality
Socio-economics
Factors that might affect therapeutic outcomes in audiology/aural rehab:
Culture
Where differences in the values, attitudes, beliefs,behaviors, etc. of certain ethnic minority groupscan affect the interaction between them andpractitioners.
Degree of hearing loss
Age at onset
Personality
Socio-economics
Culture Defined:
“A shared system of values, attitudes, beliefs, and learned behaviors, which are shaped by such factors as geographic or social proximity, common education, age, gender, and sexual preference.“
Low, S.M. (1984). The cultural basis of health, illness and disease. Soc Work HealthCare; 9:13-23.
““Cultural Jeopardy”Cultural Jeopardy”
A definition will be presented and you must determine the appropriate word
from the list.
How to play:How to play:
Prejudice
Ethnocentrism
Stereotype
Sexism
Multiculturalism
Cultural Sensitivity
Ethnicity
Racism
Race
Internalized Oppression
Discrimination
Heterosexism
Culture
The ability to be open to learning about and accepting of different
cultural groups.
Cultural Sensitivity
1
A belief that racial differences produce an inherent superiority of a
particular race.
Racism
2
Prejudice
Ethnocentrism
Stereotype
Sexism
Multiculturalism
Cultural Sensitivity
Ethnicity
Racism
Race
Internalized Oppression
Discrimination
Heterosexism
Culture
A generalization of characteristics that is
applied to all members of a cultural group.
Stereotype
3
Prejudice
Ethnocentrism
Stereotype
Sexism
Multiculturalism
Cultural Sensitivity
Ethnicity
Racism
Race
Internalized Oppression
Discrimination
Heterosexism
Culture
A subconscious belief in negative stereotypes
about one’s group that results in an attempt to fulfill those stereotypes
and a projection of those stereotypes onto other members of that group.
Internalized oppression
4
Prejudice
Ethnocentrism
Stereotype
Sexism
Multiculturalism
Cultural Sensitivity
Ethnicity
Racism
Race
Internalized Oppression
Discrimination
Heterosexism
Culture
A belief in the inherent superiority of one
pattern of loving over all and thereby the right to
dominance.
Heterosexism
5
Prejudice
Ethnocentrism
Stereotype
Sexism
Multiculturalism
Cultural Sensitivity
Ethnicity
Racism
Race
Internalized Oppression
Discrimination
Heterosexism
Culture
To make a difference in treatment on a basis other than
individual character.
Discrimination
6
Prejudice
Ethnocentrism
Stereotype
Sexism
Multiculturalism
Cultural Sensitivity
Ethnicity
Racism
Race
Internalized Oppression
Discrimination
Heterosexism
Culture
The recognition and acknowledgement that society is pluralistic. In
addition to the dominant cultural, there exists many
other cultures based around ethnicity, sexual orientation, geography, religion, gender,
and class.
Multiculturalism7
Prejudice
Ethnocentrism
Stereotype
Sexism
Multiculturalism
Cultural Sensitivity
Ethnicity
Racism
Race
Internalized Oppression
Discrimination
Heterosexism
Culture
An attitude, opinion, or feeling formed without
adequate prior knowledge, thought, or
reason.
Prejudice
8
Prejudice
Ethnocentrism
Stereotype
Sexism
Multiculturalism
Cultural Sensitivity
Ethnicity
Racism
Race
Internalized Oppression
Discrimination
Heterosexism
Culture
The belief in the inherent superiority of one sex (gender) over the other and thereby
the right to dominance.
Sexism
9
Prejudice
Ethnocentrism
Stereotype
Sexism
Multiculturalism
Cultural Sensitivity
Ethnicity
Racism
Race
Internalized Oppression
Discrimination
Heterosexism
Culture
A body of learned beliefs, traditions,
principles, and guides for behavior that are shared
among members of a particular group.
Culture
10
Prejudice
Ethnocentrism
Stereotype
Sexism
Multiculturalism
Cultural Sensitivity
Ethnicity
Racism
Race
Internalized Oppression
Discrimination
Heterosexism
Culture
To judge other cultures by the standards of one’s own,
and beyond that, to see one’s own standards as the true universal and the other culture in a negative way.
Ethnocentrism
11
Prejudice
Ethnocentrism
Stereotype
Sexism
Multiculturalism
Cultural Sensitivity
Ethnicity
Racism
Race
Internalized Oppression
Discrimination
Heterosexism
Culture
As a biological concept, it defines groups of people
based on a set of genetically transmitted characteristics.
race
12
Prejudice
Ethnocentrism
Stereotype
Sexism
Multiculturalism
Cultural Sensitivity
Ethnicity
Racism
Race
Internalized Oppression
Discrimination
Heterosexism
Culture
Sharing a strong sense of identity with a particular religious,
racial, or national group.
Ethnicity
13
Prejudice
Ethnocentrism
Stereotype
Sexism
Multiculturalism
Cultural Sensitivity
Ethnicity
Racism
Race
Internalized Oppression
Discrimination
Heterosexism
Culture
Cultural Competence Defined
A set of congruent behaviors, attitudes, and policies that come together in a system, agency, or among professionals that enables effective work in cross-cultural situations.
"Competence" implies having the capacity to function effectively as an individual and an organization within the context of the cultural beliefs, behaviors, and needs presented by consumers and their communities.
Office of Minority Health (OMH) , 2001
How can cultural competence be achieved in aural rehabilitation?
Begin with the routine aural rehabilitation process, but infuse cultural perspectives into both diagnostic and therapeutic aspects, particularly in the following areas:
Aural Rehabilitation Plan with infusion of major cultural considerations
Nancy Tye-Murray, Foundations of Aural Rehabilitation, Singular Publishing Group, 1998 p.271 (with permission)
ClientEvaluation
Information and AffectiveCounseling
CommunicationTraining
Assistive Devices
Hearing Aids
Psychosocial Adjustment
Regular Follow-up
Evaluationsand Services
Aural Rehabilitation Plan with infusion of marginal cultural considerations
ClientEvaluation
Information and AffectiveCounseling
CommunicationTraining
Assistive Devices
Hearing Aids
Psychosocial Adjustment
Regular Follow-up
Evaluationsand Services
MarginalCultural Considerations
MarginalCultural Considerations
Nancy Tye-Murray, Foundations of Aural Rehabilitation, Singular Publishing Group, 1998 p.271 (with permission)
Aural rehabilitation plan with infusion of cultural considerations during client evaluation
ClientEvaluation
Information and AffectiveCounseling
CommunicationTraining
Assistive Devices
Hearing Aids
Psychosocial Adjustment
Regular Follow-up
Evaluationsand Services
Nancy Tye-Murray, Foundations of Aural Rehabilitation, Singular Publishing Group, 1998 p.271 (with permission)
Patient Evaluation
Questions asked during the preliminary diagnostic processes should be relevant and to the point.
Double-barreled or judgmental questions should be avoided.
Build upon positive statements, think from a constructive point of view
Use words that come naturally to you, but are meaningful to the client.
Avoid questions requiring merely “yes” or “no” responses
Aural Rehabilitation Plan with insertion of cultural considerations for information and affective counseling
ClientEvaluation
Information and AffectiveCounseling
CommunicationTraining
Assistive Devices
Hearing Aids
Psychosocial Adjustment
Regular Follow-up
Evaluationsand Services
Nancy Tye-Murray, Foundations of Aural Rehabilitation, Singular Publishing Group, 1998 p.271 (with permission)
Informational and Affective Counseling
Use educational and informational approaches that will capture the client’s attention and interest.
Informational booklets, pamphlets, etc. provided to clients should be relevant and representative of the racial, ethnic or minority groups being served.
Avoid stereotyping (e.g., appearance, behaviors, etc.) and misapplication of personal information garnered during case history.
Take a proactive, problem solving approach
Aural Rehabilitation Plan with insertion of cultural considerations for personal adjustment counseling
ClientEvaluation
Information and AffectiveCounseling
CommunicationTraining
Assistive Devices
Hearing Aids
Psychosocial Adjustment
Regular Follow-up
Evaluationsand Services
Nancy Tye-Murray, Foundations of Aural Rehabilitation, Singular Publishing Group, 1998 p.271 (with permission)
Psychosocial Adjustment
Use cultural referents to establish therapeutic goals and objectives
Explore client’s prior experiences with hearing healthcare services
Explore client’s support system (i.e., family, community, social services agencies, ) to determine their adequacy
Refer client’s whose needs exceed your capacity to assist or to rehabilitate.
Aural rehabilitation plan with insertion of cultural considerations in communication training
ClientEvaluation
Information and AffectiveCounseling
CommunicationTraining
Assistive Devices
Hearing Aids
Psychosocial Adjustment
Regular Follow-up
Evaluationsand Services
Nancy Tye-Murray, Foundations of Aural Rehabilitation, Singular Publishing Group, 1998 p.271 (with permission)
Communication Training
For auditory training, incorporate culturally relevant materials into Communication training activities (i.e., culturally popular music, speeches, etc.)
For linguistically diverse clients, consult with interpreters regarding methods and materials that are more relevant to client’s interests or needs.
Determine the cultural relevance and appropriateness of speech-reading training, before initiating such training.
Assessing your cultural awareness
Stage Development of Cultural Awareness
Stage 1: Unawareness of cultural/social issues
Description: Person does not entertain any cultural/social difference hypotheses
Consequence: Person does not understand the significance of an individual’s cultural/social background. Tends to be naïve with respect to cultural/social difference issues.
Stage 3: Consideration of cultural/social differences
Description: A person becomes hyper-vigilant in identifying cultural/social factors and is at times confused in determining the cultural/social significance of a person’s actions.
Consequences: The consideration of cultural/social influences is initially perceived as a distraction, something which Negatively impacts on social effectiveness (education, business, health, etc.) Later. Values relating to differences are recognized and begin to be considered.
Stage 2: Heightened awareness of culture and social differences
Description: A person is suddenly aware that cultural factors are important in fully understanding another person.
Consequences: Initially feels unprepared to relate to culturally/socially different person. Frequently applies one’s own perception of the person’s background usually based on stereotypes, and therefore fails to understand the significance of cultural/social influences for developing behaviors.
Stage 4: Cultural/social sensitivity
Description: A person entertains cultural/social difference hypotheses and carefully tests these hypotheses from multiple sources before accepting cultural/social explanations.
Consequences: Increased likelihood of accurately understanding the role of culture, etc. in a person’s social functioning.
Assessing your cultural values
Determining your own cultural values: The following lists of statements represent two divergent cultural perspectives. Place an (X) at a location between each pair of statements to indicate the strength of your conviction for the statement of your choosing.
Mastery over naturePersonal control
DoingTime dominatesHuman equality
Individualism/privacyYouth
Self sufficiencyCompetition
Future orientationInformalityDirectness
Practicality/efficiencyMaterialism
Harmony with natureFateBeingPersonal needs dominateHierarchy/rank/statusGroupEldersBirthright/inheritanceCooperationPast or present orientationFormalityIndirectnessIdealismSpiritualism
Statement |___|___|___|___|___|___|___|___|Statement
VeryStrong
VeryStrong
Adapted from Schilling & Brannon, 1986
Explanation: The statements to the left side of the page are representative of Anglo-Saxon, European–American cultures. The statements to the right side of the page are representative of Ethnic minority sub-cultures.
Mastery over naturePersonal control
DoingTime dominatesHuman equality
Individualism/privacyYouth
Self sufficiencyCompetition
Future orientationInformalityDirectness
Practicality/efficiencyMaterialism
Harmony with natureFateBeingPersonal needs dominateHierarchy/rank/statusGroupEldersBirthright/inheritanceCooperationPast or present orientationFormalityIndirectnessIdealismSpiritualism
Adapted from Schilling & Brannon, 1986
Euro-American
Ethnic minority American
Cultural Pattern #1 – Alignment with Euro-centric American cultural values
Mastery over naturePersonal control
DoingTime dominatesHuman equality
Individualism/privacyYouth
Self sufficiencyCompetition
Future orientationInformalityDirectness
Practicality/efficiencyMaterialism
Harmony with natureFateBeingPersonal needs dominateHierarchy/rank/statusGroupEldersBirthright/inheritanceCooperationPast or present orientationFormalityIndirectnessIdealismSpiritualism
Statement |___|___|___|___|___|___|___|___|Statement
VeryStrong
VeryStrong
Adapted from Schilling & Brannon, 1986
X X X X XX X XX X X X XX
Cultural pattern #2 – Alignment with Ethnocentric American cultural values
Mastery over naturePersonal control
DoingTime dominatesHuman equality
Individualism/privacyYouth
Self sufficiencyCompetition
Future orientationInformalityDirectness
Practicality/efficiencyMaterialism
Harmony with natureFateBeingPersonal needs dominateHierarchy/rank/statusGroupEldersBirthright/inheritanceCooperationPast or present orientationFormalityIndirectnessIdealismSpiritualism
Statement |___|___|___|___|___|___|___|___|Statement
VeryStrong
VeryStrong
Adapted from Schilling & Brannon, 1986
X X X X XX X XX X X X XX
Mastery over naturePersonal control
DoingTime dominatesHuman equality
Individualism/privacyYouth
Self sufficiencyCompetition
Future orientationInformalityDirectness
Practicality/efficiencyMaterialism
Harmony with natureFateBeingPersonal needs dominateHierarchy/rank/statusGroupEldersBirthright/inheritanceCooperationPast or present orientationFormalityIndirectnessIdealismSpiritualism
Statement |___|___|___|___|___|___|___|___|Statement
VeryStrong
VeryStrong
Adapted from Schilling & Brannon, 1986
X X X X XX X XX X X X XX
Cultural pattern #3 – Non-Alignment, culturally neutral; in state of cultural transition between Euro-centric and Ethno-centric values
Cultural pattern #4 – Culturally non-aligned, maybe uncertain about cultural dimensions, or unfamiliar with concepts associated with cultural identity, or the significance of these culturally-based statements
Mastery over naturePersonal control
DoingTime dominatesHuman equality
Individualism/privacyYouth
Self sufficiencyCompetition
Future orientationInformalityDirectness
Practicality/efficiencyMaterialism
Harmony with natureFateBeingPersonal needs dominateHierarchy/rank/statusGroupEldersBirthright/inheritanceCooperationPast or present orientationFormalityIndirectnessIdealismSpiritualism
Statement |___|___|___|___|___|___|___|___|Statement
VeryStrong
VeryStrong
Adapted from Schilling & Brannon, 1986
X X X X X
X X X X X X X X X
An Aural Rehabilitation Model
Bally’s Aural Rehabilitation Model
Bally (1999) introduced a model that illustrates how the diagnostic and rehabilitative aspects of audiologic management can be merged. The model shows the multiple components and various levels (tiers) of interactions involved in contemporary audiometric and aural rehabilitative processes.
Bally’s Aural Rehabilitation Model (cont’d)
With only minor modifications, Bally’s model is an excellent vehicle for demonstrating how cultural competence can be infused into the aural rehabilitation process. The following schematics illustrate the models components and interactions:
Personal FactorsC
onte
xtu
al S
yste
ms
Macro-Systems
Time
Psychological Factors
Meso-Systems
Micro-Systems
Biolo
gica
l
Cogni
tive
Affecti
ve
Behav
ioral
Spirit
ual
Asses
smen
ts
Rehab
ilitat
ion
Accom
mod
ation
Bally’s Aural Rehabilitation Model
Personal Factors
Biolo
gica
l
Spirit
ual
Bally’s Personal Factors
In this model, Biological refers to the function or in this case a malfunction of the auditory system
Spiritual refers to the inextricable desire of many humans to entreat a “higher power’s” help in their time of need.
Cogni
tive
Affecti
ve
Behav
ioral
Psychological Factors
Bally’s Psychological Factors
Cognitive refers to the thought processes and level of understanding a person has regarding their hearing loss.
Behavioral refers to the actions a person takes regarding managementof their hearing problems
Affective refers to the emotional reactions a person experiences from being hearing impaired
Personal Factors
Psychological Systems
Micro-Systems
Biolo
gica
l
Cogni
tive
Affecti
ve
Behav
ioral
Spirit
ual
Psychological Factors
Factors Connected
When personal and psychological factors are inter-connected, they comprise Bally’s concept of the Micro-systems. These are those basic factors the client brings to the diagnostic and rehabilitation processes.
Conceptually, all of these factors develop over a period of time
Time
Micro-System Identifiers focus on Assessment)
Point where: Preliminary diagnostic processes (i.e.,
case history, medical exam, etc.) are initiated at this level.
Hearing loss is identified and discussed with client
Hearing “handicap” and hearing aid candidacy is determined.
Hearing rehabilitation plan is introduced.
Scott Bally (1999)
Micro-Systems (cont’d)Hearing handicap inventories and scales
are used specifically to identify: Personal or individual resilience factor\
s Client’s concerns regarding their loss
of hearing Immediate effects of hearing loss on
interpersonal communication Other interpersonal effects (i.e., worry,
fear, loss of self esteem, etc.).
Scott Bally (1999)
Personal Factors
Biolo
gica
lCog
nitiv
eAffe
ctive
Behav
ioral
Spirit
ual
Psychological Systems
Psychological Factors
Meso-Systems
Micro-Systems
Biolo
gica
l
Cogni
tive
Affecti
ve
Behav
ioral
Spirit
ual
Asses
smen
ts
Rehab
ilitat
ion
Con
text
ual
Sys
tem
s*
The Meso-Systems (A focus on Rehabilitation)
*Contextual systems refer to how the personal and psychological factors interact at various levelsin the model.
Time
Meso-System Identifiers:
Those factors that account for rehabilitation outcomes:
Accessibility to hearing healthcare services and practitioners in the client’s community
Availability to family support and other support groups
Availability to educational support services for hearing impaired children, and parent groups
Scott Bally (1999)
Personal Factors
Biolo
gica
lCog
nitiv
eAffe
ctive
Behav
ioral
Spirit
ual
Psychological Systems
Macro-Systems
Time
Psychological Factors
Meso-Systems
Micro-Systems
Biolo
gica
lCog
nitiv
eAffe
ctive
Behav
ioral
Spirit
ual
Asses
smen
ts
Rehab
ilitat
ion
Accom
mod
ation
Con
text
ual
Sys
tem
s
The Macro-Systems(A focus on Adaptations)
Macro-System Identifiers
National-based systems that influence aural rehabilitation services:
Science/Technology advances Social security Medicare/Medicaid Welfare (welfare reform) Federal laws (i.e., ADA, IDEA, etc.)
Scott Bally (1999).
Macro-System Identifiers: Science/TechnologyThe major influences on economics, social accessibility, quality of life issuesSocial securityMedicare/MedicaidWelfare (welfare reform) Federal laws (i.e., ADA)
Meso-System Identifiers:Availability of services and practitioners in the communityFamily support and support groupsEducational support for hearing impaired childrenParent support groups for hearing impaired children
Micro-System Identifiers:Starting point for rehabilitation processesHearing disability is identified using conventional aassessment techniques and devices (i.e., pure tone, SRT, SD, etc.)Hearing aid evaluations are conductedSpeech reading assessments are conductedHearing handicap inventories and scales help identify:Personal or individual resilience factorsConcerns regarding loss of hearing Effects on interpersonal communicationOther interpersonal effects (i.e., self esteem, etc.)
Cognition Spiritual Behaviors
Biological
Psychological Factors Personal Factors
Micro-Systems
Meso-Systems
Macro-Systems
Affective
Bally’s Model
Another look at Bally, with cultural perspectives identified.
Cognition
Spiritual
Affective Behaviors
Biological
Cultural Factors
Micro-Systems
Meso-Systems
Macro-Systems
Modified Aural Rehabilitation Model with Cultural Factors
Jones, 2001
A Minority Perspective
In 1987, Jones and Richardson-Jones found a disturbing pattern of hearing healthcare issues following a series of health-care screenings conducted in a number of communities across the city of Richmond VA. The majority of African-American senior citizens, who had failed the hearing screening tests, expressed serious concerns about their hearing losses.
A Minority Perspective (cont’d)
Some of their concerns were consistent with those of non-minorities residents. However, most were not.
Common concerns of minority and non- minority elders found with hearing loss:
The nature and extent of the hearing loss.
What caused the hearing loss? Will it get worse? What can be done to correct it? What will it cost?
Jones and Richardson-Jones (1987)
The Minority Perspective (cont’d)
Although the African-American seniors in the Richmond study had comparable concerns with those of their non-minority counterparts, there were several notable differences between the two groups. The African-American seniors differed with regards to:
•the level of their general knowledge and understanding about the ear and hearing processes (cognitive);
The Minority Perspective (cont’d)
• their reaction as to what they would do or could do about the hearing loss (behavior), and
• how they felt about having to contend with a hearing loss and its associated problems (affective).
The Minority Perspective (cont’d)
•Although the types of hearing losses identified (e.g., sensorineural, conductive, mixed) were comparable between minorities and non-minorities, there as a notable delay in minorities seeking assistance, thereby exacerbating the hearing condition (biological)
Summary of differences between non-minority and minority senior citizensNon-Minorities: Likely to have had prior positive
experience(s) with hearing aids or assistive devices
Have other family members or friends who have worn hearing aids
Expect to be able to experiment with hearing aid prior to purchasing
Have access to more information about hearing aids and other devices
Have positive expectations about the outcome of hearing aid use and aural rehabilitation
Minorities: Little to no experience with
hearing aids, etc. Not likely to know anyone
who has worn a hearing aid Has no expectation of being
able to try hearing aids before purchasing
Does not have access to additional information about hearing aids, etc.
Has less than positive expectations about the outcome of hearing aid use and aural rehabilitation
Jones and Richardson-Jones, (1987)
Regarding the Micro-Systems, “ Minorities” tend to have:
• Misconceptions of the role of some health care providers (e.g., “What does an audiologist do?”• Less experience with testing procedures and rehabilitation
Biolog
ical
Spiri
tual
Behav
ioral
Cognit
ive
Emot
iona
l
Micro-Systems
Jones & Richardson-Jones, 1989
Regarding the Micro-Systems, “ Minorities” tend to have: (cont’d)
• More peripheral health and/or social problems associated with socio-economic issues (e.g., limited financial resources).
Regarding the Meso-Systems, “Minorities” tend to have:
• Little to no social connection to healthcare from which to garner personal support and “free” information• Less knowledge and experience with amplification devices
•
•.
Biolog
ical
Spiri
tual
Behav
ioral
Cognit
ive
Affecti
ve
Meso-Systems
Jones & Richardson-Jones 1989
Regarding the Meso-Systems, “Minorities” tend to have: (cont’d)
•Few if any family or friends who have worn hearing aids, consequently no direct support is available from someone familiar with problems associated with hearing loss
Jones & Richardson-Jones 1989
Regarding the Macro-Systems, “ Minorities” tend to have:
• Limited access to privately managed healthcare providers; relying instead on social service agencies and clinics for healthcare • More negative experiences with healthcare delivery which predisposes one to have negative expectations of outcome
•
Biolog
ical
Spiri
tual
Behav
ioral
Cognit
ive
Affecti
ve
Macro-Systems
•
Jones & Richardson-Jones, 1989
Jones & Richardson-Jones 1989
Regarding the Macro-Systems, “ Minorities” tend to have: (cont’d)
•More negative attitudes in general toward government sponsored programs like Medicare and Medicaid
Jones & Richardson-Jones 1989
A Demonstration
Biolog
ical
Spiri
tual
Cognit
ive
Behav
ioral
Affecti
ve
An effective rehabilitation model
Hearing impairment is discovered
Client’sResponse
Person overwhelmed by emotional factors:Uncertainty, fear, frustration, irritation, etc.; Begins responding to life issues.
Response
May start praying
Response
Begins thinking about what to do about hearing problem(s). Checks resources.
Response
Takes action! Goes to see the doctor
Response
Follows doctor’s recommendations tosee an audiologist.
Response
Follows audiologist’s recommendations totry a hearing aid and aural rehabilitation
Response
Fears, concerns, worries, etc. are reducedbecause of effective management of hearingloss.
Response
Maintains rehabilitation program
Response
Stays abreast of latest advances in technology and rehabilitation approaches.
Response
Fears, concerns, worries, etc. are reduced even further because of ongoing effective management of hearing loss.
Response
If hearing loss worsens, has medical resources for assistance.
Response
Another model in action
Biolog
ical
Spiri
tual
Cognit
ive
Behav
ioral
Affecti
ve
Hearing loss is identified
Client’sResponse
Response
Person overwhelmed by emotional factors:uncertainty, fear, frustration, irritation, etc.; begins Responding to life issues
Client Prays
Response
Continues to worry about problem
Response
Prays some more!
Response
Response
Person fails to take more direct action
May not have all the information neededto appreciate the significance of theproblem
Response
Doesn’t take necessary steps to get information or appropriate help.
Response
Delays or postpones action until circumstances (e.g., economic, social, etc.)change.
Response
Maintains high spirituality basethroughout process
Never takes effective action, and lives with the condition.
Hearing status continuesto change
Still worrying about it.
Response
Unsubstantial knowledge and misinformation about hearing loss continues.
The Minority Perspective (cont’d)
The results of the Richmond Study (Jones and Richardson-Jones, 1989) suggested that African-American seniors, and possibly other minority groups, who are in similar socio-economic circumstances, should be approached in a manner that is different from that of more mainstreamed non-minority populations.
Cultural Awareness: Selected Strategies
An audiological practice should begin to incorporate culturally relevant protocols from the moment the client makes his/her initial contact with the clinic or center:
Greetings should be culturally relevant using proper titles, nicknames only if desired, and culturally appropriate body gestures.
Case history should be sensitive to cultural nuances (i.e., privacy issues, stigmatas, taboos, etc.) and release forms should be translated if possible or explained in the native language using an interpreter.
Test instructions should be translated and printed on cards for either the clinician or client or to read. These cards could be useful not just in the clinic but also during hearing screening at fairs and industrial sites. Instructions could be taped and played back.
Test Procedures - the test procedures should be thoroughly explained- in either spoken or written form- in the client’s native language. This will help to allay fears and offset concerns related for example to potential pain and equipment used.
Preliminary assessment (i.e. otoscopy, earphone placement, hearing aid fitting, etc.) should begin with an understanding on the part of the clinician that touching the face or the head, removing a veil or headpiece may be offensive in some cultures. Always ask first.
Socio-cultural differences have a potential of creating cross-cultural conflicts:
As a result there may be…. mild discomfort between parties (i.e. clinician and
client), which can lead to non-cooperation with clinical
protocols, and distrust of recommendations, and general disintegration of therapeutic relationship.
Conflicts may stem from a misinterpretation of… Clinician’s role in relationship Offense at the authority exuded by clinician Communication styles and approaches Intent of physical contact Gender and sexuality issues Other factors
Strategies
1) Rather than attempting to learn an encyclopedia of culture-specific issues, a more practical approach is to explore the various types of problems that are likely to occur in cross-cultural Clinical/therapeutic encounters and to learn to identify and deal with these as they arise.
2) Once the clinician recognizes a potential core issue, it can be explored further by inquiring about the patient’s own belief or preference. Each patient’s situation is unique and is influenced by personal and social factors as well as by culture. Direct questioning and discovery of core issues can avoid cultural pitfalls and help guide further explorationin cross-cultural encounters.
Audiologist’s Professional Responsibilities
To provide competent and professional services and to assure the hearing impaired person attains these goals:
Acceptance of and adjustment to hearing impairment
Acceptance of and adjustment to amplification use
Effective communicability
Cultural Responsibilities
Provide empathetic concern which: Draws upon person’s interpersonal
resources Calls upon social support system(s) Reflects person’s cultural interests
and perspectives
Cultural Competence Checklist for Success
Make the environment more welcoming and attractive based on clients cultural mores.
Avoid stereotyping and misapplication of scientific knowledge.
Include community input at the planning and development stage.
Use educational approaches and materials that will capture the attention of your intended audience.
Adapted from material developed by the National Center for Cultural Competence, Georgetown University Child Development Center.
Cultural Competence Checklist (cont’d) Hire staff that reflect client population. Understand cultural competency is
continually evolving. Be creative in finding ways to
communicate with population groups that have cultural differences and/or limited English-speaking proficiency.
Adapted from material developed by the National Center for Cultural Competence, Georgetown University Child Development Center.
Projected benefits of including cultural competency into aural rehabilitation
For underserved populations, enhanced understanding of hearing loss and its effects on communication
Better self-disclosure and self-acceptance Greater knowledge about how to manage
communication difficulties Reduced stress and discouragement Improved advocacy of hearing healthcare Increased satisfaction with aural rehabilitation
services Increased motivation to minimize listening problems Stronger adherence/compliance with the aural
rehabilitation plan, including use of amplification
Erdman, 1993
Individual’s Path to Cultural Competency
Ethnocentricity – This is a state of relying on our own, and only our own, paradigms based on our cultural heritage. We view the world through narrow filters, and we will only accept information that fits our paradigms. We resist and/or discard others.
Awareness – This is the point at which we begin to realize that there are things that exist which fall outside the realm of our cultural paradigms.
Understanding- This is the point at which we are not only aware that there are things that fall outside our cultural paradigms, but we see the reason for their existence.
Individual’s Path to Cultural Competency
Acceptance/Respect - This is when we begin allowing those from other cultures to just be who they are, and that it is OKAY for things to not always fit into our paradigms.
Appreciation/Value- This is the point where we begin seeing the worth in the things that fall outside our own cultural paradigms.
Selective Adoption - This is the point at which, we begin using things that were initially outside our own cultural paradigms.
Multiculturation- This is when we have begun integrating our lives with our experiences from a variety of cultural experiences.
Cultural Destructiveness is the most negative. It is the attitudes, policies, and practices that are destructive to cultures and the individuals within these cultures. A system that adheres to a destructive extreme assumes that one race or culture is superior and eradicates lesser cultures because of their perceived sub-human condition. Bigotry coupled with vast power allows the dominant group to disenfranchise, control, exploit, or systemically destroys the less powerful population.
Cultural Incapacity occurs when agencies do not intentionally seek to be culturally destructive, but rather have no capacity to help people from other cultures. This system remains extremely biased, and believes in the superiority of the dominant group. It assumes a paternal posture towards “lesser” groups.
Continuum of Cultural CompetencyContinuum of Cultural Competency
Cultural Blindness is characterized by a well intended philosophy; however, the consequence of such a belief can often camouflage the reality of ethnocentrism. This system suffers from a deficit of information and often lack the avenues through which they can obtain needed information.
While these agencies often view themselves as unbiased and responsive to the needs of minority people, their ability to effectively work with a diverse population maybe severely limited.
Cultural Pre-competence implies movement towards reaching out to other cultures. The pre-competent agency realizes its weaknesses in working with people of other cultures and attempts to improve that relationship with a specific population.
Continuum of Cultural CompetencyContinuum of Cultural Competency
Cultural Competence is characterized by acceptance of and respect for differences, continuing self assessment regarding culture, careful attention to the dynamics of differences, and continuous expansion of cultural knowledge and resources.
Cultural Proficiency is the culmination point on the continuum is characterized by holding culture in high esteem. These agencies actively seek to hire a diverse workforce.
Continuum of Cultural CompetencyContinuum of Cultural Competency
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