Creating a website as a tool for free exchange of information among medical research groups and...
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Transcript of Creating a website as a tool for free exchange of information among medical research groups and...
Creating a website as a tool for free exchange of information
among medical research groups and researchers.
Paul BOON, Kristl VONCK and Pieter CLAEYS
Clinical and Experimental Neurophysiology Laboratory, Department of Neurology,
Ghent University Hospital,
Belgium
Reference Center for Refractory Epilepsy
Laboratory for Clinical and Experimental Neurophysiology
Context
• Traditional purpose(s) of website:– Source of information for customers and
professionals (presenting products, services, projects, staff, researchers, advertising events, publicity and commercials, …)
– Communication platform; indirect versus interactive
– Administrative and scientific management of meetings
Context
• More recent applications: – Publishing research (electronic versions of
paper journals, full electronic journals)– Providing access to research data that can
be downloaded directly
http://www.neuroepigroup.com
• Website of a medical research group• Presenting clinical programmes,
services and staff• Providing information on field of interest
for general public and professional users
• Presenting research group, c.v. of researchers, projects and collaborations
http://www.neuroepigroup.com
• Providing direct access to published abstracts, articles, thesises and presentations of the research group
• Providing platform for data exchange and discussion with collaborating research groups
Problems
• Public exposure of medical professionals (deontological considerations and Medical Council regulations)
• Copyright (transfer) published manuscripts• Information embargo during time between
acceptance and publication of manuscripts• Conflict between publication and patenting
process• Protection against uncontrolled copying• Different levels of access and confidentiality for
different users
Conclusions
• Need for more specific regulations for physicians with regard to the internet
• Need for new copyright regulations with regard to electronic media
• Need for specific information and guidelines for websites used as platforms for scientific interaction between researchers
Epilepsy Research Group Ghent University Hospital
• Clinical and Experimental Neurophysiology Laboratory (Heymans Institute)
Stefanie DEDEURWAERDERE, Pieter CLAEYS, Robrecht RAEDT, Leen SEYS, Tim DE SMET, Kristl VONCK, Paul BOON
• Neuroradiology -MR UnitEric ACHTEN, Karel De BLAERE, Pieter VANDEMAELE, An
THIELEMANS
• Nuclear Medicine - SPECT – PETKoen VAN LAERE, Rudy DIERCKX
• Experimental Neurophysiology and Signal AnalysisPeter VAN HESE, Michel D’HAVE, Rik VANDEWALLE, Ignace
LEMAHIEU
• Reference Center for Refractory Epilepsy – Department of NeurologyPaul BOON, Lutgard GOOSSENS, Kristl VONCK, Michel D’HAVE,Geert MICHIELSEN, Liesbeth DE GROOTE, Veerle DE HERDT,Jacques DE REUCK, Nicole BLANCKAERT, Kathleen ONGENAE, Annie WEYMEERSCH, Alice DEWILDE, Monique THIENPONT, Tania HELLEPUTTE and Neurology nursing team
Ghent University Hospital
•