CPCRN Presentation Template

CDC Site Visit September 24, 2013

Perspectives in Cancer Survivorship: CPCRN Activities and

Future Directions Marcia Ory, PhD, MPH

CPCRN Survivorship WorkgroupCo-chairs: Marcia Ory and Betsy Risendal

Mission• To advance dissemination and

implementation science • To improve the translation of

cancer survivorship research into practice

• To capitalize upon CPCRN expertise.

Cross-Center Activities in Cancer Survivorship

Highlighted Activities• 4-State Survey of Health

Promotion Programs for Cancer Survivors

• 2-State Adaptation and Testing of an Evidence-based Self-Management Support Program

Health Promotion Survey: What did we want to know?

What is the state of implementation of health promotion programs for cancer survivors in the U.S.?

 

Weight Management

Psychosocial Support

Physical Activity

Nutrition

Health Promotion Survey: How did we go about addressing the

question?Methods • Worked with 4

participating CPCRN states

• Employed a cross-sectional internet-based survey

• Used multiple routes to identify respondents

• Complied information on 160 programs 

Health Promotion Survey: What did we learn?

Neglected Populations• Few services for

childhood cancer survivors relative to adults or seniorsHighlights service gap for a population at risk for late/long-term side effects

Health Promotion Survey: What did we learn?

Neglected Health Promotion Areas• Few programs available on weight

management relative to other types of programs

 

Another research to practice gap  

Health Promotion Survey: What did we learn?

Health Promotion Survey: What did we learn?

Types of Programs

• Few programs offered all four services • Many programs offered more than one

services• The most prevalent services were

physical activity and psychosocial support

• The least prevalent was weight management

  

Health Promotion Survey: What did we learn about community evaluation?

Evaluation Efforts • More evaluation around documenting

reach and representation• Less research examining pre-post

changesHighlights need for stronger community-academic partnerships

Health Promotion Survey: What are next steps?

Research• Analyze key informant interviews to

learn more about implementation, evaluation, and sustainability

• Re-administer survey to assess changes over time.

• Explore ways to make survey available to other interested researchers

Health Promotion Survey: What are next steps?

Practice• Share our results with

Comprehensive Cancer Programs and state cancer coalitions (see Texas map)

• Recommend e-health initiatives to improve reach to young, high-risk populations

• Expand existing programs to address multiple lifestyle needs 

Self-management Support for Cancer Survivors:

What did we want to know?

Can an evidence-based program for self-management support be adapted for cancer survivors?

                                Thriving                                  Surviving

    

 a six week,                small group program

&Cancer: 

Self-management Support for Cancer Survivors:

How did we go about addressing the question?

Methods • Partnership between

Colorado and Texas and original program developers

• Wait-list randomized controlled trial design

• Focus on both process and outcome evaluation

 

Stanford University

University of Virginia

= CPCRN site

= Program Developer

Self-management Support for Cancer Survivors: What did we learn about program format and content?

Participant Feedback• Nearly 200 participants

provided feedback• Most felt cancer content

was appropriate • More attention to

complementary and alternative medicine

Insert a cover sheetFor CTS curriculum

Self-management Support for Cancer Survivors:

What did we learn about feasibility?Feasibility• Cancer survivors and their caregivers

will enroll in self-management programs

• Existing clinical or community infrastructure can be used to deliver an adapted version

 

Suggests CTS programs can be disseminated with minimal additional training and resources

Self-management Support for Cancer Survivors:

What did we learn about acceptability?

Acceptability• High demand for

the program • High satisfaction

among participants and trainers

• High completion rates

Self-management Support for Cancer Survivors:

What did we learn about impacts

        Coping and Adjustment

Self-efficacy

    Reduced symptomology

Better communication

IMPROVEMENTS

Self-management Support for Cancer Survivors:

What are the next steps?• Work with the

original program developers to identify and evaluate dissemination tools

• Study dissemination through various channels Primary Care 

Networks

Health Maintenance Organizations

Community Cancer Centers

Delivery Channels

Exploring New Opportunities

• Foster cross fertilization between 2 CDC networks: HAN and CPCRN

• Build synergy around patient reported outcomes with harmonization of data

• Examine best practices in care transitions• Provide TA in implementation of survivorship care

plans • Study the dissemination of survivorship care

plans• Test dissemination of mhealth tools across

CPCRN sites: AYA App

Exploring New Opportunities

• Foster cross fertilization between 2 CDC networks: HAN and CPCRN

• Build synergy around patient reported outcomes with harmonization of data

• Examine best practices in care transitions• Provide TA in implementation of survivorship care

plans • Study the dissemination of survivorship care

plans• Test dissemination of mhealth tools across

CPCRN sites: AYA App

Survivorship Workgroup Contacts

Co-Chair: Marcia Ory, PhD, MPHTexas A&M Health Science Center

School of Rural Public Healthmory@srph.tamhsc.edu

Co-Chair: Betsy C. Risendal, PhDUniversity of Colorado Cancer

CenterColorado School of Public Health

betsy.risendal@ucdenver.eduSpecial appreciation to Project Directors Andrea Dwyer and Richard Wood