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Commission on European Affairs Report - July 2007

European Congress on Epileptology ECE

• Dublin 1996• Warsaw 1998• Florence 2000• Madrid 2002• Vienna 2004

• Helsinki 2006

• Berlin 2008

• Rhodos 2010

• ???? 2012

Co-organisation Germany / Israel

Post Congress Satellite in St Petersburg

Selection process to be started Jan 2008Call for expression of interest from Chapters

• European Congress outcome - Evaluations– Registrations– Abstracts– Scientific programme – Sponsorship– Expanditures

– Surpluses


CEA budget

CEA and EAC activities


MADRID 2002

VIENNA2004

HELSINKI2006

Registrations2725 3408 3509

Abstracts

645 655

842 accepted

Platform: 126

Poster: 703


Helsinki vs Vienna

Registration fees + 7%

Sponsorship / Exhibition - 22%

Total income - 6%

Venue costs + 25%

Abstract (Book, CD) + 150% (40 000 /104 000)

………………. ……………..

Total expenditures + 17%

Surpluses - 36%

• Significant changes in Sponsorship– Several of the companies that had supported

the ECE for many years were not in a position to do so for the congress in Helsinki

– In some cases, the sponsors scaled down their total sponsorship contribution

– At the same time, some companies new to the field of epilepsy showed an interest in supporting the congress.


• New modalities of collaboration– New Drug Symposium

• Schwarz Pharma and Valeant Pharmaceuticals jointly hosted a satellite symposium

– Orphan Drug Symposium• Biocodex, Eisai and UCB contributed speakers

and presentations to this Congress session.


• Educational activities

– Educational Courses– EUREPA activities– ILAE Commission on Education activities

• Developing guidelines for CEA support

– Miscellaneous contributions



Year 2006 2007 2008 2009

Residential (pharmacol.)

Eilat

Sept 2-9

Eilat

Sept 6-13

Migrating

Course

Serbia

May-June Lithuania Czech Republic

Contribution to other courses

S- ServoloS- Servolo

Baltic SeaS- Servolo S- Servolo

EPODES (Surgery)Brno

19-23 March

New Commission

Geographical and Thematic distribution

• Care Standards - Drugs– Generics– Rare epileptic diseases – Contribution to the colloquium on Status

Epilepticus (London, April 2007) and European guidelines for the treatment of SE

– European Project on Development of Epilepsy Surgery Programme (EPODES)


Regulatory guidelines

AEDs DevelopersPharma industry

Evidence-basedAssessment / guideline

on AEDs

clinicians

R C TrialsStudy resultsScientific data

AESILAENiceOthers

• Contact group with European Drug Agency (EMEA)

– CEA official correspondent of the EMEA

– Exchange of views on AEDs development and use

– Discussions on specific issues like Orphan drugs

– Revision of the EMEA guideline on AEDs in 2007-2008– Efficacy working Party of the CHMP– Rapporteurs– Member state agencies– Scientific community (Europe, Worldwide, FDA)– CEA-ILAE through its contact group


EUREPEAN PROJECT ON DEVELOPMENT OF EPILEPSY SURGERY PROGRAM (EPODES)

Ç.Özkara, W. Emde Boas, I. Rektor, P. Halasz, K. Malmgren, H. Stefan, C. Baumgartner

A-) Courses: : 19-23 March 2008, Brno (I. Rektor)

Keynote speakers and case presentations by students and tutors

B-) Fellowships: Three months of visiting a center specialized in surgery

– 5 people/year

– Endorsment required for application (fellowship should be part of the plan of development)

– Holding a position in a “center”

– Host centers prerequists should be identified

C-) Visiting professorships: 1 week

– 3 people / year

– Visit will be on request of the visited center from the host centers

• Research and scientific activities– Financial support to the MORTIMUS

study – Support to EURAP, FONDE projects– Support to the EPICURE prg

– Zurich Update Meeting (2007)

– IGE Symposium, Bridging basic and clinical sciences, Antalya-Turkey (2007)


• Political action in favour of Epilepsy Research– Promote and facilitate Epilepsy Research across the

EU grant procedures– Defend the presence of Epilepsy-related topics in the

calls for EU grants (FrameWork Prg 7, 2006-2013)– Need for defining and expressing our research

objectives


Epilepsy research priorities for the next decade: A representative view of the European Community

• Communication

– Website– Global campaign (Thank you for filling the

questionnaire in your files)– EUCARE



Milda Endziniene (Lithuania)Alla Guekht, EAC Chair,(Russia)Cigdem Ozkara, CEA Secretary, (Turkey)Bettina Schmitz (Germany)Michel Baulac, CEA Chair, (France)Meir Bialer, CEA Treasurer, (Israel)Peter Halasz (Hungary)Svein Johannessen, EAC secretary, (Norway)Frederico Vigevano (Italy)

ILAE Financial Office and ILAE Headquarters Office

• Budget


ILAE Financial Office

MiscellaneousMiscellaneous• Zurich Meeting (2007)

• Idiopathic generalised epilepsies Symposium, Bridging basic and clinical sciences, Antalya-Turkey (2007)


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