Community-Powered Brain Health Research Joshua R. Steinerman, M.D. Health Inequities Think Tank...
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Transcript of Community-Powered Brain Health Research Joshua R. Steinerman, M.D. Health Inequities Think Tank...
Community-Powered Brain Health Research
Joshua R. Steinerman, M.D.
Health Inequities Think TankApril 12, 2010
Overview
• HEALTHY BRAIN AGING: WHY? HOW?
• ENGAGING CO-OP CITY: PROGRESS TO DATE
• PLANNED PROGRAMS
Aging residents of Co-op City (n=12,972)*
Age 50-69 Age 70+
Race Number (%) Number (%)
Black 4650 (59%) 2112 (42%)
Hispanic 1652 (21%) 529 (10%)
White 1498 (19%) 2363 (47%)
Total 7914 5058
*Data are from 2000 U.S. Census. A recent Voter Registration List reports over 15% higher population in some bins.
Key CBOs in Co-op Cityt)CBO
Co-op City NORCRiverbay Housing Corporation
Senior Centers (Dreiser, Einstein, Bartow)
Montefiore Home Health AgencyNew York Public Library
Montefiore Medical Group (2100 Bartow, Dreiser Loop)
Visiting Nurse Service of New YorkAARP
National Council of Negro WomenSpanish-American Club
Senior CouncilFaith-based organizations
Political OrganizationsFairwayBally’s
Weight Watchers
Community-based researchCoordinated efforts, shared benefits
Co-op City Community Stakeholders
Center for Healthy Brain Aging
The goals of C4HBA at Co-op City are:
• To partner with community-based organizations
• To promote awareness of brain fitness
• To enhance current elder programming using neuroscientific principles and cognitive technologies
• To study brain fitness interventions in community settings
Focus Groups for Community Brain Health Research Design• Brain aging lexicon
• Wellness-oriented (Brain Fitness, Healthy Brain Aging)• Disease-oriented (Alzheimer’s, Dementia, Brain Failure)
• Brain Failure Knowledge and Attitudes• Attitudes toward participatory research• Attitudes toward technology
Community Brain Health Forum• April 30!• CBO leadership meeting 11AM• Public educational forum 1PM• Mini Brain Health Fair, Refreshments by Fairway
Committed Partners to Date
Academic Community More Community
Einstein Aging Study Riverbay Co-op City News
Division of Geriatric Psychiatry
JASA Fairway
Division of Community Collaboration
Monte Home Health NYPL
Co-operatives unitedElected officials, faith-based
organizations
CBO leadership meeting agenda• Suggestions?• Air Tentative Conclusions from Focus Groups• Invite participation in summer survey
• Display/distribute paper survey• House a drop-box• Host a survey assistance table session• Summer Youth Employee joint supervision
• Invite participation in ongoing community working groups (Data Sharing and Privacy, Reversing Inequities, Public-Private Collaboration)
Community Brain Health Survery• Summer 2010• Knowledge and attitudes about brain aging,
participatory research, technology• Current behavior and self-efficacy• Content Suggestions?• Logistics Suggestions?
• Internet research ethics and data management• Grassroots survey distribution and collection• Summer youth supervision
Future directions• Community brain aging registry• Pilot interventions• Integrate cognitive outcomes and technology-
enabled measurement strategies in allied community-based projects