Pediatric palliative care on the ground Examples of successful programs.
Community owned programs in palliative care
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Transcript of Community owned programs in palliative care
Community owned programs in palliative care
Dr Suresh Kumar
COPP - Rationale• Patients with advanced diseases require
continuous care and attention for the rest of their lives
• They are also in need of regular social, psychological and spiritual support in addition to the medical and nursing care
• Care should be readily accessible and available as close to home as possible
• There is enough potential available in the community to build a ‘safety net' around these patients
Palliative Care in the Community
Care in the community by volunteers
The Foundation: Establishing a social support system
• Food for patients• Transport• education support for childrenAdding on local expertise:• Emotional support• Basic nursing chores• Help with mobility
Primary Health Care
Capacity building at the primary health care level
• Training• Drugs and equipment Integration between the primary health care
and community owned services
Interface between ‘specialists’ and the periphery
Trained Health Care Professionals as the link• Professionals employed by community based
organizations• Professionals working in primary health care
facilities in the region• Professionals employed by the ‘specialist
institution’
Community Volunteers
Sensitization for ‘level I’Training for ‘level II’• Basic Principles of PC• Psycho social assessment of
patients• Communication skills/
emotional support• Basic Nursing chores• Documentation
Professional support for community owned services
1. Physician2. Palliative care nurse3. Auxiliary Nurse in PC
The matrix of community owned palliative care program
One can start with any component
and build the others
COPP – Practice
Neighborhood Network in Palliative Care
• Looks after more than 10,000 patients at any point of time- all the services are free
• All the expenses for delivery of care (including salaries, cost of medicines, food for the family, educational support for the children) raised locally
NNPC - structure
• Network of trained volunteers in the community
• Support system by trained professionals, institutions and organizations
• Palliative care institutions as nodal centers
Volunteers
• Anyone who wants to contribute in the efforts to reduce the suffering of people living with advanced diseases
• Structured training given to those who are willing to spend at least two hours per week for the work
Training
• Training as part of generation and dissemination of knowledge
• 16 hours of theory • 4 days of practical work
What do volunteers do?
• Regular continuous emotional support for the patients and family
• Social support to the patients• Wound care, bedsore prevention, mobility• Spread the idea of palliative care in the society • Fight social stigma to cancer, AIDS etc.• Organisation & administration of palliative
care services
Community Participation in Palliative Care – Palliative Care is everybody’s
business• More than 12,000 community volunteers
from various walks of life• Majority belong to lower socio economic
strata• Majority are young people
Palliative care in campus
Palliative Care is everybody’s business – Police in Palliative Care
• Kerala Armed Police Battalion IV runs its own palliative care unit – Probably the first of its kind in the whole world!
• City Police in Calicut a major partner in palliative care in the city
Emerging Kerala Model in Palliative Care
• Public health approach in palliative care• Community participation as a core principle• Need based evolution• State owning up responsibility. Planned
activities in Government sector
Thank [email protected]