Community Information Exchange (CIE) Network Partner Meeting · chat, in meeting polls and surveys...

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Community Information Exchange (CIE)Network Partner Meeting

July 16, 2020

This slide deck has been updated to include participant input from

the July 16 meeting.

Slides documenting input from the chat, in meeting polls and surveys

have been integrated into the deck. All input has been included word for word, but responses are

anonymous.

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Land Acknowledgement

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Move your mouse/cursor over the bottom of the Zoom screen.When the black control panel appears, select the desired panel.

Open Participants and/or Chat box

How To ParticipateRaise your hand or provide nonverbal feedback in Participants Panel

Type questions and comments in Chat box

(Phone: *9 to raise hand)

Speak by hovering over the mic next to your name and clicking Unmute in the Participants Panel

(Phone: *6 to un/mute)

Type here, click Enter to send

Select recipient

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Introductions

Overview of Regional CIE Vision

Review of CIE Governance & Input on Advisory Group Structure

Input on CIE Functionality

Input on CIE Names

Volunteer to Help Design and Plan the Regional CIE

Review Next Steps & Upcoming Meetings

Agenda

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Please share in the chat:

– Your name, your pronouns, your organization

Introductions

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We are going to break you into groups of 3-4 participants. In your group, please share your answer to the following question:

– What do you hope to get from today's meeting?

– What perspectives or experience are you bringing to today's meeting?

Check-in

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Introductions




Input on CIE Names

Volunteer to Help Design and Plan the Regional CIE


Agenda

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Our Vision:Co-Create a Connected System of Whole-Person Care

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Strengthen the coordination of care for those in need by connecting people, service organizations, and community partners more quickly and more effectively – resulting in a healthier, more equitable community for all.

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Benefits and ImpactsIndividuals and families should experience improved health and well-being through increased awareness of and access to services that are better coordinated.

Community Information

Exchange

Individuals and

Families

Clinical and Social

Service Providers

Our community

Clinical and social service providers should better understand individual and family needs and should be able to more effectively coordinate across sectors to help people get the care they need.

Our community should be able to make more effective and equitable allocations of resource based on data.

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CIE planning efforts are locally funded and led

Planning efforts funded by:

Planning efforts led by:

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Regional CIE planning will be a collaborative effort

Network Partners

CIE Advisory Group

Legal, Data & Tech

workgroupConsumers

Backbone organizations

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By December, we will design a CIE that:

Is a unified network across health and human services providers

Is governed by the community

Serves the needs of the community (not any one entity or vendor)

Is interoperable

Operates as a public utility

Planning activities for the next few months

To achieve this, we will need community and consumer input on:

Governance structure

Functionality

Privacy and data use

Interoperability

Evaluation & performance measures

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Introductions




Input on CIE Names

Volunteer to Help Design and Plan Regional CIE


Agenda

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Regional CIE Governance Structure

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Serves as the governing body for the CIE

Purpose is to align efforts across healthcare providers, human services providers, and CBOs to provide expertise, guidance, recommendations, and support for the design, implementation, evaluation, and sustainability of the regional CIE

Establishes annual plan, provides strategic guidance, recommends investments, supports funding and sustainability, builds relationships

20-25 members from multiple sectors

Regional CIE Advisory Group

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Sectors

Consumers, community & tribal perspectives

Healthcare providers

Government and public agencies

Social services/ Social determinants of health services

Information and referral providers

Health insurance plans

Business/philanthropyCourts/criminal justice

First responders

Proposed sectors and representation for CIE Advisory Group

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Sectors Examples


Advocacy groups, clients / consumers, Community based organizations (CBOs), Tribal entities

Healthcare providers FQHCs, large health systems, behavioral health

Government and public agencies Seattle, King County, Suburban cities, Public Health, public school systems, DCHS, etc.


Housing, food, homelessness, employment, crisis agencies, senior services, etc.

Information and referral providers Agencies with resource referral systems

Health insurance plans Medicare/Medicaid payors

Business/philanthropy TBDCourts/criminal justice Jail transitions

First responders Fire departments, Emergency medical and/or community paramedicine services


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We are looking to balance representation and size of the Advisory Group.

Please write your answer to the following questions in the chat:

– Do these seem like the right sectors and types of organizations to participate in the Advisory Group?

– Are there different or additional sectors or types of organizations we should try to include? If so, which ones?

Input on Advisory Group – Sector Representation

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Provision of free or low cost legal services, such as Columbia Legal Services. This is one of our most common I&R requests for folx with BH conditions

Education Disability Rights Washington? eviction prevention - homelessness Would each sector have representative from each example? Healthcare providers

would need both hospitals and FQHC's more mental health representation, not just healthcare providers Veterans group How about Immigrants status? Human services alliances (king County, regional) Safe housing for individuals coming back to the community from prison

Community Input on Advisory Group – Sector RepresentationFrom Chat at July 16 Meeting

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Sectors Examples


Advocacy groups, clients / consumers, Community based organizations (CBOs), Tribal entities

Healthcare providers FQHCs, large health systems, behavioral health

Government and public agencies Seattle, King County, Suburban cities, Public Health, public school systems, DCHS, etc.


Housing, food, homelessness, employment, crisis agencies, senior services, etc.

Information and referral providers Agencies with resource referral systems

Health insurance plans Medicare/Medicaid payors

Business/philanthropy TBDCourts/criminal justice Jail transitions

First responders Fire departments, Emergency medical and/or community paramedicine services


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Please write your answer to the following question in the chat:

– Beyond sector representation, what perspectives and/or experience should we be looking for in Advisory Group members?

Input on Advisory Group – Perspectives / Experiences

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People who think about systems design public health racial equity M & E Public Health/ Data analytical - outcome focused Individuals with varied life experiences that may span multiple sectors. Legal/privacy Agree with system design and outcome focus- how we can look at the

use of the system to advocate for more resources/supports for those we serve

People who understand Population Health

Community Input on Advisory Group – PerspectivesFrom Chat at July 16 Meeting

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HealthierHere, Crisis Connections & WA Serves will make updates to sector representation based on today's feedback

Network Partners add to existing nominations for Advisory Group candidates. If you would like to nominate someone from a specific sector, please email [email protected]

HealthierHere, Crisis Connections & WA Serves will assess candidates and start recruitment over coming month

Updates will be shared in upcoming Network Partner meetings

Process for Nomination and Selection

mailto:[email protected]

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Introductions




Input on CIE Names



Agenda

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Our Shared Aim: Strengthen the coordination of care for those in need by connecting people, service organizations, and community partners more quickly and more effectively – resulting in a healthier, more equitable community for all.

Please (privately) write your answer to the following questions:

– How do you want to use a CIE?

– Based on your answer/s above, what specific features or functions would the CIE need to have?

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Potential CIE Functionality

Resource Database

Data Integration

Community & Clinical Partners

Bi-Directional Referrals

Inter-operability

Analytic Support

Shared Language

Patient Access

Shared Care

Planning

Care Team Info

Longitudinal Record

Alerts & Notifications

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– Based on the list of proposed functions, what would you add to the list (if anything)?

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training, training, training

Ability to discern "In Network" referrals for Clinical Services

alert/notifications for updates/changes

Way to ensure that connections points/organizations are responsive/engaged so we are not connecting folks to "dead ends"

privacy protection on the analytic side

also to know the org has capacity to accept new clients

internal/external communication

Improved ability to see gaps in services - improve access to services for underserved populations

Would like to consider adding in Care Traffic Control (ensures that we don't refer people to too many Care Coordination resources while leaving others without support) in the future

Develop and employ cost benefit formulas to support system reinvestment strategies related to health savings

Community Input on CIE FunctionalityFrom Chat at July 16 Meeting

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Privacy Implications of Potential CIE Functionality

While privacy and data use agreements policies (including patient consent) will be required to share information, there are four potential functions that have more complex privacy implications. These are:– Care Team– Shared Care Planning– Longitudinal Record– Alerts & Notifications

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Prioritize Potential CIE Functionality

Based on the following questions, please select one option per question:

– Which potential CIE functionality is most important to you?

– Which potential CIE functionality is next most important to you?

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Community Input on Functionality PrioritiesFrom Poll at July 16 Meeting

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Care Team Shared CarePlanning

Alerts /Notifications

LongitudinalRecord

Which potential CIE functionality Is MOST important to you?

Number of Responses

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4

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10

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Care Team Shared CarePlanning

Alerts /Notifications

LongitudinalRecord

Which potential CIE functionality Is NEXT MOST important to you?

Number of Responses

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Some of the functions listed on the previous slide may require limited sharing of protected health information. We want to better understand what information might be useful to share and how important this is to improving care coordination.

In small groups, please discuss the following questions:

– What health information might be useful to share with a community-based organization (or other non-HIPAA covered entities) as part of care coordination? How important is it to share this information?

– In what instances is the sharing of substance use disorder treatment and/or mental health information with covered and non-covered entities (e.g., community-based organization) CRITICAL for care coordination?

Input on Privacy of Physical Health, Behavioral Health and Mental Health Information

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Community Input on PrivacyFrom Small Groups at July 16 Meeting

Patient/Client Considerations

It should be up to the client what information is shared, even if sharing is not protected by law

Services providers need to obtain explicit permission from a patient/client concerning what of their information can/should be shared, even if not required by law

Important to know client goals, and only share health information necessary to help address those goals

Client needs should determine what of their information is shared

Health information that is shared should consider the safety needs of the client

Health care providers can/should discuss with the patient/client why it might be helpful to share certain information

Clients may not participate in CIE if they know their information is being shared or don’t understand how it is being shared

Clients may be more likely to give permission to share information if they understand how it can help them get the services they need

Providers may avoid sharing health information even if useful if it negatively impacts client trust

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Considerations for both Healthcare and Community Service Providers

The most important information needed is who the patient’s/client’s PCP is and how to contact them

Providers need to know who is on the care team for a specific client and how to contact them to eliminate duplicity of services

It is most important to know where a client is receiving care and who is responsible for that care; even high-level health information may not be necessary

Case workers may need training to understand the system, their role, and how to treat health and other sensitive information and what permissions are necessary

Important to know provider goals; it may not be necessary to share information that does not help address those goals

Some providers want as much information as legally allowed

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Considerations Specific to Healthcare Providers

Health information is most important for case workers

The need to share health information will depend on the purpose of the referral

Health care providers need to share vulnerabilities (e.g., that the client needs access to shelter)

Health care providers need to share what level of support is needed for a client (e.g., extra care coordination, supports, a navigator) with the client’s permission

It may be necessary or useful to differentiate what health information is shared by community service sector

A general care plan and care team for a client would be valuable in the pre-hospital setting to decrease the number of calls made, repetition or duplication of calls/services

EMS teams providing emergency services need to communicate notes containing health information from an encounter in the field since that information won’t end up in the health system records if the individual is not transported to the ED or other health care setting

Healthcare providers should be able to see any and all health information

COVID makes it more desirable to know infectious disease status of patients/clients to maintain provider safety

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Considerations Specific to Community Services Providers

CBOs may know more about health information of clients than their health care providers as a result of better trust in CBOs

It may be more important to understand what health information can/should be shared by CBOs with healthcare providers than by healthcare providers with CBOs

CBOs may avoid learning health information Some CBOs never share health information even if

known Some CBOs can’t/don’t share any health information

shared by clients, but instead share “limitations” that may impact services

Some CBOs are subject to FOI requests and therefore need to take care in what information they retain on file

CBOs should have access to healthcare information on a need-to-know basis

More information will need to be shared if the CBO is providing care management services

It is important to differentiate between what a community service provider might want to know and what they need to know

Where possible, it may be preferable to record limitations rather than the health information that causes that limitation (e.g., “challenges living on other than ground floor” rather than being specific about mobility issues)

It is helpful for at least some CBOs receiving referrals (or self referrals) for clients with mental illness to know diagnosis and other organizations the client have already been referred to or already worked with

Information on cognitive issues (e.g., brain injury) may be useful so that organizations know the client may need extra assistance

Some community service organizations are also covered entities under HIPAA

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Technology Platform Considerations

The CIE may not be the correct conduit for sharing health or SUD information

Clients may have visibility into the CIE and learn what information is being shared about them

Providers need a system to facilitate communication among care team members and/or current services providers for a client

It is critical to have robust patient/client identifiers to properly match individual across participating organizations

It may be preferable not to include health information in the platform, but instead to note that service providers should contact a healthcare provider for information on the client

An alternative to including health information may be to include a flag to “discuss access issues with the client” rather than record information in the platform

It may be useful to have health information in the platform with controls so that only providers in certain roles or from certain organizations can access it

It may be useful to providers to have information on a client accessible in one place (e.g., insurance information, medical history, medications, diagnosis, care team, service needs)

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Some of you expressed a need for client anonymity while providing a service. If you or your organization currently works with clients who need to remain anonymous, we would like to learn more.


– In what situations do you keep a client anonymous?

Input on Anonymity

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Community Input on AnonymityFrom Chat at July 16 Meeting

Domestic Violence

Anonymity: DV, immigration status Undocumented folx

someone is undocumented

Definitely DV, if the client doesn't provide authorization to share info.

immigration, domestic violence

Chronic disease, substance use

substance abuse

Clients feeling unsafe around technology/information sharing (often related to mental illness or past life experiences)

mental illness in some cultures can cause stigma

If person is adamant about not sharing identity - we don't want people to avoid care because they feel pressured to share info

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We know that many of you have specific privacy-related issues based on patient preference/need, organizational policies and/or sector-wide standards. We want to ensure that we are surfacing as many of those issues now, so they can inform CIE design, if needed.


– What privacy concerns do you have that we not discussed?

Input on Privacy

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Community Input on Other Privacy IssuesFrom Chat at July 16 Meeting

LGBT in some communities can be stigmatized too

Privacy: prevent access to pieces of information within health records that are not relevant to the referral

perhaps training for case managers who are not social workers and are often employed by CBOs as they are from the community...???

Disclosure of behaviors that are not legal

Need to be sure that there is a way to have the referring agency confidential so that we don't inadvertently disclose info through a referral

clients/patients need to consent for referral - need ROI for many referrals vs. providing resource information

Disclosure of HIV status, immigration status, history of criminal justice involvement

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Introductions




Input on CIE Names



Agenda

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Why Choose a Name Now?

Network X

Platform Y

Reduce confusion with other networks, initiatives and/or technologies

Provide an identity for communicating about our unique regional CIE and its many components

Represent this new shared opportunity inclusive of the whole community and partner network

Make the work feel more tangible by giving it a specific name and identity

H E L L OMy Name Is

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Criteria for an Effective Name

Stickiness – Is it easy to recall?

Brevity – Short is sweeter.

Approachability – Does it sound engaging (and not bureaucratic)?

Pronounce-ability – Do you know how to say it?

Audio Cognition – Can you “hear it” in your head?

Functionality – Does it convey a benefit or purpose?

Consistency – Does it fit with the vision (e.g., community ownership)?

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Practical Considerations

Is it something we can own?

Is it easily searchable (e.g., will it pop up first on Google)?

Could it be confused with other initiatives?

Will it work for a variety of scenarios and audiences?

Is there a logical domain name (URL) we can own?

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Developed 40 options

Evaluated for feasibility,

narrowing to < 10 options

HealthierHere, Crisis

Connections and WA Serves

narrowed to2 options

Network Partners

provide input on

2 options

Input and additional

research will inform

decision

Selection Process

Today

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Network Partner Input

Please use these 2 opportunities to share your input today:

1. Please share your initial thoughts about each option by typing into the chat box.

2. Near the end of the meeting, you will complete a brief survey. In the survey, please share your response to these questions: When you hear each of these names, what comes to mind? What do these names evoke or raise for you?

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Top Name Options

Connect2Care

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Connect2CareIn the chat box, please share your initial thoughts about the name

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Community Input on Connect2Care NameFrom Chat at July 16 Meeting

connect2care to me says connect to healthcare

Care implies healthcare

catchy,

agree that Care implies healthcare

Care to me implies "healthcare" less about social services.

it reminds me of MultiCare

very straight forward

'care' seems a little like healthcare

I think about healthcare providers

very catchy

Agree that care is connected more to healthcare

agree more health care related

catchy but I agree can have a clinical emphasis

Again, implies only health

Community Connection works better for me

community connections is good - maybe Connect2Community

I like Connect2Community!

Someone said "Community Connection" I like that!

I like Community Connection

Connect2Community is good too

community connection is too close to crisis connections

I was thinking Community Connection as well

like connect 2 community and C2C is easy and short

someone thinks connect2care is part of multicare slogan?

C2C! Awesome.

CareConnect

I think there is already a Community Connections :(

Ooh, I like Connect2Community

Connect2community is inclusive. C2C.

I like connect2 community, c2c

From In-Meeting Survey at July 16 Meeting• I like C2C - It implies for me a holistic individualized wrap-around case

management • Connecting people to the care resources they need• Catchy, makes me curious to know more• Works in my mind

• reminds me of MultiCare Connected Care• I love it, very catchy and self explanatory • online platform, sounds healthcare related• too healthcare oriented...

• If these are our only two options, I would choose this one• Better but I'd like to see community in the name• Healthcare• I really like this one!• health or mental health clinic

• A little better, though also implies healthcare• relationships, person to person, healthcare• Healthcare--concerns that it does not encompass whole vision of the

CIE

• healthcare--better than first one, but not good for the purpose• It might be more healthcare as well• Better but still healthcare oriented• Healthcare. Doesn't capture larger community.• Like this

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Developed 40 options

Evaluated for feasibility,

narrowing to < 10 options

HealthierHere, Crisis

Connections and WA Serves

narrowed to2 options

Network Partners

provide input on

2 options

Input and additional

research will inform

decision

Selection Process

Today

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Top Name Options

Xpand Health

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Xpand HealthIn the chat box, please share your initial thoughts about the name

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Community Input on Xpand Health NameFrom Chat at July 16 Meeting

no

may be challenging to search online if someone does not remember unique spelling

still health focused

no

even more health-care oriented

Not appealing

Healthcare focused

doesn’t work for me

very healthcare focused

health related again

Feels harsh in my head

Naa, for "Xpand"😅😅

Too corporate

I don't think "care" is inclusive. nor is "Health", not all partners are care providers.

spelling confusion reigns

Implies entirely to healthcare with the name

Xpand feels like needs to be spelled correctly. Not to mention phones/computers will always try to autocorrect it.

no. don't like expand without the E. and it implies just healthcare

• nope • Corporate • To health oriented • Sounds like a health care system• It’s not very catchy, like wrong spelling• Healthcare services• Not thrilled with "Xpand"....• Just not an inviting name, not clear• Too health care focused• Healthcare

• It would be hard to explain to patients why it is missing the E. Health implies only healthcare

• xanado health care app

• Sounds like a healthcare startup not a community platform

• healthcare, corporate, technology, not personable• Reminds me of my cable company XFinity• health care--not good for this purpose• Healthcare and corporate

• don't like 'X' in general. And this is very healthcare specific• Only health. Don't like the spelling.• spelling woes, narrow focus excluding SDOH

• confusion, it sounds harsh in my head. I am not a fan of misspelled brands

From In-Meeting Survey at July 16 Meeting

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Please use these 2 opportunities to share your input today:

1. Please share your initial thoughts about each option by typing into the chat box.

2. Near the end of the meeting, you will complete a brief survey. In the survey, please share your response to:

• When you hear each of these names, what comes to mind?

• What do these names evoke or raise for you?

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Introductions




Input on CIE Names



Agenda

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Please fill out a short survey – see the link in the chatbox:

You have experience and knowledge – what are you willing to contribute?

These meetings should be productive and valuable – how can we improve?

Help us design the regional CIE and improve these meetings

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Community Input on Meeting Experience – Part 1From In-Meeting Survey at July 16 Meeting

What would make this meeting a “5”?

– more details of the CIE interface including melding with existing systems

– More pointed questions for small groups

– better time slot -I only got to participate for the last 45 minutes or so

– Shorter - preread content, focus time on discussion

– Better matching for break out sessions

– chat room break out issues

– Clarification re: all the 'moving parts'... the various platforms that are already moving forward

– More work product

– Within the specified time frame

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StronglyDisagree

Disagree NeitherDisagree or

Agree

Agree StronglyAgree

Today's meeting was a good use of my time

Number of Respondants

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Community Input on Meeting Experience – Part 2From In-Meeting Survey at July 16 Meeting

What was the best part of the meeting?

– like the break out rooms

– The break out sessions were great

– well organized content and presentation

– Participation

– engaging, strong presentation, multiple speakers and breakouts

– breakout sessions for smaller interactions

– Participating in the planning

– It was very well organized

– you did a good job building buy in.

– Breakout group discussion

– the updates, breakouts

– Overview of the CIE (i'm new)

– great facilitation and organization! (which took good prework)

– Very well coordinated and implemented.

– Break out room

– I received a LOT of information that got me up to speed on the project and I was able to be a participant not just a receiver.

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1

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I prefer no break I have no preference I prefer a short break in themiddle

Should we include a break in the next meeting?

Number of Respondants

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Next steps & upcoming meetings

Key Next Steps from Today’s Meeting Upcoming Events to Join

Finalize Advisory Group structure and reach out to potential Advisory Group members

Summarize today’s input on functionality and privacy for the Legal-Data-Tech workgroup

If you have any additional feedback for us, please email Lisa Watanabe ([email protected])

Next Network Partner workgroup meeting: August 11, 3:00 pm

Legal, Data, Technology workgroup meeting: July 23, 9:00 am

Join an upcoming Unite Us information session: September 16, 10 am

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Please write into the chat:

In a few words, how are you feeling about the CIE after this meeting?

Check-out

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Community Input on How You Are Feeling About a CIEFrom Chat at July 16 Meeting

thank you so much this was great. I have to head to my next zoom meeting!

Thank you all for your thoughts and participation!

Great Job, HH. It is very exciting to see this moving forward :)

informative!

hopeful

Impressed. Want to make sure it’s not a duplication of services.

very very excited!

positive

Thank you so much this was very informative!

Hopeful and excited

Thank you for including us. I have to go to another meeting :) This will be good.

Hopeful

hopeful! a bit confused about the relationship with Unite Us and how that folds in, but I am excited

better like the clarity that the platform is owned by county and not any entity.

this was great!

I know better what it is now.

Thank you All! enjoy the sun!

much more hopeful that it will be functional, measurable and interface well with existing systems

(though still nervous that there will be limited adoption when wide adoption is needed for full functionality)

thank you

Excellent start

Very well organized

Have a great day, folks! Thanks for joining us :)

Thank you for spending this morning with us!

Alotof good information. I liked the small groups even though a few of our mics weren't working. We made it work

Thank you all!

very good meeting and liked the breakout discussions

Community Information Exchange (CIE) Network Partner Meeting · chat, in meeting polls and surveys...

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Transcript of Community Information Exchange (CIE) Network Partner Meeting · chat, in meeting polls and surveys...