QualityNet Conference | Baltimore, MDNovember 30 – December 2, 2010

Putting the “H” in HIT

The story of Frederick Holliday: A Patient and Caregiver Perspective

The Before Picture: a regular family

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What was the worst thing that happened?

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We did not havetimely access to the

Electronic Medical Record.

Fred was dyingand we werebegging for

Data Access.

Access in Medicine vs. Special Education

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She must not have tried very hard…

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Getting a copy of an unpublished book compared to patient access to EMR while hospitalized

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Need the book: Under the Dome

Regina Emails book buyer 4-3-09

Book buyer emails book rep. 4-3-09

Book Rep emails publisher 4-3-09

Publisher gets approval from Stephen King 4-3-09

Publisher mails book, arrives 4-7-09

Fred reads book 4-7-09 through 5-1-09

Under the Dome is published Nov. 2009

Need Access to Fred’s EMR

Ask to read test results/lab/patient record 3-27-09 through 4-7-10

Nurse Internist Social Worker Oncologist

Nothing 3 minutes Fills out Fills out at computer disability forms disability forms

Ask to read test results/lab/patient record 4-8-10Visit Oncologist during office hours

Speak about case, write down notes in journal never shown the computer screen

Visit Medical Records Dept. 4-17-09 ask for a copy of EMR Quoted a price of 73 cents per page & a 21 day wait

Finally get a copy 4-23-10 due to a paper work error…

Come to my Office Hours….

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The Internet can help patients and caregivers…

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Access to Data + The ability to research online can ignite positive change

Medical Facts Mural

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73 Cents

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Patients are embraced by Social Media

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Can Medicine learn from Mass Transit?

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An appointment at KP

Promise to Do Your Best

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Which “H” do you focus on?

• Health

• Hope

• Human

• Hear

• Harass

• Hospital

• Hassle

• … Holliday, Fred

not the patient in Room 6218