Club COSTA Circle of Support for Teens and Adults With Fetal Alcohol Spectrum Disorders
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Transcript of Club COSTA Circle of Support for Teens and Adults With Fetal Alcohol Spectrum Disorders
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Club COSTACircle of Support for Teens and AdultsWith Fetal Alcohol Spectrum Disorders
How to Start a Local Self Advocates GroupPresentation by Teresa and John Kellerman
www.fasdlane.com
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A Good Idea?
It’s not going to work until you get connected to some positive energy.
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Some Succeed, Others Don’t
• Some adults with FASD succeed, others fall into the cracks.
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How Do We Define Success?
• Get an education• Earn a living• Being self-sufficient• Thriving in a safe
environment
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How Do They Fall Into the Cracks?
• Running away from home• Homeless, living on the street• Getting arrested, going to jail or prison• Getting fired from a job• Being evicted• Under the influence of poor judgment• Loss of freedom and independence
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What Do You Want In Life?
• Self-sufficiency (as they are able)• To love and be loved• Be healthy• Be happy• Be safe• Avoid serious problems in the future
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Ann Streissguth’s Study
Secondary Disabilities with FASD:• Mental health issues (some preventable)• Trouble in school• Trouble with the law• Inappropriate sexual behaviors• Substance abuse• Institutionalization
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We all need a Circle of SupportWe are interdependent. We can share resources.
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What Resources Do We Have?• Family, friends, mentors• Books (“Damaged Angels”)• Internet• Mail lists• Support groups• Local self-advocacy agencies• What about “the System”?
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We Need So Much More
…
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1st Step – Get Connected• Disability community • Legal advocacy agency (each state has one)• Community forums • Faith community (try out different churches)
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2nd Step – Get Involved• John and I both volunteered on board of
Pima Council on Developmental Disabilities• Attended classes through county and state
programs• John became a drummer in the band, I am
a volunteer at church• I volunteered to be a parent mentor with
local advocacy group, became a board member
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3rd Step – Get Noticed
• We gave presentations at conferences (for no pay)
• We gave talks in schools, for civic groups and at community events
• We put materials on tables at events • I Write articles for local organizations
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4th Step – Identify Your Resources• Who can provide a place to meet?• Who will help you get the word out?• Local businesses might make a donation• Find a fiduciary for collecting donations• Articles and ideas from
– www.fasdlane.com– www.fasday.com– Club COSTA CD
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5th Step – Put It All Together
• Find other interested families • Find a place to meet• Decide on a time and date• Use our logo and flyer as a template• Send an email invitation one month prior• Reminder notice a week ahead of time• Sit back and watch what happens!
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“If you build it, they will come.”You are invited to attend
our first meeting ofClub COSTA
Refreshments, Games, Prizes
RSVP by the end of the month
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The ABC Rules• Ask for help• Be respectful • Communicate your needs
“I promise to be respectful to myself, to others, and to my environment at all times.”
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Self-Advocates Checklist
• I understand what FASD is. • I use “People First” language.• I show respect to all persons at all
times.• I ask for help when I need it.• I communicate my needs.
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The TLC Symbols• Table where we discuss, listen, learn
• Ladder of success with 9 steps
• Circle of Support
• TLC=Love
• Center of Love=Trust
• Trust > Acceptance
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A Symbol as a Reminder
• Two circles of support: one for the individual with FASD, one for the parents/mentors.
• Ladder inside stability of two circles
• Love based on trust leads to acceptance
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Add a Touch of Magic!
Other presentations and workshops:
“Mama Teresa’s Magic Bag of Quick Fix Tricks”“From Screams to Dreams”“Believe In Yourself”“Ladder to Success”“The Magical FASD Mystery Tour”
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The Ladder to Success
The life-long secrets of parents whose children thrive in spite of having FASDs.
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From SCREAMS
to DREAMS
Parenting the Substance-ExposedChild Without Losing Your Sanity
Presentation byTeresa Kellermanwww.fasstar.com
“The Scream” by Edvard Munch
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The Magical FASD Mystery Tour
Survival Strategies for Parents and Caregivers of Alcohol-Affected Children and Adults
Presentation by Teresa Kellerman
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Mama Teresa’s Magic Bag of Quick Fix
Tricks Teresa
shares her quick and easy secret tricks that work like magic!
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Thank you. Thank you very much!
Take a card… any card.
Teresa and John Kellerman(520) 296-9172
www.fasstar.comwww.fasdlane.com