Clinical Eectiveness of dramatherapy in the recovery from neuro-trauma

download Clinical Eectiveness of dramatherapy in the recovery from neuro-trauma

of 13

Transcript of Clinical Eectiveness of dramatherapy in the recovery from neuro-trauma

  • 7/30/2019 Clinical Eectiveness of dramatherapy in the recovery from neuro-trauma

    1/13

    disability and rehabilitation , 1999; vol. 21, no. 4, 162174

    Clinical eectiveness of dramatherapy in therecovery from neuro-trauma

    PAT MCKENNA* and EILEEN HASTE

    Rookwood Hospital, Llanda, Cardi CF5 2YN, Wales, UK

    Accepted for publication : July 1998

    Abstract

    Purpose : To investigate the clinical eectiveness of a shortcourse of dramatherapy (an eclectic term encompassing all thearts therapies), delivered in a one-to-one interaction, in asample of 10 patients in a neuro-rehabilitation unit.Method: Each participant received ve individual one-to-onesessions of therapy over a 5 week period. A semi-structuredinterview was carried out with each participant following the

    course.Results : Qualitative analysis of the taped interviews elicitedhow the therapy co ntrasted and complemented the rest of therehabilitation setting and therapies and how it helped psycho-logical adjustment to severe disabilities resulting from neuro-trauma. There were four ways in which it appeared to empowerthe participants and nurture their self esteem. It provided themwith a sense of personal space in an otherwise institut ionalsetting; it allowed escapism and enjoyment; it awakenedcreativity and a sense of po tency; and it provided a metaphorto explore personal issues.Conclusion : Dramatherapy made an important contributionto the healthy adjustment of some patients both to hospital lifeand to acquired disability. The reports from the patients

    indicated that this approach to rehabilitation should be fu rtherincorporated and developed in neuro-rehabilitation.

    Introduction

    The majority of people in a neuro-rehabilitation unit

    have shared the same trauma of a sudden, life threatening

    event which leaves devastating sequelae aecting physical

    and}or cognitive status. The psychological eects of such

    trauma are aptly described by Duggan and Grainger " as

    `capable of shattering our equanimity to such a

    degree that we are cut completely adrift from our

    existential moorings and thrust into an ocean offears and inadequacies, a turmoil of existential

    chaos. (p. 64)

    At the same time, the individual has to negotiate his}her

    new role as a patient and meet the expectations of family

    and sta (as well as their own) in adjusting to disability

    and in learning new skills. This process is an intensi-

    * Author for correspondence.

    cation of social relations, described by Duggan

    Grainger as keeping

    ` our balance among the conicting demands

    pressure of the social networks that sustain us

    also distort our judgement, circumscribe

    awareness and most important of all res

    our freedom to be ourselves. We are pulled this

    and that in the present by others present . (p.

    This study explored the use of dramatherapy in mating adjustment to neuro-trauma within the hos

    setting. The rationale for this lies in the power

    subjective perception has to change the individ

    relationship to actual or external reality, a relation

    currently emphasized in clinical health resea

    Johnston# in her model of disability described the fa

    within the health setting of current practice and meas

    of outcome to allow for this crucial stage in adjustin

    physical disability. The medical model of care which

    characterized the health service for most of its exist

    has viewed health mechanistically as a lack of phyinrmity. In rehabilitation terms, this criterion look

    objective physical measures such as mobility, phy

    strength and lack of physical disability to gauge recov

    The traditional model of disability, current in the he

    service and embodied in the World Health Organisa

    model 1980$ similarly assumes a simple causal link f

    physical impairment to handicap outlined as sh

    here:

    Disease or disorder! impairment ! disability! handic

    This simple linear relationship does not hold u

    clinical experience. A `good outcome following

    habilitation often exists alongside social or emoti

    misery and distress. In examining and integra

    psychological models of adjustment (emotional,

    havioural and coping models) Johnston proposed

    impairment also gives rise to mental representat

    which can aect coping behaviours and moderate

    09638288}99 $12.00 # 1999 Taylor & Francis Ltd

  • 7/30/2019 Clinical Eectiveness of dramatherapy in the recovery from neuro-trauma

    2/13

    Dramatherapy and recovery from neuro-trauma

    relationship between impairment and disability. John-

    ston further found that mental representations could

    predict level of disability when coping behaviours (as

    taught by therapists) did not. To maximize the chances

    of a positive adjustment to disability, rehabilitation

    programmes need to address mental representations and

    subjective perception in patients.

    The health service is presently revisiting a psychosocial

    concept of health which addresses quality of life andwhich includes a state of subjective well-being. This

    move is reected in the World Health Organisation,

    WHOQOF Group 1994$ which now denes quality of

    life as

    `An individuals perception of their position in life

    in the context of culture and value systems in which

    they live, and in relation to their goals, expecta-

    tions, standards and concerns. It is a broad ranging

    concept incorporating and aected in a complex

    way by the persons health, psychological state,

    level of independence, social relationships and theirrelationship to salient features of the environment .

    In practice, there still remains the problem of how to

    redress the balance and nurture psychosocial well-being

    within the healthcare setting. The following project

    reects one attempt to supplement the traditional

    medical model of care with the newly evolving psycho-

    social model of care within the health service, and within

    rehabilitation in particular.

    Dramatherapy refers to the application of all creative,

    artistic and imaginative activities to produce positive

    change in people within a focused therapeutic context.Its therapeutic eect is attributed to the belief that the

    reality experienced through imagination is capable of

    providing as much an eect on ones being as actuality

    and can provide as potent a vehicle for coming to terms

    with reality as objective experience.% , &

    All of these benets apply to dramatherapy work,

    whatever the setting. More specically, in the context of

    working with clients who are having to adjust to physical

    and}or neuro-disability, traditional therapies (physio-

    therapy, occupational therapy, speech therapy and

    neuropsychology) necessarily address the objective world

    and the fact of disability, continually reinforcing the loss

    and change. Dramatherapy can release the individual

    from the immediate present and give time to explore

    those parts of the subjective world untouched by the

    present loss. Some anecdotal evidence for benets of this

    in the rehabilitation setting arose when the drama-

    therapist piloted some experimental sessions within

    Rookwood on a one to one basis with a heterogeneous

    group of patients from January to March 1995. This

    method of ` open sampling produced positive feedb

    from patients and sta and warranted f urther ex

    ration of potential benets.

    This study represents an attempt to evaluate form

    the eects of dramatherapy intervention on the reco

    process following severe neuro-trauma. The appro

    best suited to the aims of the study was that of groun

    theory, , ( which allows for theoretical formulation

    emerge from the process of investigation as an product. Thus, no a priori hypotheses were for

    beyond a general understanding that the therapy w

    essentially engage the client in a creative process whi

    understood on some level to be personal and symbol

    them, and that this would be of heuristic value in t

    adjustment to the hospital setting and their acqu

    disabilities.

    Method

    choice of participants

    Originally, patients recovering from head injury wto be targeted but this proved too narrow a select

    given the constraints of the research timetable and

    availability of patients. In particular, care needed t

    exercised in predicting the likely length of hospitaliza

    for each patient. Consequently, the selection cri

    were expanded to include any patient with a traum

    event to the central nervous system producing severe

    sudden disability. Ten completed the course, six pati

    were recovering from head injury, one from a cere

    vascular accident, two from removal of a cerebral tum

    and one recovering from Guillain Barrie syndrome

    structure of the therapeutic intervention

    The introductory session included an interview

    the dramatherapist in order for her to prepare

    individual programme of activities based on t he inte

    of the participant. The following week therapy

    commenced on a one to one basis with the particip

    and dramatherapist and this occurred for 1 hour e

    week for 5 consecutive weeks. In the fourth sessio

    Video camera was positioned in a corner of the room

    allow later observation by the neuropsychologist.

    content of the therapeutic intervention

    The therapy used various artistic forms of crea

    expression, within an aesthetically pleasing environm

    in order to stimulate and release the imaginative

    creative ability of the participant. The activities c

    either be used in self reference to address present conc

    and diculties, or could be externally focused

  • 7/30/2019 Clinical Eectiveness of dramatherapy in the recovery from neuro-trauma

    3/13

    P. McKenna and E. Haste

    distanced from self, as each participant wished. Using

    visual images, objects, music, making materials, maps,

    myths and legends, poems, relaxation t echniques and

    visualization, clients engaged in creating sound re-

    cordings, stories, pictures, landscapes and sculptures.

    Sometimes these involved movement on a small scale,

    and at others, a combination of the above means were

    employed. These accomplishments were either purely

    narrative or were symbolic of personal journeys or werespecically related to personal issues. Although it was

    emphasized that the treatment was not performance

    related, some clients chose to record parts of the process

    through photos, pictures or the written word (for an

    example, see Appendix I for Rebeccas poem).

    measurements of effectiveness of the therapy

    To monitor the responsiveness of each person within

    the dramatherapy session, the dramatherapist lled in

    two checklists immediately after each session. One,

    devised by the neuropsychologist, helped to gauge theresponsiveness of the participant. The other, devised by

    the dramatherapist, aimed to judge the appropriateness

    of the material for the particular individual (see

    Appendix II, (a) and (b)). Following the fourth session,

    the neuropsychologist also lled in these checklists, after

    observing the session on video.

    Within a few days following the last session, the

    neuropsychologist carried out a semi-structured inter-

    view, which was tape recorded in most cases (the facility

    was not available for the rst two). The central questions

    were how enjoyable or worthwhile the course had been

    to them and what relationship this had, if any, to the rest

    of their experience in the hospital. They were also asked

    to rate the importance of the two main therapies,

    Physiotherapy and Occupational Therapy as well as

    Dramatherapy in their rehabilitation programme on a 4

    point scale from `not important to `very important.

    Results

    Of the 10 patients who entered the course, One patient

    (John) died just before the nal session and another

    (Greta) was transferred to another hospital just before

    the nal session. The patient who was transferred was

    visited for follow up interview in the other hospital so the

    database was complete but the course shortened by one

    session. These two patients were kept in the database as

    they had completed the bulk of the course. However,

    interviews were collected for only nine of the group.

    Table 1 displays the sex, mean ages and medical

    condition of the group and the mean time for par-

    ticipation in the dramatherapy course.

    Following session four of the dramatherapy cou

    both the dramatherapist and the neuropsychologist

    lled in the checklist measuring engagement of

    participant in the session. The correlation for this

    very strong (r 5 0.87) and signicant at the 0.001 l

    This is hardly surprising as most participants w

    scoring close to, or at, ceiling, indicating that they w

    able to both carry out the activities and inte

    appropriately with the dramatherapist.At the end of the entire series of interventions

    dramatherapist was asked to dene the ways in w

    she felt the therapy had been of benet to

    patients. She dened four distinct processes that she

    ceived during the sessions, which were not mutu

    exclusive but which did represent increasing level

    involvement:

    (1) Take control of details in the environment

    eect or can enhance their ability to be themse

    i.e. create a personalized space;

    (2) Enjoy or rediscover the nature of p lay, creatand spontaneity;

    (3) Develop existing skills and discover new abi

    and therefore experience the role of creator;

    (4) Gain insights into the nature of their psy

    emotional processes. This is achieved by tr

    lating their inner world into a concrete m

    festation which can then be observed from a

    perspective.

    The ratings of importance from all therapies from e

    participant were as seen in table 2.

    individual profiles of participants

    The following descriptions provide background

    formation on each participant and give a brief overv

    of their experience and attitude to the dramathe

    course.

    Greta

    Aged 35, was a young artist who had severely impa

    visuo perceptual skills following a brain haemorrh

    For much of the time, Gretas rehabilitation program

    reinforced the loss of basic levels of skills in which

    Table 1 Age and sex of group participants and time monitored

    Age Sex Time monitored (d

    Mean Range Male Female Mean Range

    34.5 1669 5 5 38.2 2742

    (n 5 10).

    164

  • 7/30/2019 Clinical Eectiveness of dramatherapy in the recovery from neuro-trauma

    4/13

    Dramatherapy and recovery from neuro-trauma

    Table 2 Frequency ratings of importance of therapy to treatment (4

    5 very important, 3 5 important, 2 5 slightly important, 1 5 not

    important (n 5 9)

    Categories: 1 2 3 4 Total

    Physiotherapy 0 0 1 8 9

    Occupational therapy 1 2 4 2 9

    Dramatherapy 0 2 4 3 9

    had excelled before her illness. For her, dramatherapysessions were comforting and comfortable and allowed

    her to experience the sheer enjoyment of her creative

    skills freely, the impairment being irrelevant. In this way,

    she could again experience continuity of self. She often

    expressed this during sessions. Of equal importance to

    her was the space and medium it provided for her to

    work through problems she needed to solve by using the

    materials as metaphor.

    Mike

    Aged 41, was recovering from the removal of a brain

    tumour which aected mobility and coordination. Newly

    wheelchair dependent, he had also to contend with visual

    and auditory impairment as well as continuous pain and

    facial disgurement. For him, the main benets of

    dramatherapy consisted of restoring self condence and

    demonstrating his creative abilities, as well as showing

    him that he could adapt this facility in other ways than

    he had in the past, allowing him to express some hope in

    the future. Mike was naturally ecient and organized

    and found the inconsistencies in communication and

    changes in timetables which occurred in the hospitalroutine very dicult to tolerate and increased his sense

    of helplessness. He found dramatherapy increased his

    self esteem and redressed the balance.

    Mike was also interviewed 7 months later when he was

    readmitted for routine review. Mike was still very positive

    in his appraisal of the course and gave his permission for

    this to be reproduced in its entirety (see Appendix III).

    Ned

    Aged 30, was a young man in his early thirties who had

    suered a third head injury which left no obvious

    physical decit nor primary problems with language,

    perception or memory and he was above average in

    intelligence. His personality had become increasingly

    odd and his awareness of social rules was poor. Neds

    overriding cognitive decit was of the ` executive syn-

    drome which had never been recognised before, even

    though it was suspected that it had rst been acquired in

    his earlier head injuries. For most of the time, Ned was

    dogged by a sense of being disjointed in life and bein

    by others and he described a part of him that

    helpless, worthless and confused, a feeling that he ha

    `quite got the grip of whats happening all the time

    dramatherapy, he was able to experience a continuit

    self that predated his head injuries, when he was ha

    playing alone for hours in the countryside and on

    beach. The contribution that dramatherapy prov

    was to allow him to clarify what way of life suitedneeds and personality. This also allowed him to pl

    blueprint for work and living which also became pa

    his community programme. Some 5 months a

    discharge, his social worker rang to request a lis

    dramatherapists in their local area.

    Sharon

    Aged 25, was recovering from a head injury resul

    in physical disabilities which required wheelchair

    bility. Her cognitive diculties were subtle but se

    and she was extremely passive, mostly unable to iniconversation and giving answers which were usu

    semi-automatic and appeared to be based on what

    expected. Sharons premorbid background inclu

    involvement with various social services and o

    agencies; and wariness of institutional or professi

    personnel was a long-standing trait. For Sharon,

    dramatherapy sessions seemed another element of

    rehabilitation which she tolerated b ut with which

    never seemed to engage fully. At initial interview with

    dramatherapist Sharon `showed neither resistance

    enthusiasm towards dramatherapy. She seemed wi

    to take part . At interview, her responses were nearl

    mono-syllabic and her strongest reports of its eec

    ness were as a way to get o the ward (the rare respo

    she volunteered, apart from `yes and `no) and that

    enjoyed it. Though part of her inability to elaborate

    due to diculties in producing creative thought, she

    appeared to remain guarded in all her relationships

    activities in the hospital.

    Graham

    Aged 17, was still of school age when he had a h

    injury which left him with a very mild hemiplegia w

    required a wheelchair for a short time, memory

    pairment and some generalized intellectual blun

    which were resolving quickly. He was also very kee

    leave hospital and return to his peer group. Not atyp

    of his adolescent group, Graham was almost to

    invested in his friends and music and it seemed impor

    for him to maintain a stance of indierence to anyt

    outside this remit. Graham tended to be ov

  • 7/30/2019 Clinical Eectiveness of dramatherapy in the recovery from neuro-trauma

    5/13

    P. McKenna and E. Haste

    dismissive of dramatherapy, in keeping with his general

    attitude to everything in the hospital, apart from

    physiotherapy which he considered was important in

    helping him achieve a normal gait. In spite of this,

    Graham worked in a very focused and engaged way

    during sessions, discovering a real talent for creative

    artwork and often showed spontaneous pride in what he

    had produced. However, positive responses were often

    followed by dismissive ones to keep in line with hisgeneral life script at present. Grahams appraisal of

    the course consisted mostly of its benet in allowing him

    to listen to his music without wasting his own batteries,

    producing a good picture and passing time instead of

    `hanging round the ward.

    Mel (Melissa)

    Aged 30, was a health professional recovering from a

    debilitating neurological disease which caused severe

    paralysis. She still needed wheelchair assistance for

    attending departments and physical mobility was stillgreatly reduced. Mel particularly appreciated the op-

    portunity to be in a more individual atmosphere in which

    she could be free to indulge in whatever form of

    imaginative play she wished and which did not need to

    lead to a nished product, conform to a goal or

    specication but to be enjoyed purely in the present. Mel

    found this very easy and used the session in the fullest

    possible way. It seemed that she created a space that in

    the context of her situation, was a healing place. Mel

    was extremely appreciative of the sessions as both time

    out from being a patient and for the sheer pleasure of

    engaging in imaginative experiences. She also valued the

    contrast in the environmental atmosphere.

    Maurice

    Aged 69, was a retired consultant who sustained a

    head and spinal injury after falling. He preferred to rest

    most of the time, preferably on his bed. He found it

    dicult to concentrate on anything for long and was

    plagued by discomfort, always needing to return to his

    bed. Consequently, he shortened his dramatherapy

    sessions and interview to a point where he could interact

    at a purely socially scripted level, relying on semi-

    automatic social niceties. Maurice had been very able

    intellectually and was socially polished. His cognitive

    decits prevented him from more complex processing.

    Consequently, much of his behaviour circumvented any,

    or real, engagement with the material. Though Maurice

    was very positive in his appraisal of the course, his

    account bore little relation to what had actually occurred

    in sessions.

    Joanne

    Aged 36, had sustained a head and spinal in

    following a road trac accident. Her cognitive de

    included an inability to grade her emotional respons

    the magnitude of the problem and she was preoccu

    and overfocused on many diculties, being both agit

    and highly anxious. Joanne needed intensive psy

    logical support from the team which was of limited

    transient benet as her cognitive decits preventedfrom fully incorporating these insights in the long t

    The dramatherapy course complemented these

    proaches by providing her with time out from

    preoccupation and the opportunity for physical re

    ation which she valued above all other benets. Tho

    this aim was simple and very focused, it fullled Joan

    psychological need to experience some measure of p

    and tranquillity.

    John

    Aged 49, had sustained severe cerebral dam

    following removal of a brain tumour and had bee

    Rookwood for nearly 2 years. For almost a year, he

    produced very little response to his environment

    suered uncontrolled epilepsy. After 1 year, when

    epilepsy had been controlled with medication, J

    slowly but surely began to recover, rst moving his li

    a little and eventually being able to use a litewriter a

    nally, to talk. After another year, John took part in

    dramatherapy project. John was very able intellectu

    before his operation and, though he had a signi

    degree of generalized intellectual impairment, wasable to function at an abstract level and wanted to

    the sessions to develop a tape of Bob Dylans music

    a commentary. John died before the last session, an e

    which was unexpected and traumatic for his family

    the rehabilitation sta. During the fourth, vide

    session, John reiterated his intention that the tape wa

    be made for others to hear. Thus, John left a valu

    asset for others to use and the video of the fourth ses

    was given to his family. The dramatherapy course

    been uniquely, if idiosyncratically, valuable in Jo

    case.

    Rebecca

    Aged 21, was a young woman who had been invo

    in a road t rac accident 2 years previously which lef

    with a severe head injury and long term physical

    cognitive decits. Rebecca had been living in a reside

    home which was geared to meet the needs of people

    were physically disabled where she found the climat

    166

  • 7/30/2019 Clinical Eectiveness of dramatherapy in the recovery from neuro-trauma

    6/13

    Dramatherapy and recovery from neuro-trauma

    be institutional and unresponsive to her needs as an

    individual. She took part in the dramatherapy course

    when she returned to Rookwood for review to help

    assess her suitability for a place in a transitional

    rehabilitation unit. Rebecca was still reliant on wheel-

    chair mobility and was very aware of what she had lost

    in terms of physical and social independence. She

    described the dramatherapy as ` brilliant on several

    occasions and used it both to rediscover her creativity viawriting poems, which she had not done since a teenager,

    and to work through personal issues. She also empha-

    sized the dierence between it and other therapies as

    being the rst time that she felt herself to be an equal

    partner in the exchange.

    Summary

    Thus, ve of the nine participants (Greta, Mike, Ned,

    Mel and Rebecca) were very positive in their appraisals

    and could provide rich, multi-faceted descriptions of the

    benets of the experience for them. Their self reports alsomatched the subjective observations of the therapists. A

    further participant, Joanne, felt positive about the

    sessions as a form of relaxation therapy, which was

    observed to be the case by therapists but this seemed to

    be the extent of its use for her. Although this was only

    one element of the many potentially available in the

    treatment, extreme anxiety was the most disabling

    symptom of her illness and she could easily be brought to

    the point of sleep in the sessions. Of the remaining three

    people who were interviewed, Maurice gave very positive

    feedback about the experience but this did not tally with

    his observed behaviour during the sessions and it was

    doubtful that he had really engaged with the activities.

    The nal two interviewees, Graham and Sharon, were

    politely positive but unconvincing in their appraisals. In

    spite of this, Graham had seemed able to engage more

    than he had expected or intended to but needed to retract

    whenever he showed enthusiasm. Though John died

    before he could feed back his feelings about the course,

    he had, in the fourth session, emphatically reiterated his

    intention that he was making the tape specically for the

    benet of other people to use and his creative endeavour

    speaks for itself to some extent.The overall summary of these self reports are sum-

    marized in table 3.

    Qualitative analysis: the ways in which the therapy was

    eective

    The transcripts of the interviews with the participants

    were studied at length individually and comparisons

    across transcripts made. Individual concepts elicited by

    Table 3

    Self report Therapists reports

    Greta 111 111

    Mike 111 111

    Ned 111 111

    Mel 111 111

    Rebecca 111 111

    Maurice 11

    John ?? 11

    Graham 1 11

    Joanne 1 11

    Sharon 1 1

    111 Highly benecial, 11 benecial, 1 a positive experien

    no data no real benet.

    each participant were grouped into core concepts w

    they overlapped with concepts from others. From

    the following four categories emerged which sho

    remarkable congruence with those which the dra

    therapist had produced independently (see page 1

    Thus these categories emerged through a procesinitially noting common themes, successively rene

    re-reading each transcript, and considering the stren

    commonality and variations across them. The numb

    patients who reported nding benets in each of t

    four ways are also indicated.

    creating a personalized space : contrast to

    traditional therapeutic interventions

    All the ways in which the participants described

    therapy as being eective lay in its contrast to traditi

    therapeutic interventions. This reects the rst prodescribed by the dramatherapist as the ability to

    control of details in the environment that eect or

    enhance ones ability to be oneself, i.e. creat

    personalized space. Six of t he nine participants who w

    able to feedback at interview gave clear accounts of

    process, part of which reected a balance betw

    freedom and structure woven into activities, tailore

    suit the individuals creative needs and personal s

    which also empowered the individual and made them

    in control of the procedure. Greta described thi

    follows:

    `Eileen had the sensitivity to nd my crea

    way came from my inner space, which

    painting That approach, that Eileen develo

    concentrated on what you enjoyed.

    Mike and Graham expressed this as being able to li

    to their music as and when they wanted and

    described this most directly in the following way:

    `She was quite easy to go along without

  • 7/30/2019 Clinical Eectiveness of dramatherapy in the recovery from neuro-trauma

    7/13

    P. McKenna and E. Haste

    structure, but shed also have content to keep it in

    control and not go wandering o She didnt

    demand of you. She just let you go, but kept it

    within thered be times when shed b ring it back

    inyou know lead where she wanted to go really.

    Rebecca described the sensation of empowerment thus:

    ` it was really peculiarnormally with the

    therapist, you think ` theyre the therapist, Im the

    patient. When I was with Eileen it was like she was

    my friend. The only dierence was that I was in a

    wheelchair. So that helped me see really ``what

    dierence does it make?.

    The feeling of being in control and empowered also

    engenders a sense of timeless and personal space. This

    was brought up by Mel:

    `There was not really any demands on you. It was

    pure easy goingThe hour just ew by really we

    were just here doing what we wanted to do.

    and Ned

    `Oh crikey, has the time gone that quickly? I was a

    little bit sorry that it was nished`It is more

    enjoyable than the other therapies

    Part of the contrasting experience of having both

    freedom and control over the proceedings was due to the

    non-clinical environment. Mel, who was a health worker

    and used to the clinical setting, particularly remarked on

    this:

    `The atmosphere was really calm and placid and

    quiet. Also its nice in there because its just one

    person in an environment that you want it to be.

    Eileen says ``do you want the lights on and which

    music do you like on?.

    All of the participants had been in hospital at least

    several weeks and many for months and some were

    acutely aware of the ways in which they were vulnerable

    to becoming institutionalized. Participants listed the

    opportunity to leave the ward as a benet in itself. As an

    antidote to institutionalization, the therapy was much

    valued:

    `you get pushed and pulled around a lot in an

    institution. Clothes, untidy, little things, being

    woken up too early. Riled me a lot insensitivity.

    Got me away from the ward. (Greta)

    `its time out from being a patientyou just felt

    it was a change from sitting on the ward, the

    horrible magnolia walls.It gets you out of that

    rut of routine The nurses control the environ-

    ment, they control when the lights go on and

    when the TV goes on and othe routine

    hospital decrees when you eatyou can bec

    overwhelmed in a sense of the routine. (Mel)

    Beyond the pleasures of the process of empowerm

    further benets experienced reected deeper engagem

    with the process to provide the experience of escap

    and enjoyment, the awakening of creative potential

    improvement in self condence as well as a meangaining insight into ones inner world. These reected

    same processes described by the dramatherapist spec

    on page 164 in terms of rediscovering the nature of p

    creativity and spontaneity, experiencing the role

    creator and gaining insight.

    escapism and enjoyment : rediscovering the natu

    of play , creativity and spontaneity

    This was the most commonly reported benet, cle

    described by eight of the participants. Their awarenesheer pleasure during the sessions demonstrated for t

    that subjective experience need not be dependent on

    reect, actuality and that pleasure could be accessed

    a regular basis even in stressful or distressing

    circumstances.

    Sharons consistent and positive response to whe

    she enjoyed dramatherapy was always to say `

    Given that she was not able to give any more elabo

    responses beyond the mono-syllabic, this sparse

    persistent response could reasonably be taken at

    value. Graham was also unable to expand bey

    conrming he `enjoyed the experience.

    Others were more clearly enriched by the process

    for some the promotion of a positive state of m

    increased their ability to look positively on di

    circumstances. Greta described this as making her

    quite happy and joyful and thus feeling better a

    herself and more uplifted, Tony was especially surpr

    at his facility:

    `It was an hour I could almost forget about

    condition I was using my imagination, I

    forgetting. When I was taking the photograph

    making up my vision in 3D using what she ha

    the bag string, pebbles, shells, I found it ra

    silly but a good laugh and that made me feel g

    The ve sessions went very quick I had tho

    that it was a long time but in no time the ve

    gone already In contrast, I cant concentrat

    the ward, I cant read a book or do anything on

    ward because the pain distracts me. But the

    could.

    168

  • 7/30/2019 Clinical Eectiveness of dramatherapy in the recovery from neuro-trauma

    8/13

    Dramatherapy and recovery from neuro-trauma

    Ned, in comparing it to the work he was doing for the

    rest of the time in the hospital, described his experience

    as follows:

    `Its more enjoyable in a lot of ways. Its lovely

    music, its nice and relaxing. Got to sort of poodle

    around and paint. I love looking through bagfuls

    of dierent artefacts. I nd that quite fascinating,

    beautiful shells and things. I could sit there and

    make pictures and use my imagination.

    Mel experienced escapism most acutely:

    `I actually forgot I was sat in the [wheel] chair and

    almost at one point went to stand up and go Its

    more than an hour away from the ward. Its an hour

    in a dierentdoing something that you want to

    do its something that you could totally enjoy and

    not really know at the time how much eect its

    having on you until you, like I said, until you get

    back. And then you realise ``here we are again.

    A more passive form of enjoyment might be thought ofas relaxation and this was most valued by Joanne for

    whom the sessions could provide physical as well as

    psychological release from the agitation and anxiety of

    obsessional preoccupation with minor problems centring

    on her health and interactions with sta. In relaxing, she

    could escape her present situation and, with the help of

    pictures, immerse herself in imaginary scenes of her

    choice (at the seaside with her children). Ned also

    beneted from the relaxing eect which lasted beyond

    the sessions and helped in his general interactions with

    sta:`Because it was nice relaxing music. I was sort of

    just relaxed. Ive found actually since then, Ive

    kind of learnt how to relax a bit better.

    awakening creative potential and improving self

    worth and confidence

    Seven of the group actually produced creative works,

    ve of whom described a consequent process of feeling

    empowered which contrasted with their previous feelings

    of dependency, worthlessness and sometimes hopeless-

    ness. While the previous level of engagement led to a

    positive state of mind this level of engagement provided

    concrete evidence of an ability to make a positive

    contribution and be of use and worth in sometimes novel

    and experimental ways. Thus, it became apparent that a

    negative and unproductive future does not inevitably

    follow the fact of disability. Mike particularly beneted

    from discovering his creative talent and described how

    this cascaded to enrich his self image:

    `and it was nice to express what I though

    never done that not since I was in schoo

    `Though I cant do those things again [referrin

    impaired coordination preventing playing o

    keyboard] this reminded me that I was still n

    my head, I can still be creative.The chanc

    being even a little bit creative because I c

    play music any more, make anything, basi

    cant do anything, and therefore cant expmyself, it is reassuring that havent really lost i

    there. `I dont know why but like exercise

    when I leave the premises Im still exercising,

    more condent. Therapy apart from body

    mechanics is important. Brain still needs so

    thing.

    Ned:

    `I got to sort of poodle around, do some pain

    get some sticks and things and make things

    generally it was good. It encouraged me to use

    imagination.Greta and Mel were also very much at home in the

    of creation and for Greta the experience was an exten

    of her everyday life as an artist. Though she used

    process to gain insight into her present coping m

    anisms, it was clear that she also relished the creative

    in its own right enjoying the aesthetic sensuality o

    medium. Greta had marked visuo-perceptual impairm

    and was often devastated by her consequent reduced

    in visual artistic ability when engaged in her o

    treatment sessions. Dramatherapy provided her

    new ways to experience her creativity:`by working with other modalities, touch

    textureI had to pick up objects and underst

    them through touch.

    Mel, who described becoming estranged from crea

    activities in the normal course of her very busy life

    working mother, was delighted with the opportunit

    re-explore the experience and consequent empowerm

    `And it was nice to be able to do something

    looked lovely and was nice to do and was v

    textural, which helped a lack of sensation in

    hands. `As we get older we just get so invo

    with going out to work, earning money, d

    housework. [On creativity] I can still do it, its o

    to do it. You always think ``Oh art, Im not g

    to be very good at that. But the positive thin

    theres always something creative in everyb

    Whether its, not exactly draw or paint, but jus

    objects to make a picture, or make a story or po

    or something like that. I really enjoyed doing

  • 7/30/2019 Clinical Eectiveness of dramatherapy in the recovery from neuro-trauma

    9/13

    P. McKenna and E. Haste

    pictures. It wasnt something that you had to do. I

    liked using the fabric. It was nice to be able to do

    that. To take that awaythat you are still able to

    do something worthwhile in the community.

    Rebecca was delighted to discover she could still write

    poetry and had been sceptical at rst. By examining

    poems she had written as a teenager (5 years ago and 3

    years before her accident) she rst identied similar

    feelings between now and then. She was surprized at theability she had demonstrated and did not feel that she

    still had the creative ability and had no conscious

    intention to attempt a poem. After using word maps in

    earlier sessions, Rebecca produced a poem spon-

    taneously and eortlessly in the fourth, videoed session.

    (see Appendix 1). Rebeccas head injury had aected the

    motor control of her vocal apparatus and she was very

    dicult to understand, so that conversation was slow

    and Rebecca often had to repeat herself and even spell

    out words before they could be understood. Through

    poetry, Rebecca could have a potent voice. Johns case,perhaps most clearly, embodies the act of creation,

    empowerment and usefulness for the community in

    producing a piece of work clearly specied to be made

    available and used by others, as a gift outlasting his

    mortality.

    psychotherapeut ic process

    Three of the group, Greta, Ned and Rebecca, were

    able to both engage in the creative aspect of the therapy

    and direct it towards examining personal i ssues. Mel saw

    this potential but did not wish to use it in this way. Shealso pointed out that the limited number of sessions

    could curtail this aspect of the therapy. For Mel, the

    other three aspects were what she needed at that time and

    she was able to clearly articulate this:

    `Its too short a time to have a counselling

    relationship as such, but like I said shes very easy

    to talk to and very understanding. You could use it

    in that sense i f you wanted to, but I didnt use it in

    that sense.

    Greta, whose artistic nature needed no time for

    reacquaintance with the creative process, almost im-mediately focussed the sessions on salient issues in her

    life:

    `Helped me work out things from being here after

    my illness things from the past. Quite thera-

    peutic. It helped me to see the pressure I was

    putting on myself before the illness by shifting

    what objects stood for in the session it showed

    me how I could shift things in life. Whole way of

    working was very interesting, very clear. It he

    me to gain insight into the past and has

    reaching consequences for the future.

    Ned took a little longer to discover this potential of

    therapy but was able to clarify certain areas of confu

    in his life:

    `It made me sort my thoughts out a little bi

    made me realise that theres two denite side

    my character There was a small stone in

    shape of a heart which I ended up putting in

    countryside which made me realise thats wh

    really wanted to be. It made me kind of re

    things about myself which I suppose Id alw

    known, but I hadnt really though about. I thi

    helped me realize aspects of my character. I th

    it actually helped me know what I wanted whi

    half the battle. Because to be honest with you

    had no idea for a long time what I wanted to

    Basically Ive just gone from the one job to the

    job and then Ive got frustrated because it hareally been what I really wanted to do, but it

    just because it was paying the bills and so I

    doing it.

    Rebecca was caught up in the struggle to acknowled

    degree of permanent disability and was still ndin

    dicult to fully invest herself in the present, loo

    always to the future when she would walk again.

    poem expresses the frustrations brought about by

    promise of normality ` in time, the scale of which is n

    specied. Her poetry writing is a potent vehicle for h

    both express her feelings in a positive and creative and as an excellent focus for therapy to help Reb

    nd a way to adapt to her present level of disability.

    uncommonly after the devastating eects of head inj

    Rebeccas frustration had begun to be expresse

    destructive ways which threatened her well-being and

    image.

    status as a therapy

    Finally, with the exception of John, each partici

    was asked whether they thought dramatherapy w

    luxury or an essential element in their treatment. O

    three people (Joanne, Graham and Sharon) describ

    as a luxury or irrelevant to their treatment and progr

    Joanne described it as `nice but not essential, Grah

    thought of physiotherapy as the only relevant treatm

    for his needs, Sharon tended to give mono-syll

    answers or to say `dont know but rated all therapie

    equally important and gave no real indication of ha

    valued dramatherapy. Maurice described it as being

    170

  • 7/30/2019 Clinical Eectiveness of dramatherapy in the recovery from neuro-trauma

    10/13

    Dramatherapy and recovery from neuro-trauma

    a luxury, could be an essential part of treatment but this

    appeared not so much a conclusion from his personal

    experience (given he had not really engaged in the

    process) as the semi-automatic stance of the cultured

    professional. The remaining ve participants thought it

    was an essential element in treatment. Their responses

    were as follows:

    `not only a good complement but stands alone,

    more benecial than OT at Rookwood. (Greta)

    `I think its not [only] a complementary element

    but a necessary element. (Mike)

    `For me, yeah. For people certainly with my

    character, it gave me the space and the time.

    (Ned)

    `I think people will really benet from it. Because

    it is time out in more senses than just time away

    from the ward, its time out from being a patient.

    Its time out doing something creative. Doing

    something that you want to do. Listening, justquiet. I think it will get people, especially people

    whove been here for a long time, it gets you out of

    that rut of routine. It makes you think a bit more.

    (Mel)

    `It should [be an essential part of treatment]

    because it makes you feel better about yourself.

    (Rebecca)

    Discussion

    Qualitative data from a small group of participantsprovides some promising evidence that dramatherapy

    can be an eective method of intervention for some

    individuals in their rehabilitation following neuro-

    trauma. In describing, in depth, the eects of drama-

    therapy on a few carefully studied participants it has

    been possible to gain some insight into the psychological

    mechanisms of adjusting to neuro-trauma. The semi-

    structured interview was drafted in a loose format to

    allow each participant to say whether or not the course

    had been useful and if so, to describe how it had been

    useful. In the analysis of the responses, a clear symmetry

    between the ways in which the participants beneted and

    those dened by the dramatherapist emerged, increasing

    the validity of these conclusions. These were to redress

    the balance of power within the hospital setting so that

    patients were allowed to experience control over their

    environment, to experience fun as an antidote to the

    negative circumstances of their illness, to be empowered

    by their own creativity and to examine their own

    psychological processes by using the materials as props.

    These are equivalent to core categories in term

    grounded theory( but their validity would also req

    further instances beyond the handful of cases prese

    in this series to achieve saturation point.

    The results also support Johnstons claim that me

    representation of impairment inuences level of disab

    and mediates coping behaviours. For instance, Mike

    Rebecca both fed back that the course acted as a spu

    aid them alter their perceptions of the nature of timpairment. Mike recognized he still had power t

    creative and eective in his life and felt more detac

    and less of a victim to the vagaries of bureauc

    timetabling and organization, a view he was

    expressing 7 months later. Rebecca gained a percep

    of herself as no dierent from others, apart from b

    wheelchair dependent.

    Notwithstanding these positive reports on the ther

    not all the participants beneted to the same extent

    in a homogeneous manner. It was not possible to pre

    in advance who would benet maximally and who w

    benet least nor in what way each would use the therWithin the research framework of this project,

    amount of dramatherapy these patients received ha

    be uniform and delineated by the constraints of

    research protocol. The dramatherapist had origin

    envisaged 10 treatments as being a reasonable expo

    to the medium, particularly as most adults express a

    of condence and some wariness of involvement in

    creative arts. This wariness was increased by the t

    `dramatherapy which was in fact a misnomer

    misleading for both the participants and sta who c

    often not override the belief that it was to do with acThis occurred even with the full written descriptio

    therapy at the introductory stage and a direct

    nouncement at every chance that it was a misnomer

    this series, Greta, the artist, initially `thought of dr

    as not pleasing to her. Ned described `having r

    vations and `not being really sure what it involved.

    fear of having to perform also occurred for art

    endeavour as expressed by Mel:

    `First of all, I thought ``Im not going to be

    good at this art stu and whatever initially

    always felt that Im not very good at arty thinthought ``will I be able to do this?

    Most of the patients were thus taken on `cold and

    very vulnerable and disrupted time in their lives. It

    note that with such little exposure and in so short a

    the participants were able to respond so well.

    However, as the number of participants was small

    the form of therapy challenging, further studies

    needed to explore how well these ndings can

  • 7/30/2019 Clinical Eectiveness of dramatherapy in the recovery from neuro-trauma

    11/13

    P. McKenna and E. Haste

    replicated in the larger population of patients in post

    acute rehabilitation for neuro-trauma. The constraints

    posed by certain cognitive decits and by pre-morbid

    personality traits also needs consideration in appraising

    the therapy at an individual level. These interactions

    were not systematically explored in this small sample nor

    were they the focus of this study which sought to assess

    the benets of the therapy. The question of boundaries of

    application is an important one in targeting the subset ofpatients who will maximally benet. Setting these

    boundaries is not easy. Though it would appear

    reasonable to assume that compromised insight might

    impair ability to benet from the therapy this was not

    necessarily the case. Some participants who had impair-

    ments of the executive system which did compromise

    their ability to integrate and monitor their intellectual

    and psychosocial behaviour at the higher and subtler

    levels of functioning, beneted particularly well. Others

    with more pronounced diculties in ability to monitor

    their thinking processes had greatly restricted or dubious

    benet. Pre-morbid personality factors also appeared toinuence motivation within the therapy but how far

    previous experience, or lack of it, in creative activities

    can inuence outcome needs to be determined.

    Similarly, the amount of exposure to the therapy needs

    to be explored in terms of how well the four posited ways

    of benet can be developed. Overall, the participants

    rated the importance of dramatherapy as equivalent to

    occupational therapy but not so important as physio-

    therapy. Yet their exposure to these therapies were not

    equal. In contrast, each participant would have received

    almost daily physiotherap y and occupational therapyoften for some weeks before the dramatherapy com-

    menced and for very many weeks after. They received

    only ve single sessions of dramatherapy spread over

    some weeks (usually ve, sometimes four). The par-

    ameters of exposure needed to achieve maximum

    creative, psychotherapeutic and long term benet, also

    need to be mapped so the timescale of sessions can be

    tailored to suit the needs of individuals.

    This project demonstrated how addressing the inner,

    subjective world of a small group of patients and

    allowing them to experience their own creativity could

    give them access and insight into their own strengths and

    intrinsic worth. This process appeared to boost successful

    coping within the hospital setting but how well this

    extends to the community which is arguably more

    important is a further avenue needing exploration. It is

    within the setting of the community that coping

    mechanisms are really tested for long term adjustment to

    disability. Psychological coping is so intimate a part of

    physical coping that any physiotherapy gains made in

    hospital can easily be lost if psychological copin

    inadequate. Hospital life does not prepare patients

    the attitudes of society to disability and the eect t

    attitudes have on disabled people. Fitzgerald) descr

    how science, bureaucracy and organized religion h

    played an important role

    `in shaping the construction of disability as

    broken, incomplete and imperfect self, as the

    requiring management, and as the object of pitcharity,

    and how, in the face of disability, the individuals

    image, which is determined by the interaction of inte

    resources and the external inuences, shapes who he

    becomes. De Rozario* highlights the increasing evid

    to show how

    `it is the individuals volitional system, that is,

    persons inner and interactionist world of val

    beliefs, attitudes and inspiration, that help

    mediate, buer and determine the proces

    successful coping.

    Conclusions

    This study demonstrated how dramatherapy can

    some patients cope with both the hospital environm

    and acquired disability following severe illness

    accident. In particular, it highlights the role of

    subjective world of the individual in successful co

    and adaptation to disability. However, the machi

    within the NHS and within the rehabilitation specia

    has evolved to service physical well being under

    medical model of care. These results support the case

    further incorporation and development of this therap

    the acute rehabilitation setting and to explore ho

    might impact on longer-term coping and adaptation

    particular, it provides a starting point for fur

    investigation of the emerging themes that a personal

    space within the rehabilitation setting, play as a form

    therapy, creativity, and the use of dramatherapy

    examine intra-personal psychological processes, ca

    important for patients well-being, empowerment

    self esteem.

    Acknowledgements

    This research was funded by a Clinical Eectiveness grant awaby Bro Taf Health Authority, without which no therapy could occurred. We are especially grateful to all the patients who agretake part in this project. We would also like to thank the nursingand the multidisciplinary team at Rookwood Hospital for enthusiasm, support and cooperation in the smooth running oproject. We would also like to express our gratitude to Torgeir BWyller and Mark Edwards for their very helpful and co nstrucomments in reviewing this manuscript.

    172

  • 7/30/2019 Clinical Eectiveness of dramatherapy in the recovery from neuro-trauma

    12/13

    Dramatherapy and recovery from neuro-trauma

    References

    1 Duggan, M, Grainer R. Imagination, Identication and Catharsis inTheatre and Therapy. London: Jessica Kingsley, 1997.

    2 Johnston M. Modes of disability. The Psychologist 1996; May:205210.

    3 Patrick DL, Erickson P. Health Status & Health Policy: AllocatingResources to Health Care. New York: Oxford University Press,1993.

    4 Jennings S. Dramatherapy. Theory and practice for teachers andClinicians. London: Routledge, 1987.

    5 Cattanach A, Mitchell S, Chesner A, Meldrum B. The handbook ofdramatherapy. Routledge. England.6 Glaser, BG, Strauss, AL. The Discovery of Grounded Theory:

    Strategies for Qualitative Research. Chicago: Aldine, 1967.7 Strauss AL, Corbin J. Basics of Qualitative Research : Grounded

    theory Procedures and Techniques. Newbury Park: Sage, 1990.8 Fitzgerald J. Reclaiming the whole: self, spirit and society.

    Disability and Rehabilitation 1997 ; 19 : 407413.9 De Rosario L. Spirituality in the lives of people with disability and

    chronicillne ss: a creative paradigm of wholenessand reconstitution.Disability and Rehabilitation 1997 ; 19 : 427234.

    Appendix I: example of an activity during therapy

    session : Rebeccas poem

    Appendix II (a): behavioural response to dramathera

    session

    (1) He}she uses hands, arms and upper body to gesture

    appropriately

    almost never 1

    sometimes 2

    often 3

    (2) He}she initiates the use of hands and arms to manipulate th

    environment appropriately

    almost never 1 sometimes 2

    often 3

    (3) He}she uses head, eyes, facial expressions appropriately

    almost never 1

    sometimes 2

    often 3

    (4) He}she shows some attending when engaging with therapist

    1 orientating

    2 continuous focussing

    3 passive responding

    4 initiation

    (5) He}she shows some non-verbal emotional responsiveness wh

    engaging with therapist.

    1 non e

    2 smile}frown

    3 laugh}tears

    (6) He}she shows some verbal emotional expressiveness when

    engaging with therapist.

    1 non e

    2 cadence}some}prosody positive}negative

    3 expresses pleasure}anger

    (7) He}she shows recognition}familiarity of therapist

    1 non e

    2 something (positively}negatively)

    3 often (positively}negatively)

    (8) He}she is responsive to environment

    1 hardly ever2 sometimes

    3 often

    Appendix II (b): engagement in dramatherapy sessio

    Is the client able to engage in the material

    mostly

    at times

    not at all

    At what level is the client engaging

    his}her mind seems focused

    is physically involved

    is vocally involved

    is engaging with the dramatherapist

    Does the client seem

    inhibited

    frustrated

    confused

    willing to engage

    relaxed

    resistant

    apathetic

    anticipating}curious

  • 7/30/2019 Clinical Eectiveness of dramatherapy in the recovery from neuro-trauma

    13/13

    P. McKenna and E. Haste

    Appendix II (b) (cont.)

    Is the material therefore

    too abstract

    too complex

    not relevant enough

    not appropriate for this client

    Outline of patients potential opportunities within dramatherapy.

    Outline of patients needs within dramatherapy.

    Appendix III: Mike: Excerpts from Interview 2:

    7 months post dramatherapy course (September 1997)

    Pat ` So its actually seven months on. Have you thought much

    about that dramatherapy you did since?

    Mike `When I looked through my drawers at home which I keep

    for my cassette tapes and my photographs from drama

    groupI remember then of the times I used to come up for

    those sessions. I sometimes think about the things Ive done

    and what was involved and look at those lessons. When I had

    to make a layout of what was supposed to have been the

    landing space on the Planet Jupiter with all rocks and bits of

    string and everything. I must admit it looked good. On the

    photograph it looked as if it was okay fair enough itlooked a bit toyish, manufactured, but it looked quite good,

    really. It was surprising. Yes I do remember. What it did for

    me was me personally it gave me I remember it did

    give me at the time, during the day when I really didnt think

    so much about my condition I mean when I went to

    Occupational Therapy I was working to improve my

    condition because of my condition. And when I went to

    Physiotherapy I was doing the same there, but when I went to

    Dramatherapy it was nothing to do physically with my

    treatment. And well being in this place I found it was much a

    social thing as well. I didnt consider it as a treatment. It was

    nice to know that after having gone through all this and

    feeling the way I did it was nice for me to think that I could

    get out of my system. I knew I could come up here and I

    wasnt depressed. I wasnt angry. In fact I used to get lost in

    my subject.

    Pat ` So you know when you said that when you were home youd

    open your drawer and youd see what youd done and it

    reminded you of it, what was the feeling that accompanied it

    whenever you thought of those sessions within the context of

    your hospital stay ? What was the feeling?

    Mike `Happiness I think. Well say Im in my drawer and I pull out

    an appointment card or a letter and I go through these things

    with a serious mind, but when I pull out anything from the

    Drama I see the photographs and my book as such. My book

    of one page. I smile!

    Pat `So ``are you glad you did the dramatherapy?

    obvious isnt it? Then the other question was ``did you e

    the thing itself apart from getting away from the wa

    Youve answered that.Do you think it provides a po

    sense of your ability to adjust disability? Does it give

    something to help you?

    Mike `Yes. Well it after the Dramatherapy I realised that I c

    do something as an activity at home. And keep my mind

    And to escape. Ive never done it before. Since Ive been

    really havent had the patience to do anything. Eve

    Physiotherapy I couldnt keep my concentration very Ive been told that. I was miles away. I used to get inv

    for so long, but I wouldnt be interested then.

    Pat `When you were doing Physio in Rookwood?

    Mike ` Yes. R ight from the beginning. Mind you Ive only been

    since last December. I did have a lot of hurt, as far a

    concerned is grief. Because I think I lost my life

    Basically I did at the end of the day, thats my liveli

    gone. Dramatherapy helped me, made me believe that I

    do things which dont actually connect me with being dis

    or my disability. I can escape out of it.

    Pat ` Youre not just your disabilities?

    Mike `No.`Well when I used to come to dramatherapy I us

    escape being misunderstood and come in and doing my

    listening to music and talking in general I realised thennot just a patient. Im a human being as well. Im

    understood on that level. Because it may have been a the

    but I wasnt being a patient here I wasnt being treat

    such. So I behaved as such. So I didnt feel so helples

    more really or misunderstood. So when I went back t

    ward I wasnt a patient. I was a normal human being

    wasnt very well.

    Pat ` Did it change your ability to assert your needs whil

    were in hospital or to negotiate decision making process

    your treatment? Did it give you condence, I suppose?

    Mike ` Yes it did. Yes in the same way as being misunder

    before. Its hard to explain it, but knowing that Id been

    ill and very restricted. I couldnt move, I couldnt mov

    wheelchair at all. I was very dependent. But like I said b

    knowing that when I came here afterwards I realised I w

    just patient after patient. I was a comparatively normal p

    who has just maybe begin to rationalise things that

    gone wrong as far as my treatment. My appointments, m

    downs had been concerned and if I hadnt com

    dramatherapy I think I would have still been the sam

    would have still felt put upon. I would have still bee

    patient. The underdog. But now as far as treatme

    concerned. Im not saying now, but after the dramather

    didnt actually call the shots, but I had a voice in m

    those decisions. And because I had more condence in m

    I was able to do that. I was able to do that more conden

    174