CLIC Sargent - Spring 2010 Newsletter
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Transcript of CLIC Sargent - Spring 2010 Newsletter
Bridging the gapHow CLIC Sargent Nurses help children spend more time at home and less time in hospital Page 6
CLIC Sargent is Tesco Charity of the Year 2010!
New home to open in London
The importance of an up-to-date Will
Your CLIC Sargent Spring 2010
Northern Irelandwww.clicsargent.org.uk
2 Your CLIC Sargent | Spring 10
Welcome to Your CLIC Sargent
Could you be this year’s champions?
This year contestants will be competing once
again for first place in two of CLIC Sargent’s most
challenging events.
70 Wild Miles
70 Wild Miles is a 47-mile cycle, 10-mile kayak and
13-mile run. Last year Gerry Murphy won the solo event
in 5 hours 20 minutes. The winning team on the day
was Dog Leap, with an impressive time of 5 hours 6
minutes. This year’s event will take place on 22 May.
Dragon Boat Race
Last year’s Dragon Boat Race winners were the team
from Bombardier. This year’s event will take place on
13 June on the River Lagan. Could you recruit friends or
colleagues to get a team of 12-17 people together and
win the crown?
If either of these events sounds like your
type of challenge, please call us on 0289 072 5780
for more details.
What an exciting start it’s been to 2010. We
are pleased to announce that CLIC Sargent is
Tesco Charity of the Year 2010. So you will
see CLIC Sargent featured in stores across
the UK – read more later in this newsletter.
Watch out for over 600 people running for
CLIC Sargent at the Virgin London Marathon
on 25th April, where we are the official
charity partner.
You’ll read about how important your
everyday support is too – from raising money
in your own community to taking part in an
event. Every penny does count… and
there are new events listed on the back
cover, which we hope you’ll be able to join
this year. Or maybe you’ve got some great
fundraising ideas of your own!
Your ongoing support will underpin our work
for children and young people with cancer
and their families in 2010. And you can see
just how much it means in this newsletter.
Thank you so much for helping our vital
work continue.
The team from Dog Leap accept their prize for first place in the team event for 70 Wild Miles.
Members of the Bombardier team, winners of last year’s Dragon Boat Race
Fundraising challenges for 2010
Spring 10 | Your CLIC Sargent 3
We are delighted to announce that CLIC Sargent is Tesco
Charity of the Year 2010. This partnership aims to raise £5
million to help fund children’s specialist cancer nurses across the
UK, so that children with cancer can spend more time at home.
Throughout the year, you’ll see our posters around Tesco stores
– and keep a look out for special product promotions donating
a proportion of sales to CLIC Sargent – it’s a great way to support us while shopping for special
Tesco greetings cards, Tesco in-car air fresheners, Orla Kiely bags for life and Canterbury Jack
beer. Tesco Bank will also make a donation every time someone uses a cash machine at Tesco.
And on 10 and 11 December there will be a collection for CLIC Sargent outside every Tesco store.
We need you to help us raise £200,000 by taking part in these national bucket collection days at
your local store.
To get involved or find out more visit www.clicsargent-tesco.org.uk or call CLIC Sargent’s
Tesco hotline on 08701 221 221.
CLIC Sargent is Tesco Charity of the Year 2010!
Virgin London MarathonWatch out for CLIC Sargent at the Virgin
London Marathon on 25th April. We’ve
over 600 runners, including some famous
celebrity faces!
Running for CLIC Sargent will be TV’s
Lorraine Kelly and Jessie Wallace
and Formula 1’s Eddie Jordan.
Updated look for CLIC SargentYou may have noticed that this
is one of the first items printed
with our updated brand. Why
the change? It’s to make it
easier for our service users and
supporters to see who we are,
and what we do.
This work was done in-house at
CLIC Sargent, involving children
and young people.
4 Your CLIC Sargent | Spring 10
Many children with cancer feel less afraid if
they understand their illness and treatment.
And the same is true for their sisters,
brothers and friends.
As Lymphoma is the third main type of
cancer in children, we have expanded our
series of popular storybooks with Tom has
Lymphoma.
We’ve also recorded audio-books of Lucy has
a Tumour and Mary has a Brain Tumour, read
by CLIC Sargent patron and actor Duncan
Pow. Duncan says
“I’m delighted to be
involved in such a
worthwhile project –
these will enable more
children to understand
these types of cancer;
teachers can play them in a
school assembly for example.”
See more at www.clicsargent.org.uk/
publicationsandresources
New home to open in LondonOur ninth Home from Home – Paul’s House
– will open later this year. With 15 family
rooms, four lounges and three kitchens, it’s
our biggest home yet.
It’s welcome news for families who have a
child being treated at the nearby University
College Hospital. Over 65% live more than
one hour away, so parents and siblings are
making long journeys or staying in B&Bs
simply to be together at this difficult time.
Having Paul’s House, somewhere to stay
close by for free, will make a huge
difference. Keep up to date at
www.clicsargent.org.uk/paulshouse
“I can’t imagine how we’d have coped without Billy’s House”Since opening to families in July,
Billy’s House in Nottingham has
accommodated 35 families who have
a child being treated at the nearby
Queen’s Medical Centre.
New storybooks – out now
Olivia updateRemember Olivia, the little girl we featured in last year’s
newsletter? At the time we went to print Olivia’s family had
been told that she wouldn’t recover. A year later Olivia is
doing remarkably well. She is back at school and enjoys
riding the bike she got for Christmas. Mum Karen says,
“It’s a joy to see her riding about on it – things were very
different this time last year.”
Spring 10 | Your CLIC Sargent 5
In 2009 we introduced EPOS (Electronic Point
of Sale) tills in all CLIC Sargent shops so we
could process Gift Aid and reclaim tax when
we sold goods that had been donated.
Gift Aid is a government scheme which helps
charities boost the value of donations by
28%. Now that we can earn this on
donations of clothes and bric-a-brac that you
bring into our charity shops, we could raise
as much as an extra £100,000 every year for
our work for children with cancer. To help us,
you simply sign up as a Gift Aid donor when
you bring donations to any of our shops.
That’s it!
A good-quality large bag of donated items
can raise £30. However, if this income was
Gift Aided we could benefit from an extra
£8.46 in reclaimed tax. For more information
please visit www.clicsargent.org.uk/
Getinvolved/Shopwithus/GiftAid or call
0117 311 2610.
Gift Aid in shops – £100,000 boost
Shop online – it’s easyThe CLIC Sargent
online shop has
something for
everyone. It’s home
to a wonderful
range of products,
including cards,
stationery, jewellery, toys, and home and
garden items. 100% of the profit helps
children with cancer and their families.
For more information visit
www.clicsargent.org.uk/onlineshop
Visit our eBay shopCheck out CLIC Sargent’s award-
winning eBay shop. There are always
great items at bargain prices, plenty
of ‘buy it now’ prices and auctions to
bid on. For more information visit:
http://stores.shop.ebay.co.uk/ CLIC-Sargent-Shop
6 Your CLIC Sargent | Spring 10
Helping children spend more time at home and less time in hospital
We know that children with cancer want to
be at home as much as possible, doing
normal things like going to school and
spending time with their family and friends.
In March, CLIC Sargent launched a fantastic
new partnership with Tesco that
aims to raise £5 million and
help make this happen.
The money raised will
help fund CLIC Sargent
children’s specialist
cancer nurses across
the UK. Cancer
treatment can last for years
– these nurses will help
children spend more time at home
by co-ordinating all the care they need
when they get there.
Liz Leigh is a CLIC Sargent Nurse in Oxford.
She says, “My role is to bridge the gap
between hospital and home.
“When families leave the safety net of the
hospital it can be a struggle. They need to
remember a huge amount of information
about their child’s care and it can be
emotionally hard.”
“But getting home is so positive and I am
there to provide emotional support as well as
co-ordinating all the specialist care children
need when they get there.”
Liz supports 13-year-old Sophia and her
family, who is having treatment for bone
cancer. Sophia sees Liz as one of the family –
someone to talk to about chemotherapy,
school or anything that is on her mind. She
says, “The best bit about being at home is
being able to go to school again and catch
up with all my friends.”
But not every family has the benefit of
someone like Liz to help them cope and
make sure they get the right support. The
money raised by the Tesco partnership will
make going home possible for more children
with the support of CLIC Sargent children’s
specialist cancer nurses.
You can get involved through a range of
product promotions in Tesco stores which
will be donating a proportion of their sales to
the charity. You can also take part in bucket
Thanks to our new partner Tesco
Sophia, age 13
Spring 10 | Your CLIC Sargent 7
£5 Means a specialist nurse could spend time with the family of a child with cancer, and explain a simple medical procedure to them.
£50 Means a specialist nurse could coordinate home help for a family whose child is having treatment, arranging for someone to do the shopping or take their other children to school.
£100 We could arrange a visit by a specialist nurse to a child’s school, or their brownies or sports club, to talk to their teachers and friends about what’s happening and how they could help.
£10,000 Means we could help 200 parents to liaise with their employers to ensure their employers understand what is happening and are aware of the parents’ rights to time off work and flexible working hours.
£100,000 1,000 children with cancer could be visited at home by a specialist nurse. This would help their family to feel less isolated and make sure they have everything they need.
“It would be wonderful if everybody could have a CLIC Sargent Nurse like Liz.”Sophia’s dad Graham
collection days and fundraising weeks across
the UK (see page 3).
For more information about promotions and events visit www.clicsargent-tesco.org.uk or call the Tesco hotline on 08701 221 221.
Liz, Sophia’s nurse
8 Your CLIC Sargent | Spring 10
“My CLIC Sargent youth development worker was there for me from diagnosis and helped me get moving and stay positive. It’s really important to receive this kind of support so you can get back to your normal life once treatment finishes. Hopefully this report will help more people receive the kind of support I did.”
More Than My IllnessCLIC Sargent will shortly publish a follow-up to last year’s
More Than My Illness report. It focuses on the challenges
of ensuring effective community-based services and
support for young people aged 16-24 with cancer. Once
the report is published, CLIC Sargent will use the key
recommendations in ongoing campaigning work.
In the words of cancer survivor Adam Matthews:
Working for cancer survivorsThe National Cancer Survivorship Initiative
(NCSI) was set up to consider a range of
approaches to survivor care. CLIC Sargent is
playing a leading role in the Children and
Young People’s Workstream and is:
carrying out a study on The Impact of
Cancer on a Child’s World
one of ten ‘test communities’ funded
by the Department of Health to explore
new approaches to care for children
and young people living with and
beyond cancer
leading a review into how current
policy meets the needs of young cancer
survivors and where the gaps are.
Survivorship is a significant issue for young
people living with and beyond cancer.
CLIC Sargent is committed to understanding
the long-term adverse effects of cancer. And
we want to campaign for changes that will
reduce, and where possible eliminate, the
physical, emotional and social impact of
cancer on children’s lives.
Spring 10 | Your CLIC Sargent 9
Hi, I’m Bea, aged 12. Me and my family have
raised money for CLIC Sargent since January
2009 when I was diagnosed with leukaemia.
We’ve done a head shave, my neighbour
organised a cake sale, and my grannie sells
homemade chutneys. We’ve also had
donations; we recently got £250 from my
step dad’s friend.
All the money, over £8,500 now, goes to my
Especially For You fund. My website is named
Bea’s Fund. It feels really nice to watch the
money grow because CLIC Sargent have
done so much for me and my family. On 2nd
July, my Mum and Step Dad are organising a
Charity Golf Day at Okehampton Golf Club,
where all profits will go to my fund at
CLIC Sargent too.
For more information about Especially For
You Funds, call Bridget on 0845 121 2491,
email [email protected]
or visit www.clicsargent.org.uk/
especiallyforyou
A huge thank you to our Especially For You Funds supporters who together have raised over £500,000!
Bea’s Story
The importance of an up-to-date WillIn January 2010 we ran our first ever Will Awareness Month, promoting the importance
of an up-to-date Will. A large number of people supported us, including TV presenter
Gaby Roslin, who made a short video for our website.
An up-to-date Will is important because it’s the only way to make your wishes crystal
clear. We understand that your family, friends and loved ones will come first but we
hope you can remember CLIC Sargent in some way too.
One in six of the children we support is funded by gifts in Wills. Such a gift costs you
nothing now, but could make a huge difference to children’s lives in the future.
You can find out more by calling Kate Johnston on 0845 125 2625, emailing
[email protected] or visiting www.clicsargent.org.uk/legacies
10 Your CLIC Sargent | Spring 10
May - July
2010Kick for Children with Cancer
Let’s get active healthy!
AN
D
Register now atwww.clicsargent.org.uk/football or call 08451 20 22 32
A national football event where children of all ages and abilities raise money for CLIC Sargent.
Help us reach our goal – to raise £150,000 for children with cancer
Calling all Schools, football clubs and groups!
Free footballs* and fundraising materials
Your school or club can choose to keep 25% of the money you raise (75% to children with cancer)
* while stocks last
Get involvedTake part in a run or challenge!
This is the year to do something amazing:
to push boundaries, achieve goals and make
a difference by taking part in a
CLIC Sargent challenge. Choose
from treks, runs, cycles, motorbike
rides and more!
“I took part in my first CLIC Sargent
challenge in 2003 and have
been signing up each year
since! You just can’t
describe how
amazing and
unforgettable an
experience it is and
the pride you feel at
what you’ve achieved. Everyone should take
part in a CLIC Sargent challenge at least once
in their lives.”
“There’s great camaraderie within the
CLIC Sargent Team. Once you sign up you
get fundraising help and support as well as
training tips.”
For more information please visit
www.clicsargent.org.uk/getinvolved or call
0845 124 1188 for challenges or
0845 602 4770 for running events
Spring 10 | Your CLIC Sargent 11
Boxing Day dip
Remember the ice and snow we experienced
over Christmas? Now imagine jumping into
Castlewellan Lake on Boxing Day, in the worst
of the freezing weather. Well, that’s how more
than 30 brave CLIC Sargent supporters spent
26 December 2009, helping to raise £5,000 for
local children with cancer.
Youth update
CLIC Sargent’s Young People’s Service has had
a busy time recently. Highlights have included
attending the ‘Young Achievers’ Ball at
Stormont, spending a weekend at Malcolm
Sargent House in Prestwick, attending a track
day with club GTINI and getting the
chance to race around the track in a
Ferrari! Members of our Youth Forum
were also invited to attend the
first-ever Youth Heath Fair at Belfast
City Hall, where they met celebrities
Jessie Wallace and Dame Mary Peters at
the Runher women’s race.
Our Youth Development Worker supports
young people up to and including the age of
24 throughout their illness, with one-to-one
support and regular group activities. Cancer
can leave many young people feeling isolated
and different from their friends; the youth
service can help rebuild their self esteem
and confidence and help to support
them to come to terms with the late
effects of cancer.
More stories from your region
Katrina Black, Chair of the CLIC Sargent Youth Forum, meets Eastenders star Jessie Wallace at the Runher event in aid of CLIC Sargent.
12 Your CLIC Sargent | Spring 10
KS 3 May Belfast Marathon
FS 22 May 70 Wild Miles
KS 31 May Newry Marathon
KS 12 June Enniskillen 10k
FS 13 June Dragon Boat Race
FS 16 June Lisburn 10K
CM 7 October Ladies’ Night
KS 25 October Dublin Marathon
FS 9 October Mourne Mountain Challenge
FS November (tbc) Gala Ball
KS 26 December Boxing Day Dip, Castlewellan
KS All year round Parachute Jumps
Regional Events May – December 2010
National Events, Runs and Challenges May 2010 – August 2011
May – July Kick for Children with Cancer 0117 314 8624 or [email protected]
August – September Practice-a-thon Music 0117 311 2624 or [email protected]
August – September Practice-a-thon Dance 0117 311 2624 or [email protected]
September Edinburgh to Dublin Cycle 0845 124 1188 or [email protected]
September London to Paris Cycle 0845 124 1188 or [email protected]
September Bristol Half Marathon 0845 602 4770 or [email protected]
September Great North Run 0845 602 4770 or [email protected]
October Great South Run 0845 602 4770 or [email protected]
November Hellrunner 0845 602 4770 or [email protected]
April 2011 Virgin London Marathon 0845 602 4770 or [email protected]
August 2011 Barry Sheene Memorial Motorcycle Challenge 0845 124 1188 or [email protected]
Various dates Helly Hansen Adventure Challenge Series, nationwide 0845 124 1188 or [email protected]
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Contact details See the symbol next to each event for the contact details below:
CM [email protected] or 0289 072 5780
FS [email protected] or 0289 072 5780
KS [email protected] or 0289 072 5780