City of hope presso

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Transcript of City of hope presso

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WHY PEOPLE WRITE BLOGS

To share expertise To connect with a community To sell things/ideas As a therapeutic tool To gain knowledge To sway public opinion

AUGUST 2012 JESSICA GOTTLIEB [email protected]

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WHY DO PEOPLE READ BLOGS

Accidentally: •  Search engines •  Links from friends via email •  Links from social networks With Purpose: •  An emotional investment in the author’s life or

perspective

AUGUST 2012 JESSICA GOTTLIEB [email protected]

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KEY POINTS IN BLOG WRITING

Passion Headlines Originality Searchability

AUGUST 2012 JESSICA GOTTLIEB [email protected]

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GOOGLE FOR “BREAST CANCER”

1.  NIH 2.   BreastCancer.org 3.   Susan G Komen 5k 4.   Susan G Komen 5.   Wikipedia 6.   NationalBreastCancer.org

7.  WebMD 8.   Mayo Clinic 9.   Cancer.gov 10.  Cancer.org 11.  TheBreastCancerSite.com

AUGUST 2012 JESSICA GOTTLIEB [email protected]

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AUGUST 2012 JESSICA GOTTLIEB [email protected]

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FORUMS

Cancerforums.net BreastCancer.org Poz.com eHealthForum.com

From a strabismus forum:

AUGUST 2012 JESSICA GOTTLIEB [email protected]

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AUGUST 2012 JESSICA GOTTLIEB [email protected]

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YouTube

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HEATHCARE IN BLOGS

One nurse made a big bloody mess while accessing Jesse’s vein for a blood draw. We were concerned that she was getting covered in his blood without wearing any gloves… bad. (I wonder what infectious disease girl would think of that!) One respiratory tech came to do Jesse’s breathing treatments DURING the contrast CT scan. Seriously? He’s a little busy right now…. kristinology.com

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After waiting all day without a drop to drink or bite to eat, as per presurgical instructions, I finally found out that they wouldn’t be able to take me for surgery today to insert my port after all. A full day of scheduled procedures + an emergency added to the schedule at the last minute meant that they just woudn’t get to me today. So at 3:15 I was able to eat breakfast and have my morning Diet Coke. The nurses finally found me another room too – I woke at 6 a.m. to the sound of banging on the walls and power drills shortly thereafter, as the hospital pit crew deconstructed the room next to me. I don’t know what they were doing exactly, but the door was covered with layers of plastic sheeting and even the nurses weren’t to knock. I’m happy to be moved down the hall, even if it did mean lying on the couch in the family waiting room most of the day, until they were able to find me a bed in another room. Toddler Planet

AUGUST 2012 JESSICA GOTTLIEB [email protected]

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i'm sure every year i write about it - about the beautiful hideousness that is oncology at the holidays. in the past, i'm sure i've used words like poignant. this year i think i'll use sucks - infinitely less poetic, but oh so accurate. when your well-meaning spouse and kids say 'tell me about your day', you'll think with equal parts truth and cynicism you don't mean that. because here's the thing - i really don't have the words...and if i find them - watch out - you seriously might regret asking. but they'll keep asking and the patients that occupy much of your time and your mental space will become known to your family on some level: 'mom, how's your surfer doing?' - he's hanging in there 'how's the gardener?' - she's doing great 'how's the young mom?' - she's not doing so well OncRN

AUGUST 2012 JESSICA GOTTLIEB [email protected]

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AUGUST 2012 JESSICA GOTTLIEB [email protected]

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NOT ALL REVIEWS ARE CREATED EQUAL

Too bad I cannot give them a zero. My dad has been a patient here numerous times. My dad was diagnosed with cancer last Christmas plus I found out that there were other things wrong too. I feel that city of hope did not help my dad. My dad passed away on Valentines day. I really miss my dad. I will not recommend this hospital to anyone. Yelp

AUGUST 2012 JESSICA GOTTLIEB [email protected]

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SOME REVIEWS NEED TO BE ADDRESSED This is an update of my recent review. The nurses at City of Hope are fantastic; however they are limited to what the doctor orders. Currently, we do not have a primary oncologist because the oncologist does not want to be responsible for any of my family member's care. The primary oncologist wouldn't even do hydration for him, even though his chief complaint of the inability to drink water was written through this doctor[sic]. All I know is that there is not one main oncologist who will provide consistent care for us at City of Hope. There is a pain specialist at COH that truly does everything she can to help us, but even she is limited. There is only 2 pain specialists at COH, a hospital reknowned for cancer care. Cancer causes a lot of pain, so how come they don't hire more pain specialists? There really is a management problem at this hospital. If we didn't get to admit him in, we wouldn't have been able to see the pain specialist and radiologist when we needed to.

AUGUST 2012 JESSICA GOTTLIEB [email protected]

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DOCTORS CAN BE BLOGGERS

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HEALTHCARE BLOGGERS http://runningahospital.blogspot.com/ http://oncrn.blogspot.com/ http://www.codeblog.com/ http://doctordavidsblog.blogspot.com/

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WHAT PATIENTS REALLY SHARE

AngryMom.blogspot.com PlanetBananas.com CancerVacation.com Blamedrewscancer.com

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WORDPRESS OR BLOGGER

Pick a name •  Short and relevant Pick a theme •  This can be changed 8289324 times, this doesn’t matter About me page •  If this is not anonymous it should link to a bio page at COH •  Credentials •  Passions •  Education

AUGUST 2012 JESSICA GOTTLIEB [email protected]

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POSTS

Title is everything 150 characters that follow are almost everything else Images •  Flickr •  MorgueFile Link to interesting content

AUGUST 2012 JESSICA GOTTLIEB [email protected]