Citizens and Personal Health Records – the Case of Nelson Mandela Bay
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Transcript of Citizens and Personal Health Records – the Case of Nelson Mandela Bay
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Citizens and Personal Health Records – the
Case of Nelson Mandela Bay
AUTHORS:
Dalenca Pottas &
Nicky Mostert-Phipps
PRESENTED BY:
Nicky Mostert-Phipps
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Presentation
BackgroundResearch methodResultsConclusionQuestions
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Background
Personal-Health Record (PHR): patient is owner and main user
PHR definition:• Electronic• Patient-controlled• Used for management of health information• Secure• Private
Benefits:• Better communication and sharing of information• Patient engagement
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Background (continued)
Despite benefits PHR adoption lowNo data found relating to South African context
Focus:• Attitude of citizens towards maintaining personal health
records and using electronic tools to capture a personal health record.
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MethodStudy design and context
Explore citizen attitudes towards maintaining personal health records and use of tools to capture an electronic personal health record
Data gathered: July & August 2012 in the Nelson Mandela Bay municipal area, South Africa
Nelson Mandela Bay: city of Port Elizabeth, the nearby towns of Uitenhage and Despatch, and the surrounding rural or agricultural areas
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MethodStudy design and context (continued)
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MethodQuestionnaire design and administration
Questionnaire designed to be brief18 Questions:
• Demographics• Health status• Internet access and literacy• Perceptions of the current medical record• Concerns around creating an electronic medical record
Questionnaire loaded on tabletsSeven data collectorsThirty-two data collection points (supermarket stores)Responses captured: 467
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MethodLimitations
Executed in specific geographical region – limits generalizabilityGood response rate but selection bias may be presentPurpose: explore citizen views in Nelson Mandela Bay area
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ResultsDemographic characteristics
GENDER
Male 49%
Female 51%
AGE
18-29 43%
30-39 23%
40-49 16%
50-59 12%
60+ 6%
HOME LANGUAGE
Afrikaans 31%
English 23%
Xhosa 42%
Other 4%
EDUCATION
High school or less 79%
Uncompleted tertiary 6%
Completed tertiary 15%
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ResultsHealth status
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ResultsInternet access and literacy
Access to the Internet for private use
Yes 70%
No 30%
Preferred device for Internet access for private use
PC/Laptop 43%
iPad/Tablet 1%
Cell phone/Smart phone 27%
No access 30%
Hours (online) per day for private use
Less than 1 hour 27%
1 – 3 Hours 31%
4 – 5 Hours 8%
6 Hours or more 5%
No access 30%
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ResultsInternet access and literacy
Respondents’ ability to navigate the Internet:• 45% considered themselves to be ‘skilled or very skilled’ at
navigating the Internet to search for information• 47% considered themselves to be ‘skilled or very skilled’ at
uploading and downloading information• 52% considered themselves to be ‘skilled or very skilled’ at
sending emails
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ResultsMedical record availability
Important for healthcare provider to have their complete medical records available and know their full medical history:• 6% important• 20% very important• 70% extremely important
Actual availability of medical records:• 42% indicated that their healthcare provider is not informed
of their full medical history and that the complete record is not available
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ResultsCapturing of medical history
Mode of capturing medical history
None 69%
Paper-based 28%
PC/laptop (no Internet) 2%
Internet-based service 1%
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ResultsAwareness of online Personal Health Records
PHR: Typically an online tool that allows an individual to create and manage a summary of all his health information in one convenient place. It contains information on past and current illnesses, allergies, immunizations, medications, procedures, test results, and so forth.
84% not aware of existence of such a tool
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ResultsConcerns relating to the use of a PHR
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Conclusion
Barriers to adoption:• Lack of awareness• Concerns relating to privacy of personal health information• Internet access and literacy
Promise for emerging mobile PHR (mPHR) marketParticipants suffering from chronic medical condition more
likely to keep record of their medical history