lthough osteoporosis is a

hereditary disease that a

mother’s may pass on to

a daughter, a mother also can give

her daughter the strength she needs

to lower her risk. It begins with a

conversation that helps a daughter

build a strong body, discover her bone

health needs and learn how a healthy

diet and exercise can help prevent the

disease.

On Monday, September 26 from

11:00 a.m. to 1:30 p.m., NOF will

host its fourth A Gift from Mothers

to Daughters® luncheon at The

Pierre Hotel in New York City. Program

activities include the launch of our

Generations of Strength: Mothers and

Daughters campaign, a networking

reception, silent auction and a

Judith Ripka shopping boutique with

proceeds benefitting NOF. We are

delighted to announce that Lisa Oz of

HealthCorps® and Oprah and Friends

XM Radio telecast and Freda Lewis-

Hall, M.D. of Pfizer and the Patient-

Centered Outcomes Research Institute

(PCORI) are confirmed honorees.

Of course with up to one in four men

affected by osteoporosis, they are

encouraged to attend the luncheon

too! Men older than 50 are more likely

to break a bone due to osteoporosis

than they are to get prostate cancer.

A Gift from Mothers to Daughters®

encourages families to talk about their

health history and celebrates giving

those you love the strength they need

to lower their risk.

To get involved or purchase tickets,

please call 1 (800) 231-4222 or visit

www.nof.org/gift. And stay tuned this

fall for more information about NOF’s

Generations of Strength: Mothers and

Daughters campaign activities!

in the N E W S N O F events

Meet NOF Supporter and Grassroots Volunter Elaine Caflisch

n X-ray technician by training, Elaine Caflisch runs DXA scanning for an osteoporosis medical practice in Western New York. Looking for

additional ways to help, Elaine called NOF to inquire about starting a support group in her area. As a result, she has been sought out by other health and women’s groups to make presentations. Her NOF support group organizes activities like riverfront walks, walks at nursing homes, swimming pool exercises at a community pool and talks by health experts including sessions led by a physical therapist, neurosurgeon, massage therapist and nutritionist.

Elaine has low bone mass and she wishes she had known the information about osteoporosis prevention that she knows now long ago, such as wearing cushioned walking shoes with strong arch supports, especially for walking programs in a mall where the floors are hard; taking

August 2011

Volume 26 Number 3 A

A A NEWSlEttEr FrOm thE NAtiONAl OStEOpOrOSiS FOuNdAtiON

OStEOpOrOSiS rEpOrt

The

In thIs Issue

in the News | NOF Events | Ask the Expert Strategies for Osteoporosis | Supporter Story

In t

hIs

Issu

e

In th

e N

ews

| N

OF

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nts

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continued inside

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8.

A

What Your Wrinkles May Say About Your Bones

recent study led by Yale School of Medicine researcher Lubna Pal,

M.D. suggests a possible correlation between skin wrinkles and bone density. Preliminary findings presented at the 2011 annual meeting of The Endocrine Society in June, suggest that skin wrinkles may one day be able to help identify women who are more likely to break a bone. In this study of 114 women in their late 40’s and early 50’s, individuals with fewer wrinkles tended to have greater bone density in the hip, spine and other bones.

What is the possible relationship between skin wrinkles and bone density? To begin, collagen is found in our skin and bones and as we age our bodies lose collagen. Along with this decrease in collagen, many people

experience an increase in skin wrinkles and a decrease in bone density. As bone density decreases, people are more likely to develop osteoporosis and broken bones.

Before you panic that your less-than-youthful skin is an indicator of osteoporosis, keep in mind that this study is the start of a potential association that requires more extensive research before any conclusions can be drawn.

In an effort to present interesting and newsworthy bone health topics to the public, Dr. Pal will present her findings at NOF’s Pearls of Strength® Lecture this November in Washington, DC. This is the first lecture in a nationwide series. More information will be available in the

coming weeks at www.nof.org.

New Osteoporosis Awareness and Prevention Online ToolkitIn May, NOF launched its Osteoporosis

Awareness and Prevention Online Toolkit with

posters, facts sheets, bookmarks and other

items you can download and use throughout the

year to increase awareness of osteoporosis and

bone health among patients, friends, family and

community members. To view and download the

toolkit items, visit www.nof.org/toolkit.

O N l i N E tO O l k i t

STARTCONVERSATION

A

BONE HEALTHOSTEOPOROSIS

ABOUT

WITH SOMEONE

AND

YOU LOVE

UNDERSTAND YOUR RISK FACTORS.

TALK WITH YOUR HEALTHCAREPROVIDER ABOUT HAVING A BONE DENSITY TEST.

STRIVE TO GET ENOUGH CALCIUM, VITAMIN D AND BONE HEALTHY EXERCISE DAILY.

YOUR SOURCE OF STRENGTHWWW.NOF.ORG/TOOLKIT

Vitamin D which she says “changed her life”; and the latest medical treatments being offered.

Elaine works in a caring environment that allows her to take extra time to share her knowledge about osteoporosis with patients who come for DXA scans. By telling her story and inviting people to attend support group meetings, Elaine provides a valuable service, links NOF to her community and simultaneously feels a strong personal connection to NOF. She said, “NOF has been such a great resource and is so valuable to me and my support group.”

Elaine also supports NOF in a unique way by using her considerable artistic talent to create the beautiful floral artwork that adorns hundreds of items that are available for purchase at www.cafepress.com/shopnof.

We salute friends like Elaine Caflisch who are working at the local level as NOF’s ambassadors across America. We salute Elaine and hope her story will encourage you to become proactive in the fight against osteoporosis and to learn more about building strong bones for life. If you would like to learn about or start a support group in your area, we are here to help and to answer your questions. Give us a call at 1 (800) 231-4222.

Meet NOF Supporter and Grassroots Volunter Elaine Caflisch (continued)

Osteoporosis and Bone Health Bills Introduced in Congress

strategies for O S t E O p O r O S i Sask the E x p E rt

This issue’s expert is Carly Hamburger, Licensed Massage Therapist, Masters of Public Health Candidate and NOF Practicum Student.

I was recently diagnosed with osteoporosis.

Is it safe to have a massage?

If performed safely, massage therapy can offer

relief and improve the quality of life for people who suffer from osteoporosis or those at risk of breaking a bone. Here are some tips to follow:

• Look for a therapist who specializes in geriatric massage. He or she may have more experience treating individuals with osteoporosis. To find a licensed provider, call the American Massage Therapy Association at 1 (888) 843-2682 or visit www.amtamassage.org

• Request a Swedish or relaxation massage. Swedish massages involve light, long strokes and gentle kneading to improve circulation and encourage relaxation. You should only receive gentle pressure, especially on the back.

• When you book an appointment, mention that you have osteoporosis or that you are at risk of fracture. Tell your massage therapist as many details as you can about your health. Let him or her know immediately if the massage is ever uncomfortable or painful.

• If your healthcare provider says it’s safe, gentle massage may help relieve pain after a fracture. Always wait until the fracture has completely healed before having a massage.

• Massage can relax you so much that you may become disoriented. Avoid falling after a massage by having the therapist hand you your glasses,

sitting up slowly and asking for help getting off the table.

from the C O v E r

In May, NOF hosted more than 700 attendees at its annual

International Symposium on Osteoporosis (ISO), Silhouette

Awards Dinner and first-ever Healthy Bones, Build Them for

Life® Consumer and Patient Forum in Las Vegas, Nevada.

These events engage the public, patients and healthcare

professionals in our fight against osteoporosis. Photos can

be viewed at www.nof.org/awardsdinner2011.

ccess to state education and awareness programs on osteoporosis is declining and

patient access to needed osteoporosis testing is at risk. Members of Congress recently introduced bills to address these problems and help improve the lives of osteoporosis patients and those at risk for the disease.

Only 11 states – AR, IL, MA, NM, NY, NC, OH, PA, UT, WA, WV – have recently funded education and awareness programs on osteoporosis. If you live in any of the other 39 states, you may not have access to an osteoporosis education and awareness program. Additionally, many states are facing tight budgets and the few with osteoporosis programs may be forced to cut or abolish them.

In May, Senator Gillibrand introduced the “Bone Health Promotion and Research Act of 2011” (S. 966) to help ensure access to bone health education and awareness programs. This bill would give the Centers for Disease Control and Prevention authority to create a National Bone Health Program. It also would allow for the expansion of bone health research, including osteoporosis, at the National Institutes of Health, which could lead to better treatments to improve the quality of life of osteoporosis patients.

Currently, dual energy x-ray absorptiometry (DXA) tests, the standard for osteoporosis screening, are also used to monitor the treatment of osteoporosis patients. Although DXA tests are eligible for coverage under

the Medicare program, patient access to DXA tests may be in jeopardy. The Medicare reimbursement rate for DXA tests performed in physician offices is scheduled to be cut by 62 percent by 2013. Because many physicians may be unable to afford to offer DXA tests to patients if these drastic Medicare reimbursement are carried out, you may not be able to find a physician near you to perform a DXA test, even if you are elegible and need the test. Some patients may have to travel long distances and, because of the transportation burden, some may be forced to skip needed DXA tests.

The “Preservation of Access to Osteoporosis Testing for Medicare Beneficiaries Act of 2011” (S. 1096/H.R. 2020) recently was introduced in Congress by Senators Stabenow and Snowe and Representatives Burgess and Berkley. This bill would maintain current Medicare reimbursement rates through 2013 to help preserve patient access to needed DXA tests.

At NOF we are continuing to advocate for these two bills and we need your help! Join NOF by contacting your Members of Congress to ask that they support these bills. You can contact NOF at 1 (800) 231-4222, and we will provide you with the phone numbers for your Members of Congress. If you have internet access, you can also visit the NOF Web site and sign-up to become an advocate at www.nof.org/advocacy/becomeanadvocate. Together we can make a difference on these important

issues!

A

featured S u p p O rt E r S tO ry

NOF Nominates Patients to Serve on Research Grant Review Panels

OF has nominated ten individuals to participate in the

Congressionally Directed Medical Research Programs (CDMRP).

NOF nominees bring an invaluable patient perspective to the re-

search grant review process as the panels debate the proposals’ potential for

improved medical care and enhanced quality of life. This is the second time

NOF has been invited to nominate patients to the CDMRP. In 2009, NOF

nominated seven individuals.

For fiscal year 2011, the Department of Defense received an appropriation

from Congress through the CDMRP to fund research across 21 research

topic areas, including osteoporosis and related bone diseases. NOF, as a

leader of the National Coalition for Osteoporosis and Related Bone Diseases

(Bone Coalition), advocated making osteoporosis and related bone diseases

one of the topic areas.

The number of nominees invited to participate in the CDMRP will depend

in part on the number of osteoporosis research proposals submitted. NOF

nominees for 2011 include Philip Caflisch from New York, Christy Cyphers

from Maryland, Marsha Fixler from New York, Sally Fullman from New Jersey,

Carolyn Grove from Georgia, Faye Hollowell from Tennessee, Dana Kurland

from Arizona, Phyllis Lansing from Maryland, Anne Murphy from Maine and

Susan Ross from Connecticut.

“As a consumer reviewer in the 2009 CDMRP, I read and scored close to 30

research proposals. It was fascinating to see that many scientists are working

hard to understand our bones better and find more effective treatments and a

cure for osteoporosis. I am confident that osteoporosis will be eradicated. It’s

only a matter of time. The scientists and NOF need our support. Through my

support group and by raising awareness of osteoporosis and bone health in

my community, I will continue to do my part. My daughter and granddaughter,

and millions of Americans, are depending on us to succeed.”

- Jennie Image, NOF Advocate and Dallas Support Group Leader

Carly Hamburger

Save the date for next year’s activities in

Orlando, Florida

April 25-28, 2012!

N

lthough osteoporosis is a

hereditary disease that a

mother’s may pass on to

a daughter, a mother also can give

her daughter the strength she needs

to lower her risk. It begins with a

conversation that helps a daughter

build a strong body, discover her bone

health needs and learn how a healthy

diet and exercise can help prevent the

disease.

On Monday, September 26 from

11:00 a.m. to 1:30 p.m., NOF will

host its fourth A Gift from Mothers

to Daughters® luncheon at The

Pierre Hotel in New York City. Program

activities include the launch of our

Generations of Strength: Mothers and

Daughters campaign, a networking

reception, silent auction and a

Judith Ripka shopping boutique with

proceeds benefitting NOF. We are

delighted to announce that Lisa Oz of

HealthCorps® and Oprah and Friends

XM Radio telecast and Freda Lewis-

Hall, M.D. of Pfizer and the Patient-

Centered Outcomes Research Institute

(PCORI) are confirmed honorees.

Of course with up to one in four men

affected by osteoporosis, they are

encouraged to attend the luncheon

too! Men older than 50 are more likely

to break a bone due to osteoporosis

than they are to get prostate cancer.

A Gift from Mothers to Daughters®

encourages families to talk about their

health history and celebrates giving

those you love the strength they need

to lower their risk.

To get involved or purchase tickets,

please call 1 (800) 231-4222 or visit

www.nof.org/gift. And stay tuned this

fall for more information about NOF’s

Generations of Strength: Mothers and

Daughters campaign activities!

in the N E W S N O F events

Meet NOF Supporter and Grassroots Volunter Elaine Caflisch

n X-ray technician by training, Elaine Caflisch runs DXA scanning for an osteoporosis medical practice in Western New York. Looking for

additional ways to help, Elaine called NOF to inquire about starting a support group in her area. As a result, she has been sought out by other health and women’s groups to make presentations. Her NOF support group organizes activities like riverfront walks, walks at nursing homes, swimming pool exercises at a community pool and talks by health experts including sessions led by a physical therapist, neurosurgeon, massage therapist and nutritionist.

Elaine has low bone mass and she wishes she had known the information about osteoporosis prevention that she knows now long ago, such as wearing cushioned walking shoes with strong arch supports, especially for walking programs in a mall where the floors are hard; taking

August 2011

Volume 26 Number 3 A

A A NEWSlEttEr FrOm thE NAtiONAl OStEOpOrOSiS FOuNdAtiON

OStEOpOrOSiS rEpOrt

The

In thIs Issue

in the News | NOF Events | Ask the Expert Strategies for Osteoporosis | Supporter Story

In t

hIs

Issu

e

In th

e N

ews

| N

OF

Eve

nts

| A

sk th

e E

xper

t |

Stra

tegi

es fo

r Ost

eopo

rosi

s |

Sup

porte

r Sto

ry

AwAreness educAtIon AdvocAcy reseArch

continued inside

NO

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.S. p

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E

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it N

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550

WA

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501(

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atio

n. ©

201

1 N

atio

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poro

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ound

atio

n.

A Gift from Mothers to Daughters Luncheon

The Pierre Hotel • New York City • Sept. 26, 2011

1150

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s, Bu

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r Life

® Fal

l Web

inar

Ser

ies

Title

: Saf

e Pila

tes a

nd Y

oga

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D

ate:

Oct

ober

20,

201

1 - W

orld

Ost

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ay

Tim

e: 2

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15 P

M E

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1 Ti

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1:0

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To le

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ams,

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ww

.nof

.org

/web

inar

s or

cal

l 1 (8

66)

702

-327

8.

A

What Your Wrinkles May Say About Your Bones

recent study led by Yale School of Medicine researcher Lubna Pal,

M.D. suggests a possible correlation between skin wrinkles and bone density. Preliminary findings presented at the 2011 annual meeting of The Endocrine Society in June, suggest that skin wrinkles may one day be able to help identify women who are more likely to break a bone. In this study of 114 women in their late 40’s and early 50’s, individuals with fewer wrinkles tended to have greater bone density in the hip, spine and other bones.

What is the possible relationship between skin wrinkles and bone density? To begin, collagen is found in our skin and bones and as we age our bodies lose collagen. Along with this decrease in collagen, many people

experience an increase in skin wrinkles and a decrease in bone density. As bone density decreases, people are more likely to develop osteoporosis and broken bones.

Before you panic that your less-than-youthful skin is an indicator of osteoporosis, keep in mind that this study is the start of a potential association that requires more extensive research before any conclusions can be drawn.

In an effort to present interesting and newsworthy bone health topics to the public, Dr. Pal will present her findings at NOF’s Pearls of Strength® Lecture this November in Washington, DC. This is the first lecture in a nationwide series. More information will be available in the

coming weeks at www.nof.org.

New Osteoporosis Awareness and Prevention Online ToolkitIn May, NOF launched its Osteoporosis

Awareness and Prevention Online Toolkit with

posters, facts sheets, bookmarks and other

items you can download and use throughout the

year to increase awareness of osteoporosis and

bone health among patients, friends, family and

community members. To view and download the

toolkit items, visit www.nof.org/toolkit.

O N l i N E tO O l k i t

STARTCONVERSATION

A

BONE HEALTHOSTEOPOROSIS

ABOUT

WITH SOMEONE

AND

YOU LOVE

UNDERSTAND YOUR RISK FACTORS.

TALK WITH YOUR HEALTHCAREPROVIDER ABOUT HAVING A BONE DENSITY TEST.

STRIVE TO GET ENOUGH CALCIUM, VITAMIN D AND BONE HEALTHY EXERCISE DAILY.

YOUR SOURCE OF STRENGTHWWW.NOF.ORG/TOOLKIT

lthough osteoporosis is a

hereditary disease that a

mother’s may pass on to

a daughter, a mother also can give

her daughter the strength she needs

to lower her risk. It begins with a

conversation that helps a daughter

build a strong body, discover her bone

health needs and learn how a healthy

diet and exercise can help prevent the

disease.

On Monday, September 26 from

11:00 a.m. to 1:30 p.m., NOF will

host its fourth A Gift from Mothers

to Daughters® luncheon at The

Pierre Hotel in New York City. Program

activities include the launch of our

Generations of Strength: Mothers and

Daughters campaign, a networking

reception, silent auction and a

Judith Ripka shopping boutique with

proceeds benefitting NOF. We are

delighted to announce that Lisa Oz of

HealthCorps® and Oprah and Friends

XM Radio telecast and Freda Lewis-

Hall, M.D. of Pfizer and the Patient-

Centered Outcomes Research Institute

(PCORI) are confirmed honorees.

Of course with up to one in four men

affected by osteoporosis, they are

encouraged to attend the luncheon

too! Men older than 50 are more likely

to break a bone due to osteoporosis

than they are to get prostate cancer.

A Gift from Mothers to Daughters®

encourages families to talk about their

health history and celebrates giving

those you love the strength they need

to lower their risk.

To get involved or purchase tickets,

please call 1 (800) 231-4222 or visit

www.nof.org/gift. And stay tuned this

fall for more information about NOF’s

Generations of Strength: Mothers and

Daughters campaign activities!

in the N E W S N O F events

Meet NOF Supporter and Grassroots Volunter Elaine Caflisch

n X-ray technician by training, Elaine Caflisch runs DXA scanning for an osteoporosis medical practice in Western New York. Looking for

additional ways to help, Elaine called NOF to inquire about starting a support group in her area. As a result, she has been sought out by other health and women’s groups to make presentations. Her NOF support group organizes activities like riverfront walks, walks at nursing homes, swimming pool exercises at a community pool and talks by health experts including sessions led by a physical therapist, neurosurgeon, massage therapist and nutritionist.

Elaine has low bone mass and she wishes she had known the information about osteoporosis prevention that she knows now long ago, such as wearing cushioned walking shoes with strong arch supports, especially for walking programs in a mall where the floors are hard; taking

August 2011

Volume 26 Number 3 A

A A NEWSlEttEr FrOm thE NAtiONAl OStEOpOrOSiS FOuNdAtiON

OStEOpOrOSiS rEpOrt

The

In thIs Issue

in the News | NOF Events | Ask the Expert Strategies for Osteoporosis | Supporter Story

In t

hIs

Issu

e

In th

e N

ews

| N

OF

Eve

nts

| A

sk th

e E

xper

t |

Stra

tegi

es fo

r Ost

eopo

rosi

s |

Sup

porte

r Sto

ry

AwAreness educAtIon AdvocAcy reseArch

continued insideN

ON

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OFi

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rosis

Rep

ort i

s a p

ublic

atio

n of

the

Nat

iona

l Ost

eopo

rosis

Fou

ndat

ion,

a

501(

c)(3

) org

aniz

atio

n. ©

201

1 N

atio

nal O

steo

poro

sis F

ound

atio

n.

A Gift from Mothers to Daughters Luncheon

The Pierre Hotel • New York City • Sept. 26, 2011

1150

17t

h S

treet

NW

, Sui

te 8

50W

ashi

ngto

n, d

C 2

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(800

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-422

2w

ww

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.org

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S

www.nof.orgHea

lthy

Bone

s, Bu

ild Th

em fo

r Life

® Fal

l Web

inar

Ser

ies

Title

: Saf

e Pila

tes a

nd Y

oga

for B

one H

ealth

D

ate:

Oct

ober

20,

201

1 - W

orld

Ost

eopo

rosi

s D

ay

Tim

e: 2

:00

– 3:

15 P

M E

ST

Title

: Bal

anci

ng th

e Ben

efits

and

Ris

ks o

f Ost

eopo

rosi

s Tre

atm

ent

Dat

e: D

ecem

ber 6

, 201

1 Ti

me:

1:0

0 –

2:00

PM

ES

T

To le

arn

mor

e an

d to

regi

ster

for t

hese

free

edu

catio

nal p

rogr

ams,

vis

it w

ww

.nof

.org

/web

inar

s or

cal

l 1 (8

66)

702

-327

8.

A

What Your Wrinkles May Say About Your Bones

recent study led by Yale School of Medicine researcher Lubna Pal,

M.D. suggests a possible correlation between skin wrinkles and bone density. Preliminary findings presented at the 2011 annual meeting of The Endocrine Society in June, suggest that skin wrinkles may one day be able to help identify women who are more likely to break a bone. In this study of 114 women in their late 40’s and early 50’s, individuals with fewer wrinkles tended to have greater bone density in the hip, spine and other bones.

What is the possible relationship between skin wrinkles and bone density? To begin, collagen is found in our skin and bones and as we age our bodies lose collagen. Along with this decrease in collagen, many people

experience an increase in skin wrinkles and a decrease in bone density. As bone density decreases, people are more likely to develop osteoporosis and broken bones.

Before you panic that your less-than-youthful skin is an indicator of osteoporosis, keep in mind that this study is the start of a potential association that requires more extensive research before any conclusions can be drawn.

In an effort to present interesting and newsworthy bone health topics to the public, Dr. Pal will present her findings at NOF’s Pearls of Strength® Lecture this November in Washington, DC. This is the first lecture in a nationwide series. More information will be available in the

coming weeks at www.nof.org.

New Osteoporosis Awareness and Prevention Online ToolkitIn May, NOF launched its Osteoporosis

Awareness and Prevention Online Toolkit with

posters, facts sheets, bookmarks and other

items you can download and use throughout the

year to increase awareness of osteoporosis and

bone health among patients, friends, family and

community members. To view and download the

toolkit items, visit www.nof.org/toolkit.

O N l i N E tO O l k i t

STARTCONVERSATION

A

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Vitamin D which she says “changed her life”; and the latest medical treatments being offered.

Elaine works in a caring environment that allows her to take extra time to share her knowledge about osteoporosis with patients who come for DXA scans. By telling her story and inviting people to attend support group meetings, Elaine provides a valuable service, links NOF to her community and simultaneously feels a strong personal connection to NOF. She said, “NOF has been such a great resource and is so valuable to me and my support group.”

Elaine also supports NOF in a unique way by using her considerable artistic talent to create the beautiful floral artwork that adorns hundreds of items that are available for purchase at www.cafepress.com/shopnof.

We salute friends like Elaine Caflisch who are working at the local level as NOF’s ambassadors across America. We salute Elaine and hope her story will encourage you to become proactive in the fight against osteoporosis and to learn more about building strong bones for life. If you would like to learn about or start a support group in your area, we are here to help and to answer your questions. Give us a call at 1 (800) 231-4222.

Meet NOF Supporter and Grassroots Volunter Elaine Caflisch (continued)

Osteoporosis and Bone Health Bills Introduced in Congress

strategies for O S t E O p O r O S i Sask the E x p E rt

This issue’s expert is Carly Hamburger, Licensed Massage Therapist, Masters of Public Health Candidate and NOF Practicum Student.

I was recently diagnosed with osteoporosis.

Is it safe to have a massage?

If performed safely, massage therapy can offer

relief and improve the quality of life for people who suffer from osteoporosis or those at risk of breaking a bone. Here are some tips to follow:

• Look for a therapist who specializes in geriatric massage. He or she may have more experience treating individuals with osteoporosis. To find a licensed provider, call the American Massage Therapy Association at 1 (888) 843-2682 or visit www.amtamassage.org

• Request a Swedish or relaxation massage. Swedish massages involve light, long strokes and gentle kneading to improve circulation and encourage relaxation. You should only receive gentle pressure, especially on the back.

• When you book an appointment, mention that you have osteoporosis or that you are at risk of fracture. Tell your massage therapist as many details as you can about your health. Let him or her know immediately if the massage is ever uncomfortable or painful.

• If your healthcare provider says it’s safe, gentle massage may help relieve pain after a fracture. Always wait until the fracture has completely healed before having a massage.

• Massage can relax you so much that you may become disoriented. Avoid falling after a massage by having the therapist hand you your glasses,

sitting up slowly and asking for help getting off the table.

from the C O v E r

In May, NOF hosted more than 700 attendees at its annual

International Symposium on Osteoporosis (ISO), Silhouette

Awards Dinner and first-ever Healthy Bones, Build Them for

Life® Consumer and Patient Forum in Las Vegas, Nevada.

These events engage the public, patients and healthcare

professionals in our fight against osteoporosis. Photos can

be viewed at www.nof.org/awardsdinner2011.

ccess to state education and awareness programs on osteoporosis is declining and

patient access to needed osteoporosis testing is at risk. Members of Congress recently introduced bills to address these problems and help improve the lives of osteoporosis patients and those at risk for the disease.

Only 11 states – AR, IL, MA, NM, NY, NC, OH, PA, UT, WA, WV – have recently funded education and awareness programs on osteoporosis. If you live in any of the other 39 states, you may not have access to an osteoporosis education and awareness program. Additionally, many states are facing tight budgets and the few with osteoporosis programs may be forced to cut or abolish them.

In May, Senator Gillibrand introduced the “Bone Health Promotion and Research Act of 2011” (S. 966) to help ensure access to bone health education and awareness programs. This bill would give the Centers for Disease Control and Prevention authority to create a National Bone Health Program. It also would allow for the expansion of bone health research, including osteoporosis, at the National Institutes of Health, which could lead to better treatments to improve the quality of life of osteoporosis patients.

Currently, dual energy x-ray absorptiometry (DXA) tests, the standard for osteoporosis screening, are also used to monitor the treatment of osteoporosis patients. Although DXA tests are eligible for coverage under

the Medicare program, patient access to DXA tests may be in jeopardy. The Medicare reimbursement rate for DXA tests performed in physician offices is scheduled to be cut by 62 percent by 2013. Because many physicians may be unable to afford to offer DXA tests to patients if these drastic Medicare reimbursement are carried out, you may not be able to find a physician near you to perform a DXA test, even if you are elegible and need the test. Some patients may have to travel long distances and, because of the transportation burden, some may be forced to skip needed DXA tests.

The “Preservation of Access to Osteoporosis Testing for Medicare Beneficiaries Act of 2011” (S. 1096/H.R. 2020) recently was introduced in Congress by Senators Stabenow and Snowe and Representatives Burgess and Berkley. This bill would maintain current Medicare reimbursement rates through 2013 to help preserve patient access to needed DXA tests.

At NOF we are continuing to advocate for these two bills and we need your help! Join NOF by contacting your Members of Congress to ask that they support these bills. You can contact NOF at 1 (800) 231-4222, and we will provide you with the phone numbers for your Members of Congress. If you have internet access, you can also visit the NOF Web site and sign-up to become an advocate at www.nof.org/advocacy/becomeanadvocate. Together we can make a difference on these important

issues!

A

featured S u p p O rt E r S tO ry

NOF Nominates Patients to Serve on Research Grant Review Panels

OF has nominated ten individuals to participate in the

Congressionally Directed Medical Research Programs (CDMRP).

NOF nominees bring an invaluable patient perspective to the re-

search grant review process as the panels debate the proposals’ potential for

improved medical care and enhanced quality of life. This is the second time

NOF has been invited to nominate patients to the CDMRP. In 2009, NOF

nominated seven individuals.

For fiscal year 2011, the Department of Defense received an appropriation

from Congress through the CDMRP to fund research across 21 research

topic areas, including osteoporosis and related bone diseases. NOF, as a

leader of the National Coalition for Osteoporosis and Related Bone Diseases

(Bone Coalition), advocated making osteoporosis and related bone diseases

one of the topic areas.

The number of nominees invited to participate in the CDMRP will depend

in part on the number of osteoporosis research proposals submitted. NOF

nominees for 2011 include Philip Caflisch from New York, Christy Cyphers

from Maryland, Marsha Fixler from New York, Sally Fullman from New Jersey,

Carolyn Grove from Georgia, Faye Hollowell from Tennessee, Dana Kurland

from Arizona, Phyllis Lansing from Maryland, Anne Murphy from Maine and

Susan Ross from Connecticut.

“As a consumer reviewer in the 2009 CDMRP, I read and scored close to 30

research proposals. It was fascinating to see that many scientists are working

hard to understand our bones better and find more effective treatments and a

cure for osteoporosis. I am confident that osteoporosis will be eradicated. It’s

only a matter of time. The scientists and NOF need our support. Through my

support group and by raising awareness of osteoporosis and bone health in

my community, I will continue to do my part. My daughter and granddaughter,

and millions of Americans, are depending on us to succeed.”

- Jennie Image, NOF Advocate and Dallas Support Group Leader

Carly Hamburger

Save the date for next year’s activities in

Orlando, Florida

April 25-28, 2012!

N

Vitamin D which she says “changed her life”; and the latest medical treatments being offered.

Elaine works in a caring environment that allows her to take extra time to share her knowledge about osteoporosis with patients who come for DXA scans. By telling her story and inviting people to attend support group meetings, Elaine provides a valuable service, links NOF to her community and simultaneously feels a strong personal connection to NOF. She said, “NOF has been such a great resource and is so valuable to me and my support group.”

Elaine also supports NOF in a unique way by using her considerable artistic talent to create the beautiful floral artwork that adorns hundreds of items that are available for purchase at www.cafepress.com/shopnof.

We salute friends like Elaine Caflisch who are working at the local level as NOF’s ambassadors across America. We salute Elaine and hope her story will encourage you to become proactive in the fight against osteoporosis and to learn more about building strong bones for life. If you would like to learn about or start a support group in your area, we are here to help and to answer your questions. Give us a call at 1 (800) 231-4222.

Meet NOF Supporter and Grassroots Volunter Elaine Caflisch (continued)

Osteoporosis and Bone Health Bills Introduced in Congress

strategies for O S t E O p O r O S i Sask the E x p E rt

This issue’s expert is Carly Hamburger, Licensed Massage Therapist, Masters of Public Health Candidate and NOF Practicum Student.

I was recently diagnosed with osteoporosis.

Is it safe to have a massage?

If performed safely, massage therapy can offer

relief and improve the quality of life for people who suffer from osteoporosis or those at risk of breaking a bone. Here are some tips to follow:

• Look for a therapist who specializes in geriatric massage. He or she may have more experience treating individuals with osteoporosis. To find a licensed provider, call the American Massage Therapy Association at 1 (888) 843-2682 or visit www.amtamassage.org

• Request a Swedish or relaxation massage. Swedish massages involve light, long strokes and gentle kneading to improve circulation and encourage relaxation. You should only receive gentle pressure, especially on the back.

• When you book an appointment, mention that you have osteoporosis or that you are at risk of fracture. Tell your massage therapist as many details as you can about your health. Let him or her know immediately if the massage is ever uncomfortable or painful.

• If your healthcare provider says it’s safe, gentle massage may help relieve pain after a fracture. Always wait until the fracture has completely healed before having a massage.

• Massage can relax you so much that you may become disoriented. Avoid falling after a massage by having the therapist hand you your glasses,

sitting up slowly and asking for help getting off the table.

from the C O v E r

In May, NOF hosted more than 700 attendees at its annual

International Symposium on Osteoporosis (ISO), Silhouette

Awards Dinner and first-ever Healthy Bones, Build Them for

Life® Consumer and Patient Forum in Las Vegas, Nevada.

These events engage the public, patients and healthcare

professionals in our fight against osteoporosis. Photos can

be viewed at www.nof.org/awardsdinner2011.

ccess to state education and awareness programs on osteoporosis is declining and

patient access to needed osteoporosis testing is at risk. Members of Congress recently introduced bills to address these problems and help improve the lives of osteoporosis patients and those at risk for the disease.

Only 11 states – AR, IL, MA, NM, NY, NC, OH, PA, UT, WA, WV – have recently funded education and awareness programs on osteoporosis. If you live in any of the other 39 states, you may not have access to an osteoporosis education and awareness program. Additionally, many states are facing tight budgets and the few with osteoporosis programs may be forced to cut or abolish them.

In May, Senator Gillibrand introduced the “Bone Health Promotion and Research Act of 2011” (S. 966) to help ensure access to bone health education and awareness programs. This bill would give the Centers for Disease Control and Prevention authority to create a National Bone Health Program. It also would allow for the expansion of bone health research, including osteoporosis, at the National Institutes of Health, which could lead to better treatments to improve the quality of life of osteoporosis patients.

Currently, dual energy x-ray absorptiometry (DXA) tests, the standard for osteoporosis screening, are also used to monitor the treatment of osteoporosis patients. Although DXA tests are eligible for coverage under

the Medicare program, patient access to DXA tests may be in jeopardy. The Medicare reimbursement rate for DXA tests performed in physician offices is scheduled to be cut by 62 percent by 2013. Because many physicians may be unable to afford to offer DXA tests to patients if these drastic Medicare reimbursement are carried out, you may not be able to find a physician near you to perform a DXA test, even if you are elegible and need the test. Some patients may have to travel long distances and, because of the transportation burden, some may be forced to skip needed DXA tests.

The “Preservation of Access to Osteoporosis Testing for Medicare Beneficiaries Act of 2011” (S. 1096/H.R. 2020) recently was introduced in Congress by Senators Stabenow and Snowe and Representatives Burgess and Berkley. This bill would maintain current Medicare reimbursement rates through 2013 to help preserve patient access to needed DXA tests.

At NOF we are continuing to advocate for these two bills and we need your help! Join NOF by contacting your Members of Congress to ask that they support these bills. You can contact NOF at 1 (800) 231-4222, and we will provide you with the phone numbers for your Members of Congress. If you have internet access, you can also visit the NOF Web site and sign-up to become an advocate at www.nof.org/advocacy/becomeanadvocate. Together we can make a difference on these important

issues!

A

featured S u p p O rt E r S tO ry

NOF Nominates Patients to Serve on Research Grant Review Panels

OF has nominated ten individuals to participate in the

Congressionally Directed Medical Research Programs (CDMRP).

NOF nominees bring an invaluable patient perspective to the re-

search grant review process as the panels debate the proposals’ potential for

improved medical care and enhanced quality of life. This is the second time

NOF has been invited to nominate patients to the CDMRP. In 2009, NOF

nominated seven individuals.

For fiscal year 2011, the Department of Defense received an appropriation

from Congress through the CDMRP to fund research across 21 research

topic areas, including osteoporosis and related bone diseases. NOF, as a

leader of the National Coalition for Osteoporosis and Related Bone Diseases

(Bone Coalition), advocated making osteoporosis and related bone diseases

one of the topic areas.

The number of nominees invited to participate in the CDMRP will depend

in part on the number of osteoporosis research proposals submitted. NOF

nominees for 2011 include Philip Caflisch from New York, Christy Cyphers

from Maryland, Marsha Fixler from New York, Sally Fullman from New Jersey,

Carolyn Grove from Georgia, Faye Hollowell from Tennessee, Dana Kurland

from Arizona, Phyllis Lansing from Maryland, Anne Murphy from Maine and

Susan Ross from Connecticut.

“As a consumer reviewer in the 2009 CDMRP, I read and scored close to 30

research proposals. It was fascinating to see that many scientists are working

hard to understand our bones better and find more effective treatments and a

cure for osteoporosis. I am confident that osteoporosis will be eradicated. It’s

only a matter of time. The scientists and NOF need our support. Through my

support group and by raising awareness of osteoporosis and bone health in

my community, I will continue to do my part. My daughter and granddaughter,

and millions of Americans, are depending on us to succeed.”

- Jennie Image, NOF Advocate and Dallas Support Group Leader

Carly Hamburger

Save the date for next year’s activities in

Orlando, Florida

April 25-28, 2012!

N

Vitamin D which she says “changed her life”; and the latest medical treatments being offered.

Elaine works in a caring environment that allows her to take extra time to share her knowledge about osteoporosis with patients who come for DXA scans. By telling her story and inviting people to attend support group meetings, Elaine provides a valuable service, links NOF to her community and simultaneously feels a strong personal connection to NOF. She said, “NOF has been such a great resource and is so valuable to me and my support group.”

Elaine also supports NOF in a unique way by using her considerable artistic talent to create the beautiful floral artwork that adorns hundreds of items that are available for purchase at www.cafepress.com/shopnof.

We salute friends like Elaine Caflisch who are working at the local level as NOF’s ambassadors across America. We salute Elaine and hope her story will encourage you to become proactive in the fight against osteoporosis and to learn more about building strong bones for life. If you would like to learn about or start a support group in your area, we are here to help and to answer your questions. Give us a call at 1 (800) 231-4222.

Meet NOF Supporter and Grassroots Volunter Elaine Caflisch (continued)

Osteoporosis and Bone Health Bills Introduced in Congress

strategies for O S t E O p O r O S i Sask the E x p E rt

This issue’s expert is Carly Hamburger, Licensed Massage Therapist, Masters of Public Health Candidate and NOF Practicum Student.

I was recently diagnosed with osteoporosis.

Is it safe to have a massage?

If performed safely, massage therapy can offer

relief and improve the quality of life for people who suffer from osteoporosis or those at risk of breaking a bone. Here are some tips to follow:

• Look for a therapist who specializes in geriatric massage. He or she may have more experience treating individuals with osteoporosis. To find a licensed provider, call the American Massage Therapy Association at 1 (888) 843-2682 or visit www.amtamassage.org

• Request a Swedish or relaxation massage. Swedish massages involve light, long strokes and gentle kneading to improve circulation and encourage relaxation. You should only receive gentle pressure, especially on the back.

• When you book an appointment, mention that you have osteoporosis or that you are at risk of fracture. Tell your massage therapist as many details as you can about your health. Let him or her know immediately if the massage is ever uncomfortable or painful.

• If your healthcare provider says it’s safe, gentle massage may help relieve pain after a fracture. Always wait until the fracture has completely healed before having a massage.

• Massage can relax you so much that you may become disoriented. Avoid falling after a massage by having the therapist hand you your glasses,

sitting up slowly and asking for help getting off the table.

from the C O v E r

In May, NOF hosted more than 700 attendees at its annual

International Symposium on Osteoporosis (ISO), Silhouette

Awards Dinner and first-ever Healthy Bones, Build Them for

Life® Consumer and Patient Forum in Las Vegas, Nevada.

These events engage the public, patients and healthcare

professionals in our fight against osteoporosis. Photos can

be viewed at www.nof.org/awardsdinner2011.

ccess to state education and awareness programs on osteoporosis is declining and

patient access to needed osteoporosis testing is at risk. Members of Congress recently introduced bills to address these problems and help improve the lives of osteoporosis patients and those at risk for the disease.

Only 11 states – AR, IL, MA, NM, NY, NC, OH, PA, UT, WA, WV – have recently funded education and awareness programs on osteoporosis. If you live in any of the other 39 states, you may not have access to an osteoporosis education and awareness program. Additionally, many states are facing tight budgets and the few with osteoporosis programs may be forced to cut or abolish them.

In May, Senator Gillibrand introduced the “Bone Health Promotion and Research Act of 2011” (S. 966) to help ensure access to bone health education and awareness programs. This bill would give the Centers for Disease Control and Prevention authority to create a National Bone Health Program. It also would allow for the expansion of bone health research, including osteoporosis, at the National Institutes of Health, which could lead to better treatments to improve the quality of life of osteoporosis patients.

Currently, dual energy x-ray absorptiometry (DXA) tests, the standard for osteoporosis screening, are also used to monitor the treatment of osteoporosis patients. Although DXA tests are eligible for coverage under

the Medicare program, patient access to DXA tests may be in jeopardy. The Medicare reimbursement rate for DXA tests performed in physician offices is scheduled to be cut by 62 percent by 2013. Because many physicians may be unable to afford to offer DXA tests to patients if these drastic Medicare reimbursement are carried out, you may not be able to find a physician near you to perform a DXA test, even if you are elegible and need the test. Some patients may have to travel long distances and, because of the transportation burden, some may be forced to skip needed DXA tests.

The “Preservation of Access to Osteoporosis Testing for Medicare Beneficiaries Act of 2011” (S. 1096/H.R. 2020) recently was introduced in Congress by Senators Stabenow and Snowe and Representatives Burgess and Berkley. This bill would maintain current Medicare reimbursement rates through 2013 to help preserve patient access to needed DXA tests.

At NOF we are continuing to advocate for these two bills and we need your help! Join NOF by contacting your Members of Congress to ask that they support these bills. You can contact NOF at 1 (800) 231-4222, and we will provide you with the phone numbers for your Members of Congress. If you have internet access, you can also visit the NOF Web site and sign-up to become an advocate at www.nof.org/advocacy/becomeanadvocate. Together we can make a difference on these important

issues!

A

featured S u p p O rt E r S tO ry

NOF Nominates Patients to Serve on Research Grant Review Panels

OF has nominated ten individuals to participate in the

Congressionally Directed Medical Research Programs (CDMRP).

NOF nominees bring an invaluable patient perspective to the re-

search grant review process as the panels debate the proposals’ potential for

improved medical care and enhanced quality of life. This is the second time

NOF has been invited to nominate patients to the CDMRP. In 2009, NOF

nominated seven individuals.

For fiscal year 2011, the Department of Defense received an appropriation

from Congress through the CDMRP to fund research across 21 research

topic areas, including osteoporosis and related bone diseases. NOF, as a

leader of the National Coalition for Osteoporosis and Related Bone Diseases

(Bone Coalition), advocated making osteoporosis and related bone diseases

one of the topic areas.

The number of nominees invited to participate in the CDMRP will depend

in part on the number of osteoporosis research proposals submitted. NOF

nominees for 2011 include Philip Caflisch from New York, Christy Cyphers

from Maryland, Marsha Fixler from New York, Sally Fullman from New Jersey,

Carolyn Grove from Georgia, Faye Hollowell from Tennessee, Dana Kurland

from Arizona, Phyllis Lansing from Maryland, Anne Murphy from Maine and

Susan Ross from Connecticut.

“As a consumer reviewer in the 2009 CDMRP, I read and scored close to 30

research proposals. It was fascinating to see that many scientists are working

hard to understand our bones better and find more effective treatments and a

cure for osteoporosis. I am confident that osteoporosis will be eradicated. It’s

only a matter of time. The scientists and NOF need our support. Through my

support group and by raising awareness of osteoporosis and bone health in

my community, I will continue to do my part. My daughter and granddaughter,

and millions of Americans, are depending on us to succeed.”

- Jennie Image, NOF Advocate and Dallas Support Group Leader

Carly Hamburger

Save the date for next year’s activities in

Orlando, Florida

April 25-28, 2012!

N

Vitamin D which she says “changed her life”; and the latest medical treatments being offered.

Elaine works in a caring environment that allows her to take extra time to share her knowledge about osteoporosis with patients who come for DXA scans. By telling her story and inviting people to attend support group meetings, Elaine provides a valuable service, links NOF to her community and simultaneously feels a strong personal connection to NOF. She said, “NOF has been such a great resource and is so valuable to me and my support group.”

Elaine also supports NOF in a unique way by using her considerable artistic talent to create the beautiful floral artwork that adorns hundreds of items that are available for purchase at www.cafepress.com/shopnof.

We salute friends like Elaine Caflisch who are working at the local level as NOF’s ambassadors across America. We salute Elaine and hope her story will encourage you to become proactive in the fight against osteoporosis and to learn more about building strong bones for life. If you would like to learn about or start a support group in your area, we are here to help and to answer your questions. Give us a call at 1 (800) 231-4222.

Meet NOF Supporter and Grassroots Volunter Elaine Caflisch (continued)

Osteoporosis and Bone Health Bills Introduced in Congress

strategies for O S t E O p O r O S i Sask the E x p E rt

This issue’s expert is Carly Hamburger, Licensed Massage Therapist, Masters of Public Health Candidate and NOF Practicum Student.

I was recently diagnosed with osteoporosis.

Is it safe to have a massage?

If performed safely, massage therapy can offer

relief and improve the quality of life for people who suffer from osteoporosis or those at risk of breaking a bone. Here are some tips to follow:

• Look for a therapist who specializes in geriatric massage. He or she may have more experience treating individuals with osteoporosis. To find a licensed provider, call the American Massage Therapy Association at 1 (888) 843-2682 or visit www.amtamassage.org

• Request a Swedish or relaxation massage. Swedish massages involve light, long strokes and gentle kneading to improve circulation and encourage relaxation. You should only receive gentle pressure, especially on the back.

• When you book an appointment, mention that you have osteoporosis or that you are at risk of fracture. Tell your massage therapist as many details as you can about your health. Let him or her know immediately if the massage is ever uncomfortable or painful.

• If your healthcare provider says it’s safe, gentle massage may help relieve pain after a fracture. Always wait until the fracture has completely healed before having a massage.

• Massage can relax you so much that you may become disoriented. Avoid falling after a massage by having the therapist hand you your glasses,

sitting up slowly and asking for help getting off the table.

from the C O v E r

In May, NOF hosted more than 700 attendees at its annual

International Symposium on Osteoporosis (ISO), Silhouette

Awards Dinner and first-ever Healthy Bones, Build Them for

Life® Consumer and Patient Forum in Las Vegas, Nevada.

These events engage the public, patients and healthcare

professionals in our fight against osteoporosis. Photos can

be viewed at www.nof.org/awardsdinner2011.

ccess to state education and awareness programs on osteoporosis is declining and

patient access to needed osteoporosis testing is at risk. Members of Congress recently introduced bills to address these problems and help improve the lives of osteoporosis patients and those at risk for the disease.

Only 11 states – AR, IL, MA, NM, NY, NC, OH, PA, UT, WA, WV – have recently funded education and awareness programs on osteoporosis. If you live in any of the other 39 states, you may not have access to an osteoporosis education and awareness program. Additionally, many states are facing tight budgets and the few with osteoporosis programs may be forced to cut or abolish them.

In May, Senator Gillibrand introduced the “Bone Health Promotion and Research Act of 2011” (S. 966) to help ensure access to bone health education and awareness programs. This bill would give the Centers for Disease Control and Prevention authority to create a National Bone Health Program. It also would allow for the expansion of bone health research, including osteoporosis, at the National Institutes of Health, which could lead to better treatments to improve the quality of life of osteoporosis patients.

Currently, dual energy x-ray absorptiometry (DXA) tests, the standard for osteoporosis screening, are also used to monitor the treatment of osteoporosis patients. Although DXA tests are eligible for coverage under

the Medicare program, patient access to DXA tests may be in jeopardy. The Medicare reimbursement rate for DXA tests performed in physician offices is scheduled to be cut by 62 percent by 2013. Because many physicians may be unable to afford to offer DXA tests to patients if these drastic Medicare reimbursement are carried out, you may not be able to find a physician near you to perform a DXA test, even if you are elegible and need the test. Some patients may have to travel long distances and, because of the transportation burden, some may be forced to skip needed DXA tests.

The “Preservation of Access to Osteoporosis Testing for Medicare Beneficiaries Act of 2011” (S. 1096/H.R. 2020) recently was introduced in Congress by Senators Stabenow and Snowe and Representatives Burgess and Berkley. This bill would maintain current Medicare reimbursement rates through 2013 to help preserve patient access to needed DXA tests.

At NOF we are continuing to advocate for these two bills and we need your help! Join NOF by contacting your Members of Congress to ask that they support these bills. You can contact NOF at 1 (800) 231-4222, and we will provide you with the phone numbers for your Members of Congress. If you have internet access, you can also visit the NOF Web site and sign-up to become an advocate at www.nof.org/advocacy/becomeanadvocate. Together we can make a difference on these important

issues!

A

featured S u p p O rt E r S tO ry

NOF Nominates Patients to Serve on Research Grant Review Panels

OF has nominated ten individuals to participate in the

Congressionally Directed Medical Research Programs (CDMRP).

NOF nominees bring an invaluable patient perspective to the re-

search grant review process as the panels debate the proposals’ potential for

improved medical care and enhanced quality of life. This is the second time

NOF has been invited to nominate patients to the CDMRP. In 2009, NOF

nominated seven individuals.

For fiscal year 2011, the Department of Defense received an appropriation

from Congress through the CDMRP to fund research across 21 research

topic areas, including osteoporosis and related bone diseases. NOF, as a

leader of the National Coalition for Osteoporosis and Related Bone Diseases

(Bone Coalition), advocated making osteoporosis and related bone diseases

one of the topic areas.

The number of nominees invited to participate in the CDMRP will depend

in part on the number of osteoporosis research proposals submitted. NOF

nominees for 2011 include Philip Caflisch from New York, Christy Cyphers

from Maryland, Marsha Fixler from New York, Sally Fullman from New Jersey,

Carolyn Grove from Georgia, Faye Hollowell from Tennessee, Dana Kurland

from Arizona, Phyllis Lansing from Maryland, Anne Murphy from Maine and

Susan Ross from Connecticut.

“As a consumer reviewer in the 2009 CDMRP, I read and scored close to 30

research proposals. It was fascinating to see that many scientists are working

hard to understand our bones better and find more effective treatments and a

cure for osteoporosis. I am confident that osteoporosis will be eradicated. It’s

only a matter of time. The scientists and NOF need our support. Through my

support group and by raising awareness of osteoporosis and bone health in

my community, I will continue to do my part. My daughter and granddaughter,

and millions of Americans, are depending on us to succeed.”

- Jennie Image, NOF Advocate and Dallas Support Group Leader

Carly Hamburger

Save the date for next year’s activities in

Orlando, Florida

April 25-28, 2012!

N

lthough osteoporosis is a

hereditary disease that a

mother’s m

ay pass on to

a daughter, a mother also can give

her daughter the strength she needs

to lower her risk. It begins w

ith a

conversation that helps a daughter

build a strong body, discover her bone

health needs and learn how a healthy

diet and exercise can help prevent the

disease.

On M

on

day, S

eptem

ber 26 from

11:00 a.m. to 1:3

0 p.m., N

OF w

ill

host its fourth A G

ift from

Mo

thers

to D

aug

hters®

lun

cheo

n at The

Pierre H

otel in New

York City. P

rogram

activities include the launch of our

Generations of S

trength: Mothers and

Daughters cam

paign, a networking

reception, silent auction and a

Judith Ripka shopping boutique w

ith

proceeds benefitting NO

F. We are

delighted to announce that Lisa Oz of

HealthC

orps® and O

prah and Friends

XM

Radio telecast and Freda Lew

is-

Hall, M

.D. of P

fizer and the Patient-

Centered O

utcomes R

esearch Institute

(PC

OR

I) are confirmed honorees.

Of course w

ith up to one in four men

affected by osteoporosis, they are

encouraged to attend the luncheon

too! Men older than 5

0 are more likely

to break a bone due to osteoporosis

than they are to get prostate cancer.

A G

ift from M

others to Daughters®

encourages families to talk about their

health history and celebrates giving

those you love the strength they need

to lower their risk.

To get involved or purchase tickets,

please call 1 (800) 231-4222 or visit

ww

w.nof.org/gift. A

nd stay tuned this

fall for more inform

ation about NO

F’s

Generations of S

trength: Mothers and

Daughters cam

paign activities!

in the NE

WS

NO

F events

Meet N

OF Supporter and

Grassroots Volunter

Elaine Caflisch

n X-ray technician by training, Elaine C

aflisch runs D

XA

scanning for an osteoporosis medical

practice in Western N

ew York. Looking for

additional ways to help, E

laine called NO

F to inquire about starting a support group in her area. A

s a result, she has been sought out by other health and w

omen’s groups to

make presentations. H

er NO

F support group organizes activities like riverfront w

alks, walks at nursing hom

es, sw

imm

ing pool exercises at a comm

unity pool and talks by health experts including sessions led by a physical therapist, neurosurgeon, m

assage therapist and nutritionist.

Elaine has low

bone mass and she w

ishes she had known

the information about osteoporosis prevention that she

knows now

long ago, such as wearing cushioned w

alking shoes w

ith strong arch supports, especially for walking

programs in a m

all where the floors are hard; taking

August 2011

Volume 26

Num

ber 3A

AA N

EW

SlE

ttEr

FrO

m th

E

NAtiO

NA

l OS

tEO

pO

rO

SiS

FOu

Nd

AtiON

OS

tEO

pO

rO

SiS

r

Ep

Or

t

TheIn

thIs Issu

e

in the New

s | NO

F Events | A

sk the Expert

Strategies for O

steoporosis | Supporter S

tory

In thIs Issue

In the News | NOF Events | Ask the Expert | Strategies for Osteoporosis | Supporter Story

Aw

Ar

en

es

s

ed

uc

At

Ion

A

dv

oc

Ac

y

re

se

Ar

ch

continued inside

NONprOFit OrGu.S. pOStAGE

PAIdpErmit NO. 1550WAShiNGtON dC

The Osteoporosis Report is a publication of the National Osteoporosis Foundation, a 501(c)(3) organization. © 2011 National Osteoporosis Foundation.

A G

ift from M

others to Daughters

Luncheon

Th

e P

ierre

Ho

tel • N

ew

York C

ity • Se

pt. 26, 2011

1150 17th Street NW, Suite 850Washington, dC 20036(800) 231-4222www.nof.org

r E S O u r C E S

ww

w.nof.org

Healthy Bones, Build Them for Life® Fall Webinar Series

Title: Safe Pilates and Yoga for Bone Health Date: October 20, 2011 - World Osteoporosis Day Time: 2:00 – 3:15 PM EST

Title: Balancing the Benefits and Risks of Osteoporosis TreatmentDate: December 6, 2011 Time: 1:00 – 2:00 PM EST

To learn more and to register for these free educational programs, visit www.nof.org/webinars or call 1 (866) 702-3278.

A What Your W

rinkles May Say

About Your Bones

recent study led by Yale S

chool of Medicine

researcher Lubna Pal,

M.D

. suggests a possible correlation betw

een skin wrinkles and bone density.

Prelim

inary findings presented at the 2011 annual m

eeting of The Endocrine

Society in June, suggest that skin

wrinkles m

ay one day be able to help identify w

omen w

ho are more likely

to break a bone. In this study of 114 w

omen in their late 4

0’s and early 50’s,

individuals with few

er wrinkles tended

to have greater bone density in the hip, spine and other bones.

What is the possible relationship

between skin w

rinkles and bone density? To begin, collagen is found in our skin and bones and as w

e age our bodies lose collagen. A

long with

this decrease in collagen, many people

experience an increase in skin wrinkles

and a decrease in bone density. As

bone density decreases, people are m

ore likely to develop osteoporosis and broken bones.

Before you panic that your less-

than-youthful skin is an indicator of osteoporosis, keep in m

ind that this study is the start of a potential association that requires m

ore extensive research before any conclusions can be draw

n.

In an effort to present interesting and new

sworthy bone health topics to the

public, Dr. P

al will present her findings

at NO

F’s Pearls of S

trength® Lecture

this Novem

ber in Washington, D

C. This

is the first lecture in a nationwide series.

More inform

ation will be available in the

coming w

eeks at ww

w.nof.org.

New

Osteoporosis Aw

areness and Prevention O

nline ToolkitIn M

ay, NO

F launched its Osteoporosis

Aw

areness and Prevention O

nline Toolkit with

posters, facts sheets, bookmarks and other

items you can dow

nload and use throughout the

year to increase awareness of osteoporosis and

bone health among patients, friends, fam

ily and

comm

unity mem

bers. To view and dow

nload the

toolkit items, visit w

ww

.nof.org/toolkit.

ON

liN

E t

OO

lk

itSTART

CONVERSATIONA

BONE HEALTHOSTEOPOROSIS

ABO

UT

WITH

SOM

EON

E

AND

YOU LOVE

UNDERSTANDYOUR RISK FACTORS.

TALKW

ITH YOUR HEALTHCAREPROVIDER ABOUT HAVING A BONE DENSITY TEST.

STRIVETO GET ENOUGH CALCIUM

, VITAMIN D

AND BONE HEALTHY EXERCISE DAILY.

YOUR SOURCE OF STRENGTHW

WW

.NOF.ORG/TOOLKIT