messagefrom theexecutivedirectorTwenty Years ofService!

february 2009 marksthe twentieth year

since the founding ofChildren’s CraniofacialAssociation. As I begin mytwentieth year with CCA, Ireflect on all of the peoplewho played a role ingetting us where we are. Iam grateful for each ofyou.Over the years, CCA has

been blessed with thedonation of time,professional expertise, andmonetary support ofthousands of individuals.

ccanetwork

empowering and giving hope to individuals and families affected by facial differences

newsletter of the children’s craniofacial association Cher — honorary chairperson winter 2009

see executivedirector, page 12

lily Ray Walker blessed our family on December 21,2005. We waited through several years and one

traumatic miscarriage for her arrival. She tops the charts asbeing our family’s all-time best Christmas gift ever! If youhave ever seen the movie “Yours, Mine and Ours,” she isthe “Ours” and is certainly the glue that cements ourbeautiful family together.Lily has two older brothers (Tanner, 9, and Nick, 10)

and one older sister (Josey, 14) who are so protective ofher she thinks — correction, she knows — she is the

see Lily, page 8

insidecca kid

kaylee santiago . . . . . . . . . 2

cca adult

christina mitchell . . . . . . . . 3

cca supersib

madelyn santiago . . . . . . . 4

good news . . . . . . . . . . . . 5

calendar of events . . . . . . . 5

retreat – save the date. . . . 5

holiday parties . . . . . . . . . . 6

friends of jeremy . . . . . . . . 7

firstgiving . . . . . . . . . . . . . 7

donors in the spotlight . . . 9

fundraising news . . . 10-11

donors . . . . . . . . . . . 13-15

3 cheers . . . . . . . . . . . . . 16

meet lily ray walkerBy Tosha Walker

often play together and

share some of the same

hobbies, including reading,

dancing and swimming.

During the week, Kaylee

attends CCD classes. Twice

a week, she attends tap

and ballet classes, which

she began last year. She’s

really looking forward to

her first recital this spring.

In May (her birthday

month), Kaylee will play

baseball for the Miracle

League. She’s so excited

about it! In fact, she had a

chance to meet some

Pittsburgh Pirates team

members, who helped raise

money to build the field.

She has even appeared on

Fox Sports Network and

local news websites to

support the league.

Like a lot of young girls,

Kaylee loves the Disney

princesses and enjoys

watching each of their

movies. As for her favorites,

she rates the princesses in

this order: 1) Cinderella 2)

Sleeping Beauty and 3)

Snow White. She likes the

Disney movie, “Camp Rock”

(Mitzi’s her favorite

performer), and she

watches Disney shows,

“Zack and Cody” as well as

“Hannah Montana.” Plus

she tunes in to a variety of

shows on Animal Planet.

Kaylee is quite a tech-

savvy kid. She has a laptop

and likes to go to the

Webkinz and Pogo Internet

sites to play games. She

frequents the Noggin, High

School Musical and Disney

sites as well. Kaylee also has

a Nintendo DS text

messenger. Her

neighborhood friend,

Mallory, has one too, and

they have fun playing

games and chatting with

each other.

Kaylee has Apert

syndrome and has had four

surgeries so far, with none

planned in the near future.

Doctors are checking her

development and will make

decisions on what kind of

surgeries or procedures she

needs when she gets older.

She went to last year’s

CCA retreat in Myrtle

Beach, SC, and had a blast!

She made new friends and

has kept up with them

through letters. Kaylee may

go to this year’s retreat in

Grapevine, TX. Hopefully

she’ll catch up with her

friends there and will, no

doubt, make new ones,

too.

meet kaylee santiago

ccakid

eight-year-old KayleeSantiago is a third

grader from Pennsylvania

who loves being with her

family, going to school,

making friends and

enjoying life. She’s also very

caring of others and willing

to help whenever she can.

Maybe that’s why she

wants to be a nurse when

she grows up.

At school, Kaylee has lots

of friends and likes going to

her reading and swimming

classes. She’s really into the

Junie B. Jones series of

books and reads them at

home and at school.

Purple is her favorite

color, so naturally her room

has lots of purple, and she

wears a lot of purple

clothes. She even has a

purple backpack she takes

to school.

Kaylee has a sister,

Maddie, who is six years

old. (Read more about

Maddie on page 4.) They

2

Mallory, Kaylee, and her sister, Maddie

the medical issues. Theythought my parentswouldn't be able to takecare of me along with myfour siblings. They evensaid I’d die if I didn't havethe necessary operations.My mom threw a fit and

refused to give me away.She felt like if she had methat she should keep me.She didn't care how manysurgeries I would undergo.What mattered to her wasthat I was alive and cryinglike any other baby.So I stayed in the hospital

for about a month or twoand underwent all themajor operations needed

to help me survive. Thedoctors tried to fix myeyes, but there was alreadytoo much damage for meto ever see.I never let my

blindness stand in myway. My favorite thingsare reading Braille books,listening to music, meetingfriends on the Internet,watching medicalprograms on TV andchatting on the phone.My advice to anyone out

there facing a craniofacialchallenge is to keep yourhead held high and nevergive up.

meet christinamitchellccaadult

iwas born on April 14,1984, with a bilateral

facial cleft involving mypalate and upper lip. Thecleft extended mid-face,affecting my eyes andnose, which caused myeyes to be disfigured. Thiscondition left me totallyblind.I lost track of how many

surgeries I've had, but I'lljust say I've had enough ofthem to keep me going.From what my dad has

told me, I had my left eyeremoved due to aninfection. I wear a fullprosthetic left eye and ashell eye as my right. My

eyes were abnormallysmall, and the doctors hadto reconstruct them so thatit looks like I have normaleyes. To this day I still haveto take care of my eyes. Isuffer eye infections nowand then, for which I takedaily medication.I had water on my brain;

I have a scar where doctorsplaced a shunt.Doctors had to build my

nose because it was toosmall and misshapen.All in all, I really was a

miracle child and a survivor.Doctors suggested to myparents that I be given upfor adoption because of all

t his issue’s “mugs” were taken of some of CCA’s boardmembers and our meeting facilitators during our

directors’ once-a-year, face-to-face strategic planningmeeting in October 2008. You can purchase your mugfrom our webstore and then send us YOUR mugshots!

cca mugshots

Meeting facilitators from Association Works, John & Sheryl Paul

Outgoing board chair,Rose Seitz

Chair-elect,George Dale

Erica Crabtree-Mossholder

RobinWilliamson

Paula Guzzo Dr. Tony Davis BillMecklenburg

3

mainly because she lovesfinding money under herpillow!)This past summer, she

amazed me at the CCAretreat. She made friendswith lots of the kids, and afew parents even thankedme because they said thatMaddie brought their kidsout of their shells.Madelyn actually had her

own bout with surgery. Shehad an operation on herbladder and kidneys. Afterwatching Kaylee be in andout of hospitals, I think itwas hard for Maddie to beon the other side of things.All in all though, she was atrooper.

maddie is six yearsold and is in the

first grade. When she is athome she loves to read.Her favorite books rightnow are from the Junie B.Jones series. After readingone, she asks me to read itso we can talk about it.Recently, she read one 60-page book in less than aday! Her teacher wasshocked that she’s only infirst grade and doing sowell.Madelyn takes ballet, jazz

and gym classes. Herfavorite part of dancing iswhen she gets to do herhandstands. She makes mecount how many secondsshe can keep her feetstraight.Maddie loves to swim.

Her latest accomplishment

ccasupersib

was jumping in the deepend and swimming acrossto the other side! Needlessto say, her favorite class atschool is swimming. Herclass has pool parties,which are a lot of fun.Madelyn is also a girly

girl. She loves her pinkstuff and her jewelry, andshe loves to have her hairdone up “pretty.” In thesummer she refuses towear anything butsundresses.Although she may be

girly, Maddie likes going toPittsburgh Pirate gamesand really enjoys thefireworks afterward. Shealso loves going to the zooas well as camping. Mostrecently we went iceskating and had a blast!Maddie is also proud oflosing five teeth. (That’s

4

IRAcharitablerolloverextension

good News! The IRA

Charitable Rollover

has been extended for

2008 and 2009 tax years!

Donors 70½ years or older

may make a charitable gift

of up to $100,000 to CCA

(or any charity) from an IRA

or Rollover IRA without

having to take a taxable

distribution as long as the

gift is transferred directly to

one or more public

charities. Please consult

your tax professional to

ensure your overall

financial objectives are

being met and you may

contact Children’s

Craniofacial Association if

you have further questions.

meet madelyn santiagoBy Tanya Thorpe

For a complete listof our programsand services, visit:

www.ccakids.org/prg.asp

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20 Years of Giving Hope1 9 8 9 - 2 0 0 9

good news

2009 marks the 20th anniversary of Children’sCraniofacial Association! This will be a year-long

commemoration of 20 years of giving hope and acelebration of CCA’s “birthday”!Watch for our limited edition 20th Anniversary Logo

T-shirts which will be available for purchase or with aminimum donation.

Giving Back

cCA is proud of a new cause-related marketing alliancewith Permission products, a new line of men’s skin

care, just introduced.“Permission formulas help you face the world with new

confidence, and you'll be helping others do the same. Aportion of proceeds from each product go to benefitChildren's Craniofacial Association…”Our friends at Permission offer a 15% discount on

all products if you mention CCAkids with your order!www.permissionskincare.com

5

save the dateJune 24-28, 2009

CCA’s 19th Annual Family RetreatGreat Wolf Lodge | Grapevine, TX

t he 19th Annual Family Retreat will be in Grapevine, TX

(10 minutes from DFW airport) June 24 – 28, 2009.

CCA will also hold a craniofacial symposium starting

at 1 p.m. on Wednesday, June 24, resuming at 9 a.m.

on Thursday, the 25th. See you in Texas!

www.greatwolf.com

calendar of eventsdate event contactMar 8, 2009 Smiling Thru the Mask – wendelynyvonne@hotmail.com

A dinner to benefit CCARestaurant 1620Little Rock, AR

Mar 22, 2009 Henry’s March for CCA laurynhenry@sbcglobal.net5k Fun Run myspace.com/henrysmarchCSU, Stanislaus 209.664.0500Turlock, CA

Jun 24, 2009 Craniofacial Symposium AReeves@ccakids.comGreat Wolf Lodge www.ccakids.orgGrapevine, TX 800.535.3643

Jun 25-28, 2009 19th Annual Family Retreat AReeves@ccakids.comGreat Wolf Lodge www.ccakids.orgGrapevine, TX 800.535.3643

Jul 18, 2009 Jaci's Country Bash (Dance) JSamhammer@gmail.comMorrisville, PA

Jul 23, 2009 Heroes for Hope Gala JGorecki@ccakids.comJorge Posada Foundation www.ccakids.orgNew York, NY 800.535.3643

Aug 22, 2009 4th Annual Wendelyn’s Course wendelynyvonne@hotmail.comof Dreams Golf TournamentCountry Club of ArkansasMaumelle, AR

Sep 12, 2009 Alexa’s Appeal deniserast@sbcglobal.netDinner/Auction, 5-10 PMModesto, CA

Sep 2009 Jylian’s Links of Love JGorecki@ccakids.comGolf Tournament www.ccakids.orgLocation TBA (Texas) 800.535.3643

Oct 3, 2009 5th Annual Friends of Jeremy gdale@stny.rr.comGolf Tournament www.friendsofjeremy.comCorning Country ClubCorning, NY

Children had pictures takenwith Santa, and everyonewent home with a keepsakephoto and toy.CCA would like to thank

Southfork Ranch andtheir wonderful staff forhosting! A huge thank yougoes out to our wonderfulvolunteers from the ItalianClub of Dallas as well as

CCA friends Richie Cookand Adam Golden!

Dallas

cCA, together with Drs.Jeffrey Fearon, David

Genecove and CarlosBarcelo, hosted its 19thannual holiday party atSouthfork Ranch, in Parker,TX, on Saturday, December13th. Around 500attendees joined us for amorning full of fun!

Radio Disney was theentertainment once again,and everyone participatedin the fun, music andgames. The parents hadjust as much fun as thekids, especially during thehula hoop and dancecontests! Everyone enjoyedcake and punch as well asarts and crafts. The kiddostheir own cookies,snowflakes, Christmastrees and made pictureframes.The firefighters of

nearby Plano joined us,bringing a real fire truckfor the children to see.And, the Dallas Stars IceGirls were there and gaveautographs. There wereeven real snakes! Yikes!Families went home with

lots of door prizes, whichwere donated by several

local businesses. Prizesincluded passes to SixFlags, a luxury suite for 10at the Mesquite Rodeo,paintball passes fromCelebration Station, agift certificate to theMagic Time Machine,passes to the Fort WorthZoo and the Dallas Zoo,and autographed itemsfrom the Texas Rangersand Dallas Mavericks!AdvancedNeuromodulationSystems, Inc., donatedtoys for door prizes aswell!And, a big THANK YOU

goes out to the followingbusinesses and individualsfor donating money forour party: ProfessionalFlooring Supply, OrthoAmerica, MedicalModeling, KLS Martin,and Bill and LizMulholland.As always, the highlight of

the party was Santa Claus.

Midwest

santa also stopped by atthe Parkway Chateau in

Kenosha, Wisconsin to visitwith CCA kids and familiesthere who gathered for apizza lunch, crafts andvisiting. Mom MarlaVerdone of Janesville,Wisconsin, planned thefestivities with the help ofher daughters Lara andLexandra manning thecraft table and distributing,then drawing, door-prizetickets. Regulars joinedwith new families and lotsof networking and sharingmade the afternoonsuccessful and fun.Kids sat on Santa’s knee

for photos and to tell himwhat they wanted forChristmas. A good timewas had by all. See younext year!

holiday parties

Santa Claus chats with 16-month-old Sydney Garcia as new friends,Brittany Borg and Marie Sanchez(standing) look on.

CCA Moms, AltrinaShorts, Jill Gorecki,Marla Verdone at

the MidwestHoliday party.

6

We were extremely fortu-nate to have a beautifulblue sky and breathtakingviews of the fall foliage.We had an incredible

turn-out and overwhelmingsupport from thecommunity, our co-workers, friends and family.A total of 138 golfers cameout to have fun and showtheir support for the kids ofCCA. We had a recordnumber of tournament andhole sponsors andtremendous support fromlocal businesses andnational organizations whodonated prizes and silentauction items. Thetournament included araffle, silent auction, closestto the pin 50/50, closest tothe line prizes and a skinsgame. The event was ahuge success, raising$27,200 for CCA!

The tournamentcontinued to beadvertised throughlocal newspaper andTV stations. Wewere very fortunatethis year to havenews coverage theday of thetournament and arecap the day after.Jeremy was againjoined this year bytwo of his CCAfriends. AndrewPerry fromMassachusetts andRyan Gulich from BigFlats, NY, who participatedin the tournament, helpedraise awareness ofcraniofacial conditionsamong the participants andthe community.We are so grateful to

everyone who supportedthis event and the kids

4th annual friends ofjeremy golf tournamentBy Kristine Dale

the 4th Annual Friendsof Jeremy Golf

Tournament was held onSaturday, October 4, 2008,at the Corning CountryClub in Corning, NY. Thenew venue this year pro-vided a beautiful settingand course for our golfers.

CCA kids, left to right: RyanGulich, Andrew Perry andJeremy Dale

The Dale Family, George, Kristine, Tommy,Jeremy and Cody

in conjunction with the 2009 20th anniversary ofChildren’s Craniofacial Association and September’s

Annual Craniofacial Acceptance Month, we propose aspecial way to reward CCA families who raise funds forCCA.Beginning right after this year’s retreat and through

2009, any family raising more than $5,000 for CCA will beawarded one hotel room at the next retreat they attend(either 2009 or 2010) for the three-day retreat period!This invitation is extended to everyone already holding

events throughout the year and includes any type ofeffort, not just Firstgiving.All those who wish to participate will be asked to sign a

confirmation of understanding of the provisions of this

program. Please call 800.535.3643 or email Jill Gorecki,JGorecki@ccakids.com for the forms to sign up!

Giving Back with FirstgivingWe’re pleased to provide a free CCA-customized

“firstgiving” site for anyone who wants to help raise fundsfor CCA. Log onto firstgiving.com/ccakids and tell yourpersonal story of why you support CCA or post an eventyou’re having. You can set a goal and track success. Folkswill respond with contributions because they know you!This is an especially easy way to “ask” for donations ifyou’re uncomfortable with the face-to-face approach.

firstgiving fundraising proposal to cca familiesThere's still time to get a free hotel stay for the 2010 retreat

from CCA. The 5th AnnualFriends of Jeremy GolfTournament will be held atthe Corning Country Clubon October 3, 2009. Formore information and tosee photos from thetournament, visitfriendsofjeremy.com.

7

Craniofrontonasal Dysplasiasyndrome. (Say that 10times fast.)At seven months old, she

had surgery to release herright coronal suture andalso had her right orbitadvanced two centimeters.One of the hardest thingsfor parents to do is tohand over their precious,innocent child to theanesthesiologist rightbefore surgery, knowingyour baby will never lookthe same again.She came out more

swollen than we ever couldhave imagined. She wasalso overdosed onmorphine in the PICU andhad a code blue momentin her daddy’s arms. I thinkthat was our scariestmoment thus far. After thefirst few scary days, hereyes were swollen shut fora total of seven days! Shewas miserable!Four days after her

discharge, she wasreadmitted for meningitisand bacteremia. She hadto have a PICC line for sixweeks at home, which shetried to pull out along withher feeding tube. She justwanted to be free!I finally found CCA after

Lily’s first surgery. What agreat support and networkthey have. I only wish I hadfound them earlier.Lily has also had eye-

muscle repair on her eyes,and tubes placed in herears, as well as having hertonsils and adenoidsremoved. The next stage ofsurgery is to bring herorbits closer together and

build a bridge to her nose.This will be at age four, andDr. Morales told us it is oneof the hardest craniofacialsurgeries you can have. Weare very nervous already.Through all of this Lily

has continued to touch thehearts of nearly everyoneshe meets. She is verysocial and loves to talk toanyone and everyone. Lilyis also very smart and has agreat memory!She is the pride and joy

of our family. With just oneconversation or hug fromher you can feel herbeautiful, strong spiritshining through. Lily hasour family and entireneighborhood all wrappedaround her little finger. Herbig blue eyes and beautifulblond, curly hair attractspeople everywhere we go.She says “hi” to all the

“grandmas and grandpas”at the grocery store. Theylove it. She has a tenderheart for the elderly andalways wants to come tothe hospital with me whenI work so she can see thepatients.She also loves to “clean”

her teeth and checked mybraces when I had them.At the tender age of two,she already aspires to be adentist.

She has known herABC’s since she was 18months old and learnedthe Pledge of Allegiance acouple months ago. Lilyenjoys going to pre-schooland her gymnastics class.Other moms tell me that alltheir kids talk about isplaying with Lily at school.

Lily, from page 1

continued next page �

princess of the house andexpects to be treated assuch. She has been aspecial kid from the get-go, and we couldn’timagine not having thisadventurous addition toour wonderful family.Before Lily was born, we

knew she had a feistypersonality. In the womb,she strongly protested toimpingements of her“space,” food and loudnoises. However, weweren’t prepared forexactly how “feisty” thislittle girl could be.The day she was born,

the pediatrician told us shehad some kind of asyndrome and that shewould likely have kidneyand heart problems. Wewere shocked. We justthought she had spent toomuch time in the birthcanal and then having touse suction to get her out,she had a large hematomaon her head.Now we understand why

her birth was so difficult:Her right coronal suturewas fused, and her headwouldn’t collapse to comeout. We were lucky shewas so small, or we wouldhave had an emergency

C-section, according to thedoctors.We didn’t know what to

do or where to turn forsupport. (I hadn’t foundCCA at this point.). Weshed many tears notknowing if our sweet babygirl would be ok and notknowing what her futuremight hold.They told us her heart

and kidneys were fine butthat she was missing partof her brain (the corpuscollosum), and she hadsome kind of syndrome thatincluded craniosynostosis.The corpus collosum is astructure in the center ofthe brain that houses morethan 250 million nerve cellsand does most of thecommunication betweenthe right and left brain.The doctors told us that

the degree ofdevelopmental delay isvariable and depends onthe individual. It couldrange from none to severe.One doctor told us thatRain Man had the samediagnosis. This only addedto our frustration becausewe didn’t really have anyreal answers yet. I askedwhat I could do to stimulatemore communicationpathways and they saidnothing. I tried anyway. Idid all I could think of tostimulate her brain. I triedmusic, dance, touch,massage, reading, exercisesand a whole lot of love.

We didn’t have adefinitive diagnosis untilshe was six months old.

That’s when Dr. Moralestold us that Lily has

8

9

Lily also loves to playwith her “babies” and, ifwe would let her, she’dplay outside all day withher brothers and sister. Sheloves all the snow this yearand had her first sleddingday. She had a ball!She also loves reading,

riding her scooter, boating,swimming and singing. Shehas so much energy andinstantly makes new

friends wherever she goes.She speaks very well and ismature for her age.We know that no matter

what comes her way, Lilywill face it head on andcome out even better thanshe was before. We are sograteful to have her in ourhome and have truly beenblessed to have her in ourfamily. We love you, Lily!

financial assistance

do you travel to receive quality medical care?If you do, and need financial help, CCA has a

financial assistance program that will help with food,travel and/or lodging. Call CCA for an application at800-535-3643. All we ask is that you apply at leastfour to six weeks prior to your next appointment.

we open 2009 shedding light on a special family

who chose to donate to Children’s Craniofacial

Association in memory of George E. Shephard, who

passed away in September and at 86, was a father of five,

grandfather of 12 and great-grandfather of 16. One of

George's granddaughters is Angela Cronin, a devoted

CCA volunteer and mom to 3½ year-old Megan, who was

born with a craniofacial condition.

Angela recounted for us how her grandfather always put

family first. He was there when Megan was born and two

years ago, at 84 years old, traveled over five hours with

them for one of her surgeries, sat through the eight-hour

ordeal with the family, and was there to comfort Megan

when she woke up. The entire family has followed his lead

and in that spirit, chose to honor him with memorial

donations to CCA.

George was loved and remembered by his family,

relatives and many friends and we are extremely grateful

and honored to benefit in his name. Thank you!

donors in the spotlight

Memorial donations were given in the name of George E.Shephard, shown here with Great-granddaughter, Megan Cronin

want to stay intouch with your

CCA friends throughoutthe year? Join one of CCA’s Kids Klubs. You’ll talk withother “kids” your age, make new friends, play games, andjoin discussions. Join one of four age group levels:Kindergarten thru third grade, fourth and fifth grades,sixth thru eighth grades, and ninth through twelfth. Eachlevel has age-appropriate activities that will keep youconnected. So join your CCA friends now and let the funbegin!Contact Annie Reeves for a Kids Klub application today!

KKiiddss KKlluubb

KKiiddss KKlluubb

Kids Klubs

10

$100,000

2008 FAMILY FUNDRAISERGOAL THERMOMETER

100%

90%

70%

50%

30%

10%

80%

60%

40%

20%

fundraising news

Fundraising in Honor of Quentin ZaengleI’m Bridget Cardell and I

currently attend Mount SaintJoseph Academy inPennsylvania. This year Ienrolled in a class called SeniorSeminar, where the studentsbecome active in a cause ororganization.For my project, I was an

activist for Children’sCraniofacial Association. Ibecame interested in thisorganization because I have afamily friend, Quentin

Zaengle, who has Apert syndrome. After hearing of thework CCA does to help children with craniofacialdifferences, I immediately wanted to become involved.

I organized a social awareness event and fundraiser atBorders Bookstore in Montgomeryville, PA, last December.My friends, volunteers and I wrapped gifts for free whilealso passing out pamphlets I created with moreinformation on facial disfigurement.Because of everyone’s generosity, I raised $165 for

CCA in Quentin’s honor. I hope my project spread moreawareness for this cause, so that CCA’s vision of “a worldwhere all people are accepted for who they are, not howthey look,” can come true.

Arbonne Hostess GivingFor the second year, CCA mom Cheryl Swearingen,

along with her family, Clint, Matt, and Amy, held aholiday fundraiser for CCA. With the help of her Arbonnerepresentative, Trisha Goodale, Cheryl sent 35 percent ofthe sales to CCA.

“The Gift” Holiday Concert

On December 13th we hosted“The Gift,” a holiday concert tobenefit CCA. Thanks to thegenerosity of vocalists MalloryO’Donnell and JeanneO’Connor accompanied by

musicians Matthias Donnelly and Matt Donnelly, wewere able to raise more than $2,700 for CCA. In additionto the wonderful holiday music, we had a very successfulraffle and enjoyed coffee and cookies from Something’sBrewing in Greenwich, NY. I would like to extend aspecial thank you to my sister Jessica Schwerd for herhelp in planning the event. Along with all of our familyand friends, the event could not have happened withoutcharitable donations from the community, including JaneSchwerd, Mae Communications, G. LaneConstruction, Country Power Products, Linda Corazzaand Barb Sartell.

Lemonade Sale for CCA

Antasia and Destinylove raising money forCCA and “wanted to

Bridget Cardell and Friendsheld a Borders Gift Wrapeffort for CCA.

CCA mom Angela Cronin (center)with daughters, Megan (held) andEmma (in front), and Angela’scousin, vocalist Mallory O’Donnell.

Wade White’s sisters,Antasia Hart and DestinyCarlisle help CCA in theirbrother’s name.

See our burstingthermometer! Yourefforts helped surpassthe family/friendsfundraising goal!

cCA’s family fundraising goal

for 2008 was $100,000. By

the end of the first quarter our

families had raised almost

$13,500. By the end of the second

quarter you had raised more than

$37,500. At the end of the 3rd

quarter, families pushed the totals

up to more than $88,000! At year

end you had raised around

$147,000! Thanks so much for all

you do!

Special thanks go to families

who sent donations for the

holidays in lieu of exchanging

gifts, and to all who responded to

our annual fund appeal. We

appreciate those who gave in any

way throughout the year as well as

everyone mentioned here. All of

you brought CCA to a successful

close for 2008!

continued next page �

11

help other families the same way CCA has helped ours.Because of generous donors, our family was able to attendthe CCA retreat in Myrtle Beach this last year.” It meant somuch to the girls, and they were encouraged to give back.Take a look at the photo!

More follow-up news from fundraisingefforts held last fall to benefit CCA.

Girl Scout Troop 1369

Evening of GivingFor the third year, the Seitz family participated in their

local Simons Mall “Evening of Giving,” selling tickets toshop at the mall on a night designated especially to helpcharities. The donated portion of ticket sales providedalmost $200 for CCA.

“Be Brody’s Angel”

Mom Jennifer Lucas and family, friends andacquaintances helped garner funds for CCA in Brody’sname. Donations from those who would “Be Brody’sAngel” totaled more than $2,000!

Austin’s Luau of Love

Along with helpingraise funds for CCAkids through theirFirstgiving page,

Austin Freeman and family applied to their local Walmartfor their Luau of Love campaign and were granted $1,000for CCA! Thank you!

Carnival of Caring

Avery Lytle ran a booth ather school’s Carnival of Caring,educating folks about CCA andcraniofacial issues and recruiteda balloon man to make animalballoons as she collected $250for CCA kids!!! Wow, Avery!Thanks!

Penny DriveCCA mom, Angela Marcum, whose daughter, Lillian

was born with Goldenhar syndrome, is also a third-gradeteacher at Lincoln Heights Elementary in Greenville,Michigan. Her students and former students were touchedby CCA’s cause and Marcum’s resolve to spread awarenessthat “Beyond the face is a heart.” Her class involved theentire student body and together they were widening thecircle of acceptance and helping to support CCA with apenny drive that alone raised almost $1,000. That’s100,000 pennies!!!Add to that donations from Angela’s husband’s

employer, Betz Industries, and her sister’s employer,Lynnette Rhodes, and Angela’s fundraiser totaled almost$1,500! Thanks to ALL!

Austin Freeman accepts$1,000 in grant supportfrom his local Walmarttoward his Luau of Loveeffort for CCA

Brody Lucas

Eight-year-old Avery Lytle

“Be Brody’s Angel”logo, designed by hisuncle, Keith Miks

The number of pro-bonoservices CCA has receivedhas been, and continues tobe, invaluable.There have been so many

individuals and groupswilling to give theirexpertise to make it possiblefor CCA to use financialresources in the mostefficient manner. And therehave been so manyindividuals willing to give oftheir valuable time tovolunteer at CCA’s office.We’ve also seen countlesspeople at events, spreadingawareness across thecountry. And we’ve had somany dedicated donorsrecognizing the value inthese programs that changethe lives of the individualsand families we serve.CCA is literally the

product of each andevery one of theseindividuals. There areentirely too many to listhere, but as you read thisyou know who you are,and please know how

much we appreciate everysingle thing you do!Although we wish there

weren’t a need for CCA toexist, there is, so we’reglad we have been able toserve families affected byfacial differences for thepast 20 years. Thousandsof families have taken andcontinue to take activeroles in ensuring thedelivery of programs andservices.Today, our families are

involved in every facet ofthe organization. Somefamilies are active inspreading awarenessthroughout the countrythrough the NationalAwareness Program. Someoffer emotional support toother families in need of ashoulder on which to leanor just someone to talkwith through the FamilyNetworking and InternetSupport Programs. Othersfind their niches infundraising. Yet all areenthusiastic about their

executive director, from page 1

roles and all are vital to theeffectiveness of CCA andits mission.Over the past 20 years,

the economy has ebbedand waned, and so havethe resources available tononprofits. Through all ofthe good times anddifficult times, CCA hasmanaged to “be there”when a family was in needof support.Did we have lean years?

You bet. But because ofthe dedication of boardmembers, volunteers, ourfamilies and the support ofthe community, wesurvived and thrived. Therewere times when CCArelied on the donation ofpro-bono goods andservices and even thedonation of office suppliesto keep the doors open —even when “the doors”were to my garage. Butkeep them open we did,and as a result of thededication of generousvolunteers and donors,CCA has “been there” tosupport individuals andfamilies affected by facialdifferences for 20 years.We’ve “been there”providing emotionalsupport, educationalmaterials and information,financial assistance, publicawareness and acceptance,advocacy and much more.Through fiscal

responsibility, CCA hasbeen able to ensureadequate financialresources necessary todeliver current programs

and services. Throughresponsible stewardship wehave been able to build amodest reserve, ensuringthese important programsand services won’t goaway during a downturn inthe economy.CCA periodically surveys

our families to be sure weare serving our communityin the most effectivemanner. Our programs andservices are a directreflection of these surveys.As a result, we areproviding programs that,regardless of the effort,expertise and resourcesrequired, are mostimportant to the membersof the community weserve. These programsmake a positive impact onthe lives of theseindividuals and families —programs that helpaffected individuals andfamily members livehappier, more productivelives.So, as we begin our

twentieth year of service,the hard work anddedication of individuals,families, volunteers, donorsand staff have collectivelybrought CCA — thepremier craniofacial familysupport organization —this far and will take theorganization well into thefuture.

Charlene SmithCCA Executive Director

cca’s yahoo support groupsCCA is now offering support groups for 3 ages!

Middle School Age:http://health.groups.yahoo.com/group/ccateens_middleschool/

High School Age:http://health.groups.yahoo.com/group/ccateens_highschool/

Adults:http://health.groups.yahoo.com/group/ccakids/

If you would like to join one of our online supportgroups, please visit the links above or contact CCA’sProgram Director, Annie Reeves, areeves@ccakids.com

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donors, january 1 – december 31, 2008*

Gifts fromIndividuals

CCA Supporters($25 to $100)

Jeffrey & Amy AbernathySusan & Bill AddisonJames & Michelle AlheimDeborah AllenCarolyn AllowayDavid & Shirley AlterAnonymousCatherine ArnoldDonnie BalentineTrevor BartleyCathryn & Scott BauerKatie BaustianMalcolm & Laura BeelerGlenn BerardTammy & Andrew BerryKathleen BestKathy BilodeauSandra & Dale BirminghamDouglas BolducMike BoskoMacKenzie BrauerDeborah BreslowPhilip & Judith BresslerLynn K. BrittStephen BronskiEdward BrunsTrevor BryanRichard & Bruce BullossAnn ByrdLawrence & Lynda ByrneHelen CapelianisLarry CarpenterAlexandra ChambersFrank & Kathleen ChisholmMarsha ChiversMaureen ClearyPatricia ConceicaoAnn ConnollyBrian Scott CookMartha & Bradley CornellArlene CoudareCarolyn CraigMichael & Frances CroninHarvey & Venita CrowsonJames & Nancy CutlerElizabeth & Randy DaleGrace & Gary DeilyJ. & C. DelmonteFelicia DerosaPatricia DespresMelanie & Cosimo DibariSuzanne Dolby-DawsonSergio DominguezMr. & Mrs. Gary Donahoo

Eileen DonovanKathleen M. DunnScott EnsignPatricia ErnstGary & Karen EvensKimberly & Mark FanguyRichard FerleFrancis FisherGary FitzsimmonsJoAnn &Walter FloresThomas FloresTheresa FoutsMargaret FuhrwerkGail & William Fuller, MDDug R. FunnellFlorence & Dr. John GalidaMary Kay & Thomas GardinAlison GelbmanJohn GhiconidesR.M. GillSidney GoldmanLecerrell GreeneDr.William GreenAlfredo Gugig & Jenny TettnerNicole & Ryan GulichAlfred HarfJennifer & Michael HastingsAndrea HerbertJohn Hermanek & Mary DrillLora HigginbothamMandie HiznayWilliam HorbalyJohn & Theresa HospodkaClayton & Kathy HuckJohn & Heather HutchinsonNicole IrvolinoDale & Joan JennerjohnDonald & Mary JonesDon & Erin JoynerTheodore KalivasVasiliki KaragianisA.E. KarpenDebra KeithEileen KelleyJoan KiesendahlJill KleinJoseph KleinKendall & Susan KlingeThomas & Barbara KochendorferMark & Barbara KochevarArthur & Alison KontaxisBarbara & Andy LairdJohn & Alison LarsonDiana LeskoJohn & Mary LivingstonDuane LongJessica LooneyClaudia LozanoKenneth LubyRenee LucckinoDavid Luther, Jr.

James MacaulayDonald & Charlene MacGregorAllen & Tanya MacLennanDebra MacutJoan MaddockDavid MartinezThomas & Madeline McAdamGlenna McAlevy-BeatyDomenica & Robert McKinnonRuss & Bonnie McMinnEllen McPaddenBarbara MellendorfCarol MeltonThomas & Estelle MimsDenise MiyakeJane MonellScott MontgomeryKevin MooreJack & Kim MorrisPhyllis & Lee MorrisAlison MorrisseyKeli MorrisonHarlena MortonFrancis W. & Toni A. MosierJohn MoultonMina MulveyDenise MiyakeJanell NelsonAnn NesbittPatsy NgJulianna NichollRon & Jackie NiermanRalph NuckolsAnn Patterson / Howard LangnerWilliam John LuybenEldora & Howard NiedermillerMary Ann NowickiMichael & Marti O’BrienH. R. & JoAnn OlienG. D. & D. M. OttoMary & Anthony PallanteSandra PeckinpahAnne PetersonCandace PowellCarol QuarantoDonna ReaBarbara RedmanKurt RehbeinAnnie ReevesKimberly ReynoldsDr. Frank RoarkMark RobertsJean RobertsonJere RobertsonCynthia RobideauErica & Greg RobinsTodd RodemacherKim & Frederick Romeo, Jr.Joyce RonczkaGail & Walter RookHeather Rose

Jennifer RosenbergSheldon SaidmanMr. & Mrs. Merlle SampsonIris SchellMichael SchlehuberMr.& Mrs. Leroy SchroederWilliam & Jessica SchwerdLinda & David ScottDaphne SellersJeffrey & Lana ServatiusHelen ShannonKelly & Joshua SilvermanMary Ann SilvestroRichard & Mary SkoumalCheryl SmithJudith SmithMajorie Herron SmithRonald & Deborah SmithStephen SmithFrances StanfordDuane D. StanleyHerbert StenzelChristopher StokesSteve & Cathy StroudWilliam & Nancy SuwalskiLaura TalmusStephen & Jennifer TaylorTruman & Mary Terrell IIISusan ThomasAmy ThorntonArlon TietzGary UttkeKay Van Cleave, PH.D.Robert VanniDaniel WalkerKaren WaringDiana WeberDennis WebsterJohn & April WhartonBarbara WiedenmanJ.B. & Cynthia WillsEva & Steven WillmsPatrick WilsonStephen WrightCasey WyseCarol Yash-DebowJohn ZaengleRobert & Stephanie Ziebell

CCA Friends($100 +)

Mario AdamoLillian AlbergoAnonymousCarol AnthonyMari-Jo & Paul BatchelorMildred BonneauPhyllis BreedenSuzanne & Mark BrenzikoferPaul BrinkmanMark BronsonMichael BudishWilliam “Doug” and Ann BurginNancy BursonJim & Beverly ButeraThomas CallahanLarry Carpenter

Helen ChambersRoger Chin, DDS, PSDavid & Kris CiccoloDeclan Cook & Paul TremblayAnne CorleyMurray CovensAngela CroninKristine & George DaleGerald & Ruth DankelsonAnthony & Sandra DeakinsAnita & Charles DenneyCamilla Diaz-PerezAmanda & Robert DornerJess & Alice EvansVincent Farina & Leigh M. SodaBen & Patricia FarmerRobert FeinsteinJohn & Carrie FollettNellagene & Leigh GilbertDudley GodfreyGarrick & Jennifer GrovesMartin & Jennifer GruppMargaret GruppMaurice GutzlerEbby Halliday AcresCarol & Mike HazelgroveMargaret HeistandPauline HicksS. Gaylann HicksGregory & Melissa HillAngela HoulihanEdward HowlandWilliam & Darlene HunterJohn & Heather HutchinsonElizabeth W. JonesNancy JudayNoreen & Donald KeyRichard KinasKristen KominusCharles KriegerRoger & Carolyn LambSean & Jennifer LordenDoug & Janis MacutBeth & Richard MarsdenJane MartinDenise & Shawn McCormickCandice Renee McLarenDeborah MecklenburgRear Admiral Lloyd & Junia MoffitLaurie MonnierJames J. & Maryjo MontalbanoSarah & Dean MoorJessie & Theodore MorganJames MorrisErica MossholderElizabeth MoultonLori NaseefJanell NelsonRalph OchsmanMargaret & Kenneth O’GaraWilliam & Jane O’HaraAnn & Brad OrcuttSteven L. PageRobert & Ottie PaslayGreg PattersonPatterson/Langner familyJana & Hugh PeaceNorma PeaceCindy PodnerPaul PokladnikAnn RanfranzChris Riener

*Listed are Monetary Donations of $25 or more through 4th quarter, 2008. We are extremelygrateful for these and all other donations, fees, purchases, fundraisers and in-kind donationsnot recorded here. Note: For space consideration, 2009 donations under $100 will onlybe published in our year-end list. Cumulative $100+ donations and In honor or InMemory dedications will continue to be published in each quarterly issue

We do our best to accurately recognize donors. If you notice an error, please let us know.CFC (Combined Federal Campaign, federal-employee giving)

Jere RobertsonErica & Craig RobinsJessica RocheAmy & Barry RochusWilliam & Elizabeth RooneyJoanne M. RooseveltCarolyn & Thomas RussettThomas & Mary RyanRandolph SchaeferRoberta & Robert Schini, Jr.Paul & Angela SchmidtJessica & Frederick SchwerdEileen SerafinePat & Robin ShannonMichael SlusherMargaret SmithW.Wiesen SmithErin & Chrispin StephensJane StickneyBrent & Shelle SummersElizabeth SweeneyStanley & Betty TaylorBradley ThompsonKevin & Jennifer TrepaniTammy VanNessDwight & Carrie VaughnLynn Yetra & Donovan AmbrosePaula WagnerJon WellesLawrence Whitler

CCA Extended Family($500 +)

AnonymousMartha & James BrownJoe CherryDiana CritchlawSarah HallMark HazelgroveJohn “Jim” & Arleen HeirtyDana HeterRobert & Julie HornJonathan & Deborah KantorKaren KeenanPaul & Fran LeatherwoodMary LytleJames L. MurrayRobert NordnessPaul PokladnikMary & Stanley PondShareallKenneth Wilson

CCA Sponsor($1,000 +)

AnonymousMichael CarrKristine & George DaleDede & Darin DankelsonDr. Jeffrey FearonFred & Judi FreemanJane L. GoodmanJill GoreckiGreg LuetkemeyerDonald & Ann LucasPat McLaughlinBill & Christine (Condino)Mecklenburg

Robert Nordness

Dan & Denise PaulsonJohn & Charlene SmithLarisa Speetzen (auto donor)Courtney Vincent

CCA Benefactor($5,000 +)

Mark HagenGreg LuetkemeyerMargaret Patterson, IRA RolloverJohn & Sheryl PaulMagdalen Rose Berken, IRARollover

CCA Guardian($10,000 +)

Marie Florence Desrosiers TrustBequest

John and Patricia Dyer

Memorials /In-Honor GiftsLillian Albergo, in memory ofGeorge E. Shephard

James & Michelle Alheim, in mem-ory of George E. Shephard

Kevin Alicbusan, in honor of AaronNocum’s 1st Birthday, byCaroline Mingoa

American Society of PlasticSurgeons, in honor of ErinWilliams

Ms Billie Andrews, in memory ofAnne T. Hawk

Aware Consulting, in memory ofSeth Sturman

Trevor Bartley, in honor of Rocky,with love in our hearts

Renee &Wayne Baxmann, inhonor of Robbie Gorecki

Be Brody’s Angel giving, in honorof Brody Lucas

Borders Giftwrap Funder / BridgetCardell, in honor of QuentinZaengle

Deborah Breslow, in honor ofBaby Samuel Grossman

Mark Bronson, in honor of DuncanHopkinson

Angelic Bruns, in honor of Cher’sBirthday

Edward Bruns, in memory ofGeorge E. Shephard

Richard & Bruce Bulloss, in memo-ry of George E. Shephard

Doug & Ann Burgin, in honor ofRick Dornier

Larry Carpenter, in honor of Cher’sBirthday

Larry Carpenter, in honor of Cherat Christmas

Dorothea & George Casey, inmemory of George E. Shephard

Alexandra Chambers, in memoryof John Michael Chambers

Maureen Cleary, in memory ofGeorge E. Shephard

Patricia Conceicao, in honor ofAnne T. Hawk

Michael & Frances Cronin, inmemory of George E. Shephard

Angela Cronin & family, in memo-ry of George E. Shephard

Harvey & Venita Crowson, inmemory of George E. Shephard

Gerald & Ruth Dankelson, inmemory of Arthur Bertsch

Gerald & Ruth Dankelson, inmemory of Gordon Nielsen

Gerald & Ruth Dankelson, inmemory of Elaine Petsche

Grace & Gary Deily, in honor ofJeremy Dale

J. & C. Delmonte, in memory ofBetty Smith

Felicia Derosa, in memory ofGeorge E. Shephard

Patricia Despres, in memory ofGeorge E. Shephard

Camilla Hawk Diaz-Perez, in mem-ory of Anne T. Hawk

Melanie & Cosimo Dibari, in mem-ory of George E. Shephard

Mr. and Mrs. Gary Donahoo, inmemory of Anne T. Hawk

Eileen Donovan, in memory ofGeorge E. Shephard

Kathleen M. Dunn, in memory ofBill Dunn

Mr. and Mrs. John Dyer, in honorof granddaughter, FlorenceHorn

Gary & Karen Evens, in memory ofGeorge E. Shephard

Ben & Patricia Farmer, in memoryof George E. Shephard

Dr. Jeffrey Fearon, in honor of col-leagues

Thomas & Shelley Flores, in honorof Braxton Flores

Friends of Jeremy giving, in honorof Jeremy Dale

Nellagene & Leigh Gilbert, inmemory of George E. Shephard

Greenwich BPO Elks, in memory ofGeorge E. Shephard

Garrick & Jennifer Groves, inhonor of Ella

Alfred Harf, in honor of ChaseIngram

Hearts and Hands O.C.C.L., inhonor of Kathryn Hopkins

Jim & Arleen Heirty, in memory ofMargaret Lux

Jim & Arleen Heirty, in memory ofLois Witkowski

Jim & Arleen Heirty, in memory ofDave Cody, Sr.

Jim & Arleen Heirty, in memory ofThomas Wachholz

Jim & Arleen Heirty, in memory ofThomasina Mastralucco

Jim & Arleen Heirty, in memory ofCarol Steinmetz

Highland Elementary Denim Day,in honor of Justin Prince

Angela Houlihan, in honor ofMegan Cronin

Law Offices of Steve Howen, inhonor of Brian Scott Cook

Edward Howland, in memory ofGeorge E. Shephard

Ingram Family Holiday Giving, inhonor of Chase Ingram

Donald & Mary Jones, in honor ofthe Gossett Family

Nancy Juday, in memory of PaulineBurzio

Vasiliki Karagianis, in memory ofAnne Hawk by Dr. & Mrs. M.Karagianis

Sarah Erb & Andrew Keller, inhonor of Olivia Sanborn

Joan Kiesendahl, in memory ofGeorge E. Shephard

Arthur & Alison Kontaxis, in mem-ory of George E. Shephard

Alison & John Larson, in honor ofChase Ingram

Claudia Lozano, in honor of SethAaron Nocos

Donald & Ann Lucas, in honor ofBrody

Donald & Ann Lucas, in honor ofBrody Lucas on our 43rdAnniversary

Lynbrook Fire Department, inmemory of George E. Shephard

Debra Macut, in honor of theMacut Family at Christmas

Doug & Janis Macut, in honor ofDr. Sava & Dottie Macut atChristmas

Melissa Manos c/o BPI, in memoryof Anne T. Hawk

Donald & Charlene MacGregor, inmemory of Anne T. Hawk

Thomas & Madeline McAdam, inmemory of George E. Shephard

Denise & Shawn McCormick, inmemory of George E. Shephard

Candice Renee McLaren, in mem-ory of Xavier Mack

Ellen McPadden, in honor ofJeremy Dale, from Aunt Ellen

Bill & Christine Mecklenburg, inhonor of Morgan

Deborah Mecklenburg, in honor ofMorgan from her grandparents

Laurie Monnier, in honor of JeremyDale

Jim & Maryjo Montalbano, inhonor of their daughter,Jennifer’s 33rd birthday

Jessie & Theodore Morgan, inhonor of Morgan Baldwin fromNana

Phyllis & Lee Morris, in memory ofGeorge E. Shephard

Alison Morrissey, in honor ofRachael Morrissey

Lori Naseef, in honor of Howard &Suzanne Pann

Ann Nesbitt, in memory of GeorgeE. Shephard

Hope & George Nohejl, in honorof Maggie Berger

Ralph Nuckols, in honor of JeremyDale

Margaret & Kenneth O’Gara, inmemory of George E. Shephard

William & Jane O’Hara, in memoryof George E. Shephard

Glenn & Diane Otto, in honor ofSarah Eicher

Norma Peace, in honor of Beverly& Jim Butera

Pfeiffer Support Group, in memoryof Seth SturmanFamily of Ava BeelerFamily of Ashley BockFamily of Caroline DaleFamily of Ryan HollidayFamily of Olivia SanbornFamily of Wade White

Carol Quaranto, in memory ofGeorge E. Shephard

Andrea Richard, D.O., in memoryof Ram Nath Pathlak

Jere Robertson, in honor of JaneMonell

Cynthia Robideau, in memory ofGeorge E. Shephard

Jessica Roche, in honor of all CCAkids

Joyce Ronczka, in memory of JoeRonczka, from his family

Gail & Walter Rook, in honor ofScott Guzzo

William & Elizabeth Rooney, inmemory of George E. Shephard

Jennifer Rosenberg, in honor ofSuzanne Chiasson

Carolyn & Thoms Russett, in mem-ory of George E. Shephard

Thomas & Mary Ryan, in memoryof George E. Shephard

Mr. & Mrs. Merlle Sampson, inmemory of Anne T. Hawk

Iris Schell, in honor of CarolineDale

Mr. & Mrs. Leroy Schroeder, inmemory of Anne T. Hawk

Jessica & Frederick Schwerd, inhonor of Megan Cronin

William Schwerd, in honor ofMegan Cronin

William Schwerd, in memory ofGeorge E. Shephard

Helen Shannon, in memory ofGeorge E. Shephard

June &William Shea, in memoryof George E. Shephard

Kelly & Josh Silverman, in honor ofZach’s Birthday

W.Wiesen Smith, in memory ofGeorge E. Shephard

Jane Stickney, in honor of CarolineDale and in the names ofPatricia Powell & Iris Schell

William & Nancy Suwalski, inmemory of Marvin Mandel fromBill & Nancy

Swarnam Subramanian, in memo-ry of Anne T. Hawk

Robert Vanni, in honor of CherLeona Vitolo, in honor of ZachBordonaro

Daniel Walker, in honor of Cher atChristmas

14

Karen Waring, in memory ofGeorge E. Shephard

Marie Waring, in memory ofGeorge E. Shephard

Diana Weber, in honor ofThompson B.Weber

Dennis Webster, in honor of Jack &Tom McCalls’ 12th Birthday

Jon Welles, in honor of JasonWelles

John & April Wharton, in honor ofAmber & Brooke McAnnely

Barbara J.Wiedenman, in memoryof Jennifer Walker from Barbara& Anna

J.B. & Cynthia Wills, in honor ofReed Wills

Corporate /Foundation Gifts

CCA Corporate /Foundation Friends(up to $1,000)

AT&T United Way EmployeeContributions

America’s Charities (EmployeeGiving Funds Management)

American Express Charitable Fund(Matched Gifts of Janell Nelson)

Aware Consulting by DeniseNewbould & The friends of SethSturman

Banco PopularBank of America (United WayCampaign Employee Giving)

Century Lodge No 492, Order ofOdd Fellows

Cleveland Bakers Local No.19CFC BaltimoreCFC Central Florida AreaCFC Central TexasCFC Chicago AreaCFC Coachella Valley TwentyninePalms Area

CFC Eastern MassachusettsCFC, Fresno CountyCFC Global Impact, OverseasCFC LA AreaCFC Maricopa CountyCFC Middle Tennessee / NashvilleCFC New OrleansCFC New York CityCFC Niagara FrontierCFC Philadelphia AreaCFC Southeastern ConnecticutCFC Southwestern IdahoCFC Yellowstone CountyDepartment of Social Services,Sisseton, SD

Direct Strategies by Dana HeterDream Kitchens, Inc. by Keven &Terri Schmidt

Epic Systems, Inc.Financial AlternativesFunding FactoryGonser & Gonser by Cleo GonserGoodSearch (search tool incen-tives)

Greenwich BPO ElksHearts and Hands O.C.C.L.Home Depot Foundation (Matchedgift of Doug Hopkinson)

Italian Club of DallasJim Wade InvestmentsJohn Ryden ConstructionJustgive (donors listed separately)Kroger (purchases percentageincentives)

Law Offices of Steve HowenLynbrook Fire DepartmentMission Fish (Ebay donations)Nature’s Enterprises dba Euronatby Michael Carr

Network for Good (donors listedseparately)

Office Depot (Rebate)The Ochsman Foundation, Inc. byRalph Ochsman

PASCO (Personal AssistanceServices of Colorado)

Pfizer (United Way CampaignEmployee Giving)

The Prudential Foundation(Employee/Matching Gifts)

The Prudential Foundation(Matched Gift of DianaCritchlaw)

Safeway, Inc. (purchases percent-age incentives)

Sarah Hall Productions by SarahHall

Schoolpop (online purchases per-centage program)

Steam Clean Pressure Wash byTodd Rademacher

Triangle FoundationUnited Way of Brevard (Donor-Directed Donations)

United Way CA Capital Region(Donor-Directed Donations)

United Way of Cedar Valley(Donor-Directed Donations)

United Way of Central Maryland(Donor-Directed Donations)

United Way of Fresno (Donor-Directed Donations)

United Way of Metro Dallas(Donor-Directed Donations,CFC)

United Way of Long IslandUnited Way of SoutheasternPennsylvania (Donor-DirectedDonations)

United Way of the Southern Tier(Donor-Directed Donations)

Verizon (Matched gift of RobinChupurtinov)

A grant from the Gil & DodyWeaver Foundation

Wellpoint Foundation FundsManagement

Wells Fargo (Employee Giving)Zion United Church of Christ

CCA Corporate /Foundation Sponsors($1,000-$5,000)

Aptus Partners LP / John RomeroA grant from The Alix BrotmanFoundation

A grant from Max & VictoriaDreyfus Foundation

A grant from The ClampittFoundation

Glaxo Smith Kline (Matched gift ofGinger Henshall)

A grant from The Elena MeliusFoundation

The Redwoods Group (MatchedGift of Bill Mecklenburg)

Charitable Auto ResourceS (CARS)vehicle sales incentive program

KLS Martin LPMargaux & Associates / Jim ButeraMatching Grant funds from Sam’sClub

Grants from Starbucks CorporationRecommended grants fromTriangle Community Foundation

United Way of Tucson andSouthern Arizona (Donor-Directed Donations)

Vivo Brothers, Inc.Wal-Mart Corporation FoundationZelle Hofmann Voelbel Mason &Gette LLP / Tate Gorman

CCA Corporate /Foundation Partners($5,000-$10,000)

A grant from the American Societyof Plastic Surgeons, in honor ofErin Williams

Association Works by John &Sheryl Paul

A grant from Perot FoundationA grant from StemmonsFoundation

CCA Corporate /Foundation Partners($10,000 or more)

A grant from Horace CabeFoundation

A grant from Elsie & MarvinDekelbaum Family Foundation

A grant from Jorge PosadaFoundation

Grants from May and StanleySmith Charitable Foundation

FundraisingEvents

Up to $1,000

Alexa’s Appeal for CCA / DeniseRast, CCA Volunteer

Annual Arbonne Sales for CCA /Cheryl Swearingen, CCAVolunteer

BeautiControl / Rose Seitz, CCAVolunteer

Brittany Steven’s 18th BirthdayAppeal / Harlena Morton

Borders Books Giftwrap for CCA /Bridget Cardell, CCA Volunteer

Cash Collection Cans placed forCCA / Kim Rogers, CCAVolunteer

Craniofacial Acceptance Month“Hanger” Sales / Carrie Ingram,CCA Volunteer

Craniofacial Acceptance Month“Hanger” Sales / DarnellMenard, CCA Volunteer

Craniofacial Acceptance Month“Hanger” Sales / JaciSamhammer, CCA Volunteer

Crop for CCA / Kellie Dowd, CCAVolunteer

“Current.com” Catalog Fundraiser/ Mark & Laurel Sanborn, CCAVolunteers

Chase Ingram Birthday for CCADenim Day / Taylor Bishop, CCAVolunteer

Evening of Giving / Seitz Family,CCA Volunteers

Girl Scouts Suncoast Council 1369Cookie Fund Giving / KatieMoore, CCA Kid

Anne T. Hawk Memorial GivingHighland Elementary SchoolDenim Day / Faculty

Ingram Family Holiday Giving inlieu of Gift Exchange

Ink / Cell Recycle for CCA / CCAFamilies & Friends

Italian Club of Dallas Collectionfor CCA

Lemonade Sale for CCA / CCA KidWade White’s Super Sibs,Antasia & Destiny

Rock Sale for CCA / Antasia Hart,CCA Super Sib

Sarah Orne Jewett Collection forCCA/ Mary Zimmer, CCAVolunteer

Smiley Face Campaign Collections/ Peggy McDannel, CCAVolunteer

Tony Orlando Concert Collection /Guzzo Family

Yard Sale for CCA / Kathie & MarkSteinagel, CCA Volunteers

$1,000-$5,000

Austin’s Luau of Love for CCA /Tamara Freeman, CCAVolunteer

Be Brody’s Angel / Jennifer Lucas& Family, CCA Volunteers

Beauty School Funder for CCA /Rebecca Lee, Coordinator inname of Suzanne Ronczka

Robert Blake’s 60th Birthday Event

Border’s Books Giftwrap for CCA /Margaret Jenna, Dalton Family,CCA Volunteers

Moulton Family Fund AppealsPenny Drive for CCA / LincolnHeights Elementary, Greenville,MI / Angela Marcum

Pete’s Scramble unevent /Dankelson Family, CCAVolunteers

Retreat “Chance Raffle” held atCCA’s Annual Family Retreat inMyrtle Beach, SC

Saint Patrick’s School Denim Day /Pete Dankelson, CCA kid

George Shephard MemorialDonations / Cronin Family

Starbucks Community Clean-Up /Emily Tipton, Organizer w/JanaPeace, CCA Volunteer

Starbucks/United Way Youth Dayof Caring / Freddie Seitz, CCAVolunteer

“The Gift” Holiday Concert /Angela Cronin, CCA Volunteer

White Buffalo Bike Fest Raffle /Annie Reeves, CCA Volunteer

Yard Sale for CCA / Kathie & MarkSteinagel, CCA Volunteers

Nick Wiese’s High School FundAppeal / Nick Wiese, CCAVolunteer

$5,000 or more

Ryan’s Road for CCA / GulichFamily, CCA Volunteers

Seth’s Stride / Swihart Family,Stacy Swihart, CCA VolunteerCoordinator

$10,000 or more

Jylian’s Links of Love GolfTournament

Wendelyn’s ‘Course of Dreams’Golf Challenge / WendelynOsborne, CCA Volunteer

$25,000 or more

Cher ConventionChocolate Festival for CCA / inname of Seth Swihart, RickChiavari, CCA VolunteerCoordinator

Friends of Jeremy Golf Tournament/ Dale Family, George, Kristine,Jeremy, Tommy, Cody

Henry’s March / Johnson Family,Rachel, TJ, Lauren, Henry

Heroes 4 Hope Gala / JorgePosada Foundation / CCADonor, Families & StaffContributions

15

Honorary Chairperson:Cher

Board of Directors:Rose Seitz, CHAIR, Youngstown, OHKurt Allen, JD, CPA, CFP, WMA,Canfield, OH

George Dale, Corning, NYTony Davis, DMD, Tuscaloosa, ALDonna Gossett, Cullman, ALPaula Guzzo, Evansville, INBill Mecklenburg, Morrisille, NCErica Mossholder, Tuscaloosa, ALRobin Williamson, Carrollton, TXStephen Wright, San Francisco, CA

Medical Advisory Board:Jeffrey Fearon, MD, CHIEF ADVISOR

CCA Network Editor:Kelly Liszt

CCA Network Design andProduction:Robin Williamson, WilliamsonCreative Services, Inc.

Executive Director:Charlene Smith

Program Director:Annie Reeves

Development Director:Jill Gorecki

Administrative Coordinator:Jana Peace

VOICE 214-570-9099FAX 214-570-8811TOLL-FREE 800-535-3643URL CCAkids.com or CCAkids.org

NONPROFIT ORGU.S. POSTAGE

PAIDRICHARDSON, TXPERMIT NO. 128

children’s craniofacial association13140 Coit Road, Suite 517 • Dallas, TX 75240

The views and opinions expressedin this newsletter are not necessarilythose of CCA.

If you no longer wish to receive thisnewsletter, please email your wishes toAReeves@CCAKids.com or mail thelabel to the CCA office and ask that itbe removed from the mailing list.

If you know of someone whowould like to be placed on themailing list please forward to ustheir name and address.

special thanks to C.R. Conant, Josh

Hurst, and Rod Zuniga, our friends at

Dallas-based Liquid Logixx Studios

(liquidlogixx.com), and composer Mark

Menza (menzamusic.com), whose

combined artistic expertise in design and

production of a 30-second-spot PSA about

Children’s Craniofacial Association, made

for an in-kind donation to save CCA tens

of thousands of dollars in prohibitive costs

(i.e., we could never have done this

without them!) The piece is duplicated for

national distribution! See it soon!

3cheersf o r v o l u n t e e r s !

CCA’s Jill Gorecki thanks C.R. Conant duringhis recent art show in Dallas. C.R. wasinstrumental in the development of ourPSA project.

Liquid Logixx President, Josh Hurst (L), lentcreative "goodwill" and award-winningcomposer, Mark Menza, added the guitarscore to our PSA.

RETURN SERVICE REQUESTED