Building research collaboration
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Transcript of Building research collaboration
Dr Mhoira Leng Prof Scott MurrayDr Liz GrantDr Scott LongDr Elizabeth NamukwayaDr Julia Downing Dr Joanna Dunn
Building Research Collaboration
‘Living and dying well’
Palliative Care Unit■ Vision
■ advocacy ■ clinical support■ education and training■ research■ centre of excellence
Programme Aim
To support the development, delivery and evaluation of a new integrated model of “generalist” palliative care for sub-Saharan Africa which provides an integrated framework for a continuum of care between a national referral hospital setting hospital and the broad national and international (eg Sudan) community it serves.
3 strands; one overall vision■ To support, develop, deliver and evaluate
palliative care in a hospital setting and ensure its integration into the community
Relevance: ■ For Uganda■ For Sub Saharan Africa ■ For South-North sharing
Collaboration portfolio
Patient needs and perspectivesListening and hearing■ describing different illness trajectories ■ cultural expectations / attitudes towards end of life ■ social, psychological and spiritual needs . ■ decision making and the choice of place of care and
death Relevance■ underpin a palliative care approach■ profile the nature of end stage chronic disease ■ understanding context and cultural and traditional
perspectives
Staff needs and perspectives■ What are the knowledge, skills and confidence gaps in
delivering palliative care?■ What are the challenges and strengths?
■ systems / cultural / traditional / beliefs
Relevance■ establish educational need ■ deliver and evaluate a multi-disciplinary, multi dimensional
training programme■ identify and address system and resource challenges and
build on strengths ■ evaluate clinical interventions■ mutual learning across the collaboration
Frameworks for a continuum of care: a pathways response■ How are patients with palliative care needs
identified ?■ How is palliative care provided?■ What are the barriers and blocks to delivering
quality and continuity of care? ■ What, and who influences the decision making
process? Relevance■ Develop an holistic and continuous model of care
for life limiting illness
Summary Research is a priority – (90/10 divide)
Facilitates Advocacy at national level Encourages Donor interest Creates momentumGives direction and encourages national ownership Increases staff motivation and local engagement Builds staff capacity - transferable skills
What can we do
Work with colleagues to identify local capacity, identify partners, create structured collaboration, ( THET manual)
Provide succinct summaries of global initiatives / new research/ - help to translate knowledge into practice, echoing questions that are being asked
Provide research training events Information about grants – connecting to global programmes Turn research into papers, turn research into practice, turn
practice into policy, turn policy into research BUT more importantly - research is about making a
difference to peoples’ lives
Summary
Don’t guess needs
Don’t replicate existing programmes
Coordinate with others
Enjoy the privilege and the responsibility of being a guest in a host country, and a global partner with colleagues
Don’t do nothing
Future plans
Building excellence: strengthening systems■ Learning exchange■ A collaborative MSc Palliative Care
((Distance Learning) between Hospice Uganda, Makerere, Edinburgh and Yale Universities
■ Shared teaching modules ■ Mentorship programme