Brighton and Hove Local Involvement Network (LINk)

Farewell EventThursday 14th March, 2013

10am to 3pmBrighthelm, North Road, Brighton, BN1 1YD

The Mayor of Brighton & Hove, Cllr Bill Randall

Welcome

Robert Brown, Chair of the LINk

Engagement: the theme of the day

Angie Konrad, Facilitator

Housekeeping and introduction to the day

Magda Pasiut, CVSF Development Officer and ex-LINk Volunteer

Rachel Travers, Chief Executive, Amaze

Sylvia New, LINk Steering Group Member

Presentations about LINk engagement

THE PURPOSES OF THE GROUP ARE:•to support women who have emigrated from Poland and are currently living within the Sussex area to integrate into local society;•to raise awareness of health services among Polish women and their children;•to provide information on health, education, housing, family support, social care, employment;•to work in any areas that SPWG feels will help Polish women.

HEALTHY MUM, HEALTHY CHILD PROJECT

WHERE YOU CAN FIND US

Facebook: www.facebook.com/sussexpolish.womensgroup

Website: http://portbrighton.co.uk/index.php?option=com_content&view=section&layout=blog&id=14&Itemid=303

Email: sussexpolishwomensgroup@gmail.com

Magda Pasiut, CVSF Development Officer and ex-LINk Volunteer

Rachel Travers, Chief Executive, Amaze

Sylvia New, LINk Steering Group Member

Presentations about LINk engagement

Amaze and B&H Link

• Amaze (via Parent Carers’ Council) tried to encourage the Link to consider the needs of children and young people with disabilities and special needs (given high incident, high cost users of city’s health services)

• Parent Rep unable to continue to attend steering group but have fed in various papers/reports

• Developed a partnership pilot to reach out to isolated parent carers in two neighbourhoods

Total CYP in B&H with significant disability/special need (3,400)

Existing Families on theCompass Database

(1,834 - 54% of total)

PaCCMembership

(200)

Partnership Outreach Pilot to Parent Carers – Engagement Model

Moulsecoomb Estate - TDC

Knoll Estate - HKP

PaCCPartners 8x

Parent Support Groups

Hidden/isolated familiesTargeted for PartnershipOutreach with Trust for Developing Communities & Hangleton & Knoll Project

Gap analysis performed

Direct Support:Referrals to Amaze services & training,

CDWs, GPs, other services

Engagement & Collective Voice:Set up 2 x parent

support groups

INTELLIGENCE AT:Disabled Children’s, CAMHS & SEN Partnership BoardsHealthwatch/LinkCity-wide Health ForumHealth & Wellbeing Board

OUTCOMES: Sense of belonging, reduced isolation, improved confidence, health & wellbeing of carer, increased knowledge/access to other services e.g. housing, benefits & support for child e.g. education

Results so far

Moulsecoomb Hangleton & Knoll

No. households ‘door knocked’ 1,500 1,800

No. households opening door 200 300

No. households spoken to identifying with being the parent or grandparent of a child with SEN

52 (25%) 34 (11%)

No. at coffee morning ‘new’ to Amaze i.e. not on Compass 13 7

No. supported (or to be supported) to complete a DLA 6 8

No. supported to join the Compass 11 6

• "You can never get an (GP) appointment.“

• “My GP doesn't ‘get’ my son's SEN at all so rather than 'get a cab there, I go to A&E'

• “At my GPs you have to queue up for hours with your child with SEN in the cold and it's first come, first served."

• "My daughter is turning 16 at the end of this year and I don't even think her GP knows that she is on the autistic spectrum. He will be responsible for her  health! I always wonder whether to remind him."

• “We don’t want to have to wait 2 weeks for a doctor’s appointment..”

• “It feels like my daughter is 'caught’ between Seaside View and CAMHS” 

• “Some health visitors are good, others aren’t. There needs to be better consistency in their service.”

• “We’d like alternative treatments/healthcare for our child on the NHS…”

Intelligence gathered so far about Health

• Regular contact with those attending the coffee mornings/support groups but also those we came into contact with via the ‘door-knocking’

• We can help communicate the role of the Link and the transfer to Healthwatch – verbally and via newsletters/mailings

• We can support the new parent support groups to identify and feed up health and well being issues about their disabled child and themselves as carers to Link/Healthwatch/PPG

How project supports B&H Link?

“Some health visitors are good, others aren’t. There needs to be better consistency in their service.”

Magda Pasiut, CVSF Development Officer and ex-LINk Volunteer

Rachel Travers, Chief Executive, Amaze

Sylvia New, LINk Steering Group Member

Presentations about LINk engagement

My Life as a

LINk Volunteerby

Sylvia New

From this ..

to … or ?

How do I do this?

Local services

Residential Homes

Computers – so easy a child could…

http://www.gifs.net/image/Everything_Else/Sleep/Sleeping_soundly/8322

Clare Delap, Involvement Manager

Care Quality Commission

Working Together

3131

Clare Delap, Involvement ManagerJudy Gossedge, Inspector

Care Quality Commission and LINks

3232

Today you will hear about:

• CQC and what we do

• How we have worked with LINks

• Our plans for working with local Healthwatch

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Single, integrated regulator for health and social care

Responsible for assuring safety and quality

Setting clear standards for care providers via registration

Inspection-led model, informed by information about risk

Clear focus on outcomes via patient experience

Enforcement powers – including closure

The background…

Parliament

Size of the challenge…

Primary medical services

10,000 locations

NHS Trusts

2,300 locations

Independent healthcare

2,500 locations

Adult social care

25,000 locations

Independent ambulances

300 locations

Primary dental care

10,000 locations

Outpatient appointments

70 million

People using adult social care services

1 million

Dental treatment – courses of treatment in 2011/12

10 million

National Standards of Quality and Safety

Our focus:

People focused

Outcome based

Plain English

The standards are mapped to six outcomes:

Involvement and information

Personalised care, treatment and support

Safeguarding and safety

Suitability of staffing

Quality and management

Suitability of management

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CQC and LINks

CQC and LINks – the story

• CQC has a statutory duty to work with LINks – this transfers to Local Healthwatch

• Over the last 3 years, we have built relationships and shared information with LINks across the country

• We have involved LINks in CQC’s national work

• 20 LINks have worked with us to produce three briefings on working together

• Enter and view reports have been one of the most important sources of LINks information for CQC

• LINks have used CQC information to inform their work

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Quotes from CQC Inspectors

“The LINk did some enter and view visits focused on patient

dignity and protected mealtimes at a local trust which assisted us in assessing the trust’s compliance

with the standards.”

“The LINk’s information about an NHS Mental Health Service Ward led to us undertaking a responsive

review of xxx services.”

“We have used LINk enter and view reports to inform our inspection programme”.

What next – CQC and Healthwatch

• Healthwatch England has been established – CQC will work with them

• CQC will build local relationships with each local Healthwatch organisation from 1st April

• We hope Local Healthwatch will share enter and view plans, findings from surveys, and we can share information from our work

• CQC will publish a guide for local Healthwatch and start a new e-bulletin for local Healthwatch from April

• We will build on the learning from our work with LINk

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Keep in touch

CQC website includes all inspection reports on local services:

www.cqc.org.uk

A guide for LINks: working with CQC (2011) three briefings for LINks with learning with Healthwatch (Sept 2012) and LINks Bulletins, are avaliable at:

www.cqc.org.uk/localvoices

Please email the Involvement Team to keep in touch with CQC as you move to Healthwatch:

Involvement.edhr@cqc.org.uk

Email or phone our enquiries line

enquiries@cqc.org.uk 03000 616161

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Comfort Break

Workshops

Workshop 1: Community HealthcareWorkshop 2: HealthwatchWorkshop 3: Hospital ServicesWorkshop 4: Mental HealthWorkshop 5: Primary Care

Lunch

Angie Konrad and You!

Feedback from workshops

Michelle Pooley, Healthwatch Commissioner, City Council

Sally Polanski, Chief Executive, CVSF

Healthwatch, Brighton and Hove

Development of Healthwatch Brighton & HoveMichelle Pooley – Brighton & Hove City Council14 March 2013

The Journey to where we are today?engaging people in Local Authority to Consultation & Engagement

developing a ensure local developed using anlocal Healthwatch healthwatch equality impact assessment

set up

Underpins specificationOpen process to decide provider

Timescale: 1st July to 5th October 2012

Numbers: 431 stakeholders attended 40 workshops and events

215 residents responded to the survey questionnaire (112 online and 103 via hardcopy).

Stakeholders: General Public, Patient Participation Groups, Communities of Interest Groups and Organisations, Neighbourhood Groups, Service Users and Self Help groups, LINk B&H, Young People, Councillors, Small Businesses, Statutory Workers, Health, Social Care and Voluntary and Community Sector Organisations

Priorities66%, n=138 ‘challenge poor health and social care services’ 64%, n = 138 ‘seek and listen to the views and experiences of all health and social care service users’

were the most important things for Healthwatch to be doing.

Information about Health & Social CareOf 205 replies of respondents prefer to get information about health and social care services from the ‘website / online’ and ‘GP surgery’ (48%). This is also where most respondents currently get information.

 Just under a third of respondents would prefer to get information from either a ‘staffed telephone line’ (32%) or ‘face to face at a drop in centre’ (30%). Currently only 6% to 7% get their information this way.

Involvement

 45% of respondents are dissatisfied with their opportunity to have their say on issues affecting local health and social care services. This is twice as many as are satisfied which were 23%.

76% of respondents disagree that they are able to influence decisions that affect local health and social care services, three times more than those that agree which were 24%.

Having your say

 69% of respondents said that they would be very or fairly likely to become involved in Healthwatch as a formal member by ‘receiving information so I can choose when/how to get involved’.

Three times as many as would be very or fairly unlikely to get involved.

Equality Data

 Preferred method for sharing their views67% was via online questionnaires 57% use of a Healthwatch website44% attending Healthwatch community events40% attending informal workshops

Your views and Experiences

Age: Although still underrepresented of young people, numerically and proportionally more young people have responded

Gender: Female respondents are over represented.Ethnicity: Likely to be under represented of Black & Minority Ethnic CommunitySexual orientation: Likely to be representative of the LGB communityWith a health problem or disability: Likely to be over represented

Mandate from the Consultation

• Prioritise intelligence gathering and synthesis

• Provide a credible voice– Tap into existing networks– Outreach to patients and social care users– Bring communities of interest together– Work with the Voluntary and Community Sector– Cascad information to citizens

• Make an impact on the Health and Wellbeing Board– Generate context and information for the JSNA– Provide real time local experiences of services e.g. through Enter & View

and PLACE to inform service improvement and better commissioning– Highligh service failures in timely and appropriate fashion

• Feed into the National organisation

– provide leadership and support to Local Healthwatch organisations i.e. set operational standards, standard protocols

– propose that CQC investigate poorly performing services

– advise Secretary of State, NHS Commissioning Board, English local authorities, Monitor and CQC itself

Healthwatch England

Brighton and Hove

Michelle Pooley, Healthwatch Commissioner Brighton and Hove City Council

Sally Polanski, CEOB&H Community and Voluntary Sector Forum

Healthwatch objectives• To obtain the views of people and make views known• To promote and enable the involvement of local people in the

commissioning and provision of local health and social care services• To recommend investigation or special review of provider services• To provide advice, signposting and information• To make reports and recommendations about how services could or should

be improved and require a response from providers• To play an integral role in the preparation of the statutory Joint Strategic

Needs Assessments &joint health and wellbeing strategies• To provide a professional Independent NHS Complaints Advocacy Service

• Independent watchdog for health and social care services

• Benefit patients, users of services, carers and the public by helping people to get the best out of services

• Hub and spoke model

Our vision for Healthwatch Brighton and Hove

Key features

Timeline for development

• Contract begins: April 2013• Transition from LINk to Healthwatch and

transfer of ICAS service: April-June• Governance framework and shadow

organisation in place: October• Healthwatch fully independent: April 2014

Get involved

• LINk participants transfer to Healthwatch• More information soon on our approach and

opportunities to get involved• Meanwhile, stay in touch and keep telling us

what service improvements are required

community@cvsectorforum.org.uk01273 810235

Robert Brown

Saying Thank you

Angie Konrad

At the end of the day…