Digital Storytelling 1 DIGITAL STORYTELLING A Graduate Review ...
Being and Belonging How art and storytelling …...paent Silia, 23, with the chance to take control...
Transcript of Being and Belonging How art and storytelling …...paent Silia, 23, with the chance to take control...
ProjectcoordinatorHealthandArtsResearchCentre(HARC)Incusedenvironmentalbehaviourresearch(Zeisel2006),communityculturaldevelopment(CameronandGibson2001)andsustainableheritagemethodologies(Galia2006)todeveloptheartsandcultureprogram.
TheprojectwasprimarilyaconsumerandcommunityengagementprojectratherthanaresearchstudybutparHcipantsself-reportedsignificantbenefits,includingimprovedqualityoflife,whichhavebeendocumentedbyHARC.
CriHcalsuccessfactorswerethehighlevelofengagementfromconsumersandstaffandtheuseofanon-tradiHonalarts-basedengagementmethodologytoimproveclinicaloutcomes.TheprojectwasmappedagainsttheengagementspectrumdevelopedbytheInternaHonalCentreforPublicParHcipaHon(IAP2)andmodelscurrentbestpracHceinaconsumer-ledmodelofcommunityparHcipaHonwhichistradiHonallyverydifficulttoachieveinapublichealthseOng.
Theprogramhadfourindividualprojects:
Imagine!Amixedmediaprojectusingphotography,videoand
dialysisconsumables
BubblesGalleryAninternalfeatureusingdialysiswater
CulturesofBlacktownAboriginalwelcomepainHng
LivingLibraryphotoandvideoprojectwhereolderpaHentssharedtheirexperiencewithyoungadultpaHents
BeingandBelongingisanexciHng,engaging,collaboraHveconsumer-ledartsprojectattheRegionalDialysisCentreatBlacktownHospital.
ItdirectlyencouragespaHentstogetmoreinvolvedintheirhealthcareandimprovetheirqualityoflifebyexpressingtheirexperiencethroughart,anddirectlyinfluencingtheircareenvironment.
QRcode Facebook/BMDHProject Twi[er@BMDHProject
Being and Belonging How art and storytelling transformed the experience of dialysis for patients at Blacktown Hospital’s renal centre
The Program
BeingandBelongingwascreatedbypaHents,families,arHstsandstaffaspartof
theNSWGovernment’sBlacktownandMountDrui[Hospitals(BMDH)
ExpansionProject.
AddiHonalsupportwasprovidedbyBlacktownArtsCentrethroughthePat
ParkerResidencyProgram.
AniniHalworkshopinvolvingabout100people(includingpaHents,carers,
friends,staff,communityandarHsts)generatedtheconceptsfortheartworks
andendorsedtheobjecHveofusingarttoenhancethephysicalenvironment,
raiseawarenessofchronicrenaldiseaseandimprovequalityoflife,especiallyfor
youngadultslivingwithdialysis.
Snapshot
! TheprogramincreasedtheparHcipaHonofyoungadultsondialysistreatmentinthesupportgroupwhichhasbeenbeneficialformaintainingsocialconnecHonandmiHgaHngisolaHonduetochronicdiseasewhichisobenseenasan“oldperson’sproblem”.
! StaffandpaHentsreportedthattheatmosphereofthecentrehasbeenextremelyposiHveandcollegiate,withtheartworksprovidinga“talkingpoint”onwhichtoconnect.
! UsingacreaHve,arts-basedmethodologyhelpedbreakdowndisHncHonsbetweenstaffandpaHents,youngpeopleandolderpeople,Aboriginalandnon-Aboriginalpeople.
! Stafffeelmoreconfidentaboutembracingnewapproachestocare,tothinkmorecreaHvelyandtoengagemorecloselywithpaHentsandcarersinthedeliveryanddesignofservices.
! Theprojecthasbeensosuccessfulthatit’sprovidedamodelforconsultaHoninStage2toincorporateartandculturalelementsintoamajornewcommunitydialysiscentreatMountDrui[.
Morethan300engagementinteracHonsduringtheproject
Peoplecurrentlydependentona[endingourdialysiscentres
Smallpercentageunder25butgreaterlifeHmelifestyleimpact
88regulardialysispaHentsatBlacktown
IsolaHonandlonelinessaffectwell-beingandtreatmentcompliance
20%AboriginalandTorresStraitIslander
650
Benefits
"“Itwasquitetherapeu5cforstafftodosomethingenjoyablewithpa5entsandtocreatesomethingbeau5ful…it’simprovedourcommunica5onskillsandgivenussomethingincommon.Thegalleryislikeourwater-cooler…it’saplacetogettogetherandtalk.”
TaHana,pre-dialysisclinicalnurseconsultantdescribinghowpaHentsandstaffcreaHvelyre-imaginedcommonclinicalconsumablesintominiworksofartwhichwerethendisplayedinnichesintheBubblesGallery.
Instagram@BMDHProject bmdhproject.health.nsw.gov.au
Imagine what you could do A new direction: Silia’s story
The water cooler effect
The fine print
Tagusinyourposts#BMDHProject
Scantoseetheinterviewsatbmdhproject.health.nsw.gov.au
BeingandBelongingprovideddialysispaHentSilia,23,withthechancetotakecontrolwhenshetookontheroleofdirectorforthestorytelling
projectLivingLibrary.WithfellowYoungAdultsonDialysisSupportmemberFrances,sheinterviewedotherpaHentstocreatephotoandvideostoriestohelpdemysHfydialysis.Theprojectrevealedseldom-
heardstoriesofloss,hopeandexperienceandprovidedapintofconnecHonbetweendifferentgeneraHons.ThevideointerviewsandsHllphotographsformpartofthephysicalandonlinegalleryfortheproject.“MycondiHondoesn’tdefineme.NorisitthemostinteresHngpartofme,”Siliasaid.
PaHentsFrances(above)andHarry(right)interviewedfortheproject.
“Ifyouworry,yougodown.Youhavetobestrong.Thisislife…thisisnotourchoicebutithappened.Youcan’tdoanything.I’malright.Icomehere,Ijoke,Ilaugh.Mostpeopleloveme…thenurses…!”Harry,haemodialysispaHent
#ScantoseemoreaboutIndigenousarHstPeterWilliams’welcomepainHngCulturesofBlacktownwhichwelcomeseveryonetothecentre,promoHnginclusionandunderstanding.
#RouHneandboredomamongstregularpaHentswasaddressedbycreaHngtemporaryexhibiHonspacesintheBubblesGallery.Itschangeabledisplayspacemostrecentlyshowcasedclinicalconsumables(e.g.gauzeswabs,forceps)re-engineeredintoplayfulandengagingsculpturesbytheYoungAdultsSupportGroup.
#ImagesfromtheLivingLibrarycomplementtheonlineinterviews.
"ScanwithyourQRcodereadertogotothewebsiteformoreinformaHonabouttheBlacktownandMountDrui[HospitalsExpansionProjectandtheBeingandBelongingprogram.