Before There Was H.O.P.E., He Found ... - Parkinson's Disease · - Team Parkinson’s t-shirt:...

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A Publication of the Northwest Parkinson’s Foundation | SPRING 2014 Our mission is to establish an optimal quality of life for the Northwest Parkinson’s community through awareness, education, advocacy and care. nwpf.org The Parkinson’s Post is published by the Northwest Parkinson’s Foundation, a 501(c)(3) charitable organization. © Northwest Parkinson’s Foundation 2014. Permission for use of most material presented here is available by contacting us. We welcome your comments on all our activities. Call 877.980.7500 or visit us at nwpf.org. Before There Was H.O.P.E., He Found Hope. BY SCOTT JOHNSON NWPF Contributor Ask Hal Newsom about the source of his inspira- tion when diagnosed with Parkinson’s Disease nearly 20 years ago, and the 84-year-old Seattle resident will silently raise one finger on his right hand and point it toward the woman seated nearby. Peggy Newsom, his wife of more than 60 years, simply stares back at him with smil- ing eyes. When Newsom first heard the words “Parkinson’s Disease” during a 1994 doctor’s visit in search of an explanation for his stiff right hand, he felt angry and confused but never alone. He knew Peggy would be there to provide help and her ever-flowing optimism, and little did he know at the time that those features would leave him halfway to H.O.P.E. Newsom, a longtime board director for the North- west Parkinson’s Foundation, is well-known for his 2006 book “H.O.P.E.,” which outlines four key factors in living with Parkinson’s: Help, Optimism, Physician and Exercise. The book was such an unexpected success that the first 10,000 copies were snapped up quickly, creating the need for a second printing of 5,000 more. Eight years later, Newsom’s message of H.O.P.E. still rings true. “People say: ‘It changed my life. Thank you for writing it,’” Newsom said. The genesis of “H.O.P.E.” came from a 1998 seminar at Swedish Medical Center, where a speaker covered everything from insomnia to diarrhea to sexual dysfunction. At one point during the morbid presenta- tion, Newsom raised his hand in hopes of asking the speaker what kind of hope he could provide. Newsom was never called upon, and so he went home and began crafting a book that might give what he calls “Parkinson’s People” an encouraging message. Newsom has since written two more books – a memoir and a work of fiction – and recently devel- oped an app that helps people with Parkinson’s with speech development. The app, which was designed by his son David’s web development firm, includes a “Talking Dog” function that allows the user to have his or her words recorded and repeated back as well as a “kabobulator” that is designed to give users a voice target level as they speak. Newsom was also instru- mental in starting the HOPE Conference, an annual event in Seattle that brings together medical professionals, caregiv- ers and specialists to discuss the advancements in Parkin- son’s treatment and therapy. “Hal has continued to come up with the big ideas, the so- called skyrocket ideas,” said Dick Hadley, a fellow board member on the Northwest Parkinson’s Foundation who also used to work with Newsom at Cole Weber United advertising agency. “He’s always looking for something above everything else.” Hadley said Newsom’s former profession has a lot to do with the way he’s come up with ways to cope with Parkinson’s. “From an advertising standpoint, it’s Hal’s ability to take big risks for big gains,” Hadley said. “That pushes him harder. He’s always looking to make a big splash – much like dealing with an advertising executive.” Newsom has always listed his No. 1 goal in life to INSIDE Move. Connect. Engage. 2 A Soft Voice in a Noisy World 3 PD Link Northwest 4 A Conversation with my Dad 5 Tribute Gifts 6 Register for the WALK IN THE PARK Today! (see page 3) Continued on page 2 LIVING with Parkinson’s Registration (see page 4)

Transcript of Before There Was H.O.P.E., He Found ... - Parkinson's Disease · - Team Parkinson’s t-shirt:...

Page 1: Before There Was H.O.P.E., He Found ... - Parkinson's Disease · - Team Parkinson’s t-shirt: raise $100 - Team Parkinson’s hat: raise $250 - Team Parkinson’s hoodie: raise $500

A Publication of the Northwest Parkinson’s Foundation | SPRING 2014

Our mission is to

establish an optimal

quality of life for the

Northwest Parkinson’s

community through

awareness, education,

advocacy and care.

nwpf.org

The Parkinson’s Post is published by the Northwest Parkinson’s Foundation, a 501(c)(3) charitable organization. © Northwest Parkinson’s Foundation 2014. Permission for use of most material presented here is available by contacting us. We welcome your comments on all our activities. Call 877.980.7500 or visit us at nwpf.org.

Before There Was H.O.P.E., He Found Hope.BY SCOTT JOHNSON

NWPF Contributor

Ask Hal Newsom about the source of his inspira-tion when diagnosed with Parkinson’s Disease nearly 20 years ago, and the 84-year-old Seattle resident will silently raise one finger on his right hand and point it toward the woman seated nearby. Peggy Newsom, his wife of more than 60 years, simply stares back at him with smil-ing eyes.

When Newsom first heard the words “Parkinson’s Disease” during a 1994 doctor’s visit in search of an explanation for his stiff right hand, he felt angry and confused but never alone. He knew Peggy would be there to provide help and her ever-flowing optimism, and little did he know at the time that those features would leave him halfway to H.O.P.E.

Newsom, a longtime board director for the North-west Parkinson’s Foundation, is well-known for his 2006 book “H.O.P.E.,” which outlines four key factors in living with Parkinson’s: Help, Optimism, Physician and Exercise. The book was such an unexpected success that the first 10,000 copies were snapped up quickly, creating the need for a second printing of 5,000 more.

Eight years later, Newsom’s message of H.O.P.E. still rings true.

“People say: ‘It changed my life. Thank you for writing it,’” Newsom said.

The genesis of “H.O.P.E.” came from a 1998 seminar at Swedish Medical Center, where a speaker covered everything from insomnia to diarrhea to sexual dysfunction. At one point during the morbid presenta-tion, Newsom raised his hand in hopes of asking the speaker what kind of hope he could provide. Newsom was never called upon, and so he went home and began crafting a book that might give what he calls “Parkinson’s People” an encouraging message.

Newsom has since written two more books – a memoir and a work of fiction – and recently devel-oped an app that helps people with Parkinson’s with

speech development. The app, which was designed by his son David’s web development firm, includes a “Talking Dog” function that allows the user to have his or her words recorded and repeated back as well as a “kabobulator” that is designed to give users a voice target level as they speak.

Newsom was also instru-mental in starting the HOPE Conference, an annual event in Seattle that brings together medical professionals, caregiv-ers and specialists to discuss the advancements in Parkin-son’s treatment and therapy.

“Hal has continued to come up with the big ideas, the so-called skyrocket ideas,” said Dick Hadley, a fellow board

member on the Northwest Parkinson’s Foundation who also used to work with Newsom at Cole Weber United advertising agency. “He’s always looking for something above everything else.”

Hadley said Newsom’s former profession has a lot to do with the way he’s come up with ways to cope with Parkinson’s.

“From an advertising standpoint, it’s Hal’s ability to take big risks for big gains,” Hadley said. “That pushes him harder. He’s always looking to make a big splash – much like dealing with an advertising executive.”

Newsom has always listed his No. 1 goal in life to

INSIDE

Move. Connect. Engage. 2

A Soft Voice in a Noisy

World 3

PD Link Northwest 4

A Conversation with my

Dad 5

Tribute Gifts 6

Register for the

WALK IN THE PARK Today! (see page 3)

Continued on page 2

LIVING with Parkinson’s Registration

(see page 4)

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Board of Directors

Elizabeth Bacher

Steve Boone

Holly Chaimov

Amy Cole, RN

Dave Covey

Farrokh Farrokhi, MD

Monique L. Giroux, MD

Karen A. Hadley

Richard Hadley

Sheryl Harmon

Kerry Hovenkotter

Marty Hovenkotter

Larry Jacobson

David Newsom

Clare Nordquist

Mark Palek

Matt Ramerman

Judi Sloan

William Wurts

Directors Emeritus

Gov. Daniel J. Evans

Nancy Evans

Gov. Booth Gardner

(deceased)

Hal Newsom

Priscilla Tanase

Executive Director

Steve Wright, MPA

Medical Director

Monique Giroux, MD

Finance Director

Virgil Sweeney

Development Director

Anne Alkema

Program Director

Melissa Tribelhorn, MPA

Social Services Manager

Maria Cole, MSW, LSWAA

Communications &

Marketing Manager

Rebecca Mauldin, MPA

| SPRING 2014 | page 2

Okay, I admit - it started as a marketing slogan. But, you know, it’s actually quite appropriate for the commitment NWPF has made to the Parkinson’s community. Move, Connect, Engage are three words that may well summarize the difference between a high quality of life and a low quality of life, respective to one’s Parkinson’s disease.

Move. Very clearly, movement is a key component to minimizing PD symptoms - plenty of peer reviewed studies have indicated such. So, what can NWPF do to help you move? By providing classes and encour-aging the expansion of movement opportunities. Today, we offer Dance for PD classes in four locales and expect to grow to two new sites before summer is out. Or, perhaps joining a yoga class, such as our new offering at the Northshore Senior Center. Or, joining Team Parkinson’s and taking a 2-mile Walk in the Park or riding your bicycle to Portland… or, the tandem bike

program/study at Magnusson Park... If it’s your voice you want to move, join one of our new choirs just forming—The Tremolos.

Regardless of the activity you choose - MOVE.

Connect. There are others living with Parkinson’s today. By connecting with others, you may learn new techniques in overcoming some difficulties associ-ated with your disease. Connect with those around you. Connect with your carepartners, family, friends and physicians. You are not alone. Perhaps sharing your experiences with another young onset individual may provide hope amid despair. NWPF has specifi-cally developed PD Link, a one-on-one network, to assist during particularly difficult times. A hand to help you walk over that steep hill.

make people laugh – and the 84-year-old can still do just that, despite his wheelchair and slurring speech – but it’s his ability to provide hope to thousands that will be most remembered when he’s gone.

Recently, Newsom said the most important piece of advice he can offer to a new “Parkinson’s Person” is to let people in.

“Be open about it,” he said from a wheelchair in his home 24 floors high in downtown Seattle. “You can be. Don’t go in the closet. You’d be surprised how much help you can get.”

As his own way of coping with the 1994 news that he’d been diagnosed with Parkinson’s, Newsom took being open about it to a whole new level. He wrote a no-holds-barred account of his own struggle to cope with the reality of his situation and eventually found some therapy through disclosure.

Through his 20-year journey with Parkinson’s, Newsom has made activity a priority in his life. He maintained a strenuous running schedule through-out the end of the 20th Century. In 2004, at the age of 74, Newsom participated in the 206-mile Seattle-To-Portland bike ride. As of four years ago, he was still able to “shuffle-jog,” as he calls it, on the sidewalks surrounding the high-rise facility he calls home. And even now, despite being bound to a wheelchair, he participates in seated activity three times a week.

“He’s always been big on: Move it or lose it,” Hadley said. “That ‘get up, get dressed and get

going’ attitude.”Newsom has also kept busy as a leading member

of the NWPF’s board of trustees and an avid writer who doesn’t let a day go by without putting something of note onto his computer screen.

For Newsom, being able to cope with Parkinson’s all goes back to the day in 1994 when he walked alone along the beach near his Vashon Island cabin and made up a plan for how he was going to deal with the news.

Said Peggy Newsom: “He doesn’t get depressed, and depression’s a big deal for a lot of people [with Parkinson’s].”

Hal Newsom, who turns 85 in June, said he probably couldn’t have done it without his most important source of hope.

“She’s upbeat too,” he said of wife Peggy. “She’s a really good partner.”

Move. Connect. Engage. STEVE WRIGHT

Continued from page 1

Continued on page 8

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tions against DBS surgery because we do not know why it works. Although the same criticism can be made of Reiki, or all Parkinson’s therapies, Robb rightfully notes that Reiki is not surgery and therefore there is no risk from trying it.

Robb’s sincerity and good heart are unquestioned. Simple, straightforward language makes this book easy to read. Advice often comes in lists and mantras. Because content is based on his blogs, there is much repetition. For those of us with Parkinson’s, repetition is often a good thing. For the newly diagnosed who are generally suffering from anxiety, disbelief and despair, this book offers positive, straightforward advice, though often delivered in platitudes and tru-isms, such as: “What works for some, may not work for others. We are all unique and different. Keep an open mind.” Perhaps platitudes and truisms are just what the doctor ordered.

A WALK IN THE PARK

July 26, 2014

9:30 a.m.

fun - family oriented - dog friendly

A two-mile walking course through the beautiful lake-side shores of Magnuson Park offering individuals a chance to exercise, raise awareness, build community, and raise fund all at the same time.

Also offering a short loop for anyone with mobility challenges.

There is no registration fee for the Walk. Sign up today!

MUSIC, BOUNCY SLIDE, PRIZES and MORE! - Team Parkinson’s t-shirt: raise $100 - Team Parkinson’s hat: raise $250 - Team Parkinson’s hoodie: raise $500

A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease - PD University: Book ReviewBY NAN LITTLE, Ph. D., PwP

“For some of us, being ill is a full-time job.” -Karl Robb-

Diagnosed with Parkin-son’s at age 23, after having experienced symptoms since age 17, Karl Robb has lived more of his life with Parkin-son’s than without it. Rather than despairing about what he cannot do, Robb makes his full-time job, his life work, helping others with Parkinson’s and their caregivers. Through speaking and writing, he com-municates his experiences with Parkinson’s, describing what works for him and encouraging

others to be proactive in managing their own disease. In his blog and his book he shares his positive outlook. This book is highly acclaimed by readers, likely because of Robb’s candid, positive approach to many challenges he faces with the disease.

Because his initial experiences with the medical community were often frustrating and negative, Robb sought resources that were meaningful to him, particularly nontraditional forms of healing such as Reiki, meditation, yoga and touch. He believes these alternative approaches give him power based in his personal self rather than centered in the medical community that, for him, all too often relies on pharmaceuticals and surgery rather than self-efficacy. He fre-quently reiterates, “You are in control of your own health.” Much of the book is dedicated to perceived benefits of nontraditional medi-cines, particularly Reiki, a “complementary therapy that incorporates the use of universal energy. A trained Reiki practitioner is able to transfer universal energy through his or her hands and allows that energy to help assist the recipient.” Robb states that through Reiki he has been able to control his disease and lower his medications for many years. He strongly encourages patients to suspend their disbelief and give it a try.

On the one hand, Robb acknowledges the value of Western medicine and the doctors who practice it. On the other hand, he abhors what he considers unjustified negativism. “The medical community in general seems to think that people with Parkinson’s will only get worse, period. They provide little hope for improving our condition and typically add to their prognostications that this illness is both chronic and degenerative. I have yet to hear of a doctor who prescribes hope and positive thinking to his patients.” He cau-

Register online today!

nwfp.org/participate or contact Anne Alkema

[email protected] or 206.946.6518

The views and opinions expressed in this article are those of the author and do not necessarily reflect the position of NWPF.

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Register online at nwpf.org or call toll-free 1.877.980.7500 or complete and mail this portion of the page to:

Northwest Parkinson’s Foundation, Attn: Conference Office400 Mercer Street, Ste. 502, Seattle, WA 98109-4641

ATTENDEE INFORMATIONPlease supply the name of each attendee. This form may be copied for

additional attendees.

Attendee 1: Mr. Ms.

I am a: Patient Caregiver Family Friend

Attendee 2: Mr. Ms.

I am a: Patient Caregiver Family Friend

Address

City State Zip

Telephone

Email address

(for your registration confirmation)

LUNCHEON ENTRÉE SELECTIONAttendee 1: Tarragon Chicken & Rosemary Mashed Potatoes

Vegetarian Lasagna

Attendee 2: Tarragon Chicken & Rosemary Mashed Potatoes

Vegetarian Lasagna

OTHER REQUESTS Escort at drop-off entrance Scholarships available upon approval

Special dietary request:

CONFERENCE FEE

Before September 6: $20.00 | September 6 - September 20: $25.00The conference fee includes admittance to speaker presentations, continental breakfast, lunch, afternoon snack and vendor exhibits.

Please mail this completed registration form with your payment. If you are unable to attend, please consider making a gift to support a scholarship for a person in need.

Enclosed is my check for $ (checks payable to NWPF)

Please bill my credit card Master Card Visa $

Card # Exp. date (month/year)

Name on credit card (please print)

Signature

Address of cardholder: Same as attendee

Address

City State Zip

Volunteers needed: This conference relies on a team of volunteers who

assist the event coordinator for all or part of the day.

PD Link NorthwestNorthwest Parkinson’s Foundation launched its new program PD

Link Northwest this spring. The successful program pairs volunteers who have “been there” with people who want to talk. PD Link is available to those affected by Parkinson’s disease, whether you’re newly diagnosed and struggling to make sense of things, experienc-ing a change in symptoms or a care partner who needs some care yourself. PD Link Northwest is here to help.

Here is a little of what some volunteers and clients are saying about PD Link Northwest...

“Talking with my buddy was the best thing that happened to me since I was diagnosed! She listened with her heart and truly knew how I felt. I finally felt heard. She was encouraging, uplifting and by the time we finished our talk I felt empowered and inspired... I hung up feeling embraced as well as knowing “I can do this.” Yes, I would recommend this service and thank you for making this happen!” - Sue, PD Link Client

“This was a very direct and simple way to get anwers to ques-tions I had about DBS by hearing the volunteer’s personal expe-riences with the surgery... thank you for offering this great mentor program.” - Marsha, PD Link Client

“Helping others to live with joy despite PD helps me to do the same.” - Tim, PD Link Volunteer

“I think my first connection went well and I think this is a great service for those who are diagnosed with PD. To be able to talk with someone else who has PD and hear their experiences is a great help, service and support. I wish I would have had that opportunity six years ago. Thank you for the opportunity to help someone else with PD.” - Sally, PD Link Volunteer

“It’s nice to feel like I’m helping someone else with PD.” - Chris, PD Link Volunteer

“I could tell I made an important difference. She felt comfortable calling me back.” - Nan, PD Link Volunteer

Interested in making a connection?

If you would like to participate in PD Link Northwest and benefit from the knowledge and support of our volunteers, or if you would like to offer wisdom and experience as a volunteer, please contact Maria Cole at Northwest Parkinson’s [email protected] or 206.946.6517.

Boise, IDSept. 20, 2014

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| SPRING 2014 | page 5

A Conversation with my DadBY BETTE JANE CAMP

NWPF Program Leadership Intern

My dad’s sense of humor can be seen from across the cafe as he opens the glass door and greets me with a half-smirk. There is always something to be snarky about.

Diagnosed with Young Onset Parkinson’s Disease in 1998, Brian Camp remains to me a mobile and present Dad—a Dad with P.D., true, but a Dad much more than his stiff limbs, harrowed speech or stoic expression try to overwhelm. I considered this dynamic of pa-triarch amid Parkinson’s when my family and I watched the premiere of “The Michael J. Fox” show. Where does Parkinson’s end and Dad begin? Perhaps, I wondered, as with any evolution in our identities, there aren’t black-and-white defi-nitions of Parkinson’s person and Dad. But before my thoughts tangled up in philosophical obscurities, I asked my own father what his impression has been of “The Michael J. Fox Show”.

We congregate at a cafe near my dad’s apartment; he waves at the cashier and has his order (double-tall vanilla soy latte) in the works before he sits down with me.

“Hi, sis,” he says quietly beneath his small grin.“Hey, dad.”With his latte in hand (and fluorescent gloves removed), we

discuss Michael J. Fox and the possible impact of his show.BC: “So, strictly in terms of what it means for a major source of

media to center on Parkinson’s, do you think ‘The Michael J. Fox Show’ helps with awareness?”

JC: “Yes. I am sure it’s led many people to google Parkinson’s and Michael J. Fox.”

BC: “Do you feel it’s relatable to you, the depiction of Parkin-son’s?”

JC: He shakes his head. “Most people are very stiff and sore with little energy or stamina—[Michael J. Fox] has so much energy on the show. He works when he’s at high points, physically. When his medicine is on.”

BC: “What do you think the effect of that is? Since Michael J. Fox’s show is highlighting Parkinson’s?”

JC: “Well, he just got nominated for an Emmy [for his show]. I think that that is excellent. It’s exposure you can’t buy. And you have

to give the audience credit.”BC: “But even if they don’t know very much about Parkinson’s?”JC: He nods. “That’s what awareness is all about. At least, it is

better that [the audience] knows the disease a little bit rather than not knowing at all.”

BJC: “Michael J. Fox is a stay-at-home dad on the show. What do you think about that and his T.V. family? Being a dad with Parkinson’s?”

JC: “I think it is great. I enjoy that part the most as I can relate to it. After all, I’m a single parent, a single father!”

“The Michael J. Fox Show” may not have resonated within my dad in the style of deep inspiration. But the very presence of Parkinson’s in the media is, to him, more than just another branch of network television. Dads, Parkinson’s and non-Parkinson’s people: the awareness of this disease streams through its darkness, even if it is only a small strand of enlightenment trickling out of TVs. My dad and I hope for more light, more awareness, more knowledge, in all institutions of information. And if there’s one neurodegenerative disease brimming with hope, it is undoubtedly in the half-smirks and dancing shuffles of Parkinson’s.

The Legacy CircleNWPF’S PLANNED GIVING PROGRAM

Estate planning is an effective way to take care of yourself, the people you love and the charities that are important to you. Northwest Parkinson’s Foundation would like to help you leave a legacy after you are gone.

By joining the Legacy Circle and includ-ing a gift to NWPF in your overall estate and financial plans, you can provide your estate with considerable tax benefits and help families with Parkinson’s live well for years to come.

For more information on including NWPF in your estate and financial plans, please visit our website: http://nwpf.org/give/planned-giving/ or contact Anne Alkema at 206-946-6518 or [email protected].

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Eldon MeyerMs. Judy Davis

S. Karl MoldremMs. Lisa A. Moldrem

Mary MonroeMr. & Mrs. Douglas C. Hammond

Hal NewsomRobert CondonMr. & Mrs. Arthus F. GollofonMrs. Delores GrothMs. Carolyn MartinMr. & Mrs. Robert S. Tanaka

Nancy NyceMr. & Mrs. John R. Nyce

Cathy OasMr. Richard G. Matthews

Gary RaymondMr. & Mrs. David G. Kachel

Larry RiegertMs. Alice A. Litton

Gwen RossMr. Brett Ross

John SaylorMs. Gretchen Black

Jerry SchatzMs. Susan K. Baxter

Julie SchoenfeldMr. & Mrs. Joel Altshule

Larry G. ScottMr. & Mrs. Larry Scott

Marcie SewellMs. M. Laverne Sewell

Tom SextonMs. M. Laverne Sewell

Maria ShafferAnna Shaffer

Juanita H. SigmonMr. C. Miller Sigmon

Roger SimsMr. & Mrs. Roger Sims

Sam SivaMs. Nithya Siva

Paul SlotboomMr. & Mrs. David Slotboom

Wendy SlotboomMr. & Mrs. David Slotboom

Ann SmithMr. & Mrs. Joseph Powers

James Ray SmithMr. & Mrs. Larry Mackey

Speak Up for Parkinson’sAnJeL Advised Fund of RSF Social Finance

Diane SpinradMr. Andrew R. Cohen

Dennis SpirekMs. Mary Spirek

Col. Joe Stewart USMCCol. & Mrs. Joe Stewart, USMC (Ret)

John SumichMr. & Mrs. Jerry Brodigan

June SwaimToni Miller

Alice H. SweigertMrs. Alice Sweigert

| SPRING 2014 | page 6

TRIBUTE GIFTSGifts to Northwest Parkinson’s

Foundation support educational publications and self-care tools, including this newsletter, weekly email news updates, web site,

patient education programs and annual HOPE & LIVING conferences.

We are honored and privileged that so many in the community support our mission by giving generously throughout the year. To make a

donation or for more information contact Anne Alkema at

[email protected].

Gifts listed here are from

Sept. 1, 2013 through April 30, 2014

Christine ThorsonMr. & Mrs. Duane S. Thorson

Teddy E. TurnerMr. & Mrs. Teddy E. Turner

Jack TsuchiyaMr. & Mrs. Robert S. Tanaka

Dr. Joe TylerMs. Elizabeth Norton

Patty UnruhMary Jo DavisVickie & Chuck LowenKeith Unruh

Jackie VhugenMr. & Mrs. Harold Vhugen

The WiggintonsMr. Dustin Kelley

Robert WilderMr. & Mrs. Alan R. Hornish

Elisabeth WoldRev. & Mrs. David C. Wold

Yuiko YampolskyMs. Helene Yampolsky

Dave CoveyMrs. Janet V. Detering

Allen CraftMs. Caryl Parrish

John DeBroeckMr. & Mrs. Brian R. Joubert

Robert DixonMr. & Mrs. Kerry M. Schierman

Donna DuekerMr. & Mrs. Kenneth J. Dueker

Tom DunnMrs. Betty Jane Dunn

Jim ElmerJoel Elmer

Evergreen Mens Support GroupMr. & Mrs. Ross Webb

Ed EwellMr. & Mrs. Ed Ewell, R.Ph.

Tony FaberMs. Caroline Rose

Robert FergusonMs. Holli Templeton

Laurine FilloMr. & Mrs. David Fillo

Lana GillisMs. Malinda M. Cox

Sherry GoldbergCigar PEG, Inc.

Eva GruelichMr. & Mrs. James Sheldrup

Wendy HolmanMs. Sue Siegenthaler

Martin HovenkotterDr. & Mrs. Russell E. Sawyer, Jr.

John Rolfe YMCA StaffMr. & Mrs. John S. Oehler

John F. Kelly, Jr.Mr. & Mrs. John F. Kelly

Ivan KingMs. Karen L. King

Ken KischMs. Beverly KischRecycled Cycles

Richard KratzMr. & Mrs. Gregory D. Sawyer

Lyle LandsiedelMs. Kathy Pfeifer

Robin LevinMr. William Hesse

Renie LevineMr. & Mrs. Alan Levine

John LittleMr. & Mrs. Jay Kirk

Carolyn LorangMs. Susan K. Baxter

Walt LyonsMr. & Mrs. Tom Dos Remedios

Kim MasonMs. Kathy Christensen

Dave McCannMr. & Mrs. Mherling I. Luce

Fred McMullinMary McMullin

Trish MerrittMr. & Mrs. Robert Kellogg

FAMILY FUNDS

Alvord Medical Director Fund in Memory of Roger Evans

Mel Bacher Family FundHarvey & Phyllis CeaserJacob & Gale ChapmanLarry & Nancy CrevinRobert C. HammondSidney & Barbara Meyers

Mary A. Mitchell Memorial Fund

Margaret (Martie) Philbrick Family FundMs. Katherine B. Philbrick

Tina Bell Torrance Family FundMr. Jack Harvey

IN HONOR

Chris AdamsMr. & Mrs. Paul McTaggartMr. & Mrs. Michael NelsonMs. Wendy PieckaMr. Bruce SchatzmanMr. & Mrs. Bruce SeversonMs. Karina Sinclair

Dave AskewMr. & Mrs. Dave R. Askew

Barb BahnerMr. Donald Priebe

Darrell BakerMr. & Mrs. Charles A. Turkr

George BeareMr. Michael Beare

David BlakemoreMs. Rosemary Blakemore

Darlene CainSally Norby

Richard E. CarlsonMs. Marcia Carlson

George CatonMs. Pamela Mull

Barney ChuiMr. & Mrs. Robert Gilman

IN MEMORYEvelyn AaronsDuane & Debbie Snapp

Carl AbrahamserMs. Carla A. Folkins

Mary Acker LincicomeMr. & Mrs. Brian Kremen

Kevin AdamsonMr. & Mrs. Gergory M. Jones

Barbara AddisMr. & Mrs. Bettie L. HanningKathi NakataMargaret Schmidt

Domenico AddonaMs. Catherine Addona-Pena

Alex AidekmanMr. & Mrs. Kenneth Aidekman

Marita V. AlbertMr. &. Mrs. Ron BurgerMr. &. Mrs. Russell B. DavidsonMr. &. Mrs. Claude J. DensonMr. &. Mrs. Dennis ThorntonMr. &. Mrs. Hal Williams

Diane AllenMr. John H. Allen

Georgie AllwineMr. Bob Allwine

Adrian ArnoldMrs. Anne. A. Moldrem

John AustinMrs. Karen Austin

Zelma BaldridgeMs. Mary Christner

Beverly BaldwinMr. &. Mrs. Michael Baldwin

James R. BallMs. Tiffany K. Lindbloom

Helen A. BellMr. Robert D. Bell

Page 7: Before There Was H.O.P.E., He Found ... - Parkinson's Disease · - Team Parkinson’s t-shirt: raise $100 - Team Parkinson’s hat: raise $250 - Team Parkinson’s hoodie: raise $500

Robert HoagMr. & Mrs. Thomas William Varney

Mary HoisingtonMr. & Mrs.Jim BresnahanMs. Lesley Culley

Dee HooperCapital Lakefair

Lyman W. HullMr. & Mrs. Thomas W. HullSeattle Foundation

Larry HumphreyStacia & Robert CammaranoDave CoveyMary FloydMrs. Natalie HumphreyElizabeth H. Rand, MDDouglas & Susan SparksDr. & Mrs. Gail StraitSallie & Herb Zimmer

Carol T. Isaacson RawnMs. Ruth Rankin DolsenMs. Mari StamperWyman Youth Trust

Mary JetterMr. & Mrs. Marvin Coe

Victor KaloperMr. Peter AntovichMr. & Mrs. Bradley KaloperMrs. Danica Kaloper

Jerome KatzMrs. Rita Katz

Jeannie KellyMr. John A. Kelly

James KenyonParkinson’s Support Group in Boise

Alice KingKenet Frodle

W.G. King IIIMrs. Charlotte K. Myers

John KoskiMr. & Mrs. Douglas Johnson

Henry L. KrapfMr. & Mrs. John S. Harrison

Gisela KriebaumMr. & Mrs. Robert P. Mearls

Robert KrusselMr. & Mrs. James E. Krussel

Paul A. KryskaMrs. Eva A. Kryska

Lyle LandsiedelMr. & Mrs. Walter W. Shields

Ella LarsonMr. & Mrs. Ted E. Oien

Bert J. LillianMr. & Mrs. Allen J. McCall

Edwin LondonMs. Antonia Blume

Albert LudwickMs. Nora Cromley

Nancy LynchMr. & Mrs. James C. Haslam

Calrrence “Els” LyonsMs. Loreice Lehmann

Enling MadsenMrs. Adella C. Madsen

Eldon MannMr. & Mrs. Randall E. Mann

Gene MartensMs. Lia BrunerMs. Marie Sweeney

Delores MartinisMr. & Mrs. Gergory M. Jones

Delores MazzaMr. G.W. BischoffCarr Butterfield, LLCMs. Donna DaliskyMs. Jane Lee HansenMr. James A. Ofelt

James McArdleMrs. Ellen McArdel

Dr. J. Oppie McCallMs. Patricia Mack

William M. McCord IIMr. & Mrs. Timothy Larson

Don McNallyMr. Kenneth Stobart

Edward Alden “Snoop” MikkelsenMr. & Mrs. Cliff Foreman

Albert MindellMs. Maxine C. Mindel

Napoleon C. MontecilloMrs. Aida Montecillo

George MooreMrs. Winnie Lee Moore

Mitsuko MorishitaMs. Joni Morishita

Richard MorrisMs. Janet B. Zema

Edward MulvihillMs. Deborah MagallanesMs. Kristie Simard

Kathlee MyhreMr. Glenn M. Myhre

John Edward O’HeronMs. Deborah M. DrllevichMrs. Nancy O’Heron

Patricia O’RourkeMrs. Bernice KentMr. Kevin O’Rourke

Paul PalmerMr. & Mrs. Jack Coddington

Ruth PasternackMr. & Mrs. Eric S. Pasternack

Ward “Terry” PearlMs. Lenora F. Pearl

Shirley PepperMr. John Pepper

Kebel PerineMr. & Mrs. Carl M. Klug

Dorothy PinardMr. Bruce L. Hayes

Dr. Edward A. PintavalleFourth District Dental Soceity

Peter Piper, MDMrs. Patti B. Piper

Betty PohlmannMr. & Mrs. David E. Lammert

Dr. Wayne RamermanMr. & Mrs. Craig G. Marocco

Charles RushMrs. Laurel HolmesJeff KuhnsMaschmedt & Associates, Inc.Melodie MaxwellKarola Moore

Mr. Timothy MurphyMarie O’BrienBarbara Shenton

David RussellMr. Steven W. Russell

Jim RyanMr. & Mrs. James Collier

Eldon SchroederMrs. Ramona J. Schroeder

Elva Mae Sehmel SmithMarissa Dogeagle Smith

Steve SimpsonMrs. Dorothy Simpson

Hubert V. SmithMr. & Mrs. Canfield F. Smith

James “Ray” Smith, Jr.Ms. Ericka FieldMs. Melissa FontesDr. Dorothy HazamaStephen & Pauline JaouenMs. Joy O. LindMr. & Mrs. Mike NoyesMs. Gail PetagnoMrs. Dorothy SmithMr. & Mrs. Benjamin D. TaylorMr. William T. Vaughn

Quentin SmithRoger & Pam BaumanLucia Beach

James SnyderMr. & Mrs. Larry Schetzle

Rich StephensMr. & Mrs. Robert M. Long

Richard StimomMr. & Mrs. David W. Baker

Ann StrandMs. Karin Strand

Michael ThorntonDaniel Thornton

Stanley TomichMs. Mary K. Mauceri

Wayne UhtMr. & Mrs. Michael Hibbard

Fred Van IeperenPeggy A. Van IeperenMs. Helen I. Kassner Ives

Hildegard E. WachobMs. Charlotte KingsleyMr. James R. Wachob

Bernice WilliamsMs. Diane R. Shearer

Jim WilliamsMs. Barbara Baugh

John P. WillmanMs. Dorothy Bartlett

Bob WintonMr. & Mrs. Thomas J. Hoeppner

Carol A. WurtsMr. & Mrs. Richard P. HollyerMr. William W. Wurts

Mark YoutslerMr. & Mrs. Earl H. Larson

Jean ZintMr. & Mrs. William H. Stempson

Jill & StevenBeth, Jon & Caroline Ott

NancyMs. Bari J. Dorward

| SPRING 2014 | page 7

Chris & Michelle NeelyGerald PostGail & Michelle NeelyGerald PostGail & Kathie SandersMr. & Mrs. John SchenkJames & Terri StonerURISAEd & Annette WilderMr. W. Thomas Wischmeyer

Marvin DurningMr. Charles Ehlert

Phyllis C. EiseltMr. Raymond W. Eiselt

Raymond EvansMrs. Bernadette Evans

Bennetta A. FjardoMr. Fernando V. Fajardo

Ellene FancherMr. & Mrs. Lowell Pederson

Rosemary FordDr. & Mrs. William Ritchie

LeRoy FosterCo-operative Supply, Inc.

Booth GardnerMr. Billie ChristiansenMs. Kathy S. CooperMs. Patricia FlynnKenet FrodieMs. Maryanne McGillivrayMs. K. Wendy HoldenLaird Norton Company LLCJohn Nettleton

Karen GardnerMs. Kayla J. Schuler

Hugh GivensMr. & Mrs. Tom Cohen

Ida GriffithMr. & Mrs. Dave Miller

Timothy GrossMr. Michael GrossSeattle FoundationMr. Chester ThomasMr. & Mrs. Rens Verburg

John GunlogsonMs. Rosie GunlogsonMr. Arthur Gunlogson

Carol HansenMr. & Mrs. John W. Crim

Norm HascallMr. & Mrs. Michael P. Hascall

Margaret Louise HaugheyMr. Clarence Haughey

Dar HaworthMr. Ken L. Haworth

Les HaydenMr. & Mrs. Ernest N. Hayden

Alfred C. Hayes, Jr.Mr. & Mrs. Daniel L. King

Karen HermannMr. Sigwulf Hermann

Howard R. HerrigelMrs. Judith Herrigel

David HertingMrs. Ericka C. Herting

Clark HiattMr. & Mrs. Richard Hiatt

Alvin HildebrandtGloria Koenig

John HinckleMrs. Frances Hinkle

Lois BentonStorm King Post 171 American LegionJim & Angela BentonJohn & Joyce CrooksO.E.S. Faith Chapter #255

Berta K. BernardMr. Ralph Bernard

Alan BerryMs. Carol Berry

Arthur BrittonMrs. Louise Britton

William BumpusMr. & Mrs. Theodore Tanase

Bob CarlsonMr. & Mrs. Richard J. Plaisance

Mike CarlsonMs. Beverly A. Wagener

Robert CarlsonMr. & Mrs. John A. McPherson

Robert Harry CarlsonMrs. Mary Kay FriendMr. & Mrs. Jay Smithman

Prem Prakash ChandnaVonita Singh

Margaret CliftMr. James P. Clift

Steve CohnMichael Meisel

Doris & Annie ConnellyMr. & Mrs. Mark C. Brainard

Duane CostaMr. & Mrs. James. U. CloutierMr. & Mrs. Gordon Fullerton

Beverly CranstonMs. Cheryl Semmens

Robert CresoMr. Robert A. Roegner

Edmond DaigneaultMrs. Janet Daigneault

Melvin De MondMrs. Ellomae H. De Mond

Caroline DettingMr. & Mrs. Lee B. BaernyM. Lucille ChristiansonChuckanut Valley Veterinary ClinicRobert & Janice CunninghamRobert & Betsy GottwaldMs. Shirley HeathersMs. Peggy KaelinAnna KingMarlen KnutsonMr. & Mrs. Ted E. OienTamara Whiton

Neil DickinsenMrs. Doris A. Dickinsen

Ron DomanMr. C. Miller Sigmon

Michael DuekerSteve AlderBill AndersonCallie BlackJacqueline BlairJack ButlerMr. William CraigRiccardo DeCecioRobert DittmarTracie & Matt DouglasDarrell EymanRoger & Carolyn KnutsonRobert & Sandra LemckeD. Anne LemckeAlan LomaxMichael & Darlene McNulty

Page 8: Before There Was H.O.P.E., He Found ... - Parkinson's Disease · - Team Parkinson’s t-shirt: raise $100 - Team Parkinson’s hat: raise $250 - Team Parkinson’s hoodie: raise $500

| SPRING 2014 | page 8

400 Mercer Street, Suite 502

Seattle, WA 98109-4611

877 980 7500

nwpf.org

NONPROFIT ORG.U.S. POSTAGE

PAIDSEATTLE, WA

PERMIT NO. 02443

Please contact us if you do not wish to receive the Parkinson’s Post

Regardless of the medium you choose - CONNECT.

Engage. Engage in your life and you will find meaning. Engage in those around you and you will find love. Engagement is what makes us human. I encourage you (whether you have PD or not) to engage in every conversation, every activity, every thought. One important engagement with PD is to educate yourself and take ownership. NWPF.org is an amazing resource for education—through Dr. Giroux and other expert blog postings, Wellness Center articles and live we-binars. Engage in your disease by attending the HOPE Conference in the fall or, if you live in Boise, the Living with Parkinson’s Conference in September.

Regardless of your interests, concerns, or thoughts --- ENGAGE.

Continued from page 2 Save the Date!

Join us November 1, 2014!

An engaging educational symposium focused on HOPE for patients, family, friends and caregivers.

More details to come this summer!

pdhope.org or 206.748.9481 or 206.277.5516

Meydenbauer Center11100 NE 6th StreetBellevue, WA 98004

Northwest Parkinson’s Foundation andAmerican Parkinson’s Disease Association, WA Chapter

present