Serving New York City, Long Island, Westchester County, Lower Hudson Valley, and Northern & Central New Jersey42 Broadway, Suite 1724, New York, NY 10004 • (212) 619-1400 | ALS-NY.org • Facebook.com/ALSofGNY • Twitter - @ALSofGNY

AUGUST 2016 SUPPORT GROUPS

AUGUST MONTHLY UPDATE

2016 FallWalks to Defeat ALS

Long IslandSaturday, Sept. 17th

Central NJSunday, Oct. 9th

Hudson Valley, NYSunday, Oct. 16th

REGISTER NOW AT WWW.ALSWALKS.ORG!

Advocacy Patient Services Research Awareness

TELEPHONE SUPPORT GROUPS

NASSAU COUNTY, NYSunday, August 7th - 2 to 4 pmNorthwell Health - Plainview Hospital 888 Old Country RoadPlainview, NY 11803 (Downstairs)Contact: Cindy Keyser-Posner, LMSW(631) 416-2767Theresa Imperato, RN, (516) 946-5467Carol Bishop, RN, (631) 219-0947Topic: Open DiscussionNext support group: No Septembermeeting due to holiday

LOWER HUDSON VALLEY, NY August Meeting Date: TBDAmbulatory Surgery CenterBuilding C, 3rd Floor200 Westage Business CenterFishkill, NY 12524Contacts: Helen Mayer, RN,(845) 520-0952Nancy Brenner, LCSW, (914) 406-3513Topic: Tips for Accessing the Computer and Other Assistive Technology HintsSpeaker: Ben Lieman, MSW, ATP,The ALS Greater New York ChapterTopic: Hudson Valley Walk to Defeat ALS Speaker: Brett Murphy, Manager of Fundraising and Special Events, The ALS Association Greater New York ChapterNext support group meets: September 6th

SUFFOLK COUNTY, NYAugust Meeting Date: TBDStony Brook University, Dept. of Neurology179 N. Belle Meade RoadEast Setauket, NY 11733Contacts: Cindy Keyser-Posner, LMSW(631) 416-2767Theresa Imperato, RN, (516) 946-5467Topic: Long Island Walk to Defeat ALSSpeaker: Kristen Cocoman, Director of Special Events & Marketing, The ALS Association Greater New York ChapterNext support group meets: September 6th

WESTCHESTER, NYTuesday, August 9th - 6 to 8 pmBurke Rehabilitation Center785 Mamaroneck Avenue, Building 7White Plains, NY 10601Contacts: Helen Mayer, RN, (845) 520-0952Nancy Brenner, LCSW, (914) 406-3513Topic: Tips for Accessing the Computer and Other Assistive Technology HintsSpeaker: Ben Lieman, MSW, ATP, The ALS Association Greater New York ChapterNext support group meets: September 13th

MANHATTAN, NYTuesday, August 16th - 6 to 8 pmMt. Sinai Beth Israel HospitalPhillips Ambulatory Care Center10 Union Square East (b/w 14th & 15th Sts.)New York, NY 10003Neurology Dept., 5th Floor Conf. RoomContact: Jody Wiesel, PhD, (917) 699-9751Topic: Helpful hints for understanding and utilizing Medicare and Medicaid benefitsSpeaker: Susan Zimmerman, LCSW, The ALS Association Greater New York ChapterNext support group meets: September 20th

NORTHERN NJThursday, August 4th - 7 to 9 pmKessler Institute for Rehabilitation300 Market Street, Saddle Brook, NJ 07663Contacts: Debbie Schlossberg, LMSW(732) 710-8832Mary Ann Mertz, RN, (908) 552-5573Topic: Open DiscussionNext support group meets: September 1st

CENTRAL NJ Saturday, August 20th - 1:30 to 3:30 pm Robert Wood JohnsonFitness & Wellness Center100 Kirkpatrick StreetNew Brunswick, NJ 08901, Level 2Community Education RoomContacts: Debbie Schlossberg, LMSW,(732) 710-8832Mary Ann Mertz, RN, (908) 552-5573Topic: Central Jersey Walk to Defeat ALS Speaker: Brett Murphy, Manager ofFundraising and Special Events, The ALS Association Greater New York ChapterNext support group meets: September 17th

Patient group: Every Friday - 2:30 to 3:30 pm | Caregivers group: Every Friday - 4 to 5 pm Topics include: Open discussions or Meditation and Guided Imagery for Stress Reduction.A new telephone support group has been formed for patients newly diagnosed with ALS.

Contact: Sue Zimmerman, LCSW, (212) 720-3050

Greater New York Chapter42 Broadway, Suite 1724New York, NY 10004(212) 619-1400Fax: (212) 619-7409www.als-ny.org

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It was the challenge heard across the globe: Ice Bucket Challenge 2014. The problem? One campaign, one August, is just not enough to finish what we started, with the ALS Ice Bucket Challenge: ending Amyotrophic Lateral Sclerosis. This August, The ALS Association is introducing a new campaign called Every Drop Adds Up in an effort to keep the momen-tum going. The ALS Ice Bucket Challenge, started organically by three young men living with ALS, resulted in more than $220 million in donations to ALS charities around the world, including $115 million to The ALS Association. Every Drop Adds Up, was inspired by ALS Ice Bucket Challenge co-found-er, Pat Quinn’s words, “every August until a cure,” and reflects the energy and drive of the ALS community to refocus the nation’s attention on ALS, especially during this time of year.Since 2014, as a direct result from the ALS Ice Bucket Chal-lenge, the Greater New York Chapter has been able to expand services to the more than 750 PALS in our service area, urge legislators to expand support for ALS, and contributed to important research efforts, including cutting edge ALS research projects at the New York Human Genome Center that seek to understand the genetic basis of ALS. While a tremendous amount of progress has been made, we have

more work to do to turn ALS from a fatal disease to a manageable one. It can cost more than $2 billion to bring an effective treatment for ALS to market…that’s 10-20 ice bucket challenges!What can you do?One thing we have established is that August is about ALS! If you want to take the ALS Ice Bucket Challenge again this year, we encourage you to do that. But there are also many other things you can do to help spread awareness and raise funds for a cure. Share your story on social media and encourage your friends to donate. Start a Walk to Defeat ALS team or make a donation to an existing team, run or bike with Team ALS on one of our many endurance races, or start your own unique fundraiser locally.There are many ways to get involved and no matter how big or how small. Every story, every step, every drop adds up! The ALS Ice Bucket Challenge has shown us that when people come together they can make big, impossible things happen. We need to continue that effort, and live by Pat Quinn’s words “every August, until a cure.” To learn more about what you can do to help spread aware-ness or raise funds this August visit our website at www.als-ny.org.

Make the impossible happen... again. This August and every August until there's a cure.