Assessing uMotif’s smartphone based Parkinson’s wellbeing tracker

1
Assessing uMotif’s smartphone based Parkinson’s wellbeing tracker Dr. Caspar Addyman*, 1 Bruce Hellman 2 and Dr. Jon Stamford 3 *Correspondence email [email protected] 3. Cure Parkinson’s Trust St Botolphs, Aldgate High Street London EC3N 1AB 1. Centre for Brain and Cognitive Development (CBCD), Birkbeck, University of London, Malet Street, London, WC1E 7HX, UK 2. uMotif Limited, UK www.uMotif.com [email protected] uMotif Digital Health Midlands and East Pre & post test questionnaires Cognitive Testing 1 2 3 4 5 START END Average Self Rating Suppleness scores 1 2 3 4 5 START END Average Self Rating Tremor scores 1 2 3 4 5 START END Average Self Rating Dyskinesia scores 1 2 3 4 5 START END Average Self Rating Bradykinesia scores Parkinson’s symptoms Limited App (N=14) Full App (N=15) p<.1, * p<.05, ** p<.01,*** p<.005 Health Behaviours *** 1 2 3 4 5 START END Exercise 1 2 3 4 5 START END Water * 1 2 3 4 5 START END Average Self Rating Medication Well Being Measures 1 2 3 4 5 START END Energy ** 1 2 3 4 5 START END Sleep 1 2 3 4 5 START END Average Self Rating Mood Daily Self Report Data Background The current research evaluates a new smartphone app designed to help people with Parkinson’s Disease manage their medication & improve their health behaviours through self-tracking. The app also represents an interesting new research platform for in-situ testing of cognitive performance. Detailed daily tracking provides the potential to empower and motivate patients with long term conditions, encouraging them to engage positively with the management of their conditions while providing better data to healthcare professionals. Trial Summary Users reported engagement with tracking and ease of use App was used on average 38.5 out of 55 days (70%) App provides rich new source of data on the daily effects of Parkinson’s Disease Self-tracking leads to - Improved medication adherence – Improved health behaviours (water & exercise) – Improved well being (mood, sleep & energy) Next Steps Successful second round NHS SBRI funding (June 2013 – June 2014) Extensive further development of smartphone app and web portal Randomised Control Trial (RCT) – 300 person, multi-centre trial across 6 NHS trusts in England and Scotland – 4 month trial period (Jan-May 2014) – Using Full app. vs. Treatment As Usual – Evaluation by Neurologists & PD nurses Design Web-based portal for Health Professionals Pre Trial Pre Trial Daily Self Report Medicine Reminders Tapping Test Numerical Stroop Partial 41 people with Parkinson’s initially recruited Questionnaires PDQ-39, Parkinson’s Non-Motor Symptoms (NMS), Quality of Life Score (QOLS), Morisky Medicines Adherence 6-8 Weeks 6-8 Weeks PARTIAL APP N = 14 FULL APP N = 15 Post Trial Post Trial Full Full Questionnaires N = 10 Questionnaires N = 6 Results

Transcript of Assessing uMotif’s smartphone based Parkinson’s wellbeing tracker

Assessing uMotif’s smartphone based Parkinson’s wellbeing tracker

Dr. Caspar Addyman*,1

Bruce Hellman2

and Dr. Jon Stamford3

*Correspondence [email protected]

3. Cure Parkinson’s TrustSt Botolphs, Aldgate High StreetLondonEC3N 1AB

1. Centre for Brain and Cognitive Development (CBCD), Birkbeck, University of London,Malet Street, London,WC1E 7HX, UK

2. uMotif Limited, [email protected]

Digital Health Midlands and East

Pre & post test questionnaires Cognitive Testing

1

2

3

4

5

START END Aver

age

Sel

f Rat

ing

Suppleness scores

1

2

3

4

5

START END Av

erag

e S

elf R

atin

g

Tremor scores

1

2

3

4

5

START END Aver

age

Sel

f Rat

ing

Dyskinesia scores

1

2

3

4

5

START END

Aver

age

Sel

f Rat

ing

Bradykinesia scores

Parkinson’s symptoms

Limited App (N=14) Full App (N=15) † p<.1, * p<.05, ** p<.01,*** p<.005

Health Behaviours

***

1

2

3

4

5

START END

Exercise

1

2

3

4

5

START END

Water

*

1

2

3

4

5

START END

Aver

age

Sel

f Rat

ing

Medication

Well Being Measures

1

2

3

4

5

START END

Energy

**

1

2

3

4

5

START END

Sleep

1

2

3

4

5

START END

Aver

age

Sel

f Rat

ing

Mood

Daily Self Report Data

BackgroundThe current research evaluates a new smartphone app designed to help people with Parkinson’s Disease manage their medication & improve their health behaviours through self-tracking. The app also represents an interesting new research platform for in-situ testing of cognitive performance. Detailed daily tracking provides the potential to empower and motivate patients with long term conditions, encouraging them to engage positively with the management of their conditions while providing better data to healthcare professionals.

Trial Summary• Users reported engagement with tracking and ease of use

• App was used on average 38.5 out of 55 days (70%)

• App provides rich new source of data on the daily effects of

Parkinson’s Disease

• Self-tracking leads to

- Improved medication adherence

– Improved health behaviours (water & exercise)

– Improved well being (mood, sleep & energy)

Next Steps• Successful second round NHS SBRI funding (June 2013 – June 2014)

• Extensive further development of smartphone app and web portal

• Randomised Control Trial (RCT)

– 300 person, multi-centre trial across 6 NHS

trusts in England and Scotland

– 4 month trial period (Jan-May 2014)

– Using Full app. vs. Treatment As Usual

– Evaluation by Neurologists & PD nurses

Design

Web-based portal for Health Professionals

Pre TrialPre Trial

Daily Self Report Medicine Reminders Tapping Test

Numerical Stroop

Partial

41 people with Parkinson’s initially recruited

Questionnaires PDQ-39, Parkinson’s Non-Motor Symptoms (NMS), Quality of Life Score (QOLS), Morisky Medicines Adherence

6-8Weeks

6-8Weeks

PARTIAL APP

N = 14FULL APP

N = 15

PostTrialPostTrial

FullFull

Questionnaires

N = 10Questionnaires

N = 6

Results