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Annex A

Dear Jenny Hurst,

Thank you for your Freedom of Information (FoI) request received on 8th April 2015. You asked: The DWP is one of the government departments that is most relied upon by disabled people. But sometimes it feels like the government does not know the realities faced by disabled people 1. Does the government have partnerships / alliances with disabled person's organisations (in order to discuss new policies and understand the realities for disabled people)? 2. If so, could you give me a list of which organisations you work with / have alliances with. In response to the questions above, the Department for Work and Pensions (DWP) engages with a wide range of stakeholders on a regular basis, to help develop and deliver policies that affect disabled people. Identified in the Annex below are the stakeholder groups and their members who we have engaged with in the last twelve months. There will have been many further interactions with some of these and other stakeholders on an ad-hoc basis. However, it is not practicable for individual officials and policy teams to record each interaction. If you have any queries about this letter please contact me quoting the reference number above. Yours sincerely, DWP Strategy FoI Team ------------------------------------------------------------------------------------------------------------------------------ Your right to complain under the Freedom of Information Act

DWP Central Freedom of Information Team

e-mail: freedom-of-information-request@dwp.gsi.gov.uk

Our Ref: FOI 1491

DATE: 20 April 2015

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If you are not happy with this response you may request an internal review by e-mailing freedom-of-information-request@dwp.gsi.gov.uk or by writing to DWP, Central FoI Team, Caxton House, Tothill Street, SW1H 9NA. Any review request should be submitted within two months of the date of this letter. If you are not content with the outcome of the internal review you may apply directly to the Information Commissioner’s Office for a decision. Generally the Commissioner cannot make a decision unless you have exhausted our own complaints procedure. The Information Commissioner can be contacted at: The Information Commissioner’s Office, Wycliffe House, Water Lane, Wilmslow Cheshire SK9 5AF www.ico.org.uk/Global/contact_us or telephone 0303 123 1113 or 01625 545745 Annex Personal Independence Payment (PIP) Implementation Stakeholder Forum (ISF) provides information to build awareness and understanding of the new PIP arrangements and provide

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an opportunity for disability organisations to share their perspective and to raise any issues. Forum members include: Action for ME All-party parliamentary group on sickle cell and thalassaemia Aspire In to Independence BLESMA BRAME British Deaf Association British Legion Capability Scotland Carers UK Centre for Mental Health Citizens Advice Citizens Advice Scotland ClicSargent Contact a Family Crohns and Colitis UK Cystic Fibrosis Trust Deafblind UK Derbyshire County Council Mental Health Services NE Division Different Strokes Disability Rights UK Disability Wales Disabled Motoring UK Downs Syndrome Association Enfield Disability Action Epilepsy Society Equal Lives Essex Coalition of Disabled People Every Disabled Child Matters Include Me Too Learning Disability Wales Leonard Cheshire Disability Limbless Association Local Government Association Macmillan Cancer Support Mencap MH Action Group Mind Mind in Enfield Motor Neurone Disease Association MS Society National Aids Trust National Autistic Society National Deaf Children's Society

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National Equalities Council National Federation of the Blind National Rheumatoid Arthritis Society Papworth Trust Parkinsons UK People First Richmond Aid RNIB Rotherham McMillan Welfare Rights Royal Brompton Hospital Welfare Rights SCOPE Scottish Council on Deafness Sense Spinal Injuries Association Surrey Association for Visual Impairment The Children's Society Terence Higgins Trust Together for Disabled Children Welfare and Financial Assessment Joint Team Wolverhampton Welfare Rights Working Families Disability Charities Consortium comprising of CEOs from: Leonard Cheshire Scope MIND Mencap RNIB National Autistic Society Disability Rights UK and Action on Hearing Loss DWP Policy and Strategy Forum, a Quarterly Forum discussing DWP strategy and policy development: Action on Hearing Loss Carers UK Citizens Advice Crisis Disability Rights UK DrugScope Employment Related Services Association Leonard Cheshire

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Mencap Mind National Deaf Children's Society Remploy Rethink RNIB Scope Salvation Army Shelter and The Prince's Trust Paralympic Legacy Advisory Group includes disability organisations (see below) and paralympians: DRUK; a Disabled People’s User Led Organisations Ambassador Council for Disabled Children Scope Business Disability Forum English Federation of Disability Sport

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The Fulfilling Potential Forum - with membership from charities and Disabled People’s User Led organisations (DPULOs) these include: Alliance for Inclusive Education British Deaf Association (BDA) British Institute for Learning Disability (BILD) Disability Action Northern Ireland Disability Rights UK (DRUK) Disability Wales Equalities National Council (ENC) Action on Hearing Loss Inclusion Scotland Leonard Cheshire Disability (LCD) Mencap Mind National Federation of the Blind People First Self Advocacy RNIB Scope, Spinal Injuries Association Age UK Royal British Legion, Carers UK English Federation of Disability Sport (EFDS) Marie Curie Cancer Care Regard Rethink Sense Whizz-kidz National Autistic Society DPULO London Rep. from Inclusion London DPULO NE Rep DPULO NW Rep DPULO SW Rep DPULO SE Rep DPULO East DPULO Yorks and Humber Rep DPULO WM Rep DPULO EM Rep and DPULO Ambassador for Northern Ireland

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Operational Stakeholders Engagement Forum – who engage with national customer representative groups on DWP operational change initiatives and service delivery issues that have a direct impact on DWP customers or their representatives. These include: Action for Blind People Action on Hearing Loss Advice UK Age UK Alzheimer’s Arthritis Care Aspire Association of Directors of Adult Social Services Barnardo’s Base UK BRAME (Blue Ribbon for the Awareness of Myalgic Encephalomyelitis) Carers UK Carers Trust (formerly Princess Royal Trust for Carers) Child Poverty Action Group Christians Against Poverty Citizens Advice Citizens Advice Scotland Citizens Advice CLIC Sargent Community Legal Advice Community Links Contact a Family Crisis Diabetes UK Different Strokes Disability Rights UK Employment Related Services Association (ERSA) Equalities National Council Gingerbread HMRC Homeless Link Include me too Independent Age Leonard Cheshire Disability Limbless Association Local Government Association London Advice Service Alliance (LASA) Low Incomes Tax Reform Group Macmillan Cancer Support MENCAP MIND MNDA National Association for Welfare Rights Advisers National Association of Student Money Advisers (NASMA)

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National Autistic National Care Advisory Service (NCAS) National Council for Voluntary Organisations (NCVO) National Deaf Children Society National Housing Federation Neil Bateman Northern Housing Consortium Nottingham County Council Papworth Trust Parkinson’s Princes Trust Refugee Action Refugee Council Re-Think Mental Illness Rightsnet Royal National Institute for the Blind Royal Association for Deaf People (RAD) Salvation Army Scope Shelter Social Security Advisory Committee (SSAC) St Mungo’s Terence Higgins Trust The Children’s Society TUC Turn to Us Working Families

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We have also built a network of Disabled People’s User Led Organisations to help build their strength and capacity. These include: 4SIGHT A4U : Action Advice Advocacy Ability Action CIC Access Dorset Action and Rights of Disabled People in Newham Action for Deafness Action on Disability and Work UK Active Indpendence All Inclusive Disability Consultants CIC Alliance for Inclusive Education Angel Eyes NI Arbroath COPD Group ASPIE Ltd Atebion Cymru Ayrshire Independent Living Network Barnet Centre for Independent Living Being the Boss Bipolar UK Blind Life In Durham Blyth Valley Disabled Forum Bognor and Chichester Voice Bradford and Airedale Mental Health Advocacy Group Bradford People First Breakthrough UK Ltd Brighton Adult ADHD Support Group Bristol Disability Equality Forum British Deaf Association Bromley Experts By Experience Buckinghamshire Disability Services Bury People First Cambridgeshire Alliance for Independent Living Camden People First Campaign for Tackling Acquired Deafness (CamTAD) Southern Derbyshire Canterbury and District Mental Health Forum Centre For Inclusive Living Perth and Kinross Centre for Independent Living Kent Centre for Independent Living NI CHANGE Cherry Orchard Garden Services CIC Cheshire Centre for Independent Living Choices and Rights Disability Coalition Citizen Leaders CIC CMT United Kingdom Community Health Action Trust (CHAT)

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Community Housing And Support Network Compass Disability Services Connect Culture Connect in the North CoolTan Arts Cornwall People First Croydon People First DaDaFest Daisy Inclusive UK Deaf Cultural Outreach Group (DeafCOG) Deaf Parenting UK Deafblind Scotland Derbyshire Voice Devon Link Up DIAL Barnsley DIAL Basildon & South Essex DIAL Doncaster Dial South Worcestershire Dial Southend DIAL West Cheshire Dial Wood Carriage Driving for the Disabled Digital Express Direct Payments Service Users Limited Disability Action in Islington (DAII) Disability Action Northern Ireland Disability Action Wyre Forest Disability Advice Service Lambeth (DASL) Disability Arts Online Ltd (DAO) Disability Awareness Group Disability Backup Hackney Disability Can Do Organisation Disability Cornwall & Isles of Scilly Disability Direct Disability Equality (NW) Ltd Disability Nottinghamshire Disability Online Disability Peterborough Disability Resource Centre Disability Sheffield Centre for Independent Living Disability Stockport Disabled Golf Association Disabled Motoring UK Disabled People’s Voice Hampshire Disabled Responsible Organised People (DROP) Disabled Workers Co-operative Disablement Association Hillingdon Diversity and Ability DOTS Disability

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Double Act Disability Theatre Company East Lancashire Deaf Society (ELDS) East Sussex Disability Association (ESDA) ecdp Enable in Cornwall Ltd Encompass Enfield Disability Action Equal Arts Equal Lives Eye Wish Access CIC Glasgow Centre for Inclusive Living Glasgow Disability Alliance Grampian Opportunities Greater Manchester Coalition of Disabled People (GMCDP) Greenwich Association of Disabled People Hackney People First Halton Disability Partnership Hao2.eu Hearing Loss Cornwall Herts People First Ideal for All Impact MH Inclusion London Inclusion Scotland Incontrol-able CIC Independent Lives Independent Living Alternatives Kidz Aware Kingston Centre for Independent Living Kirklees Visual Impairment Network Launchpad Leeds Centre for Integrated Living Leeds Mind Leeds Survivor Led Crisis Service Lincolnshire Independent Living Listen not Label Living Options Devon Lothian Centre for Inclusive Living (LCiL) Manchester Deaf Centre Manchester Disabled People’s Access Group Manchester People First Mental Health North East (MHNE) Mercian Ability Partnership Merseyside Disability Federation Merton Centre for Independent Living (Merton CIL) Mosaic: shaping disability services Moving On With PACTT Ltd MySupportBroker

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Newcastle Disability Forum Norfolk Association for the Disabled North Staffs Users Group North Tyneside Disability Forum North West Forum of People with Disabilities North Worcestershire Dial North Yorkshire Centre for Independent Living (NYCIL) One Voice Our Vision Our Future People Come First People First (Scotland) People First (Self Advocacy) People First Keighley & Craven PRO Disability (Poole Rights Organisation on Disability) Project SWAP CIC Pukar Disability Centre Redcar Real Opportunity Centre Richmond AID Rotherham Deaf Futures RUILS Salford Disability Forum Scottish Accessible Transport Alliance Scottish Disability Golf Partnership Services for Independent Living Shaping Our Lives Shopmobility Lochaber SCIO Sisters of Frida Skills for People South Yorkshire Centre for Inclusive Living Southwark Disablement Association Speakup Self Advocacy Ltd "SPECTRUM Centre for Independent Living CIC" Spinal Injuries Association Suffolk Coalition of Disabled People Suffolk User Forum Surrey Coalition of Disabled People Surrey Disabled People’s Partnership Surrey Independent Living Council The Disability Advice Project The Omnibus Partnership The Rowan Organisation Together! 2012 CIC Trafford Centre for Independent Living Universal Comedy Vale People First Vision Sense Warrington Disability Partnership

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West of England Centre for Inclusive Living Weston and North Somerset DIAL (Disability Information Advice Line) Wheelchair Dance Sport Association (UK) Whitby, Scarborough & Ryedale Disability Action Group Wigan & Leigh People First Wiltshire and Swindon Users’ Network Wiltshire Centre For Independent Living Wiltshire People 1st Wish Worthing SpeakAbout

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In addition the Disability Action Alliance (DAA) was initiated by the DWP and is a cross sector network of organisations, with both a disability and business focus, committed to working in partnership to make a positive difference to the lives of disabled people. The members include the following organisations: 121 Captions 3SC A4U : Action Advice Advocacy Ability Net Accessible Aid Action for Advocacy Action for Blind People Action for Kids Action Deafness Active Cumbria – The Sport and Physical Activity Alliance Active Devon Action for Disability and Work UK Action Duchene Active Gloucestershire Active Norfolk Active Surrey Active Sussex Adapt North East Adaptive Karate Advance Age UK Age UK Runnymede and Spelthorne Agency of the Future Alstrom Syndrome UK Amateur Swimming Association Amplifon Hearing Centre Archery GB Arriva UK Bus Arty-Folks Aspire Assist-Mi Assist UK Association of Directors of Adult Social Services Association of National Specialist Colleges Ataxia South Wales Attitude is Everything Autistic Gateshead Autistic Greenwich Autistic North East Autistic UK Autus Back Up Barclays Bank

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Basildon Disability Equality Forum Basketball England Bedfordshire Fire and Rescue Service Better Days BID Services Blackpool Fylde and Wyre Society for the Deaf Blackpool Transport Blue Assist UK Ltd Boccia England Border Force Bradford Disability Sport and Leisure British Bankers’ Association British Deaf Association British Gymnastics British Orienteering British Polio Fellowship British Shooting British Stammering Association British Weightlifting British Water Ski and Wakeboard British Wrestling Association Brittle Bone Society BTP Associates Buckinghamshire Disability Service Business Disability Forum Cabinet Office Campaya Canterbury and District Mental Health Forum Capital Project Trust Carlson Rezidor Hotels Carmarthenshire Disabled Access Group Catalyst Ltd Caudwell Children Centre for Accessible Environments Center for independent and Inclusive Living Redbridge Centre for Social Futures, Institute of Mental Health Centre for Transport Studies CHANGE Chief Fire Officers Association Cherry Orchard Gardening Service Cheshire Centre for Independent Living Cheshire Fire and Rescue Service Chesterfield Community Care Farm Choices and Rights Disability Coalition Christian Disability Action Network Clinks Community Navigator Services CIC Community Service Volunteers (CSV)

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Confederation of Passenger Transport Connect in the North Connect the communication disability network Connection storytelling and workshop CoolTan Arts Copeland Disability Forum Cornwall Fire & Rescue Service County Durham Sport Countryside Mobility South West C P Sport CSW Sport Daisy Inclusive UK Deaf Parenting UK Deaf to Work Deaf Unity Decipha CIC Demand Department for Business Innovations and Skills Department of Energy and Climate Change Department of Health Department for Transport Department for Work and Pensions Devon & Somerset Fire & Rescue Service DIAL Peterborough DIAL Southend Digital Accessability Centre Dimensions Disability Action Yorkshire Disability advice service Lambeth Disability Dynamics Ltd Disability Equality (North West) Disability Essex Disability First Disability Futures DisabledGo Disability Hate Crime Network Disability Information Zone Disability Karate Federation Disability North Disability Nottinghamshire Disability Online Disability Peterborough Disability Resource Centre (DRC) Disability Rights UK Disability Sheffield Centre for Independent Living ( DSCIL ) Disability Wales Disabled Holiday Directory Disabled and Aged Group Llandaff

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Disabled Golf Association CIC Disabled Responsive Organised People Disabled Persons Transport Advisory Committee Diversiti uk Donaldson’s School Donna’s Dream House Dosh Dwarf Sports Association UK Dyslexia Association of London East Sussex County Council East Sussex Disability Association Elbow Grease Enabled City Ltd Enable-Solihull Energize Shropshire Telford & Wrekin County Sports Partnership England Golf English Federation of Disability Sport Enham Trust Enrico Charles Humanitarian Organisation ENRYCH Epilepsy Society Equal Approach Equalities National Council Evenbreak Essex Coalition for Disabled People Essex County Fire and Rescue Service Exceptional Individuals The Fed Centre for Independent Living aFiner Day First Group FlatworldDigital fmcppopinclub Freedom Surf Fujitsu UK Get Berkshire Active Gloucestershire Fire & Rescue Service Gloucestershire Hospitals NHS Foundation GreaterSport Grid-Smarter Cities Guide Dogs Hao2.eu Halo Able Tec Harrow Asian Deaf Club Hassell Inclusion HearFirst Helping Hands Loan Store Hire a Hero High Furlong School and SEN College

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ICANN The Home Office Ideal for All Include me Too Inclusion Scotland Inclusive Play Independent Living Association Independent Living Alternatives Independent Living in Scotland Independent Trainers InspirativeArts Inspire Peterborough Instructability Jewish Care Join-Us Youth Projects Kent County Council Kent Sport and Physical Activity Service Key Outcomes Kids Kidz Aware Lancashire Sport Partnership Law Society Disability Division Learning Disability Wales Leicestershire Fire and Rescue Service Leicestershire & Rutland Sport Leonard Cheshire Disability Level Playing Field Limbcare Listen not Label Livability -Network for Change Living Options Devon Living Sport Lloyds Banking Group Local Government Association London Brokerage Network Lothian Centre for Independent Living London Visual Impairment Forum Manchester Disabled People’s Access Group Media School, Bournemouth University Mental Health Foundation Metro Blind Sports MG Associates MiFinder Milestone Medical Milton Keynes Wheelchair Users Group Mind Justice Norfolk Money Advice Service Monmouthshire County Council

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Movement for Hope Moving On With Life & Learning My Care at Home National Association of Deafened People National Development Team for Inclusion National Offender Management Service National Survivor User Network National Talking Newspapers & Magazines Neighbourhood Networks Newco Enterprises Limited Newlife Foundation Nimbus Disability Consultancy Northamptonshire Sport Northern Ireland Cross Community Angling North Tyneside Coalition of Disabled People Northumberland Disability and Deaf Network Northumberland Sport North West Leicestershire District Council North Yorkshire Sport Office for Disability Issues Older People’s Advocacy Alliance UK One Voice Disability Services Organisation of Blind Africans and Carribeans OSCA Citizen Advocacy Papworth Trust Pardon Group Parents Opening Doors Partners for Inclusion Passenger Focus Pentathlon GB People First (Self-Advocacy) People First Scotland Personalisation Forum Group Peterborough Council for Voluntary Service Phoenix Wheelchair Basketball Club Pimp My Cause Placeability Plotr Pony Access Portsmouth City Council Portsmouth Independent Living Network Proudlock Associates Public Health England Queen Elizabeth’s Foundation for Disabled People Randstad Student and Worker Support Raising Your Game Project Read Speaker Recite Me

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Recovery Partners Redbridge Vision Relationship Focus Group Remploy Riding for the Disabled Association Rochdale and District Disability Action Group Rotherham Disability Network Rounders England Royal London Society for Blind People Royal Strathclyde Blindcraft Industries Ruils (Disability Action and Advise Centre DAAC) SAVEdusap Charity Scope SEMPA CIC Sense Services for Independent Living Sesame Access Systems Ltd Shaping Our Lives Share Scotland Shaw Trust Sheffield Centre for Independent Living Signature Sky Badger Smiling Cat Ventures Snowsport England Social Information on Disability Social Care Institute for Excellence Social Enterprise Social Firms UK Solid State Somerset Activity and Sports Partnership Somerset Community Care Matters South Copeland Disability Group South East London Vision (SELVis) South East Network of Disabled People South Yorkshire Centre for Inclusive Living South Yorkshire Sport Spangle Creative Marketing Spark Inside Spinal Injuries Association Spinal Injuries Scotland Spinal Stenosis UK Sport Across Staffordshire and Stoke on Trent Sport Birmingham Sport Cheshire Sport England Sport Hampshire Sport Nottinghamshire

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St George’s Community Hydrotherapy Pool Stage Text Staffordshire Unison Stay Up Late Suffolk Advocacy Forum Surrey Coalition of Disabled People The Bike Experience The Disability Community The Football Association The Humber Sport Partnership The Centre for Workplace and Community Health The Legacy Rainbow House The Tennis Foundation The Vassall Centre Trust The Wheelchair Dance Sport Association (UK) Thomas Pocklington Trust Trafford Centre for Independent Living Transition Information Network Transport Research Laboratory (TRL) Travel Safe Buddy Trio Supported Holidays Turning Point Tyne and Wear Sport UK Council on Deafness UK Deaf Sport Useful Vision Visualise Training & Consultancy VoiceAbility Volley Ball England Voluntary Community and Social Enterprise (VCSE) sector Voluntary Action Within Kent (VAWK) Volunteer Cornwall Voluntary Organisations Disability Group Wandsworth Independent Living Forum Waveney Stardust Trust Ltd Warwickshire Association for the Blind Wave-length Social Marketing CIC Waymarks WellVine West Berkshire Council West Dunbartonshire Access Panel West Lancs Peer Support West Midlands Fire Service West Yorkshire Sport Wheel Chair Specialists Wheelfever Projects WheelPower-British Wheelchair Sport Whitby DAG

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Whitton Community Association and Centre Wiltshire and Swindon Sport CSP Witness Confident Whizz Kidz Women in Mind Worcester Volunteer Centre and Council for Voluntary Service Workers Educational Association Working 50 Plus