Angela Watson, Kirsten McKenzie, and Barry Watson
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Transcript of Angela Watson, Kirsten McKenzie, and Barry Watson
CRICOS No. 00213J
Us and them: data linkage from the perspective of custodians and users
Angela Watson, Kirsten McKenzie, and Barry WatsonInternational Data Linkage Conference, Perth May 2-4, 2012
Road safety A reliance on police data
• Good information about crash circumstances• Under-reporting• Injury outcomes• Cost and prioritisation• The new Australian National Road Safety
Strategy 2011-20203
Road safetyOther data sources
• Patients admitted to hospital• Emergency department • Ambulance Service• Coroner’s • Increasing interest in data linkage
What needs to be done first?• Data quality
– “garbage in garbage out”• Accessibility• Feasibility• Is it worthwhile?
What needs to be done first?• Data quality
– “garbage in garbage out”• Accessibility• Feasibility• Is it worthwhile?
What needs to be done first?• Data quality
– “garbage in garbage out”• Accessibility• Feasibility• Which model is most worthwhile?
Current study• Interviews with custodians, users, &
linkage experts• Data quality• Accessibility• Data linkage
Accessibility
Hierarchy
Data custodians
“We would only give aggregate data to the media or to the
public”“Researchers can get potentially identifiable data if they agree to
not report it publicly”“Can’t give potentially identifiable data to any external parties it’s a
matter of privacy”
Data users
“We have our own ethics processes, why is that
not enough?”“I understand why some things wouldn’t want to be made public, but I
don’t see researchers as the public”
Accessibility - Is it just privacy?
Interpret
Data custodians“So we spend a lot of time trying to explain what the limitations of
our data are”“Some researchers just
don’t understand the data at all”
Data users
“I think if you came in fresh and they hadn't
seen your name before, they would
have question marks.”
Accessibility - Is it just privacy?
Control
Data custodians
????
Data user
“If we're doing the work on behalf of them it's an easier process,
because they control the outcome”
What is data linkage?
WA
WAQLD
CODES (US)
Identifiers All data elements
Ad-
hoc
Rou
tine
Extent of data sharing
Freq
uenc
y
WA/QLD
Benefits of linkage Road safety
Validation tool
Validation tool
Under-reporting
Circumstances
Misclassification
Benefits of linkage Road safety
Validation tool
Under-reporting
Circumstances
Misclassification
Benefits of linkage Road safety
Validation tool
Under-reporting
Circumstances
Misclassification
Benefits of linkage Road safety
Add information
Without extra burden on collectors
Severity
Circumstances
Benefits of linkage Road safety
Add information
Without extra burden on collectors
Severity
Circumstances
Benefits of linkage Road safety
Benefits of linkage Road safety
Add information
Without extra burden on collectors
SeverityCrash
Pre-crash
Add information
Without extra burden on collectors
SeverityCrash
Pre-crash
Benefits of linkage Road safety
Add information
Without extra burden on collectors
Post-crashCrash
Pre-crash
Benefits of linkage Road safety
Crash event Pre-crash
EnforcementTraffic & criminal offence historyDrugs and alcoholEducationFamilyHealth
Crash event Pre-crash Crash
EnforcementTraffic & criminal offence historyDrugs and alcoholEducationFamilyHealth
Circumstances e.g., speeding, alcohol, fatigue
Crash event Pre-crash Crash Post-crash
EnforcementTraffic & criminal offence historyDrugs and alcoholEducationFamilyHealth
Circumstances e.g., speeding, alcohol, fatigue
Injury severityInjury outcomesMortality
Crash event Pre-crash Crash Post-crash
EnforcementTraffic & criminal offence historyDrugs and alcoholEducationFamilyHealth
Circumstances e.g., speeding, alcohol, fatigue
Injury severityInjury outcomesMortality
People seem to see the benefit, so why has it still not happened?
Barriers to linkage
Barriers
Capacity
Privacy
Reporting
Governance
Responsibility
Barriers to linkage
Barriers
Capacity
Privacy
Reporting
Governance
Responsibility
Barriers to linkage
Barriers
Capacity
Privacy
Reporting
Governance
Responsibility
Barriers to linkage
Barriers
Capacity
Privacy
Reporting
Governance
Responsibility
Barriers to linkage
Barriers
Capacity
Privacy
Reporting
Governance
Instigation
Summary• Accessibility problems may be more than
just about privacy• Relationships important• Different views on linkage
– Extent of sharing– Frequency
Summary• Benefits
– Validation tool– Adding information
• Barriers varied depending on model• What next.........
PhD
Piecing the puzzle together: data quality and linkage in road safety
PhD
Study 1 Interviews and
reviews
QualityAccessibilityFeasibility
Value
Study 2Non-linked data
analysis
Nature of dataQuality
FeasibilityValue
Study 3 Linked data analysis
QualityConcordance
FeasibilityValue
Crash event Pre-crash Crash Post-crash
EnforcementTraffic & criminal offence historyDrugs and alcoholEducationFamilyHealth
Circumstances e.g., speeding, alcohol, fatigue
Injury severityInjury outcomesMortality
PhD
One of a thousand post-doc ideas
Watch this space!
Mark your Diaries!
International Council on Alcohol, Drugs and Traffic Safety Conference (T2013)
26-29 August 2013, Brisbane