Alzheimers Fact and Figures

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August 20Santa Barbara County Edition

A monthly newsletter

for people partnering

with those affected by

Alzheimers disease

or other forms of

dementia.

California

Central Coast Chapter

1528 Chapala St., #204Santa Barbara, CA 93101

Tel: (805) 892-4259

24-Hour Helpline:

800-272-3900

www.alz.org/CaCentralCoast

2012 Alzheimers Disease Facts & Figure

Continues on next pag


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CAREGIVERTips & Tools Pa

Caregiver Tips

Know Your LimitsBe realistic about how muchof your time and yourself youcan give. Set clear limits, andcommunicate those limits todoctors, family members andother people involved.

Confide in OthersTalk to people about what youfeel; dont keep your emotions

bottled up. Caregiver supportgroups are invaluable, and

trusted friends and familymembers can help, too. Youmay also benefit from seeing atherapist or counselor.

Manage Your StressStress can cause physical

problems such as blurredvision, stomach irritation,and high blood pressure, aswell as changes in behaviorsuch as irritability, lack ofconcentration, and loss of

appetite. Note your symptoms,use relaxation techniques andtalk with your physician.

Become EducatedAs disease progresses,new caregiving skills arenecessary. Talk to a CareSpecialist, take a class, attenda workshop and research thedisease so that you can betterunderstand and cope with the

behaviors and personality

changes that often accompanydementia.

Take Care of YourselfWatch your diet, exercise andget plenty of rest. Make timefor shopping, a movie or avisit with a friend by takingadvantage of communityservices such as adult day careor in-home services.

The full text of the AlzheimersAssociations 2012 Alzheimers DiseaseFacts and Figures can be viewed atwww.alz.org.

Alzheimers Associations Facts and FiguresTheAlzheimers Associations Facts and Figurereport is a comprehensive compilation of nationastatistics and information on Alzheimers diseas

and related dementias. The report conveys theimpact of Alzheimers on individuals, families,

government, and the nations healthcare system.

Since its 2007 inaugural release, the report hasbecome the most cited source covering the broadspectrum of Alzheimers issues. TheAlzheimer

Disease Facts and Figures report is an officialpublication of the Alzheimers Association.


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Back by popular demand!

Help and Hope is an educational pro-

gram for people in the early stages of A

heimers disease or related dementia atheir primary caregivers.

Help and Hope focuses on families toprovide support (both by peers and the

facilitators) as well as key educational

topics that will help strengthen familybonds as they face Alzheimers disease

Help and Hope offers four modules (oa two-day program) covering importan

issues couples and families face as theytravel the Alzheimers journey together

Each module is delivered in a combinatformat of lecture, handouts, discussion

and exercises. Some of the topics inclu

the basics of diagnosis, communicationstrategies, therapy options, financial pl

ning and caring for the caregiver.

When: Monday and TuesdayOct 29 and 30, 10 a.m. 3 p.m

Where: The Hill-Carrillo Adobe Building

15 E. Carrillo, Santa Barbara, CA

Who: For people in the early stages of

Alzheimers disease or any form

related dementia and their primcaregivers.

Registration is required:

Space limited to 10-12 families.

Contact Luciana Cramer at

(805) 892-4259 x30 [email protected]

This program is part of a collaborative initiative between the Coast Caregiver ResourceCenter, Friendship Center, Sansum Clinic, Viting Nurse and Hospice Care, and the Alz-heimers Association.

This program has been made possible by thWilliams-Corbett Foundation.

CAREGIVERTips & ToPage 3 Community Education and Events

Free monthly educational opportunities for family caregivers to learn aboutresources and strategies in providing care for their loved ones.

This month presenting:

Late Stages I: Physical Changes and Caregiving RoleWednesday, Aug 22, 2-4 p.m.

at Senior Planning Services1811 State Street, Santa Barbara

Please contactMarci at (805) 966-3312 to RSVP.Most appropriate for families caring for Late stages of dementia:

Confident Caregiver SeriesWorkshops for Family Caregivers of Dementia Patients

Early Stages Mid Stages Late Stages

Santa Barbara Museum of ArtTuesday, August 14

2-3 p.m.1130 State Street, Santa Barbara

Join us for an EXCLUSIVE tour guided by expert docents.

Experience creative environments and stimulate the formation ofhealthy neuropathways that connect memories and visual-spatial andanguage abilities.

Cultural Connections is open to those with mild cognitive impairment or on medications for memory loss and their caregivers. Free.

Please call Luciana at (805) 892-4259 to RSVP.

Memory loss doesntmean loss of creativity.

Santa BarbaraNov. 3

Santa Barbara Zoo

Alz.org 800 272 3900


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CAREGIVERTips & Tools

trialmatch

Pa

Alzheimers Association Statement, Bapineuzumab Phase 3 Results

TrialMatch: Is it for you?

Through clinical trials, researcherstest new ways to detect, treat and pre-

vent Alzheimers disease and relateddementia. Without clinical trials, therecan be no new treatments or cures.

TrialMatch is a free service thatmakes it easy for people withAlzheimers, caregivers, families and

physicians to locate clinical trialsbased on personal criteria (diagnosis,stage of disease, etc.) and location.Learn more atalz.org/TrialMatch

Sign up: eNewsletter

Twice a year, we print a hard copy ofour Chapter newsletter. We are work-ing to grow our email database so wecan set the newsletter elec-tronically, which would save ourChapter thousands of dollars eachyear. To sign up today, call

(805) 892-4259, so you dont miss asingle thing!

Tribute for a loved one

Create a tribute today in memory orhonor of someone fightingAlzheimers. The process is

simple. Visit act.alz.org click Createa Tribute to honor a loved one, fol-low the simple steps to upload a photoof your loved one.

Looking for support?

Visit our Chapter online, at alz.org/cacentralcoast, where you will findlistings of all our support groups inyour area.

Become an Advocate

The Alzheimers AssociationCalifornia Central Coast Chapter invites you to become an Alzheimeradvocate. Please join us and speak for the needs and rights ofpeople with Alzheimers disease an

their families and caregivers. Sign

to become an advocate atalz.org/cacentralcoast.Join us in helping achieve our visioof creating a world withoutAlzheimer's disease.

Chicago July 23, 2012The Alzheimers Association, in its role as the leading advocate for the more than 5 million peoplwith Alzheimers in the U.S., their caregivers and family members, closely observes the trials of experimental Alzheimersand dementia therapies.

While we have high hopes for every Alzheimers and dementia therapy trial, history shows that progress is incremental andwe will have setbacks along the way. These setbacks also provide critical information to the research community for application in future studies. The Alzheimers Association is not surprised by these newly-announced results based on reports fromearlier studies in carriers of the ApoE4 Alzheimers risk gene.

While not the overall positive results we would all hope for, a positive finding is that the side effects profile appears to bemanageable based on the data currently released. This gives us hope for the potential usability of drugs of this type(immunotherapies that target a protein called beta amyloid in the brain) in future studies.

Trials of several Alzheimers drugs with varied mechanisms of action have shown differing results in people with the ApoEAlzheimers risk gene and those without it. This may also be the case with bapineuzumab. We learn more about Alzheimerdisease from every study and results from additional Phase 3 studies of this drug, in an additional population of people whocarry the ApoE4 gene as well as people who do not carry the gene, are expected soon.

The Alzheimers Association remains unwaveringly committed to finding better therapies and prevention for Alzheimers

disease and related disorders as well as providing 24/7 support for people and families facing Alzheimers disease today. We are eager for the launch of upcoming Alzheimers disease prevention trials, which were featured at the just -concludedAlzheimers Association International Conference (AAIC), and also about how the field will benefit from projects such asthe worldwide Alzheimer Disease Neuroimaging Initiative, which now includes whole genome sequencing for all

participants, and the International Genomics of Alzheimers Project.

The urgency is clear. By midcentury, care for people with Alzheimer's will cost the U.S. more than $1 trillion every year.This will be an enormous and unsustainable strain on the healthcare system, families, and federal and state budgets. Bettertreatments and prevention strategies are absolutely necessary to reduce the financial and personal toll the disease takes onindividuals, families and the healthcare system now and in the immediate future.

Alzheimers AssociationThe Alzheimer's Association is the worlds leading voluntary health organization in Alzheimers care, support and research. O ur missiois to eliminate Alzheimers disease through the advancement of research; to provide and enhance care and support for all affe cted; and treduce the risk of dementia through the promotion of brain health. Our vision is a world without Alzheimers. For more inform ation, viswww.alz.org.
http://visitor.constantcontact.com/manage/optin/ea?v=001JtLq2k4dXaJhJj_6fJNqYg%3D%3Dhttp://www.alz.org/trialmatchhttp://www.alz.org/cacentralcoast/index.asphttp://www.alz.org/cacentralcoasthttp://www.alz.org/cacentralcoasthttp://www.alz.org/cacentralcoast/index.asphttp://www.alz.org/trialmatchhttp://visitor.constantcontact.com/manage/optin/ea?v=001JtLq2k4dXaJhJj_6fJNqYg%3D%3D

Alzheimers Fact and Figures

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