ADVOCACY, EDUCATION, AND INFORMATION ADVOCACY (pg 1...

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ADVOCACY, EDUCATION, AND INFORMATION ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20) This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org. AdvEdInfoSeptember2013 1 © 2013 by NAMI PA, Main Line Resource Program/ Organization Address Contact Person Telephone Web and/or Email ( @ ) Comments Advocacy ADS Center 11420 Rockville Pike Rockville MD 20852 800.540.0320 M-F 9am-5pm http://promoteacceptance.sa mhsa.gov/ promoteacceptance@samhs a.hhs.gov ADS: Acceptance, Dignity and Social Inclusion Associated with Mental Health. Program of SAMHSA and CMHS to address discrimination and stigma associated with mental illness. Autism Living and Working 1528 Walnut Street, Suite 815 Philadelphia 19102 267.322.5800 www.autismlivingworking.org[email protected] g Helps adults with autism/ASD form and sustain households, hold jobs, and contribute to community life, through individual supports and accommodations. Holds monthly conference calls. Bazelon Center for Mental Health Law 1101 15 th St NW, #1212 Washington DC 20005 202.467.5730 www.bazelon.org [email protected] Influential organization for mental health law and advocacy. .Email alerts regarding upcoming federal legislation give background and advice on action. Campaign for Mental Health Reform William Emmet www.mhreform.org [email protected] Partnership of 18 national organizations, including NAMI, representing millions of people with mental disorders. Congress: contacting elected officials 800.828.0498 www.congress.org This site has names and contact info for national, state and local representatives, and has forms for email and letters you can create, print and mail. www.senate.gov www.house.gov www.legis.state.pa.us/cfdocs/ legis/home/find.cfm PA legislators by county, township, zip code www.vote-smart.org Medicare Rights Center 800.333.4114 www.medicarerights.org Works to ensure access to affordable health care for older adults and people with disabilities through counseling, educational programs and public policy initiatives.

Transcript of ADVOCACY, EDUCATION, AND INFORMATION ADVOCACY (pg 1...

Page 1: ADVOCACY, EDUCATION, AND INFORMATION ADVOCACY (pg 1 ...namipamainline.org/wp-content/uploads/2015/11/AdvEdInfoJSeptem… · advocacy, education, and information ADVOCACY (pg 1) --

ADVOCACY, EDUCATION, AND INFORMATION

ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20)

This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org.

AdvEdInfoSeptember2013

1

© 2013 by NAMI PA, Main Line

Resource

Program/

Organization

Address

Contact Person

Telephone

Web and/or Email ( @ )

Comments

Advocacy

ADS Center

11420 Rockville Pike Rockville MD 20852

800.540.0320 M-F 9am-5pm

http://promoteacceptance.samhsa.gov/ [email protected]

ADS: Acceptance, Dignity and Social Inclusion Associated with Mental Health. Program of SAMHSA and CMHS to address discrimination and stigma associated with mental illness.

Autism Living and Working 1528 Walnut Street, Suite 815 Philadelphia 19102

267.322.5800 www.autismlivingworking.org’ [email protected]

Helps adults with autism/ASD form and sustain households, hold jobs, and contribute to community life, through individual supports and accommodations. Holds monthly conference calls.

Bazelon Center for Mental Health Law

1101 15th St NW, #1212

Washington DC 20005 202.467.5730 www.bazelon.org

[email protected] Influential organization for mental health law and advocacy. .Email alerts regarding upcoming federal legislation give background and advice on action.

Campaign for Mental Health Reform

William Emmet www.mhreform.org [email protected]

Partnership of 18 national organizations, including NAMI, representing millions of people with mental disorders.

Congress: contacting elected officials

800.828.0498 www.congress.org This site has names and contact info for national, state and local representatives, and has forms for email and letters you can create, print and mail.

www.senate.gov

www.house.gov

www.legis.state.pa.us/cfdocs/legis/home/find.cfm

PA legislators by county, township, zip code

www.vote-smart.org

Medicare Rights Center 800.333.4114 www.medicarerights.org Works to ensure access to affordable health care for older adults and people with disabilities through counseling, educational programs and public policy initiatives.

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ADVOCACY, EDUCATION, AND INFORMATION

ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20)

This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org.

AdvEdInfoSeptember2013

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Resource

Program/

Organization

Address

Contact Person

Telephone

Web and/or Email ( @ )

Comments

Advocacy Mental Health America (MHA)

2000 N. Beauregard Street, 6th Floor Alexandria, VA 22311

800. 969.6642 www.nmha.org National organization, with state and local affiliates, for mental health advocacy, education and research. Also see NMHA under “Information” below and Mental Health Association for Southeastern PA under “Local Organizations” below.

National Alliance on Mental Illness (NAMI)

3803 N. Fairfax Dr., Suite 100 Arlington VA 22203

800.950.NAMI

www.nami.org [email protected]

National organization, with state and local affiliates, for mental health advocacy. Also See NAMI National under “Information” below and local affiliates under “Local Organizations” below. See website for NAMI publications and position statements.

National Alliance on Mental Illness—PA (NAMI PA)

2149 North Second St. Harrisburg 17110

800.223.0500 http://namipa.nami.org/ [email protected]

Pennsylvania ‘s NAMI affiliate.

NP Action 1742 Connecticut Avenue, NW Washington, DC 20009

202.234.8494 www.npaction.org Sponsored by OMB Watch, this site is an online resource for contacting local, state, and national policy makers.

Open Minds/Open Doors c/o MHAPA 1414 N. Cameron Street, 1st Floor Harrisburg, PA 17103

717.346.0549 www.openmindsopendoors.com [email protected]

A PA initiative coordinated by the Mental Health Association of Southeastern PA aimed at ending discrimination against people with MI.

Pennsylvania Health Law Project (PHLP)

The Corn Exchange, Suite 400 123 Chestnut St. Philadelphia PA 19106

800.274.3258 www.phlp.org

Devoted to helping low income, elderly and Pennsylvanians with disabilities gain access to quality health care.. Services are free to qualified individuals.

Pennsylvania Mental Health Consumers’ Association

4105 Derry St. Harrisburg, PA 17111

Pat Madigan, Interim Exec. Director

800.887.6422 http://pmhca.org/ [email protected]

Consumer staffed organization that advocates for MH consumers in PA

Pennsylvania Recovery Alliance (PRO-A)

Cheryl Floyd, Executive Director

800.858.6040 www.pro-a.org [email protected]

PRO-A will mobilize, educate and advocate to eliminate the stigma and discrimination toward those affected by alcoholism and other drug addiction to ensure hope, health and justice for individuals, families and

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ADVOCACY, EDUCATION, AND INFORMATION

ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20)

This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org.

AdvEdInfoSeptember2013

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Resource

Program/

Organization

Address

Contact Person

Telephone

Web and/or Email ( @ )

Comments

Advocacy those in recovery.

TAC – Treatment Advocacy Center

200 N. Glebe Road, Suite 730 Arlington, VA 22203

James Pavle, Exec Dir.

703.294.6001 www.treatmentadvocacycenter.org [email protected]

National non-profit organization dedicated to eliminating legal and clinical barriers to treatment. TAC advocates for court-ordered, assisted outpatient treatment.

The Foundation for Mental Health

10 Executive Drive Farmington, CT 06032

Diann Wienke, President

860.674.8920 www.thefoundationformentalhealth.org [email protected]

The Foundation advocates on mental health issues and works to improve public access to services to help people with mental illness achieve healthy, independent lives within their communities.

Education: civic

Breaking the Silence (BTS) NAMI Queens/ Nassau 1981 Marcus Avenue, Suite C-117 Lake Success, NY 11042

516.326.0797

www.btslessonplans.org [email protected]

Developed by NAMI Queens/Nassau County, NY. Tool kit includes lesson plans, games and posters on SMI for upper elementary, middle, and high school levels. .

Kristine Songster

267.251.6240 [email protected] NAMI PA, Main Line can teach lessons or provide lesson plan to schools

The Jason Foundation, Inc. 18 Volunteer Dr. Hendersonville TN 37075

888.881.2323 www.jasonfoundation.com Provides educational pr0grams and services for parents, youth, and teachers to end the “silent epidemic”—youth suicide.

NAMI’s In Our Own Voice—Living with MI

NAMI PA, Chester County 825 Paoli Pike, 3rd fl, Mailbox #6 West Chester 19380

Marilyn Baker 484.947.5673 610.430.0177

http://chester.nami.org [email protected]

Trained MH consumers share their stories of recovery with community groups.

NAMI PA, Delaware County P.O. Box 567 Lansdowne, PA 19050

Shirley Gallagher, President

610.623.0071 Mon, Wed, Fri 9am – 3pm

www.nami.org/sites/NAMIPA-DelawareCountyChapter [email protected]

NAMI PA, Main Line 320 Woodley Rd.

Kristine Songster

267.251.6240 www.NAMIpaMainLine.org [email protected]

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ADVOCACY, EDUCATION, AND INFORMATION

ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20)

This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org.

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Resource

Program/

Organization

Address

Contact Person

Telephone

Web and/or Email ( @ )

Comments

Education:civic Merion Station PA 19066-1413

NAMI PA, Montgomery County 100 South Keswick Ave. Glenside, PA 19038

Dawn Kretch 215.866.0350 10am-2pm or leave message

http://www.montconami.com/ [email protected]

Education: consumers

Mental Health Recovery P.O. Box 301 West Dummerston, VT 05357

Mary Ellen Copeland

802.254.2092 www.mentalhealthrecovery.com [email protected]

WRAP – Wellness Recovery Action Plan helps consumers learn early warning signs of instability and develop a prevention action plan. NOTE: WRAP is offered at several locations locally.

NAMI Peer-to-Peer

NAMI PA, Bucks County P.O. Box 355 Warrington 18974

Debbie Moritz 866.399.NAMI www.namibucks.org [email protected]

An experiential learning program for those with SMI who are interested in establishing and maintaining their wellness and recovery. Taught by trained MH consumers. Course is 2hr/week for 9 weeks.

Education: families

Family-to-Family Education Program

NAMI PA, Chester County 825 Paoli Pike, 3rd fl, Mailbox #6 West Chester 19380

Marilyn Baker

484.947.5673 610.430.0177

http://chester.nami.org [email protected]

12 week program for family members of persons with MI. Sessions cover information about illnesses of the brain and their treatment, coping skills, communication and advocacy. Taught by trained NAMI family members. Registration required.

NAMI PA, Delaware County

Shirley Gallagher, President

610.623.0071 Mon, Wed, Fri 9am – 3pm

www.nami.org/sites/NAMIPA-DelawareCountyChapter [email protected]

F2F classes are held at Springfield Hospital

NAMI PA, Main Line Judith Green 610.668.7917 or 267.251.6240

www.NAMIpaMainLine.org [email protected] or [email protected]

F2F classes are held near Lankenau Hospital in Wynnewood

NAMI PA, Montgomery County

Carol Caruso 215-886-0350 10am-2pm or leave message

http://www.montconami.com/ [email protected]

F2F classes are held in Glenside, Norristown and Pottstown

Education

TEC Family Center

1211 Chestnut Street (11

th floor)

Philadelphia, PA 19107

Edie Mannion

215.751.1800 x232 or x233 800.688.4226 X232 or x233

www.mhasp.org/services/tec.html [email protected]

Associated with Mental Health Association of Southeastern PA (MHASP). Provides information packet and workshops about MI. Offers 4-6 workshops/year ranging

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ADVOCACY, EDUCATION, AND INFORMATION

ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20)

This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org.

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Resource

Program/

Organization

Address

Contact Person

Telephone

Web and/or Email ( @ )

Comments

families

from 4-8 weeks. No fee for Philadelphia residents; small fee for others.

NAMI Basics Education Program

NAMI PA, Main Line Judith Green 610.668.7917 or 267.251.6240

www.NAMIpaMainLine.org [email protected] or [email protected]

Similar to the Family-to-Family program (see above) except that this is for caregivers of school-age children who have mental illness.

Information See also “Information by Topic” below

Active Minds on Campus 2647 Connecticut Ave, NW Suite 200 Washington, DC 20008

Sara Abelson, Program Director,

202.332.9595

www.activemindsoncampus.org [email protected] [email protected]

Student organization, founded at University of Pennsylvania that uses peer outreach to increase student mental health awareness and decrease stigma that surrounds MI. Provides information and resources to student members. Encourages students to seek help when needed.

ADA & IT Information Center for the Mid-Atlantic Region

451 Hungerford Drive, Suite 700 Rockville MD 20850

800.949.4232 www.adainfo.org/whatsnew/

Provides information on all aspects of the ADA to individuals and organizations in the Mid-Atlantic region. Has an extensive library of ADA and disability publications, most of which are free.

ADA Watch/National Coalition for Disability Rights

601Pennsylvania Avenue, NW, Suite 900S Washington, DC 20004

Jim Ward 202.448.9928 www.adawatch.org [email protected]

In partnership with Bazelon Center., alliance of hundreds of disability, civil rights and social justice organizations to promote the Americans with Disabilities Act (ADA).

American Association of People with Disabilities (AAPD)

1629 K St., NW, Ste 950 Washington, DC 20006

800.840.8844 www.aapd-dc.org

Cross-disability organization whose mission is to empower people living with disabilities by advancing the goals of the Americans with Disabilities Act (ADA).

Americans with Disabilities Act (ADA) Disability and Business Technical Assistance Cntr (DBTAC)

451 Hungerford Drive, Suite 700 Rockville, Maryland 20850

800.949.4232 www.adata.org [email protected]

Provides information and technical assistance on ADA requirements. Can make referrals to other agencies/web sites

Information American Psychiatric 1000 Wilson Blvd, 888.357.7924 www.psych.org APA represents 40,000 psychiatrists. Site

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ADVOCACY, EDUCATION, AND INFORMATION

ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20)

This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org.

AdvEdInfoSeptember2013

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Resource

Program/

Organization

Address

Contact Person

Telephone

Web and/or Email ( @ )

Comments

Association (APA) Suite 1825 Arlington VA 22209

[email protected] provides information about psychiatric conditions and links to other sites.

American Psychological Association

750 First St. NE Washington DC 20002

800.374.2721 www.apa.org Will provide a list of psychologists in the area.

Ask NOAH About: Mental Health Conditions

New York Online Access to Health New York Presbyterian Hospital

http://www.noah-health.org/en/mental/

NOAH provides access to high quality full-text consumer health information in English and Spanish that is accurate, timely, relevant and unbiased.

Boston University Center for Psychiatric Rehabilitation

940 Commonwealth Avenue, West Boston, MA 02215

617.353.3549 http://www.bu.edu/cpr/repository/index.html [email protected]

Repository of recovery resources

Depression and Bipolar Support Alliance Training and Technical Assistance

730 N. Franklin Street, Suite 501 Chicago, Illinois 60654-7225

800.826.3632 www.dbsalliancel.org

Creates and delivers training, technical assistance and consultation services from the perspective of people who live with mental illnesses. These services are available both on-site and electronically.

Families of People with Untreated Mental Illness

Rachel Diaz www.lackofinsightmi.org [email protected]

Disseminates knowledge about “lack of insight” or anosognossia.

Geriatric Mental Health Foundation

7910 Woodmont Ave, Suite 1050 Bethesda, MD 20814

301.654.7850 www.gmhfonline.org/gmhf/ [email protected]

Includes patient information, research, links, find a psychiatrist link

Healthfinder.gov P.O. Box 1133, Washington, DC 20013

www.healthfinder.gov [email protected]

Includes information on more than 1,600 clearinghouses, databases, websites, support and self-help groups, and governmental and private organizations that produce reliable information.

Information Healthy Place www.healthyplace.com Consumer run mental health information site with active chat rooms, hosted support groups, mental health news and weekly radio show.

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ADVOCACY, EDUCATION, AND INFORMATION

ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20)

This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org.

AdvEdInfoSeptember2013

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Resource

Program/

Organization

Address

Contact Person

Telephone

Web and/or Email ( @ )

Comments

Homelessness Resource Center

nrchmi.samhsa.gov [email protected]

Organization on the delivery of services of people who are homeless and have SMI. Has library, workshops, training, technical assistance.

Internet Mental Health www.mentalhealth.com [email protected]

Information on MI disorders, self-diagnosis, medications, a magazine, research, discussion groups and internet links.

Medline Plus 8600 Rockville Pike, Bethesda, MD 20894

800.421.4211 www.nlm.nih.gov/medlineplus [email protected]

Through the National Library of Medicine / National Institutes of Health, has medical and scientific articles and provides information on consumer topics, directories, and organizations

Medscape 370 Seventh Avenue, Suite 1101 New York, NY 10001

888.506.6098

www.medscape.com [email protected]

Resource centers include information on management of SMI, depression/bipolar disorder, schizophrenia, psychiatry and mental health. Also news and discussion links.

Mental Health America 2000 N. Beauregard St, 6

h floor

Alexandria, VA 22311

800.969.6642 www.nmha.org National organization with many affiliates, including MHASP. Provides Information, research, services. Bookstore on website. Provides mental illness screening in person, by telephone, and online for alcoholism, anxiety disorders, depression, and eating disorders.

Information

MH Interactive Harborside Financial Center 34 Exchange Place Plaza 3, Suite 806 Jersey City, NJ 07311

800.447.4474 http://www.cmellc.com/ Information for consumers, families, and practitioners. Site includes info on all MH disorders, medication information, mental health statistics, MH address book, articles and links. CME online course available for practitioners. MHInteractive contains “Ask the Mental Health Expert”, bulletin boards, educational updates, and MH mailing lists.

Nathan S. Kline Institute New York Office of 845.398.6503 www.rfmh.org/nki/mhguide.pd Mental health resources on the web for

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ADVOCACY, EDUCATION, AND INFORMATION

ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20)

This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org.

AdvEdInfoSeptember2013

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Resource

Program/

Organization

Address

Contact Person

Telephone

Web and/or Email ( @ )

Comments

for Psychiatric Research Mental Health 140 Old Orangeburg Rd. Orangeburg, NY 10962

f families.

National Alliance on Mental Illness (NAMI)

3803 N. Fairfax Dr., Suite 100 Arlington VA 22203

800.950.NAMI

www.nami.org

Information about mental illness (including NAMI produced brochures), research, legal, consumer support, education and training, book reviews, online communities, specials needs, estate planning. See “Local Organizations” for local NAMI chapters.

NAMI PA 2149 North Second St. Harrisburg, PA 17110

James Jordan, Executive Director

800.223.0500

http://namipa.org/ [email protected]

NAMI PA offers information, pamphlets and referrals. Has semi-annual regional conferences and an annual state conference to which the public is invited.

National Alliance for Research on Schizophrenia and Depression (NARSAD)

60 Cutter Mill Road, Suite 404 Great Neck, NY 11021

800.829.8289 www.narsad.org [email protected]

Donor-supported organization devoted to scientific research on psychiatric brain disorders. Provides brochures, videos, and other educational materials.

National Collaborative on Workforce and Disability for Youth

c/o Institute for Educational Leadership 4455 Connecticut Ave NW, Suite 310 Washington, DC 20008

877.871.0744 www.ncwd-youth.org

Composed of partners with expertise in disability, education, employment and workforce development policy.

National Empowerment Center

599 Canal St Lawrence, MA 01840

800.769.3728 www.power2u.org [email protected]

Offers technical assistance to those involved in empowerment activities. Distributes recovery-related publications and training activities.

National Guideline Clearinghouse

www.guideline.gov [email protected]

Sponsored by Agency for Healthcare Research and Quality (AHRQ). Clinical evidence-based clinical practice guidelines with annotated bibliography.

Information National Institute of Mental Health (NIMH)

6001 Executive Blvd. Room 8184, MSC9663 Bethesda MD 20892

866.615.6464 www.nimh.nih.gov [email protected]

Information covering all mental illnesses, research, legal, consumer support, education and training, book reviews, online communities, special needs, estate

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ADVOCACY, EDUCATION, AND INFORMATION

ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20)

This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org.

AdvEdInfoSeptember2013

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Resource

Program/

Organization

Address

Contact Person

Telephone

Web and/or Email ( @ )

Comments

planning, resources, services, medications.

National Mental Health Information Center

P.O. Box 2345 Rockville, MD 20847

800.789.2647

http://mentalhealth.samhsa.gov/

Sponsored by SAMHSA and CMHS. Comprehensive source of mental health information and resources.

National Stigma Clearinghouse

245 Eighth Ave #213, New York, NY 10011

http://www.stigmanet.org/ [email protected]

Links to anti-stigma programs, resources, research.

Office of Mental Health and Substance Abuse Services (OMHSAS)

P.O. Box 2675 Harrisburg 17105-2675

Joan Erney, Deputy Secretary

800-692-7462 or 717-787-6443

http://www.dpw.state.pa.us/about/OMHSAS/

Links to information about mental health and substance abuse.

Office of Mental Health New York

44 Holland Avenue Albany, New York 12229

800.597.8481 http://www.omh.state.ny.us/omhweb/cogdys_manual/cogdyshndbk.pdf

Cognitive Dysfunction in Mental Illness: Dealing with Cognitive Dysfunction Associated with Psychiatric Disorders is a self-help version of cognitive remediation that can be downloaded.

US Department of Justice—Americans with Disabilities Act (ADA) Information

950 Pennsylvania Avenue, NW Washington, D.C. 20530

800.514.0301 www.ada.gov

The Justice Department is responsible for enforcing the ADA law. Provides information and accepts complaints

US Psychiatric Rehabilitation Association (USPRA)

601 Global Way Suite 106 Linthicum, MD 21090

410.789.7054 www.uspra.org [email protected]

An association dedicated to advancing the practice of psychiatric rehabilitation and recovery. Each chapter provides members with educational opportunities, advocates for state legislative and regulatory changes, and promotes the development of leadership within the field of psychiatric rehabilitation.

See blue pages of telephone book for alcohol and drug problems, counseling, employment counseling, cash assistance, disability, housing, shelter, referral services, counseling services, support groups, and volunteer opportunities.

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ADVOCACY, EDUCATION, AND INFORMATION

ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20)

This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org.

AdvEdInfoSeptember2013

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Program/

Organization

Address

Contact Person

Telephone

Web and/or Email ( @ )

Comments

INFORMATION BY TOPIC

Information: alcohol and other addictions--see

substance abuse

Information: anorexia and bulimia—see eating

disorders

Information: anxiety

Anxiety Disorders Assn of America (ADAA)

8730 George Ave #600 Silver Spring, MD 20910

240.485.1001 www.adaa.org [email protected]

The Anxiety Disorders Association of America (ADAA) is a national nonprofit organization dedicated to the prevention, treatment, and cure of anxiety disorders and to improving the lives of all people who suffer from them.

Information: anxiety

Freedom From Fear 308 Seaview Avenue Staten Island NY 10305

718.351.1717 www.freedomfromfear.com [email protected]

And anxiety and depression resource organization. Links to resources.

National Institute of Mental Health (NIMH)

6001 Executive Blvd Room 8184 ,MSC9663 Bethesda, MD 20892

888.ANXIETY 866.615.6464

www.nimh.nih.gov [email protected]

Anxiety disorders include panic disorder, obsessive compulsive disorder (OCD), post traumatic stress disorder (PTSD), phobias (social and specific phobias) and generalized anxiety disorder.

Information: attachment disorder

Association for Treatment and Training in the Attachment of Children

P.O. Box 533 Lake Villa, IL 60046

866.453.8224 www.attach.org [email protected]

Information about reactive attachment disorder. Has quarterly newsletter and annual conference.

Attachment & Trauma Network

P.O. Box 164 Jefferson, MD 21755

Julie Beem Executive Director

240.357.7369 www.radzebra.org [email protected]

Serving children and families affected by attachment disorder.

Information: attention deficit disorder

Attention Deficit Disorder Association

ADDA PO Box 7557 Wilmington, DE 19803

800.939.1019 www.add.org [email protected]

Resource information, support, advocacy, publications, referrals to support groups.

ADD Warehouse 300 Northwest 70th Ave 800.233.9273 http://addwarehouse.com Central location for ordering books, tapes,

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ADVOCACY, EDUCATION, AND INFORMATION

ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20)

This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org.

AdvEdInfoSeptember2013

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Program/

Organization

Address

Contact Person

Telephone

Web and/or Email ( @ )

Comments

Suite 102 Plantation, FL 33317

[email protected]

assessment scales, and videos selected to help parents and others affected by attention deficit (hyperactivity) disorder.

Attention Deficit Information Network, Inc. (AD-IN)

475 Hillside Avenue Needham, MA 02194

617.455.9895 http://addinfonetwork.com [email protected]

Offers support and information to families of persons with ADD and professionals through a network of AD-IN chapters.

Children and Adults with Attention Deficit Disorder (CHADD)

8181 Professional Place Suite 150 Landover, MD 20785

800.233.4050 www.chadd.org Advocacy and education organization with 200 chapters. Offers information about Attention Deficit Disorder and Attention Hyperactivity Deficit Disorder and consumers’ legal rights.

Information: autism

About: What are the Autism Spectrum Disorders?

http://autism.about.com/od/whatisautism/tp/ASDs.htm

Website where families and individuals can find resources and ask questions of experts.

Advisory Board on Autism and Related Disorders (ABOARD)

35 Wilson Street Pittsburgh, PA 15223

800.827.9385 www.aboard.org [email protected]

Committed to maximizing the potential and possibilities of Pennsylvanians with autism. In conjunction with MedRespond, has a communication tool, the Autism Answer Engine, to inform the public about autism.

Autism in PA Bureau of Autism Serv Dept of Public Welfare P.O. Box 2675 Harrisburg 17105

866.539.7689 www.dpw.state.pa.us/services/programs/autism

Information about Adult Community Autism Program (ACAP)—how adults living with Autism Spectrum Disorder can get needed services--and other resources for individuals and families living with autism.

Autism Link 135 Cumberland Rd., Suite 105 Pittsburgh, PA 15237

412.364.1886 www.autismlink.com [email protected]

Information, online support groups and discussion boards.

CDC link to Autism Centers for Disease Control and Prevention 1600 Clifton Rd. Atlanta GA 30333

800.232.4636 www.cdc.gov/ncbddd Information, projects at the Centers for Disease Control and other agencies, state activities, resources, and information about ASD in children.

Information:

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ADVOCACY, EDUCATION, AND INFORMATION

ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20)

This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org.

AdvEdInfoSeptember2013

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Resource

Program/

Organization

Address

Contact Person

Telephone

Web and/or Email ( @ )

Comments

bipolar disorder—

see mood disorder

Information: borderline personality disorder (BPD)

McLean Hospital 115 Mill Street Belmont, MA 02478

800.333.0338 www.mclean.harvard.edu/patient/adult/bpd.php [email protected]

Information on borderline personality disorder treatment

National Education Alliance for BPD

PO Box 974 Rye, New York 10580

http://www.borderlinepersonalitydisorder.com/ [email protected]

Resources, publications, upcoming events.

Treatment and Research Advancements (TARA) National Association for Personality Disorder

23 Greene Street New York, NY 10013

Valerie Porr, Founder and President

212.966.6514 www.tara4bpd.org [email protected]

Resources, publications, upcoming events, support information and referrals.

Information: child and adolescent

Bipolar Child bipolarchild.com Provides book, newsletter, lectures.

Center for the Advancement of Children’s Mental Health

Columbia University/NYSPI 1051 Riverside Dr., #78 New York, NY 10032

Kimberley Stewart

212.543.5797 www.kidsmentalhealth.org [email protected]

Lists best practices, information, hands-on training and research.

Child and Adolescent Bipolar Foundation

820 Davis St., Suite 520, Evanston IL 60201

847.492.8519 www.bpkids.org [email protected]

Resources for parents including education accommodations, medications and treatment.

Evidence-based Mental Health Treatment for Children and Adolescents

Mitch Prinstein Ph.D., Website Coordinator

www.effectivechildtherapy.com [email protected]

Information about the most up-to-date treatment and practices for children and adolescents. Lists treatments that have been evaluated scientifically for effectiveness.

Kids Together, Inc. Kids Together, Inc. P.O. Box 574 Quakertown, PA 18954

www.kidstogether.org [email protected]

Sponsored by Federation of Families for Children’s Mental Health. Information and resources for children and adults.

CopeCareDeal – A Mental Health Site for Teens

www.copecaredeal.org [email protected]

Website for teens sponsored by Annenberg Foundation Trust.

Information: New York University Child 577 First Ave. 212.263.6622 www.aboutourkids.org AboutOurKids library offers extensive

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ADVOCACY, EDUCATION, AND INFORMATION

ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20)

This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org.

AdvEdInfoSeptember2013

13

Resource

Program/

Organization

Address

Contact Person

Telephone

Web and/or Email ( @ )

Comments

child and adolescent

Study Center New York, NY 10016 [email protected]

information for families and parents of depressed children.

PA Children’s News Site c/o MHAPA 1414 N. Cameron Street 1st Floor Harrisburg, PA 17101

866.578.3659 www.pachildrensnews.org [email protected]

Sponsored by the Mental Health Association in PA (MHAPA).

ParentsMedGuide www.ParentsMedGuide.org Resource center for families on treating depression in adolescents and children. Sponsored by APA and AACAP.

Research and Training Center on Family Support and Children’s Mental Health

Portland State University Research and Training P.O. Box 751 Portland, OR 97207

Janet Walker 503.725.4040 www.rtc.pdx.edu [email protected]

Dedicated to improving services to children with emotional, behavioral or mental disorders and their families. Holds annual conference. Website offers publications, discussion groups and links.

Information: clinical trials

National Institute for Health (NIH)

http://clinicaltrials.gov National Library of Medicine database of federally and privately supported clinical research.

Information: criminal justice

Criminal Justice/Mental Health Information Network

100 Wall Street, 20th Floor New York, NY 10005

212.482.2320 www.cjmh-infonet.org [email protected]

A national effort to help policymakers and criminal justice and mental health professionals improve the response to people with mental illnesses who come into contact with the criminal justice system.

Disability Rights Education and Defense Fund (DREDF)

2212 Sixth Street Berkeley CA 94710

800.348.4232 www.dredf.org [email protected]

National law and policy center in disability civil rights.

Police Executive Research Forum (PERF)

1120 Connecticut Avenue, NW Suite 930, Washington DC, 20036

202.466.7820 www.policeforum.org A national membership organization of progressive police executives from the largest city, county and state law enforcement agencies. PERF is dedicated to improving policing and advancing professionalism through research and involvement in public policy debate.

Information:

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ADVOCACY, EDUCATION, AND INFORMATION

ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20)

This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org.

AdvEdInfoSeptember2013

14

Resource

Program/

Organization

Address

Contact Person

Telephone

Web and/or Email ( @ )

Comments

depression—see

mood disorders

Information: drug abuse—see

substance abuse

Information: dual diagnosis

Co-occurring Mental Health and Substance Abuse Disorders

www.pa-co-occurring.org Reports, articles, resources, links.

National GAINS Center 800.311.GAIN

http://gainscenter.samhsa.gov [email protected]

National locus for the collection and dissemination of information about effective MH and SA services for people with co-occurring disorders in contact with the justice system. Funded by CMHS.

Information: eating disorders

American Anorexia/Bulimia Association of Philadelphia

215.221.1864 aabaphila.org [email protected]

Provides information and materials and support group information.

The Harris Center (Formerly the Harvard Eating Disorders Center)

2 Longfellow Place Suite 200 Boston, MA. 02114

David Herzog, MD

617.726.8470 http://www.harriscentermgh.org/ [email protected]

Dedicated to expanding knowledge about eating disorders, their detection, treatment and prevention.

National Association of Anorexia and Associated Disorders

PO Box 7 Highland Park, IL 60035

847.831.3763 www.anad.org [email protected]

Information, help and support available online and through the hotline.

National Eating Disorders Association (NEDA)

603 Steward St. #803 Seattle, WA 98101

800.931.2237 www.nationaleatingdisorders.org [email protected]

Research, advocacy, online newsletter, links, and referrals

Information: families

Federation for Families for Children’s Mental Health

9605 Medical Center Dr. Rockville, MD 20850

Marion Mealing Admin. Asst.

240.403.1901 www.ffcmh.org [email protected]

Information and publications on children’s mental health, workshops, speakers’ bureau, crisis info and support groups.

National Family Caregivers Association (NFCA)

10400 Connecticut Ave., Suite 500 Kensington MD 20895

800.896.3650 www.nfcacares.org [email protected]

To educate, support, empower and speak up for caregivers.

Information Parent to Parent of Pennsylvania

888.727.2706 PA calls only

www.parenttoparent.org [email protected]

Created by families of children and adults with special needs. Connects families in

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ADVOCACY, EDUCATION, AND INFORMATION

ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20)

This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org.

AdvEdInfoSeptember2013

15

Resource

Program/

Organization

Address

Contact Person

Telephone

Web and/or Email ( @ )

Comments

families similar situations with one another.

ParentsMedGuide www.ParentsMedGuide.org Resource center for families on treating depression in adolescents and children. Sponsored by APA and AACAP.

Pennsylvania Families, Inc. (PFI)

431 Dever Hollow Road Templeton PA 16259

Dianna Brocious

800.947.4941 http://www.pafamiliesinc.com/index.cfm [email protected]

Goal is to network support groups, advocates, parent mentors and organizations that assist families who are raising children with emotional or behavioral disorders. Funded by SAMHSA.

Research and Training Center on Family Support and Children’s Mental Health

Portland State University Research and Training P.O. Box 751 Portland OR 97207

Janet Walker 503.725.4040 www.rtc.pdx.edu [email protected]

Dedicated to improving services to children with emotional, behavioral or mental disorders and their families. Holds annual conference. Website offers publications, discussion groups and links.

Information: grief/loss

The Dougy National Center for Grieving Children and Families

www.dougy.org Provides support where children, teens and families grieving a death can share experiences.

Friends for Survival, Inc. www.friendfsforsurvival.org Provides a variety of peer support services that comfort those in grief and help develop skills to cope with a loss caused by suicide.

Information: medications (also see “Medication Assistance” in Benefits and Schooling section)

Ask the Pharmacist Scattergood Building—Friends Hospital 4641 Roosevelt Blvd. Philadelphia, PA 19124

610.543.2966 215.831.4894

http://www.friendshospitalonline.org/Family%20Resource%20Center.htm [email protected]

There is a volunteer pharmacist at the Family Resource Center at Friends Hospital. For questions, leave clear voice mail; appointments are available on Thursdays.

Information: missing persons

Find Missing People http://findmissingpeople.com Register people missing, make ksome free searches, or join discussion groups for friends/family of missing people.

Missing Persons Register www.personsmissing.org Missing persons register. For help in locating missing people you seek easily, and for the least possible cost.

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ADVOCACY, EDUCATION, AND INFORMATION

ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20)

This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org.

AdvEdInfoSeptember2013

16

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Program/

Organization

Address

Contact Person

Telephone

Web and/or Email ( @ )

Comments

Vial of Life Project http://vialoflife.com Free proactive service to store your emergency contacts, next of kin and vital medical information that would be critical to emergency response agencies. Stored information is only accessible by emergency public trust agencies. Free decals for your driver’s license or ID card. .

Information: mood disorders

College of Psychiatric and Neurologic Pharmacists

8055 O Street Suite S113 Lincoln, NE 68510

402.476.1677 www.cpnp.org [email protected]

The mission of CPNP is to promote excellence in pharmacy practice, education and research to optimize treatment outcomes of individuals affected by psychiatric and neurologic disorders.

Child and Adolescent Bipolar Foundation

820 Davis St., Suite 520, Evanston, IL 60201

847.492.8519 www.bpkids.org [email protected]

Parent-led, not-for-profit, web-based organization of families raising children who have (or are at risk for) bipolar disorder. Hours are 8am-5pm CST. Resource directory allows searches for doctors, clinicians, schools, camps, etc.

Depression and Bipolar Support Alliance (DBSA)

730 Franklin St, #501 Chicago, IL 60610

800.826.3632

www.dbsalliance.org Formerly The Depressive and Manic-Depressive Assoc (DMDA). Information on mood disorders including resources, book reviews, and information on clinical trials. DBSA sponsors several local support groups for people with mood disorders and their families.

Families for Depression Awareness

395 Totten Pond Road, Suite 404 Waltham, MA 02451

781.890.0220

http://www.familyaware.org [email protected]

To help families recognize and cope with depressive disorders. Has a conference, booklets, and support group.

Kyle’s Tree House 1080 Stackhouse Mill Road Newtown Square, PA 19073

www.kylestreehouse.org [email protected]

Information on treatment options, research, the latest news and other topics; a community where you and others in similar situations can find help and help each other.

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ADVOCACY, EDUCATION, AND INFORMATION

ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20)

This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org.

AdvEdInfoSeptember2013

17

Resource

Program/

Organization

Address

Contact Person

Telephone

Web and/or Email ( @ )

Comments

Information: obsessive-compulsive disorder (OCD)

International Foundation for Research and Education on Depression (iFred)

PO Box 17598 Baltimore, MD 21297-1598

410-268-0044 www.depression.org [email protected]

Formerly, the National Foundation for Depressive Illness (NAFDI). A foundation that provides information on depression and its treatability and that promotes research, education, and treatment.

Obsessive-Compulsive (OC) Foundation

PO Box 961029 Boston, MA 02196

617.973.5801 www.ocfoundation.org [email protected]

Education about OCD and related disorders; assistance for individuals with OCD and related disorders, their family and friends; research support into the causes and effective treatments of OCD and related disorders.

The Peace of Mind Foundation

Linda McIngvale 1200 Wilcrest Drive Houston, Texas 77042

Linda McIngvale

713-854-1889 www.peaceofmind.com [email protected]

Dedicated to bringing top of mind awareness to the issue of mental illness, with the goal of eliminating these diseases so that one day all will have peace of mind.

Information: post-traumatic stress disorder (PTSD)

National Center for PTSD 802.296.6300 www.ncptsd.org [email protected]

Resources for veterans, providers, and researchers.

Sidran Foundation for PTSD

200 East Joppa Road Suite 207 Baltimore, MD 21286

888.825.8249 www.sidran.org [email protected]

Trauma training, resource articles, books.

Information: schizophrenia

Schizophrenia and Related Disorders Alliance of America (SARDAA)

www.sardaa.org

Promotes improvement in the lives of peoplw with schizophrenia and their families. Holds toll-free monthly conference calls first Wednesday of the month, 7 p.m.-- 888.617.3400, access code 1086548#. .

The Schizophrenia Homepage

www.schizophrenia.com [email protected]

Information about schizophrenia, recovery, research, statistics, advocacy, recommended books, discussion boards, and support. Monthly newsletter available by e-mail.

Information: schizophrenia

Schizophrenia Research Forum

www.schizophreniaforum.org Sponsored by NARSAD, timely updates on research, profiles, and live chats with experts. Links to major institutions

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ADVOCACY, EDUCATION, AND INFORMATION

ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20)

This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org.

AdvEdInfoSeptember2013

18

Resource

Program/

Organization

Address

Contact Person

Telephone

Web and/or Email ( @ )

Comments

worldwide including Schiz_Gene (SZGene) database.

Information: substance abuse

Centers for Substance Abuse Prevention (CSAP)

Frances M. Harding

240-276-2420 www.prevention.samhsa.gov/ Part of Substance Abuse and Mental Health Services Administration (SAMHSA)

Center for SA Treatment (CSAT)

240.276.2750 800.662.HELP

www.csat.samsha.gov Along with CSAP (above) part of SAMSHA

National Clearinghouse for Alcohol and Drug Information

P.O. Box 2345 Rockville, MD 20847

800.729.6686 Or 877.SAMHSA.7

http://ncadi.samhsa.gov/ Can refer you to local affiliates for a wide range of services for individuals with addictions and support groups for families.

National Council on Alcoholism and Drug Dependence, Inc (NCADD)

244 East 58th Street, 4

th Floor

New York, NY 10022

800.NCACALL (Hope Line) or 212.269.7797

www.ncadd.org [email protected]

Provides education, information, help, and hope to the public. NCADD operates a toll-free Hope Line (800-NCA-CALL) for information and referral and a National Intervention Network (800-654-HOPE) to educate and assist the families and friends of addicted persons.

National Institute on Alcohol Abuse and Alcoholism (NIAAA)

5635 Fishers Lane, MSC 9304 Bethesda, MD 20892

301.443.3860 www.niaaa.nih.gov [email protected]

Provides information and publications relating to alcohol use and abuse.

National Institute on Drug Abuse (NIDA)

6001 Executive Blvd., Room 5213 Bethesda, MD 20892

301.443.1124 www.drugabuse.gov [email protected]

Provides information for parents, teachers, students, health professionals. Offers research reports, fact sheets, and information about dual diagnoses. On-line publications are available.

PA Department of Health Research and Information Clearinghouse

Health and Welfare Building 7th & Forster Streets Harrisburg, PA 17120

877.PA.HEALTH

http://webserver.health.state.pa.us/health/padohric/

Provides information and booklets for prevention and treatment of SA.

Suicide prevention Information: suicide prevention

American Association of Suicidology (AAS)

5221 Wisconsin Avenue, NW Washington, DC 20015

202. 237.2280 www.suicidology.org Advocacy, information, research, links

American Foundation for Suicide Prevention (AFSP)

Greater Phila Chapter 3535 Market St. #4047

Pat Gainey, Philadelphia

215.746.7256 [email protected]

Contact AFSP for information regarding support groups, conferences, community

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ADVOCACY, EDUCATION, AND INFORMATION

ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20)

This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org.

AdvEdInfoSeptember2013

19

Resource

Program/

Organization

Address

Contact Person

Telephone

Web and/or Email ( @ )

Comments

local Philadelphia, PA 19104 Regional Director

events, programs, and volunteer opportunities.

American Foundation of Suicide Prevention (AFSP) national

120 Wall Street, 22nd

fl New York, NY 10005

888.333.AFSP www.afsp.org [email protected]

Publishes information on suicide prevention and a guide called: Survivors of Suicide that includes bibliography

Organization for Attempters and Survivors of Suicide in Interfaith Services (OASSIS)

211 Russell Ave., Apt. 71 Gaithersburg, MD 20877

James Clemons, Ph. D.

www.oassis.org [email protected]

Links, resources, publications, conference

Centre for Suicide Prevention

Suite 320, 1202 Centre Street S.E. Calgary, AB T2G 5A5 Canada

403.245.3900 http://www.suicideinfo.ca/csp/go.aspx [email protected]

Computer-assisted resource library containing print and audio-visual materials on suicide. Also has literature search capability and clipping service.

Suicide Prevention Advocacy Network USA (SPAN)

1010 Vermont Avenue, NW, Suite 408 Washington, DC 20005

202.449.3600 www.spanusa.org [email protected]

National advocacy organization for development of a proven effective suicide prevention program. Network for legislative initiatives and public action

Suicide Prevention Resource Center (SPRC)

1000 Potomac Street NW, Suite 350 Washington, DC 20007

877.GET SPRC 877.438.7772

www.sprc.org [email protected]

Funded by SAMHSA and Education Development Center, SPRC works in collaboration with ten partner organizations, including NAMI. Provides prevention support, training, and informational materials.

Information: Tourette Syndrome

Pennsylvania Tourette Syndrome Association, Inc.

132 W. Middle Street Gettysburg, PA 17325

800.990.3300 www.patsainc.org/ [email protected]

Provides information, resources, and support groups.

National Tourette Syndrome Association, Inc.

42-40 Bell Blvd Bayside, NY 11361

718.224.2999 www.tsa-usa.org [email protected]

Links to education, research, resources, referrals, local chapters; has a national conference every two years.

trichotillomania trichotillomania

Trichotillomania Learning Center

207 McPherson St., Suite H Santa Cruz CA 95060

831.457.1004 www.trich.org

Non-profit center for information, education, outreach and support for hair pulling and skin picking.

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ADVOCACY, EDUCATION, AND INFORMATION

ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20)

This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org.

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Resource

Program/

Organization

Address

Contact Person

Telephone

Web and/or Email ( @ )

Comments

Local organizations

Active Minds on Campus www.activemindsoncampus.org

Active Minds increases student awareness of MI, provides information and resources; encourages students to seek help as soon as it’s needed. Local chapters at Bryn Mawr College, Cabrini College, Drexel Univ., Immaculata Univ., Juniata College,, Montgomery County Community College, Philadelphia Univ., Temple Univ, UofP, Ursinus College and West Chester Univ .

Advocates for the Jewish Mentally Ill (AJMI/Tikvah)

P.O. Box 52730 Philadelphia, PA 19115

215.832.0671

www.tikvahajmi.com [email protected]

AJMI/Tikvah partners with the Jewish Federation of Greater Philadelphia

Association of Jewish

Family & Children’s Agencies (AJFCA)

620 Cranbury Road, Ste 102 East Brunswick, NJ 08816

800.634.7346 www.ajfca.org [email protected]

Offers mental health services at the local level, many of which are provided without regard to religious affiliation.

Catholic Charities USA

66 Canal Center Plaza Suite 600 Alexandria, VA 22314

703.549.1390 www.catholiccharitiesusa.org [email protected]

Local agencies provide social services ranging from food and housing to counseling and vocational training, without regard to religious affiliation.

Chester County Office of

MH/MR 601 Westtown Rd., Suite 340 West Chester PA 19380

610.344.6265 800.692.1100 x6265

www.chesco.org/mhmr

Chester County Office of Addictive Diseases (COAD)

930 E. Lancaster Ave. Exton PA 19341

Tracey Behringer

610.363.6164 www.coadgroup.com

Delaware County Office of Behavioral Health

20 S. 69th St.

Upper Darby PA 19082 610.713.6265 www.co.delaware.pa.us/hum

anservices/obh/behavhealth.html

Local organizations

Delaware County Suicide Prevention and Awareness Task Force

P.O. Box 175 Four State Rd. Media 19063-1413

www.delcosuicideprevention.org [email protected]

Provides education, resources and support to tell the community about suicide and suicide loss and to eliminate the stigma associated with suicide.

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ADVOCACY, EDUCATION, AND INFORMATION

ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20)

This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org.

AdvEdInfoSeptember2013

21

Resource

Program/

Organization

Address

Contact Person

Telephone

Web and/or Email ( @ )

Comments

Feeling Blue Suicide Prevention Council

P.O. Box 7193 St. Davids, PA 19087

610.715.0076 www.feelingblue.org [email protected]

Sponsored by New Beginnings at Resources for New Development (RHD). Resources for persons at risk and support for survivors.

Mental Health Association of Southeastern PA (MHASP)

1211 Chestnut St, 11th fl

Philadelphia, PA 19107 215.751.1800

800.688.4226 www.mhasp.org [email protected]

Local affiliate of National Mental Health Association (NMHA). Information and referral for the greater Philadelphia area. Provides ACT NOW (consumer employ-ment training), Compeer (consumer companion program), Community Support Programs, consumer centers, temporary housing, services for the homeless, PIN (Parents Involved Network), case manage- ment, targeted case management, TEC (Training, Education and Consultation) for the family, and other services.

Minding Your Mind Foundation

42 W. Lancaster Ave., 2

nd fl.

Ardmore 19003

Susan Saler 610.642.3879 www.mindingyourmind.org Outreach programs for students, families and educators about MI warning signs; promotes open dialogue in school and at home to encourage families to seek appropriate help.

NAMI North Central Philadelphia

Delores Jackson

215.228.7214 http://philadelphia.nami.org [email protected] http://philadelphia.nami.org [email protected]

Advocacy, information, support Meets third Thursday every other month (February, April, etc.) at 6 p.m. at Silver Springs Center, 2

nd fl.

1701 W. Lehigh Ave., Philadelphia

Local organizations

NAMI Northeast Philadelphia

P.O. Box 24763 Philadelphia 19111

Judy Long

215.342.9553 Advocacy, information (including newsletter), support Meets third Tuesday of month (except July and August) at PATH, Inc. 8820 Castor Ave., Philadelphia at 7 p.m.

NAMI Northwest Philadelphia

Gloria Worthy 215.224.6307 Meets first Tuesday of month at 6 p.m. Northwestern Human Resource Center

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ADVOCACY, EDUCATION, AND INFORMATION

ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20)

This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org.

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Resource

Program/

Organization

Address

Contact Person

Telephone

Web and/or Email ( @ )

Comments

W27 E. Mt. Airy Ave., Philadelphia

NAMI PA, Chester County 825 Paoli Pike, 3rd fl, Mailbox #6 West Chester 19380

Marilyn Baker

484.947.5643 Helpline— 610.430.0177

http://chester.nami.org [email protected]

Advocacy, education, newsletter, referrals, support groups. Meets third Thursday of the month (except July-Aug) at 7pm at Christ Memorial Lutheran Church, lower level, Paoli Pike and Line Rd., Malvern.

NAMI PA, Delaware County

NAMI PA, Delaware County P.O. Box 567 Lansdowne, PA 19050

Shirley Gallagher, President

610.623.0071 Mon, Wed, Fri 9am – 3pm

www.nami.org/sites/NAMIPA-DelawareCountyChapter [email protected]

Advocacy, education, newsletter, referrals, support groups. Meets first Wednesday of the month, (except July-Aug), 7:30pm, at First Presbyterian Church of Lansdowne, Greenwood and Lansdowne Avenues.

NAMI PA, Main Line 320 Woodley Road Merion, PA 19066-1413

Kristine Songster

267.251.6240 www.nami.org/sites/NAMIPAMainLine [email protected]

Advocacy, education, newsletter, referrals, support groups. Holds forums in Mar, May, Sept, Nov, weekly physical activity group, winter potluck supper, and summer picnic.

NAMI PA, Montgomery County

100 South Keswick Glenside, PA 19038

Dawn 215.866.0350 10am-2pm or leave message

http://www.montconami.com/ [email protected]

Advocacy, education, newsletter, referrals, support groups. Meets third Sunday of the month at Glenside office, 1:45pm: informational meeting with speaker.

Norristown Office Catholic Social Services 363 E. Johnson Hwy Norristown, PA 19401

610.278.4916

Local organizations

Pottstown Office Creative Health Services, 11 Robinson Street, Room B4 Pottstown, PA 19464

610.323.6689

NAMI Philadelphia, Hispanoparlante

Ramon Castro 610291.2549 http://philadelphia.nami.org

National MH Consumers’ Self-help Clearinghouse

1211 Chestnut St. #1207

800.533.4539

www.mhselfhelp.org [email protected]

Consumer information and referrals, on-site consultation, training events,

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ADVOCACY, EDUCATION, AND INFORMATION

ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20)

This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org.

AdvEdInfoSeptember2013

23

Resource

Program/

Organization

Address

Contact Person

Telephone

Web and/or Email ( @ )

Comments

Philadelphia, PA 19107 215.751.1810

teleconferences and national conferences, consumer library, newsletter, consumer-supported national database. Helps to develop consumer-run self-help groups. Partly funded by Center for Mental Health Services (CMHS).

Parent Empowerment for Advocacy through Knowledge (PEAK)

Philadelphia County 1211 Chestnut St, Ste 1100 Philadelphia, PA 19107

215.751.1800 x234

www.mhasp.org

PEAK empowers parents/caregivers of children and adolescents with emotional and behavioral disorders to become the most effective advocates for their children when accessing, navigating and monitoring child-serving programs in Philadelphia. PEAK is a series of peer led, culturally competent, neighborhood –based training sessions.

Montgomery County 601 Dekalb St., Ste 3 Norristown, PA 19401

610.279.8511

Parents Involved Network of PA (PIN)

Philadelphia County 1211 Chestnut St, Ste 1100 Philadelphia, PA 19107

Becky Espanol, Supervisor

800.688.4226 x500 215.751.1800 x513

www.mhasp.org [email protected]

Statewide support, advocacy, information and referral resource and technical assistance centers for families of children and adolescents who have emotional or behavioral disorders.

Delaware County 133-35 Long Lane Upper Darby, PA 19082

800.688.4226 x500 610.713.9401

www.mhasp.org [email protected]

Montgomery County 601 Dekalb St., Ste 3 Norristown, PA 19401

800.688.4226 x500 610.279-8511

www.mhasp.org [email protected]

Parent Mentor Pamela Quinn 610.668.1934 Education, training and support for parents to advocate for their children.

Local Organizations

Pennsylvania Mental Health Consumers’ Ass’n.

4105 Derry St. Harrisburg 17111

Mary Kohut, Exec. Dir.

800.877.6422 pmhca.org [email protected]

The Coalition for Youth of P.O. Box 23 484.337.8731 www.coalitionforyouthlmn.org Programs and resources to build assets in

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ADVOCACY, EDUCATION, AND INFORMATION

ADVOCACY (pg 1) -- EDUCATION (pg 3) -- INFORMATION (pg 5) -- INFORMATION BY TOPIC (pg 10) -- LOCAL ORGANIZATIONS (pg 20)

This is a partial listing of local and on-line information for people who have mental illness and/or their families. NAMI PA, Main Line (www.NAMIpaMainLine.org) is not a referral service nor are we specifically endorsing these services. However, the information is accurate to the best of our knowledge. Please contact Kristine Songster at [email protected] you have comments, corrections or additions. For information specific to Philadelphia go to http://philadelphia.nami.org or www.philly.networkofcare.org.

AdvEdInfoSeptember2013

24

Resource

Program/

Organization

Address

Contact Person

Telephone

Web and/or Email ( @ )

Comments

Lower Merion and Narberth

Narberth 19072 [email protected] our children, families, and our community, to help reduce stress, alcohol use, drug use, violence, and other risky behavior among youth.

The Institute for Recovery and Community Integration

1211 Chestnut Street, 11th Floor Philadelphia, PA 19107

800.688.4226 ext. 265

www.mhrecovery.org [email protected]

Training and technical assistance resource dedicated to promoting and advancing the principles of recovery and increasing community integration and peer support opportunities for persons with MI. Provides training for Certified Peer Specialists, has library and online newsletter. Sponsored by MHASP.

UPenn Collaborative on Community Integration

University of Pennsylvania School of Medicine 3535 Market Street, 3rd Floor -- CMHPSR Philadelphia, PA 19104

Katy Kaplan, MS.Ed., Center Coordinator

215.746.6713 www.upennrrtc.org [email protected]

Partnership between Rehabilitation Research and Treatment Center, The Clearinghouse at the MHASP, and Matrix Center at Horizon House with a mission to develop technologies of community integration for people with psychiatric disabilities.

Local organizations also sponsor education programs (see above) and support groups (see “Social Opportunities and Support Groups””)