Adults With Autism- Aging, & Mental Health SDASA 031212

8/2/2019 Adults With Autism- Aging, & Mental Health SDASA 031212

1/21

ADULTS WITH AUTISM:

AGING, & MENTAL HEALTHJosh Feder, MD

Autism Society San Diego

March 13, 2012


2/21

START RECORDING.canned intro:

Say the title again


3/21

ADULTS WITH AUTISM:

AGING, & MENTAL HEALTHJosh Feder, MD

Autism Society San Diego

March 13, 2012


4/21

Director of Research, Graduate School,Interdisciplinary Council on Developmental

and Learning Disorders

Assistant Clinical Professor, Voluntary

Dept of Psychiatry, University of Californiaat San Diego School of Medicine

4


5/21

5


6/21

Outline

Remember Rosetta,PA

What do we want?

Ethics

Practicalities

Organizing the approach

Stuck at home

Eventual Placement

6


7/21

What do we want for our (adult) children?

white board discussion


8/21

What do want for our (adult) children?

A meaningful life

Safety and protection

Life, liberty, and the pursuit of happiness

Avoiding pain

Avoiding abandonment

what else?


9/21

Ethics: how do we figure out what's the

right thing to do?

Beneficence - do good

Non-maleficence. - do no harm

Autonomy - (competent to decide?)

Justice - preserving rights, access to services& care


10/21

Ethics: how do we figure out what's theright thing to do?

What are the facts?

What are the options?

What should be done?

Who should decide?


11/21

Practicalities

More on the white board:

What are the everyday things

you worry about most?


12/21

Practicalities-

Home family, function, safety Education/Work - levels ofparticipation and accommodations

Activities/ Recreation critical

importance of play / symbolic or pre-symbolic activity, friendships

Drugs medications; health care;diet, activity, sleep, medical (seizures);

Mental Health- anxiety, depression,etc. and their management.

Sexualityintimacy, what to allow orencourage?


13/21

A general way to do support progress -

using a Developmental, Individualized,Relationship based approach (DIR).

People do things when they care about them.

Leverage what the person is doing

Become part of the persons world

Leverage your relationship to help the person do more

Take into account the persons individual profile


14/21

Developmental Approach

Developmental

Calm enough to interact

Truly connected in the moment

Back and forth flow of communication

Importance of repair of interactions

Waiting for the other person to repair (respond)


15/21

Individual Differences

Sensory modulation and processing

Motor tone and motor planning

Receptive communication (esp. non-verbal)

Expressive communication Visual-spatial abilities

Executive function: idea, plan, sequence, execute, adapt


16/21

Relationship based

Because we do things when we care about people

Need to have us become more interesting and valuedthan the things

Use the relationship to support the persons function Use the relationship to expand the persons function


17/21

Stuck at home

Most frequent concern

Hard to fight the habits

Tighter and tighter circle of anxiety

Gradually stretch the circle toward moreadaptive behavior


18/21

Eventual Placement

Back to the white board:

What are your thoughts?


19/21

Eventual Placement

Why - we age, they get big, sometimesaggressive

When rarely soon enough when it isneeded

What - other relatives? group home?supported living?

How Section 8? SSI?


20/21

Resources

www.circlestretch.com

transition and inclusion resources

Books Temple Grandin, et al

Websites government and others

Local research Bonnie Kramer, et al

Employment services

Supported living services

21
http://www.circlestretch.com/http://www.circlestretch.com/


21/21

21

Adults With Autism- Aging, & Mental Health SDASA 031212

Documents

Transcript of Adults With Autism- Aging, & Mental Health SDASA 031212