Activity report 2015 - Fundació ACE · 0 2000 4000 6000 8000 10000 12000 14000 16000 18000 20000...
Transcript of Activity report 2015 - Fundació ACE · 0 2000 4000 6000 8000 10000 12000 14000 16000 18000 20000...
Vision
At Fundació ACE we work so that someday
Alzheimer’s be-comes history.
Mission
Fundació ACE is an organi-zation serving people who suffer from Alzheimer’s Disease or other dementias and their caregivers.
To do so, it develops actions in the areas of diagnosis, treatment, day-
care, research, education and awareness.
Values
Commitment to people. Teamwork and interdependent work with an international pers-
pective. Pursuit of professional excellence. Promoting positive attitudes and
personal skills. Quality and rigor in the work
done.
Highlights XX anniversary of Fundació ACE.
Venue of the annual meeting of the EADC (European Alzheimer’s Disease Consortium).
The genetic biorepository reaches 10.000 samples.
The caregiver help-line, a model for the Catalan Government.
Approval of the Code of Ethics.
www. f u nd a c i o a c e. c om
Activity report 2015Executive summary
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Diagnostic Visits
Follow up Visits
Total Visits
Fig. 6 - Evolució d'actes mèdics i assistenciasl per any, 1995-2015 ( Increment quinquennal)
9707( 29%)
2,618
18,760( 93%)
5,676( 12%)
17,792( 34%)
3,490( 5%)
7,545( 18%)
11,039( 84%)
6,007( 129%)
24,436(
65%)
3,490( 5%)
2,688( 310%)
3,019( 69%)
Diagnosis is obteined through an interdis-ciplinary process that includes five visits to carry out a comprehensive
assessment and to design intervention proposals that consider the patient’s overall
needs. Specialized medical staff (neurologists, geriatricians and psychiatrists), specialists in
neuropsychology, nursing and social work comprise the multidisciplinary team that carries
out the specific evaluation of the patient.
884 patients diagnosed with Alzheimer’s Disease
Diagnostic Unit
24,436 clinical, ma-
nagement and follow-up visits
Total visits
Follow-up visits
Diagnostic visits
New patients
Follow-up patients
Total patients
Without Impairment 994 1.001 Subjective Memory Complaints 2.400 2.179
TOTAL WITHOUT COGNITIVE IMPAIRMENT 3.394 3.180
Mild Cognitive Impairment (MCI) 5.763 4.087 Other cognitive deficits due to psychiatric diseases 267 264 Déficits secundaris a malalties psiquiàtriques 151 151
TOTAL COGNITIVE IMPAIRMENT WITHOUT DEMENTIA 6.181 4.502
Alzheimer's disease 7.697 9.168 Frontotemporal Dementia (FTLD) 442 498 Vascular Dementia (VD) 1.227 1.496 Lewy body Dementia (LBD) 564 669 Other neurodegenerative dementia 18 17
TOTAL DEMENTIA 9.948 11.848
Others 47 44 Unfinished withdrawals and deceded 150 146
TOTAL UNFINISHED 197 190
TOTAL 19.720 19.720
WITHOUT COGNITIVE IMPAIRMENT CDR 0
COGNITIVE IMPAIRMENT WITHOUT DEMENTIA CDR 0,5
Tipology of Diagnosis Initial diagnosis Final diagnosis
COGNITIVE IMPAIRMENT WITH DEMENTIA CDR 1, 2, 3
UNFINISHED
19,720people diagnosed
since 1995
478patients have changed to a
diagnosis of de-mentia in 2015
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CTs 1996-2015
Started in previous years
New in the year
Total active CTs
Research Unit
10,103genetic samples
Fundació ACE has created a digital database with informa-tion on more than 19,000 anonymous individuals. It has
developed tools for extracting systematic clinical data and has collected samples from over 10,000 people
to extract and analyze their DNA. This collection of genetic material and its associated patient data is the most extensive
in our country and one of the largest in Europe.
151.04 is the impact
factor of the 19 articles published
in 2015
22clinical trials ca-rried out in 2015
This biorepository, together with the expertise of Fundació ACE’s professio-nals, has lead to significant collabora-tions with major international consortia
related to genetic studies on aging. The Fundació is a partner in the transat-lantic international consortium NEU-
ROCHARGE 2 and in the meta-GWAS IGAP project (International Genomics
of Alzheimer’s Project) and the national consortium DEGESCO.
Alzheimer; 500; 36%
Mild Cognitive Impairment;
400; 29%
Healthy Controls; 200; 14%
Vascular Dem.; 100; 7%
Subjective Cognitive Decline; 50; 3%
Other dementias; 50; 4%
FTLD*; 50; 4%
Under diagnostic process; 40; 3%
Fig. 8 - Tipologia del Banc de Mostres Genètiques 2005-2015Total Mostres:
*FTLD: Fronto temporal lobar dementia
Fig. 8 - Tipologia del Banc de Mostres Genètiques 2005-2015Total Mostres:
*FTLD: Fronto temporal lobar dementia
Typology of the samples
Alzheimer; 31; 53%
Mild Cognitive Impairment; 20;
34%
Vascular Dem.; 2; 3%
Mixed Dem.; 4; 7%
Frontotemporal Dem.; 2; 3%
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Day Care Centre (DCC) is aimed at people with Mild Cognitive Impairment and / or dementia. The centre has capacity for 80 users.
Day Care Hospital (DCH) is aimed at people with Mild Cognitive Impairment and / or dementia, primarly under 65. The hospital has capacity for 75 users.
The attention is personalized in small groups, which are determined by the
cognitive state.
Memory workshops (MW) are aimed at people with Mild Cognitive Impairement
and / or early stages of dementia. They have capacity for 80 participants.
The aim of the Day Care Unit is to provide continuous therapeutic care in cognitive, physical, psychological and social, through the Program of Integral Psychostimulation (Tárraga L. &
Boada M. 1990). The person with cognitive impairment and / or dementia and their family take advantage of a comprehensive thera-peutic care with an interdisciplinary approach to meet their needs at
early and moderate stages.
Day Care Unit
Memory workshops users since 1988
Total users of the Day Care UnitDCC & DCH users
251Day Care Centre and
Day Care Hospital users in 2015
59 users of the me-mory workshops; 31 of them with a
diagnosis of Alzhei-mer’s disease
85
156
299
251
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83 72 59
1843
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310
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Total HD & CD Usuaris U.M. (des de 1998) TOTAL Usuaris UAD
Total HD & CD Usuaris U.M. (des de 1998) TOTAL Usuaris UAD