ABILITY Magazine - Def Leppard Issue
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$4.99Volume 2009DEFLEPPARDSALLEN JUNE/JULY
MANAGING EDITORGillian Friedman, MD
EDITORSDiane ChappellDahvi FischerRenne GardnerSonnie GutierrezPamela K. JohnsonJosh PateDavid RadcliffDenise Riccobon, RNJane Wollman RusoffMaya Sabatello, PhD, JD Romney Snyder
MANAGING HEALTH EDITORE. Thomas Chappell, MD
HEALTH EDITORSLarry Goldstein, MDNatalia Ryndin, MD
CONTRIBUTING SENATORU.S. Sen. Tom Harkin (D-IA)
CONTRIBUTING WRITERSLinda Boone HuntGale Kamen, PhDLaurance Johnston, PhDAndrea KardonskyDeborah Max Myles Mellor - Crossword PuzzlePaula Pearlman, JD John PaizisRichard PimentelAllen RuckerKristen McCarthy ThomasBetsy Valnes
HUMOR WRITERSJeff CharleboisGeorge Covington, JDGene Feldman, JD
WEB EDITORJoy Cortes
GRAPHIC ART/ILLUSTRATIONScott JohnsonKeriann Martin Melissa Murphy - Medical Illustration
PHOTOGRAPHYNancy Villere -CrushPhotoStudios.com
The views expressed in this issue maynot be those of ABILITY MagazineLibrary of Congress Washington D.C. ISSN 1062-5321
Copyright 2009 ABILITY Magazine
DIRECTOR OF BUSINESS AFFAIRSJohn Noble, JD
MARKETING/PROMOTIONSJo-Anne BirdwellJacqueline MigellAndrew Spielberg
NEWSSTAND CIRCULATIONJohn Cappello
NON-PROFITSABILITY Awareness/Fuller CenterHabitat for Humanity
6 SENATOR HARKIN The Community Choice Act
8 HUMOR Blame Bin Laden
10 ASHLEYS COLUMN International Language of Pizza
12 ADVENTURE SKILLS More Than a Workshop
14 LISE COX The Blind Leading the Blind
16 HSIEN HAYWARD Volunteering, Travel and Bulls
18 KATRINA Stormy Stories
28 GEORGE COVINGTON A Brush With Andy
30 DRIVEN Beyond an Accessible RV
34 DEF LEPPARDS Rick Allen Tapping Drum Therapy
43 PERFECT CIRCLES One-of-Kind John Michael Stuart
46 OBAMA SIGNS Kennedys Act Expanding Community Service
50 TERRI CHENEY Bipolar or Mood Rainbow Disorder
58 HAWAII Wheels To Water
62 CROSSWORD PUZZLE Guess Your Best!
64 EVENTS & CONFERENCES
74 SUBSCRIBE TO ABILITY MAGAZINE
ABILITY Magazine is published bimonthly by C.R. Cooper, 8941 Atlanta Ave. HB, CA 92646(ISSN 1062-5321) All Rights Reserved.
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Edward M. Kennedy Serve America Act
Terri Cheney p. 50
International Volunteer p. 16
Volunteering Blind p. 14
Ashley Fiolek p. 10
ABILITY 5ABILITY 5
The ABILITY Build programoutreaches to volunteerswith disabilities to helpbuild accessible homes forlow income families. We arecurrently seeking corpora-tions, organizations andchurches to sponsor morehomes. This award-winningprogram builds homes andawareness, changing thelives of everyone involved.
program, the allowable expenses under the program areoften capped on a monthly or yearly basis. Sometimesthese capped amounts may not be sufficient for an individ-ual with a disability, due to the nature of the services andsupports that are necessary to live in the community. Orthe services may be capped in other ways, such as limitedenrollment, limited services, limited disabilities, limitedages, or de facto exclusion of particular conditions.
The vast majority of people prefer to remain in their com-munity and receive the assistance they need with dailyliving at home. This is true for people with physical dis-abilities, intellectual and developmental disabilities. Theability to choose to receive community based servicesand supports is critical to allowing people to lead inde-pendent lives, play an active role in day-to-day familylife, have jobs and participate in their communities.
My bill, the Community Choice Act, simply requires thatall Medicaid eligible individuals with disabilities have achoice between receiving care at home or in an institution.
The Community Choice Act requires that Medicaidrecipients with conditions serious enough to qualify foran institutional level of care must be given access topersonal care services in the community, even in statesthat do not currently offer these services or offer them toa limited population. Personal care services under theCommunity Choice Act include help with accomplish-ing the activities of daily living such as dressing,bathing, grooming and eating; and help with instrumen-tal activities including shopping, chores, meal prepara-tion, finances and health related functions. At the sametime, the combination of financial eligibility limitationsand requirements on the severity of the condition underMedicaid impose realistic limitations on these govern-ment funded services.
Studies show the cost of providing services at home orin the community is much lower than in an institutional-ized setting; that, because providing home and commu-nity based care services is less expensive than nursinghome care, it allows more people to be served; and thatuse of home and community based services can slowgrowth in Medicaid spending.
Addressing our vast unmet long term care needs in thenear future is critical. It needs to be a part of health carereform. The Community Choice Act has the potential notonly to genuinely reduce the numbers of people with dis-abilities living in institutionalized settings, but also toreduce or delay nursing home admissions and to allowmore individuals to receive needed personal care services,while providing Americans with disabilities choice aboutwhere to receive the services and supports they need.
Senator Tom Harkin
The Community Choice Act: Change We NeedIn 1990, Congress overwhelmingly passed the Ameri-cans with Disabilities Act (ADA). The ADA sets outfour goals to truly bring people with disabilities into themainstream of society: equal opportunity, full participa-tion in the community, independent living and economicself-sufficiency. Nine years later, the United StatesSupreme Court, in the Olmstead v. L.C. decision, madeclear that the ADA gives individuals with disabilitiesthe right to make the choice to receive their care in thecommunity rather than in an institutional setting (a nurs-ing home or intermediate care facility for the intellectu-ally disabled). This year marks the 10-year anniversaryof the Olmstead decision.
Unfortunately, 10 years later, federal law still onlyrequires that states cover nursing home care in theirMedicaid programs. There is no similar requirement thatstates provide eligible Medicaid recipients home andcommunity based care services. As a result, individualswith significant disabilities often face the untenablechoice of either receiving their necessary care in a nurs-ing home or other institution, or receiving no services atall. This is unacceptable.
The statistics are even more disproportionate for adultswith physical disabilities. In 2007, 69 percent of Medic-aid long-term care spending for adults with physical dis-abilities paid for institutional services. Only 6 statesspent 50 percent or more of their Medicaid long-termcare dollars on home and community-based services forolder people and adults with physical disabilities whilehalf of the states spent less than 25 percent. This imbal-ance continues even though, on average, it is estimatedthat Medicaid dollars can support nearly three adultswith physical disabilities in home and community-basedservices for every person in a nursing home.
Although every state has chosen to provide certain ser-vices under home and community-based waivers, theseservices are unevenly available within and across states,and reach a small percentage of eligible individuals. Indi-viduals with the most significant disabilities are usuallyafforded the least amount of choice, despite advances inmedical and assistive technologies and related areas. Inmany states there are significant waiting lists for thesewaivers, and this often results in the worsening of currentdisabling conditions or the exacerbation of secondary con-ditions. Even after one is deemed eligible for a waiver
There is a dying art in the world today. It is calledtaking responsibility for ones own actions. It usu-ally means that you were wrong doing something.But, come on, who wants to ever admit they were wrong?
I must admit, irresponsibility is a big peeve of mine. Thereason why is because, simply put, Im a responsibleguy. I make my b