A COMPARATIVE STUDY OF PATHWAYS TO FIRST-EPISODE CARE FOR PSYCHOSIS IN THREE ETHNIC GROUPS IN...
Transcript of A COMPARATIVE STUDY OF PATHWAYS TO FIRST-EPISODE CARE FOR PSYCHOSIS IN THREE ETHNIC GROUPS IN...
S48 Abstracts of the 4th Biennial Schizophrenia International Research Conference / Schizophrenia Research 153, Supplement 1 (2014) S1–S384
A COMPARATIVE STUDY OF PATHWAYS TO FIRST-EPISODE CARE FOR
PSYCHOSIS IN THREE ETHNIC GROUPS IN ONTARIO, CANADA:
THE AFRICAN, CARIBBEAN, & EUROPEAN PROJECT (ACE)
Kelly K. Anderson1, Nina Flora2, Manuela Ferrari2, Andrew Tuck2,
Suzanne Archie3, Sean Kidd2,4, Taryn Tang4, Kwame McKenzie2,4
1Centre for Addiction and Mental Health; 2Social and Epidemiological
Research, Centre for Addiction and Mental Health (CAMH) Toronto, Ontario,
Canada; 3Department of Psychiatry and Behavioural Neurosciences, McMaster
University, Hamilton, Ontario, Canada; 4Department of Psychiatry, University
of Toronto, Toronto Ontario, Canada
Differences in the pathways to care for ethnic minority groups are well
documented in the international literature for chronic psychiatric disorders.
Relatively less research has been done on first-episode psychosis specifi-
cally, or in a Canadian context. We recruited a sample of 171 FEP clients
of Black-African, Black-Caribbean, and White-European origin from both
hospital- and community-based early intervention programs in Toronto and
Hamilton. We compared the three ethnic groups on duration of untreated
psychosis and key indicators of the pathway to care. Compared with the
White-European group, Black-Caribbean clients had an increased likelihood
of referral from an inpatient unit to early intervention services (OR=3.33,
95% CI=1.46–7.60) and a decreased likelihood of general practitioner in-
volvement on the pathway to care (OR=0.17, 95% CI=0.07–0.46), as well as
fewer total contacts (OR=0.77, 95% CI=0.60–0.99). Black-African clients had
an increased likelihood of making contact with the emergency department
at first contact (OR=3.78, 95% CI=1.31–10.92). Differences in the duration
of untreated psychosis across the ethnic groups were not statistically sig-
nificant. Our findings suggest that there are significant differences in the
pathways to early intervention services for psychosis for clients of African-
and Caribbean-origin in our Canadian context. It is essential to gain a
comprehensive understanding of the pathways that different ethnic groups
take to early intervention services, and the reasons behind any observed
differences, to inform the development of equitable services targeting
patients in the critical early stages of psychotic disorder.
THE USE OF SOCIAL MEDIA IN EARLY PSYCHOSIS
Michael L. Birnbaum
Zucker Hillside Hospital
There have been increasing efforts to determine the factors contributing
to lengthy duration of untreated psychosis and to understand the barriers
to receiving timely and appropriate care. Possibly one of the greatest, and
least explored, contributors to treatment delay is the initial decision to
seek care. We therefore set out to elucidate the decision making process
and to identify the resources used to inform this decision. We initially
surveyed a sample of first episode patients in the Early Treatment Program,
retrospectively exploring what changes participants noted in their thoughts
and behaviors and what resources participants used to educate themselves.
Given that millions of American youth are online, sharing ideas daily, we
focused our attention on how social media is used as means of obtaining
information, communicating distress, seeking help, expressing psychotic
thought content and connecting with others. We simultaneously extracted
data from participant’s social media feeds from the day of inception going
back two years. Our preliminary data suggests that in fact youth in the early
stages of psychosis are regularly interacting with social media alongside
their healthy counterparts. Additionally, as psychotic symptoms emerge,
patterns, frequency and shared content change. Finally, we explored what
online resources might be available to information-seeking individuals as
symptoms first emerge. Using 18 hypothetical search terms developed by
Early Treatment Program staff and informed by data gathered from our
survey, we searched Google, Facebook and Twitter, and extracted the first
5 hits from each. An alarmingly few online resources encourage potentially
psychotic youth to seek professional evaluation. Given the severity and
potential destructive outcome of untreated psychosis, we must explore in-
novative and novel strategies of early identification and treatment including
changing the online experience of youth.
REDUCING DURATION OF UNTREATED PSYCHOSIS: CARE PATHWAYS TO
EARLY INTERVENTION IN PSYCHOSIS SERVICES
Max Birchwood1, Charlotte Connor2, Helen Lester2, Paul Patterson2,
Nick Freemantle2, Max Marshall2, David Fowler3, Shon Lewis2,
Tim Amos2, Linda Everard2, Peter Jones4, Swaran P. Singh2
1School of Psychology, University of Birmingham; 2University of Birmingham,
Birmingham, U.K; 3University of Sussex; 4Department Psychiatry, University of
Cambridge
Interventions to reduce treatment delay in first-episode psychosis have
met with mixed results. Systematic reviews highlight the need for greater
understanding of delays within the care pathway if successful strategies are
to be developed. Our objectives were to (1) document the care-pathway
components of duration of untreated psychosis (DUP) and their link with
delays in accessing specialised early intervention services (EIS), and (2)
model the likely impact on efforts to reduce DUP of targeted changes in
the care pathway. Data for 343 individuals from the Birmingham, UK, lead
site of the National EDEN cohort study were analysed. A third of the cohort
had a DUP exceeding 6 months. The greatest contribution to DUP for the
whole cohort came from delays within mental health services, followed by
help-seeking delays. It was found that delay in reaching EIS was strongly
correlated with longer DUP. Community education and awareness cam-
paigns to reduce DUP may be constrained by later delays within mental
health services, especially access to EIS. Our methodology, based on anal-
ysis of care pathways, will have international application when devising
strategies to reduce DUP.
HELP-SEEKING AND PATHWAYS TO CARE IN THE EARLY STAGES OF
PSYCHOSIS: RESULTS FROM THE FEPSY STUDY
Anita Riecher-Rössler1, Gertraud J. Fridgen2, Jacqueline Aston3
1University of Basel; 2Bezirkskrankenhaus Landshut, Prof. Buchner; 3University
of Basel Psychiatric Clinics, Basel, Switzerland
Background: Patients with first episode psychosis (FEP) on average experi-
ence unspecific symptoms 4 to 5 years and psychotic symptoms 1 to 2 years
before they seek treatment. Untreated psychosis has negative effects on the
individuals’ social networks, vocational and educational achievements, and
duration of untreated psychosis seems to be associated with more severe
symptoms, worse treatment response, and poorer overall outcome. It is
therefore important to examine pathways to care to understand factors
contributing to delay in access to adequate care.
Methods: We examined the help-seeking behavior of 61 individuals with
an at-risk mental state for psychosis (ARMS) and 37 FEP patients in a
low-threshold health care system within the FePsy (Früherkennung von
Psychosen) early detection of psychoses study, using the Basel Interview
for Psychoses. At the same time we examined the first signs and symptoms
as perceived by the patients themselves.
Results: The mean duration of untreated illness was 3.5 years and of
untreated psychosis 12 months. 86% of all individuals had sought help of
some kind before reaching our specialized clinic. First help-seeking contact
was usually with family members or relatives (27%), close friends (18%),
office psychiatrists (14%), or general practitioners (12%). During further
course most patients consulted some health professionals before reaching
our specialized service. Help-seeking with non-medical institutions was
rare. Women had more help-seeking contacts than men before contacting
our early detection clinic. ARMS and FEP patients remembered mainly loss
of energy and difficulties concentrating as their first symptoms. Also de-
pression, social isolation, over-sensitivity and irritability, anxiety, unusual
fears, and suspiciousness were reported.
Discussion: Family, close friends and medical professionals play an im-
portant role in help-seeking, leading to specialized psychiatric care. More
efforts should be made to educate the public about symptoms of emerg-
ing psychosis and the help that can be offered. Also better strategies for
encouraging those concerned to seek help, especially young at-risk men,
should be developed.
References:[1] Fridgen GJ, Aston J, Gschwandtner U, Pflueger M, Zimmermann R, Studerus E,
Stieglitz RD, Riecher-Rössler A: Help-seeking and pathways to care in the early
stages of psychosis. Soc Psychiatry Psychiatr Epidemiol 2013;48:1033–1043