A Community Designing the Future
Transcript of A Community Designing the Future
Joyce Lee, MD, MPH Nightscout Community
@NightscoutProj @joyclee #wearenotwaiting
Nightscout: A Community Designing the Future of Healthcare
Social Media Editor, JAMA Pediatrics
Healthdesignby.us
@joyclee
75% of children fail to achieve
recommended blood sugar goals in Type 1 Diabetes
Healthcare: “Fax us your numbers!” Kid: “Mom, what’s a fax? Is it compatible with Snapchat?”
Some people wonder why almost no one uploads their pump data…
I think I know why: because getting it to work can be like
CRAWLING. THROUGH. BROKEN. GLASS.
@HowardLook
75% of providers/healthcare
systems fail to help children achieve
recommended blood sugar goals in Type 1 Diabetes
Patient problems are really
design problems
Joyce Lee, MD Medical Designer
Fix the design, and it’s no longer the
patient’s problem
Joyce Lee, MD Medical Designer
Let patients and caregivers design, and they will
fix the problem!
The Nightscout Project
Patient as
expert maker
collaborator #thefutureofdiabetestechnology
Patient as
expert
http://bit.ly/10IUyph
Patient as
maker
Patient as
collaborator
“We continued to work on our apps and tools, more folks on twitter began to notice – and it became very clear that people really wanted this tool. It was life changing for us, and other parent’s immediately saw the value, the hope for a less complex, safer, healthier life it can bring.”
“Freedom!”
“We continued to work on our apps and tools, more folks on twitter began to notice – and it became very clear that people really wanted this tool. It was life changing for us, and other parent’s immediately saw the value, the hope for a less complex, safer, healthier life it can bring.”
“Freedom!” -John Costik
12,500+ members
#diyps OpenAPS.org
Upcoming Nightscout Studies
• Descriptive Survey
• Ethnography (Health communities/Makers)
• Facebook Mining
• Patient-driven Research Network?
Take the survey! www.nightscoutsurvey.info
# of completed surveys 1 day after release!
MD to Patient Passive Solitary Closed
Patient to Patient Active
Collaborative Open
THANK YOU The CGM in the Cloud community Emily Hirschfeld, Preciosa Choi, Weston Nordgren, Ben West,
Dana Lewis, Scott Leibrand, Jason Adams, John Costik, James Wedding,
Nightscout Foundation Twitter: @NightscoutProj
FB: CGM in the Cloud #wearenotwaiting